Journal of Family Nursing最新文献

Evaluating a Self- and Family Management Framework for Young Adult Survivors of Childhood Brain Tumors.

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2025-02-09 DOI: 10.1177/10748407251314865

Shannon N Hammer, Janet A Deatrick, Kathleen A Knafl, George J Knafl, Wendy L Hobbie, Evelyn Stevens, Jane E Minturn, Lamia P Barakat

{"title":"Evaluating a Self- and Family Management Framework for Young Adult Survivors of Childhood Brain Tumors.","authors":"Shannon N Hammer, Janet A Deatrick, Kathleen A Knafl, George J Knafl, Wendy L Hobbie, Evelyn Stevens, Jane E Minturn, Lamia P Barakat","doi":"10.1177/10748407251314865","DOIUrl":"https://doi.org/10.1177/10748407251314865","url":null,"abstract":"This study evaluated adaptations to the revised Self- and Family Management Framework aimed at enhancing support for families of young adult survivors of childhood brain tumors (YAS). Baseline data from condition-focused caregivers of YAS (N = 53) examined correlations between the Framework's Facilitators and Barriers (individual/contextual/clinical factors), Processes (caregiver problem-solving), Proximal Outcomes (YAS self-management, caregiver family management), and Distal Outcomes (YAS/caregiver HRQOL). All aspects of family management were associated with YAS HRQOL; only Parent Mutuality was associated with caregiver HRQOL. Problem-solving was partially supported as a process linked to family management and caregiver HRQOL. Individual/contextual/clinical factors were not associated with problem-solving. Self-management was not associated with problem-solving or HRQOL. Interventions grounded in concepts of family management may improve YAS HRQOL and have future potential for family nursing practice. Further research is needed to understand the divergence between HRQOL findings, partial support for problem-solving, and lack of associations with individual/contextual/clinical factors, and self-management.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407251314865"},"PeriodicalIF":2.6,"publicationDate":"2025-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143384023","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Using a Trauma-Informed Care Approach to Understand Family Caregivers' Experiences of Accessing Formal Supports in Dementia Care.

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2025-02-01 Epub Date: 2025-02-06 DOI: 10.1177/10748407251314549

Christine Meng, Safira Lachapelle, Adebusola Adekoya, Lucy Kervin, Kishore Seetharaman, Koushambhi Basu Khan, Jennifer Baumbusch

{"title":"Using a Trauma-Informed Care Approach to Understand Family Caregivers' Experiences of Accessing Formal Supports in Dementia Care.","authors":"Christine Meng, Safira Lachapelle, Adebusola Adekoya, Lucy Kervin, Kishore Seetharaman, Koushambhi Basu Khan, Jennifer Baumbusch","doi":"10.1177/10748407251314549","DOIUrl":"10.1177/10748407251314549","url":null,"abstract":"Family caregivers provide essential care and support for individuals living with dementia, yet their contributions and needs are often unrecognized within formal health care systems. Over time, this marginalization can contribute to long-term trauma. Guided by a trauma-informed care (TIC) framework, we explored the experiences of 15 family caregivers in a longitudinal, qualitative study. Set in British Columbia, Canada, data were collected through semi-structured interviews and reflective diaries. Data were analyzed using inductive-deductive thematic analysis. Deductive analyses demonstrated that participants' experiences aligned with existing TIC principles. Inductive analysis identified \"Uncertainty\" as a novel principle, reflecting the ongoing challenges caregivers face from diagnosis to the inadequacy of in-home supports. Our study highlights the importance of recognizing trauma induced by interactions with formal health care services and the value of using a TIC approach with family caregivers of people living with dementia.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"3-15"},"PeriodicalIF":2.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11843802/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143366502","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Family Nursing Network.

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2025-02-01 DOI: 10.1177/10748407251318898

引用次数: 0

Contribution of the Brief Family Strength-Oriented Therapeutic Conversation Intervention to Early Childhood Sleep Health: A Quasi-Experimental Study.

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2025-02-01 Epub Date: 2025-02-13 DOI: 10.1177/10748407241313463

Erla Kolbrun Svavarsdottir, Kristin Bjorg Flygerning, Anna Olafia Sigurdardottir

{"title":"Contribution of the Brief Family Strength-Oriented Therapeutic Conversation Intervention to Early Childhood Sleep Health: A Quasi-Experimental Study.","authors":"Erla Kolbrun Svavarsdottir, Kristin Bjorg Flygerning, Anna Olafia Sigurdardottir","doi":"10.1177/10748407241313463","DOIUrl":"10.1177/10748407241313463","url":null,"abstract":"The family context is an important factor for sleep health in early childhood. About 40% of children between 0 and 3 years have problems regarding sleep that can affect their development. The aim of this study was to investigate the contribution of the brief family strength-oriented therapeutic conversation intervention to early-childhood sleep health. Data were collected in 2020-2021 from 57 primary caregivers of young children with moderate or severe sleep difficulties. The intervention was delivered through (a) a one 60-min face-to-face family educational and support session and (b) one to six 20- to 40-min telephone sessions based on the families' needs. After the intervention, primary caregivers reported greater family support, more helpful beliefs about their infant's/child sleep patterns, better family quality of life (QOL), better self-regulation regarding learning to fall and staying asleep among infants, and longer sleep periods at night in infants. These findings may prevent infants sleep difficulties from increasing and becoming more serious.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"45-57"},"PeriodicalIF":2.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11843801/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143416080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Benefit Finding and Growth Among Family Caregivers of Individuals With Mental Illness: A Scoping Review. 精神疾病个体的家庭照顾者的利益发现和成长：范围回顾。

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2025-02-01 Epub Date: 2025-01-22 DOI: 10.1177/10748407241309138

Rie Chiba, Yuki Miyamoto, Akiko Funakoshi, Misato Hirota, Yuta Hayashi, Tomoko Yamanouchi, Masako Mitsui, Akiko Inagaki, Sheung-Tak Cheng

{"title":"Benefit Finding and Growth Among Family Caregivers of Individuals With Mental Illness: A Scoping Review.","authors":"Rie Chiba, Yuki Miyamoto, Akiko Funakoshi, Misato Hirota, Yuta Hayashi, Tomoko Yamanouchi, Masako Mitsui, Akiko Inagaki, Sheung-Tak Cheng","doi":"10.1177/10748407241309138","DOIUrl":"10.1177/10748407241309138","url":null,"abstract":"Benefit finding is a concept that represents finding positive changes or benefits through difficult experiences. To map the currently available studies on benefit finding and growth among family caregivers of individuals with mental illness, we conducted a scoping review based on methodological frameworks. A systematic search for studies published in English was conducted using MEDLINE, PsycINFO, PsycARTICLES, CINAHL, and PTSDpubs from inception to August 2023. After screening, 21 articles were included in the review. Of these, 11 studies were cross-sectional studies, 7 were qualitative studies, 2 were mixed-methods studies, and a randomized controlled trial (RCT). Family caregivers experienced various positive psychological changes, such as becoming compassionate/tolerant and resilient, stronger family bonds, change in perspective on life and hope, acquisition of knowledge and coping strategies, and leveraging their experiences and appreciation by others, following various struggles and negative changes. Some indicators of benefit finding and growth, such as positive personal traits, positive reappraisal, good relationships with patients, and social support, were also revealed. The quality assessment demonstrated an acceptable level of quality in most studies, with a few outliers. Future longitudinal studies would reveal the mechanism of benefit finding and growth among family caregivers of individuals with mental illness.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"16-30"},"PeriodicalIF":2.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11843795/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015325","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Managing Expectations: Understanding Parents' Perceptions of Their Child's Serious Illness. 管理期望：了解父母对孩子严重疾病的看法。

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2025-02-01 Epub Date: 2025-01-15 DOI: 10.1177/10748407241290305

Katherine Patterson Kelly, Kim Mooney-Doyle, Mia Waldron, Kathleen A Knafl

引用次数: 0

Calendar.

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2025-02-01 DOI: 10.1177/10748407251318895

引用次数: 0

Family Impacts of Diabetic Extremity Wound Caregiving: A Qualitative Multiple Case Study Report.

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2025-01-29 DOI: 10.1177/10748407251314569

Elizabeth R Doss, Lori L Popejoy, Amy A Vogelsmeier, Kari R Lane, Kelli E Canada

引用次数: 0

Ushering a Witness: A Psychosocial Theory of Maternal Intrafamily Trauma Communication in the Refugee Family System. 引证：难民家庭系统中母亲家庭创伤沟通的社会心理理论。

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2024-12-21 DOI: 10.1177/10748407241301369

Sarah J Hoffman, Windy M Fredkove, Maria M Vukovich, Elaine Hsieh, Hsa Moo, Kaziah Josiah, Zamzam Dini

{"title":"Ushering a Witness: A Psychosocial Theory of Maternal Intrafamily Trauma Communication in the Refugee Family System.","authors":"Sarah J Hoffman, Windy M Fredkove, Maria M Vukovich, Elaine Hsieh, Hsa Moo, Kaziah Josiah, Zamzam Dini","doi":"10.1177/10748407241301369","DOIUrl":"https://doi.org/10.1177/10748407241301369","url":null,"abstract":"The ways that families communicate about traumatic experiences is a critical social process. Intrafamily trauma communication encompasses approaches through which family members share and respond to difficult past experiences. We examined the embedded communication processes and actions of war-affected Karen maternal caregivers living post-resettlement in the United States, as they described disclosures of torture and war trauma experiences to their children. Using a modified approach to a constructivist-oriented grounded theory, we analyzed 33 in-depth qualitative interviews. Narrative experiences of mothers and synthesized storylines shaped a psychosocial theory of maternal intrafamily trauma communication, Ushering a Witness. The core category was depicted by the coalescence of three distinct conceptual, temporal phases and corresponding properties: (a) Appraising: Communication decision-making, (b) (Co-)Constructing: Act of communicating, and (c) Amending: Developing awareness and reevaluating purpose, response, and approach to communication. Findings will facilitate further exploration of the relationships between the intergenerational effects of trauma and intergenerational communication.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407241301369"},"PeriodicalIF":2.6,"publicationDate":"2024-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142873420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effects of Family Caregiver-Nurse Communication on Family Management and Family Caregiver Uncertainty Regarding the Care of Children With Long-Term Ventilator Dependence. 家庭护理者与护士沟通对长期依赖呼吸机儿童护理的家庭管理和家庭护理者不确定性的影响。

IF 2.6 3区医学

Journal of Family Nursing Pub Date : 2024-11-03 DOI: 10.1177/10748407241290300

Barbara K Giambra, Kathleen Knafl, Stephen Haas, Yin Zhang, Nanhua Zhang, Rita H Pickler, Maria T Britto

{"title":"Effects of Family Caregiver-Nurse Communication on Family Management and Family Caregiver Uncertainty Regarding the Care of Children With Long-Term Ventilator Dependence.","authors":"Barbara K Giambra, Kathleen Knafl, Stephen Haas, Yin Zhang, Nanhua Zhang, Rita H Pickler, Maria T Britto","doi":"10.1177/10748407241290300","DOIUrl":"https://doi.org/10.1177/10748407241290300","url":null,"abstract":"Nurses caring for hospitalized children with long-term ventilator dependence (LTVD) assess family management capability and teach new skills through communication with family caregivers. This theoretically-based quantitative, descriptive study aimed to determine the communication behaviors associated with family caregiver uncertainty and management of the child with LTVD's care after discharge. One hundred families and 48 nurses enrolled. Family caregiver-nurse conversations were recorded and transcripts coded for communication behaviors. Family management and uncertainty data were gathered during hospitalization and after discharge. Data analysis included correlations and linear mixed models. Family caregivers and nurses used advocating and negotiating roles communication behaviors least frequently; however, these communication behaviors were associated with the most aspects in terms of uncertainty about the child's condition and ease of management of the child's care after discharge to home. Nurses should assess family caregiver ease in managing care, provide support, and engage in collaborative problem-solving through respectful communication.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407241290300"},"PeriodicalIF":2.6,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142570051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0