青年IBD圆桌会议:多方利益相关者视角和患者驱动分析当前研究中的过渡性挑战和差距

Sneha Dave , Sydney Reed , Kajal Patel , Sandra C. Kim
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引用次数: 0

摘要

“IBD年轻人圆桌会议”是一个为期一年的学习社区,由提供者、患者和医疗合作伙伴每月进行讨论。该小组旨在提高年轻成人IBD患者群体的疗效。第一次讨论集中在IBD患者在从儿科护理过渡到成人护理期间面临的困难,以及如何在这一阶段改善对年轻成年患者的护理。该小组讨论了确定年轻成年患者发育里程碑的必要性,进一步筛查饮食紊乱,以及专家与儿科和成人提供者合作对成功过渡的重要性。此外,该小组强调了人们关注的领域,如通过社交媒体传播错误信息、健康的社会决定因素,以及IBD对年轻成年患者群体可能带来的终身心理、心理和经济负担。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Roundtable on Young Adults with IBD: A multi-stakeholder perspective and patient-driven analysis of the current transitional challenges and gaps in research

The “Roundtable on Young Adults with IBD” is a year-long learning community consisting of monthly discussions between providers, patients, and healthcare partners. The group aims to enhance outcomes for the young adult IBD patient population. The first discussion centered on the difficulties that IBD patients face during the transition from pediatric to adult care and how care can be improved for young adult patients during this phase. The group discussed the need to identify developmental milestones for young adult patients, further screening for disordered eating, and the importance of collaboration between specialists and pediatric and adult providers for a successful transition. Additionally, the group highlighted areas of concern such as the spread of misinformation through social media, social determinants of health, and the potential lifelong psychosocial, mental, and economic burdens of IBD for the young adult patient population.

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