Dementia (London, England)最新文献

{"title":"Black Muslim Perspectives on Dementia in the UK: A Narrative Inquiry Into Perceptions, Causes, and Prevention.","authors":"Sanda Umar Ismail, Koser Khan, Heather Brown, Faraz Ahmed, Carol Holland","doi":"10.1177/14713012261450703","DOIUrl":"https://doi.org/10.1177/14713012261450703","url":null,"abstract":"<p><p>Dementia poses a threat to public health, especially among ethnically diverse Muslim communities in the UK, with quite some peculiar nuances. Within these communities, Black Muslims in the UK face unique risks shaped by complex ethnic, religious, and socioeconomic factors. However, there is a dearth of research that specifically explores perspectives on dementia in this population. The aim of this study was to explore and understand the perspectives of Black Muslims in the UK regarding the causes and prevention of dementia using a qualitative narrative inquiry approach guided by Intersectionality Theory and the Sociocultural Health Belief Model. The study involved 15 Black Muslims (8 women, 7 men), aged between 30 and 69 years, residing across the UK, with diverse roles including actively engaged community members (n = 6), religious figures (n = 3), and caregivers (n = 2). Data were collected through semi-structured interviews conducted virtually via Microsoft Teams. Thematic analysis was performed using an iterative approach with NVivo 14 software. The analysis yielded five major themes: (1) low awareness, misconceptions and stigma surrounding dementia; (2) faith-based health beliefs as protective factors; (3) stress, loneliness, and socioeconomic pressures as risk factors; (4) religious ideals, healthy lifestyles, and everyday realities; and (5) need for culturally tailored dementia education and engagement. Participants highlighted gaps between Islamic health principles, such as the encouragement of physical activity and their everyday practices, influenced by structural barriers. Black Muslims hold nuanced beliefs about dementia, shaped by cultural, religious, and socio-environmental factors such as stigma, limited awareness and socioeconomic pressures. These dynamics influence how dementia is understood and the extent to which preventive behaviours are adopted. Promoting dementia prevention in these communities requires culturally sensitive interventions that align with religious teachings, supported by policy changes that invest in community education and embed culturally and faith-informed approaches within public health strategies.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261450703"},"PeriodicalIF":2.2,"publicationDate":"2026-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147857285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Animal-Assisted Interventions for Dementia in the Outpatient Clinic Setting: A Feasibility Study.","authors":"Jennifer R Babka, Erin L Robinson, Gretchen K Carlisle, Alisha H Johnson, Kari R Lane","doi":"10.1177/14713012261451007","DOIUrl":"https://doi.org/10.1177/14713012261451007","url":null,"abstract":"<p><p>Behavioral and psychological symptoms of dementia are prevalent; however, there are no current interventions to manage these symptoms in the outpatient clinic setting. Animal-assisted interventions (AAI) have shown to be acceptable, non-pharmacological methods for symptom management in the clinic setting in other populations but have not been researched in dementia. This mixed-methods study investigated the feasibility and acceptability of an AAI for persons with dementia in the outpatient clinic setting. Data were collected from three groups of participants: (1) persons with dementia; (2) caregivers; and (3) health care providers. Ten persons with dementia engaged in an AAI, interacting with a therapy dog for at least 10 minutes before their appointment with a health care provider in a memory clinic. Persons with dementia and their caregivers completed follow-up Likert scale surveys and semi-structured telephone interviews; health care providers also completed follow-up Likert scale surveys. Telephone interviews were transcribed, and data were analyzed using qualitative thematic analysis. Descriptive results indicated that persons with dementia felt comfortable (100%) and happy (88.9%) interacting with therapy dogs. Caregivers also felt comfortable (100%) with the persons with dementia interacting with the therapy dog and reported that the interaction made the persons with dementia happy (90%). Neither persons with dementia, caregivers, nor health care providers reported the interaction as burdensome (100%). Four themes emerged from the qualitative thematic analysis: (1) baseline behaviors and feelings, (2) feelings towards opportunity, (3) positive interaction with dogs, and (4) positive overall experience at doctor appointments. Recruitment strategies were shown to be feasible, and the intervention was deemed safe. Conclusively, this study showed an AAI to be feasible and acceptable in the outpatient clinic setting for persons with dementia. Further research is required to determine the effects of an AAI on behavioral and psychological symptoms of dementia in the outpatient clinic setting.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261451007"},"PeriodicalIF":2.2,"publicationDate":"2026-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147846588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What Non-Professional Community Members From Minority Groups in Israel Think About Alzheimer's Disease: A Comparative Perspective.","authors":"Natalie Ulitsa, Perla Werner, Hanan AboJabel, Shelly Endgau, Ibtisam Marey-Sarwan","doi":"10.1177/14713012261449850","DOIUrl":"https://doi.org/10.1177/14713012261449850","url":null,"abstract":"<p><p>Alzheimer's disease (AD) is the most common cause of dementia worldwide, yet awareness, diagnosis-seeking, and caregiving practices are strongly shaped by cultural and social contexts. Minority groups often face compounded barriers due to stigma, limited knowledge, and systemic inequalities. In Israel, a multicultural society, little is known about how non-professional community members from different minority groups perceive AD, seek diagnosis, and conceptualize appropriate care. We conducted a qualitative comparative study using six focus groups with 43 non-professional community members from three minority groups in Israel: Israeli Arabs (n = 14), immigrants from the Former Soviet Union (FSU; n = 15), and Ethiopia (n = 14). Discussions were conducted in Arabic, Russian, and Hebrew, audio-recorded, transcribed, and analyzed thematically. Three overarching themes emerged across groups: (1) Stigma: across all groups, participants demonstrated limited knowledge and misconceptions about AD, accompanied by stigmatizing stereotypes, fear, and behavioral responses such as social distancing, with variations in how stigma was expressed; (2) Diagnosis-seeking patterns: Participants from Arab community and Ethiopian descent reported delayed help-seeking linked to low awareness, stigma, and cultural or spiritual interpretations, whereas FSU participants more often emphasized consulting physicians, despite ongoing confusion between normal aging and AD; (3) Care preferences: Participants from Arab community and Ethiopian descent strongly preferred family-based home care, reflecting cultural and religious obligations, whereas FSU immigrants expressed greater support for institutional care, shaped by medicalized perceptions of dementia, their older age profile, and smaller family caregiving networks. The findings highlight both shared and culturally specific perceptions of AD among minority groups in Israel and demonstrate how stigma, diagnosis-seeking, and care preferences are closely interconnected. These insights underscore the need for culturally responsive public education, stigma-sensitive communication in primary care, and efforts to support earlier recognition and engagement with diagnostic services that account for diverse understandings of aging and dementia. At the system level, the findings point to the importance of targeted community outreach, culturally adapted information and interpretation services, and flexible care arrangements that better align formal dementia services with family-based caregiving norms across minority communities.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261449850"},"PeriodicalIF":2.2,"publicationDate":"2026-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147846759","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Caregiving as Work: A Qualitative Study of Dementia Caregiving Among Mexican American Families Using SEIPS 3.0.","authors":"Laura Tovar, Juliana Guevara Mendoza, Aditi Kaushal, Maria G Llamas, Priyadarshini Pennathur, Arunkumar Pennathur","doi":"10.1177/14713012261449855","DOIUrl":"https://doi.org/10.1177/14713012261449855","url":null,"abstract":"<p><p><b>Background:</b> Informal dementia caregiving constitutes a substantial yet underrecognized form of work that places significant demands on family caregivers. Mexican American families, who experience disproportionate dementia burden and structural barriers to care, often rely on intensive family-based caregiving. While prior research has examined cultural values, stigma, and resource barriers separately, less attention has been paid to how these factors interact within a work system to shape caregiver burden. <b>Objective:</b> We characterized informal dementia caregiving among Mexican American families as work performed within a sociotechnical system, and examined how work system components interact to shape caregiver outcomes using the Systems Engineering Initiative for Patient Safety (SEIPS) 3.0 framework. <b>Methods:</b> We conducted semi-structured interviews with 15 Mexican American dementia caregivers in a U.S.-Mexico border community. Using constructivist grounded theory, we analyzed informal caregiving as work embedded within everyday contexts through the SEIPS 3.0 lens. Analysis examined interactions among person characteristics, caregiving tasks, organizational supports, tools and resources, and the broader cultural and linguistic environment. <b>Findings</b>: Caregiving labor was sustained by strong cultural commitment but its structure limited delegation and support access. Cultural beliefs framing care as a non-delegable family responsibility, stigma inhibiting disclosure, demanding physical and emotional labor, language barriers restricting organizational access, and uneven distribution of care within families collectively imposed burden on individual family members, most often daughters or wives. Caregivers actively sought information and resources, yet system-level barriers constrained utilization. These interacting conditions produced predictable outcomes: exhaustion, declining health, and burnout. <b>Conclusions:</b> Viewing dementia caregiving as work clarifies why relationally meaningful care becomes unsustainable without supportive systems. Caregiver burden emerges from interactions within the caregiving work system rather than isolated cultural or individual factors. This perspective highlights stigma reduction and language-concordant services as key intervention leverage points through system-level approaches that sustain family caregiving without relying on individual endurance.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012261449855"},"PeriodicalIF":2.2,"publicationDate":"2026-05-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147846798","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Communication Strategies Used in Primary Progressive Aphasia: A Scoping Review.","authors":"Inês Cadório, Daniela Vieira","doi":"10.1177/14713012251356588","DOIUrl":"10.1177/14713012251356588","url":null,"abstract":"<p><p>Primary progressive aphasia describes a group of language-led dementias that affects an individual's ability to speak, comprehend, read and write. While post-stroke aphasia has been the subject of extensive research, particularly in the domain of communication strategies, the same level of research interest has not been observed in PPA. This is indicative of a significant knowledge gap regarding effective communication strategies in PPA. The present review aims to outline the current research evidence related to the range of communication strategies employed within PPA individuals and their effectiveness. A series of studies were considered, encompassing patients diagnosed with PPA, their spouses and/or other communication partners, provided that data on the utilization and training of communication strategies was addressed. A total of 26 non-experimental and experimental studies met the inclusion criteria. Communication strategies retrieved varied from verbal, to non-verbal, environmental modification strategies and partner adaptation strategies. The findings demonstrate that assistive augmented communication strategies have a positive impact on communication interactions. Furthermore, the multiple use of different modalities ensures the optimal conveyance of messages. Consequently, the degree of independence exhibited by the subjects increases, as does their overall quality of life.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"899-924"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13062470/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144602428","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health Impacts of Nonpharmacologic Interventions Among People Living With Dementia: A Systematic Review and Network Meta-Analysis.","authors":"Yi-Hua Chang, Su-Fei Huang, Huei-Ru Yang, Jung-Yu Liao","doi":"10.1177/14713012251367079","DOIUrl":"10.1177/14713012251367079","url":null,"abstract":"<p><p><b>Background:</b> The study compares the health impacts of various nonpharmacologic interventions on cognitive function, daily functioning, depression, and quality of life among people living with dementia. <b>Methods:</b> A comprehensive search was conducted across three databases-PubMed, Airiti Library, and Scopus-to identify eligible randomized controlled trials published in English or Chinese within the past decade, up to December 2023. This study included a systematic review and a network meta-analysis focusing on various health outcomes. <b>Results:</b> Analysis encompassed 26 studies with a total of 3,403 people living with dementia. Interventions that significantly influencing cognitive function included aerobic exercise combined with resistance exercise (SMD = 1.53, 95% CI: 1.13-1.93), resistance exercise alone (SMD = 1.53, 95% CI: 1.12-1.93), and reminiscence therapy (SMD = 1.25, 95% CI: 0.70-1.80). Resistance exercise had the greatest impact on daily functioning (SMD = 0.95, 95% CI: 0.57-1.33), while reminiscence therapy (SMD = 0.65, 95% CI: 0.20-1.10) and music therapy (SMD = 0.56, 95% CI: 0.31 - 0.81) had the most significant effect on depression. A significant effect on quality of life was not found in this study. <b>Conclusions:</b> Resistance exercise, multicomponent exercise incorporating resistance training, and reminiscence therapy as well as music therapy were found to positively impact the health of people living with dementia. These findings suggest that integrating nonpharmacologic practices could enhance dementia care.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"883-898"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144812715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"It \"Made a Huge Difference when He had a Dry Bed in the Morning\": Impacts of Dementia-Related Incontinence on Unpaid Carers' Sleep, Health, and Quality of Life.","authors":"Rosemary Gibson, Jaime Fearn, Vanessa Burholt","doi":"10.1177/14713012251356825","DOIUrl":"10.1177/14713012251356825","url":null,"abstract":"<p><p>Incontinence is a common consequence of dementia. Incidence is more likely at night, having repercussions for sleep quality and the exacerbation of waking symptoms of dementia as well as negative carer affect. However, the person-centred experience is underrepresented. A thematic analysis was conducted on continence-related comments from a pool of 94 carers participating in a postal sleep survey. Then, a narrative analysis was used on interview transcripts from 13 participants who took part in follow-up interviews after their care recipient had transitioned into aged residential care. Themes illustrate how promoting continence or managing incontinence impacts unpaid caregivers in terms of sleep disruptions and subsequent wellbeing. These are presented alongside overarching narratives of sleep, continence, and caregiving. Including the physical nature of continence-related support and its impact on sleep practices, as well as the emotional impact of balancing sleep needs alongside caregiving responsibilities and overall wellbeing with ageing. Toilet use and (in)continence needs can have profound impacts on sleep and wellbeing within dementia care, having the potential to jeopardise the overall home care situation. Findings will inform future research in the field of sleep and ageing as well as strategies for supporting families affected by dementia. In particular, the results will inform the production of a core outcome set comprising appropriate quality indicators for people living with dementia, their caregivers, and family so that adequate continence care can be assessed and supported in future interventions.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"768-787"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13062444/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144556063","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Emotional Intelligence and Cognitive Flexibility are Key Influences in Enabling Staff to Uphold Human Rights Values for People Living With Dementia in Care Homes.","authors":"Lesley Butcher, Sofia Vougioukalou, Teena Clouston","doi":"10.1177/14713012251392304","DOIUrl":"10.1177/14713012251392304","url":null,"abstract":"<p><p><b>Background:</b> People with dementia experience discrimination and treatment that contravenes their human rights in health and social care settings. Human Rights law is complex, and real-world application can be confusing. Researchers used the FREDA (Fairness, Respect, Equality, Dignity, Autonomy) framework to provide context to focus group discussions that explored the research question: 'What are the barriers and facilitators to upholding human rights for people living with dementia in care homes?'. <b>Method:</b> Seven focus groups of 90 minutes were conducted. Vignettes and open questions guided discussion. Groups consisted of 7-9 people of heterogenous backgrounds including care home staff (N = 35 from 20 care homes), people with dementia (N = 5), family members of someone with dementia (N = 5), and student nurses (N = 7). Thematic analysis was completed using the Braun and Clarke (2006) inaugural framework with the 6-phase analytical process and reflexive approach. <b>Results:</b> Three overall themes were elicited through this study, including: <i>1</i>. <i>Personal/individual attributes including subthemes: emotional intelligence, cognitive flexibility and education & experience</i>. <i>2</i>. <i>Organisational culture including subthemes: care home ethos, organisational flexibility, and staff morale</i>. <i>3</i>. <i>External influences including subthemes: family and visitors, and social care funding and support</i>. The largest barrier to supporting human rights principles reflected <i>care home ethos</i>, followed by <i>organisational flexibility</i>. The greatest facilitator was <i>emotional intelligence</i>, then <i>cognitive flexibility.</i> <b>Conclusions:</b> This study responds to some of the recommendations from previous research that considered Human Rights approaches to people living with dementia in care homes. It addresses the specific suggestion to identify staff attitudes and understandings that might translate to meaningful enhancements in care relating to FREDA principles of human rights. This is the first study to determine that emotional intelligence and cognitive flexibility are key influences in enabling care home staff to uphold values of human rights for people living with dementia in homes.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"824-860"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13062454/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145566133","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of Formal and Informal Support Among Adult-Daughter Caregivers of People With Dementia in Sweden: A Qualitative Study.","authors":"Oscar Blomberg, Abla Sami, Paul Farrand, Renita Sörensdotter, Frida Svedin, Anders Brantnell, Louise von Essen, Anna Cristina Åberg, Joanne Woodford","doi":"10.1177/14713012251376774","DOIUrl":"10.1177/14713012251376774","url":null,"abstract":"<p><p>People with dementia are living longer in the community and reliance on informal caregivers is increasing. Few studies have focused on the experiences of adult-daughter caregivers (daughter caregivers), who may have increased risk of depression and lack of support compared with spousal caregivers. We aimed to explore the experiences of accessing and receiving formal and informal support among daughter caregivers of people living with dementia in Sweden. We conducted semi-structured interviews with 23 daughter caregivers. A topic guide was used to explore experiences of accessing and receiving formal and informal support in their caregiving role. We analyzed the interviews using reflexive thematic analysis. We generated two themes: Types of support, and Mismatched support. The first theme, with subthemes <i>Sharing experiences, Professional support</i>, and <i>Getting some relief</i>, captured the caregiver support context with different types of support accessed and received by daughter caregivers, with peer support and informational support identified as important components of caregiver support. The second theme, with subthemes <i>Lack of tailoring to daughter caregivers' needs</i> and <i>Difficulties navigating support</i>, captured how daughter caregivers perceived existing support to be inadequate to meet their specific needs and the complex structure of available support limited their opportunities to access support. Daughter caregivers experience a mismatch between the type of support accessed and received and their specific support needs. Support better tailored to the needs and situation of daughter caregivers of people with dementia in Sweden is required. The potential of utilizing peer support for caregivers warrants further research.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"801-823"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13062462/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145024905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Enhancing Person-Centred Dementia Care Through Self-Experience: European Perspectives From a Qualitative Study.","authors":"Janina Wittmann, Gabriele Meyer, Fania C M Dassen, Kealan Forristal, Louise Hopper, Niels Janssen, Marianna Riello, Marjolein de Vugt, Anja Bieber","doi":"10.1177/14713012251353552","DOIUrl":"10.1177/14713012251353552","url":null,"abstract":"<p><p>Understanding the perspectives of people with dementia is crucial for providing person-centred care. Self-experience practices in caregiver training could foster empathy by simulating conditions individuals may encounter. This European study examines the potential contribution of self-experience practices to improving understanding and empathy towards people with dementia. A qualitative approach within the interpretative paradigm was employed to investigate perspectives on self-experience practices in dementia care through focus groups and individual interviews. Participants were people with dementia, informal caregivers, and professionals with experience in simulation-based dementia training and/or communication tools. Transcripts from Germany, Ireland, Italy, and the Netherlands underwent qualitative content analysis and thematic synthesis. Six analytical themes emerged across all target groups and countries, indicating the possibility of enhancing dementia care through self-experience. Themes cover the rationale and impact of these practices, required content and strategies, training procedures, target groups, implementation issues, and barriers and facilitators. Tailoring the training and supportive environment are crucial, but ethical and implementation issues must also be considered to ensure effectiveness and integrity. Integration of self-experience practices suggests benefits in skill acquisition, care strategies, and theoretical understanding. Further research is needed to reach an international consensus for self-experience dementia training practices.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"696-717"},"PeriodicalIF":2.2,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144327960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}