Karin Piil, Giulia Locatelli, Stine Laegaard Skovhus, Anders Tolver, Mary Jarden
{"title":"A Shifting Paradigm Toward Family-Centered Care in Neuro-Oncology: A Longitudinal Quasi-Experimental Mixed-Methods Feasibility Study.","authors":"Karin Piil, Giulia Locatelli, Stine Laegaard Skovhus, Anders Tolver, Mary Jarden","doi":"10.1177/10748407241236678","DOIUrl":"10.1177/10748407241236678","url":null,"abstract":"<p><p>Family-centered intervention can help families facing illness-related issues. We investigated the feasibility of Family and Network Conversations (FNCs) in high-grade glioma patients and their families. Quasi-experimental feasibility study with longitudinal mixed-methods design. Patients and families were invited to three FNCs over 1 year. They completed questionnaires at four time points and expressed their perspectives on the intervention through telephone interviews. Nurses' perspectives were collected in a focus group. Twenty-one patients and 47 family members were included. On average, patients were 66 years old, mainly male, married, living with caregivers, with unifocal cancer. On average, caregivers were 47 years old, mainly female, being spouses or children of the patient. Quantitative and qualitative data did not always match and expanded each other. Nurse-delivered FNCs holistically addressed families' needs while strengthening family's dialogue and union. Nurses felt empowered, underling that advanced competencies were required. Nurse-delivered FNCs are feasible to provide family-centered care, but they should be tailored to each family's needs.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"127-144"},"PeriodicalIF":2.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140295148","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nerea Azcárate-Cenoz, Ana Canga-Armayor, Cristina Alfaro-Díaz, Navidad Canga-Armayor, María Pueyo-Garrigues, Nuria Esandi
{"title":"Family-Oriented Therapeutic Conversations: A Systematic Scoping Review.","authors":"Nerea Azcárate-Cenoz, Ana Canga-Armayor, Cristina Alfaro-Díaz, Navidad Canga-Armayor, María Pueyo-Garrigues, Nuria Esandi","doi":"10.1177/10748407241235141","DOIUrl":"10.1177/10748407241235141","url":null,"abstract":"<p><p>There is increasing evidence that highlights the benefits of Family-oriented Therapeutic Conversations (FAM-TC) for the patient and the family; however, studies show variability regarding the content and the way these interventions are offered. This may hamper its further development in clinical practice. This review systematically maps the available literature on nurse-led FAM-TC and offers a solid synthesis of the characteristic, effectiveness, and feasibility of these interventions. A systematic search in PubMed, CINAHL, Cochrane, Web of Science, PsycINFO, Trip (Turning Research Into Practice), BASE (Bielefeld Academic Search Engine), OATD (Open Access Theses and Dissertations), and ProQuest databases identified 37 studies. The interventions varied in interventionist nurses' profile, the intervention content, or the duration of the sessions offered. Most of the interventions showed beneficial effects on perceived family support and family functioning. This review offers suggestions for future studies, such as the inclusion of specific theoretical frameworks for intervention design, targeting both the patient and the family and offered by nurses with family nursing competency.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"145-173"},"PeriodicalIF":2.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140289412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Adapting Psychosocial Interventions Using Participatory Methods: Lessons Learned for Family Nursing","authors":"Janet A. Deatrick","doi":"10.1177/10748407241232091","DOIUrl":"https://doi.org/10.1177/10748407241232091","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"73 1","pages":""},"PeriodicalIF":3.1,"publicationDate":"2024-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140809773","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cynthia A. Danford, Kim Mooney-Doyle, Janet A. Deatrick, Suzanne Feetham, Deborah Gross, Kathleen A. Knafl, Kyoko Kobayashi, Helene Moriarty, Birte Østergaard, Veronica Swallow
{"title":"Building Family Interventions for Scalability and Impact","authors":"Cynthia A. Danford, Kim Mooney-Doyle, Janet A. Deatrick, Suzanne Feetham, Deborah Gross, Kathleen A. Knafl, Kyoko Kobayashi, Helene Moriarty, Birte Østergaard, Veronica Swallow","doi":"10.1177/10748407241231342","DOIUrl":"https://doi.org/10.1177/10748407241231342","url":null,"abstract":"Family nursing researchers are charged with addressing the conceptual and methodological underpinnings of family research when developing family-focused interventions. Step-by-step guidance is needed that integrates current science of intervention development with family science and helps researchers progress from foundational work to experimental work with policy integration. The purpose of this manuscript is to provide pragmatic, evidence-based guidance for advancing family intervention research from foundational work through efficacy testing. Guidance regarding the development of family interventions is presented using the first three of Sidani’s five-stage method: (a) foundational work to understand the problem targeted for change; (b) intervention development and assessment of acceptability and feasibility; and (c) efficacy testing. Each stage of family intervention development is described in terms of process, design considerations, and policy and practice implications. Examples are included to emphasize the family lens. This manuscript provides guidance to family scientists for intervention development and implementation to advance family nursing science and inform policy.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":""},"PeriodicalIF":3.1,"publicationDate":"2024-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140613906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Translation and Psychometric Validation of the German Version of the Iceland–Family Perceived Support Questionnaire (ICE-FPSQ): A Cross-Sectional Study","authors":"Katinka Freudiger, Lotte Verweij, Rahel Naef","doi":"10.1177/10748407241234262","DOIUrl":"https://doi.org/10.1177/10748407241234262","url":null,"abstract":"Supporting families experiencing critical illness through family interventions is essential to ease illness burden, enable family management, and reduce their risk for adverse health. Thus far, there is no validated German instrument to measure the perceived support families receive from nurses. We translated the 14-item Iceland–Family Perceived Support Questionnaire (ICE-FPSQ) and tested its psychometric properties with 77 family members of intensive care patients. Compared with the original instrument, the construct validity of the German ICE-FPSQ (FPSQ-G) showed unstable results with a partially divergent structure, most likely caused by the limited sample size. The first two principal components explained 61% of the overall variance and a good internal consistency with a Cronbach’s alpha of .92. The FPSQ-G is a promising instrument to measure family members’ perceptions of the support they received from nurses in the acute critical care setting but requires further validation.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"17 1","pages":""},"PeriodicalIF":3.1,"publicationDate":"2024-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140613913","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joel G Anderson, Catherine A Chesla, Hiroki Fukahori, Mariko Sakka, Junko Honda, Mari Ikeda
{"title":"Japanese and U.S. Cultural Exchange: Caring for Aging Family Members in the Community.","authors":"Joel G Anderson, Catherine A Chesla, Hiroki Fukahori, Mariko Sakka, Junko Honda, Mari Ikeda","doi":"10.1177/10748407231222687","DOIUrl":"10.1177/10748407231222687","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"3-6"},"PeriodicalIF":2.9,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139075698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joel G Anderson, Jennifer M Jabson Tree, Jason D Flatt, Jennifer L Smith, Katherine H Morgan, Lora H Beebe, Karen M Rose
{"title":"Use of Digital Health Resources by Sexual and Gender Minority Caregivers of Older Adults: Findings From the 2020 <i>Caregiving in the U.S.</i> Survey.","authors":"Joel G Anderson, Jennifer M Jabson Tree, Jason D Flatt, Jennifer L Smith, Katherine H Morgan, Lora H Beebe, Karen M Rose","doi":"10.1177/10748407231218000","DOIUrl":"10.1177/10748407231218000","url":null,"abstract":"<p><p>We applied Andersen's Behavioral Model of Health Services Use to investigate the health needs and use of digital health resources among sexual and/or gender minority (SGM) caregivers. Data were from the <i>Caregiving in the U.S.</i> 2020 survey. Regression analyses were used to describe associations between predisposing, enabling, and need factors and usage of digital health resources. SGM caregivers provided more hours of care per week, reported higher levels of care intensity, and reported higher physical, emotional, and financial strain compared with non-SGM caregivers. Regression analyses indicated SGM status was a significant predictor of overall use of digital health resources. Younger caregivers, racial minority caregivers, those providing higher levels of care, and those reporting a poorer health status were more likely to use digital health resources. Digital health resources may be useful tools for SGM caregivers of older adults. More research is needed to investigate the reasons SGM caregivers use these resources.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"68-80"},"PeriodicalIF":2.9,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138812399","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jenny Davies, Moira O'Connor, Georgia K B Halkett, Lauren Kelada, Nicholas G Gottardo
{"title":"Grandparents' Experiences of Childhood Cancer: A Qualitative Study.","authors":"Jenny Davies, Moira O'Connor, Georgia K B Halkett, Lauren Kelada, Nicholas G Gottardo","doi":"10.1177/10748407231213862","DOIUrl":"10.1177/10748407231213862","url":null,"abstract":"<p><p>A child's cancer diagnosis has a significant impact on the lives of grandparents. Grandparents experience the stress of worrying about both their adult children and their grandchildren. Our study aimed to explore the lived experience of grandparents of children diagnosed with cancer. A qualitative design involving semi-structured interviews was used and data were analyzed using reflexive thematic analysis. Twenty grandparents aged 41 to 77 years were interviewed. Six themes were identified: (a) Diagnosis: changing everything; (b) Aspects of treatment: A different world; (c) Sandwich generation; (d) Family: Worrying about everyone; (e) Balancing work; and (f) It's like suddenly a door opens. Our study demonstrates the life-changing impact of having a grandchild diagnosed with cancer. It expands on existing knowledge and shows that, due to an aging population and demographic changes, some grandparents must juggle the demands of caring for aging family members and working while supporting adult children and grandchildren.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"30-40"},"PeriodicalIF":2.9,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10788041/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138446875","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Lived Experience of the Dyad and Their Relationships Following a Fetal Death: A Hermeneutic Phenomenological Study.","authors":"Mary Rose McDonough, Danielle Leone-Sheehan","doi":"10.1177/10748407231213085","DOIUrl":"10.1177/10748407231213085","url":null,"abstract":"<p><p>Little is known about the lived experience of the dyad following a fetal death and the impact on relationships. The purpose of this paper is to explore the dyadic relationship between partners, with health care providers, and with the baby's memory after birth. This qualitative study utilized hermeneutic phenomenology. The sample included 10 heterosexual dyads from the United States and Canada. All experienced a fetal death between 6 months and 7 years prior to their interviews. The data revealed three themes: (a) The Dyad Relationship: Moving Through the Experience Together; (b) Keeping the Memory Alive: Memorializing the Baby; and (c) Relationships With Health Care Providers: A Spectrum of Caring. The findings from this study provide the beginning knowledge needed to improve the care of dyads who have experienced a fetal death and for future studies to improve care delivery for dyads as their relationships change after fetal death.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"41-49"},"PeriodicalIF":2.9,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138446876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maria do Carmo Lemos Vieira Gouveia, Eydis Kristin Sveinbjarnardottir, Maria João Barreira Rodrigues, Rita Maria Lemos Baptista Silva, Márcia Sílvia Baptista, Maria Adriana Pereira Henriques
{"title":"Translation, Cultural Adaptation, and Psychometric Validation of the European Portuguese Version of the Iceland-Expressive Family Functioning Questionnaire (ICE-EFFQ).","authors":"Maria do Carmo Lemos Vieira Gouveia, Eydis Kristin Sveinbjarnardottir, Maria João Barreira Rodrigues, Rita Maria Lemos Baptista Silva, Márcia Sílvia Baptista, Maria Adriana Pereira Henriques","doi":"10.1177/10748407231205038","DOIUrl":"10.1177/10748407231205038","url":null,"abstract":"<p><p>A family's experience of mental illness can change the family's functioning. In clinical contexts, valid and reliable instruments that assess family functioning, therapeutic changes, and the effects of family nursing interventions are needed. This study focuses on the linguistic and cultural adaptation of the Iceland-Expressive Family Functioning Questionnaire (ICE-EFFQ) to European Portuguese and examines the psychometric properties of this instrument. A non-random sample of 121 Portuguese depressed patients and their relatives completed the questionnaire. Principal components analysis extracted 4 factors, explaining 55.58% of the total variance. Confirmatory factor analysis revealed acceptable adjustment quality indices. Cronbach's alpha coefficient was adequate for the global scale <i>α</i> = .86 and for the 4 subscales: communication <i>α</i> = .79, expression of emotions <i>α</i> = .68, problem-solving <i>α</i> = .71, and cooperation <i>α</i> = .61. The Portuguese version of ICE-EFFQ is a sensitive, valid, and reliable instrument for use with Portuguese families with adult members with depression and can be valuable in assessing these families' expressive functioning, before and after intervention.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"7-29"},"PeriodicalIF":2.9,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10788046/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}