Health Care Transitions最新文献

{"title":"Caregiver-child discrepancy in healthcare transition readiness and its associations","authors":"Yunzhen Huang ,&nbsp;Eugene Maung ,&nbsp;Stephen R. Hooper ,&nbsp;Chad Coltrane ,&nbsp;Maria Díaz-González de Ferris","doi":"10.1016/j.hctj.2025.100113","DOIUrl":"10.1016/j.hctj.2025.100113","url":null,"abstract":"<div><h3>Purpose</h3><div>To explore caregiver-child discrepancy in healthcare transition (HCT) readiness and its association with demographic variables, anxiety, and health services utilization in children and adolescents with chronic health conditions.</div></div><div><h3>Methods</h3><div>This cross-sectional study surveyed 214 caregiver-child dyads recruited from a therapeutic camp in the Southeastern United States. Children and adolescents aged 7–17 years and their caregivers completed the STAR_x Questionnaire to assess HCT readiness. Additionally, children rated their anxiety using the PROMIS-Anxiety scale, and caregivers reported their child’s past-year health services utilization. Paired <em>t</em>-tests were used to examine the caregiver-child discrepancies in HCT readiness. Correlation analyses and linear regression were used to explore factors associated with caregiver-child discrepancies in HCT readiness.</div></div><div><h3>Results</h3><div>No statistically significant discrepancies were identified at the full-scale and subscale levels of the STAR_x Questionnaire. However, single-item level analysis showed caregiver-child discrepancies in their perception of the child’s medication adherence and disease knowledge. Caregivers generally rated children’s HCT readiness higher than children did themselves, particularly in younger children and those diagnosed at a younger age. Higher caregiver ratings were correlated with greater child anxiety.</div></div><div><h3>Conclusion</h3><div>This study revealed gaps in caregiver-child perceptions of the child’s HCT readiness. Addressing these gaps through collaborative communication, shared decision-making, and targeted interventions may improve the HCT process and outcomes. Additionally, this study showed that greater caregiver ratings were linked to younger age, younger age at diagnoses, and elevated child anxiety, calling for early, effective interventions for transition planning to mitigate differences in caregiver-child ratings and facilitate HCT.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100113"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144724582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Self-perceived importance and confidence of adolescents transitioning to adult care","authors":"Lisa Lestishock ,&nbsp;Carrie Cuomo ,&nbsp;Teresa Hickam ,&nbsp;Tisa Johnson-Hooper ,&nbsp;Michele Maddux ,&nbsp;Evan Muzzall ,&nbsp;Margaret McManus ,&nbsp;Patience White","doi":"10.1016/j.hctj.2024.100086","DOIUrl":"10.1016/j.hctj.2024.100086","url":null,"abstract":"<div><h3>Purpose</h3><div>Motivational interviewing (MI) techniques are used by health care teams to engage adolescents and young adults (AYAs) in health care self-management and pediatric to adult health care transition (HCT) planning efforts. The aim of this study was to assess the initial level of motivation of AYAs prior to receipt of HCT anticipatory guidance and to determine associations with demographic and health coverage factors.</div></div><div><h3>Methods</h3><div>This retrospective study included 5112 AYAs, aged 12–26 years, from four health systems. All AYAs completed the Got Transition readiness assessment that includes MI questions on importance and confidence related to the move to an adult provider.Independent variables included demographic and health coverage factors: age, sex, race, ethnicity, language, and insurance type. The statistical approach included summary statistics, chi-square tests of independence and log-likelihood ratio tests, and generalized linear models and contrasts.</div></div><div><h3>Results</h3><div>The study results demonstrate initial trends in importance and confidence scores for AYAs before they became part of a HCT planning process. Importance scores increased from 12-14 through 18–20 years of age, then decreased in the 21–26-year group. Confidence scores increased from the 12–14 through the 21–26-year group.Confidence scores were generally higher than importance scores and were accompanied by smaller standard deviations. Ethnicity and insurance type also demonstrated an association with MI scoring.</div></div><div><h3>Discussion</h3><div>This study provides baseline scores on two key MI importance and confidence questions that can facilitate clinician understanding of AYA engagement in discussing the changes needed to move to adult care and guides the clinician to start earlier than just before transfer that often occurs around age 21.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100086"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142721093","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A statewide initiative to improve healthcare transition from pediatric to adult care for individuals with neurodevelopmental disabilities: Lessons learned from engaging stakeholders","authors":"Susan Shanske ,&nbsp;Lindsay MacAuley ,&nbsp;Jamara Possemato ,&nbsp;Lindsay Hunt ,&nbsp;Tuba Rashid Khan ,&nbsp;Sarah Spence","doi":"10.1016/j.hctj.2025.100115","DOIUrl":"10.1016/j.hctj.2025.100115","url":null,"abstract":"<div><h3>Background</h3><div>Transition from pediatric to adult healthcare is challenging for patients with Neurodevelopmental Disabilities (NDD). Patients, families, and providers endure systemic barriers. Our objective was convening stakeholders in Massachusetts to identify specific challenges and target solutions for improvement.</div></div><div><h3>Methods</h3><div>This initiative involved a multistep stakeholder engagement process to improve healthcare transition for individuals with NDD. A steering committee (28 participants) and four task forces (72 participants overall) focused on major improvement themes (e.g., workforce development, practice infrastructure, clinical care, and financing). These groups included multidisciplinary providers, payers, advocacy organizations, state agencies and family partners and met routinely over 18-months to identify barriers and solutions, creating resources to share with key stakeholders. A statewide summit was convened to disseminate results (n = 256 participants). Quality improvement approaches guided initiative efforts and evaluation. Evaluation included interviews with adult providers caring for young adults with NDD, surveys of family members on their satisfaction with the transition process, and surveys of steering committee/taskforce members on their satisfaction with the process and recommendations for future change.</div></div><div><h3>Results</h3><div>During the 18-month period, the steering committee and taskforce participants created resources and developed and refined a driver diagram that built a foundation for future improvement work. Provider interviews described a lack of adult providers with NDD expertise as a barrier, while availability of care coordination and ability to accommodation patient/family needs were key facilitators. Family surveys indicated low confidence for successful transition prior to transfer to adult providers, but high satisfaction with process once transfer had occurred. Summit participants reported better understanding of healthcare transition needs of the NDD population and an ability to set related goals. When asked to identify change ideas generated at the summit, participants contributed over 100 suggestions, ranging from clinic-level interventions to system-level improvements, reflecting enthusiasm for this work. The majority reported feeling satisfied with the initiative’s process and that it was a good use of time.</div></div><div><h3>Conclusion</h3><div>This model succeeded in building relationships, developing resources collaboratively and identifying goals and improvements to address healthcare transition for those with NDD. This initiative could serve as a roadmap for convening successful transition improvement efforts.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100115"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144780457","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reframing healthcare transition: Systems, relationships, and independence in adolescent-to-adult care","authors":"Caroline Walsh ,&nbsp;Sydney Reed ,&nbsp;Sneha Dave ,&nbsp;Susan Shanske ,&nbsp;Katherine Melton","doi":"10.1016/j.hctj.2025.100122","DOIUrl":"10.1016/j.hctj.2025.100122","url":null,"abstract":"&lt;div&gt;&lt;div&gt;This article summarizes the findings from a roundtable convening led by the organization Generation Patient between patients, healthcare providers, and researchers on the transition from pediatric to adult care, identifying barriers at both within the clinic and broader system levels, including the need for improved self advocacy skills, tailored care approaches for patients with complex care needs, and systemic supports such as transition navigators and social workers. Recommendations include enhancing patient independence during pediatric care, adopting a multidisciplinary team approach, and implementing long-term system reforms such as improved adult provider training and Medicaid policy changes. These insights present a call to action for healthcare stakeholders to share responsibility and take a more active role to ensure patients with chronic conditions receive the appropriate care after they transition from pediatrics.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Introduction&lt;/h3&gt;&lt;div&gt;Transition from pediatric to adult care remains a significant challenge for adolescents and young adults (AYAs) with chronic conditions. Insufficient preparation and support during this period can lead to increased morbidity and gaps in care. Existing systems often place the burden of transition on patients and families, resulting in unmet needs for self-advocacy skill development, tailored care approaches for diverse populations, and system-level supports.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Methods&lt;/h3&gt;&lt;div&gt;A roundtable was convened by the young-adult-led advocacy organization Generation Patient, involving 9 healthcare professionals (physicians, nurses, social workers, researchers, transition specialists) and 11 young adult patients from across the United States. Discussions were structured to elicit experiences and recommendations regarding barriers and solutions for healthcare transition. Qualitative analysis of the proceedings identified key themes and consensus recommendations.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Results&lt;/h3&gt;&lt;div&gt;Participants highlighted that current transition processes are abrupt and emotionally taxing for AYAs, especially those with complex or rare conditions and neurodevelopmental differences. Barriers included limited preparation for patient independence, lack of individualized care models, insufficient system supports, and challenges with insurance and provider handoffs. Recommendations focused on early promotion of independence within pediatric care, personalized approaches for patients with varied needs, integration of transition navigators and case managers, and upstream reforms such as Medicaid policy changes and enhanced adult provider training.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Conclusion&lt;/h3&gt;&lt;div&gt;A successful transition from pediatric to adult care requires moving beyond solely individual patient solutions toward system-wide, collaborative responsibility. Engaging multidisciplinary teams, supporting patient autonomy, and implementing policy reforms are essential steps to ensure conti","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100122"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145265088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of navigation services in supporting mental health and addictions care transitions: A qualitative exploration of perspectives from transitional-aged youth, family, and service providers (part 2)","authors":"Roula Markoulakis ,&nbsp;Hinaya Cader ,&nbsp;Karen Wong ,&nbsp;Sugy Kodeeswaran ,&nbsp;Tracey Addison ,&nbsp;Cathy Walsh ,&nbsp;Jocelyn Charles ,&nbsp;Amy Cheung ,&nbsp;Deepy Sur ,&nbsp;David Willis ,&nbsp;Anthony Levitt","doi":"10.1016/j.hctj.2024.100082","DOIUrl":"10.1016/j.hctj.2024.100082","url":null,"abstract":"<div><h3>Introduction</h3><div>Transitional-aged youth (TAY) are at a vulnerable stage of their development in which mental health and/or addiction (MHA) issues tend to manifest and/or increase in severity. These youth also tend to find themselves caught in the gap between child and adult MHA services, often resulting in sub-optimal access to and transition through MHA services. Navigation services may be one way to close this and other system gaps and improve service utilization and supports for TAY. The objective of this study was to explore the perspectives of TAY, family members, and system providers regarding the support that can be provided by navigation services in addressing the needs and barriers encountered during transitions in MHA care.</div></div><div><h3>Methods</h3><div>This is a descriptive qualitative study of TAY, family, and provider perspectives on the role of navigation as it pertains to transitions in care for TAY with MHA concerns. Focus groups and semi-structured interviews were conducted with 63 participants with varying levels of familiarity with navigation. Participants were asked about their experiences with navigating transitions through the MHA system and their views on the role of navigation services in supporting transitions in care. Data was analyzed utilizing a thematic analysis approach.</div></div><div><h3>Results</h3><div>Five themes emerged during data analysis: navigation to traverse difficult pathways, navigation to ensure appropriate and comprehensive care, navigation to sustain continuity of care, navigation to support informed care, and navigation to facilitate TAY and family involvement.</div></div><div><h3>Discussion</h3><div>These findings contribute to an understanding of how navigation services can be meaningful in mitigating the challenges faced by TAY and their families when seeking help for MHA issues. Navigation services have the potential to support MHA system transformation for enhanced transitions in care for TAY with MHA concerns and their families.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100082"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142707038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adolescent and Caregiver preparation for legal changes at age 18","authors":"Blanca Sanchez-Fournier ,&nbsp;Jordyn Babla ,&nbsp;Mary Majumder ,&nbsp;Beth H. Garland ,&nbsp;Constance M. Wiemann ,&nbsp;Albert C. Hergenroeder","doi":"10.1016/j.hctj.2025.100106","DOIUrl":"10.1016/j.hctj.2025.100106","url":null,"abstract":"<div><h3>Background</h3><div>Most adolescents with special healthcare needs (ASHCN) will assume legal responsibility for making decisions about their medical treatment at age 18. Simultaneously, parents or other legal representatives (Caregivers) will lose ASHCN medical record access. This study examined ASHCN and Caregiver knowledge of, satisfaction with, and suggestions for improvement in preparing for these changes.</div></div><div><h3>Methods</h3><div>Eighty-three dyads (18-year-old ASHCN and Caregivers) completed an assessment to evaluate their knowledge about changes in responsibility for decision making with a focus on consent, satisfaction with the preparation received, and recommendations for improved preparation. Descriptive statistics and mean comparisons were used. Responses to open-ended questions were coded by an interdisciplinary team.</div></div><div><h3>Results</h3><div>ASHCN and Caregivers did not significantly differ (70 % vs. 66 %, p &gt; 0.05) in their overall knowledge of legal changes that occurred at age 18. Less than half of ASHCN and Caregivers reported being very satisfied with the preparation they received before turning 18. ASHCN would have wanted to practice skills, know more information, and be more actively engaged in their healthcare. Caregivers desired more information/communication from the healthcare team, opportunities for ASHCN to practice skills, and recognition that not every 18-year-old is ready to assume self-management. A subset of ASHCN and Caregivers felt well prepared.</div></div><div><h3>Conclusions</h3><div>Many ASHCN and Caregivers are not adequately prepared for the legal changes in responsibility for healthcare decision-making and access to information that occur at age 18. Interventions to promote a clear understanding of these changes while providing opportunities for ASHCN to practice self-management skills before age 18 are needed.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100106"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144261821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mobile asthma apps for emerging adults transitioning to college: A scoping review","authors":"V. Ann Andreoni ,&nbsp;Margaret C. Delaney ,&nbsp;Susan McNamee ,&nbsp;Elizabeth Huggins ,&nbsp;Barbara Velsor-Friedrich","doi":"10.1016/j.hctj.2025.100112","DOIUrl":"10.1016/j.hctj.2025.100112","url":null,"abstract":"<div><h3>Background</h3><div>Limited data exists to direct evidence-based asthma self-care for emerging adults as they transition from pediatric to adult health care. This transition often occurs in the college setting, apart from usual parental and health care support systems. Given the chronic, episodic nature of asthma, it is imperative that emerging adults have essential tools to maintain disease control.</div></div><div><h3>Objective</h3><div>A scoping review was conducted to discover if mobile applications (apps) for asthma self-care and management exist for college students between 17 and 25 years of age.</div></div><div><h3>Results</h3><div>Research studies (n = 456) from peer-reviewed journals published between 2015 and 2023 were analyzed. As the search revealed no published articles that met the inclusion criteria for age and educational status, the criteria were revised to eliminate the requirement for college enrollment. Six published articles evaluating 3 separate asthma apps with similar age ranges were identified but without the same educational transition needs.</div></div><div><h3>Discussion</h3><div>The studies reviewed suggested that app use had a positive effect on participants, including ease of information access and improved disease knowledge, symptom control, and/or symptom self-management. Limitations included small sample sizes, participant age variability, and lack of studies on needs specific to emerging adults. Small sample sizes, potential bias due to self-report variability, and inherent bias in cell phone availability in disadvantaged populations limit generalizability.</div></div><div><h3>Conclusion</h3><div>Mobile asthma apps can facilitate transitional care in the emerging adult population. Although this scoping review suggests improved health outcomes with app use, there remains a need for future research on emerging adults with asthma transitioning to college.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100112"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144653844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quality of life in young adults with type 1 diabetes","authors":"Marissa N. Baudino PhD ,&nbsp;Samantha A. Carreon PhD ,&nbsp;Randi Streisand PhD ,&nbsp;Tricia Tang PhD ,&nbsp;Sarah Lyons MD ,&nbsp;Siripoom McKay MD ,&nbsp;Barbara J. Anderson PhD ,&nbsp;Charles G. Minard PhD ,&nbsp;Sridevi Devaraj PhD, DABCC ,&nbsp;Ashley M. Butler PhD ,&nbsp;Marisa E. Hilliard PhD","doi":"10.1016/j.hctj.2025.100101","DOIUrl":"10.1016/j.hctj.2025.100101","url":null,"abstract":"<div><h3>Introduction</h3><div>Challenges of young adulthood with type 1 diabetes (T1D) include transitioning to adult care, increased T1D self-management responsibilities, and normal developmental transitions. Recognizing patterns of health-related quality of life (HRQOL) across a demographically and clinically broad range of young adults with T1D may help identify who needs additional support as they transfer to adult healthcare. We hypothesized that young adults from specific demographic and clinical groups would report lower HRQOL.</div></div><div><h3>Methods</h3><div>At baseline of a behavioral RCT (≤2 months after last pediatric T1D clinic visit), 100 young adults (M_age=19.9 ± 1.3, M_A1c=8.8 ± 2.0 %) self-reported demographics and HRQOL; A1c was analyzed via point of care or dried blood spot. ANOVAs and t-tests were used to compare HRQOL by demographic (gender, race/ethnicity, insurance, school enrollment) and clinical variables (device use, A1c).</div></div><div><h3>Results</h3><div>Diabetes-specific HRQOL differed significantly by gender and school enrollment; females and young adults enrolled in school reported higher HRQOL. There were no significant differences in HRQOL across race/ethnicity, insurance type, and diabetes technology use.</div></div><div><h3>Conclusion</h3><div>Monitoring HRQOL may be helpful to identify diabetes-specific psychosocial needs during the transition from pediatric to adult healthcare. Patterns suggest males and those not in school may benefit from additional support.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100101"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143734914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transition experiences of young adults with perinatal HIV in the Netherlands","authors":"Annouschka Weijsenfeld RN, MSc ,&nbsp;Linda van der Knaap RN, MSc ,&nbsp;Jane Sattoe PhD ,&nbsp;AnneLoes van Staa MD PhD ,&nbsp;Clementien Vermont MD PhD ,&nbsp;Jeannine F.J.B. Nellen MD, PhD ,&nbsp;Dasja Pajkrt MD, PhD, MBA","doi":"10.1016/j.hctj.2025.100098","DOIUrl":"10.1016/j.hctj.2025.100098","url":null,"abstract":"<div><h3>Introduction</h3><div>The process of transition from paediatric to adult care is a crucial step towards self-management of healthcare for young adults with chronic health conditions. In the Netherlands, the On Your Own Feet program offers an extensive framework for supporting optimal transition. In this national study, we aimed to evaluate the transition experiences of young adults with perinatal HIV who transferred from a paediatric to an adult HIV treatment centre.</div></div><div><h3>Methods</h3><div>Participants who transferred to adult care less than six years ago received questionnaires on transition experiences, the validated On Your Own Feet – Transition Experiences Scale (OYOF-TES), and demographics. Demographic and healthcare-related variables were collected from patients’ medical files. We explored correlations between OYOF-TES scores and other variables.</div></div><div><h3>Results</h3><div>Of 44 participants, 29 responded (65.1 %). Their median age was 20 (IQR 19–23). Overall, high scores were found on the subscales ‘Reception in adult care’ (median 4.8, IQR 4.0–5.0), ‘Alliance paediatric and adult care’ (median 4.0, IQR 3.4–4.4), and ‘Transfer readiness’ (median 4.2, IQR 3.8–4.8). The lowest scores were found in the subscales ‘Preparation for transfer’ (median 3.3, IQR 2.7–4.0) and ‘Youth involvement’ (median 3.5, IQR 2.5–4.5). Higher scores on transition experiences were correlated with younger age and female sex, while lower scores were correlated with those of whom one or both biological parents died during childhood.</div></div><div><h3>Conclusion</h3><div>Transition experiences in our population were positive. Younger participants felt better prepared for the transfer, which indicates that transition is increasingly becoming a joint effort between young adults and healthcare professionals and that pathways accustomed to individual needs improve the transition experience for young adults with perinatal HIV.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100098"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143600566","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Associated factors that contribute to readiness for healthcare transition in a population of adolescents and young adults with special healthcare needs","authors":"Benedicta C. Anikputa ,&nbsp;Sharon D. Horner ,&nbsp;Cecily L. Betz ,&nbsp;Megan Thomas-Hebdon ,&nbsp;Cara Young","doi":"10.1016/j.hctj.2024.100081","DOIUrl":"10.1016/j.hctj.2024.100081","url":null,"abstract":"<div><h3>Background</h3><div>Children with special health care needs (SHCN) are a growing population in the United States, who because of advancements in medicine, are surviving into adulthood and are expected to transition from pediatric care to adult care. The purpose of this study was to identify and describe which ecological variables (internal locus of control, self-efficacy, self-advocacy, adolescent responsibility, parental responsibility, or perceived healthcare provider communication) are most influential in preparing adolescents and young adults (AYA) with SHCN to transition into the adult healthcare system.</div></div><div><h3>Methods</h3><div>A convenience sample of AYA with SHCN between the ages of 18–25, were recruited from specialty clinics, universities, local and national organizations. Flyers were placed at local establishments and businesses. The researcher also reached out to AYA with SHCN and those that worked with AYA with SHCN. Participants completed an online survey and multiple linear regression was used to answer the research question.</div></div><div><h3>Results</h3><div>Self-advocacy (p=.013), self-efficacy (p=.007), adolescent responsibility (p&lt;.001), and communication with healthcare provider (p=.014) significantly predicted transition readiness. The resultant model was significant (F (1, 78) =6.39, P=.014, Adj R 2 =.540 and R 2 =.573).</div></div><div><h3>Conclusion</h3><div>This study addresses the gap in literature by examining factors from multiple domains that are theoretically seen as potentially influencing transition readiness. By determining which transition variables are the most important and necessary for transition readiness, then programs can be created to bolster them.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100081"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143141983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}