Brain Impairment最新文献

{"title":"The relationships between social network size, loneliness and personality in individuals living with a neurological condition: an exploratory study.","authors":"Isabella Branson, Kate Turner, Mitchell Turner, Manja Laws, Leah Dempsey, Simon Laws, Mandy Stanley, Johnny Lo, Travis Cruickshank","doi":"10.1071/IB24089","DOIUrl":"10.1071/IB24089","url":null,"abstract":"<p><strong>Background: </strong>People living with a neurological condition often report having smaller social networks and less frequent social contact, leading to greater loneliness and worse quality of life. This study explored the relationships between personality traits, social network size (SNS) and perceived loneliness in this population.</p><p><strong>Methods: </strong>Sixty-eight individuals diagnosed with a neurological condition participated in this study. Perceived loneliness was assessed using the UCLA Loneliness Scale - Version 3, SNS was evaluated by the Social Network Index and personality traits were examined using the NEO Factor Five Inventory. Path analysis was conducted to determine if loneliness was negatively associated with SNS and if personality traits mediated the relationship.</p><p><strong>Results: </strong>Loneliness was positively correlated with neuroticism (r = 0.65), and negatively correlated with extraversion (r = -0.26), conscientiousness (r = -0.37) and SNS (r = -0.36). Neuroticism decreased with increased conscientiousness (r = -0.39), extraversion (r = -0.24) and SNS (r = -0.25). SNS was significantly positively associated with extraversion (b = 0.31 ± 0.11, P = 0.004).</p><p><strong>Conclusion: </strong>A larger SNS was associated with decreased neuroticism and loneliness, and may be mediated by extraversion. Knowledge of this can help with the creation of targeted social interventions for individuals with neurological conditions.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"27 1","pages":""},"PeriodicalIF":1.5,"publicationDate":"2026-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146203995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Poetry is chocolate: a project-based interest-holder-engaged qualitative investigation of poetry about cognitive communication disorders and aphasia.","authors":"Jerry K Hoepner, Rochelle Anderson, Douglas Campbell, Douglas Kidd, Lisa Monopoli, Audrey Nelson, Sheree Nelson, Kathryn Paulson, Amber Kirkwood, Emmi Costello, Lily Kuhaupt, Emily Thom, Brendan Constantine","doi":"10.1071/IB24150","DOIUrl":"10.1071/IB24150","url":null,"abstract":"<p><strong>Background: </strong>It is common for individuals with cognitive communication disorders (CCD) and aphasia to experience changes to cognition, communication and psychological status, which can alter their identity and sense of self.</p><p><strong>Methods: </strong>Five individuals with CCD and two with aphasia co-designed and co-produced an interest-holder-engaged investigation of their own poems about living with CCD and/or aphasia. They wished to demonstrate the value they associate with poetry as a vehicle for self-expression and processing their recovery. A project-based intervention served as a framework for implementing this co-analysis process. Co-investigators with CCD and aphasia participated at the highest level of engagement, serving as partners and decision-makers for the entire process. Individuals with CCD and aphasia were trained by three speech-language pathology graduate students on how to complete reflexive thematic analysis.</p><p><strong>Results: </strong>Co-investigators with CCD and/or aphasia performed these analyses with a high level of rigour and integrity. Qualitative analyses identified two main themes: loss and overcoming. Loss included the subthemes of frustrations, impairments and loss of self. Overcoming included subthemes of community, redemption and successes, poetry as a means of expression, and emotional adjustment.</p><p><strong>Conclusions: </strong>Co-investigators were able to complete the analyses with training and support from the graduate student clinicians. Poetry served as a vehicle for self-expression and identity renegotiation. Take aways: Poets were able to process recovery, trauma, and adjustment through writing and sharing their work in a safe space. By sharing illness narratives and making sense of their CCD/aphasia, poetry provides a modality for exploring post-CCD/aphasia self and renegotiating identity.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":" ","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145607471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Optimising co-design methodologies for people with communication disorders following neurological impairment: establishing criteria, adapting practices, and enhancing inclusivity.","authors":"Petra Avramović, Kylie Southwell, Tushar Prasad, Leanne Togher, Melissa Brunner","doi":"10.1071/IB25031","DOIUrl":"10.1071/IB25031","url":null,"abstract":"<p><strong>Background: </strong>Co-design methodologies, which actively involve interest-holders in intervention development, are increasingly used in health care. In brain injury rehabilitation, they offer potential for tailored support for individuals with communication disabilities. However, the diversity of approaches and lack of communication-specific adaptations can limit their effectiveness and authenticity in equitably engaging interest-holders with communication disability.</p><p><strong>Methods: </strong>This meta-synthesis reviewed 30 studies involving adolescents (aged ≥12 years) and adults with acquired brain injury affecting communication. Systematic searches of six databases identified studies using co-design in rehabilitation contexts. The review aimed to define minimum requirements for co-design and explore evidence-based adaptations that support inclusive participation.</p><p><strong>Results: </strong>Studies used varied theoretical frameworks and qualitative methods, including interviews, focus groups and workshops. Adaptations to support communication included easy-read materials, bespoke design tools, and member-checking. Innovative techniques, such as the Someone Who Isn't Me technique for perspective-taking and modified consensus-building, were noted. Despite the value of lived experience, contributions were often underutilised due to inaccessible practices and inconsistent reporting.</p><p><strong>Conclusion: </strong>Authentic co-design was demonstrated in studies that embedded inclusive principles and tangible adaptations. This review offers practical guidelines for optimising research inclusion by integrating accessible communication strategies, ensuring interventions are genuinely co-designed.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":" ","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145607485","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An exploratory study of working alliance in traumatic brain injury peer support.","authors":"Alyssa Turcott, Janna Griffioen, Kix Citton, Emily Nalder, W Ben Mortenson, Julia Schmidt","doi":"10.1071/IB24142","DOIUrl":"10.1071/IB24142","url":null,"abstract":"<p><strong>Background: </strong>Peer support is recognised as a promising intervention for people with traumatic brain injury (TBI). Peer support increases belonging, mood and self-acceptance after TBI. In peer support, working alliance is associated with rehabilitation engagement and better health-related outcomes. A better understanding of the working alliance formed between those providing and receiving TBI peer support will inform design considerations for creating peer support networks, including specific considerations for matching peer support workers with peer support receivers.</p><p><strong>Objective: </strong>The objectives of this study were to characterise how working alliance is developed through brain injury peer support, and to identify barriers and facilitators of creating peer support networks.</p><p><strong>Methods: </strong>This study used a qualitative interpretive description methodology. Semi-structured interviews were conducted with peer support receivers and peer support workers who were involved in a co-designed TBI peer support program, as well as community partners who were involved in the development or implementation of the program. Responses were analysed using reflexive thematic analysis (Objective 1) and inductive content analysis (Objective 2).</p><p><strong>Results: </strong>Nine participants participated in the interviews: three peer support receivers, two peer support workers and four community partners. Three themes describe how working alliance is developed. First, 'feeling understood' explored the importance of validating experiences after TBI. Second, 'expanding conversations beyond injury' highlighted participants' desire to connect on similar life experiences and personal topics other than TBI, such as navigating milestones and life events. Last, 'reciprocal growth' identified how learning occurs between both the peer support receiver and worker. There were four main facilitators of forming a peer support network: characteristics of peer support workers, flexibility in content of sessions, collaboration between researchers and peer support organisations, and formatting of sessions. There were three main barriers to forming a peer support network: irregularity of sessions due to scheduling conflicts, lack of an established peer support program within acute care settings, and lack of resources including space, volunteers and funding.</p><p><strong>Conclusions: </strong>Findings reveal how working alliances between peer support workers and peer support receivers in TBI peer support are facilitated through validation of individual TBI recovery experiences, and mutual growth in the areas of self-acceptance and hope. Successful peer support networks appear to benefit from flexibility and individualisation of format and content of sessions, as well as the creation of collaborations between acute care and community support networks.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"26 4","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145356841","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social-legal discourse in adults with and without traumatic brain injury.","authors":"Joseph A Wszalek, Macayla N Church, Lyn S Turkstra","doi":"10.1071/IB24121","DOIUrl":"10.1071/IB24121","url":null,"abstract":"<p><strong>Objective: </strong>To characterise social-legal discourse in adults with and without traumatic brain injury (TBI).</p><p><strong>Methods: </strong>Participants, 19 adults with TBI and 21 uninjured comparison peers, completed a legal knowledge interview to discuss knowledge of laws and legal systems. Dependent variables were microlinguistic and macrolinguistic features of participants' spoken discourse.</p><p><strong>Results: </strong>Participants in the TBI group produced more microlinguistic errors, t(38) = -3.07, adjusted P < 0.05, ηp2 = 0.20, and a higher rate of errors, t(38) = -3.08, adjusted P < 0.05, ηp2 = 0.20, than participants in the comparison group. Participants in the TBI group also produced more macrolinguistic errors, t(38) = -2.86, adjusted P < 0.05, ηp2 = 0.18, and a higher rate of errors t(38) = -3.94, adjusted P < 0.05, ηp2 = 0.29, than participants in the comparison group. Two cognitive-communication mechanisms, working memory and processing speed, partially explained micro- and macrolinguistic discourse features.</p><p><strong>Conclusion: </strong>Adults with moderate-to-severe TBI produced social-legal discourse of poorer micro- and macrolinguistic quality than their uninjured peers. Discourse quality was explained in part by working memory and processing speed. Results identify risks of TBI-related communication deficits in legal contexts and support further study of effects of TBI on intersections with legal systems.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"26 4","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145356976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"'It's healing me': exploring self and recovery through poetry narratives and project-based interventions.","authors":"Jerry K Hoepner, Danielle Clark, MacKenzie Deleo-Schuster, Emily Letendre, Robyn Yakel, Rochelle Anderson, Laurel Blackstone, Douglas Kidd, Lisa Monopoli, Audrey Nelson, Sheree Nelson, Kathryn Paulson, Brendan Constantine","doi":"10.1071/IB24151","DOIUrl":"10.1071/IB24151","url":null,"abstract":"<p><strong>Background: </strong>Individuals with cognitive communication disorders and aphasia experience changes to cognition, communication and psychological status, which can alter their identity and sense of self. Narrative approaches and project-based interventions have both been shown to positively influence renegotiation of identity and sense of self. Poetry shares many of the features of narrative approaches.</p><p><strong>Methods: </strong>Six individuals with cognitive communication disorders and one with aphasia co-designed a 6-month poetry group that used a narrative approach to poetry and a project-based intervention to disseminate their work.</p><p><strong>Results: </strong>Qualitative analyses identified eight themes, including poetry is healing, didn't know I was capable of writing poetry, poetry provides clarity, poetry refills my tank, poetry provides a sense of accomplishment, learning from one another and feeding off of one another, poetry as a way to process recovery, and poetry has given me a new identity.</p><p><strong>Conclusions: </strong>Qualitative findings suggest that poetry and project-based interventions have positive effects on renegotiation of identity and sense of self. Poetry supports the expression of trauma and experiences through a metaphorical lens. This helps poets to feel comfortable sharing their compositions with groupmates and disseminate them more broadly. Poetry provides a mechanism for reframing illness narratives into their new narrative identities.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"26 4","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Rehabilitation service provision and outcomes for children with stroke in Victoria and Western Australia in the pre-implementation era of clinical practice guidelines.","authors":"Frank Muscara, Sam Armstrong, Sarah Knight, Adam Scheinberg, Taryn Ambrosi, Sue-Anne Davidson, Renae Dayman, Jane Valentine, Mark T Mackay","doi":"10.1071/IB24110","DOIUrl":"10.1071/IB24110","url":null,"abstract":"<p><strong>Objective: </strong>This study described the rehabilitation services accessed by children with stroke following acute admission to two Australian paediatric tertiary hospitals prior to the implementation of clinical practice guidelines. It also evaluated quality-of-care indicators for inpatient rehabilitation within these two settings.</p><p><strong>Methods: </strong>Data were obtained from electronic medical records between 2014 and 2020. Quality-of-care was evaluated by comparing documented clinical care during that period with quality-of-care indicators for childhood stroke rehabilitation.</p><p><strong>Results: </strong>A total of 129 children (56% acute arterial ischaemic) with newly diagnosed stroke were identified (83 from Victoria, 46 from Western Australia). Of those, 45 in Victoria and 27 in Western Australia required inpatient rehabilitation. Children received high-quality inpatient rehabilitation care across both hospital settings, with the application of validated outcome measures and provision of rehabilitation care plans. Areas for improvement included greater involvement of families in the rehabilitation process, particularly with respect to the provision of regular family meetings to facilitate engagement.</p><p><strong>Conclusion: </strong>Although most children with stroke received high-quality care when compared against clinical practice guidelines, the findings highlight the importance of ongoing evaluation and continuous improvement in service provision, and the benefits of benchmarking the quality of current service provision against best practice treatment approaches recommended by consensus-based guidelines.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"26 4","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145535105","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"'Thrown in the deep end': a qualitative study of community participation during inpatient rehabilitation and transition to community living from the perspective of family members of people with severe brain injury.","authors":"Suzanne Currie, Jacinta Douglas, Kate D'Cruz, Di Winkler","doi":"10.1071/IB25061","DOIUrl":"10.1071/IB25061","url":null,"abstract":"<p><strong>Background: </strong>To understand the experience of family members of people with severe acquired brain injury (ABI) as they support their loved one to commence community and social participation during inpatient rehabilitation and transition to the community.</p><p><strong>Methods: </strong>Constructivist grounded theory methodology guided the process of data collection and analysis. Data were collected via in-depth interviews using a semi-structured interview guide.</p><p><strong>Results: </strong>Eight family members were interviewed, inclusive of five parents and three spouses of people living with severe ABI. The participants' family member with ABI were on average 4 years post-discharge from hospital at the time of the interview. Data analysis produced a core category: 'An arduous journey' and four categories: adjusting to change, overwhelming responsibility, learning on the job and needing people to understand.</p><p><strong>Conclusion: </strong>Although family members clearly play an important role in the achievement of community and social participation, the participants of this study identified many factors that impact their experience of supporting positive outcomes. There are important implications for rehabilitation services, such as ensuring families feel welcomed and engaged within rehabilitation, positioning the person with ABI within their family context in rehabilitation, and providing opportunities for supported, meaningful and contextual experiences within rehabilitation.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":" ","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145607493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community partnered peer support after traumatic brain injury: a feasibility case study.","authors":"Janna Griffioen, Alyssa Turcott, Kix Citton, Adele Rogers, Courtney L Pollock, Bill Miller, Brodie M Sakakibara, Nick Bansback, Derry Dance, Amy Schneeberg, Noah D Silverberg, W Ben Mortenson, Janice J Eng, Julia Schmidt","doi":"10.1071/IB24145","DOIUrl":"10.1071/IB24145","url":null,"abstract":"<p><strong>Background: </strong>Peer support can enhance the rehabilitation experience for people with traumatic brain injury (TBI). Understanding the feasibility of integrating peer support using a co-design approach can ensure effective delivery. This study aimed to evaluate the feasibility of implementing a community-based peer support program for people with moderate to severe TBI using a co-designed approach.</p><p><strong>Methods: </strong>A case series pre-post feasibility study was conducted in partnership with a community brain injury organisation. Participants were adults who experienced a moderate to severe TBI <12 months earlier. Feasibility was assessed using process (recruitment and retention rates), resource (adherence to intervention), management (implementation fidelity) and scientific indicators (pre-post intervention changes).</p><p><strong>Results: </strong>Three participants were included, and most measures of feasibility were achieved. Process was achieved with a recruitment rate of 60% (3/5) and a retention rate of 100%. Resource feasibility was achieved with all peer support sessions (100%). Management feasibility was met through the completion of a co-created checklist of session management by peer support workers. Scientific feasibility outcomes showed limited change between pre- and post-intervention.</p><p><strong>Conclusion: </strong>This study demonstrates the feasibility of a co-designed peer support program for people with TBI. Future research may examine the implementation of peer support to explore program scalability and refine outcome measures to better capture the benefits of a peer support focused intervention.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"26 4","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145356922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Preliminary validation of a 10-item version of the Depression, Anxiety and Stress Scale in a mild traumatic brain injury sample.","authors":"Deborah L Snell, Josh W Faulkner, R J Siegert","doi":"10.1071/IB25025","DOIUrl":"10.1071/IB25025","url":null,"abstract":"<p><strong>Background: </strong>In this study, we evaluated the psychometric properties of a 10-item version of the Depression, Anxiety and Stress Scale (DASS-10) in a mild traumatic brain injury (mild TBI) sample.</p><p><strong>Methods: </strong>Treatment-seeking adults (n = 354; mean age 36.3 years, 62% women) were recruited from outpatient rehabilitation services in New Zealand. Participants completed the DASS-10 on average 11.5 (15.0) weeks after their injury. Dimensionality, reliability, person separation index and differential item functioning of the DASS-10 were examined using Rasch analyses.</p><p><strong>Results: </strong>Initial fit to the Rasch model for the 10-item measure was good (χ2 = 78.6, d.f. = 70, P = 0.22), with high internal consistency (Cronbach's alpha 0.89, person separation index 0.86) and acceptable unidimensionality. There was no evidence of differential item functioning for any of the person factors tested (age, gender, ethnicity, education, mental health history).</p><p><strong>Conclusion: </strong>These findings provide preliminary support for the DASS-10 as a psychometrically sound measure of psychological distress for adults seeking treatment following mild TBI. The DASS-10 for mild TBI may be a helpful brief measure to triage mental health needs among persons referred to outpatient services after mild TBI.</p>","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"26 4","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145356947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}