Sneha Dave , Sydney Reed , Mara Shapiro , Yeabsira Taye , Isabela Hernandez , Navin Kariyawasam , Ildiko Mehes , Manasi Agrawal , Miguel Regueiro , Adam Faye , Jeremy Adler
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Clinical trials and young adults with inflammatory bowel disease
Young adults (approximately 18–35 years) with inflammatory bowel disease (IBD) represent a distinct demographic with unique developmental and physiological characteristics, yet they are underrepresented in clinical trials. This commentary synthesizes insights from a roundtable discussion facilitated by the Crohn's and Colitis Young Adults Network (CCYAN) between young adult patients with IBD and medical professionals, including physicians, nurses, psychologists, and trainees/medical students. Themes include defining young adults as a distinct demographic in research, improving outcomes for young adults with IBD through age-specific data disaggregation, barriers for participation and post-trial responsibilities, as well as regulatory and legislative policy opportunities to enhance young adult representation in clinical trials.
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