Jesse Shen MD PhD , Eric Klineberg MD MS , Burt Yaszay MD , Jennifer Bauer MD MS , Aiyush Bansal MD MASc , Caroline Drolet PhD , Patricia Lipson BS , Philip K. Louie MD , Rajiv Sethi MD PhD
{"title":"从儿科到成人中心的脊柱护理过渡：挑战和未来方向","authors":"Jesse Shen MD PhD , Eric Klineberg MD MS , Burt Yaszay MD , Jennifer Bauer MD MS , Aiyush Bansal MD MASc , Caroline Drolet PhD , Patricia Lipson BS , Philip K. Louie MD , Rajiv Sethi MD PhD","doi":"10.1016/j.hctj.2025.100107","DOIUrl":null,"url":null,"abstract":"<div><h3>Study design</h3><div>Anonymous, survey-based prospective study.</div></div><div><h3>Objectives</h3><div>The objective of this study was to evaluate the current practice patterns and opinions of surgeons treating pediatric spinal deformity patients into adulthood.</div></div><div><h3>Methods</h3><div>An electronic survey regarding the transition process of pediatric patients into adulthood was administered to members of the ISSG (International Spine Study Group) and HSG (Harms Study Group). The survey covered themes such as protocols of transition of care, deformities recommended for follow-up into adulthood and institutional capability as well as organization for future follow-up into adulthood. Results of the survey were described in frequencies. Statistical analyses to detect differences in responses between groups were performed when appropriate.</div></div><div><h3>Results</h3><div>A total of 56 responses were analyzed. 85 % of the members of the HSG responded to the survey (41 out of 48 surgeons), and 42 % of members from the ISSG responded (15 out of 36). A third of the respondents described having the institutional capability to follow-up with patients of any age. Most (60 %) of the ISSG members continue to follow-up with their pediatric patients into adulthood. For the question about treatment plans for patients who cannot be followed due to age, there was significant differences in referral patterns following pediatric care (p = .0006). Furthermore, HSG significantly discussed more about transitional care planning with patients and their families compared to ISSG (<em>p</em> = .001).</div></div><div><h3>Conclusions</h3><div>Although more than 80 % of respondents somewhat discussed transitional care for spinal deformity, more than 90 % do not have a formal transitional care protocol. There is a clear lack of both uniformity and standards for transitional care for spinal deformity. It is imperative to develop and disseminate standards of transitional care for youth with spinal deformities. This work encourages all specialty societies including the Scoliosis Research Society and all professionals involved with youth transitional care to lead future work.</div></div><div><h3>Level of evidence</h3><div>V</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100107"},"PeriodicalIF":0.0000,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Transitioning spine care from the pediatric to adult center: Challenges and future directions\",\"authors\":\"Jesse Shen MD PhD , Eric Klineberg MD MS , Burt Yaszay MD , Jennifer Bauer MD MS , Aiyush Bansal MD MASc , Caroline Drolet PhD , Patricia Lipson BS , Philip K. Louie MD , Rajiv Sethi MD PhD\",\"doi\":\"10.1016/j.hctj.2025.100107\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Study design</h3><div>Anonymous, survey-based prospective study.</div></div><div><h3>Objectives</h3><div>The objective of this study was to evaluate the current practice patterns and opinions of surgeons treating pediatric spinal deformity patients into adulthood.</div></div><div><h3>Methods</h3><div>An electronic survey regarding the transition process of pediatric patients into adulthood was administered to members of the ISSG (International Spine Study Group) and HSG (Harms Study Group). The survey covered themes such as protocols of transition of care, deformities recommended for follow-up into adulthood and institutional capability as well as organization for future follow-up into adulthood. Results of the survey were described in frequencies. Statistical analyses to detect differences in responses between groups were performed when appropriate.</div></div><div><h3>Results</h3><div>A total of 56 responses were analyzed. 85 % of the members of the HSG responded to the survey (41 out of 48 surgeons), and 42 % of members from the ISSG responded (15 out of 36). A third of the respondents described having the institutional capability to follow-up with patients of any age. Most (60 %) of the ISSG members continue to follow-up with their pediatric patients into adulthood. For the question about treatment plans for patients who cannot be followed due to age, there was significant differences in referral patterns following pediatric care (p = .0006). Furthermore, HSG significantly discussed more about transitional care planning with patients and their families compared to ISSG (<em>p</em> = .001).</div></div><div><h3>Conclusions</h3><div>Although more than 80 % of respondents somewhat discussed transitional care for spinal deformity, more than 90 % do not have a formal transitional care protocol. There is a clear lack of both uniformity and standards for transitional care for spinal deformity. It is imperative to develop and disseminate standards of transitional care for youth with spinal deformities. This work encourages all specialty societies including the Scoliosis Research Society and all professionals involved with youth transitional care to lead future work.</div></div><div><h3>Level of evidence</h3><div>V</div></div>\",\"PeriodicalId\":100602,\"journal\":{\"name\":\"Health Care Transitions\",\"volume\":\"3 \",\"pages\":\"Article 100107\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health Care Transitions\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S2949923225000133\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Care Transitions","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2949923225000133","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
摘要
研究设计匿名、基于调查的前瞻性研究。目的本研究的目的是评估目前外科医生治疗儿童脊柱畸形患者到成年期的实践模式和意见。方法对ISSG （International Spine Study Group）和HSG （Harms Study Group）成员进行一项关于儿科患者向成人过渡过程的电子调查。调查涵盖的主题包括护理过渡协议、建议随访到成年期的畸形、机构能力以及未来随访到成年期的组织。调查结果以频率描述。适当时进行统计分析以检测组间反应的差异。结果共分析56份应答。85% %的HSG成员回应了调查（48名外科医生中的41名），42% %的ISSG成员回应了调查（36名外科医生中的15名）。三分之一的答复者说，他们的机构有能力对任何年龄的病人进行随访。大多数（60% %）ISSG成员继续跟踪他们的儿科患者直到成年。对于因年龄原因无法随访的患者的治疗方案问题，患儿就诊后转诊模式差异有统计学意义（p = .0006）。此外，与ISSG相比，HSG与患者及其家属更多地讨论了过渡性护理计划（p = .001）。结论：虽然超过80% %的受访者在某种程度上讨论了脊柱畸形的过渡护理，但超过90% %的受访者没有正式的过渡护理方案。脊柱畸形的过渡性护理显然缺乏统一和标准。制定和推广青少年脊柱畸形过渡性护理标准势在必行。这项工作鼓励包括脊柱侧凸研究协会在内的所有专业协会和所有参与青少年过渡护理的专业人员领导未来的工作。证据水平
Transitioning spine care from the pediatric to adult center: Challenges and future directions
Study design
Anonymous, survey-based prospective study.
Objectives
The objective of this study was to evaluate the current practice patterns and opinions of surgeons treating pediatric spinal deformity patients into adulthood.
Methods
An electronic survey regarding the transition process of pediatric patients into adulthood was administered to members of the ISSG (International Spine Study Group) and HSG (Harms Study Group). The survey covered themes such as protocols of transition of care, deformities recommended for follow-up into adulthood and institutional capability as well as organization for future follow-up into adulthood. Results of the survey were described in frequencies. Statistical analyses to detect differences in responses between groups were performed when appropriate.
Results
A total of 56 responses were analyzed. 85 % of the members of the HSG responded to the survey (41 out of 48 surgeons), and 42 % of members from the ISSG responded (15 out of 36). A third of the respondents described having the institutional capability to follow-up with patients of any age. Most (60 %) of the ISSG members continue to follow-up with their pediatric patients into adulthood. For the question about treatment plans for patients who cannot be followed due to age, there was significant differences in referral patterns following pediatric care (p = .0006). Furthermore, HSG significantly discussed more about transitional care planning with patients and their families compared to ISSG (p = .001).
Conclusions
Although more than 80 % of respondents somewhat discussed transitional care for spinal deformity, more than 90 % do not have a formal transitional care protocol. There is a clear lack of both uniformity and standards for transitional care for spinal deformity. It is imperative to develop and disseminate standards of transitional care for youth with spinal deformities. This work encourages all specialty societies including the Scoliosis Research Society and all professionals involved with youth transitional care to lead future work.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
