Healthcare transition readiness of families of youth with cystic fibrosis during COVID-19: A correlational multicenter analysis

Health Care Transitions Pub Date : 2024-01-01 DOI:10.1016/j.hctj.2024.100065

Tyra C. Girdwood , Kirsten Kainz , Susan G. Silva , Jennifer L. Goralski , Maria E.Díaz-González de Ferris , Mary R. Lynn , Elisabeth P. Dellon , Samya Z. Nasr , Ahmet Uluer , Mark P. Toles

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Abstract

Background

Enhancing family readiness for the healthcare transition (HCT) to adult-focused care can help adolescents and young adults (AYA) thrive in adulthood. We aimed to explore modifiable and non-modifiable individual, family, and healthcare factors associated with HCT readiness of AYA among families of AYA with cystic fibrosis (CF) during COVID-19.

Methods

A multi-site, cross-sectional design was used and an online survey was deployed among families and their AYA from three US pediatric CF centers. The STAR_x Transition Readiness Questionnaire assessed caregiver- and AYA-perceived HCT readiness of AYA.

Results

Caregivers (N = 71) and their AYA with CF (N = 33, aged 12–21 years) perceived moderately high HCT readiness of AYA. Caregiver resilience was a significant (p = 0.006), family-level factor correlated with caregiver-perceived HCT readiness.

Conclusions

Families perceived similar levels of AYA readiness for adult-focused care. Caregiver resilience is an important, modifiable family-level factor for targeted interdisciplinary interventions aimed at enhancing HCT processes during COVID-19.

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COVID-19 期间囊性纤维化青少年家庭的医疗过渡准备情况：多中心相关分析

背景加强家庭对医疗保健过渡（HCT）的准备，以成人为重点的护理可帮助青少年和年轻成人（AYA）在成年后茁壮成长。我们的目的是在 COVID-19 期间，在患有囊性纤维化（CF）的青少年和年轻成人的家庭中，探讨与青少年和年轻成人的医疗保健过渡准备相关的可调节和不可调节的个人、家庭和医疗保健因素。结果照顾者（71 人）及其 CF 青少年（33 人，12-21 岁）认为青少年的 HCT 准备程度中等偏上。照顾者的适应能力是一个重要的（p = 0.006）家庭层面因素，与照顾者感知的 HCT 准备程度相关。对于旨在加强 COVID-19 期间 HCT 过程的有针对性的跨学科干预而言，护理者的适应能力是一个重要的、可改变的家庭层面因素。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Health Care Transitions

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