Disability Studies Quarterly最新文献

{"title":"Bipolar in the Academy: A Case of Testimonial Smothering","authors":"Juliet Hess","doi":"10.18061/dsq.v43i2.8491","DOIUrl":"https://doi.org/10.18061/dsq.v43i2.8491","url":null,"abstract":"This paper explores my active suppression of my bipolar identity as a case of “testimonial smothering” (Dotson, 2011) in the academy. Dotson theorizes testimonial smothering as a distinctly epistemic injustice. I explicate concepts of epistemic injustice—both testimonial and hermeneutical injustice (Fricker, 2007)—and testimonial smothering and argue that the pervasive nature of stereotypes and overarching discourses about Madness in society may lead a person who identifies as Mad to smother their identity. Following a discussion of the ways that people who identify as Mad are subject to epistemic injustice that wrongs them in their capacity as knowers, I point to the necessity of being understood as a “knower” in academia. Subsequently, I argue that having to “pass” as sane constitutes epistemic violence and further explore the distinctly hermeneutical dimensions of the injustice that shapes the often invisibility of Mad people in the academy. Discussion about the complexities of decisions about passing and disclosure follows. I ultimately assert that visibility and representation of Mad people and the recognition of the epistemic value of Mad perspectives are crucial to moving forward.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"1 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140083407","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Designing is Imagining: What Futures and Identities Do Activists With Developmental Disabilities Imagine When Designing For Learners With Developmental Disabilities?","authors":"Marrok Sedgwick, Stephanie Fuller","doi":"10.18061/dsq.v43i2.8879","DOIUrl":"https://doi.org/10.18061/dsq.v43i2.8879","url":null,"abstract":"As learners engage in learning environments, they constantly co-develop ideas about who they are (their identities), and who they can become (their futures). Designers of learning activities make assumptions about what learner identities and imagined futures learners will ultimately take up. Learning activity designers with developmental disabilities who identify as activists may make assumptions about learners with developmental disabilities that other designers would not.  Working from a critical disability praxis orientation, the research was led by a person with a developmental disability. This study utilized a grounded theory approach to discourse analysis to analyze the design talk between two adult activists with developmental disabilities while they engaged in a co-design process to create a learning activity intended for learners with developmental disabilities who use Augmentative and Alternative Communication (AAC). The activity was a game that explores inductive logic. Discourse was analyzed to understand what imagined futures and learner identities these activists assumed learners with developmental disabilities might take up. These activists imagined learners with developmental disabilities who use AAC as being inquisitive, interdependent, and ableism literate, and capable of achieving futures that were validating, inquisitive, accessible, and ableism-literate. These futures and identities suggest that future participatory design research with adults and youth with developmental disabilities might yield innovative curriculum designs.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140091376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Disability in Narrative Inquiry: A Case of Methodologically Unusable Data from a Participant with Intellectual Disability","authors":"Susan Flynn","doi":"10.18061/dsq.v43i2.8516","DOIUrl":"https://doi.org/10.18061/dsq.v43i2.8516","url":null,"abstract":"This paper considers methodological and ethical implications of qualitative interview data deemed unusable for research analytic purposes because the interviewee had an intellectual disability. Critical disability studies theory is used to reimagine the utility of one case of so-called unusable qualitative data. Excerpts from this qualitative data that came from a pilot study interview of a PhD project are full of possibility for learning. Yet, among conclusions drawn, rhetoric about disability inclusion appears undermined by ableist normativity. Specifically, the problems associated with valuing abled ways of speaking within wider narrative research and scholarship will be the focus of this article.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"101 36","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140090099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bed/Life: Chronic Illness, Postcolonial Entanglements, and Queer Intimacy in the Stay","authors":"Heidi andrea restrepo Rhodes","doi":"10.18061/dsq.v43i1.9664","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9664","url":null,"abstract":"In the conceptual sculpture titled, I Think We’re Alone Now (Host), Constantina Zavitsanos presents the bed as a site of desire, intimacy, and horizon for the sick/disabled queer body, bringing a multitude of meanings to the notion of “host.” This paper engages this artwork considering the politics and poetics of hosting and “the stay” as queer intimacies are formed in and with bodies—both in the chronicity of pathogenic presence effected through transnational flows of medical coloniality; and as an anti-colonial practice of disalienation, hospitality, and invitation into the erotic and social life lived in the space of the bed. I approach this work of disability scholarship through a feminist understanding that chronic illness is a condition of global entanglement within the colonial and postcolonial milieu of racial capitalism, its afterlives, and its historical traumas. To host challenges the notion that to be chronically sick and bedbound is an existence delimited by isolation and social death produced in the bedbound subject as one denied full entry into the western, liberal, public-political articulation of the human. I reflect on what it means to be a queer, brown, sick/disabled body and turn toward the possibilities of the bed as a material spacetime and hermeneutic for alternative expressions of aliveness through stillness and immobility as the entanglements of our histories and medical conditions also open space for our entangled practices of countermemory and ontological disobedience: how we refuse to be colonized objects of ruin. As settler colonial framings of illness evoke an always-already racialized diagnostic apparatus through which surveillance, impugnment, negation, and alienation are deployed via the medical industrial complex and the medical gaze as a subjugating mode of relation, bedlife is a vital counterpoint to this violence, a portal to crip fugitivity, existential and political affirmation, and connection. Finally, through encountering different artworks, this essay explores the linkages between intimacy and future-making, collapsing the space between queer desire for each other and one another’s bodies, and the particularly queer politics of desire for a world unbound by oppressive structures and the limitations of imposed binaries. Against what disability scholars Eli Clare and Eunjung Kim, among others, have critiqued as the hegemonic imperative toward cure, which seeks to get us out of bed and into capitalism’s racist and ableist coercive temporalities, this paper looks to the bed as a heuristic and material site for a radical politics of feminist carework, queer desire, crip time, and decolonial worldmaking. What it is to want — in all its senses, suggests there is a relevant kind of intimacy between what we are denied as sick and disabled queers in a heterosexist society founded on racial capitalism and colonial regimes of body, self and other—and how we share closeness, cultivating desire for each other and other","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 45","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138615735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“Yanqui-man Put Roots on Her”: Afro-Religiosity and (Dis)abilities in Nelly Rosario’s Song of the Water Saints","authors":"Eun-Jin Keish Kim","doi":"10.18061/dsq.v43i1.9686","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9686","url":null,"abstract":"This essay analyzes (dis)ability at the intersection of colonialism, afro-religiosity, and literary studies to reassess illness and (dis)ability under histories of racialization. I approach Nelly Rosario’s novel Song of the Water Saints (2002) as a “texto montado” (possessed text), following Lorgia García Peña (2016), to suggest an alternative reading of (dis)ability in diasporic texts, particularly in relation to Afro-religiosity and colonial violence. By bringing together the history of colonial erasure of Afro-religiosity and violence against Black and poor women, this essay examines the stages of syphilis on the protagonist’s, Graciela, body and life alongside the material impacts of U.S. occupation of the Dominican Republic (1916-1924). If readers are to take the story of Graciela’s life as one of the erased and unrecorded narratives in the colonial archives, how do we make sense of the otherworldly ontology accessed through (dis)abilities offered toward the end of Graciela’s life? Rosario’s novel is a practice of truth-telling and a resistance against the erasure of Dominican women’s stories of violence and power. Finally, this essay demonstrates the possibilities of bringing together Afro-religious ontologies and disability studies to expand our understanding of (dis)ability as a condition of becoming imbricated within colonial and imperial history.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"83 s368","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138621837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Madness/Disability as “Spectral Presence” in The Woman Warrior: Confusing Hegemonic Categories Through a Mad Asian American Modality","authors":"Lzz Johnk","doi":"10.18061/dsq.v43i1.9678","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9678","url":null,"abstract":"Following queer crip theorists like Sami Schalk, Aurora Levins Morales, and Leah Lakshmi Piepzna-Samarasinha, this piece roots genealogies and origin stories of Disability Studies and Mad Studies in women of color feminist scholarship-activism. I offer an analysis of Maxine Hong Kingston’s enactment of a Mad Asian American modality in The Woman Warrior to locate examples of how women of color feminisms shift conceptual, methodological, pedagogical, and activist frameworks on Madness/disability. By thinking together Nirmala Erevelles’ historical materialist perspective on haunting with Yen Li Loh’s conceptualization of The Woman Warrior’s Mad women as “inhuman ghosts” (2018, 231), I assert that Kingston’s Mad Asian American modality blurs distinctions between human/nonhuman, past/present/future, and discourse/matter. Through the stories of Maxine and her family, Kingston engages in what I read as a form of Mad/crip of color critique, calling attention to the failure of whitestream Mad/Disability Studies to examine the entanglement of race, gender, and Madness/disability under the white supremacist settler colonial state. Kingston’s method of blurring reveals that the radical potential of Madness/disability lies in the ways that marginalized bodymind difference generatively confuses binary categories of eurowestern worldview and creates alternative modalities for living, being, and relating outside of white supremacist colonial cisheteropatriarchy.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"1 1‐6","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138625982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Keller Plantation and the Racial Plot of Disability History in the U.S.","authors":"Camille Owens","doi":"10.18061/dsq.v43i1.9649","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9649","url":null,"abstract":"Between the popularization of Helen Keller’s autobiography, The Story of My Life (1903), and the cinematic dramatization of The Miracle Worker (1962), scenes of Keller’s early life and education have served as touchstones through which nondisabled Americans have imagined disability’s history and narrowed its political possibilities: toward the conditional dispersal of access based on individual acts of overcoming. Yet, if Keller’s story has played an outsize role in consolidating disability’s history and politics, it is also a site of profound racial occlusion. The context of Keller’s early life on the Keller plantation in Tuscumbia, Alabama is largely absent from her popular legacy. With the disappearance of this context, the black people who facilitated Keller’s disabled coming of age have also fallen away, as well as the history of slavery and Indigenous removal that made her life story possible. This void—at the locus of perhaps the most hegemonic origin story of American disability history—is cause for critical race inquiry. This essay traces the relationship between the material background of Keller’s autobiography and its imaginative foreground; from her family’s role in settler conquest and slavery in the Alabama Muscle Shoals, to Keller’s status as a transcendent icon of disability. Reading between the plantation and the plot of Keller’s Story while locating both beside the Tennessee River’s shoals, this essay turns to theories of cartography and narrative authored by Sylvia Wynter and Tiffany Lethabo King for insight into a critical paradox: the antiblack and anti-Indigenous structure of ableism, and the whiteness of disabled representation. By resituating Keller’s iconicity in relation to conquest, slavery, and their afterlives, this essay locates the problems and possibilities of narrating black and Indigenous disability history from the Keller plantation’s surround. Yet, while invested in unsettling the landscape, I neither recover these stories nor entomb them as untellable. Instead, I write toward further investment in black and Indigenous counter-archives that have complicated who has been—and who remains—the imaginable and politically traction-able subject of disability.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 13","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138616970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cross-Coalitional Anti-Racist and Anti-Ableist Movements? Building on Maroon/Fugitive Knowledges and Global South Epistemologies","authors":"Alexis Padilla","doi":"10.18061/dsq.v43i1.9660","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9660","url":null,"abstract":"The present essay interrogates cross-coalitional, anti-racist and anti-ableist movement building in the global north and in the global south through the perspectives of fugitive, maroon knowledges and global south epistemologies. The essay builds upon the theoretical grounding offered by LatDisCrit through its integrative bridging work across DisCrit and LatCrit theory and its prioritization of diasporic, sociopolitical engagements with sociohistorical manifestations of trans-Latinidades throughout U.S. imperial territorialities. As such, the essay relies on the use of counterstorytelling as a hermeneutic method which surfaces otherwise hidden dimensions of global south epistemologies that in this essay are operationalized as knowledges born in the struggle, regardless of whether the struggle in question takes place in global north, global south contexts, or both. The essay concludes with critical explorations on the concept of quilombo. This notion is proposed as a possibilitarian space for cross-coalitional resistance, emancipatory learning, radical agency and radical solidarity.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 12","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138618252","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What I have learned (fill in the blank)","authors":"Chanika Svetvilas","doi":"10.18061/dsq.v43i1.9665","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9665","url":null,"abstract":"My artistic practice focuses on the intersectionality of my lived experience of mental health difference as a Thai American woman who has contended with the impacts of the stigma and inequities in mental health care and access.  Having been diagnosed with bipolar, I explore my way of being through my art and seek to assess and illuminate my lived experiences through the lens of disability justice and mad pride. My “archive” consists of medication guides, prescription bottles, historical and psychiatric resource materials, and medical texts that discuss mental health conditions. I use these texts and artifacts in my art and investigate systemic and historical legacies to find strength in vulnerability.\u0000In my large scale drawings, I use charcoal because of its transformative origins from solid matter and to  acknowledge that its activated form absorbs chemicals after a stomach is pumped following an overdose. The smeared charcoal emphasizes  outlandishness and an unwillingness to conform, as I resist containment and being categorized. In affirming freedom and individuality, I  reveal the human touch behind the marks and processes that spill off the page and ignore the margins.\u0000Created during the pandemic, my large scale series of over 80 drawings, “What I have learned. (Fill in the blank.)” on oversized lined paper, 36” x 24,” questions how we learn, who is the “educator” and how do we unlearn harm.  I mine interactions, relationships and responses to my being from micro aggressions, to stigma, racism, and ableism as well as reflect on current anti-Asian violence.\u0000By sharing these texts and images, I allow others who might identify with these experiences to enter a safe space and connect to others to build a community in pursuit of disability justice.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 56","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138612228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Milky Appetites: The Foods that Make Us Human","authors":"Athia N. Choudhury","doi":"10.18061/dsq.v43i1.9679","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9679","url":null,"abstract":"This article follows American milk powder through its many iterations and afterlives: as domestic health food, militarized technology in Asia and its diaspora, and as a symbol of modern health on a global stage. What intimacies of empire might we find by following the shifting sentiments around powdered/skimmed milk consumption? Moreover, how does sifting through this minor history allow us to interrogate the politics of body sovereignty and surveillance as it is scaled transnationally. This article argues that an appetite for dairy was encouraged through various national public sensing projects that made eugenics principles accessible for ordinary audiences as an embodied science of the home. Analyzing the military and weight-loss circuits of powdered/skim demonstrates how government agencies, corporations, medical practitioners, home economists, and other public health workers conjured images of healthy nations and abled-citizens through dairy consumption---often targeting women, children, and racialized subjects as sites of reform through weight management. Bodies that were seen as undesirable–whether too fat or too thin, too sick or too feeble–could be fixed by reforming the appetite. Reading mid-20th century dietetics, U.S. Department of Agriculture archives, and Asian diasporic literature on dairy production and consumption, the case studies in this article elucidate how U.S.-led food literacy and foreign aid campaigns, bolstered by wartime experiments, sought to expand U.S. imperial soft power through wellness technologies. “Milky Appetites” offers a study of desire for national and individual health and wellness as structures of imperialism felt on the body.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 9","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138618011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}