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Population Attributable Fraction of Modifiable Risk Factors for Dementia in Turkey. 土耳其痴呆症可改变危险因素的人口归因比例
IF 2.2
Dementia (London, England) Pub Date : 2026-05-01 Epub Date: 2025-06-29 DOI: 10.1177/14713012251357162
Bugra Taygun Gulle, Busra Tozduman
{"title":"Population Attributable Fraction of Modifiable Risk Factors for Dementia in Turkey.","authors":"Bugra Taygun Gulle, Busra Tozduman","doi":"10.1177/14713012251357162","DOIUrl":"10.1177/14713012251357162","url":null,"abstract":"<p><p>Dementia affects approximately 55 million people globally, with modifiable risk factors contributing significantly to its prevalence. While global studies have explored these factors, no research has applied the Lancet Commission's framework to the Turkish population. This study aims to estimate the population attributable fractions (PAFs) of 14 modifiable dementia risk factors in Turkey, using the updated 2024 Lancet Commission framework. Data from the 2022 Turkey Health Survey, a nationally representative dataset, were used to calculate prevalences. The 14 risk factors were categorized into early life (low education), midlife (e.g., physical inactivity, obesity, depression), and later life (e.g., social isolation, air pollution, untreated vision loss). PAFs were computed using relative risks from meta-analyses and the Lancet Commission report. Principal Component Analysis and communalities were applied to account for intercorrelations between factors. The overall weighted PAF for Turkey was 49.9%, indicating that nearly half of dementia cases could be prevented through targeted interventions. Physical inactivity was the leading midlife factor, while social isolation and low education were the most significant contributors in later and early life stages, respectively. Gender-specific analysis revealed higher PAFs in women (54.2%) compared to men (44.3%), driven by differences in physical inactivity, depression, and social isolation. This study highlights the significant preventable burden of dementia in Turkey and underscores the importance of culturally tailored, gender-sensitive interventions. Addressing modifiable risk factors, particularly physical inactivity and social isolation, is critical to reducing dementia prevalence and informing public health strategies.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"788-800"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531378","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The care experience of people with diagnosed or suspected dementia living in prison: A case study approach. 生活在监狱中的诊断或疑似痴呆症患者的护理经验:案例研究方法。
IF 2.2
Dementia (London, England) Pub Date : 2026-05-01 Epub Date: 2025-04-29 DOI: 10.1177/14713012251338873
Rhoda MacRae, Natalie Chalmers, Debbie Tolson, James Taylor, Kirstin Anderson, Lindsay Thomson, Tom Russ
{"title":"The care experience of people with diagnosed or suspected dementia living in prison: A case study approach.","authors":"Rhoda MacRae, Natalie Chalmers, Debbie Tolson, James Taylor, Kirstin Anderson, Lindsay Thomson, Tom Russ","doi":"10.1177/14713012251338873","DOIUrl":"10.1177/14713012251338873","url":null,"abstract":"<p><p>Complex health and social care needs of people living in prison with diagnosed or suspected dementia is a growing concern for prisons and prison healthcare staff. The literature is replete with recommendations to better understand the health and social needs of this vulnerable population, to move beyond speculation towards actions to improve their health and well-being. Despite this, there is scant literature exploring the lived care experience of individuals being assessed for or diagnosed with dementia in prisons. The aim of this multi method qualitative study was to investigate how those with suspected dementia were identified, assessed and cared for in Scottish prisons. This article presents case study data from one phase of the larger study. Case studies were constructed from five semi-structured interviews with men with a diagnosed (<i>n</i> = 1) or suspected dementia (<i>n</i> = 4), four semi-structured interviews with staff the men nominated and data from the men's health care records. The five men had multiple co-morbidities, three had significant mobility issues, two were in receipt of personal care and accommodated in accessible cells. Four of the five men exemplified previous descriptions of older prisoners in that they were socially and physically isolated, and reliant on support with everyday activities. A 'case by case' approach to referral, assessment and post diagnostic support was taken by staff who reported a complexity associated with meeting healthcare needs and access to specialist services and supports within a prison regime. This research provides unique and hither to seldom explored insight into the lived care experience of men living with a diagnosed or suspected dementia in prison. The findings have implications for how this marginalised vulnerable group are cared for in prison and on release.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"677-695"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13061308/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144054413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effects of a Reminiscence Therapy Program on Neuropsychiatric Symptoms and Quality of Life in People With Dementia: A Pilot Study Comparing Immersive Virtual Reality and Non-immersive Approaches. 回忆治疗方案对痴呆患者神经精神症状和生活质量的影响:一项比较沉浸式虚拟现实和非沉浸式方法的试点研究
IF 2.2
Dementia (London, England) Pub Date : 2026-05-01 Epub Date: 2025-08-07 DOI: 10.1177/14713012251366348
Maria Soares, Vanessa Quental, Miguel Pereira, Ana Isabel Corregidor Sánchez, Ana Costa, Paula Portugal, Tiago Coelho
{"title":"Effects of a Reminiscence Therapy Program on Neuropsychiatric Symptoms and Quality of Life in People With Dementia: A Pilot Study Comparing Immersive Virtual Reality and Non-immersive Approaches.","authors":"Maria Soares, Vanessa Quental, Miguel Pereira, Ana Isabel Corregidor Sánchez, Ana Costa, Paula Portugal, Tiago Coelho","doi":"10.1177/14713012251366348","DOIUrl":"10.1177/14713012251366348","url":null,"abstract":"<p><p>This study compared the impact of an immersive virtual reality (VR)-based reminiscence therapy program with a similar non-immersive intervention on neuropsychiatric symptoms and quality of life of people with dementia. A pilot randomized controlled trial was conducted with 14 individuals with mild to moderately severe dementia, who participated in eight biweekly individual reminiscence sessions conducted by trained researchers, in which 360° videos of locations with personal relevance were displayed. Participants were randomly divided in two groups: one receiving therapy using VR headsets to promote an immersive experience while the other watched the videos on a monitor (non-immersive approach). Assessment was conducted pre- and post-intervention using the Quality of Life in Alzheimer's Disease Scale to measure quality of life and the Geriatric Depression Scale, Generalized Anxiety Disorder Scale and Neuropsychiatric Inventory to evaluate neuropsychiatric symptoms. Adverse simulation-related symptoms were also assessed with the Simulator Sickness Questionnaire. There were no statistically significant differences between groups at baseline, regarding sociodemographic variables and level of dementia progression. The results indicated significant improvements post-intervention in quality of life from caregivers' perspectives in the non-immersive group (<i>p</i> < .05) but not in the VR group. Differences in overall neuropsychiatric symptoms, depressive symptoms and anxiety symptoms between assessments were non-significant. However, slight improvements were visible, particularly regarding anxiety. Only a few instances of mild cybersickness symptoms were reported in both groups. In this study, pre- and post-intervention comparisons do not support the added value of using immersive VR in reminiscence therapy for people living with dementia. This raises questions about whether VR is worthwhile compared to traditional approaches, and how to better capture potential benefits of immersion with VR, which may be more evident considering in-session engagement and well-being or longer intervention programs.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"736-749"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13062448/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144796288","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development of a Pilot Specialist Dementia Nurse at a Tertiary Victorian Hospital. 发展试点专家痴呆症护士在三级维多利亚医院。
IF 2.2
Dementia (London, England) Pub Date : 2026-05-01 Epub Date: 2025-08-13 DOI: 10.1177/14713012251364329
Rebecca Leahy, Dina LoGiudice, Joanne Tropea, Fleur O'Keefe, Sharne Donoghue, Jenna Dennison, Alissa Westphal, Aaron B Wong, Dayalini Kumarasamy, Kathryn A Ellis, Nicola T Lautenschlager
{"title":"Development of a Pilot Specialist Dementia Nurse at a Tertiary Victorian Hospital.","authors":"Rebecca Leahy, Dina LoGiudice, Joanne Tropea, Fleur O'Keefe, Sharne Donoghue, Jenna Dennison, Alissa Westphal, Aaron B Wong, Dayalini Kumarasamy, Kathryn A Ellis, Nicola T Lautenschlager","doi":"10.1177/14713012251364329","DOIUrl":"10.1177/14713012251364329","url":null,"abstract":"<p><p>The pathway to a diagnosis of dementia and post-diagnostic support can be complicated for people living with dementia and their support networks, leading to delays in care. This paper describes the development and subsequent pilot of a specialist dementia nurse role named the Dementia Liaison Officer (DEMLO) within a tertiary Victorian hospital. The aim of the DEMLO was to identify and address gaps in dementia care. This pilot is based on the principles of the National Comprehensive Dementia Centre framework. Mapping of current outpatient diagnostic and post-diagnostic services for people with suspected cognitive impairment was conducted to identify gaps in care. Interviews with 25 hospital staff were also conducted to gain further perspectives on barriers to diagnostic and post-diagnostic care and inform the development of the DEMLO role. Several challenges to diagnostic/post-diagnostic support were identified, including the perception that waitlists were long, confusing referral criteria, and complex referral processes. The DEMLO was subsequently developed and trialled within the Geriatric Evaluation and Management (GEM) outpatient service. Three key functions were implemented: reviews of eligibility criteria for patients with cognitive impairment on the GEM clinic waitlist, introduction of a pre-clinic comprehensive geriatric assessment for GEM clinic patients and the introduction of a dementia post-diagnostic support service for all patients across the hospital. Challenges to developing and sustaining the pilot included limited timeframe, difficulty with integration and limited funding. Despite this, the pilot was well received, with 141 patients referred. The introduction of a nurse-led dementia intervention has resulted in increased person-centred care that encompasses pre-diagnostic and post-diagnostic support for people living with dementia. Evaluation of the pilot is ongoing.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"718-735"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13062468/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relationships Between Cultural Perspectives and Family Caregiver Burden in the Dementia Population. 痴呆人群文化视角与家庭照顾者负担的关系
IF 2.2
Dementia (London, England) Pub Date : 2026-05-01 Epub Date: 2025-06-29 DOI: 10.1177/14713012251356733
Payton Adams, David A S Kaufman
{"title":"Relationships Between Cultural Perspectives and Family Caregiver Burden in the Dementia Population.","authors":"Payton Adams, David A S Kaufman","doi":"10.1177/14713012251356733","DOIUrl":"10.1177/14713012251356733","url":null,"abstract":"<p><p>Dementia diagnoses are increasing in the United States, causing impairments across multiple domains of functioning. Informal care provided by family caregivers can benefit those with declining cognitive function. However, this can lead to subjective and objective caregiver burden. As the United States' population becomes more diverse, literature on these topics does not fully account for cultural characteristics. The current study examined the association between key variables including cultural identity (individualism/collectivism), coping styles, and caregiver burden. A sample of 253 family caregivers of those with dementia (ages 20-78) completed a survey through Prolific, an online research platform. Sociodemographic characteristics consisted of varying racial identities, gender identities, and socioeconomic statuses. Measures included several rating scales, and statistical analyses examined the relationships between these variables. Maladaptive and adaptive coping strategies are important to the dementia family caregiver population in relation to subjective caregiver burden, which has implications for predicting health outcomes. Results demonstrated imperative considerations in the link between individualism and subjective caregiver burden. Follow-up subgroup analyses on three demographic factors displayed supplementary informative patterns. This study is one of the first widespread explorations to move towards understanding the distinctive relationships between sociocultural characteristics of caregivers. These complexities should continue to be examined to help inform effective, yet culturally competent, community-based interventions tailored towards family caregivers managing difficulties presented by a dementia diagnosis. Findings are applicable to concrete clinical directions, and a future study could test an intervention that focuses on increasing adaptive strategies, while decreasing maladaptive strategies.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"750-767"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531379","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers and facilitators to accessing and engaging with arts-based non-pharmacological interventions for people living with dementia: A systematic review. 痴呆症患者获得和参与基于艺术的非药物干预措施的障碍和促进因素:系统综述。
IF 2.2
Dementia (London, England) Pub Date : 2026-05-01 Epub Date: 2025-04-12 DOI: 10.1177/14713012251333017
Megan Polden, Megan Rose Readman, Tahlia Barnard, Abigail Godfrey, Annabel Gray, Clarissa Giebel
{"title":"Barriers and facilitators to accessing and engaging with arts-based non-pharmacological interventions for people living with dementia: A systematic review.","authors":"Megan Polden, Megan Rose Readman, Tahlia Barnard, Abigail Godfrey, Annabel Gray, Clarissa Giebel","doi":"10.1177/14713012251333017","DOIUrl":"10.1177/14713012251333017","url":null,"abstract":"<p><p>Background and AimsNon-pharmacological arts interventions are increasingly being recognised as effective and beneficial ways to support and improve cognition and general well-being for people with dementia. However, accessing and engaging with beneficial arts interventions and support services can be challenging for people with dementia and their carers and it is important to understand barriers and facilitators that may impede access. This systematic review aimed to synthesise evidence on the barriers and facilitators to accessing and engaging with arts interventions and services for people living with dementia.MethodsWe systematically searched five electronic databases (PubMed, PsycINFO, CINAHL, Scopus, Web of Science) for studies reporting barriers and facilitators to accessing and engaging with arts interventions for people with dementia in July 2024, screening a total of 7815 articles. Nineteen papers were deemed eligible for inclusion in this review including 567 people with dementia, 320 unpaid carers and 355 paid carers.ResultsThis review highlights key facilitators and barriers to accessing and engaging with arts interventions for people with dementia. Key facilitators included the assistance of volunteers, the inclusion of unpaid carers in the sessions, and the effective facilitation of sessions. Barriers to access and engagement were identified for people with dementia and their unpaid carers such as increased reliance on unpaid carers and a lack of training and time for paid carers.ConclusionsIncreased awareness of these barriers and facilitators could aid in designing future arts interventions and support services to promote wider access and engagement for people with dementia and their carers.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"861-882"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13061310/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143993670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Touch-Based Therapies in Dementia Care: A Systematic Review and Narrative Synthesis. 基于触摸的痴呆治疗:系统回顾和叙事综合。
IF 2.2
Dementia (London, England) Pub Date : 2026-04-30 DOI: 10.1177/14713012261445473
Bryan Mitchell, Eileen Harkess-Murphy, Nicola Douglas-Smith, Joshua Cheyne
{"title":"Touch-Based Therapies in Dementia Care: A Systematic Review and Narrative Synthesis.","authors":"Bryan Mitchell, Eileen Harkess-Murphy, Nicola Douglas-Smith, Joshua Cheyne","doi":"10.1177/14713012261445473","DOIUrl":"https://doi.org/10.1177/14713012261445473","url":null,"abstract":"<p><p>Touch-based therapies (massage, acupressure, reflexology/shiatsu, and therapeutic/healing touch) are used in dementia care, but effectiveness remains uncertain. The authors evaluated their impact on behavioural and psychological symptoms of dementia (BPSD) and pain, and extracted pragmatic \"dose\" and delivery parameters to inform a research blueprint. The authors searched major databases (MEDLINE, CINAHL, PsycINFO, Embase, CENTRAL) for studies from January 2005 to February 2023 involving people with any dementia aetiology/severity in community, residential, or inpatient settings. Eligible designs included randomised, quasi-experimental, and pre-post studies with a comparator (usual care, attention/quiet presence, or sham/light-touch). Data were extracted to a prespecified template; study quality was appraised using CASP tools. Owing to substantial clinical and methodological heterogeneity, the authors conducted a structured narrative synthesis as opposed to meta-analysis. Thirty-three studies met inclusion: 21 massage, 8 acupressure, 3 therapeutic/healing touch, and 2 reflexology/shiatsu. Most were in long-term care or inpatient settings. Interventions typically used brief, repeated sessions (5-20 minutes, several times per week for 2-6 weeks). The most consistent finding was short-term calming, particularly reductions in agitation immediately post-session or over brief treatment courses, with the clearest pattern for massage and acupressure. Effects on broader neuropsychiatric symptoms (e.g., NPI/NPI-NH domains) and pain were mixed. Where monitored, no serious adverse events were reported; minor transient issues (e.g., brief restlessness, skin sensitivity with aromatherapy oils) were infrequent and acceptability generally high. Risk of bias was mixed (≈49% low, 42% moderate, 9% high), and durability beyond 4-8 weeks was rarely assessed. Current evidence provides preliminary indications that brief, touch-based therapies may offer short-term calming effects when used alongside person-centred care, although certainty remains low and findings should be interpreted cautiously. The authors propose a pragmatic research blueprint that predefines session length, frequency, and course duration; uses attention/sham controls; adopts core outcomes (e.g., Cohen Mansfield Agitation Inventory (CMAI), Neuropsychiatric Inventory/Neuropsychiatric Inventory adapted for Nursing Homes (NPI/NPI-NH); Pain Assessment in Advanced Dementia (PAINAD) where relevant); ensures blinded assessment; and extends follow-up. The authors recommend that future work should prioritise feasibility/pilot studies, followed by adequately powered trials to determine effectiveness, durability, and scalability for practice.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261445473"},"PeriodicalIF":2.2,"publicationDate":"2026-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147824274","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family Perspectives on Freedom of Movement for Nursing Home Residents With Dementia: A Qualitative Study. 家庭视角对老年痴呆症患者行动自由的影响:一项定性研究。
IF 2.2
Dementia (London, England) Pub Date : 2026-04-24 DOI: 10.1177/14713012261448306
Suzan van Liempd, Sascha Bolt, Annerieke Stoop, Katrien Luijkx
{"title":"Family Perspectives on Freedom of Movement for Nursing Home Residents With Dementia: A Qualitative Study.","authors":"Suzan van Liempd, Sascha Bolt, Annerieke Stoop, Katrien Luijkx","doi":"10.1177/14713012261448306","DOIUrl":"https://doi.org/10.1177/14713012261448306","url":null,"abstract":"<p><p>Freedom of movement for people with dementia has received increasing attention in recent years, particularly in nursing homes. Nursing home residents' families play an important role in supporting their freedom of movement. Therefore, this qualitative study examines how families interpret and experience the freedom of movement of nursing home residents with dementia. Exploratory in-depth interviews were held with 13 family members of nursing home residents living with dementia. Data were analyzed thematically, starting with open coding and iterative refinement of codes. These codes led to the formulation of subthemes, which were clustered into five central themes: physical environments that support or hinder freedom, freedom is embedded in social contexts, value tensions in shaping perspectives on freedom, navigating unclear roles and responsibilities, and strategies for limited outdoor access. These central themes showed how family members interpret and experience freedom of movement in nursing homes for people with dementia. The findings underscore the complex and multifaceted nature of freedom of movement as families see it. Importantly, they suggest that nursing homes should actively involve families in shared decision-making and daily practices that balance freedom and safety to better support the quality of life of residents with dementia.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261448306"},"PeriodicalIF":2.2,"publicationDate":"2026-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147790848","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Professional Perspectives on Supporting People With Dementia Who Live Alone and Have No Informal Support: A Qualitative Study. 支持独居无非正式支持的痴呆症患者的专业视角:一项定性研究。
IF 2.2
Dementia (London, England) Pub Date : 2026-04-18 DOI: 10.1177/14713012261446004
Claudio Di Lorito, Fiona Aspinal
{"title":"Professional Perspectives on Supporting People With Dementia Who Live Alone and Have No Informal Support: A Qualitative Study.","authors":"Claudio Di Lorito, Fiona Aspinal","doi":"10.1177/14713012261446004","DOIUrl":"https://doi.org/10.1177/14713012261446004","url":null,"abstract":"<p><p>People with dementia can live alone successfully even when they do not have support from family or friends. This requires professionals to be able to provide timely and effective support. This study aims to identify professional perspectives on the challenges and strategies in supporting people with dementia who live alone and have no informal support. Semi-structured qualitative interviews were conducted with twenty-two professionals working in dementia-related roles across various sectors in England. Interviews were analysed using Reflexive Thematic Analysis. Themes were finalised through support of the study advisory team, including people with lived experience of dementia. Six themes were identified, reflecting stages of the 'dementia care pathway', from identification of patients to discharge. Professionals reported experiencing barriers around identifying clients, communicating with them, gathering information, engaging with them, managing risks, and setting up continuity of care. They shared strategies for each of these challenges. This study identified some key strategies that a variety of professionals can deploy to promote access and use of services for an especially vulnerable population to be able to live independently for as long as possible. These strategies would need to be embedded and consistently implemented across different sectors. This would ensure that people are identified and supported in a timely fashion and could, in turn, prevent more costly long-term care and contribute to cost-containment.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261446004"},"PeriodicalIF":2.2,"publicationDate":"2026-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147719160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Improving Communication in Dementia Care: Impact of an Undergraduate Unit on Knowledge, Confidence, and Practice. 改善痴呆症护理中的沟通:本科单元对知识、信心和实践的影响。
IF 2.2
Dementia (London, England) Pub Date : 2026-04-17 DOI: 10.1177/14713012261444241
Hoang Nguyen, Sunny Jang, Kathleen Doherty, Lynette R Goldberg, Claire Eccleston
{"title":"Improving Communication in Dementia Care: Impact of an Undergraduate Unit on Knowledge, Confidence, and Practice.","authors":"Hoang Nguyen, Sunny Jang, Kathleen Doherty, Lynette R Goldberg, Claire Eccleston","doi":"10.1177/14713012261444241","DOIUrl":"https://doi.org/10.1177/14713012261444241","url":null,"abstract":"<p><p>Dementia is a progressive condition that can affect memory, thinking and communication in different ways. As a person's communication patterns and needs change over time, care partners may need to adapt their approaches to continue supporting meaningful interactions and connection. Education to enhance the confidence and competence of care partners is therefore essential. This study evaluated an online first-year university unit designed to improve communication knowledge and skills in the context of dementia care. Using a pre-post survey design, the study integrated quantitative and qualitative data to assess changes in participants' self-rated communication knowledge and confidence, as well as perceived impacts on practice. Quantitative measures revealed significant improvements in all assessed domains, with <i>p</i>-values <.001 and effect sizes ranging from moderate to very large (Glass's Δ = 0.57-1.51). Qualitative findings supported these outcomes, with participants reporting enhanced communication practices, more person-centred care approaches, and greater knowledge sharing. These results highlight the value of targeted, dementia-specific education in fostering meaningful changes in communication and care delivery. The study also outlines practical implications for research and practice.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261444241"},"PeriodicalIF":2.2,"publicationDate":"2026-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147719141","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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