Dementia (London, England)最新文献

{"title":"Understanding the Benefits of Textiles in Facilitating Interactions for People With Dementia: An Exploration of Design Considerations and Recommendations.","authors":"Yushan Zou, Eddi Pianca, Nathan M D'Cunha","doi":"10.1177/14713012261492102","DOIUrl":"https://doi.org/10.1177/14713012261492102","url":null,"abstract":"<p><p>As the global population of people with dementia increases, the demand for best practice dementia care is growing. Textiles have the potential to assist with interacting with people with dementia and provide benefits in dementia care settings. However, there is currently limited understanding of, or experience with, the specific challenges, considerations and design of interactive textile products for people with moderate to advanced dementia. This exploratory qualitative study aimed to explore the perspectives of using interactive textiles with people with dementia. Seven sets of interactive textiles were tested for usability with nine people with dementia, followed by post-testing interviews. Additionally, semi-structured interviews were conducted with care partners and healthcare professionals to understand the effects of interactive textiles in two care settings. In total, 27 people were interviewed, including people with dementia (<i>n</i> = 9), informal care partners (<i>n</i> = 5), formal care partners/staff (<i>n</i> = 2), and healthcare professionals (<i>n</i> = 11), from a residential care home, a daycare centre, and a university located in southeastern Australia. The findings highlighted several benefits of interactive textiles, including assisting interactions, facilitating communication, providing sensory stimulation, supporting reminiscence, and promoting positive emotions such as reducing stress and anxiety. Participants suggest textiles can be used to provide engagement, describing the importance of forging connections between people with dementia and their past, bolstering familiar associations, emotional relations, and recognition of personal preferences. These insights informed design considerations and recommendations for creating interactive textiles that offer playful and meaningful activities for people with dementia.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261492102"},"PeriodicalIF":2.2,"publicationDate":"2026-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149027088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility of the DIGNITY Intervention to Support Person-Centered Risk Management in Rural Nursing Homes.","authors":"Liza L Behrens, Erin Kitt-Lewis, Kalei H Crimi, Caroline Madrigal, Allen R Kunselman, Terrence E Murphy, Jennifer L Kraschnewski, Kimberly S VanHaitsma, Marie Boltz","doi":"10.1177/14713012261485344","DOIUrl":"10.1177/14713012261485344","url":null,"abstract":"<p><p>Honoring individual preferences, like going outside, can enhance the health of nursing home (NH) residents living with Alzheimer's disease and related dementias (ADRD). Although a hallmark of person-centered care, honoring ADRD residents' preferences is often restricted when they are perceived to be high-risk for harm by NH staff. Accessible and efficient strategies are needed to help NH staff balance harmful risks to health and safety against the residents' right to make autonomous choices, especially in under-resourced rural areas. This pilot study (NCT05618678) evaluated the feasibility of Decision-making In aGing and demeNtIa for auTonomY (DIGNITY), a multi-faceted and innovative, theory-based, person-centered risk management intervention aimed at assisting NH staff in respecting the preferences of rural residents living with ADRD, while optimizing safety. Feasibility was assessed using retention rates, staff surveys, and qualitative feedback. Fifty-two NH staff participated (88.7% female, 83.3% White, 94.3% non-Hispanic, and 48% with ≥6 years NH experience), with a 79% retention rate and 87.8% survey response rate. In the DIGNITY group, average scores (on Likert scale of 1-5) indicated high feasibility (3.99), acceptability (4.19), and appropriateness (4.24). Qualitative feedback highlighted the value of in-person training and telemonitoring sessions. The high ratings for feasibility, acceptability, and appropriateness of DIGNITY show its potential for supporting NH staff to more confidently provide person-centered care for ADRD residents.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261485344"},"PeriodicalIF":2.2,"publicationDate":"2026-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149027117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"Someone's Acknowledged My Mum…in that Moment she Connected\": A Qualitative Study of Family Benefits of Elder Clowning for Persons With Dementia in Long-Term Care.","authors":"Sara-Jane Roberts, Serra Ivynian, Tim Luckett, Michelle DiGiacomo","doi":"10.1177/14713012261487540","DOIUrl":"https://doi.org/10.1177/14713012261487540","url":null,"abstract":"<p><p>Elder clowning is a multi-component, person-centred intervention delivered to persons living with dementia in long-term care to enhance quality of life through individualised social engagement. Although persons with dementia are the target recipients of the intervention, their families may also derive benefits. However, their perspectives currently remain unexplored. This study aimed to explore whether and in what ways families of persons living with dementia in long-term care benefit from elder clowning interventions, from the perspectives of families and long-term care staff. Semi-structured interviews with family members of persons living with dementia and long-term care staff were conducted in four long-term care homes in Eastern Australia. Interviews were audio-recorded, transcribed, and analysed according to Braun and Clarke's Reflexive Thematic Analysis. Analysis of family member (<i>n</i> = 11) and staff (<i>n</i> = 20) perspectives on elder clowning generated two main themes: (1) transforming the emotional experience of visiting and (2) strengthening family connections through the shared experience. Elder clowning supported families to have improved visiting experiences with their relative in long-term care, which eased visit-related stress before, during, and after visits. Person-centred engagement through elder clowning was perceived to support the reciprocal interaction and happiness of their relative, which supported positive emotions for families. Families learned about their relative's communicative capacity and new dementia-specific communication skills, which they then implemented independently from elder clowning. Shared positive experiences supported socialisation, reminiscence, and memory-making, which may have supported family connections. Elder clowning also provided families with opportunities for social support. While some families were actively involved, others preferred to watch, and some were perceived to decline involvement. Families expressed preferences or suggestions regarding intervention delivery, such as continuity and access. The benefits of elder clowning were found to extend beyond entertainment to support psychosocial wellbeing of families of persons living with dementia in long-term care.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261487540"},"PeriodicalIF":2.2,"publicationDate":"2026-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148984327","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mapping Namaste Care Training for Staff in Long-Term Care Settings: A Scoping Review.","authors":"Xueyi Sun, Meng Jin, Dijuan Meng, Yu Ding, Qinan Shen, Wen Zhou, Yiheng Zhang","doi":"10.1177/14713012261488574","DOIUrl":"https://doi.org/10.1177/14713012261488574","url":null,"abstract":"<p><p>Namaste Care is a person-centered intervention for people with dementia in long-term care, particularly those in advanced stages. However, evidence on how staff are trained and supported to deliver Namaste Care remains fragmented. This scoping review aimed to map training content, delivery formats and support, and training-related outcomes. Following Joanna Briggs Institute methodology, eight databases were searched from inception to May 2026, with additional website and citation searches. Data were synthesized descriptively, and training-related outcomes were mapped against the Kirkpatrick Four-Level Training Evaluation Model. Eleven studies were included. Training commonly addressed core Namaste Care principles and activities, and several programs also included knowledge of dementia and palliative care, as well as communication and relational care skills. Face-to-face workshops and in-service sessions were the most common delivery formats, with some programs also incorporating experiential learning. Follow-up support and practical resources were frequently reported, and family involvement was incorporated into several programs. Staff reactions were generally positive. Learning-related outcomes included greater understanding of the purpose and delivery of Namaste Care and reported improvements in knowledge, attitudes, and self-perceived skills. Some studies reported changes in staff practice, although intended program frequency or duration was not always achieved because of staffing and organizational constraints. Resident, staff, and family caregiver outcomes were mixed and could not be attributed to training alone. Namaste Care training is therefore better understood as part of a broader practice-support strategy rather than as a stand-alone educational activity. However, existing evaluations remain incomplete, with limited evidence linking staff learning to subsequent practice change and wider outcomes.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261488574"},"PeriodicalIF":2.2,"publicationDate":"2026-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148931925","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementing Dementia-Friendly Videos in Everyday Care: A Qualitative Study of Frontline Staff Experiences.","authors":"Karen Lok Yi Wong, Lillian Hung, Diane Pan, Deborah Liao, Carly Wang, Lily Haopu Ren, Annette Berndt, Lily Wong","doi":"10.1177/14713012261489380","DOIUrl":"https://doi.org/10.1177/14713012261489380","url":null,"abstract":"<p><p>Dementia-friendly videos are adapted audiovisual resources designed to support care for people living with moderate to severe dementia. Although evidence suggests these videos can enhance comfort, engagement, and communication, little is known about how frontline healthcare providers integrate them into everyday practice. This qualitative implementation study examined the barriers and facilitators experienced by frontline healthcare providers when implementing dementia-friendly videos in real-world clinical environments. The videos were introduced over an 18-month period in two contrasting care settings in Vancouver, Canada: an acute hospital geriatric unit and a long-term care dementia unit. Nineteen interdisciplinary healthcare providers, including nurses, care aides, and rehabilitation and recreation staff, participated in semi-structured interviews and focus groups after using the videos in routine care. A reflexive thematic analysis was conducted, followed by a later-stage comparison with relevant constructs from the Consolidated Framework for Implementation Research (CFIR). A participatory research team, including people living with dementia and family caregivers, contributed to study design, interpretation, and theme refinement. Findings showed that time pressures and staffing constraints limited workflow compatibility, particularly because many residents required assistance to operate devices. Limited equipment and unstable internet access further hindered consistent use. Facilitators included motivated staff who acted as catalysts for adoption, the perceived advantages of dementia-friendly videos over general platforms, and staff observations of positive impacts on emotional regulation and participation. Seeing benefits in practice, such as calming distressed patients, reinforced continued use. The study highlights the importance of integrating dementia-friendly videos into existing workflows rather than treating them as additional tasks. Ensuring adequate equipment, supporting motivated staff, and attending to cultural and linguistic relevance are essential for sustainable implementation. These findings offer practical guidance for embedding person-centred digital tools into dementia care.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261489380"},"PeriodicalIF":2.2,"publicationDate":"2026-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148946314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Continuing the Role: Lived Experiences of Family Caregivers after Placement of a Relative With Dementia in Residential Care.","authors":"Kareem Khaled Fareed, Samantha Meir, Carolyn Harmon Still, Siobhan P Aaron","doi":"10.1177/14713012261486633","DOIUrl":"https://doi.org/10.1177/14713012261486633","url":null,"abstract":"<p><p>Placement of a relative with Alzheimer's disease and related dementias (ADRD) in residential care is often assumed to reduce caregiver burden. However, little is known about how informal caregivers experience their role after placement. This descriptive phenomenological study explored the lived experiences of 9 informal family caregivers whose relatives with ADRD resided in residential care settings. Semi-structured interviews lasting 60 to 120 minutes were conducted and analyzed using Colaizzi's method to identify the essential structures of post-placement caregiving. Brief quantitative measures, including the CES-D-10 and the Caregiver Self-Assessment Questionnaire, were collected to contextualize participants' emotional burden. Six themes emerged: emotional dissonance after placement, cognitive load and decision fatigue, persistence of caregiver identity and responsibility, fragmented systems and resource gaps, crisis-driven transitions, and the need for post-placement support. Participants described caregiving after placement not as an endpoint, but as a reconfigured role marked by ongoing emotional labor, vigilance, advocacy, and decision-making. Although physical caregiving tasks had shifted to staff, caregivers remained deeply involved in monitoring care quality, managing communication, responding to crises, and serving as the primary emotional anchor for their relatives. Quantitative findings reinforced these accounts, with all participants scoring above the CES-D-10 clinical threshold and reporting substantial caregiver distress. Taken together, the findings suggest that caregiving continues in sustained and multidimensional ways after residential placement. Residential care settings should recognize family caregivers as ongoing partners and provide structured orientation, clearer communication pathways, and psychosocial support to address the emotional, cognitive, and relational demands of post-placement caregiving.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261486633"},"PeriodicalIF":2.2,"publicationDate":"2026-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148921976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Time Passing: Reflections on a Career in Dementia Care.","authors":"John Keady","doi":"10.1177/14713012261486955","DOIUrl":"https://doi.org/10.1177/14713012261486955","url":null,"abstract":"","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261486955"},"PeriodicalIF":2.2,"publicationDate":"2026-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148914571","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating Leadership Challenges: Care Home Managers' and their Staffs' Experiences of Enabling Person-Centred Dementia Care, A Qualitative Study.","authors":"Linda Moenke, Melanie Handley, Claire Goodman","doi":"10.1177/14713012261486626","DOIUrl":"https://doi.org/10.1177/14713012261486626","url":null,"abstract":"<p><p>Care home managers' leadership is widely recognised as shaping how staff provide care for people living with dementia. However, evidence remains limited on what enables managers to enact this role and sustain person-centred approaches within day-to-day care. This study explored managers and staffs' experiences of facilitating person-centred care using an interpretative phenomenological approach. Twenty participants (ten managers and ten staff) from ten care homes took part in online semi-structured interviews. Data were analysed using Colaizzi's seven-step method. Participants viewed managers as key enablers of person-centred care, yet described this role as constrained and not always achievable in practice. Organisational and regulatory demands such as staffing shortages, administrative burden, and limited autonomy were perceived as major barriers, shaping what staff and managers felt able to prioritise. Managers countered these pressures, by being visible and available to staff, encouraging open communication, using staff meetings and appraisals to address concerns, and supporting staff reporting of poor practice. Values-based recruitment, emphasising empathy and kindness over formal qualifications, were also described as central to sustaining person-centred practice. However, staff were often unaware of these leadership strategies, which were frequently experienced as workarounds rather than embedded organisational processes. Examples of person-centred care focused on supporting residents' choices in everyday routines and taking additional steps to understand individuals' backgrounds when information was limited. Peer learning groups were valued for reducing managerial isolation and promoting shared problem-solving, whereas online and mandatory training were widely seen as insufficient. Findings highlight a persistent tension between managers and staff aspirations for person-centred care and the realities of practice shaped by system pressures, risk management, and resource constraints. Sustaining culture change requires long term organisational commitment, context sensitive leadership development, and structural support that extends beyond individual managers' efforts.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261486626"},"PeriodicalIF":2.2,"publicationDate":"2026-09-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148901675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"Like a Prisoner\": Stories From Evergreen Manor.","authors":"Erica MacTavish, K Aly Bailey, Kimberly J Lopez, Sherry Dupuis","doi":"10.1177/14713012261484202","DOIUrl":"10.1177/14713012261484202","url":null,"abstract":"<p><p>Stigmatizing accounts of dementia emphasize tragedy, constructing people living with dementia as 'unagentic' and 'failed' aging subjects, and cognitive changes as a loss of self. This stigma has significant consequences for people living with dementia in all aspects of their lives. For example, coupled with the biomedical culture in many long-term care settings, recreation and leisure is often focused on targeting therapeutic goals or managing \"difficult behaviours,\" rather than on life enrichment. A social citizenship framework challenges these deficit-based approaches by recognizing people living with dementia as active agents with rights, history, and capacities. Relational citizenship further highlights the importance of embodied selfhood and relationships to agency. Although leisure has the potential to support social and relational citizenship, existing research is focused almost exclusively on community-based settings, overlooking more communal institutional living, like long-term care facilities. This study addresses this gap by exploring how leisure shapes social and relational citizenship for people living with dementia living in long-term care settings. Participant observations of leisure programs and research conversations with both people living with dementia and recreation staff were conducted in a long-term care setting in Southern Ontario. Developed through reflexive thematic analysis, four stories reflect the complex relationship between leisure and social citizenship in long-term care contexts: Holding onto Selfhood, The Right to Choose, Beyond Isolation, and Negotiating Freedom and Care. These stories provide important insights into how long-term care environments can intentionally support residents' social and relational citizenship by prioritizing interdependence and relational agency, and by addressing the systemic and structural barriers that limit relational citizenship in long-term care.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261484202"},"PeriodicalIF":2.2,"publicationDate":"2026-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13683905/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148882635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social Interactions Between People Living With Dementia and Staff in Health and Social Care Settings: A Scoping Review.","authors":"Stephanie Janka-Spurlock, Georgia Page, Gary Hodge, Helen Lloyd, Susie Pearce","doi":"10.1177/14713012261484704","DOIUrl":"https://doi.org/10.1177/14713012261484704","url":null,"abstract":"<p><p>Dementia is an umbrella term for progressive conditions affecting memory, thinking, communication and other cognitive functions. These changes can make social interaction challenging, particularly in unfamiliar or overstimulating environments<i>.</i> Although social interactions between staff and people living with dementia are recognised as an aspect of care, existing literature across health and social care settings largely focuses on general care needs and experiences rather than social interaction specifically. Consequently, there is limited understanding of the types of social interactions that occur and the contextual factors influencing them. This scoping review aims to address this gap by mapping existing research on social interactions between staff and people living with dementia in health and social care settings, to inform future research and care models. It addresses two questions: What types of social interactions take place between staff and people living with dementia? What barriers and facilitators influence these interactions? Searches were conducted across Social Policy and Practice, Medline, EMCare, Embase, Google Scholar, and the websites of the King's Fund and the World Health Organization, covering publications from 1997 to the present. Nineteen articles from eight countries met the inclusion criteria, with most employing qualitative methods. Five themes were identified: the nature of staff-resident social interactions; organisational care culture; organisational resources; the physical environment; and staff training and development. Findings highlight a notable gap in evidence relating to social interactions in clinically focused environments such as acute hospitals. Future research should examine how care contexts balance biomedical and psychosocial priorities, alongside the continued need for staff training in effective communication. Overall, the evidence indicates a necessary shift toward person centred organisational cultures that recognise social interaction as a core therapeutic component of dementia care.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261484704"},"PeriodicalIF":2.2,"publicationDate":"2026-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148889465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}