Health Care Transitions最新文献

{"title":"Living with an ostomy: A needs assessment in pediatric inflammatory bowel disease","authors":"Meghan K. Ford ,&nbsp;Peter C. Church ,&nbsp;Dean A. Tripp ,&nbsp;Amanda Ricciuto ,&nbsp;Ashley Cruden ,&nbsp;Sara Ahola Kohut","doi":"10.1016/j.hctj.2024.100069","DOIUrl":"10.1016/j.hctj.2024.100069","url":null,"abstract":"<div><h3>Background</h3><p>Inflammatory bowel disease (IBD) is a chronic, immune-mediated inflammatory condition of the digestive tract associated with substantial psychosocial difficulties. Treatment often focuses on medications but may also include surgical approaches (e.g., intestinal ostomy). Unfortunately, literature regarding the psychosocial implications of ostomy surgeries is scarce, and even less is known about adolescent experiences, which may differ markedly from adults.</p></div><div><h3>Objective</h3><p>This study aimed to explore the perspectives of adolescents with IBD and their caregivers to understand their perceived needs when they have undergone, are anticipating, or have anticipated the possibility of experiencing a stoma surgery. Study findings hoped to inform clinical practice in IBD care and beyond.</p></div><div><h3>Method</h3><p>A purposive sample of patients and caregivers were recruited from a large pediatric hospital. Twelve patients and thirteen caregivers participated in the study. Participants completed a demographic background questionnaire and virtual semi-structured interview. Inductive content analysis was used to examine participant feedback.</p></div><div><h3>Results</h3><p>Qualitative results identified four overarching themes and thirteen subthemes: fear of the unknown, perceived barriers, being supported, and recommendations for creating a more positive experience. Specifically, participants described the transition process from pediatric to adult care as particularly intimidating and having a supportive and inclusive handover was a helpful piece that supported the shift to adult care.</p></div><div><h3>Conclusion</h3><p>This study reflects the importance of a holistic approach to care that attends to adolescent patients’ physical well-being and emotional and social needs. Patient-driven recommendations for enhancing age-specific care of adolescents with ostomies are provided.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100069"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000291/pdfft?md5=7f277e0d00823de6cc77b2eef3b18f24&pid=1-s2.0-S2949923224000291-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142099230","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving transition of care from pediatric to adult endocrinology for adolescents with diabetes","authors":"Felicia Cooper,&nbsp;Jessica Pierce,&nbsp;Neha Vyas","doi":"10.1016/j.hctj.2024.100060","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100060","url":null,"abstract":"<div><h3>Introduction</h3><p>Adolescence is a challenging time in a child’s life and can be even more stressful for those with a chronic medical condition such as diabetes mellitus. Adolescents and young adults with type 1 and type 2 diabetes experience worsening glycemic levels as they enter adulthood. Data suggest that a formalized health care transition process and beginning transition preparation in early adolescence leads to better transition outcomes.</p></div><div><h3>Methods</h3><p>The aim of this study was to create a transition of care program for youth with diabetes in a standalone children’s hospital by following the Got Transition Six Core Elements of Health Care Transition. First, we implemented a transition of care policy and formalized how we discussed transition of care with patients and families in early adolescence. Further improvements have included assessing readiness to transition, designing a curriculum centered around adolescent-specific issues and how they relate to diabetes management, and forming connections with adult endocrinologists in the area to establish a seamless transition process.</p></div><div><h3>Results</h3><p>After implementing our program, 90 % (28/31) of our patients indicated they were very or somewhat ready to transition to adult care.</p></div><div><h3>Discussion</h3><p>We outline our process for developing a transition of care program and provide a practical tool for other pediatric diabetes providers who are interested in implementing a similar program.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100060"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000205/pdfft?md5=9693621a1d21b1989087514e536c9667&pid=1-s2.0-S2949923224000205-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141424339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transfer of musculoskeletal care from paediatric to adult services for patients with cerebral palsy and chronic neuromuscular conditions: Identifying the unmet need","authors":"Bhushan Sagade ,&nbsp;Connor Thorn ,&nbsp;Portia Ross,&nbsp;Catherine May,&nbsp;Evan Davies,&nbsp;Darius Rad,&nbsp;Caroline Edwards,&nbsp;Alexander Aarvold","doi":"10.1016/j.hctj.2024.100078","DOIUrl":"10.1016/j.hctj.2024.100078","url":null,"abstract":"<div><h3>Introduction</h3><div>Children with cerebral palsy (CP) are treated by well-co-ordinated multi-disciplinary neuromuscular teams. With a comprehensive multidisciplinary team, co-ordinating the transfer to adult care is a challenge. Orthopaedic care becomes fragmented as patients transfer from paediatric orthopaedic surgeons with training in multi-joint neuromuscular conditions (NMCs), to adult orthopaedic surgeons where this expertise rarely exists. Orthopaedic and spinal problems are a major unmet health need in this population. There is a lack of research in the literature regarding availability and access to orthopaedic services post transferring, which this study aimed to address.</div></div><div><h3>Methods</h3><div>This was a cross-sectional study conducted at an NHS referral centre for specialist paediatric services to evaluate the existing transfer program. A 10-item questionnaire was developed by senior clinicians for patients with CP or NMCs and their families to answer. It focused on three domains: Availability of a transfer of care plan, access to healthcare services and satisfaction with the services.</div></div><div><h3>Results</h3><div>There were 39 responses from patients, or their families received between December 2021 to April 2022. Patients were aged between 17 and 28 years at the time of answering. Availability of a transfer of care plan was poor, at only 20.5 % (8/39). Sixty-nine percent (27/39) stated there was not an orthopaedic surgeon overseeing their bone and joint health and a further 33.3 % (13/39) reported lack of supervision from a physiotherapist. Fifty-six percent (22/39) of respondents reported a decline in musculoskeletal health. Those that did receive ongoing orthopaedic care reported high rates of satisfaction.</div></div><div><h3>Conclusion</h3><div>Our study has shown that the transfer of care for patients with CP and NMCs continues to remain poor, contrary to national guidelines, with lack of access to adequate musculoskeletal healthcare services after transfer to adulthood. The unmet needs of patients with CP or NMCs with orthopaedic and spinal pathologies are higher than previously reported. This area has been critically understudied, but this manuscript has highlighted an urgent need to improve and reform transfer practises, to fulfil the current deficit.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100078"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142573509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Healthcare transition readiness of families of youth with cystic fibrosis during COVID-19: A correlational multicenter analysis","authors":"Tyra C. Girdwood ,&nbsp;Kirsten Kainz ,&nbsp;Susan G. Silva ,&nbsp;Jennifer L. Goralski ,&nbsp;Maria E.Díaz-González de Ferris ,&nbsp;Mary R. Lynn ,&nbsp;Elisabeth P. Dellon ,&nbsp;Samya Z. Nasr ,&nbsp;Ahmet Uluer ,&nbsp;Mark P. Toles","doi":"10.1016/j.hctj.2024.100065","DOIUrl":"10.1016/j.hctj.2024.100065","url":null,"abstract":"<div><h3>Background</h3><p>Enhancing family readiness for the healthcare transition (HCT) to adult-focused care can help adolescents and young adults (AYA) thrive in adulthood. We aimed to explore modifiable and non-modifiable individual, family, and healthcare factors associated with HCT readiness of AYA among families of AYA with cystic fibrosis (CF) during COVID-19.</p></div><div><h3>Methods</h3><p>A multi-site, cross-sectional design was used and an online survey was deployed among families and their AYA from three US pediatric CF centers. The STAR_x Transition Readiness Questionnaire assessed caregiver- and AYA-perceived HCT readiness of AYA.</p></div><div><h3>Results</h3><p>Caregivers (<em>N</em> = 71) and their AYA with CF (<em>N</em> = 33, aged 12–21 years) perceived moderately high HCT readiness of AYA. Caregiver resilience was a significant (<em>p</em> = 0.006), family-level factor correlated with caregiver-perceived HCT readiness.</p></div><div><h3>Conclusions</h3><p>Families perceived similar levels of AYA readiness for adult-focused care. Caregiver resilience is an important, modifiable family-level factor for targeted interdisciplinary interventions aimed at enhancing HCT processes during COVID-19.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100065"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000254/pdfft?md5=d667c5afc94c7e16cd5c10553478dd5c&pid=1-s2.0-S2949923224000254-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141953243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A medical assistant-facilitated transition activity in a pediatric cardiology clinic","authors":"Debora Burger ,&nbsp;Quin E. Denfeld ,&nbsp;Karen Uzark ,&nbsp;Patrick D. Evers ,&nbsp;Andrew W. McHill ,&nbsp;Pam Ward ,&nbsp;Reem Hasan","doi":"10.1016/j.hctj.2024.100042","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100042","url":null,"abstract":"<div><h3>Background</h3><p>Formal transition programs prepare pediatric patients with congenital heart disease (CHD) for successful lifelong management of their disease. Conducting transition program activities in pediatric cardiology clinics can be a challenge if there are limited resources. The purpose of this study was to test the effectiveness of a medical assistant (MA)-facilitated transition activity in increasing documentation of transition discussions and characterize staff acceptability of this intervention.</p></div><div><h3>Method</h3><p>We performed a prospective exploratory study over a five-week period. CHD patients aged 13 and older presenting for routine pediatric cardiology follow-up appointments received a prompt from the MA to view a list of 17 transition topics from which to choose topics for discussion with the pediatric cardiologist during the clinic visit. Historical control group data were collected from the same period, two years prior. We compared the presence of documentation of transition discussions between the transition activity and control group using comparative statistics. Staff acceptability was assessed using the revised Treatment Acceptability and Preference Questionnaire.</p></div><div><h3>Results</h3><p>A total of 14 staff members participated in the transition activity involving 29 patients. Significantly more transition discussions were documented in the transition activity group compared with the historic control group (<em>p</em> &lt; 0.001). Patients discussed more transition topics (median = 5, Interquartile range 2–7) than what was requested (median = 2, Interquartile range 1–4). All staff rated the activity as acceptable (ranging from ‘somewhat acceptable’ to ‘very much acceptable’) and were willing to continue after the study ended.</p></div><div><h3>Conclusion</h3><p>Having an MA-facilitated transition activity increased documentation of transition discussions in the pediatric cardiology clinic. Staff were accepting and in favor of continuing this low-resource activity.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100042"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000023/pdfft?md5=60d920aeb49fa516fce056a79d13a231&pid=1-s2.0-S2949923224000023-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139493442","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Thematic analysis of COVID-19's impacts on transitions among emerging adults","authors":"Keely H. Bieniak ,&nbsp;Helen Bedree ,&nbsp;Nicole Geanous ,&nbsp;Rachel Neff Greenley ,&nbsp;Steven A. Miller ,&nbsp;Joanna Buscemi ,&nbsp;Susan T. Tran","doi":"10.1016/j.hctj.2024.100052","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100052","url":null,"abstract":"<div><h3>Objectives</h3><p>This study explored how the COVID-19 pandemic impacted emerging adults. Previous COVID-19 research with this age demographic has focused on specific facets of life transitions (e.g., academic or economic stress) but does not consider the interrelatedness of these life domains. This project fills this gap by allowing participants to report on any aspects of their life to better understand frequent challenges with and experiences that may have helped with managing “the new normal” of the COVID-19 pandemic amidst typical transitions of emerging adulthood.</p></div><div><h3>Methods</h3><p>Qualitative and quantitative data gathered in July 2020 (<em>n</em> = 145) and January 2021 (<em>n</em> = 143) as part of a longitudinal study of emerging adults (18–24 years) who were enrolled at a Midwestern United States University at baseline were analyzed to explore impacts of COVID-19, particularly in relation to stress.</p></div><div><h3>Results</h3><p>Qualitative results demonstrate a range of negative COVID-19 effects, including health challenges and relationship strain. Interestingly, positive effects were also reported, including allocating more time for hobbies and spending quality time with loved ones. Quantitative findings indicate that COVID-19 distress did not increase over time, but perceived exposure to pandemic effects significantly increased. A general perceived distress measure demonstrated a slight decrease in distress over time, suggesting a potential adjustment to ‘the new normal.’</p></div><div><h3>Discussion</h3><p>COVID-19 impacted multiple domains of typical developmental transitions for many emerging adults in our sample. Individual qualitative reports demonstrate uniquely personal impacts of COVID-19, while thematic trends appear across responses (e.g., relationship strain). Health care providers must consider how these impacts influence the wellbeing of emerging adults with whom they work as the pandemic continues to evolve.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100052"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000126/pdfft?md5=d6273819685378738f7171d7336fd092&pid=1-s2.0-S2949923224000126-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139935934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Amplifying adolescent and emerging adult voices: Development of a pediatric-to-adult transition research advisory council","authors":"Zoya Punjwani ,&nbsp;Megan Patton ,&nbsp;Brooke Allemang ,&nbsp;Cassandra Chisholm ,&nbsp;Mica Pabia ,&nbsp;Sarah Mooney ,&nbsp;Paul Siska ,&nbsp;Laurel Ryan ,&nbsp;Daniella San Martin-Feeney ,&nbsp;Ken Pfister ,&nbsp;Andrew Mackie ,&nbsp;Gina Dimitropoulos ,&nbsp;Susan Samuel","doi":"10.1016/j.hctj.2024.100058","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100058","url":null,"abstract":"<div><h3>Background</h3><p>Adolescents and emerging adults (AEA) with chronic health conditions may face numerous challenges when undergoing the transition from pediatric to adult health care. Despite the need for engagement with AEA in health research, little is known about how researchers operationalize this engagement. In an effort to enhance transparency in the practices of patient engagement, this commentary details the process of developing a pediatric-adult transition-specific youth advisory council in Alberta: the Transition Research Advisory Council (TRAC).</p></div><div><h3>Objectives</h3><p>We provide an overview of AEA engagement in health research and detail TRAC’s recruitment and onboarding strategies. Moreover, TRAC members provided reflections on their motivations and experiences during the onboarding process.</p></div><div><h3>Key recommendations</h3><p>This commentary provides key recommendations for AEA council development, emphasizing equity, diversity, and inclusion principles, optimizing compensation plans, adopting an iterative engagement approach, fostering capacity-building and mentorship, and promoting empowerment in decision-making.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100058"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000187/pdfft?md5=3b1235d3195984fb899cb989604351be&pid=1-s2.0-S2949923224000187-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140295875","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The lived experience of young adults emotionally labouring with type 1 diabetes: Findings of an interpretive phenomenological study","authors":"Alexandra Jocic ,&nbsp;Karen A. Cook ,&nbsp;Gwen R. Rempel","doi":"10.1016/j.hctj.2024.100061","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100061","url":null,"abstract":"<div><h3>Background</h3><p>Type 1 diabetes is a life-long metabolic illness. Typically diagnosed in childhood, adolescence, and young adulthood, this diagnosis is often associated with increased psychological vulnerability. Diabetes distress is associated with the daily demands of managing complicated medication and dietary regimes that are emotionally, psychologically, and physically taxing. Emotional labour may be required to manage or negotiate the demands of diabetes distress. Emotional labour is the process of managing feelings and expressions that come with fulfilling the emotional demands of necessary tasks or roles. However, the meaning of emotional labour has not been explored for young people living with Type 1 diabetes.</p></div><div><h3>Methods</h3><p>Using Interpretive Phenomenological Analysis, we conducted this study to explore the lived experience of emotional labour for young adults living with Type 1 diabetes in adulthood.</p></div><div><h3>Results</h3><p>Themes were identified that constituted sources of emotional labour inherent to participants’ experiences of diabetes management. The over-expenditure of emotional labour suggests profound implications for mental health outcomes and diabetes distress levels, and participant experiences revealed institutionally imbedded ableism that elicited further expenditure of emotional labour.</p></div><div><h3>Conclusion</h3><p>The findings suggest that reconsideration of educational frameworks and praxis within diabetes healthcare may alleviate emotional labour and diabetes distress.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100061"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000217/pdfft?md5=6c43b5e6759883509cb8b3e569b564a9&pid=1-s2.0-S2949923224000217-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141487061","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transition to adulthood: Experience of Japanese youth with spina bifida","authors":"Shiho Murayama ,&nbsp;Jennifer J. Doering ,&nbsp;Kathleen J. Sawin","doi":"10.1016/j.hctj.2024.100080","DOIUrl":"10.1016/j.hctj.2024.100080","url":null,"abstract":"<div><h3>Background</h3><div>Emerging adults with spina bifida have complex developmental and health care needs. Improvement in healthcare means there is greater interest in understanding and supporting the transition needs of children with spina bifida to adulthood. However, the experiences during transition for emerging adults with spina bifida in Japan remain unknown. The purpose of this study was to describe the experiences of transition to adulthood for emerging adults with spina bifida in Japan.</div></div><div><h3>Methods</h3><div>Qualitative descriptive design was used to explore experiences of emerging adults with spina bifida. Eight emerging adults between 20 and 29 years participated in semi-structured interviews.</div></div><div><h3>Results</h3><div>Six core themes were identified: (a) struggling with employment, (b) finding the meaning of “becoming an adult”, (c) learning to implement self-management, (d) proceeding with and worrying over adult health care, (e) establishing and maintaining relationships with friends, and (f) broadening scope of experiences.</div></div><div><h3>Conclusions</h3><div>This study contributed to identification of both challenges and positive aspects in experiences of emerging adults with spina bifida in Japan. Participants shared the unique perspective of how to “become an adult” as a person with spina bifida in Japan. Ever-present were participants’ experiences of struggling during transition to adulthood, especially when trying to find a job, establishing relationships with friends, and making the transition to adult health care. The challenges participants in this study faced striving to achieve adulthood-related milestones and transition to adult health care suggest that expansion of support and health care initiatives that reflects the Japanese social context are needed.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100080"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142652192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing mental health transition readiness in youth with medical conditions","authors":"Wendy N. Gray ,&nbsp;Lauren Partain ,&nbsp;Erin Benekos ,&nbsp;Carlos Konishi ,&nbsp;Adrianne Alpern ,&nbsp;Michael Weiss","doi":"10.1016/j.hctj.2024.100077","DOIUrl":"10.1016/j.hctj.2024.100077","url":null,"abstract":"<div><h3>Purpose</h3><div>Many youth with medical conditions also have co-occurring mental health concerns. Limited attention has been given to the mental health transition needs of these youth. We explore bringing transition readiness assessment into the mental health care of youth with co-occurring disorders.</div></div><div><h3>Design and Methods</h3><div>Mental health transition readiness was assessed in transition-aged youth seen in a hospital-based specialty mental health clinic for youth with co-occurring medical and mental health conditions. Patients and/or parents reported on their awareness of transition policies and experiences. Clinicians formally assessed youth mental health transition readiness using the TR_XANSITION Index_.</div></div><div><h3>Results</h3><div>Only 46.53 % of families knew about the clinic’s transition policy. Less than 1/3 reported their provider ever mentioning transition and only 6.93 % knew the deadline for transfer to adult care. Few patients had a transition goal in their treatment plan, even when required by the payor. By assessing transition readiness, clinicians were able to identify deficits in need of remediation in 95 % of patients. Transition readiness was highest in the following domains of the TR_XANSITION Index: Ongoing support (85.15 %), Adherence (78.38 %), and Trade/School (71.29 %). Transition readiness was lowest in New Providers (30.94 %), Rx/Medications (37.99 %), and Insurance (42.57 %). Few knew when their current health insurance coverage would end (10.89 %) or how to get health insurance coverage when they became an adult (11.88 %). Mental health transition readiness and medical condition transition readiness did not differ in a sub-sample of youth with available data, t(14) = −1.33, p =.20.</div></div><div><h3>Conclusion</h3><div>Mental health transition readiness is suboptimal in youth with co-occurring mental health and medical conditions. Findings point to specific targets for future intervention to improve patient mental health transition readiness and patient/family awareness of transition practices.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100077"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142586618","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}