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Overview of Molecular Diagnostics in Irish Clinical Oncology 爱尔兰临床肿瘤学分子诊断概述
HRB open research Pub Date : 2024-03-26 DOI: 10.12688/hrbopenres.13822.1
Tyler Medina, Seán O. Hynes, Maeve Lowery, Paddy Gillespie, Walter Kolch, Cathal Seoighe
{"title":"Overview of Molecular Diagnostics in Irish Clinical Oncology","authors":"Tyler Medina, Seán O. Hynes, Maeve Lowery, Paddy Gillespie, Walter Kolch, Cathal Seoighe","doi":"10.12688/hrbopenres.13822.1","DOIUrl":"https://doi.org/10.12688/hrbopenres.13822.1","url":null,"abstract":"Background Molecular diagnostics are critical for informing cancer patient care. In Ireland, the National Cancer Control Programme (NCCP) develops cancer therapy regimens, which include relevant information on molecular indications. Here, we present a collated overview of the current molecular indications of all NCCP systemic anti-cancer therapy regimens and the funding statuses of their associated drugs. Furthermore, we also provide estimates for the scale of required molecular testing in cancer therapy and for the clinical genetic sequencing capacity of Ireland, and provide a summary of current cancer clinical trials in Ireland which have molecular components. Methods Through a combination of web scraping, keyword search, and manual review, we performed a full review of all 757 indications included in the 476 therapy regimens published to date by the NCCP to identify therapy indications with explicit molecular criteria. For all cancer types identified in these indications, we obtained incidence rates in Ireland from National Cancer Registry Ireland to predict the number of patients yearly who stand to benefit from a molecular test. We then applied molecular subtype rates from published literature to estimate the number of patients who would then qualify for a relevant molecularly guided therapy. Results We identified 210 indications for 148 NCCP therapy regimens that include molecular criteria. These 210 molecular indications encompassed 85 genetic criteria, 137 cellular biomarker criteria, 57 molecularly informed drugs, and over 20 cancer types. We estimated that up to approximately 50% of cancer patients in Ireland could qualify for a molecular test and that the majority of tested patients would qualify for a treatment informed by a molecular test. Conclusions As personalised cancer medicine continues to develop in Ireland, this study will provide a baseline understanding of current practices. We anticipate that work such as this will help to inform planning in the healthcare system.","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"122 5","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140380882","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hearing and vision support in people with dementia living at home: Outcomes  from the intervention development programme for the European SENSE-Cog Trial 为居家老年痴呆症患者提供听力和视力支持:欧洲 SENSE-Cog 试验干预发展计划的成果
HRB open research Pub Date : 2024-03-26 DOI: 10.12688/hrbopenres.13869.1
Iracema Leroi, JP Connelly, W. Yeung, Catherine Molony
{"title":"Hearing and vision support in people with dementia living at home: Outcomes  from the intervention development programme for the European SENSE-Cog Trial","authors":"Iracema Leroi, JP Connelly, W. Yeung, Catherine Molony","doi":"10.12688/hrbopenres.13869.1","DOIUrl":"https://doi.org/10.12688/hrbopenres.13869.1","url":null,"abstract":"Background Hearing and vision loss are among the most common and disabling comorbidities in dementia and may worsen the trajectory of decline. Improving sensory function may be an accessible and cost-effective means of improving quality of life (QoL) and other outcomes for people with dementia (PwD). Here we describe the outcome of a multi-step intervention development programme for the components and implementation of a cross-national intervention to support hearing and vision in PwD in community settings. Methods We used the process of ‘intervention mapping’ and a set of mixed method sub-studies to develop the intervention for PwD with hearing and/or vision loss. This involved scoping the gaps in understanding, awareness, and service provision, modelling a prototype intervention, refining the prototype into a draft intervention, and finally field trialling the draft intervention for feasibility, acceptability, and tolerability. Input from the ‘patient and public voice’ (PPV) was interlinked with each step of the development programme (Miah et al., 2017). This paper synthesises the results of sub-studies leading to a description and logic model of the intervention which was then evaluated in a fully powered definitive trial. The sub-studies of the programme took place in participants’ own homes and in university or clinic settings in four EU countries: Cyprus, France, Greece, and the UK. The Expert Reference Group took place in Athens, Greece. We used quantitative and qualitative approaches to analyse the data from the different sub-studies. Results A multi-component psychosocial home-based ‘sensory intervention’ designed to optimise hearing and vision in PwD to improve QoL and other dementia-related and care partner-related outcomes. Conclusion This intervention represents the output of the iterative development of a complex intervention to fulfil an unmet need for PwD and sensory loss.","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"120 9","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140378897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development of a Health Impact Assessment Implementation Model: Enhancing Intersectoral Approaches in Tackling Health Inequalities- A Mixed Methods Study Protocol 开发健康影响评估实施模型:在解决健康不平等问题中加强跨部门方法--混合方法研究规程
HRB open research Pub Date : 2024-03-20 DOI: 10.12688/hrbopenres.13873.1
M. O'Mullane, Tara Kenny, Kirsty Nash, Sheena McHugh, Paul Kavanagh, Katherine Smith
{"title":"Development of a Health Impact Assessment Implementation Model: Enhancing Intersectoral Approaches in Tackling Health Inequalities- A Mixed Methods Study Protocol","authors":"M. O'Mullane, Tara Kenny, Kirsty Nash, Sheena McHugh, Paul Kavanagh, Katherine Smith","doi":"10.12688/hrbopenres.13873.1","DOIUrl":"https://doi.org/10.12688/hrbopenres.13873.1","url":null,"abstract":"Public health research presents compelling evidence that health is socially determined. To address structural inequalities and inequities in health, public policies require intersectoral development and implementation. Health Impact Assessment (HIA) is an established approach for analysing potentially detrimental health impacts of policies, programmes, and projects, as well as potentially positive impacts and opportunities. National public health policy, Healthy Ireland (2013–2025), endorses an intersectoral whole-of-system approach to ensure that health is a central part of all relevant policy areas. HIA is endorsed in this policy as one way to drive this agenda. Synergising with this policy commitment for HIA, the all-island Institute of Public Health Ireland produced revised HIA guidance in 2021. Two HIAs will be carried out as part of this project, including one at a local policy level, addressing the Cork City Development Plan (2022–2028), and the second HIA at a national policy level, addressing the Irish Government’s Climate Action Plan (2024). The updated HIA guidance will be used in the conduct of these HIAs. This research project involves a co-creation of a Health Impact Assessment Implementation Model by employing an action research approach with implementation science frameworks to the conduct of the two HIAs. Therefore, the process of doing the HIAs will form the basis for the research study. In order to enhance meaningful community involvement in HIA in Ireland, the project will co-create a Community Engagement Toolkit for HIA. This Model will strengthen researcher, policy actor, practitioner, community, and voluntary sector capacity to collaboratively develop and implement intersectoral and equitable policy responses to major population health issues.","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"12 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140224669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the determinants of the gender gap in physical activity and sports participation among young adults: a mixed-methods study 了解青壮年体育活动和运动参与方面性别差距的决定因素:一项混合方法研究
HRB open research Pub Date : 2024-03-07 DOI: 10.12688/hrbopenres.13827.1
Hannah Cummins, Molly Byrne
{"title":"Understanding the determinants of the gender gap in physical activity and sports participation among young adults: a mixed-methods study","authors":"Hannah Cummins, Molly Byrne","doi":"10.12688/hrbopenres.13827.1","DOIUrl":"https://doi.org/10.12688/hrbopenres.13827.1","url":null,"abstract":"Background An underexplored gender gap in physical activity (PA) and sport participation (SP) exists in those aged 18–24 in Ireland, with females less active than males. This research explored the determinants of PA and SP in both males and females through the lens of the Capability-Opportunity-Motivation-Behaviour (COM-B) model and the Theoretical Domains Framework (TDF), to enhance our understanding of the gender gap. A mixed methods design was employed involving (1) a quantitative secondary analysis of existing data from the Irish Sports Monitor (ISM) 2019, an evaluation of Irish SP and PA conducted biennially by Sport Ireland, the governing body for sport development in the country, and (2) qualitative semi-structured interviews to explore determinants of PA and SP, using a framework analysis approach. Methods A secondary analysis of existing ISM 2019 data from 158 individuals was conducted to explore gender differences in PA and SP behaviours in relation to capability, opportunity, and motivation. To further explore these differences, individuals (n = 16, 75% female) aged 18–24 were then invited to take part in semi-structured interviews to better understand determinants of their PA and SP behaviours and explore their experiences of the gender gap. Results Despite the gender gap identified through the ISM 2019, a secondary analysis found no significant difference between genders on predictors of PA and SP based on overall COM-B scores. However, semi-structured interviews suggested gender differences regarding self-reported determinants of PA and SP, particularly within the domain of social influence. Conclusions Social influence may be an important factor to target, particularly in relation to perceived support and encouragement, to increase female engagement in PA and SP. More research is required to explore this potentiality.","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"50 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140258718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Protocol for a systematic review and critical discourse analysis of research on HIV pre-exposure prophylaxis programme use among gay, bisexual, and other men who have sex with men 对男同性恋、双性恋和其他男男性行为者中艾滋病毒暴露前预防方案使用情况的研究进行系统性审查和批判性论述分析的规程
HRB open research Pub Date : 2024-02-29 DOI: 10.12688/hrbopenres.13841.1
David Comer, C. Noone
{"title":"Protocol for a systematic review and critical discourse analysis of research on HIV pre-exposure prophylaxis programme use among gay, bisexual, and other men who have sex with men","authors":"David Comer, C. Noone","doi":"10.12688/hrbopenres.13841.1","DOIUrl":"https://doi.org/10.12688/hrbopenres.13841.1","url":null,"abstract":"Background HIV pre-exposure prophylaxis (PrEP) is a pill that prevents the transmission of HIV from sexual partners living with HIV; it is frequently taken by gay, bisexual, and other men who have sex with men (gbMSM). PrEP is often provided through formal PrEP programmes. Research on these programmes may employ discourses shaped by heteronormativity and homophobia. Given that expert language influences how HIV prevention is understood and delivered, problematic discourses in research likely extends into PrEP programme implementation. This review will use critical discourse analysis (CDA) to explore research on PrEP programme implementation for gbMSM. Within this literature, we will identify interpretive repertoires used to discuss gbMSM; the subject positions afforded to gbMSM; and the implications of these interpretive repertoires and subject positions for gbMSM engaging with HIV PrEP programmes. Methods Relevant articles will be identified through timebound searching (2012-present) in ProQuest ASSIA, EBSCOhost PsycInfo, OVID Medline, OVID Embase, and EBSCOhost CINAHL, with forward and backward citation searching of included studies. Grey literature will be identified through ProQuest and Google Scholar. Screening will be conducted by two independent reviewers, who will conduct double screening for titles, abstracts, and full texts. Data will be analysed and synthesised using CDA informed by critical realism (CR). CDA focuses on relationships between language and power, including how language enables inequality. The analytic process will explore the background of included studies, identify overarching themes, analyse external and internal relations in included studies, and interpret the meaning of identified themes and relations. Conclusions Highlighting issues with discourses in PrEP implementation may enhance reflective engagement with assumptions underlying this research, preventing further stigmatisation of gbMSM’s sexual and protective practices. As PrEP programmes become more common globally, more diverse and inclusive perspectives in PrEP programme research may inform interventions that enhance their acceptability and ultimately their implementation.","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"12 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140415149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors influencing the likelihood of accessing healthcare during the COVID-19 pandemic in Ireland: lessons for the future 影响爱尔兰 COVID-19 大流行期间就医可能性的因素:对未来的启示
HRB open research Pub Date : 2024-02-26 DOI: 10.12688/hrbopenres.13829.1
Padraig Buggy, Mary Joyce, Ivan J. Perry, Mary R. Cahill
{"title":"Factors influencing the likelihood of accessing healthcare during the COVID-19 pandemic in Ireland: lessons for the future","authors":"Padraig Buggy, Mary Joyce, Ivan J. Perry, Mary R. Cahill","doi":"10.12688/hrbopenres.13829.1","DOIUrl":"https://doi.org/10.12688/hrbopenres.13829.1","url":null,"abstract":"Background Implementation of public health measures during the first wave of the coronavirus disease (COVID-19) pandemic, including travel restrictions and physical distancing, may have impacted population behaviour in seeking medical care. Identifying barriers to accessing healthcare is important, especially for vulnerable groups. Methods Data were collected through a nationally representative cross-sectional telephone survey during the first period of easing of COVID-19 restrictions in May and June 2020. Secondary data analysis of the dataset was carried out to examine the factors influencing the likelihood of individuals avoiding General Practitioner (G.P.) and hospital-based care. Poisson regression analyses were conducted to estimate risk ratios with robust variance estimation of the association between selected demographic and self-reported health factors and the risk of avoiding G.P. and hospital-based healthcare. Results Of the 969 participants, 152 (15.7%) deliberately avoided contacting their G.P. about non COVID-19 related concerns while 81 (8.4%) reported avoiding hospitals. Three groups, women (Rate Ratio (RR): 1.75, 95% Confidence Interval (CI): 1.28 – 2.40), individuals who reported experiencing an adverse life event within the last 3 months (RR: 1.79, 95% CI: 1.33 – 2.40), and those at an increased risk of infection (RR: 1.65, 95% CI: 1.06 – 2.58) were more likely to avoid contact with their G.P. Individuals at a higher risk of avoiding hospital-based care were those aged 50 – 59 years (RR: 2.27, 95% CI: 1.03 – 4.98) and 70 years+ (RR: 2.73, 95% CI: 1.24 – 6.01), individuals at an increased risk of infection (RR: 2.07, 95% CI: 1.20 – 3.56), smokers (RR: 1.68, 95% CI: 1.02 – 2.77) and those who agreed they were “likely to catch COVID-19” (RR: 2.80, 95% CI: 1.25 – 6.25). Conclusion These findings highlight the importance of public health awareness and education regarding accessing healthcare during a pandemic and should be considered in future pandemic preparedness.","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"21 5","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140430041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact of dietary fiber on gut microbiota composition, function and gut-brain-modules in healthy adults - a systematic review protocol. 膳食纤维对健康成年人肠道微生物群组成、功能和肠道-大脑模块的影响--系统综述方案。
HRB open research Pub Date : 2024-02-26 eCollection Date: 2023-01-01 DOI: 10.12688/hrbopenres.13794.2
David Antoine Lachmansingh, Benjamin Valderrama, Thomaz Bastiaanssen, John Cryan, Gerard Clarke, Aonghus Lavelle
{"title":"Impact of dietary fiber on gut microbiota composition, function and gut-brain-modules in healthy adults - a systematic review protocol.","authors":"David Antoine Lachmansingh, Benjamin Valderrama, Thomaz Bastiaanssen, John Cryan, Gerard Clarke, Aonghus Lavelle","doi":"10.12688/hrbopenres.13794.2","DOIUrl":"10.12688/hrbopenres.13794.2","url":null,"abstract":"<p><strong>Background: </strong>The gut microbiota has been extensively implicated in health and disease. The functional outputs of the gut microbiota, such as microbial metabolites, are considered particularly important in this regard. Significant associations exist between alterations in the relative abundance of specific microbial taxa and mental health disorders. Dietary fiber has the potential to alter gut microbiota composition and function, modifying bacterial enzymatic function and the production of metabolites. As many taxa of microorganisms have enzymes capable of producing or degrading neurochemicals i.e. neuroactive gut brain modules, new predictive tools can be applied to existing datasets such as those harvested from dietary fiber interventions. We endeavor to perform a systematic review in order to identify studies reporting compositional gut microbiota alterations after interventions with dietary fiber in healthy individuals. We aim to also extract from the selected studies publicly available microbial genomic sequence datasets for reanalysis with a consistent bioinformatics pipeline, with the ultimate intention of identifying altered gut brain modules following dietary fiber interventions.</p><p><strong>Methods: </strong>Interventional trials and randomized controlled studies that are originally published, including cross-over and non-crossover design and involving healthy adult humans will be included. A systematic search of PubMed/MEDLINE and EMBASE, two electronic databases, will be completed.</p><p><strong>Discussion: </strong>Various types of dietary fiber have an impact on the gut microbiota composition, with some promoting the growth of particular taxa while others are reduced in relative abundance. Our search focuses on the impact of this food component on the microbiota of healthy individuals. Compositional gut microbial changes have been reported and our review will compile and update these observations after reanalysis of their datasets with a consistent bioinformatic pipeline. From this it may be possible to predict more detailed functional consequences in terms of neuroactive gut brain modules, of the compositional alterations in gut microbial taxa.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"6 ","pages":"62"},"PeriodicalIF":0.0,"publicationDate":"2024-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10958149/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140208385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A protocol for a scoping review of methodologies used to explore patient experience in post-acute rehabilitation settings. 对用于探索急性期后康复环境中患者体验的方法进行范围审查的协议。
HRB open research Pub Date : 2024-02-26 eCollection Date: 2023-01-01 DOI: 10.12688/hrbopenres.13672.2
Zsofia Torok, Aisling O'Keeffe, Andrew Darley, Áine Carroll
{"title":"A protocol for a scoping review of methodologies used to explore patient experience in post-acute rehabilitation settings.","authors":"Zsofia Torok, Aisling O'Keeffe, Andrew Darley, Áine Carroll","doi":"10.12688/hrbopenres.13672.2","DOIUrl":"10.12688/hrbopenres.13672.2","url":null,"abstract":"<p><strong>Background: </strong>Patient experience is routinely collected in the clinical environment in many different ways throughout various person-provider encounters, but so far limited research focused on understanding the methods of using it to improve the quality of healthcare. This paper presents a protocol for a methodological scoping review examining the methods of obtaining, analysing, reporting, and using patient experience data for quality improvement in rehabilitation settings.</p><p><strong>Methods: </strong>The scoping review will be conducted according to the guidelines from the Joanna Briggs Institute (JBI) Manual for Evidence Synthesis and the methodological framework by Arksey & O'Malley. A comprehensive search of the literature will be performed using a three-step search strategy: an initial limited search of two databases was already performed and helped to identified relevant key words and index terms. The developed search string will be adapted and applied across four databases. This will be followed by search of the reference lists of selected sources and hand-search relevant data-hubs. Studies with a clear focus on patient experience or feedback collected or used for healthcare improvement in rehabilitation context, will be included. A data extraction framework will be developed and piloted to guide the literature screening and data charting. Qualitative content analysis will be employed to address research questions and the results will be presented - beside the descriptive format - as a map of data in chart and tabular formats.</p><p><strong>Conclusions: </strong>This scoping review will show the extent and scope of the literature on the applied methods of collecting, communicating, and using patient experience for quality improvement in post-acute rehabilitation settings and will evaluate and map the evidence on these topics. The findings will inform a research project entitled \"An exploration into the use of patient experience to inform improvement in a National Rehabilitation Hospital\".</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"6 ","pages":"5"},"PeriodicalIF":0.0,"publicationDate":"2024-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11401988/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142302590","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mapping the HealthPathways literature: a scoping review protocol 绘制健康之路文献:范围界定审查协议
HRB open research Pub Date : 2024-02-20 DOI: 10.12688/hrbopenres.13737.1
A. McGlynn, Éidín Ní Shé, Teng Liaw, Tony Jackson, Ben Harris-Roxas
{"title":"Mapping the HealthPathways literature: a scoping review protocol","authors":"A. McGlynn, Éidín Ní Shé, Teng Liaw, Tony Jackson, Ben Harris-Roxas","doi":"10.12688/hrbopenres.13737.1","DOIUrl":"https://doi.org/10.12688/hrbopenres.13737.1","url":null,"abstract":"Objective: This scoping review will identify what literature exists on HealthPathways and make suggestions for the direction of future HealthPathways research. Background: HealthPathways is a free to access, password protected online tool containing practical, easy to use, localised clinical and referral information that is primarily aimed at GPs. HealthPathways originated in Canterbury, New Zealand in 2008. Since this time the program has spread and is being used in 50 health systems across New Zealand, Australia, and the United Kingdom (Streamliners, 2022a). Despite such large spread of the program there has been relatively little literature published on the utility, usefulness and cost-effectiveness of HealthPathways. This scoping review aims to identify and describe all current HealthPathways literature and make recommendations for the direction of future HealthPathways research. Methods: The Joanna Briggs Institute (JBI) methodology will be used to develop the scoping review. Databases included in the search include MEDLINE (PubMEd), Embase, CINAHL, Web of Science, Google Scholar, Emerald and Cochrane. The inclusion criteria are studies and grey literature on HealthPathways that are published in English, with no time limit. Grey literature will be identified through searching relevant credible organisations and websites. All results will be entered into Covidence to be assessed by two reviewers against a set tool. The PRISMA extension for scoping reviews will be used for reporting. Ethics approval is not required as only published information will be used. The research will be disseminated through publication in an open access peer reviewed journal. Conclusions: This protocol is published to make the process for the review transparent and replicable. The scoping review will highlight the extent of evidence that exists on HealthPathways and may provide direction for decision making and future research.","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"256 5","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140448266","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Breastfeeding Mothers’ and Lactation Consultants’ Experiences of Lactation Consultancy Throughout the Restrictions Put in Place Due to the COVID-19 Pandemic 探索母乳喂养母亲和催乳顾问在 COVID-19 大流行所实施的限制条件下接受催乳咨询的经历
HRB open research Pub Date : 2024-02-19 DOI: 10.21203/rs.3.rs-2349921/v1
Anna Connolly, Anne Matthews
{"title":"Exploring Breastfeeding Mothers’ and Lactation Consultants’ Experiences of Lactation Consultancy Throughout the Restrictions Put in Place Due to the COVID-19 Pandemic","authors":"Anna Connolly, Anne Matthews","doi":"10.21203/rs.3.rs-2349921/v1","DOIUrl":"https://doi.org/10.21203/rs.3.rs-2349921/v1","url":null,"abstract":"Background Breastfeeding rates in Ireland are among the lowest in the world. Lactation consultancy provides mothers with support and information on how to cope with any challenges they encounter. There is emerging evidence that COVID-19 restrictions impacted access to and the quality of breastfeeding support. The aim of this study was to explore breastfeeding mothers’ and lactation consultants’ experiences of breastfeeding support throughout the COVID-19 restrictions in Ireland. It also aimed to explore what adaptations had to be made to the delivery of lactation consultancy and how these changes impacted mothers’ experiences of breastfeeding support. Methods A qualitative research design was chosen. Semi-structured interviews were conducted with eight participants, three breastfeeding mothers and five lactation consultants. Interviews were conducted online via Zoom, audio-recorded and transcribed. The data were analysed using thematic analysis. Results Five key themes were identified: ‘Lack of Support’, ‘Adapting to COVID-19 Restrictions’, Emotional Response to COVID-19 and Restrictions’, Vaccination as a Barrier to and Facilitator of Support’ and Inconsistency of Lactation Support Across Ireland’. Both lactation consultants and mothers identified similar issues however, slight variations within lactation consultants' perceptions of mothers’ and mothers’ attitudes towards online services were seen. An unanticipated finding was the lack of support in hospitals pre-COVID-19. Conclusions Both mothers’ and lactation consultants’ experiences of lactation consultancy were impacted by the COVID-19 restrictions. Although exacerbated by COVID-19, the lack of support in hospitals existed before COVID-19. Provision of better breastfeeding support is required. Increased availability of lactation consultants and the implementation of breastfeeding rooms within hospitals is required in addition to debrief counselling sessions for lactation consultants. Further research is required to understand the unavailability of lactation consultants in hospital settings and to identify how to manage breastfeeding support in future emergency situations.","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"225 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140449722","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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