"I forgot she used to make chocolate cake": Digital storytelling supporting person-focussed dementia care: A qualitative thematic analysis.

Dementia (London, England) Pub Date : 2025-05-01 Epub Date: 2025-01-28 DOI:10.1177/14713012251317761
Stephanie Munk, Rhiannon Toohey, Aliaa Remtilla, Nathan M D'Cunha, Diane Gibson, Stephen Isbel, Aisling Smyth, Kasia Bail
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Abstract

Reminiscence is a meaningful activity for people with dementia, but research implementing digital reminiscence tools into environments with older people is not well developed. This project sought to understand the effectiveness of a digital reminiscence tool in aiding person-centred dementia care with people attending a day respite centre and a group residential home, in metropolitan eastern Australia. This study used semi-structured interviews and ethnographic observations using a qualitative reflexive thematic analysis with seventeen participants including people with dementia (n = 8), their loved ones (n = 5) and staff n = 4) Themes identified were: 1. Remembering myself; 2. Reminiscing the person before and with dementia; 3. Enhanced relationships through self-expression; 4. Person-centred adaptation and the art of the interview; and 5. Future potential. Findings indicate that the StoryTiling app was user-friendly, supported reminiscence activities and enhanced person-centred care. The reminiscence activity enhanced relationships between participants, families, and carers, facilitating a deeper knowing of the person with dementia. The activities supported positive memories and emotions and helped reinforce the identity of the person with dementia in both their own mind, and their loved ones. The information captured in the StoryTiling process enabled person-centred care in improving the ability to know a person and being able to relate and respond to their individual needs, wants and goals. The process was dependent on the 'art of the question' and the 'art of the interview', particularly by people who know the person with dementia and are trauma-informed in order to effectively progress interviews and utilise them within the care environment. Enabling nudge activities that promote person-centred engagement such as reminiscence through digital storytelling may help foster person-centred care in the aged care sector.

“我忘了她曾经做过巧克力蛋糕”:数字叙事支持以人为本的痴呆症护理:定性主题分析。
对于痴呆症患者来说,回忆是一项有意义的活动,但将数字回忆工具应用于老年人环境的研究还没有得到很好的发展。该项目旨在了解数字记忆工具在帮助以人为本的痴呆症护理方面的有效性,这些人参加了澳大利亚东部大都市的日间休息中心和团体住宅。本研究采用半结构化访谈和民族志观察,采用定性反身性主题分析,共有17名参与者,包括痴呆症患者(n = 8)、他们的亲人(n = 5)和工作人员(n = 4)。记住自己;2. 对失智症患者的回忆;3. 通过自我表达加强人际关系;4. 以人为本的适应与访谈艺术;和5。未来的潜力。研究结果表明,StoryTiling应用程序是用户友好的,支持回忆活动和增强以人为本的护理。回忆活动加强了参与者、家庭和护理人员之间的关系,促进了对痴呆症患者的更深层次的了解。这些活动支持积极的记忆和情感,并有助于加强痴呆症患者在自己和亲人心目中的身份认同。在StoryTiling过程中获取的信息使以人为本的护理能够提高了解一个人的能力,并能够联系和回应他们的个人需求、愿望和目标。这个过程依赖于“提问的艺术”和“访谈的艺术”,特别是那些了解痴呆症患者并了解创伤的人,以便有效地推进访谈并在护理环境中利用它们。促进以人为本的参与的助推活动,如通过数字故事讲述的回忆,可能有助于在老年护理部门促进以人为本的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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