{"title":"Exploring adolescent and parent perspectives on facilitating health self-management in adolescents with autism spectrum disorder","authors":"Jamie L. Rock , Heather A. Becker","doi":"10.1016/j.hctj.2024.100046","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100046","url":null,"abstract":"<div><h3>Background</h3><p>As many as 95% of individuals across the lifespan with autism spectrum disorder (ASD) have at least one comorbidity. While research focused only on the health of autistic adolescents is limited, we do know that fewer than 14% of these youth receive appropriate transition services to self-manage their health. These limitations have resulted in poor outcomes and premature mortality. Little is known about how parents and their adolescent children address this health burden.</p></div><div><h3>Objective</h3><p>The objective of this study is twofold. First to compare the perceptions of adolescents with ASD and their parents regarding adolescents’ contextual and process variables (depressive symptoms, health knowledge, health communication/planning, self-efficacy, self-determination) and health self-management (HSM) behavior. The second is to examine social facilitation for HSM behaviors in adolescents with ASD and their parents.</p></div><div><h3>Methods</h3><p>In this community-based study, an online survey was used to compare the perspectives of 40 adolescents with ASD aged 12 to 22 years and their parents on the adolescents’ HSM behaviors. Contextual and process variable measures (PROMISE, Star<sub>x</sub>, General Self-efficacy Scale, AIR Self-determination Scale, Social Facilitation Questionnaire) were completed by both adolescents (adolescent/pediatric version) and parents (parent version).</p></div><div><h3>Results</h3><p>Descriptive analysis indicated that parents were teaching self-management to adolescents for monitoring and preventing illness, including medication knowledge and how to talk to their doctor. The largest differences were found between parents’ and adolescents’ perceptions regarding teaching and learning about independent management of existing health conditions. Additionally, adolescents rated their self-efficacy (t (38) = 3.62, <em>p</em> < .001) and self-determination (<em>t (</em>39) = 4.55, <em>p</em> < .001) significantly higher than their parents did.</p></div><div><h3>Conclusions</h3><p>This study contributes perspectives on what parents and adolescents are doing to enhance adolescents’ health self-management. Adolescence is a developmental period of social facilitation when parents may teach their adolescent children with ASD to self-manage their health and when those adolescents may learn to do so. During this period, providers should offer adequate planning and guided training to support parents and their adolescent children with ASD to improve adolescents’ self-management behaviors and improve health outcomes for this vulnerable population.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100046"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000060/pdfft?md5=d6590b50f230c1f20ea1244bf4d1426d&pid=1-s2.0-S2949923224000060-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139675795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cristina A. Sarmiento , Chloe Glaros , Jessica Solomon Sanders , Jordan M. Wyrwa , Brooke Dorsey Holliman , Lisa A. Brenner
{"title":"“We do it all”: A qualitative exploration of the caregiver role for young adults with cerebral palsy","authors":"Cristina A. Sarmiento , Chloe Glaros , Jessica Solomon Sanders , Jordan M. Wyrwa , Brooke Dorsey Holliman , Lisa A. Brenner","doi":"10.1016/j.hctj.2023.100039","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100039","url":null,"abstract":"<div><h3>Aim</h3><p>To describe the complex roles of and crucial support provided by caregivers to young adults with cerebral palsy (CP) during the transition to adulthood.</p></div><div><h3>Method</h3><p>This was a qualitative study. We conducted 20 semi-structured interviews (13 caregiver; 7 patient/caregiver dyad) and analyzed data using a qualitative descriptive approach informed by phenomenological principles.</p></div><div><h3>Results</h3><p>We identified four major themes related to the roles that caregivers play during the transition to adulthood for young adults with CP: 1) caregivers as care coordinators; 2) navigating logistic and insurance barriers; 3) adjusting to adulthood and planning for an uncertain future; and 4) supporting maintenance of health, function, and quality of life. Overall, caregivers shared the many different ways that they act as advocates for young adults with CP. Many participants identified the extensive amount of time, energy, and financial resources required to appropriately provide care.</p></div><div><h3>Conclusions</h3><p>The transition to adulthood for young adults with CP is a challenging, uncertain, complex process for both adults with CP and their caregivers. Throughout this transition, caregivers also prioritize the happiness and quality of life of their adult children with CP. Our findings could be used by clinicians and researchers to develop and study patient- and family-centered transition processes for individuals with CP that attend to the struggles and priorities of youth with CP and caregivers alike.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100039"},"PeriodicalIF":0.0,"publicationDate":"2023-12-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000399/pdfft?md5=3ef1a84870e360a55fb382b03528caa0&pid=1-s2.0-S2949923223000399-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139050406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lin Li , Nancy Carter , Jan Willem Gorter , Linda Till , Marcy White , Patricia H. Strachan
{"title":"Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care","authors":"Lin Li , Nancy Carter , Jan Willem Gorter , Linda Till , Marcy White , Patricia H. Strachan","doi":"10.1016/j.hctj.2023.100035","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100035","url":null,"abstract":"<div><h3>Background</h3><p>A growing population of youth with medical complexity (YMC) are entering adult health care, education, and social systems in which their needs have been largely neglected. To better support YMC and their families, an understanding of how they manage the challenges of transitioning to adult services is needed. The aim of this study was to examine how families of YMC adapt to challenges and opportunities posed by the youth’s transition to adulthood and transfer to adult services.</p></div><div><h3>Methods</h3><p>In partnership with two parent co-researchers and underpinned by complex adaptive systems and the Life Course Health Development framework, a qualitative explanatory case study was conducted. Seventeen participants from 11 families of YMC (aged 16–30) living in Ontario were recruited. Data from 21 semi-structured interviews were analyzed using reflexive thematic analysis and further refined through theory-driven analysis. Supplementary documents shared by participants were analyzed using directed content analysis.</p></div><div><h3>Findings</h3><p>Three overarching themes were generated. “Imagining, pursuing, and building a good future” describes families’ priorities and visions for the youth’s life as an adult. “Perils and obstacles of an imposed transition” examines challenges that families face in their pursuit of a good future. Lastly, “surviving the transition” describes how families are forced to advocate, make sacrifices, and persist in their efforts to adapt to transition.</p></div><div><h3>Conclusions</h3><p>Pediatric providers should offer anticipatory guidance, partner with families in advocacy, and provide psychological support during transition. Education for adult and primary care providers should focus on developing professional competencies in the safe care of YMC, building capacity through clinical exposure, and creating culturally safe environments. Most importantly, YMC and their families need a model of care that can provide integrated, holistic, multidisciplinary care management across the lifespan.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100035"},"PeriodicalIF":0.0,"publicationDate":"2023-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000351/pdfft?md5=2fd294809e8250806b8bfa81d3649d32&pid=1-s2.0-S2949923223000351-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139033827","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sharon Levy , Stephanie (Charlie) Farley , Iona Campbell
{"title":"Collecting resilience points for a smooth transition to adult healthcare services: Co-creating a playful resource for Spina Bifida","authors":"Sharon Levy , Stephanie (Charlie) Farley , Iona Campbell","doi":"10.1016/j.hctj.2023.100036","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100036","url":null,"abstract":"<div><h3>Background</h3><p>The transition of young people with a disability or a chronic health condition, from paediatric to adult-focused health and social care services, in Scotland, is known to be difficult. There is a significant body of evidence to suggest that a transition should start early, be holistic and inclusive, as well as structured to build essential capabilities and promote resilience. The nurse-led project, reported here, created a playful mechanism for meaningful interaction between young people, families and healthcare professionals.</p></div><div><h3>Methodology</h3><p>Using participatory design as a framework to support development of a collaborative boardgame, guided ways to develop a ‘sense of coherence’. The ecological framing of resilience shaped the way captured lived experience, of adults with spina bifida who transitioned to adult care, was used to support developments. Experiential learning guided the co-creation of a playful resource on a journey through transition that could be used by families as well as healthcare students and professionals. We also explored ways to enhance a ‘Sense of Coherence’ and build resilience through serious game design.</p></div><div><h3>Results</h3><p>In this nurse-led project we jointly crafted and tested a transition game that is easily accessible, inclusive and sufficiently adaptable to fit different settings, communities and cultures. The open licence enables others to freely use and adapt this game so it could be further used, tested and validated.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100036"},"PeriodicalIF":0.0,"publicationDate":"2023-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000363/pdfft?md5=e8ef0a4291427401eb9822c04940fd63&pid=1-s2.0-S2949923223000363-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138582017","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anisha Maheshwari , Anna Maria Coronata , Laura Kirkpatrick , Ahmed Abdul-Al , Andrew McCormick , Loreta Matheo , Traci M. Kazmerski
{"title":"An institution-wide mixed methods assessment of healthcare transition","authors":"Anisha Maheshwari , Anna Maria Coronata , Laura Kirkpatrick , Ahmed Abdul-Al , Andrew McCormick , Loreta Matheo , Traci M. Kazmerski","doi":"10.1016/j.hctj.2023.100034","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100034","url":null,"abstract":"<div><h3>Background</h3><p>Healthcare transition (HCT) is the process of moving a patient from pediatric, parent-supervised care to an independent, adult-centered model. This study assesses current HCT activities and explores the educational and system-based needs for effective HCT processes in a single institution.</p></div><div><h3>Methods</h3><p>We interviewed division/care program leaders at one academic tertiary-care children’s hospital regarding HCT practices. We evaluated these groups using an interview guide and rubric scoring from the “GotTransition Current Assessment of HCT Activities” (scoring range from 8 [low HCT] to 32 [high HCT]). We audio-recorded and transcribed interviews. We calculated each group’s score on the rubric. Two coders qualitatively analyzed interview transcripts using a thematic analysis approach with deductive and inductive strategies.</p></div><div><h3>Results</h3><p>We interviewed 28 participants, each representing one division/care program. The institutional mean on the HCT assessment was 15.5 ± 4.5 (median 17.5, range 8–28). Key interview themes included: 1) Significant heterogeneity in the HCT process exists within most divisions/care programs; 2) While some groups have their own HCT practices, there is no coordinated institutional HCT approach.; 3) Participants find HCT difficult if they perceive the lack of an equivalent adult specialist for a patient’s specific medical condition; 4) There is a lack of coordinated handoffs from pediatric to adult providers. 5) Participants desire ancillary staff to support HCT.</p></div><div><h3>Conclusion</h3><p>Despite known benefits of a structured approach, most leaders report heterogeneity in current HCT practices and a lack of institutional resources and adult provider partners to support optimal HCT. We present a reproducible methodology to evaluate HCT within a single institution, as well as baseline assessment data that may inform interventions.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100034"},"PeriodicalIF":0.0,"publicationDate":"2023-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S294992322300034X/pdfft?md5=bb4a3f1761628f1edbcda4ecf7d59f10&pid=1-s2.0-S294992322300034X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138581990","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sydney Reed , Amy K. Bugwadia , Sneha Dave , Hannah E. Wilson , Prathikka Ramesh , Hilary K. Michel
{"title":"Sexual and reproductive health considerations in the care of young adults with inflammatory bowel disease: A multidisciplinary conversation","authors":"Sydney Reed , Amy K. Bugwadia , Sneha Dave , Hannah E. Wilson , Prathikka Ramesh , Hilary K. Michel","doi":"10.1016/j.hctj.2023.100033","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100033","url":null,"abstract":"<div><p>The effects of inflammatory bowel disease (IBD) and the medications used to treat it on sexual and reproductive health can be significant, impacting the quality of life of patients across gender identities. This article presents insights from a roundtable discussion facilitated by the Crohn's and Colitis Young Adults Network (CCYAN) between young adult patients with IBD and medical professionals, including physicians, nurses, psychologists, and trainees/medical students. It underscores the distinction between sexual and reproductive health, emphasizing the need to address both aspects comprehensively. The discussion identified key themes, including sexual dysfunction and well-being in IBD patients; discussing sexual health with young adult IBD patients; current research in reproductive health: gaps and opportunities; discussing reproductive health with young adult IBD patients; and providing resources and comprehensive multidisciplinary care.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100033"},"PeriodicalIF":0.0,"publicationDate":"2023-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000338/pdfft?md5=63f8e0be19a9ac873ac55049967971c6&pid=1-s2.0-S2949923223000338-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138557309","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Caroline M. Roberts , Jill M. Plevinsky , Kaitlyn L. Gamwell , Amy E. Noser , Lee A. Denson , Kevin A. Hommel
{"title":"Self-Management assistance for recommended treatment (SMART) IBD app randomized control trial in adolescents with IBD: Design and methodology","authors":"Caroline M. Roberts , Jill M. Plevinsky , Kaitlyn L. Gamwell , Amy E. Noser , Lee A. Denson , Kevin A. Hommel","doi":"10.1016/j.hctj.2023.100031","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100031","url":null,"abstract":"<div><h3>Aims</h3><p>Adherence to medical regimens, including medications and appointments, is a significant concern for adolescent populations that warrants behavioral interventions. Negative health behaviors during adolescence can persist into adulthood and lead to long-term negative health outcomes. Due to the limited availability and resources for behavioral self-management intervention, many youth do not receive evidence-based behavioral care and continue to struggle with managing their illness. Therefore, there is a need for easily accessible mHealth interventions targeting self-management in order to reduce health care barriers and provide more timely and effective behavioral care particularly during this developmental stage.</p></div><div><h3>Methods</h3><p>We provide a description of the design and methodology of the Self-Management Assistance for Recommended Treatment (SMART) IBD App randomized controlled pilot trial in pediatric inflammatory bowel disease (IBD) that aims to test the preliminary efficacy of the SMART IBD app compared to a usual care (UC) arm. Thirty participants 13–17 years of age will be recruited and randomized in the trial. Those randomized to the intervention arm will use the app for four weeks, each with one weekly challenge that focuses on self-management. Participants in both arms will complete baseline assessments, daily diaries for four weeks, and post-treatment assessments.</p></div><div><h3>Conclusion</h3><p>We hypothesize that participants in the intervention arm will experience clinically significant improvements in their self-management compared to those in the UC arm at the post-treatment assessment. Findings from the current study could provide initial evidence to support self-management interventions in adolescents with health conditions via mobile health apps, thereby reducing health care barriers and strains on institutional and nursing resources. Mobile health apps may also be a preferred avenue to disseminate interventions to adolescents.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100031"},"PeriodicalIF":0.0,"publicationDate":"2023-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000314/pdfft?md5=de3b1a3f7b00a856c0b1d8d95e90f5d1&pid=1-s2.0-S2949923223000314-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138472056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cade Johnson , Sneha Dave , Sydney Reed , Victor Chedid , Lucy Laube , Laura Targownik
{"title":"Providing LGBTQ+ affirming care to young adults with inflammatory bowel diseases","authors":"Cade Johnson , Sneha Dave , Sydney Reed , Victor Chedid , Lucy Laube , Laura Targownik","doi":"10.1016/j.hctj.2023.100030","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100030","url":null,"abstract":"<div><p>Creating an affirming care environment for young adults with IBD in the LGBTQ+ community is an essential part of inflammatory bowel disease (IBD) care. This article summarizes the discussions held during the Roundtable on Young Adults with IBD, which focused on essential information for adult-care providers to successfully navigate the complexities and intricacies of sexuality and gender identity for young adult IBD patients. The Roundtable on Young Adults with IBD is held through the Crohn’s and Colitis Young Adults Network. Key focus areas include establishing effective communication between providers and patients, maintaining patient safety and privacy, emphasizing trauma-informed practices, and building trust-based provider-patient relationships. Addressing these issues will allow providers to more fully and effectively treat LGBTQ+ young adults with IBD, ensuring a better, safer path into successful adult lives.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100030"},"PeriodicalIF":0.0,"publicationDate":"2023-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000302/pdfft?md5=4769e49e235ca97225e660c671e384f9&pid=1-s2.0-S2949923223000302-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138472057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Enhancing self-care and access – The Dutch stepped care model to strategically organize public sexual health for young people","authors":"Filippo Zimbile , Silke David , Elmari Briedenhann , Lisette Schutte , Rik Crutzen","doi":"10.1016/j.hctj.2023.100028","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100028","url":null,"abstract":"<div><p>Public Sexual and Reproductive Health (SRH) services are traditionally provided face-to-face by Dutch Sexual Healthcare Clinics. High demand for these services led to the exploration of digital health to increase access and support self-care. However, the implementation was fragmented and uncoordinated. Therefore, the Stepped Care Model (SCM) was introduced to (1) organize coordination and cooperation between regional and national providers of public SRH-services for young people; (2) link digital services to clinical services and identify opportunities for new digital services; (3) increase the accessibility of SRH-services; and (4) stimulate self-care. This article describes the Dutch SCM and how digital health is integrated The process started by identifying key stakeholders and promoting collaboration followed by development and implementation of an unified national online platform to access comprehensive SRH services. The different levels of care of the existing services were categorized and overlap between services were inventoried. Based on ‘ideal client journeys’ for different sexual health themes, relevant services on different care levels were linked to each other and new opportunities for digital or combined digital-professional supported services were identified. It is explained how young people can gain easy access to increasingly specific and specialist services at the higher steps of the model via the online central portal with general information as a first step. The lessons learned highlight the importance of partnerships, coordination and a shared strategy leading to reduced fragmentation and increased accessibility of services and more self-care. The constraints of the Dutch SCM are related to restricted evaluation possibilities due to anonymized client data, limited target group involvement, complexity of digital service development along with possible resistance from health professionals. The SCM shows how efficiency in health systems can be achieved following the principle of economies of scale: more coordination and less fragmentation, leading to lower costs for development and implementation of digital services, availability and bundling of specialized technical and regulatory expertise and financial resources, ultimately leading to reduced waiting times and more self-care for young people.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100028"},"PeriodicalIF":0.0,"publicationDate":"2023-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000284/pdfft?md5=41197e862e3c4dd49b044504b96d9fb7&pid=1-s2.0-S2949923223000284-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138345444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ellen Fremion , Rachel Madey , Elizabeth Harper , Kristen A. Staggers , K. Jordan Kemere , John Berens , Tara Harris
{"title":"Gynecological care needs for young women with spina bifida","authors":"Ellen Fremion , Rachel Madey , Elizabeth Harper , Kristen A. Staggers , K. Jordan Kemere , John Berens , Tara Harris","doi":"10.1016/j.hctj.2023.100002","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100002","url":null,"abstract":"","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"1 ","pages":"Article 100002"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49744033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}