Dementia (London, England)最新文献

{"title":"Supporting the Well-Being of People Living With Dementia and Their Family Carers Through Concurrent Arts and Well-Being Community Programs: Qualitative Perspectives of Participants and Facilitators.","authors":"Carolyn M Murray, Lenore de la Perrelle, Kerry Mart, John Baranoff, Geoff Richards, Gabrielle Rosa Hernandez, Angela Berndt","doi":"10.1177/14713012251383967","DOIUrl":"https://doi.org/10.1177/14713012251383967","url":null,"abstract":"<p><p>Community dwelling people with dementia and their family carers (dyads) may become increasingly isolated which can lead to lack of support, heightened stress levels, anxiety and difficulty coping. For both populations, there is a need for supportive and inviting programs that can provide social contact, respite, and promote engagement for well-being. A co-design workshop was conducted which led to the provision of a pilot six-week art program for people with dementia concurrent with a wellbeing program for their family carers. The research had two phases. Phase one was co-design informed by action research to decide on the content for the six-week concurrent programs and phase two used qualitative description to interpret participant perspectives about program outcomes. Data were collected <i>prior</i> to the programs through a co-design workshop, <i>during</i> the program through weekly reflections, and <i>after</i> program completion through interviews with dyads and a focus group with program facilitators. Twenty-one people participated in the co-design workshop which included two industry advocates, four caregivers, three people with dementia and twelve who did not specify. There were six dyads in the concurrent programs and six facilitators overall. Data were analysed using reflexive thematic analysis. Three themes developed in phase two included: relaxation, engagement and trust; recognising and developing new skills and abilities; and connecting over shared experiences. The co-designing process supported trust and led to programs that provided social support and opportunity for engagement. Having the dyads separated but nearby helped people to relax, knowing the other was doing something enriching. Concurrent programs for people with dementia and their caregivers must be tailored to their needs, have small group sizes that allow for social connection and trained facilitators that focus on the process of 'doing' activities and having fun over the outcome or product.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251383967"},"PeriodicalIF":2.2,"publicationDate":"2025-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145304821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring experiences of dementia post-diagnosis support and ideas for improving practice: A co-produced study.","authors":"Jemima Dooley, Joe Webb, Roy James, Harry Davis, Sandy Read","doi":"10.1177/14713012241312845","DOIUrl":"10.1177/14713012241312845","url":null,"abstract":"<p><p>It takes time to adjust to a diagnosis of dementia. Post-diagnosis support has an important part to play in navigating this transition. However, it is often scarce and variable according to location. This co-produced study explored experiences of support across the UK. The project was co-designed and implemented with people living with dementia. Five focus groups were attended by 18 people with dementia and 10 spouses from across the UK. The aim was to find out what support people currently received, what aspects they valued, and what they would like to see done differently. Most participants reported feeling abandoned after diagnosis, with little continuity of care. Many felt the burden of navigating post-diagnosis life was on them and their loved ones, with a perceived scarcity of support, and difficulties navigating the benefits system. Peer/voluntary support was seen as vital in promoting confidence, a source of relational support, and finding out crucial information relating to benefits, healthcare, and management of symptoms. Participants felt dementia was stigmatised, receiving less support than other medical conditions. Participants identified aspects of post-diagnosis support they valued, and collaborated on ideas for support structures and services they would like to see introduced. In concluding this study, we argue that post-diagnosis support services could be improved with the input of people living with dementia. This could reduce the burden on those receiving the diagnosis to find advice and support outside of health and social care systems. For future research, the financial implications of a dementia diagnosis have rarely been discussed and warrants further exploration.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1241-1257"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Screening for Cognitive Impairment and Dementia Among Older People in Custody: A Systematic Review.","authors":"Michael Chike Iloabachie, Bryce E Stoliker, Lisa M Jewell, Arlene Kent-Wilkinson","doi":"10.1177/14713012251356587","DOIUrl":"10.1177/14713012251356587","url":null,"abstract":"<p><p>Despite the growing number of older and aging people in custody across many countries, and corresponding vulnerability for neurocognitive issues, there has been limited research into the efficacy of cognitive assessment and dementia screening tools in correctional settings. The purpose of this study was to synthesize recent empirical research investigating dementia (and cognitive impairment) in older people in custody using screening tools. A systematic review methodology was adopted, with reporting guided by the PRISMA framework. This included a systematic search of four databases (PsycINFO, MedLine, PubMed, and Academic Search Complete) and handsearching of reference lists of eligible studies. A total of 9 peer-reviewed publications were included. All studies were from high income countries, including the United States (<i>n</i> = 2), Germany (<i>n</i> = 2), Canada (<i>n</i> = 1), England and Wales (<i>n</i> = 2), Australia (<i>n</i> = 1), and France (<i>n</i> = 1). These studies were synthesized according to the following themes: (1) use of screening tools with modification for the correctional setting; (2) use of screening tools without modification for the correctional setting; and, (3) innovative advances in cognitive screening tools and practices for correctional settings. This review identified several cognitive assessment and dementia screening tools that have been used in custodial settings. These tools can help in the early identification of dementia (or cognitive impairment) among older people in custody and, thus, inform the initiation of supports and strategies to manage those at risk. More research is needed to evaluate the performance of these tools compared with a diagnostic assessment.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1352-1371"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12408941/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144509828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Role of Reminiscence in Arts-Based Interventions for Dementia Care: A Scoping Review.","authors":"Teri-Lynn Healy, Genevieve Thompson, Mandy M Archibald","doi":"10.1177/14713012251355292","DOIUrl":"10.1177/14713012251355292","url":null,"abstract":"<p><p><b>Background:</b> The number of people in Canada living with dementia is predicted to rise to 912,000 by 2030. Traditional treatments for dementia have been unsuccessful in eliminating negative responsive behaviours (wandering, agitation, vocalizations) and prompted the emergence of alternative strategies, such as art and music therapy. Although previous reviews have been conducted on aspects of the arts and older adulthood, such as the efficacy and benefits of creative arts therapies in people with dementia, to our knowledge, no review has specifically focused on the role of reminiscence within arts-based interventions for dementia care. <b>Purpose:</b> This scoping review aims to assess the state of the evidence on the role of reminiscence in visual art interventions for individuals with dementia, intending to map the range, nature, and focus of articles and identify gaps for future work in this context. <b>Methods:</b> The five-stage scoping review framework of Arksey and O'Malley (2005) guided this review. <b>Data Sources:</b> CINAHL, PubMed, Web of Science, Scopus, and Google Scholar. <b>Results:</b> 1508 articles were retrieved and screened using pre-established inclusion criteria; 21 empirical articles were retained. Data extracted illustrated themes of social connection, bridging the past and present, and increased enjoyment and confidence. Authors noted art's positive impact on individuals with dementia. The benefits of reminiscence in arts-based therapy were unanimously observed across diverse studies in our review and point to a call for future research. <b>Conclusion:</b> Reminiscence is a vital component within art interventions that allow for making a human connection. Art fosters communication, helping individuals navigate the challenges of everyday life.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1334-1351"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12408931/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144568183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of adult day service on long-term care placement: A scoping review.","authors":"Kingsley C Udeh, Heather L Menne","doi":"10.1177/14713012251334676","DOIUrl":"10.1177/14713012251334676","url":null,"abstract":"<p><p>Cognitive decline and dementia account for the highest number of cognitive disabilities, functional limitations, chronic healthcare conditions, and long-term care needs among older adults aged 65 and older in the US. The optimization of public health policies and advances made from gerontological research have resulted in a steady increase in the number of older adults 65 and above, which makes the risk of cognitive decline and dementia higher. The use of interventions like adult day services (ADS) may delay placement into long-term care homes among older adults living with dementia and other cognitive impairment-related disabilities. The purpose of this scoping review study was to address the research question: What impact do adult day services have on long-term care home placement for people living with dementia? Electronic searches were performed using six databases for sources published between 1998 and May 2024. A total of 150 citations were found. After screening titles and abstracts, full-text reviews were completed for eight articles. Of these eight articles, only two articles addressed the research question directly and reported increased risk for placement. With very few recent studies on the impact of ADS on long-term care placement, more research is needed to draw firm scientific conclusions on the benefit of ADS, and these future studies should include the perspectives of people living with dementia, family caregivers, and ADS providers.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1388-1403"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144047651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of memory clinics on carers of people living with dementia: An integrative review.","authors":"Asha Beattie, Amy Montgomery, Elizabeth Halcomb","doi":"10.1177/14713012251337497","DOIUrl":"10.1177/14713012251337497","url":null,"abstract":"<p><p>People living with dementia and their carers require ongoing support in the community. Memory clinics can provide a range of supports including education, respite and symptom management. While these clinics improve consumer outcomes, their impact on the carers of people living with dementia is unclear. This review sought to identify and critically synthesise the literature on the effectiveness of memory clinics in supporting carers. An integrative review process was used to identify papers from CINAHL and Medline databases. Of the eight included papers, two were qualitative and six were quantitative studies. Three themes were identified, namely; psychological heath, carer burden and satisfaction with memory clinics. Four studies found decreases in caregiver burden, distress, and psychological symptoms such as anxiety and worry. Satisfaction with the clinic model was discussed as a source of support by carers, highlighting the memory clinics. The variable outcomes seen in this review require further research to elucidate the impacts of memory clinics on carers along the dementia trajectory.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1404-1416"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12408932/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144082410","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Graduate nurses caring for people living with dementia: A scoping review.","authors":"Jerric Jose, Elisabeth Jacob, Louise Alexander","doi":"10.1177/14713012251313489","DOIUrl":"10.1177/14713012251313489","url":null,"abstract":"<p><strong>Background: </strong>Adequate dementia care knowledge of graduate nurses is essential for the wellbeing of both people living with dementia as well as the graduate nurses caring for them. Little is known about the dementia care knowledge, experience or confidence of graduate nurses caring for people living with dementia. This paper aims to review the available literature on graduate nurses caring for people living with dementia.</p><p><strong>Design: </strong>A scoping review of literature based on the Joanna Briggs Institute methodology for scoping reviews.</p><p><strong>Methods: </strong>From April 2023 to August 2023, searches were conducted in databases which included CINAHL, Medline, Embase, Web of Science, Scopus, Trove and Google search. All articles related to the question \"what literature is available on graduate nurses caring for people living with dementia\" published in English were included in this scoping review.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1372-1387"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12408938/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of an educational intervention on mealtime support needs for people with dementia in residential care facilities: A cluster-randomized controlled trial.","authors":"Lígia Passos, João Tavares, Melissa Batchelor, Daniela Figueiredo","doi":"10.1177/14713012251323658","DOIUrl":"10.1177/14713012251323658","url":null,"abstract":"<p><p>BackgroundPeople with dementia face numerous challenges during mealtimes, including difficulties with food intake, cutlery use, and maintaining attention. These can lead to severe consequences such as malnutrition and aspiration pneumonia, affecting the well-being of these individuals.AimTo determine the effectiveness of an educational intervention in improving mealtime support needs and enhancing the well-being of both individuals with dementia and direct care workers.MethodsA cluster-randomized controlled trial was conducted in four residential care facilities. The study involved direct care workers and residents with dementia, with facilities randomly assigned to either an intervention or control group. The intervention comprised three weekly 2-hour training sessions, focusing on dementia-related mealtime challenges and practical support strategies. Data were collected at baseline and one-week post-intervention using questionnaires and observational tools to assess caregivers' skills, burnout levels, and job satisfaction, as well as residents' mealtime behavior and food intake.ResultsDirect care workers from the intervention group showed significant improvements in knowledge (<i>p</i> < .001; d = 0.728) and skills (<i>p</i> < .001; d = 0.842) compared to the control group. Additionally, there were notable reductions in burnout levels (<i>p</i> = .001; d = 0.466) and higher job satisfaction (<i>p</i> = .003; d = 0.410). People with dementia in the intervention group demonstrated better performance at mealtimes.ConclusionThe educational intervention effectively enhanced direct care workers' abilities to support people with dementia during mealtimes, leading to better outcomes for both caregivers and residents. Implementing such training programs can improve care quality and alleviate challenges in dementia care.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1291-1313"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12408939/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143473375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences and needs of residents with dementia in relocating to an innovative living arrangement within long-term care: A qualitative study.","authors":"Mara Brouwers, Elleke Gm Landeweer, Bram de Boer, Wim G Groen, Miranda C Schreuder, Hilde Verbeek, Relocare Consortium","doi":"10.1177/14713012241311433","DOIUrl":"10.1177/14713012241311433","url":null,"abstract":"<p><p>During the last decade, an increasing number of care organizations have chosen to rebuild or build a new care facility to provide better person-environments for residents with dementia. This has inevitably led to an increase in relocations. This study investigated how residents with dementia experienced a relocation from a regular nursing home to an innovative living arrangement. A qualitative study was performed, using semi-structured interviews and observations. Two nursing homes offering 24 h care to residents with psychogeriatric symptoms that planned a relocation to an innovative living arrangement were selected. Sixteen residents were included. Five themes from the data described what was of importance to residents when moving, including (1) the physical environment of the new location, (2) the belongings of residents, (3) feeling at home, (4) the importance of social contact when relocating, and (5) the need to be engaged in daily life. This study found that the residents were not actively involved in the relocation process, despite the clear desire they expressed to be involved and of importance. As the residents with dementia were able to express what was important to them in this study, relocation processes should focus more on involving such residents and incorporating them within relocation processes.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1225-1240"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12408925/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142873588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social representations of dementia. A qualitative inquiry into perspectives of people with dementia, professionals, and informal caregivers.","authors":"Diego Romaioli, Edoardo Pesce, Giacomo Chiara","doi":"10.1177/14713012251316962","DOIUrl":"10.1177/14713012251316962","url":null,"abstract":"<p><p>Using a theoretical framework that underscores the social dimension of meaning-making processes, this study delved into the social representations of dementia in the Italian context and the personal meanings expressed by three distinct groups of participants. The study involved ninety-two episodic interviews with people living with dementia and those who had provided care as professionals or informal caregivers. The collected data underwent various types of analysis. A hierarchical descending analysis was initially conducted using IRaMuTeQ to elucidate the lexical worlds that form the shared idea of dementia. This was followed by a more interpretative thematic analysis using Atlas.ti. The results reveal the diverse perspectives of the groups in articulating the contents of social representations, which can guide actions in the care and management of the disease.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1270-1290"},"PeriodicalIF":2.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143043687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}