Journal of Family Nursing最新文献_第8页

The Impact of Parental Presence Restrictions on Canadian Parents in the NICU During COVID-19: A National Survey. COVID-19期间父母在场限制对加拿大新生儿重症监护病房父母的影响:一项全国性调查。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221114326

Marsha Campbell-Yeo, Justine Dol, Holly McCulloch, Brianna Hughes, Amos Hundert, Fabiana Bacchini, Leah Whitehead, Jehier Afifi, Lynsey Alcock, Tanya Bishop, Jon Dorling, Rebecca Earle, Annette Elliott Rose, Darlene Inglis, Carye Leighton, Gail MacRae, Andrea Melanson, C David Simpson, Michael Smit

{"title":"The Impact of Parental Presence Restrictions on Canadian Parents in the NICU During COVID-19: A National Survey.","authors":"Marsha Campbell-Yeo, Justine Dol, Holly McCulloch, Brianna Hughes, Amos Hundert, Fabiana Bacchini, Leah Whitehead, Jehier Afifi, Lynsey Alcock, Tanya Bishop, Jon Dorling, Rebecca Earle, Annette Elliott Rose, Darlene Inglis, Carye Leighton, Gail MacRae, Andrea Melanson, C David Simpson, Michael Smit","doi":"10.1177/10748407221114326","DOIUrl":"https://doi.org/10.1177/10748407221114326","url":null,"abstract":"The purpose of this research was to explore parental perspectives on the impact of parent restrictions imposed in response to the COVID-19 pandemic across Canadian Neonatal Intensive Care Units (NICUs). A co-designed online survey was conducted targeting parents (n = 235) of infants admitted to a Canadian NICU from March 1, 2020, until March 5, 2021. Parents completed the survey from 38 Canadian NICUs. Large variation in the severity of policies regarding parental presence was reported. Most respondents (68.9%) were classified as experiencing high restrictions, with one or no support people allowed in the NICU, and felt that policies were less easy to understand, felt less valued and respected, and found it more challenging to access medicine or health care. Parents reported gaps in care related to self-care, accessibility, and mental health outcomes. There is significant variation in parental restrictions implemented across Canadian NICUs. National guidelines are needed to support consistent and equitable care practices.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":"18-27"},"PeriodicalIF":3.1,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9850074/pdf/10.1177_10748407221114326.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10652805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

The COVID-19 Post Pandemic: Family Nursing Now More Than Ever. COVID-19 后大流行病：家庭护理比以往任何时候都更重要。

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221147965

Hanne Konradsen, Anne Brødsgaard, Birte Østergaard, Cristina García-Vivar, Erla Kolbrun Svavarsdottir, Karin B Dieperink, Lorenz Imhof, Marie Louise A Luttik, Romy Mahrer-Imhof

引用次数: 0

Caregiver Perspectives on the Benefits, Burdens, and Moral Distress of Participation in Cancer Clinical Trials. 护理者对参与癌症临床试验的利益、负担和道德困境的看法。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221098187

Cynthia P Paidipati, Anessa M Foxwell, Kim Mooney-Doyle, Deborah Tiller, Jennifer Pinto-Martin, Connie M Ulrich

{"title":"Caregiver Perspectives on the Benefits, Burdens, and Moral Distress of Participation in Cancer Clinical Trials.","authors":"Cynthia P Paidipati, Anessa M Foxwell, Kim Mooney-Doyle, Deborah Tiller, Jennifer Pinto-Martin, Connie M Ulrich","doi":"10.1177/10748407221098187","DOIUrl":"https://doi.org/10.1177/10748407221098187","url":null,"abstract":"Caregivers often face critical decisions, burdens, and perceived benefits related to a loved one participating in cancer clinical trial (CCTs). The purpose of this analysis was to better understand caregivers' perceptions on the benefits and burdens of participation in cancer clinical trials. Using a qualitative descriptive design, interviews with 20 caregivers of patient-participants from a larger parent study were conducted. Three major themes emerged. The benefits of research participation focused on enhancing the potential for saving a loved one's life, improving quality of life, and holding altruistic intentions. The burden of research participation emphasized a loved one's suffering as well as physical, emotional, logistical, and financial burden to caregivers. Caregiver moral distress highlighted distressing ethical encounters, such as making decisions on research participation and navigating suboptimal care. Understanding caregiver perceptions is an important step in designing future CCTs that minimize burdens and maximize patient and caregiver health and family-centered care.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":"89-98"},"PeriodicalIF":3.1,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9198610","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Family Nursing Network. 家庭护理网络。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221149832

引用次数: 0

Calendar. 日历。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221148554

引用次数: 0

Family Involvement in Pain Management for People Living With Dementia: An Integrative Review. 家庭参与痴呆患者疼痛管理:一项综合综述。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221114502

Lihui Pu, Hongxiu Chen, Cindy Jones, Wendy Moyle

引用次数: 4

Social Determinants of Health in the Lives of Urban-Dwelling, Pregnant Puerto Rican Women and Families: Nursing Implications From a Secondary Narrative Analysis. 健康的社会决定因素在城市居住，怀孕的波多黎各妇女和家庭的生活:从二级叙事分析护理的影响。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221121826

Gwendolyn M Hamid, Linda Maldonado, Helene Moriarty, Janet A Deatrick

引用次数: 1

Caregivers' Concerns About Assisted Living Residents' Mental Health During the COVID-19 Pandemic: A Cross-Sectional Survey Study. 护理人员在 COVID-19 大流行期间对辅助生活设施居民心理健康的关注：一项横断面调查研究。

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 Epub Date: 2022-09-20 DOI: 10.1177/10748407221124159

Matthias Hoben, Jennifer Baumbusch, David B Hogan, Andrea Gruneir, Stephanie A Chamberlain, Kyle Corbett, Lauren E Griffith, Kimberlyn M McGrail, Joseph E Amuah, Natasha E Lane, Colleen J Maxwell

{"title":"Caregivers' Concerns About Assisted Living Residents' Mental Health During the COVID-19 Pandemic: A Cross-Sectional Survey Study.","authors":"Matthias Hoben, Jennifer Baumbusch, David B Hogan, Andrea Gruneir, Stephanie A Chamberlain, Kyle Corbett, Lauren E Griffith, Kimberlyn M McGrail, Joseph E Amuah, Natasha E Lane, Colleen J Maxwell","doi":"10.1177/10748407221124159","DOIUrl":"10.1177/10748407221124159","url":null,"abstract":"Family or friend caregivers' concerns about assisted living (AL) residents' mental health are reflective of poor resident and caregiver mental health. COVID-19-related visiting restrictions increased caregiver concerns, but research on these issues in AL is limited. Using web-based surveys with 673 caregivers of AL residents in Western Canada, we assessed the prevalence and correlates of moderate to severe caregiver concerns about residents' depressed mood, loneliness, and anxiety in the 3 months before and after the start of the COVID-19 pandemic. Caregiver concerns doubled after the start of the pandemic (resident depressed mood: 23%-50%, loneliness: 29%-62%, anxiety: 24%-47%). Generalized linear mixed models identified various modifiable risk factors for caregiver concerns (e.g., caregivers' perception that residents lacked access to counseling services or not feeling well informed about and involved in resident care). These modifiable factors can be targeted in efforts to prevent or mitigate caregiver concerns and resident mental health issues.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":"28-42"},"PeriodicalIF":2.6,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/c9/f5/10.1177_10748407221124159.PMC9490393.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9199156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Extended Family Caregivers for Persons Living With Dementia. 痴呆症患者的大家庭护理人员。

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2022-11-01 Epub Date: 2022-08-12 DOI: 10.1177/10748407221115455

Karen A Roberto, Jyoti Savla

{"title":"Extended Family Caregivers for Persons Living With Dementia.","authors":"Karen A Roberto, Jyoti Savla","doi":"10.1177/10748407221115455","DOIUrl":"10.1177/10748407221115455","url":null,"abstract":"Despite changes in the structure of contemporary families, little is known about extended family members-siblings, grandchildren, nieces/nephews, stepkin-who are primary caregivers for a relative living with dementia. Information about these caregivers is needed to help ensure their needs are understood by providers in health care and social service settings. The focus of this research was on the care situations of extended family caregivers and the impact of caregiving on their health and well-being. In Study 1, data from the National Study of Caregiving were used to describe the experiences of 107 extended family caregivers. In Study 2, case study techniques elicited additional information about the experiences of 10 extended family caregivers. Collectively, these caregivers provide care with little or no formal support and occasional help from a small informal network. Caregiving affected their physical and emotional health, depending on the strength of the relationship between the caregiver and the person living with dementia and the type of care provided. Findings contribute new knowledge about extended family caregivers and highlight the important role extended family dementia caregivers play and the challenges they face.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 4","pages":"396-407"},"PeriodicalIF":2.6,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10112257/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9327308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Stepping Up and Stepping In: Exploring the Role of Nurses in Supporting Grandparents Raising Grandchildren. 加强和介入:探索护士在支持祖父母抚养孙辈中的作用。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2022-11-01 DOI: 10.1177/10748407221124854

Christina Murray, Laura Bain, Patrice Drake, Don Avery

{"title":"Stepping Up and Stepping In: Exploring the Role of Nurses in Supporting Grandparents Raising Grandchildren.","authors":"Christina Murray, Laura Bain, Patrice Drake, Don Avery","doi":"10.1177/10748407221124854","DOIUrl":"https://doi.org/10.1177/10748407221124854","url":null,"abstract":"This study focused on the experiences of grandparents raising grandchildren in rural, Prince Edward Island, Canada. Termed grand-families, there are numerous reasons why grandparents must step up and step in to care for their grandchildren. Often these reasons are related to their adult children's struggles with mental illness and substance use disorders. Adopting Clandinin and Connelly's approach to narrative inquiry, we present findings from the conversational interviews conducted with 12 grandparents raising their grandchildren. Interview data were analyzed through the narrative dimensions of time, place, and relationship. Findings are presented as rich narratives which illuminate the evolution and storied experiences of grand-families. Particularly revealing are the challenges grandparents face as they navigate various systems, including health care, that do not acknowledge the uniqueness of their family form. Nurses work with grand-families across varied clinical settings. Grounded within the philosophy of Patient and Family Centered Care and family nursing theory, this article offers recommendations for supportive interventions that nurses can implement when caring for grand-families across clinical settings. This study has the potential to facilitate the development of evidence-based supports and services, which are responsive to the needs, realities, and complexities of grand-families.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 4","pages":"341-352"},"PeriodicalIF":3.1,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9557808/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10750366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1