Journal of health monitoring最新文献_第8页

Concept and methodology of the Health Behaviour in School-aged Children (HBSC) study - Insights into the current 2022 survey and trends in Germany. 学龄儿童健康行为（HBSC）研究的概念和方法--深入了解德国目前的 2022 年调查和趋势。

Journal of health monitoring Pub Date : 2024-03-04 eCollection Date: 2024-03-01 DOI: 10.25646/11878

Kristina Winter, Irene Moor, Jenny Markert, Ludwig Bilz, Jens Bucksch, Kevin Dadaczynski, Saskia M Fischer, Ronja M Helmchen, Anne Kaman, Juliane Möckel, Katharina Rathmann, Ulrike Ravens-Sieberer, Franziska Reiß, Theresa Schierl, Raphael Schütz, Saskia Sendatzki, Elisabeth Stürmer, Gorden Sudeck, Matthias Richter

{"title":"Concept and methodology of the Health Behaviour in School-aged Children (HBSC) study - Insights into the current 2022 survey and trends in Germany.","authors":"Kristina Winter, Irene Moor, Jenny Markert, Ludwig Bilz, Jens Bucksch, Kevin Dadaczynski, Saskia M Fischer, Ronja M Helmchen, Anne Kaman, Juliane Möckel, Katharina Rathmann, Ulrike Ravens-Sieberer, Franziska Reiß, Theresa Schierl, Raphael Schütz, Saskia Sendatzki, Elisabeth Stürmer, Gorden Sudeck, Matthias Richter","doi":"10.25646/11878","DOIUrl":"10.25646/11878","url":null,"abstract":"Background: Health Behaviour in School-aged Children (HBSC) is one of the largest international studies on child and adolescent health and cooperates with the World Health Organization (WHO). In Germany, adolescents aged 11, 13 and 15 are surveyed every four years about their health, health behaviour and social conditions. This article describes the HBSC study and in particular the methodology of the current 2022 survey and prior surveys conducted between 2009/10 and 2017/18.Method: 174 schools with a total of 6,475 students participated in the 2022 survey. The survey was conducted using questionnaires and covered a wide range of topics (including mental health, physical activity, bullying experiences, social determinants of health and experiences related to COVID-19). The 2022 survey was complemented by a school principal survey (N = 160). In addition to the current sample, the samples of the three previous surveys with representative data for Germany are presented: 2009/10 (N = 5,005), 2013/14 (N = 5,961) and 2017/18 (N = 4,347).Discussion: The health of children and adolescents is of great public health importance. The HBSC study makes a substantial contribution by providing internationally comparable results, analysing trends, and providing stakeholders with comprehensive and representative health monitoring data.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"9 1","pages":"99-117"},"PeriodicalIF":0.0,"publicationDate":"2024-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10977469/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140337915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Physical activity of older children and adolescents in Germany - Results of the HBSC study 2022 and trends since 2009/10. 德国老年儿童和青少年的体育活动--2022 年 HBSC 研究结果及 2009/10 年以来的趋势。

Journal of health monitoring Pub Date : 2024-03-04 eCollection Date: 2024-03-01 DOI: 10.25646/11874

Jens Bucksch, Juliane Möckel, Anne Kaman, Gorden Sudeck

{"title":"Physical activity of older children and adolescents in Germany - Results of the HBSC study 2022 and trends since 2009/10.","authors":"Jens Bucksch, Juliane Möckel, Anne Kaman, Gorden Sudeck","doi":"10.25646/11874","DOIUrl":"10.25646/11874","url":null,"abstract":"Background: Physical activity is central to health, beginning in childhood and adolescence, and regular monitoring provides important information for strategic decisions on promoting physical activity in Germany.Methods: The current survey cycle of the Health Behaviour in School-aged Children (HBSC) study gives an insight into the prevalence of the indicators daily recommended physical activity, high and low physical activity, and sporting activity among students aged between 11 and 15 for 2022. In addition, the data is compared to the survey cycles of the 2009/10, 2013/14, and 2017/18 school years and analysed over time.Results: The results of the current survey cycle show that 10.8 % of girls, 20.9 % of boys, and 12.4 % of gender diverse adolescents fulfil the daily physical activity recommendation. There are also major gender-specific differences for the other indicators. The group of gender diverse adolescents needs to be analysed further. The changes over time between 2009/10 and 2022 are relatively small. While girls' physical activity habits decreased slightly for the various indicators between 2009/10 and 2022, boys' prevalence remained relatively stable over the same period.Conclusions: Overall, in part due to the effects of the various COVID-19 lockdowns, the need for effective and population-based measures to promote physical activity in childhood and adolescence remains high.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"9 1","pages":"62-78"},"PeriodicalIF":0.0,"publicationDate":"2024-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10977466/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140337916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Utilisation of dental services by refugees in Germany: Results of the population-based RESPOND survey. 德国难民使用牙科服务的情况：基于人口的 RESPOND 调查结果。

Journal of health monitoring Pub Date : 2024-01-17 eCollection Date: 2024-01-01 DOI: 10.25646/11844

Kayvan Bozorgmehr, Maren Hintermeier, Louise Biddle, Claudia Hövener, Nora Gottlieb

{"title":"Utilisation of dental services by refugees in Germany: Results of the population-based RESPOND survey.","authors":"Kayvan Bozorgmehr, Maren Hintermeier, Louise Biddle, Claudia Hövener, Nora Gottlieb","doi":"10.25646/11844","DOIUrl":"10.25646/11844","url":null,"abstract":"Background: The utilisation of outpatient dental services is an important indicator for monitoring healthcare provision in Germany. In the general population, the 12-month prevalence of dental service utilization is 82.2 %. For refugees, this indicator has hardly been measured, although studies suggest an objectively high need for dental care.Methodology: As part of the population-based cross-sectional RESPOND study (2018), self-reported health and healthcare, including the use of dental services, was assessed in three representative, random samples of refugees residing in reception and shared accommodation centres in Baden-Württemberg and Berlin.Results: The indicator was available for 68.8 % (594) of the 863 surveyed refugees. Overall, 38.2 % of the respondents stated that they had utilised dental services in the previous 12 months, whereas 41.4 % had never used any dental care in Germany.Conclusions: The utilisation of dental services among refugees is very low compared to the level of utilisation in the general population. It reflects a discrepancy between access and needs.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"9 Suppl 1","pages":"2-10"},"PeriodicalIF":0.0,"publicationDate":"2024-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10812290/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139572234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Research on Rare Diseases in Germany - The cancer predisposition syndrome registry. 德国罕见疾病研究 - 癌症易感综合征登记处。

Journal of health monitoring Pub Date : 2023-12-13 eCollection Date: 2023-12-01 DOI: 10.25646/11828

Christina M Dutzmann, Nathalie E Palmaers, Lucas J Müntnich, Farina J Strüwe, Judith Penkert, Birte Sänger, Beatrice Hoffmann, Anja Karow, Christina Reimer, Tanja Gerasimov, Marena R Niewisch, Christian P Kratz

{"title":"Research on Rare Diseases in Germany - The cancer predisposition syndrome registry.","authors":"Christina M Dutzmann, Nathalie E Palmaers, Lucas J Müntnich, Farina J Strüwe, Judith Penkert, Birte Sänger, Beatrice Hoffmann, Anja Karow, Christina Reimer, Tanja Gerasimov, Marena R Niewisch, Christian P Kratz","doi":"10.25646/11828","DOIUrl":"10.25646/11828","url":null,"abstract":"Background: Cancer predisposition syndromes (CPS) are rare diseases that are associated with an increased risk of cancer due to genetic alterations. At least 8 % of all cases of childhood cancer are attributable to CPS [1, 2]. The CPS registry was launched in 2017 to learn more about CPS and to improve the care to those afflicted by these diseases.Methods: This is an internationally networked registry with associated accompanying studies that investigate cancer risks and spectra, the possibilities of cancer prevention, early detection and therapy.Results: For several of these syndromes, new insights into the cancer risks and cancer types as well as factors modifying cancer risk have been gained. In addition, experimental, psycho-oncological, preclinical and clinical studies were initiated.Conclusions: The CPS registry is an example of how progress can be made within a short period of time to the benefit of individuals with rare diseases through systematic data collection and research.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"8 4","pages":"17-23"},"PeriodicalIF":0.0,"publicationDate":"2023-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10880488/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139934483","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rare diseases: a challenge for medicine and public health. 罕见疾病：医学和公共卫生面临的挑战。

Journal of health monitoring Pub Date : 2023-12-13 eCollection Date: 2023-12-01 DOI: 10.25646/11826

Angela Fehr, Franziska Prütz

引用次数: 0

Research on Rare Diseases in Germany - The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases. 德国罕见疾病研究 - GAIN 登记处：先天性多器官自身免疫疾病患者登记处。

Journal of health monitoring Pub Date : 2023-12-13 eCollection Date: 2023-12-01 DOI: 10.25646/11732

Cynthia Stapornwongkul, Alexandra Nieters, Paulina Staus, Stephan Rusch, Anita Delor, Ulrich Baumann, Julius Wehrle, Melanie Boerries, Markus G Seidel, Bodo Grimbacher, Gerhard Kindle

{"title":"Research on Rare Diseases in Germany - The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases.","authors":"Cynthia Stapornwongkul, Alexandra Nieters, Paulina Staus, Stephan Rusch, Anita Delor, Ulrich Baumann, Julius Wehrle, Melanie Boerries, Markus G Seidel, Bodo Grimbacher, Gerhard Kindle","doi":"10.25646/11732","DOIUrl":"10.25646/11732","url":null,"abstract":"Background: Patient registries are an important tool for networking medical caregivers and research, especially in the field of rare diseases. Individuals afflicted by multi-organ autoimmune diseases typically suffer from inflammation of multiple organs.Project: GAIN (German genetic multi-organ Auto-Immunity Network) is the German network for research and therapy optimisation for individuals with congenital multi-organ autoimmune diseases. As a sub-project of the network, the registry systematically collects data from this patient group and makes it available for research purposes.Results: A data set was developed and made available for the GAIN Registry that can map the complex clinical status of persons with multi-organ autoimmune diseases. Data from 486 individuals have been documented to date.Conclusions: The GAIN register allows for a very comprehensive documentation that clearly goes beyond previous approaches, e.g. by linking it to biosamples collected in the consortium. The planned inclusion of patients in the documentation, e.g. of data on quality of life, opens up a new field.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"8 4","pages":"24-30"},"PeriodicalIF":0.0,"publicationDate":"2023-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10790410/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139486712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rare diseases in Germany - Developments in the status of medical care. 德国的罕见病--医疗状况的发展。

Journal of health monitoring Pub Date : 2023-12-13 eCollection Date: 2023-12-01 DOI: 10.25646/11746

Miriam Schlangen, Katharina Heuing

{"title":"Rare diseases in Germany - Developments in the status of medical care.","authors":"Miriam Schlangen, Katharina Heuing","doi":"10.25646/11746","DOIUrl":"10.25646/11746","url":null,"abstract":"Background: Rare diseases are a heterogeneous group of complex clinical patterns, which more often than not run a chronic course. The fact that they are rare complicates the provision of medical care for the specific diseases.Results: In the field of action titled 'Care, Centres, Networks' of its National Action Plan, the National Action League for People with Rare Diseases recommends the formation of a three-level, interconnected centre model. This form of care was investigated in two large research projects. It was shown that the time to diagnosis was markedly reduced. Commissioned by the Federal Ministry of Health, the expert report on the health status of people with rare diseases in Germany issued in 2023 concludes that the medical care provided to this group of people has improved markedly since the National Action Plan was introduced. The establishment of the Centres for Rare Diseases (ZSE, Zentren für Seltene Erkrankungen) is seen as the most important development. However, it is noted that there is still a lack of coordinated care provision pathways for referring patients to the appropriate facilities.Conclusion: The provision of care to people with rare diseases has improved upon the implementation of the measures from the National Action Plan. In a next step, care provision pathways must be established across sector boundaries. Challenges remain in the area of psychosocial care and the long-term securing of funding for these structures.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"8 4","pages":"7-16"},"PeriodicalIF":0.0,"publicationDate":"2023-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10792297/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139486704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Research on Rare Diseases in Germany - Using small fish and super-resolution microscopy to track down a rare disease. 德国罕见疾病研究 - 利用小鱼和超分辨率显微镜追踪罕见疾病。

Journal of health monitoring Pub Date : 2023-12-13 eCollection Date: 2023-12-01 DOI: 10.25646/11834

Nicole Endlich

{"title":"Research on Rare Diseases in Germany - Using small fish and super-resolution microscopy to track down a rare disease.","authors":"Nicole Endlich","doi":"10.25646/11834","DOIUrl":"10.25646/11834","url":null,"abstract":"Background: Focal segmental glomerulosclerosis (FSGS) is a rare disease, or damage to the filtering units of the kidney, the glomeruli, about of which there is only limited knowledge and few treatment options. The STOP-FSGS consortium has set itself the goal to expand our knowledge of this disease and develop new treatment options.Project: Through intensive research and the use of state-of-the-art techniques such as super-resolution microscopy, AI-based imaging and single-cell research, the consortium aims to gain a deeper understanding of the mechanisms of FSGS. This will allow the disease to be diagnosed more accurately and thus enable targeted and more effective treatment of patients. Another focus is on the search for drugs that slow down or even cure the disease.Results: By establishing a rapid animal model, i.e. zebrafish larva, potential substances/drugs were identified that can alleviate FSGS. Moreover, super-resolution microscopy was used to precisely quantify the structural changes in the kidney by determining the so-called 'filtration slit density' (FSD) and to identify a marker allowing a personalised prognosis and assessment of the course of the disease.Conclusions: The results obtained help to better recognise the progression of FSGS and to optimally adapt treatment in order to improve the quality of life of the afflicted individuals and avoid renal replacement therapies.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"8 4","pages":"31-36"},"PeriodicalIF":0.0,"publicationDate":"2023-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10790414/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139486717","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Climate change and health equity: A public health perspective on climate justice. 气候变化与健康公平：从公共卫生角度看气候正义。

Journal of health monitoring Pub Date : 2023-11-29 eCollection Date: 2023-11-01 DOI: 10.25646/11772

Gabriele Bolte, Lisa Dandolo, Sophie Gepp, Claudia Hornberg, Susanne Lopez Lumbi

{"title":"Climate change and health equity: A public health perspective on climate justice.","authors":"Gabriele Bolte, Lisa Dandolo, Sophie Gepp, Claudia Hornberg, Susanne Lopez Lumbi","doi":"10.25646/11772","DOIUrl":"https://doi.org/10.25646/11772","url":null,"abstract":"Background: The discourse on climate justice has developed from the theoretical approaches and discussions on environmental justice. A central tenet of the concept of environmental and climate justice is that environmental and climate issues cannot be seen in isolation from issues of social justice.Methods: A conceptual model was developed on the relationship between climate change impacts, social dimensions, adaptive capacities, biological sensitivity, and health equity in order to systematically analyse climate justice. Based on an exploratory literature review and the evaluation of the individual contributions of the status report on climate change and health, the evidence in Germany on social inequalities in exposure to climate change impacts and vulnerability to their direct and indirect health effects was summarised.Results: This paper provides an overview of the international debate and examples of evidence on climate justice in Germany. Climate justice in the sense of avoidable, unjust social inequalities in exposure, vulnerability, and the effects of climate mitigation and adaptation measures on health inequalities is still insufficiently addressed in Germany.Conclusions: A consistent integration of equity issues into climate policy is necessary. With reference to the international literature, options for action and research needs are identified.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"8 Suppl 6","pages":"3-35"},"PeriodicalIF":0.0,"publicationDate":"2023-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10722520/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138805879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Communicating climate change and health to specific target groups. 向特定目标群体宣传气候变化与健康。

Journal of health monitoring Pub Date : 2023-11-29 eCollection Date: 2023-11-01 DOI: 10.25646/11773

Lena Lehrer, Lennart Hellmann, Hellen Temme, Leonie Otten, Johanna Hübenthal, Mattis Geiger, Mirjam A Jenny, Cornelia Betsch

{"title":"Communicating climate change and health to specific target groups.","authors":"Lena Lehrer, Lennart Hellmann, Hellen Temme, Leonie Otten, Johanna Hübenthal, Mattis Geiger, Mirjam A Jenny, Cornelia Betsch","doi":"10.25646/11773","DOIUrl":"10.25646/11773","url":null,"abstract":"Background: The German status report on climate change and health 2023 identifies numerous health risks that are caused or exacerbated by climate change. One recommendation arising from the report is to strengthen education, information, and communication in the field. This article aims to serve as a basis for this.Methods: Based on four survey waves (2022/2023) of the PACE study (Planetary Health Action Survey, n=3,845, online), the status of risk perception as well as the Readiness to Act against climate change in the adult population in Germany is examined and a target group analysis is carried out.Results: Some health risks due to the climate crisis are perceived as comparatively low (e.g. mental health problems). People with higher risk perception show a higher Readiness to Act. Younger people, men, people with low education, and those living in smaller communities are identified as relevant target groups as they have a lower Readiness to Act. One third state that they never or hardly ever seek out specific information on climate change. Media use differs depending on target group.Conclusions: Target group-specific communication can help to educate people about the health impacts of the climate crisis. In the discussion of this article, implications from existing literature are discussed in detail, which offer practical guidance for effective climate change communication.","PeriodicalId":73767,"journal":{"name":"Journal of health monitoring","volume":"8 Suppl 6","pages":"36-56"},"PeriodicalIF":0.0,"publicationDate":"2023-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10722519/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138806065","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0