Dementia (London, England)最新文献

{"title":"\"Understanding dementia together\": The design, delivery and evaluation of a collaborative, inter-professional dementia workshop for healthcare students.","authors":"Trish O'Sullivan, Niamh Moore, Joseph G McVeigh, Suzanne Timmons, Tony Foley","doi":"10.1177/14713012241296173","DOIUrl":"10.1177/14713012241296173","url":null,"abstract":"<p><p>BackgroundA collaborative, multi-disciplinary team input is crucial for the optimal management of the older adult with complex care needs such as dementia. Interprofessional learning (IPL) at undergraduate level can lead to improved collaborative knowledge and skills. The aim of this study was to develop, deliver and evaluate an IPL dementia workshop for healthcare students across 11 disciplines. A secondary aim was to determine whether there is a clinical application of learned knowledge in students who completed the workshop and subsequently underwent clinical placement.MethodsThe design of the IPL workshop aligned with Kern's map for the development of a curriculum in medical education. The Alzheimer's Disease Knowledge Scale (ADKS) was used to assess students' knowledge of dementia pre-and-post workshop, as well as opened-ended questions on role recognition and communication.ResultsA total of 102 students completed the workshop questionnaire, with a follow up of 47 students on clinical placement. There was a statistically significant increase in students' knowledge and confidence levels in communication with a person with dementia. Students reported positively on the workshop format, the collaborative nature of the workshop, as well as the role of the patient advocate. The follow up of students on clinical placement showed a perceived behavioural change in communication modification.ConclusionOur study demonstrates the benefits of an IPL initiative across multiple disciplines, with perceived behavioural change on clinical placement.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"720-737"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11997285/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142549303","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Home-based end-of-life care for people with dementia: A systematic review of quantitative and qualitative evidence.","authors":"Guo Yin, Leah Macaden, Divya Sivaramakrishnan, Yajing Wang, Lian Zhu, Huimin Chong","doi":"10.1177/14713012241308625","DOIUrl":"10.1177/14713012241308625","url":null,"abstract":"<p><p><b>Background:</b> Integrating home-based end-of-life care for people with dementia will become increasingly important as the population ages. Therefore, it is timely and necessary to evaluate the evidence of home-based end-of-life care for people living with dementia. <b>Aim:</b> This review aims to identify the characteristics of home-based end-of-life care interventions for people living with dementia and review the existing evidence on implementation outcomes. <b>Design:</b> Systematic Review and Narrative Synthesis. The Mixed Methods Appraisal Tool was used to assess study quality. <b>Data sources:</b> A comprehensive search was conducted across five databases (PubMed, Web of Science, MEDLINE CINAHL and Scopus) from June to August 2023, and the citations to the included studies were tracked through citation tracking in Google Scholar to identify potentially relevant studies. <b>Results:</b> Of the 2022 articles retrieved, 12 were included in this review. The included studies were geographically diverse, with four from the United States, three from Singapore, two from the United Kingdom, and one each from the Netherlands, Belgium, and Israel. Additionally, due to the difference of focus and nature of the studies, only seven of these studies provided information on home-based end-of-life care interventions for people living with dementia. The interventions identified in this review align closely with the essential components of optimal palliative care for dementia outlined in the European Association for Palliative Care white paper. However, the evidence supporting these home-based end-of-life care interventions for people living with dementia is constrained by the number of studies and methodological limitations. Nevertheless, this systematic review still identifies some evidence supporting home-based end-of-life care for people living with dementia, including reduced healthcare utilization and costs, as well as help people living with dementia realize their wish to die at home. <b>Conclusions:</b> Whilst current evidence highlights benefits of home-based end-of-life care for people living with dementia, the relatively limited number, methodology of studies, the heterogeneity of study focus and outcome measures hinder the formation of definitive conclusions. Therefore, further research is needed to develop and evaluate home end-of-life care services for people living with dementia.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"794-831"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11997294/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142831135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"I forgot she used to make chocolate cake\": Digital storytelling supporting person-focussed dementia care: A qualitative thematic analysis.","authors":"Stephanie Munk, Rhiannon Toohey, Aliaa Remtilla, Nathan M D'Cunha, Diane Gibson, Stephen Isbel, Aisling Smyth, Kasia Bail","doi":"10.1177/14713012251317761","DOIUrl":"10.1177/14713012251317761","url":null,"abstract":"<p><p>Reminiscence is a meaningful activity for people with dementia, but research implementing digital reminiscence tools into environments with older people is not well developed. This project sought to understand the effectiveness of a digital reminiscence tool in aiding person-centred dementia care with people attending a day respite centre and a group residential home, in metropolitan eastern Australia. This study used semi-structured interviews and ethnographic observations using a qualitative reflexive thematic analysis with seventeen participants including people with dementia (<i>n</i> = 8), their loved ones (<i>n</i> = 5) and staff <i>n</i> = 4) Themes identified were: 1. Remembering myself; 2. Reminiscing the person before and with dementia; 3. Enhanced relationships through self-expression; 4. Person-centred adaptation and the art of the interview; and 5. Future potential. Findings indicate that the StoryTiling app was user-friendly, supported reminiscence activities and enhanced person-centred care. The reminiscence activity enhanced relationships between participants, families, and carers, facilitating a deeper knowing of the person with dementia. The activities supported positive memories and emotions and helped reinforce the identity of the person with dementia in both their own mind, and their loved ones. The information captured in the StoryTiling process enabled person-centred care in improving the ability to know a person and being able to relate and respond to their individual needs, wants and goals. The process was dependent on the 'art of the question' and the 'art of the interview', particularly by people who know the person with dementia and are trauma-informed in order to effectively progress interviews and utilise them within the care environment. Enabling nudge activities that promote person-centred engagement such as reminiscence through digital storytelling may help foster person-centred care in the aged care sector.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"666-696"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11997289/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating who I was and who I am online: How people with dementia use social media platforms to support identity.","authors":"Catherine V Talbot, Daisy Roe, Melissa Brunner","doi":"10.1177/14713012241292659","DOIUrl":"10.1177/14713012241292659","url":null,"abstract":"<p><p>A diagnosis of dementia can have a powerful impact on identity, and social media platforms offer promising avenues for identity expression and reconciliation. Addressing limited research in this area, we used semi-structured interviews to explore how 10 people with dementia used social media to navigate their identity. Our thematic analysis produced four themes, showing how social media platforms afford unique opportunities for self-expression, visibility, and association, thereby empowering users to maintain their sense of self, challenge stereotypes, and foster community connections. Additionally, social media facilitated a multifaceted and holistic sense of identity beyond the confines of diagnosis. While there were concerns about online self-disclosure, sharing experiences of dementia had therapeutic benefits, aiding in acceptance and adjustment. Participants also leveraged social media to establish continuity between their pre- and post-diagnostic selves, providing a sense of stability amid uncertainty. With the increasing prevalence of social media use among people with dementia, proactive measures by healthcare professionals, policymakers, technology developers, and carers are required to cultivate online experiences that are safe, supportive, and inclusive of people with dementia.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"647-665"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11997291/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142407306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effect of choir-singing on self-reported embodied cognition in persons with dementia. A pilot study.","authors":"Hanne Mette Ridder, Jens Anderson-Ingstrup, Lukas Ochsner Ridder","doi":"10.1177/14713012241272910","DOIUrl":"10.1177/14713012241272910","url":null,"abstract":"<p><p>With an understanding of dementia through the lens of embodied cognition and a musical sense of the dynamics of the body, a fundamental continuity of personhood is possible. With music and singing, body and mind are positively affected for persons with dementia, and with promising evidence on emotional wellbeing during choir-singing. Based on this, we carried out a pilot-study to explore the effect of choir-singing on self-reported embodied cognition in persons with dementia. As part of a Danish TV documentary on choir-singing, 17 participants with a mean age of 71 years took part in choir rehearsals and a concert. The majority of the participants had moderate/severe dementia, and 29% mild dementia. Altogether 164 self-report forms were analysed and showed a highly significant increase in embodied cognition from before to after choir-singing. The results provide initial evidence that choir-singing for persons with dementia positively influence the participants' self-reported embodied cognition. Further, the positive effect seemed to increase in line with increasing level of dementia. The 8-item Embodied Cognition in Dementia Assessment Scales (EmDAS) showed good internal reliability and promising properties for evaluating the effect of embodied cognition. For future research, controlled trials with larger samples are needed to provide evidence of choir-singing for persons in various stages of dementia.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"631-646"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141972394","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of African American caregivers providing care for family living with Alzheimer's disease: A descriptive phenomenological study.","authors":"LaGaryion Carson, Judith McFarlane","doi":"10.1177/14713012241272849","DOIUrl":"10.1177/14713012241272849","url":null,"abstract":"<p><p>This study aimed to describe how African American family caregivers of people living with Alzheimer's disease manage caregiving. A qualitative study design using a descriptive phenomenological approach was used to understand the lived experiences of African American family caregivers. Fifteen individual semi-structured and in-depth interviews were conducted via telephone or videoconference between January and June 2023 to address the research question. Guided by Swanson's theory of caring, the data transcribed verbatim from the audio-recorded interviews were analyzed using Colaizzi's methodology. Eight themes emerged from the data: (a) Parenting all over again, (b) Self-sacrifice, (c) Caring for the caregiver, (d) Connecting to God, (e) Responsibility to care, (f) Trapped, (g) Beyond exhaustion, and (h) Loss of self. The findings of the study indicate that African American family caregivers of people living with Alzheimer's disease often experience physical, mental, and emotional exhaustion while managing care. Thus, there is a considerable need for greater support, health promotion, and development of appropriate interventions to alleviate the challenges experienced so that they can continue in their caregiving role with some respite.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"597-610"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141977353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cultural adaptations of the WHO iSupport for dementia: A scoping review.","authors":"Tara P Sani, Gary Cheung, Kathy Peri, Susan Yates, Ngaire Kerse, Hēmi Whaanga, Sarah Cullum","doi":"10.1177/14713012241283860","DOIUrl":"10.1177/14713012241283860","url":null,"abstract":"<p><p>IntroductionThe World Health Organisation (WHO) has developed iSupport for Dementia, a self-paced online training programme for caregivers of people with dementia which is adaptable to different cultural contexts. This scoping review aims to understand the iSupport adaptation process in different countries and provide recommendations for future adaptations.MethodsA systematic search was done in electronic databases such as Pubmed, MEDLINE, APA PsycINFO, and EMBASE to obtain relevant publications up to 18 February 2024. Only full-text publications describing iSupport cultural adaptation process were included. The publications obtained were reviewed using the Cultural Adaptation Process framework.ResultsThirteen publications from ten studies were eligible for inclusion. Based on the Cultural Adaptation Process framework, the steps undertaken in the studies were grouped into: (i) setting the stage, (ii) initial adaptation, and (iii) adaptation iterations. The three significant players in this process are the intervention developer (researchers), the cultural adaptation specialist (researchers, caregivers, and dementia care professionals), and the target community (caregivers). In the publications reviewed, cultural adaptation was mostly undertaken using a co-design process between researchers, caregivers, and dementia care professionals deciding on necessary modifications.ConclusioniSupport for Dementia is a versatile programme to support caregivers and is readily available for adaptation to different cultural settings. It is essential to engage caregivers early in co-designing its cultural adaptations to ensure their needs can be met by this online tool.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"767-793"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11997287/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142376333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effects of singing interventions on quality of life, mood and levels of agitation in community-dwelling people living with dementia: A quantitative systematic review.","authors":"Megan Polden, Thomas Faulkner, Carol Holland, Kerry Hanna, Kym Ward, Faraz Ahmed, Heather Brown, Hazel Barrow, Jeanette Main, Stella Mann, Steve Pendrill, Clarissa Giebel","doi":"10.1177/14713012241273837","DOIUrl":"10.1177/14713012241273837","url":null,"abstract":"<p><p><b>Background and Aims:</b> Music-based interventions have been found to benefit people living with dementia and have positive impacts on cognition and well-being. Most people with dementia live in the community and compared to people with dementia in residential care often have less access to music-based interventions. There are many forms of music interventions and singing has shown particular promise; in the realm of music interventions. It is important to determine what aspects of music interventions yield the most benefits for people with dementia. This review aimed to synthesise evidence on the impacts of singing interventions on quality of life, mood and neuropsychiatric symptoms for community-dwelling people with dementia. <b>Methods:</b> We systematically searched three electronic databases (PsycINFO, MEDLINE and Web of Science) for studies reporting on singing interventions with community-dwelling people with dementia. Studies were eligible for inclusion if they reported on a singing intervention with people living with dementia that included an outcome measure of quality of life, mood or agitation. Fourteen publications were identified and included in this review, with a total of <i>n</i> = 361 people with dementia. <b>Results:</b> Despite some inconsistencies across the literature, evidence suggests that singing interventions led to an improvement in mood and a reduction in agitation levels in people living with dementia. There was no strong evidence to suggest that singing interventions led to significant improvements in quality of life. <b>Conclusions:</b> This review highlights the potential of singing interventions as an effective psychosocial intervention for community-dwelling people with dementia. For key developments in this area, we urge that future studies include a control group where possible which will allow for more robust examinations of singing interventions and allow intervention effects to be distinguished from general deterioration in dementia symptoms over time.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"738-766"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11997293/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The care experience of people with diagnosed or suspected dementia living in prison: A case study approach.","authors":"Rhoda MacRae, Natalie Chalmers, Debbie Tolson, James Taylor, Kirstin Anderson, Lindsay Thomson, Tom Russ","doi":"10.1177/14713012251338873","DOIUrl":"https://doi.org/10.1177/14713012251338873","url":null,"abstract":"<p><p>Complex health and social care needs of people living in prison with diagnosed or suspected dementia is a growing concern for prisons and prison healthcare staff. The literature is replete with recommendations to better understand the health and social needs of this vulnerable population, to move beyond speculation towards actions to improve their health and well-being. Despite this, there is scant literature exploring the lived care experience of individuals being assessed for or diagnosed with dementia in prisons. The aim of this multi method qualitative study was to investigate how those with suspected dementia were identified, assessed and cared for in Scottish prisons. This article presents case study data from one phase of the larger study. Case studies were constructed from five semi-structured interviews with men with a diagnosed (<i>n</i> = 1) or suspected dementia (<i>n</i> = 4), four semi-structured interviews with staff the men nominated and data from the men's health care records. The five men had multiple co-morbidities, three had significant mobility issues, two were in receipt of personal care and accommodated in accessible cells. Four of the five men exemplified previous descriptions of older prisoners in that they were socially and physically isolated, and reliant on support with everyday activities. A 'case by case' approach to referral, assessment and post diagnostic support was taken by staff who reported a complexity associated with meeting healthcare needs and access to specialist services and supports within a prison regime. This research provides unique and hither to seldom explored insight into the lived care experience of men living with a diagnosed or suspected dementia in prison. The findings have implications for how this marginalised vulnerable group are cared for in prison and on release.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251338873"},"PeriodicalIF":0.0,"publicationDate":"2025-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144054413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Efficacy and impact of spousal support groups in enhancing the well-being of caring in early onset dementia: Lessons learned from the ACE Alzheimer center Barcelona.","authors":"Pilar Cañabate, Itziar de Rojas, Guitart Marina, Mariola Moreno, Silvia Preckler, Susanna Seguer, Gabriel Martínez, America Morera, Maitee Rosende-Roca, Franco Emanuel Appiani, Juan Pablo Tartari, Liliana Vargas, Mario Ricciardi, Diana Maria Ariton Smera, Gemma Ortega, Angela Sanabria, Ana Espinosa, Alba Pérez-Cordón, Natalia Muñoz, Nuria Lleonart, Sergi Valero, Montserrat Alegret, Vanesa Pytel, Anna Riera, Agustín Ruiz, Miren Jone Gurrutxaga, Lluís Tárraga, Marta Marquié, Yahveth Cantero-Fortiz, Mercè Boada","doi":"10.1177/14713012251339364","DOIUrl":"https://doi.org/10.1177/14713012251339364","url":null,"abstract":"<p><p><b>Background:</b> The group intervention aimed at caregivers of persons with dementia is regarded as an effective tool for support and education. However, these groups do not specifically cater to caregivers of individuals with spouses affected by young-onset dementia. <b>Objective:</b> To assess the effectiveness of a support and training group specifically targeted towards spouses of individuals with young onset dementia and its impact on reducing caregiver burden. <b>Participants and Methods:</b> Participants were recruited from a single memory clinic in Catalonia, Spain. The Zarit Burden Interview (ZBI) was utilized to evaluate caregiver burden both before and after participation in the support groups and a combined quantitative and qualitative analysis approach was employed. <b>Results:</b> A total of 77 caregivers were included and assessed, comprising 45.5% females with a mean age of 55 years and 54.5% males with a mean age of 63 years. While the overall caregiver burden, as measured by the ZBI, did not exhibit a significant reduction following participation in the group sessions, a notable decrease in ZBI scores was observed among caregivers with the highest burden at baseline. Three key stages were identified throughout the sessions: (1) discussions pertaining to the type of dementia and its associated changes; (2) the provision of care and attention to spouses along with the exchange of information among participants; and (3) identification of caregivers' needs. <b>Conclusions:</b> The subgroup of caregivers of persons with young onset dementia who exhibited the highest burden at baseline derived the greatest benefit from the support groups. Various qualitative indicators.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251339364"},"PeriodicalIF":0.0,"publicationDate":"2025-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144013004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}