C. Alfaro-Díaz, N. Esandi, N. Canga-Armayor, Miren Idoia Pardavila-Belio, M. Pueyo-Garrigues, A. Canga-Armayor
{"title":"Personal and Contextual Factors to the Successful Implementation of a Family Nursing Approach in Oncology Care","authors":"C. Alfaro-Díaz, N. Esandi, N. Canga-Armayor, Miren Idoia Pardavila-Belio, M. Pueyo-Garrigues, A. Canga-Armayor","doi":"10.1177/10748407221083071","DOIUrl":"https://doi.org/10.1177/10748407221083071","url":null,"abstract":"The aim of this study was to explore nurses’ attitudes and beliefs about the importance of families in nursing care, as well as the barriers and facilitators within the clinical context that influence the implementation offamily nursing in an in-patient oncology service. A cross-sectional study design, incorporating quantitative and qualitative measurements, was used with a sample of nurses in Spain from an oncology service (N = 39). In general, oncology nurses reported positive attitudes and beliefs about the importance of family in nursing care. However, they did not effectively involve the family in their daily clinical practice. This was due to the nurses’ lack of clinical skills and competence to work with families as well as contextual factors such as the lack of time and workload that acted as barriers to the implementation of family-oriented care. This study identified areas of improvement that are needed to promote the effective and sustainable implementation of family nursing knowledge in clinical practice settings.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"277 - 291"},"PeriodicalIF":3.1,"publicationDate":"2022-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46144783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Family Nursing Network","authors":"","doi":"10.1177/10748407221090058","DOIUrl":"https://doi.org/10.1177/10748407221090058","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"172 - 172"},"PeriodicalIF":3.1,"publicationDate":"2022-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49601697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jesús Martín-Martín, Mercedes Pérez-Díez-Del-Corral, Maddi Olano-Lizarraga, Socorro Valencia-Gil, María Isabel Saracíbar-Razquin
{"title":"Family Narratives About Providing End-of-Life Care at Home.","authors":"Jesús Martín-Martín, Mercedes Pérez-Díez-Del-Corral, Maddi Olano-Lizarraga, Socorro Valencia-Gil, María Isabel Saracíbar-Razquin","doi":"10.1177/10748407211025579","DOIUrl":"https://doi.org/10.1177/10748407211025579","url":null,"abstract":"<p><p>Currently, the dying process in Spain is moving to the home environment where responsibility for care falls largely on the family, thereby challenging and testing the stability of the family. Previous research has focused on the impact of illness on the primary caregiver; therefore, a knowledge gap exists. This study aimed to understand families' unitary experiences of providing home care to terminally ill family member. Using the \"<i>Model of Interpersonal Relationship Between the Nurse and the Person/Family Cared For</i>,\" narrative research included family and individual interviews with nine families (9 groups/23 individuals). Thematic narrative analysis was used to interpret the interviews. The results highlight the impact of illness on family well-being as a whole. Family members often felt abandoned while caring for an ill family member and wished to be cared for themselves. However, their immediate community and the nurses caring for their ill family member neglected them. A paradigm shift is required by society and in home care at the end of life to better support the family.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"17-30"},"PeriodicalIF":3.1,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/10748407211025579","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39103486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tine Ikander, Karin B Dieperink, Olfred Hansen, Mette Raunkiær
{"title":"Patient, Family Caregiver, and Nurse Involvement in End-of-Life Discussions During Palliative Chemotherapy: A Phenomenological Hermeneutic Study.","authors":"Tine Ikander, Karin B Dieperink, Olfred Hansen, Mette Raunkiær","doi":"10.1177/10748407211046308","DOIUrl":"https://doi.org/10.1177/10748407211046308","url":null,"abstract":"<p><p>The aim of this study was to investigate current nursing practice related to end-of-life discussions with incurable lung cancer patients and their family caregivers from the perspectives of patients, family caregivers, and nurses in an oncology outpatient clinic. This phenomenological hermeneutic study included nine patients, eight family caregivers, and 11 nurses. Data were collected using participant observation, informal and semi-structured individual or joint interviews with patients and family caregivers, and focus group interviews with nurses. A Ricoeur-inspired approach was used to analyze the data. Three themes were identified: (a) content of end-of-life discussions, (b) timing of end-of-life discussions, and (c) challenges in end-of-life discussions. End-of-life discussions were seldom initiated; when they were, it was often too late. Discussions addressed treatment, place of care, practical/economic concerns, and existential matters. The physical environment at the outpatient clinic, lack of continuity, and nurses' instrumental task workloads and time pressure posed challenges to initiating end-of-life discussions.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"31-42"},"PeriodicalIF":3.1,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39438695","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Global Climate Change and News of Difference: Collective Action for Planetary Health and Family Health.","authors":"","doi":"10.1177/10748407211070079","DOIUrl":"https://doi.org/10.1177/10748407211070079","url":null,"abstract":"Sir David Attenborough was the People’s Advocate for the 2021 United Nations Climate Change Conference (COP26) in Glasgow, Scotland. During the opening ceremony, he delivered an inspiring address and call to action for heads of state and listeners around the globe. The data on climate change reflect an undeniably urgent state of the planet and the living creatures that depend on it. Sir Attenborough (2021) called on leaders to recognize that the data on climate change “defines our relationship with our world,” encouraging us all to chart our own story for this relationship moving forward. The people most affected by climate change, he reminded us, are not generations of the future, but young people alive today; this fact alone should inspire hope and a sense of urgency by those in positions of leadership. In an International Family Nursing Association (IFNA, 2020) Position Statement on Planetary Health and Family Health and a series of blogs about planetary health and family health over the past year, we have tried to answer the question: is the health of the planet really relevant to family nursing? For this guest editorial, we reflected on the history of the Journal of Family Nursing and the call to action that it represented to family nursing leaders at its inception. In the journal’s inaugural issue published in February 1995, Janice Bell’s impassioned and generative editorial called for “news of difference” in our views on what matters in family nursing. Bell reflected on the notion of isomorphism, “the suction we fight when it is easiest to simply repeat the pattern of dialogue that maintains more of the same in family nursing” (p. 6). In the second issue of the journal in 1995, Lawrence Ganong’s review of current trends and predictions for family nursing was both honest and hopeful about the direction of our field. At the time, Ganong observed that family nursing was about a decade behind other disciplines in terms of methodology and conceptual concerns. Importantly, Ganong called on family nurses to start recognizing the contexts within which families live, which had largely been ignored. “More attention should be given,” wrote Ganong (1995), “to the impact of natural disasters, such as floods, earthquakes, and hurricanes, on families” (p. 197). Both Bell and Ganong, on a theme resounded by Attenborough, warn of the threat of isomorphism: more of the same is not sustainable. Climate scientists and family nursing leaders have been making this “news of difference” plea for decades, and it is now time that we chart our story as family nurses. Our playbook of the past is no longer acceptable: the future of young families and our children depends on our leadership.","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"3-5"},"PeriodicalIF":3.1,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39812801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Karin Piil, Stine Laegaard Skovhus, Anders Tolver, Mary Jarden
{"title":"Neuro-Oncological Symptoms: A Longitudinal Quantitative Study of Family Function, Perceived Support, and Caregiver Burden.","authors":"Karin Piil, Stine Laegaard Skovhus, Anders Tolver, Mary Jarden","doi":"10.1177/10748407211029986","DOIUrl":"https://doi.org/10.1177/10748407211029986","url":null,"abstract":"<p><p>The aim of this study was to establish preliminary quantitative evidence for the longitudinal change in family function, perceived support, and caregiver burden, acknowledging that physical and emotional symptoms are important variables for quality of life in families affected by a brain cancer diagnosis. This longitudinal quantitative study measured patient-reported and family member-reported outcomes at four different time points in 1 year. The patients reported that the symptom burden hindered their relationships with other people. Furthermore, the generally high level of strain due to the caregiver burden had an especially negative impact on close social relationships. Data indicate that family functioning was continually negatively affected as perceived by both patients and family caregivers. No significant changes over time were identified. The results underline the importance of providing systematic and ongoing support to the whole family that acknowledges their contribution as a valuable social support system for the individual experiencing high-grade glioma.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"43-56"},"PeriodicalIF":3.1,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/10748407211029986","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39205030","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lisa A Cranley, Simon Ching Lam, Sarah Brennenstuhl, Zarina Nahar Kabir, Anne-Marie Boström, Angela Yee Man Leung, Hanne Konradsen
{"title":"Nurses' Attitudes Toward the Importance of Families in Nursing Care: A Multinational Comparative Study.","authors":"Lisa A Cranley, Simon Ching Lam, Sarah Brennenstuhl, Zarina Nahar Kabir, Anne-Marie Boström, Angela Yee Man Leung, Hanne Konradsen","doi":"10.1177/10748407211042338","DOIUrl":"https://doi.org/10.1177/10748407211042338","url":null,"abstract":"<p><p>The aim of this study was to examine nurses' attitudes about the importance of family in nursing care from an international perspective. We used a cross-sectional design. Data were collected online using the Families' Importance in Nursing Care-Nurses' Attitudes (FINC-NA) questionnaire from a convenience sample of 740 registered nurses across health care sectors from Sweden, Ontario, Canada, and Hong Kong, China. Mean levels of attitudes were compared across countries using analysis of variance (ANOVA). Multiple regression was used to identify factors associated with nurses' attitudes and to test for interactions by country. Factors associated with nurse attitudes included country, age, gender, and several practice areas. On average, nurses working in Hong Kong had less positive attitudes compared with Canada and Sweden. The effects of predictors on nurses' attitudes did not vary by country. Knowledge of nurses' attitudes could lead to the development of tailored interventions that facilitate nurse-family partnerships in care.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"69-82"},"PeriodicalIF":3.1,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8814953/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39393041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Fathers' Involvement in Rearing Children With Profound Intellectual and Multiple Disabilities.","authors":"Naho Sato, Akiko Araki","doi":"10.1177/10748407211037345","DOIUrl":"https://doi.org/10.1177/10748407211037345","url":null,"abstract":"<p><p>The aim of this study was to explore father's involvement in rearing a child with profound intellectual and multiple disabilities (PIMD). In-depth, semi-structured interviews were conducted with seven fathers in Japan, and the data were analyzed using a qualitative inductive method. The relationship between the parents, in the context of childrearing, influenced father's involvement with their child with PIMD. Fathers improved their self-confidence in childrearing by discussing and sharing about their child's conditions and caregiving approaches with their spouse. Moreover, fathers' experience of being acknowledged and entrusted by their spouse with childrearing motivated and enhanced their involvement. On the contrary, fathers struggled with concerns regarding their family's future, the balance between childrearing and work, and their own health status. The current findings contribute to nurses' understanding of father's involvement in childrearing a child with PIMD and the development of support focusing on the parental dyadic relationship and coparenting behavior.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"57-68"},"PeriodicalIF":3.1,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/10748407211037345","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39281799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Family Nursing Network.","authors":"","doi":"10.1177/10748407211070185","DOIUrl":"https://doi.org/10.1177/10748407211070185","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":"28 1","pages":"83-89"},"PeriodicalIF":3.1,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39583004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}