HRB open researchPub Date : 2025-01-31eCollection Date: 2024-01-01DOI: 10.12688/hrbopenres.13912.2
Jennifer M Ryan, Meriel Norris, Aisling Walsh, Amanda Breen, Owen Hensey, Claire Kerr, Sebastian Koppe, Grace Lavelle, Mary Owens, Michael Walsh, Thilo Kroll, Jennifer Fortune
{"title":"Transition from child to adult health services for young people with cerebral palsy in Ireland; implications from a mixed-methods study.","authors":"Jennifer M Ryan, Meriel Norris, Aisling Walsh, Amanda Breen, Owen Hensey, Claire Kerr, Sebastian Koppe, Grace Lavelle, Mary Owens, Michael Walsh, Thilo Kroll, Jennifer Fortune","doi":"10.12688/hrbopenres.13912.2","DOIUrl":"10.12688/hrbopenres.13912.2","url":null,"abstract":"<p><strong>Background: </strong>Poor transition from child- to adult-oriented healthcare may lead to negative outcomes and dissatisfaction with services in adulthood. The aim of the study was to examine how transition is provided to and experienced by young people with cerebral palsy in Ireland. This report provides integrated quantitative and qualitative findings and implications based on the totality of knowledge generated.</p><p><strong>Methods: </strong>A convergent parallel mixed-methods study was conducted. Data were collected from people with cerebral palsy aged 16-22 years, parents, and health professionals using surveys and semi-structured interviews, which were both informed by a framework of nine key transition practices. Quantitative finding from the surveys and qualitative findings from interviews were integrated at the interpretation stage of the research using integration through joint displays. Implications were developed through discussions with health professionals, young people, and parents.</p><p><strong>Results: </strong>Surveys were completed by 75 young people/parents and 108 health professionals. Interviews were conducted with 13 young people, 14 parents, and 27 health professionals. There was complementarity between quantitative and qualitative findings indicating lack of a named worker, limited information provision, insufficient self-management support, no opportunity to meet the adult team, limited contact with the general practitioner, and no opportunity for attending formal life skills training. There was dissonance between quantitative and qualitative findings regarding appropriate level of parental involvement. Quantitative findings identified limited promotion of health self-efficacy and a lack of senior managers responsible for transition. These practices were not described in the qualitative findings.</p><p><strong>Conclusion: </strong>Implications of integrated findings include the need for a standardised transition pathway, intentional actions to enable parents and young people to adapt to changing roles, provision of information in a collaborative and phased approach, a common understanding of self-management between young people, parents and health professionals, and the need to involve general practitioners in transition.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"7 ","pages":"47"},"PeriodicalIF":0.0,"publicationDate":"2025-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11875073/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544781","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2025-01-24eCollection Date: 2024-01-01DOI: 10.12688/hrbopenres.13874.2
Jen O'Shea, Samantha Dockray, Elizabeth Susman
{"title":"Assessing the stability of psychobiological stress reactivity during adolescence: mixed-effect modelling of cortisol responses to laboratory stressors.","authors":"Jen O'Shea, Samantha Dockray, Elizabeth Susman","doi":"10.12688/hrbopenres.13874.2","DOIUrl":"https://doi.org/10.12688/hrbopenres.13874.2","url":null,"abstract":"<p><strong>Background: </strong>Puberty has been historically considered as a time of risk and vulnerability for young people. It is associated with rapid development in the hypothalamus, which is central in the production of both stress and sex steroids. While patterns of stress reactivity are calibrated in early life, this time of rapid development may provide a means for these patterns to change. This purpose of this study was to examine whether patterns of cortisol reactivity remained stable across one year of pubertal development, and whether variations in pubertal development impacted on this stability.</p><p><strong>Methods: </strong>This study used a secondary dataset comprised of 102 adolescent-aged children and adolescents. Children and adolescents took part in the Trier Social Stress Test to elicit a physiological stress response. Cortisol reactivity was measured as the increase in salivary cortisol concentration taken at five time points throughout the session. Pubertal stage was measured by nurse report where possible, and parent/self-report otherwise and was used to calculate pubertal timing and tempo relative to peers. Measures of anxiety, BMI, and socio-economic status were taken and included in analysis.</p><p><strong>Results: </strong>Results of a linear mixed-effect model found there to be a significant difference in cortisol reactivity over time, indicating that cortisol stress reactivity did not remain stable during this time (Estimate= 3.39, t=3.67, p<.001, CI[1.56, 5.22]). Additionally, results show children and adolescents who developed slower/quicker than peers displayed decreased stress reactivity (Estimate= -3.59, t=-2.13. p=.03, CI[-6.92, -0.25]).</p><p><strong>Conclusions: </strong>This research contributes to a relatively small but consistent body of research noting pattern of increased cortisol reactivity during pubertal development. While a significant effect was found for pubertal tempo, this finding should not be considered indicative of any true effect.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"7 ","pages":"26"},"PeriodicalIF":0.0,"publicationDate":"2025-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11776060/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069786","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2025-01-24eCollection Date: 2025-01-01DOI: 10.12688/hrbopenres.14049.1
Helen O'Leary, Clodagh Toomey, Liam G Ryan, Katie Robinson, Liam Glynn, Helen P French, Karen McCreesh
{"title":"Knowledge translation and exercise for degenerative meniscal pathology and early osteoarthritis (KNEE-DEeP): Protocol for a single arm feasibility study.","authors":"Helen O'Leary, Clodagh Toomey, Liam G Ryan, Katie Robinson, Liam Glynn, Helen P French, Karen McCreesh","doi":"10.12688/hrbopenres.14049.1","DOIUrl":"https://doi.org/10.12688/hrbopenres.14049.1","url":null,"abstract":"<p><strong>Background: </strong>The Knowledge Translation and Exercise for Degenerative Meniscal Pathology and Early Knee Osteoarthritis (KNEE-DEeP) intervention was designed to promote greater uptake of evidence-based non-surgical treatments for knee pain attributed to degenerative meniscal pathology and early knee osteoarthritis (OA) in primary care, by tackling barriers at a service, clinician and patient level. Evidence indicates that patients frequently do not access first-line treatments, namely exercise and patient education, prior to specialist referral. The KNEE-DEeP intervention supports general practitioners (GPs) and physiotherapists to enhance their skills and confidence in managing patients with this type of knee pain through professional development workshops. In turn, patients will receive an 'enhanced consultation' from their GP and be referred to an early 'best practice' physiotherapy session. Physiotherapists will work with patients to develop a collaborative action plan focussing on self-management and exercise.</p><p><strong>Methods: </strong>This protocol outlines a single arm non-randomised feasibility study with a mixed method process evaluation. The study intends to recruit 15 GPs, five physiotherapists and 36 patients from general practices in the South-West of Ireland. Eligible patients, will be aged between 35 years and 69 years inclusive, and attend their GP with an episode of non-traumatic knee pain attributed to a degenerative meniscal tear (DMT) or early OA. Physiotherapists and GPs will be trained in intervention delivery. Within two weeks of receiving an 'enhanced consultation' from their participating GP, patients will attend the one-hour 'best practice' physiotherapy session. Patient data will be collected via online questionnaires at baseline, 12 weeks and 6 months. Qualitative interviews to assess the feasibility and acceptability of the intervention will be conducted with a purposive sample of GPs, physiotherapists and their enrolled patients.</p><p><strong>Ethics and dissemination: </strong>Approved by Clinical Research Ethics Committee of the Cork Teaching Hospitals. Results will be presented in peer-reviewed journals and at international conferences.</p><p><strong>Registration: </strong>clinicaltrials.gov ( NCT06576557).</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"8 ","pages":"14"},"PeriodicalIF":0.0,"publicationDate":"2025-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11868751/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544782","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2025-01-24eCollection Date: 2024-01-01DOI: 10.12688/hrbopenres.13996.2
Niamh A Merriman, Rose S Penfold, Louise Brent, Pamela Hickey, Mary E Walsh, Eithne Sexton, Tara Coughlan, Alasdair M J MacLullich, Antony Johansen, Cristina Ojeda-Thies, Andrew J Hall, Catherine Blake
{"title":"Delirium and Cognitive Screening in National Hip Fracture Registries: Scoping Review Protocol.","authors":"Niamh A Merriman, Rose S Penfold, Louise Brent, Pamela Hickey, Mary E Walsh, Eithne Sexton, Tara Coughlan, Alasdair M J MacLullich, Antony Johansen, Cristina Ojeda-Thies, Andrew J Hall, Catherine Blake","doi":"10.12688/hrbopenres.13996.2","DOIUrl":"10.12688/hrbopenres.13996.2","url":null,"abstract":"<p><strong>Background: </strong>Delirium and cognitive impairment are common in hip fracture populations and are associated with significant adverse patient outcomes. National hip fracture registries facilitate improvements in patient outcomes and care quality, such as reduced mortality and the development of specialist multidisciplinary services. However, there is substantial variation in the data collected and reported in relation to delirium and cognition, which impedes international comparison and may reduce quality of care.</p><p><strong>Objective: </strong>This scoping review aims to identify delirium and cognition data items currently collected by hip fracture registries internationally, to identify associated registry guidance that exists for the administration of delirium and cognitive screening tools, and report outcomes of these data items across the most recently published annual reports of identified hip fracture registries.</p><p><strong>Methods: </strong>This scoping review will be conducted in accordance with the Preferred Reporting Items for Systematic Reviews extension for Scoping Reviews (PRISMA-ScR). We will search the following databases: Medline Ovid; Embase; CINAHL EBSCOHost. Relevant websites such as the Fragility Fracture Network (FFN) will also be searched. Study selection and review will be carried out independently by two research team members, with discrepancies resolved by a third member of the research team. Data extraction and synthesis will be conducted by one reviewer and checked for accuracy and omissions by another. The scoping review findings will be informed and validated through engagement with the FFN Hip Fracture Audit Special Interest Group, who will share their knowledge, expertise, and research to achieve consensus over core aspects of the scoping review findings.</p><p><strong>Conclusion: </strong>By identifying existing heterogeneity in delirium and cognitive screening tool use and administration, it is hoped that administration and specific screening tool use will become standardised to optimise comparability across countries and ensure that high quality and reliable data are included across international registry reports.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"7 ","pages":"68"},"PeriodicalIF":0.0,"publicationDate":"2025-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11773136/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2025-01-23eCollection Date: 2025-01-01DOI: 10.12688/hrbopenres.14005.1
Louise Foley, Shauna O'Mahony, Yvonne Ryan-Fogarty, Catherine B Woods, Katie Robinson, Colin Fitzpatrick, James Green
{"title":"Cycling among people experiencing socio-economic disadvantage: a scoping review protocol.","authors":"Louise Foley, Shauna O'Mahony, Yvonne Ryan-Fogarty, Catherine B Woods, Katie Robinson, Colin Fitzpatrick, James Green","doi":"10.12688/hrbopenres.14005.1","DOIUrl":"10.12688/hrbopenres.14005.1","url":null,"abstract":"<p><strong>Introduction: </strong>Active mobility, such as walking, wheeling, and cycling, is a low-carbon transport mode and a source of physical activity. Cycling, as a form of active mobility, is associated with physical and mental health benefits, transport cost savings, and improved air quality. During the transition to sustainable mobility, equitable outcomes depend on opportunities for active mobility reaching across our societies. This review will chart what is currently known about cycling among people experiencing socioeconomic disadvantage.</p><p><strong>Objective: </strong>To conduct a scoping review to understand the extent and type of evidence reporting utility cycling (i.e., cycling for transport) among people experiencing socioeconomic disadvantage.</p><p><strong>Inclusion criteria: </strong>This review will include studies involving adult participants who are described as experiencing socioeconomic disadvantage. Studies will be included if the focus/objective relates to utility cycling and the study reports cycling experiences, purposes, barriers, enablers, frequencies, perceptions, correlates, determinants, impacts, and/or interventions. Primary research using a qualitative, quantitative, or mixed-method design will be considered. Relevant peer-reviewed articles, conference proceedings, dissertations/theses, and preprints will be included.</p><p><strong>Methods: </strong>The review will be conducted in accordance with the Joanna Briggs Institute's guidance for scoping reviews. A search strategy that includes key terms and subject headings was developed and translated for use across the following databases: PsycINFO (via EBSCOhost), SPORTDiscus (via EBSCOhost), CINAHL (via EBSCOhost), Embase, PubMed, Scopus, ProQuest Dissertations and Theses (via Web of Science), Europe PMC (preprints), and OpenAlex (preprints). Database search results will be collated in Zotero and uploaded to Covidence for study selection. Titles, abstracts, and subsequent full texts will be independently screened by two reviewers. Data will be extracted from the included studies using a data-extraction tool. Data will be synthesized in two stages: (1) charting the data and (2) descriptive qualitative content analysis.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"8 ","pages":"7"},"PeriodicalIF":0.0,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11876797/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143560185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2025-01-23eCollection Date: 2025-01-01DOI: 10.12688/hrbopenres.14047.1
Maria Pierce, Andrew Darley, Attracta Lafferty
{"title":"Student Carers in Higher Education Institutions: A Scoping Review Protocol.","authors":"Maria Pierce, Andrew Darley, Attracta Lafferty","doi":"10.12688/hrbopenres.14047.1","DOIUrl":"10.12688/hrbopenres.14047.1","url":null,"abstract":"<p><p>Student carers in higher education institutions (HEIs) is an emerging policy issue in many countries. Researchers have sought to synthesise the literature on student carers in HEIs. Runacres <i>et al.</i> (2024) conducted a scoping review, which included 14 studies, and Knopf <i>et al.</i> (2022) conducted a systematic review of university students who are caring for an older adult, which included six studies. These reviews identified some key themes discussed in the literature. However, there are further areas of discussion that have yet to be explored in the evidence to date. This observation is in the context of a growing body of international literature published on the topic and the greater visibility of family carers post-pandemic. One key area yet to be examined is the policy and practice responses to student carers in HEIs in different countries. The scope of this review will be broader than previous reviews with a specific focus on policy and practice responses regarding this population. This scoping review will: examine definitional issues concerning student carers in HEIs; summarise studies from different countries that provide estimates of the number of student carers in HEIs; identify theoretical perspectives and concepts underpinning research on this topic; and assess the available evidence on the value and outcomes of supports. The 5-stage methodological framework developed by Arksey and O'Malley (2005) will be used to guide this scoping review, as described in detail in this protocol. The findings of the scoping review will be used to inform the enhancement of supports for student carers in HEIs. A range of vehicles will be used to disseminate the findings, including conference presentations, publication in an international peer-reviewed journal, and preparation of a policy brief to disseminate the findings of this scoping review to policymakers and other relevant stakeholders.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"8 ","pages":"9"},"PeriodicalIF":0.0,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11880753/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143569086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2025-01-22eCollection Date: 2025-01-01DOI: 10.12688/hrbopenres.14018.1
Elaine Lehane, Edina Hanley, Aoife Fleming, Helen Mulcahy, Siobhan Ward, Liz Cogan, Margaret Murphy, Aoife Long, Patricia Leahy-Warren
{"title":"Interprofessional undergraduate breastfeeding education: A scoping review protocol.","authors":"Elaine Lehane, Edina Hanley, Aoife Fleming, Helen Mulcahy, Siobhan Ward, Liz Cogan, Margaret Murphy, Aoife Long, Patricia Leahy-Warren","doi":"10.12688/hrbopenres.14018.1","DOIUrl":"10.12688/hrbopenres.14018.1","url":null,"abstract":"<p><strong>Objective: </strong>To review and summarise interprofessional breastfeeding curricula-educational initiatives involving multiple health professions-that have been proposed for undergraduate or pre-registration health students. This review will help guide the development of future Interprofessional Education (IPE) curricula for undergraduate health students, specifically in the area of breastfeeding care.</p><p><strong>Introduction: </strong>Breastfeeding care and support from healthcare professionals are vital for breastfeeding success. To ensure mothers receive high-quality, consistent care, healthcare professionals must receive comprehensive, evidence-based breastfeeding education. However, there is limited understanding of how breastfeeding curricula are delivered across different disciplines in undergraduate health programs, particularly in the context of IPE.</p><p><strong>Inclusion criteria: </strong>Primary research designs, including quantitative, qualitative and mixed-method studies and evidence syntheses of primary research including systematic and scoping reviews that meet the inclusion criteria will be considered. Position papers and policy documents will also be considered for inclusion in this scoping review.</p><p><strong>Methods: </strong>Medline (Ovid), CINAHL (EBSCO), ERIC (EBSCO), Social Sciences, and Cochrane Databases of Systematic Reviews will be searched with English language and date restrictions (2005-current). Titles and abstracts and full-text articles will be independently screened by two reviewers. The reference lists of the included studies will be searched. A grey literature search will be undertaken on Google scholar, BASE and National Institute for Health and Care Excellence (NICE) website in October 2024. Studies will be screened in Covidence by two independent reviewers. All reviewers will agree on the included studies. Data will be extracted and presented graphically using figures and tables. Narrative summary text will accompany the tables and figures.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"8 ","pages":"6"},"PeriodicalIF":0.0,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11937782/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143722915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2025-01-08eCollection Date: 2023-01-01DOI: 10.12688/hrbopenres.13810.2
Anna Zierotin, Jennifer Murphy, Brian O'Donoghue, Karen O'Connor, Michael Norton, Mary Clarke
{"title":"The short-, medium-, and long-term prevalence of physical health comorbidities in first-episode psychosis: a systematic review and meta-analysis protocol.","authors":"Anna Zierotin, Jennifer Murphy, Brian O'Donoghue, Karen O'Connor, Michael Norton, Mary Clarke","doi":"10.12688/hrbopenres.13810.2","DOIUrl":"10.12688/hrbopenres.13810.2","url":null,"abstract":"<p><strong>Background: </strong>Individuals with first-episode psychosis (FEP) face an increased risk of physical comorbidities, notably cardiovascular diseases, metabolic disorders, respiratory disorders, and certain types of cancer. Previous reviews report pooled physical health prevalence from chronic psychosis and FEP groups. By contrast, this review will focus on antipsychotic-naïve FEP cohorts and incorporate data from observational longitudinal studies and antipsychotic intervention studies to understand the progression of physical health comorbidities from the onset to later stages of psychosis. This review aims to examine the short-, medium-, and long-term period prevalence of these comorbidities in FEP and variations related to demographic factors.</p><p><strong>Methods: </strong>Using the PRISMA and MOOSE guidelines, Medline, Embase, PsycINFO, and CINAHL+, as well as Clinical Trials gov.uk, OpenGrey, WHO International Clinical Trials Registry Platform, Current Controlled Trials, United States National Institute of Health Trials Registry, and the Irish Health Repository, will be searched from inception. Longitudinal studies and antipsychotic intervention studies monitoring health outcomes in antipsychotic naïve FEP individuals will be eligible for inclusion. Two reviewers will independently screen titles, abstracts, and full-text articles. Risk of bias will be assessed using the Joanna Briggs Institute Critical Appraisal Checklist. A meta-analysis of the short-, medium-, and long-term prevalence of cardiovascular, metabolic, cancer, and respiratory outcomes and a narrative synthesis will be conducted. Where feasible, a meta-regression on the impact of demographic variables will be conducted. Potential limitations include the risk of diagnostic heterogeneity across studies and possible underreporting of certain comorbidities.</p><p><strong>Conclusions: </strong>This systematic review will clarify the progression of physical health comorbidities in FEP, informing early intervention strategies and policies. Subsequent findings will be submitted to a leading journal, supplemented by a recovery education module and a lay summary for wider dissemination.</p><p><strong>Registration: </strong>The study was registered in PROSPERO, the International Prospective Register of Systematic Reviews ( CRD42023431072; 17/06/2023).</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"6 ","pages":"75"},"PeriodicalIF":0.0,"publicationDate":"2025-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11757914/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2024-12-16eCollection Date: 2024-01-01DOI: 10.12688/hrbopenres.13856.2
Anna Connolly, Anne Matthews
{"title":"Exploring Breastfeeding Mothers' and Lactation Consultants' Experiences of Lactation Consultancy Throughout the Restrictions Put in Place Due to the COVID-19 Pandemic.","authors":"Anna Connolly, Anne Matthews","doi":"10.12688/hrbopenres.13856.2","DOIUrl":"10.12688/hrbopenres.13856.2","url":null,"abstract":"<p><strong>Background: </strong>Breastfeeding rates in Ireland are among the lowest in the world. Lactation consultancy provides mothers with support and information on how to cope with any challenges they encounter. There is emerging evidence that COVID-19 restrictions impacted access to and the quality of breastfeeding support.The aim of this study was to explore breastfeeding mothers' and lactation consultants' experiences of breastfeeding support throughout the COVID-19 restrictions in Ireland. It also aimed to explore what adaptations had to be made to the delivery of lactation consultancy and how these changes impacted mothers' experiences of breastfeeding support.</p><p><strong>Methods: </strong>A qualitative research design was chosen. Semi-structured interviews were conducted with eight participants, three breastfeeding mothers and five lactation consultants. Interviews were conducted online via Zoom, audio-recorded and transcribed. The data were analysed using thematic analysis.</p><p><strong>Results: </strong>Five key themes were identified: 'Lack of Support', 'Adapting to COVID-19 Restrictions', Emotional Response to COVID-19 and Restrictions', Vaccination against SARS-CoV-2 as a Barrier to and Facilitator of Support' and Inconsistency of Lactation Support Across Ireland'. Both lactation consultants and mothers identified similar issues however, slight variations within lactation consultants' perceptions of mothers' and mothers' attitudes towards online services were seen. An notable finding was the lack of support in hospitals pre-COVID-19.</p><p><strong>Conclusions: </strong>Both mothers' and lactation consultants' experiences of lactation consultancy were impacted by the COVID-19 restrictions. Although exacerbated by COVID-19, the lack of support in hospitals existed before COVID-19. Provision of better breastfeeding support is required.Increased availability of lactation consultants and the implementation of breastfeeding rooms within hospitals is required in addition to debrief counselling sessions for lactation consultants. Further research is required to understand the unavailability of lactation consultants in hospital settings and to identify how to manage breastfeeding support in future emergency situations.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"7 ","pages":"9"},"PeriodicalIF":0.0,"publicationDate":"2024-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11757925/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
HRB open researchPub Date : 2024-12-12eCollection Date: 2023-01-01DOI: 10.12688/hrbopenres.13706.2
Anna Connolly, Marcia Kirwan, Anne Matthews
{"title":"Validation of the rates of adverse event incidence in administrative healthcare data through patient chart review: A scoping review protocol.","authors":"Anna Connolly, Marcia Kirwan, Anne Matthews","doi":"10.12688/hrbopenres.13706.2","DOIUrl":"10.12688/hrbopenres.13706.2","url":null,"abstract":"<p><strong>Background: </strong>Patient safety is a key issue for health systems and a growing global public health challenge. Administrative healthcare data provide a coded summary of a patient and their encounter with the healthcare system. These aggregated datasets are often used to inform research and decisions relating to health service planning and therefore it is vital that they are accurate and reliable. Given the reported inaccuracy of these datasets for detecting and recording adverse events, there have been calls for validation studies to explore their reliability and investigate further their potential to inform research and health policy. Researchers have since carried out validation studies on the rates of adverse events in administrative data through chart reviews therefore, it seems appropriate to identify and chart the evidence and results of these studies within a scoping review.</p><p><strong>Methods: </strong>The scoping review will be conducted in accordance with the Joanna Briggs Institute (JBI) methodology for scoping reviews. A search of databases such as PubMed, CINAHL, ScienceDirect and Scopus will be conducted in addition to a search of the reference lists of sourced publications and a search for grey literature. Following this, Covidence will be used to screen the sourced publications and subsequently extract data from the included sources. A numerical summary of the literature will be presented in addition to a charting based on the qualitative content analysis of the studies included.</p><p><strong>Conclusions: </strong>This protocol provides the structure for the conduct of a review to identify and chart the evidence on validation studies on rates of adverse events in administrative healthcare data. This review will aim to identify research gaps, chart the evidence of and highlight any flaws within administrative datasets to improve extraction and coding practices and enable researchers and policy makers to use these data to their full potential.</p>","PeriodicalId":73254,"journal":{"name":"HRB open research","volume":"6 ","pages":"21"},"PeriodicalIF":0.0,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11808841/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}