Health Care TransitionsPub Date : 2024-01-01Epub Date: 2024-07-09DOI: 10.1016/j.hctj.2024.100062
Victor C. Showalter, Angela C. Salazar, Jason M. Wilson, Jessica M. Ming
{"title":"Pediatric urology patient transition to adulthood: Brief report on the barriers and shortcomings in a resource poor state","authors":"Victor C. Showalter, Angela C. Salazar, Jason M. Wilson, Jessica M. Ming","doi":"10.1016/j.hctj.2024.100062","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100062","url":null,"abstract":"<div><h3>Introduction and Objectives</h3><p>To evaluate the readiness of pediatric spina bifida (SB) patients to transition from pediatric to adult urologic care. Since 1975 the survival rate of SB has increased from less than 50 % to 85 %. Adult SB patients have increased urologic needs due to their increased risk of complications including: 7–11 times risk of renal failure, 2 times risk of bladder cancer, and 46 times risk likely of UTIs. These SB complications resulted in 37,000 hospitalization from 2004–2005 with one third of those being deemed preventable. Research has shown that adult SB patients who have successfully transitioned to adult care utilize less care 5.33 annual ambulatory visits compared to 7.25 in the non-transitioned counterparts. Our goal is to evaluate barriers, concerns, and comfort in skills deemed necessary for an SB patient’s successful transition to adult care in a resource poor state.</p></div><div><h3>Material and Methods</h3><p>All SB patients between the ages of 12–18 who participate in the multidisciplinary clinic and are seen by urology at UNM were eligible and offered to complete a questionnaire prior to their clinic visit. The questionnaire addressed awareness, fears and desire to learn about transitioning.</p></div><div><h3>Results</h3><p>Of the SB patients that were eligible for the study 10 have filled out the survey. The average age is 17.7. While 70 % know the meaning of transition, only 40 % have thought about the process. 70 % of patients believe the best age to transition is 19–21. The most prominent fears about transition included leaving current urologist (60 %), increasing responsibility for their own care (50 %), and the new urologist not knowing their past medical history (50 %) (Fig 1). Questions evaluating preferred method transition education 60 % preferred talking with the pediatric urologist, and marked they would like to meet with the pediatric urologist and adult urologist simultaneously.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100062"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000229/pdfft?md5=68601c18d533ca72ae70c8380a82f09c&pid=1-s2.0-S2949923224000229-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141595915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2024-10-14DOI: 10.1016/j.hctj.2024.100073
Elizabeth A. Minchau , Billie S. Vance , Emily Barnes
{"title":"Development of a transition program for emerging adults with type 1 diabetes: A quality improvement initiative","authors":"Elizabeth A. Minchau , Billie S. Vance , Emily Barnes","doi":"10.1016/j.hctj.2024.100073","DOIUrl":"10.1016/j.hctj.2024.100073","url":null,"abstract":"<div><h3>Background</h3><div>Emerging adults with type 1 diabetes (T1D) struggle with glycemic management that can be exacerbated by a disorganized transition process. Substantial gaps in care have been noted during this transition period and have been shown to lead to suboptimal health care utilization, worsening glycemic management, increased incidence of serious complications, and mental health challenges. A formal transition program can help prevent gaps in care, improve disease self-management skills, decrease disease burden, and reduce diabetes complications.</div></div><div><h3>Purpose</h3><div>There is an increased focus within the pediatric community to formally prepare young adults with T1D as they transition to the adult health care setting. The purpose of the quality improvement initiative was to develop a transition program for adolescents with T1D in a pediatric endocrinology clinic within an academic medical center.</div></div><div><h3>Methods/interventions</h3><div>The Institute for Healthcare Improvement <em>Model for Improvement</em> was used to guide this project. Got Transition's® <em>Six Core Elements of Health Care Transition</em> were adapted to the unique needs of the pediatric endocrinology setting by incorporating diabetes-specific transition guidelines recommended by the American Diabetes Association (ADA). A new program was designed to target patients between the ages of 16–18 offering structured transition visits focused on enhancing knowledge and skills related to the management of T1D and improving the transfer of care process between pediatric and adult providers. Key elements of the program were integrated into the electronic health record. A focus group with clinical partners was used to evaluate the acceptability and practicality of the program.</div></div><div><h3>Results</h3><div>Transition activity within the clinic increased from 12/32–28/32 on the <em>Current Assessment of Healthcare Transition Activities</em> tool. Four themes were identified from clinical partner feedback supporting the acceptability and practicality of program design.</div></div><div><h3>Conclusions</h3><div>The integration of the Got Transition® framework and the ADA recommendations supports clinicians in meeting the unique needs of adolescents with T1D. Incorporating the transition activities into the electronic health record facilitated integration into the workflow of the clinic providers. This initiative can serve as a model to expand transition activities across pediatric specialty care settings.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100073"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142432438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2023-12-13DOI: 10.1016/j.hctj.2023.100036
Sharon Levy , Stephanie (Charlie) Farley , Iona Campbell
{"title":"Collecting resilience points for a smooth transition to adult healthcare services: Co-creating a playful resource for Spina Bifida","authors":"Sharon Levy , Stephanie (Charlie) Farley , Iona Campbell","doi":"10.1016/j.hctj.2023.100036","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100036","url":null,"abstract":"<div><h3>Background</h3><p>The transition of young people with a disability or a chronic health condition, from paediatric to adult-focused health and social care services, in Scotland, is known to be difficult. There is a significant body of evidence to suggest that a transition should start early, be holistic and inclusive, as well as structured to build essential capabilities and promote resilience. The nurse-led project, reported here, created a playful mechanism for meaningful interaction between young people, families and healthcare professionals.</p></div><div><h3>Methodology</h3><p>Using participatory design as a framework to support development of a collaborative boardgame, guided ways to develop a ‘sense of coherence’. The ecological framing of resilience shaped the way captured lived experience, of adults with spina bifida who transitioned to adult care, was used to support developments. Experiential learning guided the co-creation of a playful resource on a journey through transition that could be used by families as well as healthcare students and professionals. We also explored ways to enhance a ‘Sense of Coherence’ and build resilience through serious game design.</p></div><div><h3>Results</h3><p>In this nurse-led project we jointly crafted and tested a transition game that is easily accessible, inclusive and sufficiently adaptable to fit different settings, communities and cultures. The open licence enables others to freely use and adapt this game so it could be further used, tested and validated.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100036"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000363/pdfft?md5=e8ef0a4291427401eb9822c04940fd63&pid=1-s2.0-S2949923223000363-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138582017","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2023-12-16DOI: 10.1016/j.hctj.2023.100035
Lin Li , Nancy Carter , Jan Willem Gorter , Linda Till , Marcy White , Patricia H. Strachan
{"title":"Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care","authors":"Lin Li , Nancy Carter , Jan Willem Gorter , Linda Till , Marcy White , Patricia H. Strachan","doi":"10.1016/j.hctj.2023.100035","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100035","url":null,"abstract":"<div><h3>Background</h3><p>A growing population of youth with medical complexity (YMC) are entering adult health care, education, and social systems in which their needs have been largely neglected. To better support YMC and their families, an understanding of how they manage the challenges of transitioning to adult services is needed. The aim of this study was to examine how families of YMC adapt to challenges and opportunities posed by the youth’s transition to adulthood and transfer to adult services.</p></div><div><h3>Methods</h3><p>In partnership with two parent co-researchers and underpinned by complex adaptive systems and the Life Course Health Development framework, a qualitative explanatory case study was conducted. Seventeen participants from 11 families of YMC (aged 16–30) living in Ontario were recruited. Data from 21 semi-structured interviews were analyzed using reflexive thematic analysis and further refined through theory-driven analysis. Supplementary documents shared by participants were analyzed using directed content analysis.</p></div><div><h3>Findings</h3><p>Three overarching themes were generated. “Imagining, pursuing, and building a good future” describes families’ priorities and visions for the youth’s life as an adult. “Perils and obstacles of an imposed transition” examines challenges that families face in their pursuit of a good future. Lastly, “surviving the transition” describes how families are forced to advocate, make sacrifices, and persist in their efforts to adapt to transition.</p></div><div><h3>Conclusions</h3><p>Pediatric providers should offer anticipatory guidance, partner with families in advocacy, and provide psychological support during transition. Education for adult and primary care providers should focus on developing professional competencies in the safe care of YMC, building capacity through clinical exposure, and creating culturally safe environments. Most importantly, YMC and their families need a model of care that can provide integrated, holistic, multidisciplinary care management across the lifespan.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100035"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000351/pdfft?md5=2fd294809e8250806b8bfa81d3649d32&pid=1-s2.0-S2949923223000351-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139033827","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2024-01-12DOI: 10.1016/j.hctj.2023.100040
James Bradley , Zelyn Lee , Melina Cheong
{"title":"Developing a transition workshop for adolescents with sickle cell disease","authors":"James Bradley , Zelyn Lee , Melina Cheong","doi":"10.1016/j.hctj.2023.100040","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100040","url":null,"abstract":"<div><h3>Background</h3><p>The transfer from paediatric to adult care presents a significant challenge for adolescents and young adults (AYA) with sickle cell disease (SCD). Disease self-management skills have been recognized as important mediators of poor health outcomes, but transition-related skills such as scheduling appointments and understanding the shift in health care responsibilities remain under taught in the healthcare system. The purpose of this quality improvement (QI) study was to (1) understand the areas of disease self-management that AYA patients felt underprepared for, and (2) design and evaluate an educational program addressing the top unmet skills.</p></div><div><h3>Methods</h3><p>The Plan-Do-Study-Act (PDSA) model was implemented in a tertiary outpatient clinic between September 2020 and July 2021. Patients were surveyed during regular clinic visits to identify their priorities on disease self-management skills. Based on the results, a virtual workshop was created and administered three separate times. Feedback was collected using an electronic survey.</p></div><div><h3>Results</h3><p>‘Navigating the adult health care system’ was the top self-management skill that AYA patients (n = 39) identified needing more support with. The majority of participants (79%, n = 14) reported that the virtual workshop was excellent, with ‘appointment management’ being the most useful topic discussed. Participants also reported feeling more confident (71%) and aware (86%) of how to navigate adult care.</p></div><div><h3>Conclusion</h3><p>This QI study showed that delivering a virtual workshop on transition skills was well received by AYA participants with SCD. The PDSA framework was useful for identifying specific knowledge gaps in transition aged AYA to help improve patient education in a well-established transition program.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100040"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000405/pdfft?md5=7d465ef7d6615ab17fad2f66509cb045&pid=1-s2.0-S2949923223000405-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139434544","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2024-02-27DOI: 10.1016/j.hctj.2024.100048
Elijah W. Hale , Aryn Taylor , Marlee Elton , Melanie Honsbruch , Cordelia Robinson Rosenberg , Jessica Solomon Sanders
{"title":"Integrating vocational supports into a transition clinic: A pilot program","authors":"Elijah W. Hale , Aryn Taylor , Marlee Elton , Melanie Honsbruch , Cordelia Robinson Rosenberg , Jessica Solomon Sanders","doi":"10.1016/j.hctj.2024.100048","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100048","url":null,"abstract":"<div><h3>Objective</h3><p>Pilot a clinical model and study to learn more about how employment impacts health in children and young adults with intellectual and developmental disabilities.</p></div><div><h3>Background</h3><p>As young individuals transition into adulthood, milestones such as independent living and gainful employment become paramount. However, for those with intellectual and developmental disabilities (IDD), these milestones can diverge notably from those of typically developing peers. They often confront distinct challenges, especially during shifts from pediatric to adult health care and transitioning from school to employment. Despite the positive influence of employment on quality of life, fragmented support systems create barriers to achieving this outcome. Employment is an important aspect of overall health and wellness, and more research is needed to determine how employment supports can be integrated with health care to improve certain health outcomes.</p></div><div><h3>Design</h3><p>Self-determination theory and social ecological theory highlight the need for a comprehensive approach that considers both the internal needs and motivations of the individual with IDD and the external factors that influence their transition to adulthood. Based in these theories, our intervention offers an innovative blend of vocational support within a transition services framework at a large academic hospital. Our study introduces vocational support tailored for IDD youths within three health clinics.</p></div><div><h3>Results</h3><p>Initial results demonstrate the technical and scheduling feasibility of integrating the intervention within existing healthcare services. The study has enrolled several participants, showing potential in technical, scheduling, economic, and operational domains. However, upcoming long-term data and comprehensive evaluation are required for a conclusive understanding of the intervention's impact.</p></div><div><h3>Conclusions</h3><p>The program integrates vocational support into transitioning individuals with IDD from childhood to adult health care services. This intervention has potential to improve the health outcomes and quality of life for individuals with IDD, which could drive broader interdisciplinary interventions.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100048"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000084/pdfft?md5=18f34267149f0529fc924b63163e7de3&pid=1-s2.0-S2949923224000084-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139976109","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2024-02-19DOI: 10.1016/j.hctj.2024.100051
Jensine’ Clark , Cristina Sarmiento , Jessica Sanders , Lauren Wang , Lauren Fetsko , Unoma Akamagwuna
{"title":"Navigating the complex care landscape: Addressing challenges and advancing adult care frameworks for individuals with cerebral palsy","authors":"Jensine’ Clark , Cristina Sarmiento , Jessica Sanders , Lauren Wang , Lauren Fetsko , Unoma Akamagwuna","doi":"10.1016/j.hctj.2024.100051","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100051","url":null,"abstract":"<div><p>Despite cerebral palsy (CP) being the most common motor disability in childhood, there are more adults living with CP than children. The necessitates a systematic approach to the care of adults with CP. This perspective piece presents the complex nature of a lifespan approach to the care of a childhood-onset disability. We share the multidisciplinary considerations from a primary care model to address chronic health conditions and preventive care. We also present a care model with an emphasis on Neurology and Neurodevelopmental Disability with its implications for adults with CP. Finally, we advocate for a care model that encompasses a biopsychosocial approach to treatments and interventions with essential elements that include the adult perspective.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100051"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000114/pdfft?md5=7ce7cd79b7bd9838b9f6f23ef76e2038&pid=1-s2.0-S2949923224000114-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139908121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2024-08-28DOI: 10.1016/j.hctj.2024.100068
Susan Shanske , Janis Arnold , Judy Bond , Jennifer Cuadra , Colleen Hayden , Lynne Helfand , Salihah Hanson , Teresa Hickam , Colleen Huysman , Alexandria Cronin
{"title":"Letting go/ moving on: A scoping review of relational effects on transition to adult care","authors":"Susan Shanske , Janis Arnold , Judy Bond , Jennifer Cuadra , Colleen Hayden , Lynne Helfand , Salihah Hanson , Teresa Hickam , Colleen Huysman , Alexandria Cronin","doi":"10.1016/j.hctj.2024.100068","DOIUrl":"10.1016/j.hctj.2024.100068","url":null,"abstract":"<div><h3>Objective</h3><p>The objective of this scoping review was to assess the extent of the literature on how relational components in pediatric care contribute to the transition process and transfer outcomes.</p></div><div><h3>Background</h3><p>Relationships between patients, parents and pediatric providers are a frequently cited barrier in transition to adult care. A scoping review aimed to identify studies focused on how the relationship between patients/parents and pediatric providers related to transition from pediatric to adult healthcare and explore the nature and depth of the evidence.</p></div><div><h3>Methods</h3><p>Search terms were identified through a combination of medical librarian term harvesting and expert input. Four databases were searched with a combination of keyword and controlled vocabulary: PubMed, CINAHL, PsycINFO, and Web of Science. In order to reduce the risk of bias, each record was reviewed by two independent clinical experts in both the screening and full-text review stages. No database filters were applied during the searching process.</p></div><div><h3>Results</h3><p>The initial search strategy resulted in 13,121 records. After removal of duplicates, 271 moved on to full text review, and 152 met inclusion criteria as related to both transition from pediatric to adult medical care and relationships between pediatric providers and patients/families.</p></div><div><h3>Conclusions</h3><p>This scoping review aimed to identify available literature on relationships between pediatric providers and patients/families. Variable levels of research were identified, with little formal study of interventions. The majority described relationship issues as barriers, either on the part of providers, patients, parents or a combination of these. Several highlighted relationship ties as facilitators in the transition, an important consideration in determining interventions.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100068"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S294992322400028X/pdfft?md5=7dabc5faa06e4fdbea540dd40ddbdc57&pid=1-s2.0-S294992322400028X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142087582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2024-01-29DOI: 10.1016/j.hctj.2024.100044
Amy K. Bugwadia , Sydney Reed , Mara Shapiro , Sneha Dave , Nikhil Jayswal , David Kohler , Laurie Keefer
{"title":"Medical trauma in young adults with inflammatory bowel disease: The role of trauma-informed care","authors":"Amy K. Bugwadia , Sydney Reed , Mara Shapiro , Sneha Dave , Nikhil Jayswal , David Kohler , Laurie Keefer","doi":"10.1016/j.hctj.2024.100044","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100044","url":null,"abstract":"<div><p>Medical trauma is a profound concern for those with chronic conditions like inflammatory bowel disease (IBD), especially young adults. This trauma, arising from both the disease itself and necessary medical interventions, manifests as an accumulation of traumatic experiences impacting a patient’s physical and psychological well-being. The <u>Crohn’s and Colitis Young Adults Network</u> (CCYAN) conducted a roundtable discussion involving young adult IBD patients and healthcare professionals focused on medical trauma and its implications in the treatment of young adults with IBD. This article summarizes the key insights from this discussion, including medical trauma in IBD as an accumulation of ‘micro-traumas,’ the impacts of such trauma and disruptions in care regardless of post-traumatic stress diagnosis, the role of adverse childhood experiences and trauma-informed care, practical strategies to cultivate trust during individual patient encounters, and recommendations for providing trauma-informed care within the clinical setting.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100044"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000047/pdfft?md5=fe77bfe64233cef4d7cba7204e0e06c4&pid=1-s2.0-S2949923224000047-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139653285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2024-01-01Epub Date: 2024-07-17DOI: 10.1016/j.hctj.2024.100064
Shreela Palit , MaryJane S. Campbell , Jessica Pierce
{"title":"Topical review: The role of psychologists in healthcare transition","authors":"Shreela Palit , MaryJane S. Campbell , Jessica Pierce","doi":"10.1016/j.hctj.2024.100064","DOIUrl":"10.1016/j.hctj.2024.100064","url":null,"abstract":"<div><h3>Objective</h3><p>Adolescents and young adults (AYAs) with chronic medical conditions often face significant challenges while transitioning from pediatric to adult healthcare (healthcare transition, HCT). Although some guidelines exist on how to facilitate this process, the specific role of psychologists in promoting successful HCT is not clearly defined. In this topical review, we propose a conceptual framework integrating the role of psychology within HCT. We also provide an agenda for behavioral health researchers investigating ways to improve transition services/care for emerging adults.</p></div><div><h3>Method</h3><p>We first review existing standards of care and HCT guidelines. Using existing literature and the Got Transition model as a theoretical foundation, we developed a conceptual framework to outline the specific roles and recommendations for integrating psychologists in the HCT process, including recommendations for future research in this area.</p></div><div><h3>Results</h3><p>Limited research has systematically examined the efficacy and effectiveness of HCT services, which vary widely across institutions and populations. Further, existing HCT guidelines/recommendations largely exclude the role of psychologists during this process. There are many opportunities for psychologists to provide essential services as part of an interdisciplinary HCT team and to better understand how to improve these models of care.</p></div><div><h3>Conclusions</h3><p>Psychologists offer a unique and specialized element essential to fostering effective HCT. These professionals can take a more active role in promoting successful HCT from both clinical and research perspectives.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100064"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000242/pdfft?md5=8388ed3d3750c593af98bde0deec62a2&pid=1-s2.0-S2949923224000242-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141637878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}