“我们珍惜的记忆”:评估一个有记忆问题的参与者的摄影展对合作设计师和观众的影响。

Sinéad McIntyre, Claudia Cooper, Natalia Chemas, Sukey Parnell Johnson, Paul Higgs, Wendy Martin, Sarah Morgan-Trimmer, Alexandra Burton, Michaela Poppe, Ellie Whitfield
{"title":"“我们珍惜的记忆”:评估一个有记忆问题的参与者的摄影展对合作设计师和观众的影响。","authors":"Sinéad McIntyre, Claudia Cooper, Natalia Chemas, Sukey Parnell Johnson, Paul Higgs, Wendy Martin, Sarah Morgan-Trimmer, Alexandra Burton, Michaela Poppe, Ellie Whitfield","doi":"10.1177/14713012251338551","DOIUrl":null,"url":null,"abstract":"<p><p>Visual research, including photovoice methods are increasingly used to elicit the experiences of people living with memory loss, though few such studies have investigated the impact of produced images on audiences. Drawing on Freire's empowerment pedagogy, we aimed to explore how a photography exhibition, created by individuals with memory concerns participating in the APPLE-Tree (Active Prevention in People at risk of dementia through Lifestyle, bEhaviour change and Technology to build REsiliEnce) dementia prevention programme contributed to an understanding on life with memory loss, and whether it reduced any stigma, among its co-producers and audience. Approximately 200 people attended the exhibition launch, of whom 97 completed a survey. We interviewed two co-producers with lived experience of memory problems and seven academic co-producers. In our thematic analysis of survey responses and interview transcripts, we developed three themes: (1) Increasing understanding by giving voice to participants: seeing unique individuals behind the work; (2) The power of visual methods to communicate research findings: interviewees described how the quality of the works and exhibition created an atmosphere that honoured participants as artists, valuing and respecting their messages; (3) Evoking emotions: fear and hope: The audience described the exhibition's power to evoke strong emotions of fear at the risk of losing \"treasured memories\" and hope of living successfully with memory loss. Some attendees and study team members felt motivated to try to reduce their future dementia risk. We consider the value of public engagement using arts-based co-production, and the impact of the exhibition in this field. We explore how our findings reflect notions of empowerment in two juxtaposing ways: empowerment to express how living with memory loss feels as a means of activism to reduce associated stigma, and empowerment to change future dementia risk through lifestyle changes.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251338551"},"PeriodicalIF":0.0000,"publicationDate":"2025-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"'Memories we treasure': Evaluating the impact on co-designers and audiences of a photographic exhibition by participants with memory problems.\",\"authors\":\"Sinéad McIntyre, Claudia Cooper, Natalia Chemas, Sukey Parnell Johnson, Paul Higgs, Wendy Martin, Sarah Morgan-Trimmer, Alexandra Burton, Michaela Poppe, Ellie Whitfield\",\"doi\":\"10.1177/14713012251338551\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Visual research, including photovoice methods are increasingly used to elicit the experiences of people living with memory loss, though few such studies have investigated the impact of produced images on audiences. Drawing on Freire's empowerment pedagogy, we aimed to explore how a photography exhibition, created by individuals with memory concerns participating in the APPLE-Tree (Active Prevention in People at risk of dementia through Lifestyle, bEhaviour change and Technology to build REsiliEnce) dementia prevention programme contributed to an understanding on life with memory loss, and whether it reduced any stigma, among its co-producers and audience. Approximately 200 people attended the exhibition launch, of whom 97 completed a survey. We interviewed two co-producers with lived experience of memory problems and seven academic co-producers. In our thematic analysis of survey responses and interview transcripts, we developed three themes: (1) Increasing understanding by giving voice to participants: seeing unique individuals behind the work; (2) The power of visual methods to communicate research findings: interviewees described how the quality of the works and exhibition created an atmosphere that honoured participants as artists, valuing and respecting their messages; (3) Evoking emotions: fear and hope: The audience described the exhibition's power to evoke strong emotions of fear at the risk of losing \\\"treasured memories\\\" and hope of living successfully with memory loss. Some attendees and study team members felt motivated to try to reduce their future dementia risk. We consider the value of public engagement using arts-based co-production, and the impact of the exhibition in this field. We explore how our findings reflect notions of empowerment in two juxtaposing ways: empowerment to express how living with memory loss feels as a means of activism to reduce associated stigma, and empowerment to change future dementia risk through lifestyle changes.</p>\",\"PeriodicalId\":72778,\"journal\":{\"name\":\"Dementia (London, England)\",\"volume\":\" \",\"pages\":\"14713012251338551\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-04-25\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Dementia (London, England)\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1177/14713012251338551\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Dementia (London, England)","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/14713012251338551","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

摘要

视觉研究,包括光声方法,越来越多地被用来引出记忆丧失者的经历,尽管很少有这样的研究调查了制作的图像对观众的影响。借鉴Freire的赋权教学法,我们的目的是探索一个摄影展,由参与苹果树(通过生活方式、行为改变和技术建立恢复力,积极预防有痴呆症风险的人)痴呆症预防项目的有记忆问题的个人创作,如何促进对记忆丧失生活的理解,以及它是否减少了联合制片人和观众的耻辱。约有200人参加了展览启动仪式,其中97人完成了调查。我们采访了两位有记忆问题生活经验的联合制片人和七位学术联合制片人。在我们对调查回复和采访记录的专题分析中,我们开发了三个主题:(1)通过让参与者发声来增加理解:看到作品背后独特的个体;(2)视觉方法传达研究成果的力量:受访者描述了作品和展览的质量如何创造了一种氛围,使参与者成为艺术家,重视和尊重他们的信息;(3)唤起情感:恐惧与希望:观众描述了展览在失去“珍贵记忆”的风险下唤起强烈的恐惧情绪,以及在失去记忆的情况下成功生活的希望。一些参与者和研究团队成员感到有动力尝试降低他们未来患痴呆症的风险。我们考虑了以艺术为基础的合作制作的公众参与的价值,以及展览在这一领域的影响。我们探索了我们的研究结果如何以两种并列的方式反映赋权的概念:赋权是为了表达生活在记忆丧失中是一种减少相关耻辱的行动主义手段,赋权是为了通过改变生活方式来改变未来痴呆症的风险。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
'Memories we treasure': Evaluating the impact on co-designers and audiences of a photographic exhibition by participants with memory problems.

Visual research, including photovoice methods are increasingly used to elicit the experiences of people living with memory loss, though few such studies have investigated the impact of produced images on audiences. Drawing on Freire's empowerment pedagogy, we aimed to explore how a photography exhibition, created by individuals with memory concerns participating in the APPLE-Tree (Active Prevention in People at risk of dementia through Lifestyle, bEhaviour change and Technology to build REsiliEnce) dementia prevention programme contributed to an understanding on life with memory loss, and whether it reduced any stigma, among its co-producers and audience. Approximately 200 people attended the exhibition launch, of whom 97 completed a survey. We interviewed two co-producers with lived experience of memory problems and seven academic co-producers. In our thematic analysis of survey responses and interview transcripts, we developed three themes: (1) Increasing understanding by giving voice to participants: seeing unique individuals behind the work; (2) The power of visual methods to communicate research findings: interviewees described how the quality of the works and exhibition created an atmosphere that honoured participants as artists, valuing and respecting their messages; (3) Evoking emotions: fear and hope: The audience described the exhibition's power to evoke strong emotions of fear at the risk of losing "treasured memories" and hope of living successfully with memory loss. Some attendees and study team members felt motivated to try to reduce their future dementia risk. We consider the value of public engagement using arts-based co-production, and the impact of the exhibition in this field. We explore how our findings reflect notions of empowerment in two juxtaposing ways: empowerment to express how living with memory loss feels as a means of activism to reduce associated stigma, and empowerment to change future dementia risk through lifestyle changes.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信