Disability Studies Quarterly最新文献

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The Essential Work of Crip Resistance: Demanding Dignity in Spain's Pandemic Austerity 抗击婴儿潮的重要工作:在西班牙疫情紧缩中要求尊严
Disability Studies Quarterly Pub Date : 2021-09-13 DOI: 10.18061/dsq.v41i3.8353
Erika Rodríguez
{"title":"The Essential Work of Crip Resistance: Demanding Dignity in Spain's Pandemic Austerity","authors":"Erika Rodríguez","doi":"10.18061/dsq.v41i3.8353","DOIUrl":"https://doi.org/10.18061/dsq.v41i3.8353","url":null,"abstract":"This article considers crip resistance to the politics of austerity with which Spain's government has reacted to the COVID-19 pandemic, roughly a decade after the 15-M anti-austerity movement and its occupations. Given the intensification of austerity politics and their effects on people with disabilities, I examine three instances of crip resistance and their virtual, local, and global settings. Beyond McRuer's expansive view of crip resistance as comprised of tactics that center disability against global austerity, my analysis establishes its groundwork in the current demands by Spanish disability advocacy groups and on Javier Romañach's modelo de diversidad funcional, the prevalent model of disability among Spanish disability activists that centers the concept of dignity. Throughout this analysis, I demonstrate how crip tactics that emerge in a crisis can help make sense of a continuing emergency as they challenge the existing conditions of cultural austerity and contribute to the concept of dignity as an organizing principle.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42294086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
"Can you HEAR my FEAR?" A Korean immigrant with hearing loss reflects on surviving the COVID-19 pandemic in the United States “你能听到我的恐惧吗?”一位听力受损的韩国移民正在反思在美国新冠肺炎疫情中幸存下来的经历
Disability Studies Quarterly Pub Date : 2021-09-13 DOI: 10.18061/dsq.v41i3.8354
J. Hong
{"title":"\"Can you HEAR my FEAR?\" A Korean immigrant with hearing loss reflects on surviving the COVID-19 pandemic in the United States","authors":"J. Hong","doi":"10.18061/dsq.v41i3.8354","DOIUrl":"https://doi.org/10.18061/dsq.v41i3.8354","url":null,"abstract":"This paper presents the perception and associated experiences of a Korean hard-of-hearing immigrant special education researcher as the COVID-19 pandemic unfolded. These experiences include the rise of hate crimes against Asian Americans; increasing evidence that face coverings are a vital public health tool; the knowledge that face coverings can increase the risk of racist violence; and difficulty communicating with people who are wearing most face coverings due to being hard-of-hearing. It provides supportive resources, strategies, and hope for educators, disability rights advocates, and families of individuals who are Deaf or hard-of-hearing, promoting public awareness and embrace of difference.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48841899","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Reports on the materiality of disability in the face of the Covid-19 pandemic from a damaged land 在遭受破坏的土地上,面对Covid-19大流行,残疾的重要性报告
Disability Studies Quarterly Pub Date : 2021-09-13 DOI: 10.18061/dsq.v41i3.8432
N. Meinerz, Débora Allebrandt, Agaítalo Vasconcelos Júnior
{"title":"Reports on the materiality of disability in the face of the Covid-19 pandemic from a damaged land","authors":"N. Meinerz, Débora Allebrandt, Agaítalo Vasconcelos Júnior","doi":"10.18061/dsq.v41i3.8432","DOIUrl":"https://doi.org/10.18061/dsq.v41i3.8432","url":null,"abstract":"This article aims to describe changes in the routine of people with disabilities in face of Covid19 pandemic and the ongoing coping measures underway in the state of Alagoas, in northeast Brazil. Data from in-depth interviews with subjects marked by different experiences of visual, hearing, motor and intellectual impairment are analyzed here. Participants are part of an extension project, started in 2019, under the responsibility of the first author of this article. The project changed the routine of the university in face of the presence, circulation and engagement of bodies and minds that escape the conventions of normality in the academic space. The interactions, mediated by a series of applications of digital communication, addressed the following issues: 1) the loss of individual and/or family income resulting from the pandemic, and its impact on their material conditions of existence; 2) the emergence of new demands related to physical and mental health as well as changes in previous therapeutic strategies; 3) the characterization of access to communication technologies, the new possibilities and restrictions for maintaining extra-family bonds, such as contact with friends, participation in social mobilizations and in academic activities. In the analysis, we focused on the mutual dynamics of care, especially the engagement in support and assistance practices from family and friends. The attention to changes in the environment from the different collective demands in face of the pandemic exposes some displacements in the ways of embodying disability as well as the ability to give powerful responses to complex demands for adaptation. The intersection between different social markers of difference, like race, gender and class is also central to the identification of continuities, which involve the pre-existence of physical distance as a reality of disability.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45250771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
The Villain Unmasked: COVID-19 and the Necropolitics of the Anti-Mask Movement 揭开面具的恶棍:COVID-19和反面具运动的死亡政治
Disability Studies Quarterly Pub Date : 2021-09-13 DOI: 10.18061/dsq.v41i3.8343
Jordan Grunawalt
{"title":"The Villain Unmasked: COVID-19 and the Necropolitics of the Anti-Mask Movement","authors":"Jordan Grunawalt","doi":"10.18061/dsq.v41i3.8343","DOIUrl":"https://doi.org/10.18061/dsq.v41i3.8343","url":null,"abstract":"Despite over 2 million deaths from COVID-19, the Anti-Mask movement has grown in Conservative spaces. This article takes a closer look at the breadth of the Anti-Mask movement, unpacking specific signs, cards, and anthems. I explore the necropolitical implications of their rhetoric, critiquing the ways American Conservative leadership, through the megaphone of the Trump administration, Senator Cruz, and Governor Kemp, facilitate this rhetoric. I aim to contextualize their rationale and explore how the rhetoric surrounding refusing to wear a mask ultimately leaves us with the harsh reality that they, and the politicians who support them, prioritize individual comfort over protecting vulnerable lives.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47906035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 9
De-Masking deafness: Unlearning and Reteaching Disability During a Pandemic 去掩蔽耳聋:大流行期间的遗忘和再教育残疾
Disability Studies Quarterly Pub Date : 2021-09-13 DOI: 10.18061/dsq.v41i3.8329
Sara Kersten-Parrish
{"title":"De-Masking deafness: Unlearning and Reteaching Disability During a Pandemic","authors":"Sara Kersten-Parrish","doi":"10.18061/dsq.v41i3.8329","DOIUrl":"https://doi.org/10.18061/dsq.v41i3.8329","url":null,"abstract":"In academic writing about disability, the impetus is typically used to subvert society's ableist structures and challenge misconceptions and misunderstanding around disability. However, due to the world-wide spread of COVID-19 and the restrictions put in place to reduce the virus's impact, such as asking people to wear masks in public places and the closing of universities and moving to entirely online learning, the author, who is deaf, found herself vulnerable and confronting a lack of access due to these measures. This reflexive paper will investigate how the pandemic and its effects forced the author to reconsider her ownership of her deafness. It will add to a growing body of autoethnographic disability research by contributing another facet to understandings around disability and self as they are actualized in the midst of the pandemic.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43318986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 7
Disparities between Adolescents with and without Disabilities in the Transition to Adulthood 残疾青少年与非残疾青少年在向成年过渡过程中的差异
Disability Studies Quarterly Pub Date : 2021-06-15 DOI: 10.18061/DSQ.V41I2.8045
A. Krause, Koji Ueno
{"title":"Disparities between Adolescents with and without Disabilities in the Transition to Adulthood","authors":"A. Krause, Koji Ueno","doi":"10.18061/DSQ.V41I2.8045","DOIUrl":"https://doi.org/10.18061/DSQ.V41I2.8045","url":null,"abstract":"Using the National Longitudinal Study of Adolescent to Adult Health (Add Health), we analyzed whether having any disability and having specific types of disabilities in adolescence were linked to the level of success in the attainment of five adulthood markers: college degree, employment, independent living, marriage, and parenthood. Using Poisson regression, we found a negative association between having a disability and the number of adulthood markers attained. However, disability type moderated this relationship: learning, intellectual, and multiple disabilities were associated with lower chances of attainment while no association was found for physical disability. Intellectual disability showed particularly strong associations. Similar results appeared when analyzing each marker separately in binary logistic regression models. Many previous studies showed disparities in these outcomes using samples that included adults of a wide age range, but the current results based on an adolescent sample show that disparities already exist in young adulthood. Current policies and programs aimed to reduce disparities between people with and without disabilities largely focus on individual efforts by people with disabilities. In light of the present results highlighting the extensive disparities, such policies should consider all key aspects of transitions and focus on institutional redesign.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47794390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Paratextual Labeling of Autistic-Authored YA Fiction as #OwnVoices: How YA Literary Culture Creates Space for Neurodivergent Authorship 自闭症创作的青少年小说的跨文本标签为#自己的声音:青少年文学文化如何为神经分化的作者创造空间
Disability Studies Quarterly Pub Date : 2021-06-15 DOI: 10.18061/DSQ.V41I2.7050
Jason Michael Abad
{"title":"The Paratextual Labeling of Autistic-Authored YA Fiction as #OwnVoices: How YA Literary Culture Creates Space for Neurodivergent Authorship","authors":"Jason Michael Abad","doi":"10.18061/DSQ.V41I2.7050","DOIUrl":"https://doi.org/10.18061/DSQ.V41I2.7050","url":null,"abstract":"This essay considers the effect of #OwnVoices on autistic literary representation by analyzing how autistic authors use paratexts to prescribe for some readers ways of understanding autistic-authored texts while temporarily refraining from prescribing a particular method for others, allowing readers with opposing ideologies to first read the narrative before they encounter the more didactic elements of the text. Building on Gerrard Genette's theorization of the paratext, this essay compares the use of text and paratext in two works of autistic-authored fiction, Corinne Duyvis's  On the Edge of Gone  and Jen Wilde's  Queens of Geek , to that of Mark Haddon's  The Curious Incident of the Dog in the Night-Time , a work of allistic-authored YA fiction. The contrast between these two kinds of texts reveals how #ownvoices texts foreground the positionality of the author in ways that enable rather than foreclose discussions about the ethical representation of autistic people.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43530119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Decolonizing Disability Through Activist Art 通过积极的艺术使残疾去殖民化
Disability Studies Quarterly Pub Date : 2021-06-15 DOI: 10.18061/DSQ.V41I2.7130
Carla M. Rice, S. Dion, Eliza Chandler
{"title":"Decolonizing Disability Through Activist Art","authors":"Carla M. Rice, S. Dion, Eliza Chandler","doi":"10.18061/DSQ.V41I2.7130","DOIUrl":"https://doi.org/10.18061/DSQ.V41I2.7130","url":null,"abstract":"This paper mobilizes activist art at the intersections of disability, non-normativity, and Indigeneity to think through ways of decolonizing and indigenizing understandings of disability. We present and analyze artwork produced by Vanessa Dion Fletcher, the first Indigenous disability-identified Artist-in-Residence for  Bodies in Translation  (BIT), a research project that uses a decolonized, cripped lens to cultivate disabled, D/deaf, fat, Mad, and aging arts on the lands currently known as Canada. We begin by setting the context, outlining why disentangling the disability, non-normativity, and Indigeneity knot is a necessary and urgent project for disability studies and activisms. Drawing on Indigenous ontologies of relationality, we present a methodological guide for our reading of Dion Fletcher's work. We take this approach from her installation piece  Relationship or Transaction ? , which, we argue, foregrounds the need for white settlers to turn a critical gaze on transactional concepts of relationship as integral to a decolonized and an indigenized analysis of disability and non-normative arts. We then centre three original pieces created by Dion Fletcher to surface some of the intricacies of the Indigeneity/disability/non-normativity nexus that complicate recent discussions about recuperating Indigenous concepts of bodymind differences across white supremist settler colonial regimes on Turtle Island (North America) that seek to debilitate Indigenous bodies and lives. We intervene in these debates with reflections on what might be created—and what we might learn—when the categories of Indigeneity and (Western conceptions of) disability and non-normativity are understood as contiguous, particularly focusing on meaning-making within Dion Fletcher's developing oeuvre.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43442845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 6
The unpredictable body, identity, and disclosure: Identifying the strategies of chronically ill students at university 不可预测的身体,身份和披露:确定大学慢性病学生的策略
Disability Studies Quarterly Pub Date : 2021-06-15 DOI: 10.18061/DSQ.V41I2.7049
Louise Toller, H. Farrimond
{"title":"The unpredictable body, identity, and disclosure: Identifying the strategies of chronically ill students at university","authors":"Louise Toller, H. Farrimond","doi":"10.18061/DSQ.V41I2.7049","DOIUrl":"https://doi.org/10.18061/DSQ.V41I2.7049","url":null,"abstract":"The experiences of university students with chronic illnesses have been neglected in previous research, despite the fact that they make up the third largest disability category in the UK. The propensity of chronic illnesses to fluctuate unpredictably sets them apart from other forms of disability, yet little is known about how this inherent uncertainty impacts experiences in higher education, or the strategies students develop in order to simultaneously manage their illness and studies. This article presents a thematic analysis of episodic interviews with 13 current or recent UK university students with chronic illness. One student (Sophia)'s narrative is used as a case study through which the main themes are illustrated, with the stories of other students woven around this, building up a picture of uncertainty and unpredictability.The ill body was consistently experienced as a frustrating barrier around which life had to be reshaped. Utilising university disability support required disclosure and the acceptance of a disabled identity, yet also minimised the intrusion of illness by enabling students to work within their limitations, reducing the risk of symptom exacerbation or relapse.While participants did not struggle to be accepted as disabled or to access support, the fluctuating nature of their chronic illnesses failed to fit the narrower conceptualisations of disability that institutional systems were often created for. Participants felt that the support systems provided were not designed for liminal conditions, that standard support and adjustments were not always relevant to their needs, and that provision was inconsistent. In conclusion, this mismatch between the needs of chronically ill students and support provision demonstrates that gaps between equality policy and practice exist in UK higher education institutions. ","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41745585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Immigration, Disability and Healthcare Access in Brazil 巴西的移民、残疾和医疗服务
Disability Studies Quarterly Pub Date : 2021-06-15 DOI: 10.18061/DSQ.V41I2.7501
S. Serrano, Denise Martin
{"title":"Immigration, Disability and Healthcare Access in Brazil","authors":"S. Serrano, Denise Martin","doi":"10.18061/DSQ.V41I2.7501","DOIUrl":"https://doi.org/10.18061/DSQ.V41I2.7501","url":null,"abstract":"Immigration and refugee status protection are growing phenomena in Brazil and the city of São Paulo is one of the largest hubs in the country for this heterogeneous population. Various studies reveal barriers faced by immigrants and refugees in Brazil to receive quality public healthcare services including linguistic issues, cultural differences, socioeconomic barriers, xenophobia and racism. People with disabilities are another heterogeneous group that encounters barriers in healthcare services in Brazil. Studies reveal that people with disabilities face physical, architectural and ableist attitudinal barriers in healthcare services in the country. This text seeks to highlight the necessity for qualitative research at the intersection of disability, immigration and healthcare in Brazil using international and domestic studies and ethnographic observations of the healthcare experiences of a Bolivian immigrant woman with temporary disabilities and the mother and caregiver of a Bolivian immigrant woman with disabilities in São Paulo, Brazil.","PeriodicalId":55735,"journal":{"name":"Disability Studies Quarterly","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49567089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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