Health Care Transitions最新文献

{"title":"Caring for young adult men with inflammatory bowel disease: Clinician and patient perspectives","authors":"Amy K. Bugwadia ,&nbsp;Sydney Reed ,&nbsp;Adam Finkelstein ,&nbsp;Peter Park ,&nbsp;Colin Quinn ,&nbsp;Sneha Dave ,&nbsp;Nikhil Jayswal ,&nbsp;Grady Stewart ,&nbsp;David Kohler ,&nbsp;Noel Jacobs ,&nbsp;Grant E. Barber","doi":"10.1016/j.hctj.2024.100043","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100043","url":null,"abstract":"<div><p>Inflammatory bowel disease (IBD) presents unique challenges for young adult men that extend beyond physical symptoms, encompassing psychosocial dimensions affecting all aspects of life. This article draws insights from a roundtable discussion facilitated by the Crohn's and Colitis Young Adults Network (CCYAN), focusing on the experiences of young men living with IBD. It sheds light on the intersections of IBD and men's sexual and reproductive health, fertility, and mental well-being while identifying gaps in care. The article offers recommendations for clinicians and emphasizes the role of care partners and social support, underlining the need for dedicated support structures to improve the lives of men living with IBD.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100043"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000035/pdfft?md5=7ff1cde48808ae2cd0ef070d59225505&pid=1-s2.0-S2949923224000035-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139653286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health care transition recommendations for young people with intellectual and developmental disabilities and co-occurring mental health conditions: Stakeholder survey findings","authors":"Christine B. Mirzaian ,&nbsp;Alexis Deavenport-Saman ,&nbsp;Sharon Hudson ,&nbsp;Cecily L. Betz","doi":"10.1016/j.hctj.2024.100075","DOIUrl":"10.1016/j.hctj.2024.100075","url":null,"abstract":"<div><h3>Background</h3><div>Limited knowledge exists as to the supports and services young people with IDD and co-occurring mental health conditions need to transition to adult-focused health care and adulthood.</div></div><div><h3>Methods</h3><div>The survey findings presented were part of a larger investigation that explored these service and supports needs obtained from 144 respondents. Data reported for this investigation were obtained from 144 respondents who answered the question, “What do you think would be most helpful to assist young people with IDD and mental health conditions with the transition from child to adult health care (not including mental health care)?\"</div><div>Qualitative analysis based upon the social-ecological model was undertaken.</div></div><div><h3>Findings</h3><div>Based on the social-ecological model (SEM), health care transition needs were reported in four of the five SEM domains-Individual, Family, Provider, and Systems Level. The responses were most frequently categorized in the SEM domains in following descending order: Individual, Provider, System and Family.</div></div><div><h3>Conclusion</h3><div>Implications for research and practice suggest that multi-level approach is needed to address the range of service needs for young adults with IDD and co-occurring mental health conditions.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100075"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142586619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychosocial needs and outcomes of adults with spina bifida: A scoping review, 1974-2023","authors":"Jennifer Emilie Mannino ,&nbsp;Heather Reens ,&nbsp;Kathryn Smith ,&nbsp;Lynn Kysh ,&nbsp;Serge' R. Nelson ,&nbsp;Yuding Wang ,&nbsp;Manu Raam ,&nbsp;Michele Roland ,&nbsp;Alexander Van Speybroeck ,&nbsp;Cecily L. Betz","doi":"10.1016/j.hctj.2024.100041","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100041","url":null,"abstract":"<div><p>Limited evidence exists that serves to guide the field of practice and research pertaining to the long-term issues and needs of adults with spina bifida. Understanding the lived experience of adults with spina bifida has lagged behind considerably resulting in limited evidence-based guidance for individuals with spina bifida and their families and the health care professionals who provide services to this population. Given the paucity of knowledge of the lived experience as it pertains to adulthood, this scoping review was undertaken. More than 10,000 records from 1974 through 2023 were screened based upon the search criteria whose purpose was to examine the research conducted the psychosocial outcomes and needs of adults with spina bifida. A total of 81 articles were included in this review. The findings of this review revealed significant gaps were apparent. There was limited data on adulthood benchmarks of employment, education, community living and social relationships. Limitations associated with the investigations of this review included underpowered samples, lack of longitudinal designs, use of instruments with insufficient psychometrics, and the use of clinical and administrative data sets not designed for research purposes. As the survival rates of individuals with spina bifida continue to improve with medical advances more robust psychosocial research pertaining to this population is needed.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100041"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000011/pdfft?md5=eb193647d0a64603e684b603f41f9d9b&pid=1-s2.0-S2949923224000011-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139732573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Project ECHO tele-mentoring primary care for individuals with IDD","authors":"K.Jordan Kemere ,&nbsp;Nital Appelbaum ,&nbsp;Ellen Fremion","doi":"10.1016/j.hctj.2024.100084","DOIUrl":"10.1016/j.hctj.2024.100084","url":null,"abstract":"<div><h3>Background</h3><div>As the prevalence of intellectual and developmental disabilities (IDD) has increased over time, more youth with IDD will be transitioning into adult care. Individuals with IDD have a spectrum of behavioral, medical, adaptive, and home/community support needs depending on their cognitive ability, behavior concerns, mobility impairment, and/or medical complexity. Unfortunately, data suggests that adult primary care providers often lack knowledge about the condition-specific medical and adaptive needs of the IDD population leading to decreased access to adequate primary care.</div></div><div><h3>Methods</h3><div>To ultimately improve access to high quality healthcare for individuals with IDD, we created a 6-session virtual Project ECHO(R) (Extension for Community Healthcare Outcomes) telementoring course offered to an interprofessional audience.</div></div><div><h3>Results</h3><div>We successfully launched this course, demonstrated statistically significant increased knowledge and confidence among attendees regarding six topics pertinent to this population, and had high levels of satisfaction from a diverse group of attendees.</div></div><div><h3>Conclusion</h3><div>Including nurses, social workers, advanced practice providers, physicians, and case managers in this course made for robust discussion in the delivery of high-quality care for this population. This model is a viable option to increase knowledge and confidence surrounding primary care for youth and adults with IDD.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100084"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142699777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The state of employment in the United States among young adults with cerebral palsy","authors":"Eduardo del Rosario ,&nbsp;Jennifer Emilie Mannino ,&nbsp;Patricia A. Eckardt ,&nbsp;Dawn DiStefano","doi":"10.1016/j.hctj.2024.100083","DOIUrl":"10.1016/j.hctj.2024.100083","url":null,"abstract":"<div><div>Young adults with Cerebral Palsy (CP) have lower employment rates compared to young adults in general, as they may be confronted with physical, sensory, and cognitive impairments, coupled with personal and societal barriers as they mature. These challenges are clear, but the solutions are less so. Understanding the factors that impact employment is vital. This study aimed to identify and examine variables related to employment for this population through the lens of the International Classification of Functioning, Disability, and Health (ICF) model. The Rehabilitation Services Administration (RSA-911) federal dataset was used to examine the relationship between functioning and disability within the context of personal and environmental factors as predictors of employment among young adults with CP. Following a descriptive cross-sectional design using a secondary analysis of this national dataset, binomial logistic regression was used to predict employment outcomes. Data representing those with CP who participated in vocational rehabilitation (VR) services and were between 18 and 30 years of age at the time of exit were extracted from the 2019 RSA-911 dataset (n = 2465). Just under one-third (30.4 %, n = 750) emerged as employed, while 69.6 % (n = 1715) were unemployed at exit from their VR programs in 2019. Significant predictors for employment were participation in career and other support services, having basic skills and literacy, and being of non-Hispanic/Latino ethnicity. These findings concur with the persistent low employment rates for adults with CP and reinforce the need to understand the factors that increase employability. Healthcare professionals are urged to incorporate participation in self-management activities for all transition-aged youth that will not only improve health outcomes but promote future independence and increase awareness of vocational services for this population.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100083"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142699779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring six successful nurse-led transition clinics: Experiences and outcomes","authors":"Jobert Sturm ,&nbsp;AnneLoes van Staa ,&nbsp;Johanna C. Escher ,&nbsp;Jane Sattoe","doi":"10.1016/j.hctj.2024.100071","DOIUrl":"10.1016/j.hctj.2024.100071","url":null,"abstract":"<div><h3>Background and purpose</h3><p>In the Netherlands, the 2022 Quality Standard 'Youth in transition from paediatric to adult care' underscores the importance of structured transitional care for young adults with chronic health conditions. Despite this emphasis, detailed knowledge about transition programs and their successful elements remains sparse. This study aims to bridge this gap by exploring nurse-led transition clinics that had successfully implemented core interventions such as a transition coordinator, warm handover, and individual transition plans.</p></div><div><h3>Methods</h3><p>Employing a mixed-methods approach, this study integrated semi-structured interviews with 15 healthcare professionals from both paediatric and adult care across six transition clinics, and surveys from 54 young adults who had transitioned within the last three years. The ‘On Your Own Feet Framework’ guided the evaluation of transitional care practices. Thematic analysis was applied to qualitative data, while descriptive and inferential statistics were used to analyse quantitative data.</p></div><div><h3>Results</h3><p>The study revealed a strong dedication among healthcare professionals to ensuring smooth transitions and effective collaboration between paediatric and adult care. The young adults reported high satisfaction with their transitions, particularly appreciating the continuity of care and the pivotal role of nurses and nurse practitioners as transition coordinators. However, challenges such as engaging young adults, resource allocation, and financial complexities were noted, alongside areas for improvement including shared decision-making and managing parental involvement. Motivation and collaboration among staff were identified as facilitating factors.</p></div><div><h3>Discussion and conclusion</h3><p>Our findings emphasize the vital role of nurse-led transition clinics in enhancing healthcare transitions for young adults in the Netherlands, aligning with the principles outlined in the Quality Standard and the On Your Own Feet Framework. While high satisfaction levels with current practices suggest a positive impact, they also highlight that ongoing improvement and adaptation are needed to overcome identified challenges. Successful healthcare transition requires a comprehensive, collaborative approach involving patients, families, and healthcare professionals, supported by organizational and systemic frameworks. This study contributes to a nuanced understanding of transitional care, suggesting a path forward for integrating these practices into standard care models.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100071"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S294992322400031X/pdfft?md5=a7cb05ddef4252e77dd2c99502e8d230&pid=1-s2.0-S294992322400031X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142099311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living with an ostomy: A needs assessment in pediatric inflammatory bowel disease","authors":"Meghan K. Ford ,&nbsp;Peter C. Church ,&nbsp;Dean A. Tripp ,&nbsp;Amanda Ricciuto ,&nbsp;Ashley Cruden ,&nbsp;Sara Ahola Kohut","doi":"10.1016/j.hctj.2024.100069","DOIUrl":"10.1016/j.hctj.2024.100069","url":null,"abstract":"<div><h3>Background</h3><p>Inflammatory bowel disease (IBD) is a chronic, immune-mediated inflammatory condition of the digestive tract associated with substantial psychosocial difficulties. Treatment often focuses on medications but may also include surgical approaches (e.g., intestinal ostomy). Unfortunately, literature regarding the psychosocial implications of ostomy surgeries is scarce, and even less is known about adolescent experiences, which may differ markedly from adults.</p></div><div><h3>Objective</h3><p>This study aimed to explore the perspectives of adolescents with IBD and their caregivers to understand their perceived needs when they have undergone, are anticipating, or have anticipated the possibility of experiencing a stoma surgery. Study findings hoped to inform clinical practice in IBD care and beyond.</p></div><div><h3>Method</h3><p>A purposive sample of patients and caregivers were recruited from a large pediatric hospital. Twelve patients and thirteen caregivers participated in the study. Participants completed a demographic background questionnaire and virtual semi-structured interview. Inductive content analysis was used to examine participant feedback.</p></div><div><h3>Results</h3><p>Qualitative results identified four overarching themes and thirteen subthemes: fear of the unknown, perceived barriers, being supported, and recommendations for creating a more positive experience. Specifically, participants described the transition process from pediatric to adult care as particularly intimidating and having a supportive and inclusive handover was a helpful piece that supported the shift to adult care.</p></div><div><h3>Conclusion</h3><p>This study reflects the importance of a holistic approach to care that attends to adolescent patients’ physical well-being and emotional and social needs. Patient-driven recommendations for enhancing age-specific care of adolescents with ostomies are provided.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100069"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000291/pdfft?md5=7f277e0d00823de6cc77b2eef3b18f24&pid=1-s2.0-S2949923224000291-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142099230","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving transition of care from pediatric to adult endocrinology for adolescents with diabetes","authors":"Felicia Cooper,&nbsp;Jessica Pierce,&nbsp;Neha Vyas","doi":"10.1016/j.hctj.2024.100060","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100060","url":null,"abstract":"<div><h3>Introduction</h3><p>Adolescence is a challenging time in a child’s life and can be even more stressful for those with a chronic medical condition such as diabetes mellitus. Adolescents and young adults with type 1 and type 2 diabetes experience worsening glycemic levels as they enter adulthood. Data suggest that a formalized health care transition process and beginning transition preparation in early adolescence leads to better transition outcomes.</p></div><div><h3>Methods</h3><p>The aim of this study was to create a transition of care program for youth with diabetes in a standalone children’s hospital by following the Got Transition Six Core Elements of Health Care Transition. First, we implemented a transition of care policy and formalized how we discussed transition of care with patients and families in early adolescence. Further improvements have included assessing readiness to transition, designing a curriculum centered around adolescent-specific issues and how they relate to diabetes management, and forming connections with adult endocrinologists in the area to establish a seamless transition process.</p></div><div><h3>Results</h3><p>After implementing our program, 90 % (28/31) of our patients indicated they were very or somewhat ready to transition to adult care.</p></div><div><h3>Discussion</h3><p>We outline our process for developing a transition of care program and provide a practical tool for other pediatric diabetes providers who are interested in implementing a similar program.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100060"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000205/pdfft?md5=9693621a1d21b1989087514e536c9667&pid=1-s2.0-S2949923224000205-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141424339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transfer of musculoskeletal care from paediatric to adult services for patients with cerebral palsy and chronic neuromuscular conditions: Identifying the unmet need","authors":"Bhushan Sagade ,&nbsp;Connor Thorn ,&nbsp;Portia Ross,&nbsp;Catherine May,&nbsp;Evan Davies,&nbsp;Darius Rad,&nbsp;Caroline Edwards,&nbsp;Alexander Aarvold","doi":"10.1016/j.hctj.2024.100078","DOIUrl":"10.1016/j.hctj.2024.100078","url":null,"abstract":"<div><h3>Introduction</h3><div>Children with cerebral palsy (CP) are treated by well-co-ordinated multi-disciplinary neuromuscular teams. With a comprehensive multidisciplinary team, co-ordinating the transfer to adult care is a challenge. Orthopaedic care becomes fragmented as patients transfer from paediatric orthopaedic surgeons with training in multi-joint neuromuscular conditions (NMCs), to adult orthopaedic surgeons where this expertise rarely exists. Orthopaedic and spinal problems are a major unmet health need in this population. There is a lack of research in the literature regarding availability and access to orthopaedic services post transferring, which this study aimed to address.</div></div><div><h3>Methods</h3><div>This was a cross-sectional study conducted at an NHS referral centre for specialist paediatric services to evaluate the existing transfer program. A 10-item questionnaire was developed by senior clinicians for patients with CP or NMCs and their families to answer. It focused on three domains: Availability of a transfer of care plan, access to healthcare services and satisfaction with the services.</div></div><div><h3>Results</h3><div>There were 39 responses from patients, or their families received between December 2021 to April 2022. Patients were aged between 17 and 28 years at the time of answering. Availability of a transfer of care plan was poor, at only 20.5 % (8/39). Sixty-nine percent (27/39) stated there was not an orthopaedic surgeon overseeing their bone and joint health and a further 33.3 % (13/39) reported lack of supervision from a physiotherapist. Fifty-six percent (22/39) of respondents reported a decline in musculoskeletal health. Those that did receive ongoing orthopaedic care reported high rates of satisfaction.</div></div><div><h3>Conclusion</h3><div>Our study has shown that the transfer of care for patients with CP and NMCs continues to remain poor, contrary to national guidelines, with lack of access to adequate musculoskeletal healthcare services after transfer to adulthood. The unmet needs of patients with CP or NMCs with orthopaedic and spinal pathologies are higher than previously reported. This area has been critically understudied, but this manuscript has highlighted an urgent need to improve and reform transfer practises, to fulfil the current deficit.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100078"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142573509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Healthcare transition readiness of families of youth with cystic fibrosis during COVID-19: A correlational multicenter analysis","authors":"Tyra C. Girdwood ,&nbsp;Kirsten Kainz ,&nbsp;Susan G. Silva ,&nbsp;Jennifer L. Goralski ,&nbsp;Maria E.Díaz-González de Ferris ,&nbsp;Mary R. Lynn ,&nbsp;Elisabeth P. Dellon ,&nbsp;Samya Z. Nasr ,&nbsp;Ahmet Uluer ,&nbsp;Mark P. Toles","doi":"10.1016/j.hctj.2024.100065","DOIUrl":"10.1016/j.hctj.2024.100065","url":null,"abstract":"<div><h3>Background</h3><p>Enhancing family readiness for the healthcare transition (HCT) to adult-focused care can help adolescents and young adults (AYA) thrive in adulthood. We aimed to explore modifiable and non-modifiable individual, family, and healthcare factors associated with HCT readiness of AYA among families of AYA with cystic fibrosis (CF) during COVID-19.</p></div><div><h3>Methods</h3><p>A multi-site, cross-sectional design was used and an online survey was deployed among families and their AYA from three US pediatric CF centers. The STAR_x Transition Readiness Questionnaire assessed caregiver- and AYA-perceived HCT readiness of AYA.</p></div><div><h3>Results</h3><p>Caregivers (<em>N</em> = 71) and their AYA with CF (<em>N</em> = 33, aged 12–21 years) perceived moderately high HCT readiness of AYA. Caregiver resilience was a significant (<em>p</em> = 0.006), family-level factor correlated with caregiver-perceived HCT readiness.</p></div><div><h3>Conclusions</h3><p>Families perceived similar levels of AYA readiness for adult-focused care. Caregiver resilience is an important, modifiable family-level factor for targeted interdisciplinary interventions aimed at enhancing HCT processes during COVID-19.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100065"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000254/pdfft?md5=d667c5afc94c7e16cd5c10553478dd5c&pid=1-s2.0-S2949923224000254-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141953243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}