与痴呆患者及其照护者辅助技术相关的伦理问题-综述

Anthony Scerri, Frederik Schou Juul, Rosa Silva, Rodrigo Serrat, Adrienne Grech, Gabija Jarašiūnaitė Fedosejeva, Montserrat Celdrán, Elzbieta Trypka, Christian Borg Xuereb, Nilufer Korkmaz-Yaylagul, Melina Evripidou, Isabel Machado Alexandre, Sigurd Lauridsen
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引用次数: 0

摘要

辅助技术通过解决与安全、独立和社会包容相关的关键问题,在提高痴呆症患者及其照护者的生活质量方面具有巨大潜力。尽管围绕辅助技术的设计和使用的伦理问题已经在各种研究中进行了探讨,但没有进行全面的综述来综合这些问题的现有证据。本研究旨在使用既定的道德原则对痴呆症患者及其护理人员的辅助技术相关的道德问题进行分类,同时还研究了影响其设计和实施的道德辩论的因素。这项研究是在9个数据库中进行的,包括了过去20年发表的关于伦理问题的评论。数据合成遵循Carroll等人(2011)开发的框架合成方法。在509个确定的记录中,有15个评论重点关注伦理问题,并被纳入分析。调查结果揭示了关键的道德问题,包括维护自主权、尊重隐私、解决公平和无障碍问题。虽然辅助技术在增强安全性和独立性方面显示出潜力,但对监视、去人格化和污名化的担忧仍然存在。伦理辩论受到环境、哲学、时间和地理因素的影响,包括不同的利益相关者优先事项、痴呆症症状的波动性质、痴呆症护理和伦理的不同方法、文化差异以及未来技术进步的影响。这篇综述强调了与痴呆护理辅助技术相关的伦理问题的复杂性,以及这些已确定的因素如何为痴呆患者及其护理者的伦理设计和使用提供信息。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Ethical issues associated with assistive technologies for persons living with dementia and their caregivers - An overview of reviews.

Assistive technologies hold significant potential to enhance the quality of life for persons with dementia and their caregivers by addressing key concerns related to safety, independence, and social inclusion. Although ethical issues surrounding the design and use of assistive technologies have been explored in various studies, no comprehensive overview of reviews has been conducted to synthesize the existing evidence on these issues. This study aims to categorize the ethical issues associated with assistive technologies for persons with dementia and their caregivers using established ethical principles, while also examining factors shaping the ethical debate on their design and implementation. The study was conducted across nine databases and included reviews published in the past 20 years that substantially addressed ethical considerations. Data synthesis followed the framework synthesis approach developed by Carroll et al. (2011). Out of 509 identified records, 15 reviews focusing significantly on ethical issues were included in the analysis. Findings revealed key ethical issues, including maintaining autonomy, respecting privacy, and addressing equity and accessibility. While assistive technologies demonstrate potential in enhancing safety and independence, concerns about surveillance, depersonalization, and stigmatization persist. The ethical debate is shaped by contextual, philosophical, temporal, and geographical factors, including varying stakeholder priorities, the fluctuating nature of dementia symptoms, diverse approaches to dementia care and ethics, cultural differences, and the implications of future technological advancements. This review underscores the complexity of ethical issues related to assistive technologies for dementia care and how these identified factors inform the ethical design and their use for persons with dementia and their caregivers.

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