Journal of Family Nursing最新文献_第7页

Parents' Discussions of the COVID-19 Pandemic and Death With Young Children. 父母与幼儿讨论COVID-19大流行和死亡。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-05-01 DOI: 10.1177/10748407231166099

Chang Su-Russell, Csilla Greiner, Ashley Ermer, Luke T Russell

{"title":"Parents' Discussions of the COVID-19 Pandemic and Death With Young Children.","authors":"Chang Su-Russell, Csilla Greiner, Ashley Ermer, Luke T Russell","doi":"10.1177/10748407231166099","DOIUrl":"https://doi.org/10.1177/10748407231166099","url":null,"abstract":"Death and loss are often uncomfortable topics for adults to discuss with young children. Disruptions caused by the COVID-19 pandemic, however, made the avoidance of these topics nearly impossible. The current study explored how 20 parents engaged with their young children (ages 3-6) in discussions about death, dying, and loss as they jointly experienced this global crisis. Interviews were conducted both prepandemic (Summer/Fall 2019) and a year later, at the early stage of the COVID-19 pandemic, before vaccines were approved (Summer 2020). Results suggest parents largely sought to balance sheltering children from stress and socializing them with socioemotional competencies. The pandemic context, however, brought parents a sense of urgency to scaffold their children's ability to remain resilient after experiencing losses. Practical implications are discussed regarding how family nurses and other practitioners can provide support to families of young children during the COVID-19 pandemic and potential future global crises.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 2","pages":"122-135"},"PeriodicalIF":3.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10125875/pdf/10.1177_10748407231166099.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9986107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Calendar. 日历。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-05-01 DOI: 10.1177/10748407231168933

引用次数: 0

Critically Ill Patients: Family Experiences of Interfacility Transfers From Rural to Urban Centers and Impact on Family Relationships. 危重病人:从农村到城市中心的设施间转移的家庭经历及其对家庭关系的影响。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221124254

Margie Burns, Jill Bally, Meridith Burles, Shelley Peacock

{"title":"Critically Ill Patients: Family Experiences of Interfacility Transfers From Rural to Urban Centers and Impact on Family Relationships.","authors":"Margie Burns, Jill Bally, Meridith Burles, Shelley Peacock","doi":"10.1177/10748407221124254","DOIUrl":"https://doi.org/10.1177/10748407221124254","url":null,"abstract":"A critical illness event is intensely stressful for family members and can lead to negative psychological, emotional, social and financial consequences. In geographically rural areas, critically ill patients may require an interfacility transfer to an urban centre for advanced critical care services. In this context, research suggests that these family members from rural areas experience additional burdens, yet little is known about these experiences. An interpretive phenomenological approach was used to explore lived experiences of family members from rural areas whose critically ill relative undergoes an interfacility transfer to an urban centre for advanced critical care services. Participants described feelings of vulnerability in the urban centre, the need to protect the critically ill patient and other relatives, maintaining responsibilities at home, navigating family relationships, and a loss of connection during the transfer window. These findings may better position nurses to address family members' stress and anxiety during this experience.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":"74-88"},"PeriodicalIF":3.1,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9850375/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10633181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Disruptions in Relational Continuity: The Impact of Pandemic Public Health Measures on Families in Long-Term Care. 关系连续性的中断:流行病公共卫生措施对长期护理家庭的影响。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221102462

Heather A Cooke, Sarah A Wu, Anne Bourbonnais, Jennifer Baumbusch

{"title":"Disruptions in Relational Continuity: The Impact of Pandemic Public Health Measures on Families in Long-Term Care.","authors":"Heather A Cooke, Sarah A Wu, Anne Bourbonnais, Jennifer Baumbusch","doi":"10.1177/10748407221102462","DOIUrl":"https://doi.org/10.1177/10748407221102462","url":null,"abstract":"Although the value of family caregivers' involvement with relatives in long-term care (LTC) is well recognized, tensions remain regarding their role. Such tensions were exacerbated during the COVID-19 pandemic as strict public health measures restricted family access to LTC homes. Using interpretive description, we examined the impact of visitation restrictions on family caregivers' experiences caring for a relative in LTC between March 2020 and June 2021. In-depth interviews were conducted with 14 family caregivers (five spouses and nine adult daughters) and two key themes were identified. The first theme, \"seeking to maintain relational continuity,\" illustrates how caregivers sought to sustain connections with residents prior to and during the pandemic. The second theme, \"disrupted relational continuity,\" highlights the impact of severed relational connections on caregivers' sense of self and ongoing feelings of loss and anger. Findings call for a trauma-informed approach that recognizes the pervasiveness of trauma for family caregivers and the avoidance of re-traumatization.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":"6-17"},"PeriodicalIF":3.1,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/60/01/10.1177_10748407221102462.PMC9850387.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9265120","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Improving Breast Cancer Family Caregivers' Palliative Care Literacy: A Pilot Randomized Trial. 提高乳腺癌家庭照顾者的姑息治疗素养:一项试点随机试验。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221099541

Dena Schulman-Green, Sarah Linsky, Leslie Blatt, Jane Jeuland, Jennifer Kapo, Sangchoon Jeon

{"title":"Improving Breast Cancer Family Caregivers' Palliative Care Literacy: A Pilot Randomized Trial.","authors":"Dena Schulman-Green, Sarah Linsky, Leslie Blatt, Jane Jeuland, Jennifer Kapo, Sangchoon Jeon","doi":"10.1177/10748407221099541","DOIUrl":"https://doi.org/10.1177/10748407221099541","url":null,"abstract":"Self- and family management (SFM) refers to patients’ and family caregivers’ activities to co-manage illness. Two barriers to SFM are low palliative care literacy and lack of goals of care communication, which potentially result in SFM activities that are unsupportive of patients’ goals. Managing Cancer Care: A Caregiver’s Guide (MCC-CG) aims to improve palliative care literacy and communication within a SFM training program. In this pilot randomized trial, we enrolled breast cancer family caregivers and collected data at 0, 1, and 3 months on palliative care literacy, SFM engagement, communication, transitions management, uncertainty, caregiver burden, and caregiver competence/personal gain. Participants (n = 35) had a mean age of 54 (range: 18–81) and were 66% white and 34% racial/ethnic minorities. Intervention participants improved their palliative care literacy and SFM engagement, reduced uncertainty and caregiver burden, increased competence/personal gain, and had more goals of care conversations over time. MCC-CG has preliminary efficacy, warranting further study.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":"99-114"},"PeriodicalIF":3.1,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10629228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

The Impact of Parental Presence Restrictions on Canadian Parents in the NICU During COVID-19: A National Survey. COVID-19期间父母在场限制对加拿大新生儿重症监护病房父母的影响:一项全国性调查。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221114326

Marsha Campbell-Yeo, Justine Dol, Holly McCulloch, Brianna Hughes, Amos Hundert, Fabiana Bacchini, Leah Whitehead, Jehier Afifi, Lynsey Alcock, Tanya Bishop, Jon Dorling, Rebecca Earle, Annette Elliott Rose, Darlene Inglis, Carye Leighton, Gail MacRae, Andrea Melanson, C David Simpson, Michael Smit

{"title":"The Impact of Parental Presence Restrictions on Canadian Parents in the NICU During COVID-19: A National Survey.","authors":"Marsha Campbell-Yeo, Justine Dol, Holly McCulloch, Brianna Hughes, Amos Hundert, Fabiana Bacchini, Leah Whitehead, Jehier Afifi, Lynsey Alcock, Tanya Bishop, Jon Dorling, Rebecca Earle, Annette Elliott Rose, Darlene Inglis, Carye Leighton, Gail MacRae, Andrea Melanson, C David Simpson, Michael Smit","doi":"10.1177/10748407221114326","DOIUrl":"https://doi.org/10.1177/10748407221114326","url":null,"abstract":"The purpose of this research was to explore parental perspectives on the impact of parent restrictions imposed in response to the COVID-19 pandemic across Canadian Neonatal Intensive Care Units (NICUs). A co-designed online survey was conducted targeting parents (n = 235) of infants admitted to a Canadian NICU from March 1, 2020, until March 5, 2021. Parents completed the survey from 38 Canadian NICUs. Large variation in the severity of policies regarding parental presence was reported. Most respondents (68.9%) were classified as experiencing high restrictions, with one or no support people allowed in the NICU, and felt that policies were less easy to understand, felt less valued and respected, and found it more challenging to access medicine or health care. Parents reported gaps in care related to self-care, accessibility, and mental health outcomes. There is significant variation in parental restrictions implemented across Canadian NICUs. National guidelines are needed to support consistent and equitable care practices.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":"18-27"},"PeriodicalIF":3.1,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9850074/pdf/10.1177_10748407221114326.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10652805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

The COVID-19 Post Pandemic: Family Nursing Now More Than Ever. COVID-19 后大流行病：家庭护理比以往任何时候都更重要。

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221147965

Hanne Konradsen, Anne Brødsgaard, Birte Østergaard, Cristina García-Vivar, Erla Kolbrun Svavarsdottir, Karin B Dieperink, Lorenz Imhof, Marie Louise A Luttik, Romy Mahrer-Imhof

引用次数: 0

Caregiver Perspectives on the Benefits, Burdens, and Moral Distress of Participation in Cancer Clinical Trials. 护理者对参与癌症临床试验的利益、负担和道德困境的看法。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221098187

Cynthia P Paidipati, Anessa M Foxwell, Kim Mooney-Doyle, Deborah Tiller, Jennifer Pinto-Martin, Connie M Ulrich

{"title":"Caregiver Perspectives on the Benefits, Burdens, and Moral Distress of Participation in Cancer Clinical Trials.","authors":"Cynthia P Paidipati, Anessa M Foxwell, Kim Mooney-Doyle, Deborah Tiller, Jennifer Pinto-Martin, Connie M Ulrich","doi":"10.1177/10748407221098187","DOIUrl":"https://doi.org/10.1177/10748407221098187","url":null,"abstract":"Caregivers often face critical decisions, burdens, and perceived benefits related to a loved one participating in cancer clinical trial (CCTs). The purpose of this analysis was to better understand caregivers' perceptions on the benefits and burdens of participation in cancer clinical trials. Using a qualitative descriptive design, interviews with 20 caregivers of patient-participants from a larger parent study were conducted. Three major themes emerged. The benefits of research participation focused on enhancing the potential for saving a loved one's life, improving quality of life, and holding altruistic intentions. The burden of research participation emphasized a loved one's suffering as well as physical, emotional, logistical, and financial burden to caregivers. Caregiver moral distress highlighted distressing ethical encounters, such as making decisions on research participation and navigating suboptimal care. Understanding caregiver perceptions is an important step in designing future CCTs that minimize burdens and maximize patient and caregiver health and family-centered care.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"29 1","pages":"89-98"},"PeriodicalIF":3.1,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9198610","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Family Nursing Network. 家庭护理网络。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221149832

引用次数: 0

Calendar. 日历。

IF 3.1 3区医学

Journal of Family Nursing Pub Date : 2023-02-01 DOI: 10.1177/10748407221148554

引用次数: 0