慢性疾病和残疾:一个多系统的实践模型。

IF 2.6 3区 医学 Q1 FAMILY STUDIES
Journal of Family Nursing Pub Date : 2025-05-01 Epub Date: 2025-04-12 DOI:10.1177/10748407251329694
John S Rolland
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引用次数: 0

摘要

严重的健康状况会严重影响家庭关系。本文描述了家庭系统疾病(FSI)模型,以提供一个指导框架,帮助个人、夫妇和家庭在疾病和残疾的经历中导航不断变化的景观。这种以恢复力为导向的实践方法区分了疾病经历和随时间发展轨迹的三个维度:(a)基于发病模式、病程、结果、残疾和不确定程度的“心理社会类型”健康状况;(b)随时间演变的主要发展阶段(初期危机、慢性、晚期),促进对慢性疾病的纵向思考,将其视为一个具有过渡和需求变化的持续过程;(c)关键的家庭系统变量,强调疾病、个人和家庭发展的相互交织;与影响应对和适应的疾病和损失有关的多代主题和遗产;家庭健康信仰系统(例如,意义形成,包括文化、种族、灵性、性别和种族的影响),以及患者/家庭/医疗保健提供者关系的契合度。FSI模型适用于儿童和成人的广泛健康状况、不同的卫生保健专业学科和临床环境。讨论包括在不同临床环境中及时、具有成本效益的应用,包括使用以预防为导向的家庭咨询、社会心理检查以及简短和强化的干预措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Chronic Illness and Disability: A Multisystemic Practice Model.

Serious health conditions can severely strain family relationships. This article describes the Family Systems Illness (FSI) model to provide a guiding framework to help individuals, couples, and families navigate the changing landscape in the experience of illness and disability over time. This resilience-oriented practice approach distinguishes three dimensions of the illness experience and trajectory over time: (a) "psychosocial types" of health conditions, based on the pattern of onset, course, outcome, disability, and level of uncertainty; (b) major developmental phases in their evolution over time (initial crisis, chronic, terminal), facilitating longitudinal thinking about chronic conditions as an ongoing process with transitions and changing demands; (c) key family system variables, emphasizing: the interweaving of illness, individual, and family development; multigenerational themes and legacies related to illness and loss that influence coping and adaptation; family health belief systems (e.g., meaning-making, including influences of culture, ethnicity, spirituality, gender, and race), and the goodness of fit in the patient/family/health care provider relationship. The FSI model is intended for a broad spectrum of health conditions in children and adults, diverse health care professional disciplines, and clinical settings. Discussion includes timely, cost-effective applications in different clinical settings, including the use of prevention-oriented family consultations, psychosocial checkups, and brief and intensive interventions.

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来源期刊
CiteScore
4.00
自引率
9.70%
发文量
40
审稿时长
>12 weeks
期刊介绍: Journal of Family Nursing (JFN) is a peer-reviewed, quarterly journal of nursing research, practice, education, and policy issues, as well as empirical and theoretical analyses on the subject of family health. Its interdisciplinary, international, and collaborative perspectives examine cultural diversity and families across the life cycle. This journal is a member of the Committee on Publication Ethics (COPE).
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