美国脑瘫青壮年的就业状况

Eduardo del Rosario , Jennifer Emilie Mannino , Patricia A. Eckardt , Dawn DiStefano
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摘要

与一般年轻人相比,患有脑瘫(CP)的年轻人就业率较低,因为他们可能会面临身体、感官和认知方面的障碍,再加上随着年龄的增长,会遇到个人和社会方面的障碍。这些挑战是显而易见的,但解决方案却不那么明确。了解影响就业的因素至关重要。本研究旨在通过《国际功能、残疾和健康分类》(ICF)模型的视角,识别和研究与该人群就业相关的变量。研究使用了康复服务管理局(RSA-911)的联邦数据集,在个人和环境因素的背景下研究功能和残疾之间的关系,这些因素是预测青壮年 CP 患者就业的因素。通过对这一全国性数据集进行二次分析,采用描述性横截面设计,使用二项逻辑回归法预测就业结果。我们从 2019 年 RSA-911 数据集中提取了参与职业康复(VR)服务、退出时年龄在 18 岁至 30 岁之间的 CP 患者数据(n = 2465)。在2019年退出VR项目时,有不到三分之一(30.4%,n = 750)的人实现了就业,而69.6%(n = 1715)的人处于失业状态。参与职业和其他支持服务、具备基本技能和读写能力以及非西班牙裔/拉丁裔是就业的重要预测因素。这些研究结果与患有慢性阻塞性肺病的成年人就业率持续偏低的情况相吻合,并进一步说明了了解提高就业能力的因素的必要性。我们敦促医疗保健专业人员让所有处于过渡期的青少年参与自我管理活动,这不仅能改善他们的健康状况,还能促进他们未来的独立性,并提高他们对职业服务的认识。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The state of employment in the United States among young adults with cerebral palsy
Young adults with Cerebral Palsy (CP) have lower employment rates compared to young adults in general, as they may be confronted with physical, sensory, and cognitive impairments, coupled with personal and societal barriers as they mature. These challenges are clear, but the solutions are less so. Understanding the factors that impact employment is vital. This study aimed to identify and examine variables related to employment for this population through the lens of the International Classification of Functioning, Disability, and Health (ICF) model. The Rehabilitation Services Administration (RSA-911) federal dataset was used to examine the relationship between functioning and disability within the context of personal and environmental factors as predictors of employment among young adults with CP. Following a descriptive cross-sectional design using a secondary analysis of this national dataset, binomial logistic regression was used to predict employment outcomes. Data representing those with CP who participated in vocational rehabilitation (VR) services and were between 18 and 30 years of age at the time of exit were extracted from the 2019 RSA-911 dataset (n = 2465). Just under one-third (30.4 %, n = 750) emerged as employed, while 69.6 % (n = 1715) were unemployed at exit from their VR programs in 2019. Significant predictors for employment were participation in career and other support services, having basic skills and literacy, and being of non-Hispanic/Latino ethnicity. These findings concur with the persistent low employment rates for adults with CP and reinforce the need to understand the factors that increase employability. Healthcare professionals are urged to incorporate participation in self-management activities for all transition-aged youth that will not only improve health outcomes but promote future independence and increase awareness of vocational services for this population.
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