AutismPub Date : 2024-10-12DOI: 10.1177/13623613241287300
Phoebe Jordan, Carla Wallace-Watkin, Jessica Tupou, Sarah Pillar, Hannah Waddington
{"title":"'I wouldn't want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children.","authors":"Phoebe Jordan, Carla Wallace-Watkin, Jessica Tupou, Sarah Pillar, Hannah Waddington","doi":"10.1177/13623613241287300","DOIUrl":"https://doi.org/10.1177/13623613241287300","url":null,"abstract":"<p><strong>Lay abstract: </strong>Professionals often support autistic children by working with them directly (direct support) or by coaching their parents. We know a lot about what parents think about parent coaching, but we do not know as much about what they think about direct support. We also do not know whether parents prefer parent coaching or direct support. The current study involved 22 parents who each received 2 h a week of direct support for their autistic child and up to 1 h a week of parent coaching for 6 months. At the end of 6 months, all these parents indicated in a survey whether they preferred parent coaching or direct support. Eleven of these participating parents also chose to take part in an interview to understand more about these preferences. Our findings suggest that parents generally liked both supports and believed they worked well together; however, they preferred direct support over parent coaching. While parents think that both approaches are beneficial, there are strengths and challenges of each. These findings emphasise the importance of parent choice in the delivery of support. It may also be possible to adapt both approaches to address some of the identified challenges and improve the whole family's experience.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142456960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-12DOI: 10.1177/13623613241287573
Dominique Solia, Loai Albarqouni, Paulina Stehlik, Antonia Conroy, Rae Thomas
{"title":"Parent concerns prior to an assessment of autism spectrum disorder: A systematic review.","authors":"Dominique Solia, Loai Albarqouni, Paulina Stehlik, Antonia Conroy, Rae Thomas","doi":"10.1177/13623613241287573","DOIUrl":"https://doi.org/10.1177/13623613241287573","url":null,"abstract":"<p><strong>Lay abstract: </strong>When a parent has concerns about their child's development, there is a lag between seeking and receiving health information. When waiting, parents may speculate about a possible diagnosis of autism spectrum disorder, but it is unclear what types of concerns might drive this speculation. To determine the types of concerns parents may have before their child is assessed, we conducted a systematic review that explored parent concerns before an autism spectrum disorder assessment. Our aim was to determine the types of concerns that might drive parents to seek medical help for their child's development. Four online databases were searched and 10 articles reporting on 9 studies matched our inclusion criteria. In these cohorts, parents reported autism spectrum disorder-specific concerns (i.e. communication, social or stereotyped behaviour concerns) or non-autism spectrum disorder-specific concerns (i.e. behaviour/temperament, developmental, medical, sensory or motor concerns). Some parents also reported on their positive and negative thoughts of a potential autism spectrum disorder diagnosis and what the diagnosis would mean to them. The most reported parental concerns before an assessment were speech and language, social and behavioural. To understand the types of concerns parents have once they seek medical help, further research into how families speculated a possible autism spectrum disorder is recommended.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142456962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-10DOI: 10.1177/13623613241277055
Elif Bastan, Sarah R Beck, Andrew Dr Surtees
{"title":"Autistic people differ from non-autistic people subjectively, but not objectively in their reasoning.","authors":"Elif Bastan, Sarah R Beck, Andrew Dr Surtees","doi":"10.1177/13623613241277055","DOIUrl":"10.1177/13623613241277055","url":null,"abstract":"<p><strong>Lay abstract: </strong>Autistic people often experience challenges in social contexts, and when decisions need to be made quickly. There is evidence showing that autistic people have a tendency for greater deliberation and lower intuition, compared to non-autistic people. This has led to the researchers' proposal that autism is associated with an enhanced level of rationality. However, these theories have been mostly explored through the lens of either only non-social domain or only social domain. To address this gap, we recruited autistic adults and carefully matched them with non-autistic adults for comparison. We used a task representing both social and non-social interactions in a comparison structure and asked participants' moral judgements on scenarios' main characters. This was complemented by subjective and objective measures of reasoning. Our findings did not reveal meaningful differences between groups in terms of deliberation. However, we did observe that autistic participants self-reported lower levels of intuition, compared to non-autistic participants. Autistic people consistently rate themselves as less intuitive than their counterparts. Nevertheless, objective evidence supporting this across tasks and studies is inconsistent.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142456956","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-09DOI: 10.1177/13623613241273081
Kathleen Simcoe, J Alacia Stainbrook, Kate T Chazin, Elaina Schnelle, Liliana Wagner, Madison Hooper, A Pablo Juárez, Zachary Warren
{"title":"Use of telemediated caregiver coaching to increase access to naturalistic developmental behavioral interventions within a statewide early intervention system.","authors":"Kathleen Simcoe, J Alacia Stainbrook, Kate T Chazin, Elaina Schnelle, Liliana Wagner, Madison Hooper, A Pablo Juárez, Zachary Warren","doi":"10.1177/13623613241273081","DOIUrl":"https://doi.org/10.1177/13623613241273081","url":null,"abstract":"<p><strong>Lay abstract: </strong>Many families seek access to evidence-based therapy to support their child's learning. Naturalistic developmental behavioral intervention is a set of practices that use a child's natural motivation and interest to teach skills in everyday routines. Many families find naturalistic developmental behavioral interventions appealing and they have been proven to be effective. However, families may not be able to enroll in naturalistic developmental behavioral intervention-based programs due to the limited availability of trained service providers. Telehealth is the use of technology to engage with care providers, including doctors and therapists. Telehealth is an effective tool for improving access to services, especially for people in rural and underserved communities. Telehealth offers a way for providers to connect with families but it does not address the low numbers of trained providers. In this article, we share a statewide model developed to increase access to naturalistic developmental behavioral interventions for families while increasing training opportunities for early intervention providers. Through this model, expert consultants worked with caregivers and providers via telehealth for a brief series of visits. During these visits, consultants taught caregivers and providers strategies based in naturalistic developmental behavioral interventions. Feedback from caregivers and providers, along with improvement in child skills, show that this model was effective and acceptable.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142387556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-08DOI: 10.1177/13623613241285676
Catherine Manning
{"title":"The introduction of Registered Reports in the <i>Autism</i> journal: The what, why and how.","authors":"Catherine Manning","doi":"10.1177/13623613241285676","DOIUrl":"https://doi.org/10.1177/13623613241285676","url":null,"abstract":"","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142387555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-08DOI: 10.1177/13623613241287973
Mikhail Kissine, Elise Clin
{"title":"Voice pitch and gender in autism.","authors":"Mikhail Kissine, Elise Clin","doi":"10.1177/13623613241287973","DOIUrl":"https://doi.org/10.1177/13623613241287973","url":null,"abstract":"<p><strong>Lay abstract: </strong>It is has often been observed that autistic individuals have higher-pitched voices than non-autistic ones, but no clear explanation for this difference has been put forth. However, autistic males are still dramatically over-represented in published research, including the acoustic studies that report higher pitch in autistic participants. In this study, we collected speech samples from a group of autistic and neurotypical adults that, unlike in most studies, was perfectly balanced between groups and genders. In this gender-balanced sample, pitch was significantly higher in autistic versus neurotypical men, but <i>lower</i> in autistic versus neurotypical women. Overall, women tend to have higher-pitched voices than men, but the magnitude of this difference is culture dependent and may be significantly influenced by the internalisation of normative expectations towards one's gender. We propose that higher pitch in autistic males and lower pitch in autistic females could be due, at least in part, to a lesser integration of sociolinguistic markers of gender. Our report shows that speech atypicality should not be operationalised in terms of systematic and unidirectional deviation from the neurotypical baseline.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142387557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-05DOI: 10.1177/13623613241286570
Sara Mazzini, Noor Seijdel, Linda Drijvers
{"title":"Autistic individuals benefit from gestures during degraded speech comprehension.","authors":"Sara Mazzini, Noor Seijdel, Linda Drijvers","doi":"10.1177/13623613241286570","DOIUrl":"https://doi.org/10.1177/13623613241286570","url":null,"abstract":"<p><strong>Lay abstract: </strong>Our study explored how meaningful hand gestures, alongside spoken words, can help autistic individuals to understand speech, especially when the speech quality is poor, such as when there is a lot of noise around. Previous research has suggested that meaningful hand gestures might be processed differently in autistic individuals, and we therefore expected that these hand gestures might aid them less in understanding speech in adverse listening conditions than for non-autistic people. To this end, we asked participants to watch and listen to videos of a woman uttering a Dutch action verb. In these videos, she either made a meaningful gesture while speaking, or not, and speech was clear, or noisy. The task for participants was to identify the verb in the videos. Contrary to what we expected, we found that both autistic and non-autistic individuals use meaningful information from hand gestures when understanding unclear speech. This means that gestural information can aid in communication, especially when communicative settings are suboptimal.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142375005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-05DOI: 10.1177/13623613241286683
Kaixin Liang, Kelly Ka Lai Lam, Liuyue Huang, Xiuyun Lin, Zhiyong Wang, Honghai Liu, Peilian Chi
{"title":"Self-compassion, mental health, and parenting: Comparing parents of autistic and non-autistic children.","authors":"Kaixin Liang, Kelly Ka Lai Lam, Liuyue Huang, Xiuyun Lin, Zhiyong Wang, Honghai Liu, Peilian Chi","doi":"10.1177/13623613241286683","DOIUrl":"10.1177/13623613241286683","url":null,"abstract":"<p><strong>Lay abstract: </strong>Parenting can be challenging for any parent, particularly for those parenting autistic children. Research has shown that being kind, accepting, and mindful toward oneself during suffering, a concept known as self-compassion, can help enhance mental health. However, it is not fully understood how self-compassion benefits parenting experiences for parents of autistic children. Therefore, we conducted a study involving 178 parents of autistic children and 178 of autistic children to explore the associations between self-compassion, mental health, and parenting experiences. We found that parents of autistic children reported less self-compassion compared to parents of non-autistic children. For both groups of parents, self-compassion was linked to lower levels of ill-being and parenting stress, as well as higher levels of well-being and parenting competence. In parents of non-autistic children, both ill-being and well-being played a mediating role in the relationship between self-compassion and parenting experiences. However, in parents of autistic children, only well-being was found to mediate this relationship. These findings emphasize the importance of self-compassion and well-being in improving parenting experiences for parents of autistic children.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142375006","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-01Epub Date: 2024-05-28DOI: 10.1177/13623613241235880
Eleonora Sadikova, Jim Soland, Michelle Menezes, Micah Mazurek
{"title":"Impact of adverse childhood experiences and family resilience on sleep duration in autistic children.","authors":"Eleonora Sadikova, Jim Soland, Michelle Menezes, Micah Mazurek","doi":"10.1177/13623613241235880","DOIUrl":"10.1177/13623613241235880","url":null,"abstract":"<p><strong>Lay abstract: </strong>Autistic children are more likely to have sleep difficulties and to experience adverse childhood experiences. Adverse childhood experiences can include parental divorce, bullying, or witnessing violence. We also know that children in families who are resilient (e.g. families who are connected, work together, and help each other) are less impacted by adverse childhood experiences. Our study examined whether there was a relationship between adverse childhood experiences and sleep duration in autistic children. We also wanted to find out whether family resilience protects from the negative impact of adverse childhood experiences on sleep duration. We used data from 3247 parent surveys about their children that we got from the National Survey of Children's Health. We found that children with adverse childhood experiences are more likely to get less sleep. We also found that children with resilient families were more likely to get more sleep. Our results show that family resilience helps weaken the relationship between adverse childhood experiences and sleep, so it is important to help families build resilience.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141161230","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2024-10-01Epub Date: 2024-03-11DOI: 10.1177/13623613241235053
Michael Terner, Sandra Israel-Yaacov, Ofer Golan
{"title":"Sex differences in autism screening: An examination of the Childhood Autism Spectrum Test-Hebrew version.","authors":"Michael Terner, Sandra Israel-Yaacov, Ofer Golan","doi":"10.1177/13623613241235053","DOIUrl":"10.1177/13623613241235053","url":null,"abstract":"<p><strong>Lay abstract: </strong>Autism is a neurodevelopmental condition, characterized by social communication alterations and restricted, repetitive behaviors. Typically diagnosed in early childhood, screening and diagnosis at a later age can be challenging, particularly in girls who exhibit a wider range of behaviors and characteristics. Our study set out to examine the effectiveness of the Hebrew translation of the Childhood Autism Spectrum Test, a parent report questionnaire, in identifying these diverse characteristics of autism within an Israeli sample of boys and girls. We examined parent reports on 403 (211 autistic, 192 non-autistic) children, aged 4-12 years. Results revealed the Childhood Autism Spectrum Test-Hebrew version was a valuable tool in differentiating between autistic and typically developing children, correctly identifying 93% of children with autism and 82% of typically developing children. In addition, specific items of the Childhood Autism Spectrum Test-Hebrew version were particularly useful in differentiating between autistic and non-autistic boys and autistic and non-autistic girls. Using these items, in addition to the overall score of the questionnaire, increased the correct identification of children as autistic or typically developing, especially in girls. The Childhood Autism Spectrum Test-Hebrew version test results corresponded well with the Autism Diagnostic Interview-Revised, which relies on parental input, but not with the clinician-administered Autism Diagnostic Observation Schedule-2. Our findings highlight the potential benefits of gender-specific tools to better support correct identification of autism in boys and in girls. More research is recommended to further explore these gender differences and to validate our findings with a larger, diverse group.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11459865/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140093310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}