Health Care Transitions最新文献

筛选
英文 中文
Sickle cell disease and adolescents’ perspectives on self-care management resources 镰状细胞病与青少年自我保健管理资源的观点
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100026
Dora L. Clayton-Jones , Jill B. Hamilton , Kristin Haglund , Lee Za Ong , Kalen C. Kennedy , Sylvia Pena , Latoya Stamper , Coretta Jenerette
{"title":"Sickle cell disease and adolescents’ perspectives on self-care management resources","authors":"Dora L. Clayton-Jones ,&nbsp;Jill B. Hamilton ,&nbsp;Kristin Haglund ,&nbsp;Lee Za Ong ,&nbsp;Kalen C. Kennedy ,&nbsp;Sylvia Pena ,&nbsp;Latoya Stamper ,&nbsp;Coretta Jenerette","doi":"10.1016/j.hctj.2023.100026","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100026","url":null,"abstract":"<div><h3>Background</h3><p>Adolescents with sickle cell disease (SCD) face unique challenges, especially during the critical health care transition from pediatric to adult care. The purpose of this study was to gather the perspectives of adolescents living with SCD and to describe their self-care management experiences prior to their move into the adult health care system.</p></div><div><h3>Methods</h3><p>Guided by the Theory of Self-Care Management for Sickle Cell Disease, this qualitative descriptive study used semi-structured interviews with 11 adolescents with SCD (M = 16.63 years, SD = 1.15). In addition to a demographic survey, adolescents answered interview questions about their perceptions of their self-care management, health care transition readiness, support, and spiritual well-being. Data were analyzed using a template analysis style.</p></div><div><h3>Results</h3><p>Four major themes were identified: attaining vocational aspirations, maintaining effective self-care management strategies, managing and maintaining social support, and building resilience through spirituality and religion. Maintaining, effective self-care management strategies had three threads: coping behaviors, health care transition needs, and self-care management strengths.</p></div><div><h3>Discussion</h3><p>Identifying self-care management resources and areas where further attention is needed can be helpful for health care providers when developing age specific plans. A tailored approach to care during this critical health care transition period can also build capacity for a successful transition for adolescents.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100026"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000260/pdfft?md5=579584d10bf0b205e8307f90f66ba02e&pid=1-s2.0-S2949923223000260-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92025770","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transition practices of college students with a mental health disorder 大学生心理健康障碍的过渡实践
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100020
Cara C. Young , Susan J. Calloway , Nani Kim
{"title":"Transition practices of college students with a mental health disorder","authors":"Cara C. Young ,&nbsp;Susan J. Calloway ,&nbsp;Nani Kim","doi":"10.1016/j.hctj.2023.100020","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100020","url":null,"abstract":"<div><h3>Objective</h3><p>To explore transition practices, mental health promotion, and psychological health among college students with a mental health disorder.</p></div><div><h3>Participants</h3><p>data were collected from college students attending a southwestern university.</p></div><div><h3>Methods</h3><p>a web-based survey of transition practices, mental health promotion activities, and psychological health (i.e., self-efficacy, life satisfaction, and loneliness). A semi-structured interview was offered to all participants.</p></div><div><h3>Results</h3><p>A total of 140 participants (M age = 20.67 [SD=1.88]) completed the survey and N=29 (M age = 20.24 [SD=1.84] completed a semi-structured interview. When preparing for the transition into college, participants frequently considered geographical distance from home, living in a dormitory setting, and the student orientation/integration process. After entering a university, the student counseling center was accessed by 20.2% while only 6.4% filed for 504 accommodations. All participants considered having a close friend as important for mental health promotion.</p></div><div><h3>Conclusions</h3><p>A formal process of transition planning as it related to optimizing mental health was not consistently undertaken. Proactive transition interventions for college-bound students with a mental health disorder are needed and could include planning for ways to become involved in campus life and filing 504 accommodations to support academic success.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100020"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49743557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What adult gastroenterologists should know about young adults with IBD: Navigating transition of care for young adults with IBD 关于年轻IBD患者,成年胃肠病学家应该知道的:年轻IBD患者护理的过渡指南
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100016
Sydney Reed , Linda Yoo , Amy Bugwadia , Navin Kariyawasam , Sneha Dave
{"title":"What adult gastroenterologists should know about young adults with IBD: Navigating transition of care for young adults with IBD","authors":"Sydney Reed ,&nbsp;Linda Yoo ,&nbsp;Amy Bugwadia ,&nbsp;Navin Kariyawasam ,&nbsp;Sneha Dave","doi":"10.1016/j.hctj.2023.100016","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100016","url":null,"abstract":"<div><p>The transition from pediatric to adult care for young adults with inflammatory bowel diseases (IBD) presents unique challenges that can impact the quality of care and patient outcomes. This article summarizes the discussions held during the Roundtable on Young Adults with IBD, focusing on essential information for adult-care providers dealing with patients in transition. Key areas of focus include readiness for transition, effective communication between pediatric and adult providers, transfer of responsibility and care management from caregivers to patients, reforming systems that complicate the transition process, and the importance of support interventions. Addressing these considerations can help healthcare professionals navigate the complexities of transitioning young adults with IBD, ensuring a smoother and more supportive journey into adulthood.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100016"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49744140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceptions of caregivers and adolescents/young adults with cystic fibrosis regarding health care transition readiness during the COVID-19 pandemic: A qualitative study 在COVID-19大流行期间,照顾者和患有囊性纤维化的青少年/年轻成人对卫生保健过渡准备的看法:一项定性研究
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100011
Tyra C. Girdwood , Jennifer L. Goralski , Maria E. Ferris , Mary R. Lynn , Elisabeth P. Dellon , Kirsten Kainz , Mark P. Toles
{"title":"Perceptions of caregivers and adolescents/young adults with cystic fibrosis regarding health care transition readiness during the COVID-19 pandemic: A qualitative study","authors":"Tyra C. Girdwood ,&nbsp;Jennifer L. Goralski ,&nbsp;Maria E. Ferris ,&nbsp;Mary R. Lynn ,&nbsp;Elisabeth P. Dellon ,&nbsp;Kirsten Kainz ,&nbsp;Mark P. Toles","doi":"10.1016/j.hctj.2023.100011","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100011","url":null,"abstract":"<div><h3>Purpose</h3><p>Medical advances have increased the life expectancy of adolescents and young adults (AYA) with cystic fibrosis (CF) and importance of high-quality health care transitions (HCT) from pediatric-to-adult focused health care. The purpose of this study was to describe perceptions of HCT readiness among caregivers and AYA with CF during the COVID-19 pandemic.</p></div><div><h3>Design and methods</h3><p>Using a qualitative descriptive design, caregivers and AYA aged 12–21 years old were recruited from three large CF care centers across the eastern U.S. Data were collected using an online questionnaire with open ended and closed ended questions. Survey topics were: perceptions of HCT readiness, actions to prepare for HCT, and the impact of COVID-19. Results were interpreted using an adapted framework of the Health Care Transition Research Consortium Model and qualitative content analysis.</p></div><div><h3>Results</h3><p>The sample included 73 caregivers (62 mothers) and 34 AYA (24 female, mean age 15.5 years). Three attributes of HCT readiness were identified from caregiver and AYA perceptions: (1) strong concerns that AYA lacked readiness to manage self-care needs in the future, (2) gaps in resources hindered ongoing efforts to enhance transition readiness, and (3) COVID changes created new barriers and facilitators to health care transition readiness.</p></div><div><h3>Conclusions</h3><p>Caregivers and AYA felt they lacked readiness for HCT, they worried about worsening outcomes in adult-focused care, and they were challenged by the onset of the COVID-19 pandemic.</p></div><div><h3>Practical implications</h3><p>These findings provide a solid description of perceived transition readiness during a pandemic that may enhance transitional care design.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100011"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49763839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Do young adults complete health care proxies before anesthesia? 年轻人在麻醉前完成医疗保健代理吗?
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100025
Matthew C. Spence , Theresa Serra , Elissa Gross
{"title":"Do young adults complete health care proxies before anesthesia?","authors":"Matthew C. Spence ,&nbsp;Theresa Serra ,&nbsp;Elissa Gross","doi":"10.1016/j.hctj.2023.100025","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100025","url":null,"abstract":"<div><h3>Background</h3><p>Health care proxy (HCP) completion rates by older adults are relatively low; however, not much is known about proxy completion rates by younger adults.</p></div><div><h3>Objectives</h3><p>This study aimed to identify HCP completion rates amongst 18–21 year old young adults without intellectual disabilities admitted to a pediatric hospital peri-anesthesia care unit (PACU) and determine whether there was an association with any demographic factors.</p></div><div><h3>Methods</h3><p>Retrospective chart review was performed to describe demographic variables, presence of HCP, and relationship to proxy. The relationship between demographic groups and HCP completion was analyzed by chi-square analysis for categorical variables and student t-test for continuous variables.</p></div><div><h3>Results</h3><p>Overall, 31.4 % (128/408) of patients completed an HCP, and younger patients were more likely to have done so. Analysis showed no statistically significant relationship between other demographic variables and HCP completion. A majority of patients identified a parent as their proxy.</p></div><div><h3>Conclusion</h3><p>Less than one third of young adult patients admitted to a children’s hospital perioperative care unit completed a health care proxy. Other than age, there was no statistically significant difference in demographic variables between those who completed and did not complete a health care proxy. Further research is needed to validate these findings in other clinical settings and drive targeted initiatives to increase advance care planning among young adult patients.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100025"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000259/pdfft?md5=3a10889a6c8c9ae29c66a183bf1812f7&pid=1-s2.0-S2949923223000259-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91986937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Provider’s perspectives regarding transitional urologic care process: A scoping review 提供者对过渡性泌尿外科护理过程的看法:范围界定综述
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100013
Michael Chua , Lai Nam Tse , Mandy Rickard , Peter Wang , Jan Michael Silangcruz , Joana Dos Santos , Abby Varghese , Natasha Brownrigg , Jessica Ming , Armando Lorenzo , Darius Bagli
{"title":"Provider’s perspectives regarding transitional urologic care process: A scoping review","authors":"Michael Chua ,&nbsp;Lai Nam Tse ,&nbsp;Mandy Rickard ,&nbsp;Peter Wang ,&nbsp;Jan Michael Silangcruz ,&nbsp;Joana Dos Santos ,&nbsp;Abby Varghese ,&nbsp;Natasha Brownrigg ,&nbsp;Jessica Ming ,&nbsp;Armando Lorenzo ,&nbsp;Darius Bagli","doi":"10.1016/j.hctj.2023.100013","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100013","url":null,"abstract":"<div><h3>Objective</h3><p>To generate a scoping review that summarizes perceptions and attitudes of urology providers towards the transitional urologic care process. Likewise, summarize their identified barriers, facilitators, and ideal transition care for patients with genitourinary conditions.</p></div><div><h3>Method</h3><p>A systematic literature search was performed in Oct 2021. Records were identified for studies relevant to assessing urology specialists' practice variation, perception of barriers, and attitudes toward transitional care of patients needing life-long urologic care. The methodological quality of the cross-sectional studies was assessed using AXIS. The information extracted was clustered according to identified themes from the included studies. This scoping review was part of a systematic review registered on PROSPERO-(CRD42022306229).</p></div><div><h3>Results</h3><p>A total of 641 records were retrieved from electronic medical databases and cross-referencing. Ultimately, ten studies were included in this scoping review, conducted in the USA (n = 7), Canada, United Kingdom, and Italy. There is a wide variation in transitional care practices and preferences. However, the common themes extracted were: appropriate age to start the transition, additional training of the providers involved in transitional care, common transition plans, and practices, characteristics of multidisciplinary teams, potential barriers, areas of improvement, or facilitators for a better transitional process.</p></div><div><h3>Conclusion</h3><p>Common to all reports, multiple barriers are perceived. Areas that require improvement and multidisciplinary systems are needed to enhance urologic transition care. In addition, factors such as the age cut-off between pediatric and adult care or which specialist should handle specific procedures and conditions before, during, and after transition are still unclear and typically depend on the stakeholders.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100013"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49763843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transition readiness measures for adolescents with chronic illness: A scoping review of new measures 青少年慢性疾病的过渡准备措施:新措施的范围审查
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100022
Tieghan Killackey , Fareha Nishat , Ellen Elsman , Erica Lawson , Lauren Kelenc , Jennifer N. Stinson
{"title":"Transition readiness measures for adolescents with chronic illness: A scoping review of new measures","authors":"Tieghan Killackey ,&nbsp;Fareha Nishat ,&nbsp;Ellen Elsman ,&nbsp;Erica Lawson ,&nbsp;Lauren Kelenc ,&nbsp;Jennifer N. Stinson","doi":"10.1016/j.hctj.2023.100022","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100022","url":null,"abstract":"<div><h3>Background</h3><p>The transition from pediatric to adult care settings for adolescents and young adults living with chronic conditions can be challenging and has been associated with declines in health and access to care. Well-validated measures of patients’ transition readiness are critical, both for use in the clinical setting and to rigorously evaluate transition support programs for the purposes of research and health care quality improvement.</p></div><div><h3>Objectives</h3><p>This review aimed to build off existing reviews and 1) identify and describe all newly developed and validated measures for the assessment of transition readiness for youth with chronic illness from the period of 2018–2022, and 2) evaluate their measurement properties and identify gaps in measurement testing.</p></div><div><h3>Methods</h3><p>Electronic searches were conducted in MEDLINE, EMBASE, CINAHL and PsychINFO to identify articles developing and validating transition readiness in individuals aged 12–26 years with a chronic illness between 2018 and 2022. Two reviewers independently selected articles for review and assessed quality of measurement properties.</p></div><div><h3>Results</h3><p>22 studies met inclusion criteria reporting on 21 different tools. 9 studies reported on the development and evaluation of a new tool, and 13 reported on the adaptation, modification, and/or translation of an existing tool. Most adapted tools were translations and adaptations of the Transition Readiness Assessment Questionnaire (TRAQ) (n = 7). While some of these studies demonstrated sufficient internal consistency and structural validity, few met the COSMIN criteria for reliability and hypothesis testing and none met the criteria for cross-cultural validity. Criterion validity and measurement error were not assessed in any studies.</p></div><div><h3>Conclusion</h3><p>Many new transition readiness measures continue to be developed in recent years, yet few have undergone rigorous psychometric evaluation. The TRAQ was the existing measure most often used as a model for developing new or modified tools. There remains a clear need for further validation of existing measures of patients’ readiness to transition as opposed to continuing to develop new measures.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100022"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49743560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceptions of transitional care needs of adolescents and young adults with special healthcare needs and their parents 对有特殊保健需要的青少年和青年及其父母的过渡性护理需要的看法
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100007
Benedicta C. Anikputa, Sharon D. Horner
{"title":"Perceptions of transitional care needs of adolescents and young adults with special healthcare needs and their parents","authors":"Benedicta C. Anikputa,&nbsp;Sharon D. Horner","doi":"10.1016/j.hctj.2023.100007","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100007","url":null,"abstract":"<div><h3>Background</h3><p>As children with special healthcare needs (SHCN) mature, they will transition from pediatric to adult healthcare providers. Close to 80% of adolescents with SHCN reported not receiving services necessary for transition to adult health care. The purpose of this study was to examine the perceptions of the transition experience of Adolescents and Young Adults (AYA) and their parents. Participants were diagnosed with either inflammatory bowel disease or a congenital heart condition.</p></div><div><h3>Methods</h3><p>A qualitative descriptive study was conducted with participants recruited from specialty pediatric care clinics that served patients with inflammatory bowel disease and congenital heart conditions. Study procedures (recruitment, consent, interview guide) were approved by the clinic staff, the hospital steering committee, and the University IRB. Interviews with AYA and with parents were conducted separately, transcribed, and then coded to identify themes.</p></div><div><h3>Results</h3><p>Interviews were completed with 8 AYA and 8 parent dyads. The identified themes were Transfer of Care, Mastery, and Support. The Transfer of Care theme reflected participants’ worries about moving from their pediatric provider to the new adult provider. The Mastery theme revealed participants lacked confidence in their self-management skills. In the Support theme, participants wanted to be prepared and familiar with the transition process and to become comfortable in the new adult world.</p></div><div><h3>Conclusions</h3><p>Recommendations shared with clinic providers were to start conversations that directly addressed the transition process early, to provide information and to encourage the AYA to ask questions. In addition, the clinics could encourage AYA to start being responsible for the routine clinic visit paperwork with guidance from the parent.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100007"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49757663","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Riding the wave: A grounded theory of transplant transition in adolescents and youth adults 乘风而上:在青少年和青年成人移植过渡的接地理论
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100019
Angie Lim, Lenora Marcellus
{"title":"Riding the wave: A grounded theory of transplant transition in adolescents and youth adults","authors":"Angie Lim,&nbsp;Lenora Marcellus","doi":"10.1016/j.hctj.2023.100019","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100019","url":null,"abstract":"<div><h3>Objectives</h3><p>The health care transition from pediatric to adult-focused health care for adolescent and young adult (AYA) organ transplant recipients is a critical yet understudied period. Unique challenges include supporting adherence to immunosuppressive regimens and addressing psychosocial factors that impact long-term graft survival and recipient well-being. The objective of this study was to understand how AYAs prepared for and engaged in the transition process.</p></div><div><h3>Methods</h3><p>Constructivist grounded theory, underpinned by symbolic interactionism, was employed to systematically gather, synthesize, analyze, and conceptualize qualitative data from in-depth interviews with 14 transplant recipients, their families, and pediatric nurses, and related online social media stories.</p></div><div><h3>Results</h3><p>The overall process participants experienced was that of <em>riding the wave of change: transforming through transition,</em> which they did through navigating four phases: (1) anticipating the impending transition, (2) losing security when transitioning to uncertainty, (3) seeking supportive anchors in the swell of transition, and (4) gaining a new sense of self.</p></div><div><h3>Conclusions</h3><p>AYA transplant recipients undergo numerous changes as they enter adulthood and adult-focused health care. There are many opportunities for pediatric and adult health care providers to collaborate to strengthen support for AYA recipients and their families during this critical period. Developmental and trauma-informed approaches are recommended to support successful transition.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100019"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49743870","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pediatric to adult primary care transition for medically complex youth: A tale of learning from challenges experienced implementing a pilot project during COVID-19 医疗复杂的青年从儿科到成人初级保健的过渡:从2019冠状病毒病期间实施试点项目所遇到的挑战中学习的故事
Health Care Transitions Pub Date : 2023-01-01 DOI: 10.1016/j.hctj.2023.100027
Reem Hasan , Reyna Lindert , Danielle Sullivan , Shreya Roy , Alison J. Martin
{"title":"Pediatric to adult primary care transition for medically complex youth: A tale of learning from challenges experienced implementing a pilot project during COVID-19","authors":"Reem Hasan ,&nbsp;Reyna Lindert ,&nbsp;Danielle Sullivan ,&nbsp;Shreya Roy ,&nbsp;Alison J. Martin","doi":"10.1016/j.hctj.2023.100027","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100027","url":null,"abstract":"<div><h3>Purpose</h3><p>The aim of our article is to describe our learning based on challenges encountered implementing two related pediatric to adult primary care transition pilots for medically complex adolescents and young adults as part of the Children with Medical Complexity Collaborative for Improvement and Innovation Network.</p></div><div><h3>Design</h3><p>We undertook two sequential pilot projects. The first focused on supporting the transfer stage for an older group of medically complex young adults to facilitate their establishment with an adult primary care provider. Based on our learning from barriers encountered, and setting constraints due to COVID-19, we developed and implemented a second project to engage pediatric primary care providers in initiating and documenting transition preparation discussions for a younger group of medically complex youth. A multi-disciplinary Implementation Team guided each phase’s implementation.</p></div><div><h3>Results</h3><p>We did not achieve our objective in the first pilot, partly due to provider reluctance. Providers perceived the patient was not ready, reported that the patient was experiencing active health problems, or wanted to keep the patient on their panel. We partially achieved the second pilot’s objective; three-quarters of identified patients completed their appointments, and electronic health record documentation suggests that providers initiated transition discussions with more than half of those patients.</p></div><div><h3>Conclusions</h3><p>Pediatric primary care has an important role in supporting health care transition for medically complex youth. Our findings suggest that pediatric primary care providers require time, connection to adult PCPs, and educational support to realize this role.</p></div><div><h3>Practice implications</h3><p>To provide comprehensive transition services for medically complex patients, pediatric primary care will need to develop relationships with adult primary care providers, make available training about transition preparation for its providers, and support patients and families in locating adult primary care providers who are accepting new patients.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100027"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000272/pdfft?md5=94683916870aadec07c71071884226c6&pid=1-s2.0-S2949923223000272-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92025769","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信