Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions.

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2024-09-18 DOI:10.1177/13623613241273029
Patrick Dwyer, Ava N Gurba, Steven K Kapp, Elizabeth Kilgallon, Lynnette H Hersh, David S Chang, Susan M Rivera, Kristen Gillespie-Lynch
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Abstract

Lay abstract: What is already known about the topic? Some people support the neurodiversity movement and other people criticize it. They often disagree about what the neurodiversity movement means. Confusion about what the neurodiversity movement is makes it hard for people to agree about how best to support autistic or disabled people.What does this article add? We studied autistic and autism community members' views on the neurodiversity movement and autism interventions. Most participants supported the neurodiversity movement. Support for the neurodiversity movement was related to wanting to change society and make places more comfortable for autistic people. Neurodiversity supporters felt autistic children should choose their own intervention goals and that autistic adults should help children choose goals. Neurodiversity supporters did not think autistic people should be taught to act less autistic. Both those agreeing and disagreeing with the neurodiversity movement said that it is important to help autistic people be well. Many participants said that society causes all the difficulties disabled people experience. Yet they were somewhat open to helping people grow by teaching them useful skills and trying to cure depression and epilepsy.Implications for practice, research or policy. To better help autistic people, we should listen to participants in this study. They called for improving society, building more spaces where autistic people feel comfortable and helping autistic people lead change. They warned against teaching autistic people to hide their autism. Critics of the neurodiversity movement should read this article to better understand what neurodiversity movement supporters believe. By taking time to learn from one another, we can work together to better support autistic people.

社区对神经多样性、残疾模式和自闭症干预的看法:混合方法揭示了共同目标和主要矛盾。
内容提要:关于该主题的已知信息有哪些?一些人支持神经多样性运动,另一些人则批评它。他们往往对神经多样性运动的含义存在分歧。由于对神经多样性运动的含义认识不清,人们很难就如何为自闭症患者或残疾人提供最佳支持达成一致。我们研究了自闭症患者和自闭症社区成员对神经多样性运动和自闭症干预措施的看法。大多数参与者支持神经多样性运动。支持神经多样性运动与希望改变社会和为自闭症患者提供更舒适的环境有关。神经多样性支持者认为自闭症儿童应该自己选择干预目标,而自闭症成人应该帮助儿童选择目标。神经多样性支持者认为不应该教自闭症患者做出不那么自闭的行为。同意和不同意神经多样性运动的人都表示,帮助自闭症患者康复非常重要。许多参与者表示,社会造成了残疾人所经历的所有困难。然而,他们对通过教授残疾人有用的技能以及尝试治疗抑郁症和癫痫来帮助他们成长持开放态度。为了更好地帮助自闭症患者,我们应该倾听本研究参与者的心声。他们呼吁改善社会,建立更多让自闭症患者感到舒适的空间,并帮助自闭症患者引领变革。他们警告不要教导自闭症患者隐藏自己的自闭症。神经多样性运动的批评者应该阅读这篇文章,以便更好地理解神经多样性运动支持者的观点。通过花时间相互学习,我们可以共同努力,更好地支持自闭症患者。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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