Journal international de bioethique et d'ethique des sciences最新文献_第8页

Chapitre 1. La télémédecine et ses implications sur la relation médecin/patient. 第一章的标题。远程医疗及其对医患关系的影响。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01 DOI: 10.3917/jibes.332.0015

Karim Zaouaq

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Homenaje. Homenaje a Christian de Paul de Barchifontaine y Daniel Piedra Herrera. 致敬。向Christian de Paul de Barchifontaine和Daniel Piedra Herrera致敬。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01 DOI: 10.54695/jibes.333.0015

Christian Byk

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Revue de livres. 书评。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01

Christian Byk

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Revue de livres. 书评。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01

Christian Byk

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Chapitre 3. On some issues of ensuring the rights of minor patients in Russian medical law: ethical and legal aspects of autonomy. Chapitre 3。论俄罗斯医疗法律中保障未成年病人权利的若干问题:自主权的伦理和法律方面。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01 DOI: 10.3917/jibes.341.0045

I Predeina, O Bobrovskaya, E Kaletskiy, Y Sergeyev

{"title":"Chapitre 3. On some issues of ensuring the rights of minor patients in Russian medical law: ethical and legal aspects of autonomy.","authors":"I Predeina, O Bobrovskaya, E Kaletskiy, Y Sergeyev","doi":"10.3917/jibes.341.0045","DOIUrl":"https://doi.org/10.3917/jibes.341.0045","url":null,"abstract":"Patient autonomy as a fundamental principle of modern bioethics is considered in the context of the legal status of a minor in medical law. The authors discuss the specifics of the autonomy of a minor patient, which is determined by the age factor. The following international legal standards defining the bioethical foundations of the legal status of a minor in the medical field are considered: the right to informed voluntary consent, the right to information and confidentiality. The content of the legal concept of “autonomy of a minor patient” is revealed. The autonomy of a minor patient is considered by the authors as the ability to act and make health-related decision independently, and is presented in several aspects: first, the ability to seek medical help; second, the right to provide information in an accessible form; third, the right to decide on consent or refusal of medical intervention; fourth, the right to confidentiality. Foreign experience is provided and features of fixing the principle of autonomy of a minor in Russian legislation in the field of health care are analyzed. Main problems of implementing of the principle of patient autonomy and directions for further research in this area are outlined.","PeriodicalId":73577,"journal":{"name":"Journal international de bioethique et d'ethique des sciences","volume":"34 1","pages":"45-56"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9417689","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Chapitre 2. Health in Russia, a basic topic: Risk strategies and socio-psychological aspects. Chapitre 2。俄罗斯的健康，一个基本主题:风险战略和社会心理方面。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01 DOI: 10.3917/jibes.341.0031

O N Bobrovskaya, E G Kaletskiy

{"title":"Chapitre 2. Health in Russia, a basic topic: Risk strategies and socio-psychological aspects.","authors":"O N Bobrovskaya, E G Kaletskiy","doi":"10.3917/jibes.341.0031","DOIUrl":"https://doi.org/10.3917/jibes.341.0031","url":null,"abstract":"High mortality rates in the Russian Federation in all age cohorts, which are exacerbated nowadays due to the risk of contracting a new coronavirus infection, indicate the lack of programs to promote a healthy lifestyle in society, as well as the preservation of negative attitudes of society associated with any aspects of taking care of one’s health.Switching the public’s attention to self-preservation practices is not viable without considering the socio-economic and psychological conjuncture. Maintaining health requires both time and money, so for many people it remains a secondary task for many years, if the disease does not make itself felt.By appealing to the individual’s choice of a voluntary strategy of the preservation of their health, the state should make sure that they are ready to show a high level of self-awareness and culture. However, there is a stable tradition of risky behaviors in Russian society, in which ignoring the first signs of the disease, the transition of the disease to severe forms, and indifferenceе to the outcome of treatment became a social norm. In this vein, individuals show a disregard for new approaches and often aggravate their problem by resorting to alcohol and drugs, which leads to serious health related consequences.The study of aspects of an individual’s choice of risky life strategies showed the interdependence of the level of health preservation on the material and psychological well-being of a social group (i.e., family). The lower the satisfaction of an individual’s needs in society, the higher the apathy and tendency to addiction, which is often followed by crimes against the life and health of others or a tendency to suicide.","PeriodicalId":73577,"journal":{"name":"Journal international de bioethique et d'ethique des sciences","volume":"34 1","pages":"31-42"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9797986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Chapitre 6. Le déploiement de la médecine génomique : la place de l’autonomie du patient dans la réutilisation des données génétiques au profit de la recherche. 第6章)。基因组医学的部署:患者自主在遗传数据再利用中的地位，以促进研究。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01 DOI: 10.3917/jibes.342.0089

Lisa Feriol, Emmanuelle Rial-Sebbag

{"title":"Chapitre 6. Le déploiement de la médecine génomique : la place de l’autonomie du patient dans la réutilisation des données génétiques au profit de la recherche.","authors":"Lisa Feriol, Emmanuelle Rial-Sebbag","doi":"10.3917/jibes.342.0089","DOIUrl":"https://doi.org/10.3917/jibes.342.0089","url":null,"abstract":"Genetic research today is largely based on the reuse of data from care for the benefit of research. This evolution of practices, which involves an increasingly marked communication between care and research, questions the place given to the patient seen as a potential participant in research. In order to promote the circulation of genetic data generated and to allow their reuse for the benefit of different research, the French legislator reaffirmed the use of the opt-out mechanism (“non-opposition”) in the last bioethics law of the 2 August 2021. If the reasons that led the legislator to make this shift from the concept of consent to the opt-out mechanism are legitimate, the conditions of implementation of this mechanism seem to need to be questioned in order to ensure the effectivity of the balance sought by the legislator between preserving the autonomy of the individual with regard to the sharing of his/her genetic data and encouraging the development of medical knowledge; one should not be to the detriment of the other.","PeriodicalId":73577,"journal":{"name":"Journal international de bioethique et d'ethique des sciences","volume":"34 2","pages":"89-110"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10549508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Chapitre 15. L’accès aux origines personnelles. 第15章。获取个人来源。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01 DOI: 10.3917/jibes.342.0201

Emmanuel Terrier

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Chapitre 5. Réalité et ambitions de la démocratisation des lois bioéthiques. 第五章。生物伦理法民主化的现实和雄心。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01 DOI: 10.3917/jibes.342.0071

Valentine Vigné

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Chapitre 2. Le droit des risques psychosociaux et la distanciation physique au travail. 第二章。工作中心理社会风险和身体距离的权利。

Journal international de bioethique et d'ethique des sciences Pub Date : 2023-01-01 DOI: 10.3917/jibes.332.0027

Sandra Russo

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