Disability Studies Quarterly最新文献

{"title":"Disability in Narrative Inquiry: A Case of Methodologically Unusable Data from a Participant with Intellectual Disability","authors":"Susan Flynn","doi":"10.18061/dsq.v43i2.8516","DOIUrl":"https://doi.org/10.18061/dsq.v43i2.8516","url":null,"abstract":"This paper considers methodological and ethical implications of qualitative interview data deemed unusable for research analytic purposes because the interviewee had an intellectual disability. Critical disability studies theory is used to reimagine the utility of one case of so-called unusable qualitative data. Excerpts from this qualitative data that came from a pilot study interview of a PhD project are full of possibility for learning. Yet, among conclusions drawn, rhetoric about disability inclusion appears undermined by ableist normativity. Specifically, the problems associated with valuing abled ways of speaking within wider narrative research and scholarship will be the focus of this article.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"101 36","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140090099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bed/Life: Chronic Illness, Postcolonial Entanglements, and Queer Intimacy in the Stay","authors":"Heidi andrea restrepo Rhodes","doi":"10.18061/dsq.v43i1.9664","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9664","url":null,"abstract":"In the conceptual sculpture titled, I Think We’re Alone Now (Host), Constantina Zavitsanos presents the bed as a site of desire, intimacy, and horizon for the sick/disabled queer body, bringing a multitude of meanings to the notion of “host.” This paper engages this artwork considering the politics and poetics of hosting and “the stay” as queer intimacies are formed in and with bodies—both in the chronicity of pathogenic presence effected through transnational flows of medical coloniality; and as an anti-colonial practice of disalienation, hospitality, and invitation into the erotic and social life lived in the space of the bed. I approach this work of disability scholarship through a feminist understanding that chronic illness is a condition of global entanglement within the colonial and postcolonial milieu of racial capitalism, its afterlives, and its historical traumas. To host challenges the notion that to be chronically sick and bedbound is an existence delimited by isolation and social death produced in the bedbound subject as one denied full entry into the western, liberal, public-political articulation of the human. I reflect on what it means to be a queer, brown, sick/disabled body and turn toward the possibilities of the bed as a material spacetime and hermeneutic for alternative expressions of aliveness through stillness and immobility as the entanglements of our histories and medical conditions also open space for our entangled practices of countermemory and ontological disobedience: how we refuse to be colonized objects of ruin. As settler colonial framings of illness evoke an always-already racialized diagnostic apparatus through which surveillance, impugnment, negation, and alienation are deployed via the medical industrial complex and the medical gaze as a subjugating mode of relation, bedlife is a vital counterpoint to this violence, a portal to crip fugitivity, existential and political affirmation, and connection. Finally, through encountering different artworks, this essay explores the linkages between intimacy and future-making, collapsing the space between queer desire for each other and one another’s bodies, and the particularly queer politics of desire for a world unbound by oppressive structures and the limitations of imposed binaries. Against what disability scholars Eli Clare and Eunjung Kim, among others, have critiqued as the hegemonic imperative toward cure, which seeks to get us out of bed and into capitalism’s racist and ableist coercive temporalities, this paper looks to the bed as a heuristic and material site for a radical politics of feminist carework, queer desire, crip time, and decolonial worldmaking. What it is to want — in all its senses, suggests there is a relevant kind of intimacy between what we are denied as sick and disabled queers in a heterosexist society founded on racial capitalism and colonial regimes of body, self and other—and how we share closeness, cultivating desire for each other and other","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 45","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138615735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“Yanqui-man Put Roots on Her”: Afro-Religiosity and (Dis)abilities in Nelly Rosario’s Song of the Water Saints","authors":"Eun-Jin Keish Kim","doi":"10.18061/dsq.v43i1.9686","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9686","url":null,"abstract":"This essay analyzes (dis)ability at the intersection of colonialism, afro-religiosity, and literary studies to reassess illness and (dis)ability under histories of racialization. I approach Nelly Rosario’s novel Song of the Water Saints (2002) as a “texto montado” (possessed text), following Lorgia García Peña (2016), to suggest an alternative reading of (dis)ability in diasporic texts, particularly in relation to Afro-religiosity and colonial violence. By bringing together the history of colonial erasure of Afro-religiosity and violence against Black and poor women, this essay examines the stages of syphilis on the protagonist’s, Graciela, body and life alongside the material impacts of U.S. occupation of the Dominican Republic (1916-1924). If readers are to take the story of Graciela’s life as one of the erased and unrecorded narratives in the colonial archives, how do we make sense of the otherworldly ontology accessed through (dis)abilities offered toward the end of Graciela’s life? Rosario’s novel is a practice of truth-telling and a resistance against the erasure of Dominican women’s stories of violence and power. Finally, this essay demonstrates the possibilities of bringing together Afro-religious ontologies and disability studies to expand our understanding of (dis)ability as a condition of becoming imbricated within colonial and imperial history.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"83 s368","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138621837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Madness/Disability as “Spectral Presence” in The Woman Warrior: Confusing Hegemonic Categories Through a Mad Asian American Modality","authors":"Lzz Johnk","doi":"10.18061/dsq.v43i1.9678","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9678","url":null,"abstract":"Following queer crip theorists like Sami Schalk, Aurora Levins Morales, and Leah Lakshmi Piepzna-Samarasinha, this piece roots genealogies and origin stories of Disability Studies and Mad Studies in women of color feminist scholarship-activism. I offer an analysis of Maxine Hong Kingston’s enactment of a Mad Asian American modality in The Woman Warrior to locate examples of how women of color feminisms shift conceptual, methodological, pedagogical, and activist frameworks on Madness/disability. By thinking together Nirmala Erevelles’ historical materialist perspective on haunting with Yen Li Loh’s conceptualization of The Woman Warrior’s Mad women as “inhuman ghosts” (2018, 231), I assert that Kingston’s Mad Asian American modality blurs distinctions between human/nonhuman, past/present/future, and discourse/matter. Through the stories of Maxine and her family, Kingston engages in what I read as a form of Mad/crip of color critique, calling attention to the failure of whitestream Mad/Disability Studies to examine the entanglement of race, gender, and Madness/disability under the white supremacist settler colonial state. Kingston’s method of blurring reveals that the radical potential of Madness/disability lies in the ways that marginalized bodymind difference generatively confuses binary categories of eurowestern worldview and creates alternative modalities for living, being, and relating outside of white supremacist colonial cisheteropatriarchy.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"1 1‐6","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138625982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What I have learned (fill in the blank)","authors":"Chanika Svetvilas","doi":"10.18061/dsq.v43i1.9665","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9665","url":null,"abstract":"My artistic practice focuses on the intersectionality of my lived experience of mental health difference as a Thai American woman who has contended with the impacts of the stigma and inequities in mental health care and access.  Having been diagnosed with bipolar, I explore my way of being through my art and seek to assess and illuminate my lived experiences through the lens of disability justice and mad pride. My “archive” consists of medication guides, prescription bottles, historical and psychiatric resource materials, and medical texts that discuss mental health conditions. I use these texts and artifacts in my art and investigate systemic and historical legacies to find strength in vulnerability.\u0000In my large scale drawings, I use charcoal because of its transformative origins from solid matter and to  acknowledge that its activated form absorbs chemicals after a stomach is pumped following an overdose. The smeared charcoal emphasizes  outlandishness and an unwillingness to conform, as I resist containment and being categorized. In affirming freedom and individuality, I  reveal the human touch behind the marks and processes that spill off the page and ignore the margins.\u0000Created during the pandemic, my large scale series of over 80 drawings, “What I have learned. (Fill in the blank.)” on oversized lined paper, 36” x 24,” questions how we learn, who is the “educator” and how do we unlearn harm.  I mine interactions, relationships and responses to my being from micro aggressions, to stigma, racism, and ableism as well as reflect on current anti-Asian violence.\u0000By sharing these texts and images, I allow others who might identify with these experiences to enter a safe space and connect to others to build a community in pursuit of disability justice.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 56","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138612228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Milky Appetites: The Foods that Make Us Human","authors":"Athia N. Choudhury","doi":"10.18061/dsq.v43i1.9679","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9679","url":null,"abstract":"This article follows American milk powder through its many iterations and afterlives: as domestic health food, militarized technology in Asia and its diaspora, and as a symbol of modern health on a global stage. What intimacies of empire might we find by following the shifting sentiments around powdered/skimmed milk consumption? Moreover, how does sifting through this minor history allow us to interrogate the politics of body sovereignty and surveillance as it is scaled transnationally. This article argues that an appetite for dairy was encouraged through various national public sensing projects that made eugenics principles accessible for ordinary audiences as an embodied science of the home. Analyzing the military and weight-loss circuits of powdered/skim demonstrates how government agencies, corporations, medical practitioners, home economists, and other public health workers conjured images of healthy nations and abled-citizens through dairy consumption---often targeting women, children, and racialized subjects as sites of reform through weight management. Bodies that were seen as undesirable–whether too fat or too thin, too sick or too feeble–could be fixed by reforming the appetite. Reading mid-20th century dietetics, U.S. Department of Agriculture archives, and Asian diasporic literature on dairy production and consumption, the case studies in this article elucidate how U.S.-led food literacy and foreign aid campaigns, bolstered by wartime experiments, sought to expand U.S. imperial soft power through wellness technologies. “Milky Appetites” offers a study of desire for national and individual health and wellness as structures of imperialism felt on the body.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 9","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138618011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"On the Question of Soul Wounding: Secular Debility, Biopolitics, and Canada's Right to Maim","authors":"Faye M. Fraser","doi":"10.18061/dsq.v43i1.9661","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9661","url":null,"abstract":"Jasbir Puar has demonstrated that the targeted debilitation of entire racialized populations embodies a contemporary illustration of colonialism’s machine.  For Puar, colonizing states exist as biopolitical assemblages of control, the technologies of which instrumentalize a spectrum of debilities and capacities in the service of neoliberal colonialism, which requires maiming populations who are preconditioned for injury to secure sovereign power. This paper stages a conversation with Jasbir Puar to ask what additional insights might be gained about the relationship between colonialism and debility if critical disability scholarship went beyond a Foucauldian biopolitical analysis of the management of life, death, and debility when theorizing colonial violence. This paper thus reads across postcolonial and anti-colonial thought as well as Indigenous theories of trauma to encourage critical disability studies to expand the horizon of its reading practices when engaging these questions. These approaches, I maintain, provide critical insights into sovereign power that biopolitics cannot, including critical attention to non-secular configurations of settler colonial debility that biopolitical theory misses. I aim to show that a locus of Canada’s colonial sovereignty resides in targeted attacks, or “dis-membering,” forms of Indigenous non-secular transcendent self-consciousness—that is, the sanctioned maiming of Indigenous heterogeneous agencies in the service of neocolonial economic designs. In this sense, theories of metaphysics and violence must also be accounted for when attending to debility, colonialism, and sovereign power.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"105 15","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138607803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Signs of Grace: Protestant Pro-slavery Rhetoric of Disability in the 19th Century","authors":"Calli Micale","doi":"10.18061/dsq.v43i1.9663","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9663","url":null,"abstract":"This archival analysis of 19th-century Protestant pro-slavery rhetoric shows that positive evaluations of disability concealed debilitation practices on plantations. The examination complicates a narrative in disability histories that associates Christian teaching with only a negative evaluation of disability as indexing a state of sin. Instead, the article explains how positive and negative evaluations of intellectual deficiency coalesced within a theological imaginary to shore up white Christian consciences, allowing for and encouraging the violence perpetrated against the enslaved. The article concludes, following Jasbir Puar and Julie Avril Minich, to query whether re-inscribing a positive evaluation of disability does disability justice?","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 68","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138611983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mental Health vs Mutual Aid: Competing Visions of Care in Black-authored Films in the 1970s","authors":"Olivia Banner","doi":"10.18061/dsq.v43i1.9681","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9681","url":null,"abstract":"This article considers two little-noted films from the early 1970s that took up a Black politics of \"mental health.\" Both films intervened into racial-liberalist psychiatric and social scientific discourses of \"Black pathologies\" by drawing from Black radical and community-organizing models to envision how to care for people in distress outside of dominant psychiatric and psychological discourses and institutions. With shared production and institutional contexts yet differing articulations of what radical forms of care looked like both in practice, in narrative, and in mediation, these two films deepen our understanding of what form a Black disability politics of mental health took in this era. They also expand how disability studies as well as disability media studies frame the connections among anti-psychiatry and mad studies movements, Black radicalism and organizing, and cultural production.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":"28 31","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138624077","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"(Re)centering the Knowledge of Disabled Activists, Poverty Scholars, and Community Scholars of Color to Transform Education","authors":"Lydia X. Z. Brown, Brianna Dickens, T. Gray-Garcia, Saili S. Kulkarni, Lateef McLeod, Amanda L. Miller, Emily A. Nusbaum, Holly Pearson","doi":"10.18061/dsq.v43i1.9693","DOIUrl":"https://doi.org/10.18061/dsq.v43i1.9693","url":null,"abstract":"This duoethnography weaves the experiences and perspectives of disabled activists, poverty scholars, community scholars of color, and university-based scholars partnering on a teacher preparation professional development project that (re)centers disability and its intersections by (a) reconsidering who creates knowledge, (b) positioning disabled activists, poverty scholars, and community scholars of color as experts with pedagogical authority, and (c) providing opportunities for teacher candidates (current and future teachers) to learn from activists and scholars in accessible, online spaces. The experiences and perspectives of multiply marginalized disabled youth and adults are often ignored and/or discounted in teacher preparation programs. However, one way to re-zone and re-people disability studies in teacher education is by teaching and learning at the intersections of critical race studies and disability studies through cross-coalitional community-university partnerships.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138615262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}