将职业支持纳入过渡诊所:试点计划

Elijah W. Hale , Aryn Taylor , Marlee Elton , Melanie Honsbruch , Cordelia Robinson Rosenberg , Jessica Solomon Sanders
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引用次数: 0

摘要

背景随着青少年步入成年,独立生活和有偿就业等里程碑变得至关重要。然而,对于智力和发育障碍(IDD)患者来说,这些里程碑可能与发育正常的同龄人有明显的差异。他们往往面临着与众不同的挑战,尤其是在从儿科医疗转向成人医疗以及从学校过渡到就业的过程中。尽管就业对生活质量有着积极的影响,但支离破碎的支持系统为实现这一目标制造了障碍。就业是整体健康和福祉的一个重要方面,需要进行更多的研究,以确定如何将就业支持与医疗保健相结合,从而改善某些健康结果。设计自我决定理论和社会生态理论强调,需要采取综合方法,既考虑智障人士的内部需求和动机,又考虑影响他们向成年过渡的外部因素。基于这些理论,我们的干预措施在一家大型学术医院的过渡服务框架内提供了创新的职业支持。我们的研究在三家医疗诊所中引入了为 IDD 青少年量身定制的职业支持。结果初步结果表明,将干预措施整合到现有医疗服务中在技术和时间安排上是可行的。该研究已招募了数名参与者,显示出在技术、时间安排、经济和运营领域的潜力。然而,要想对干预措施的影响有一个结论性的认识,还需要即将到来的长期数据和全面评估。结论该计划将职业支持融入到 IDD 患者从儿童到成人医疗保健服务的过渡中。这项干预措施有可能改善 IDD 患者的健康状况和生活质量,从而推动更广泛的跨学科干预。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Integrating vocational supports into a transition clinic: A pilot program

Objective

Pilot a clinical model and study to learn more about how employment impacts health in children and young adults with intellectual and developmental disabilities.

Background

As young individuals transition into adulthood, milestones such as independent living and gainful employment become paramount. However, for those with intellectual and developmental disabilities (IDD), these milestones can diverge notably from those of typically developing peers. They often confront distinct challenges, especially during shifts from pediatric to adult health care and transitioning from school to employment. Despite the positive influence of employment on quality of life, fragmented support systems create barriers to achieving this outcome. Employment is an important aspect of overall health and wellness, and more research is needed to determine how employment supports can be integrated with health care to improve certain health outcomes.

Design

Self-determination theory and social ecological theory highlight the need for a comprehensive approach that considers both the internal needs and motivations of the individual with IDD and the external factors that influence their transition to adulthood. Based in these theories, our intervention offers an innovative blend of vocational support within a transition services framework at a large academic hospital. Our study introduces vocational support tailored for IDD youths within three health clinics.

Results

Initial results demonstrate the technical and scheduling feasibility of integrating the intervention within existing healthcare services. The study has enrolled several participants, showing potential in technical, scheduling, economic, and operational domains. However, upcoming long-term data and comprehensive evaluation are required for a conclusive understanding of the intervention's impact.

Conclusions

The program integrates vocational support into transitioning individuals with IDD from childhood to adult health care services. This intervention has potential to improve the health outcomes and quality of life for individuals with IDD, which could drive broader interdisciplinary interventions.

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