Health Care TransitionsPub Date : 2025-01-01Epub Date: 2025-06-17DOI: 10.1016/j.hctj.2025.100107
Jesse Shen MD PhD , Eric Klineberg MD MS , Burt Yaszay MD , Jennifer Bauer MD MS , Aiyush Bansal MD MASc , Caroline Drolet PhD , Patricia Lipson BS , Philip K. Louie MD , Rajiv Sethi MD PhD
{"title":"Transitioning spine care from the pediatric to adult center: Challenges and future directions","authors":"Jesse Shen MD PhD , Eric Klineberg MD MS , Burt Yaszay MD , Jennifer Bauer MD MS , Aiyush Bansal MD MASc , Caroline Drolet PhD , Patricia Lipson BS , Philip K. Louie MD , Rajiv Sethi MD PhD","doi":"10.1016/j.hctj.2025.100107","DOIUrl":"10.1016/j.hctj.2025.100107","url":null,"abstract":"<div><h3>Study design</h3><div>Anonymous, survey-based prospective study.</div></div><div><h3>Objectives</h3><div>The objective of this study was to evaluate the current practice patterns and opinions of surgeons treating pediatric spinal deformity patients into adulthood.</div></div><div><h3>Methods</h3><div>An electronic survey regarding the transition process of pediatric patients into adulthood was administered to members of the ISSG (International Spine Study Group) and HSG (Harms Study Group). The survey covered themes such as protocols of transition of care, deformities recommended for follow-up into adulthood and institutional capability as well as organization for future follow-up into adulthood. Results of the survey were described in frequencies. Statistical analyses to detect differences in responses between groups were performed when appropriate.</div></div><div><h3>Results</h3><div>A total of 56 responses were analyzed. 85 % of the members of the HSG responded to the survey (41 out of 48 surgeons), and 42 % of members from the ISSG responded (15 out of 36). A third of the respondents described having the institutional capability to follow-up with patients of any age. Most (60 %) of the ISSG members continue to follow-up with their pediatric patients into adulthood. For the question about treatment plans for patients who cannot be followed due to age, there was significant differences in referral patterns following pediatric care (p = .0006). Furthermore, HSG significantly discussed more about transitional care planning with patients and their families compared to ISSG (<em>p</em> = .001).</div></div><div><h3>Conclusions</h3><div>Although more than 80 % of respondents somewhat discussed transitional care for spinal deformity, more than 90 % do not have a formal transitional care protocol. There is a clear lack of both uniformity and standards for transitional care for spinal deformity. It is imperative to develop and disseminate standards of transitional care for youth with spinal deformities. This work encourages all specialty societies including the Scoliosis Research Society and all professionals involved with youth transitional care to lead future work.</div></div><div><h3>Level of evidence</h3><div>V</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100107"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144307245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Patient and parent perspectives on an academic rheumatology transition clinic","authors":"Rebecca S. Overbury , Devin Eddington , Katherine Sward , Aimee Hersh","doi":"10.1016/j.hctj.2024.100094","DOIUrl":"10.1016/j.hctj.2024.100094","url":null,"abstract":"<div><h3>Objectives</h3><div>To better define components of successful Health Care Transition (HCT) we surveyed patients in an academic Rheumatology Transition clinic at the University of Utah. Results can be used to improve HCT over time.</div></div><div><h3>Methodology</h3><div>We asked patients and parents to complete Mind the Gap and the Transition Feedback survey as part of a larger registry dataset collected from said Rheumatology Transition clinic. Results from Mind the Gap and the Transition Feedback survey were analyzed. Survey responses are presented as averages.</div></div><div><h3>Results</h3><div>Sixty-five patients and 42 parents completed Mind the Gap. Patients report that the clinic is outperforming their expectations in 20 of 22 variables. Parents report that the clinic is underperforming their expectations in 23 of 27 variables. Parents value these 22 variables more than the patients. Twenty-four patients and 15 parents completed the Transition Feedback survey. More than 50 % of patients and parents state that the components of HCT curriculum were addressed. 58 % of patients (14 out of 24) reported feeling “very ready” to move to an adult doctor or other health care provider. 53 % of parents (8 out of 15) felt their child was “very ready” to move to an adult doctor or other health care provider.</div></div><div><h3>Conclusion</h3><div>A difficulty in defining a successful transfer is how to simultaneously integrate the perspective and needs of the patient and parents. This research shows that the values of patients and their parents generally align. However, there are important disparities between these groups. We demonstrate that even in a dedicated Transition clinic, not all components of HCT are being administered and that only half of patients and parents feel prepared to transfer.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100094"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11786896/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143082994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2025-01-01Epub Date: 2025-08-04DOI: 10.1016/j.hctj.2025.100116
Elizabeth Fenelon, Kayla McCracken, Keely Bieniak-Fortier, Chloe Crosby, Paulina Paredes Cienega, Susan T. Tran
{"title":"“Hurt and Misunderstood”: Emotional reactions to pain dismissal in emerging adults with chronic pain","authors":"Elizabeth Fenelon, Kayla McCracken, Keely Bieniak-Fortier, Chloe Crosby, Paulina Paredes Cienega, Susan T. Tran","doi":"10.1016/j.hctj.2025.100116","DOIUrl":"10.1016/j.hctj.2025.100116","url":null,"abstract":"<div><h3>Background</h3><div>Twelve percent of emerging adults (EAs) experience chronic pain which is associated with psychological distress and isolation. At least 40 % of EAs with chronic pain experience pain dismissal which poses a significant barrier to care and treatment. The goals of this paper were to expand our understanding of pain dismissal experiences among EAs and to extend research to the emotional and psychological impact of pain dismissal on EAs.</div></div><div><h3>Method</h3><div>EAs with chronic pain (<em>N</em> = 227) between the ages of 18–25 (<em>M</em>age = 19.58) completed online surveys of pain experiences, anxiety, and depression. Thematic analysis was conducted for three open-ended responses.</div></div><div><h3>Results</h3><div>Over 40 % of EAs with chronic pain experienced pain dismissal (43 %), with female and EAs identifying as other gender identity experiencing greater dismissal than male EAs. There were no differences across racial/ethnic identities. <em>Medical professionals</em> (46 %) and <em>caregivers/parents</em> (38 %) were most frequently reported people to have dismissed participant pain. <em>Minimizing/invalidating</em> (27 %) and <em>normalizing</em> (26 %) were the most frequent themes of what was said to dismiss one’s pain. In response to pain dismissal, EAs described feeling <em>gener</em>ic <em>negative feelings</em> (25 %) and <em>anger/annoyance</em> (21 %).</div></div><div><h3>Discussion</h3><div>Survey responses suggest that pain dismissal bothered EAs, and those who experienced pain dismissal had higher anxiety and depression, indicating a need for family/provider education on pain in EAs and validation of pain experiences in EAs. New themes around what constituted pain dismissal included <em>negative self-view</em> and <em>invalidated</em>/<em>gaslit</em>. Future research should explore the long-term effects pain dismissal has on chronic pain outcomes.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100116"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144767014","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2025-01-01Epub Date: 2025-07-29DOI: 10.1016/j.hctj.2025.100114
Katherine Melton PhD, RN , Brynn Telenko , Peyton Miles , Sneha Dave , Sydney Reed , Rosa Kelekian MSW , Caroline Walsh , Shannon O’Donnell , Kathleen E. Walsh MD, MS
{"title":"Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study","authors":"Katherine Melton PhD, RN , Brynn Telenko , Peyton Miles , Sneha Dave , Sydney Reed , Rosa Kelekian MSW , Caroline Walsh , Shannon O’Donnell , Kathleen E. Walsh MD, MS","doi":"10.1016/j.hctj.2025.100114","DOIUrl":"10.1016/j.hctj.2025.100114","url":null,"abstract":"<div><h3>Introduction</h3><div>Little is known about how young adults with chronic conditions view peer support and virtual peer-support programming. The purpose of this study is to (1) describe the psychosocial and peer support needs of young adults with different chronic conditions and (2) evaluate the acceptability of a virtual community led peer-support program.</div></div><div><h3>Methods</h3><div>We developed and pilot-tested a 64-item online survey that included items about demographics, diagnosis and disease severity, peer support use and beliefs, program use and satisfaction, the UCLA 3-item loneliness scale, and free text responses. 136 young adults (18−35) with chronic conditions recruited from an email listserv participated. Two researchers coded free text responses and integrated quantitative and qualitative data using a convergent parallel mixed methods approach.</div></div><div><h3>Results</h3><div>Participants expressed social isolation, difficulty connecting with healthy peers, and a desire for greater availability of peer support programs. Of the participants, 72 % (n = 96) reported a UCLA loneliness score ≥ 6, indicating loneliness. The majority (91 %, n = 119) expressed that it was important to them to know other chronically ill young adults. Only 11 % (n = 15) reported that their hospital provided peer support programming. Most (94 %;(n = 32) peer support participants were somewhat or completely satisfied with the program.</div></div><div><h3>Conclusions</h3><div>Across different chronic conditions, peer support was seen as an unmet need and greater availability of virtual peer support programs may help support the psychosocial wellbeing of young adults with chronic conditions.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100114"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144724581","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2025-01-01Epub Date: 2025-06-06DOI: 10.1016/j.hctj.2025.100104
{"title":"Erratum regarding previously published articles","authors":"","doi":"10.1016/j.hctj.2025.100104","DOIUrl":"10.1016/j.hctj.2025.100104","url":null,"abstract":"","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100104"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145684751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2025-01-01Epub Date: 2025-09-18DOI: 10.1016/j.hctj.2025.100120
Sophie Ayoub , Sandra Meier , Cheryl Cytrynbaum , Ann Swillen , Luzius A. Steiner , Holly Carbyn , Bernice S. Elger , Eva De Clercq
{"title":"Transition services in 22q11 deletion syndrome: Hit or miss","authors":"Sophie Ayoub , Sandra Meier , Cheryl Cytrynbaum , Ann Swillen , Luzius A. Steiner , Holly Carbyn , Bernice S. Elger , Eva De Clercq","doi":"10.1016/j.hctj.2025.100120","DOIUrl":"10.1016/j.hctj.2025.100120","url":null,"abstract":"<div><h3>Introduction</h3><div>22q11 deletion syndrome (22q11DS) is a rare genetic condition and the most common microdeletion in humans. The symptomatology is broad and variable between individuals. It is usually diagnosed in childhood and requires a multidisciplinary lifelong approach including a structured transitional care process. This study therefore seeks to enrich our understanding of transitional care for individuals with 22q11DS by exploring the insights from healthcare professionals (HCPs) from Europe and Canada with multidisciplinary backgrounds.</div></div><div><h3>Methods</h3><div>This interview study was part of a larger mixed-methods research project, with the qualitative component concentrating on gathering insights from HCPs involved in patient care through semi-structured interviews. We conducted qualitative thematic analysis while focusing on transitional care within families caring for a child with 22q11DS from the perspective of HCPs.</div></div><div><h3>Results</h3><div>The 20 HCPs interviewed came from diverse professional backgrounds and all had clinical experience with 22q11DS. Our analysis of the data identified three primary themes. Our participants emphasized the inadequacy of the transitional care system, despite its critical importance. HCPs tried their best to overcome the challenges by relying on longer follow-up with their patients, with some even merging children and adult services. There was a shared desire among HCPs for a structured transitional care plan, better access to adult services for 22q11DS, and a more integrated, collaborative approach.</div></div><div><h3>Conclusion</h3><div>This study highlights the inadequacy of transitional care for individuals with 22q11DS and their families, showing a need to better align policies and clinical practice. Filling the gap between existing policies and the desired transitional care services is essential. The latter includes: an appropriate longitudinal transition plan, strong psychological support not only for the individual with 22q11DS but also for their family, a coordination system, and accessible adult services with expertise on 22q11DS.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100120"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145095359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2025-01-01Epub Date: 2025-01-26DOI: 10.1016/j.hctj.2025.100095
Eric Racine , François Ouimet , Rocio Gissel Gutierrez Rojas , Marie-José Clermont , Anne Fournier
{"title":"Transition from pediatric to adult health services: A survey of challenges, needs, and preferences of youths and parents","authors":"Eric Racine , François Ouimet , Rocio Gissel Gutierrez Rojas , Marie-José Clermont , Anne Fournier","doi":"10.1016/j.hctj.2025.100095","DOIUrl":"10.1016/j.hctj.2025.100095","url":null,"abstract":"<div><h3>Aim</h3><div>Transition from pediatric to adult healthcare is a critical period. Recommendations have pointed to greater preparation of youths and families and better coordination. Considerations such as patient values and preferences may – if not taken into consideration – impede uptake of clinical recommendations. This survey-based study aimed to better understand challenges, needs, and intervention preferences of youths and parents during transition.</div></div><div><h3>Methods</h3><div>Two online surveys were designed to investigate challenges, needs, and intervention preferences of youths with a chronic or rare condition and parents during transition. The youth survey included the French translation of the Transition Readiness Assessment Questionnaire (TRAQ). Additional questions were derived from an interview-based study and aimed to grasp issues related to human flourishing in addition to more conventional clinical issues related to the transition process. Descriptive statistics were used and ANOVAs to detect differences between the groups when applicable.</div></div><div><h3>Results</h3><div>86 youths and 94 parents completed the survey. Average scores for TRAQ subscales were high except for “Tracking health issues” and “Appointment keeping”. Youths and parents reported being able to give their opinion. Parents were judged to be slightly over-involved. Ongoing involvement of parents in health management was desired. Awareness of differences between pediatric and adult healthcare was high, but a source of notable concern (e.g., accessibility of different medical and professional services). Information on transition was lacking. Installing a pivot-person, visits to the adult hospital, meeting other youths, and accessing transition videos were supported interventions.</div></div><div><h3>Conclusion</h3><div>Transition readiness can be high, but significant challenges can still be present and salient. Youths and adults want to be involved and informed to prepare actively for transition through meetings or adapted materials.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100095"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143141993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2025-01-01Epub Date: 2025-05-21DOI: 10.1016/j.hctj.2025.100105
Yao Zhang , Xuewei Chen , Yi Qi, Yiwen Hu, Ziling Xie, Chaoqun Dong
{"title":"Bibliometric analysis of transition readiness in adolescents with chronic diseases","authors":"Yao Zhang , Xuewei Chen , Yi Qi, Yiwen Hu, Ziling Xie, Chaoqun Dong","doi":"10.1016/j.hctj.2025.100105","DOIUrl":"10.1016/j.hctj.2025.100105","url":null,"abstract":"<div><h3>Objective</h3><div>This study aims to explore current hot topics and research trends in transition readiness for adolescents with chronic diseases using a bibliometric methodology.</div></div><div><h3>Methods</h3><div>The Web of Science database core collection was searched for literature related to transition readiness in adolescents with chronic diseases published from January 1, 2000, to December 31, 2024. CiteSpace and VOSviewer were adopted to analyze the publication characteristics.</div></div><div><h3>Results</h3><div>The results showed that, the number of studies on transition readiness is increasing in a wave-like pattern. The hot topics about the transition readiness of adolescents with chronic diseases can be summarized as follows: adolescents with sickle cell disease, epilepsy, crohn's disease, transplantation and neurogastroenterology-related diseases, the validation of The Self-Management and Transition to Adult Treatment Questionnaire, the crucial role of parents, care coordination, vocational readiness, quality of life, and health literacy. Based on the burst keywords, transition readiness-related influencing factors, comprehensively exploring the transition readiness of adolescents with chronic diseases, identifying specific intervention goals, and systematically constructing intervention programs may be future research trends.</div></div><div><h3>Conclusions</h3><div>This study systematically reviews the current state of research on transition readiness for adolescents with chronic diseases and analyzes potential future trends that can provide input into the direction of healthcare transition research.</div></div><div><h3>Practical implications</h3><div>By highlighting hot topics and trends in the field, this research contributes to raising awareness among healthcare professionals and researchers of areas in need of further attention, and helps them to identify potential gaps and opportunities in their own clinical practice or research efforts.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100105"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144098589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Care TransitionsPub Date : 2025-01-01Epub Date: 2025-08-26DOI: 10.1016/j.hctj.2025.100119
Jennifer L. Woods , Courtney E. Batt , Catherine Clark , Amanda R. Bogart , Jeanelle L. Sheeder
{"title":"Effects of mental health on transition readiness in primary care","authors":"Jennifer L. Woods , Courtney E. Batt , Catherine Clark , Amanda R. Bogart , Jeanelle L. Sheeder","doi":"10.1016/j.hctj.2025.100119","DOIUrl":"10.1016/j.hctj.2025.100119","url":null,"abstract":"<div><h3>Background</h3><div>Adolescents and young adults often lack appropriate healthcare transition preparation, a concern amplified by prevalent mental health issues. Our study aimed to assess the relationship between transition readiness and behavioral health screening across multiple domains in adolescents within a primary care medical home.</div></div><div><h3>Methods</h3><div>We conducted a retrospective cohort study (October 2021-December 2024) for new, preventive and follow-up visits where patients (ages 14–25 years) completed validated depression, transition readiness screening, Transition Readiness Assessment Questionnaire (TRAQ) and the Patient Questionnaire-9 (PHQ-9). Nonparametric median tests for continuous variables and chi-squared tests for categorical variables assessed for differences for patient age, race/ethnicity, legal sex, and insurance type. Linear and linear logistic regression was also performed.</div></div><div><h3>Results</h3><div>Patients (median 17.0 years; 62.8 % female; Hispanic 44.9 %; public insurance 62.2 %) completed the TRAQ and PHQ-9 for 3010 visits. Patients with PHQ-9 > 10 were more likely to be female, non-Hispanic White at follow up visits with private insurance; p < 0.001. There was no significant relationship between PHQ-9 and TRAQ scores. Linear regression showed significance for age at visit, legal sex (female), non-Hispanic White, visit type (follow up); p < 0.001 and English language (p = 0.017); logistic regression showed significance for age at visit, legal sex (female), non-Hispanic white, follow up visits (p < 0.001)</div></div><div><h3>Conclusions</h3><div>Age, legal sex, race/ethnicity, and insurance status significantly influence transition readiness among AYA. While positive depression screens do not show a direct association with transition readiness, depression may still affect health factors that indirectly shape readiness for transition.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100119"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144925727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"“When you’re in the office, it means you managed to get somewhere”: An interpretive descriptive study of the perceptions of adolescents accessing primary care for mental health services","authors":"Lisa De Panfilis RN, MSc , Rebecca Ganann RN, MSc, PhD , Gillian Mulvale MA, PhD , Naomi Thulien NP-PHC PhD , Ruta Valaitis MA, PhD","doi":"10.1016/j.hctj.2024.100093","DOIUrl":"10.1016/j.hctj.2024.100093","url":null,"abstract":"<div><h3>Objective</h3><div>Primary care offers an entry point into the health care system for adolescents experiencing mental illnesses. This study explored the perceptions of adolescents with an anxiety or mood disorder accessing primary care for mental health services.</div></div><div><h3>Methods</h3><div>Qualitative interpretive descriptive design was employed. Participants ages 15–18 years (n = 10) were recruited from a mid-sized city in Canada utilizing flyers and social media advertisements. Data were collected between August and December 2019. Data generation methods included photo-elicitation, demographic survey, and semi-structured interviews. Analysis was guided by a health care access framework and ecological model.</div></div><div><h3>Results</h3><div>Adolescents perceived the process of accessing primary care for mental health services as complex and beginning prior to entering the primary care environment; a novel conceptual framework was developed to depict the process. Adolescents described three stages in this process: feeling uncertain about their concerns and requiring help; seeking informal support from parents and friends to initiate help-seeking; and receiving mental health services through primary care.</div></div><div><h3>Discussion</h3><div>A novel conceptual framework to depict the process of access for adolescents is proposed. Primary care practitioners require awareness of the access process adolescents conceptualize prior to deciding to seek help in primary care, as well as the need to foster their emerging adulthood in care. Targeted interventions to enable early intervention include providing information about mental health services available during routine interactions.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100093"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11772970/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}