Patient Education and Counseling最新文献

{"title":"Effects of reasoned treatment decision-making on parent-related outcomes: Results from a video-vignette experiment in neonatal care.","authors":"Nanon H M Labrie, Anne A M W van Kempen, Marleen Kunneman, Sylvia A Obermann-Borst, Liesbeth M van Vliet, Nicole R van Veenendaal","doi":"10.1016/j.pec.2024.108625","DOIUrl":"https://doi.org/10.1016/j.pec.2024.108625","url":null,"abstract":"<p><strong>Objective: </strong>To examine the effects of clinicians' provision of (un)reasonable arguments on parent-related outcomes in neonatal (intensive) care (NICU), starting from the NICU Communication Framework.</p><p><strong>Methods: </strong>A video-vignette experiment, in which we systematically varied clinicians' use of (reasonable, unreasonable, no) argumentation across two non-acute and two acute decision-making scenarios (3×4 design). Reasonable arguments were medically appropriate and constructive reasons to support the treatment plan, as defined by an expert panel. Based on argumentation theory, unreasonable arguments included hindering appeals to authority or the self-evident nature of the treatment plan. Parents of preterm infants completed an online survey, viewing 1 of 12 video-vignettes and answering questions pertaining to their communication stress, understanding, agreement, participation in communication, empowerment, trust and satisfaction with communication.</p><p><strong>Results: </strong>N = 163 parents completed the full survey. We found statistically significant (p < 0.001) and large (η²: 0.13-0.38) effects of clinicians' use of argumentation across all parent-related outcomes. Reasonable argumentation led to lower communication stress and higher understanding, agreement, participation in communication, empowerment, trust, and satisfaction with communication than no argumentation. In turn, no argumentation led to improved outcomes compared to unreasonable argumentation. This pattern was similar across non-acute and acute scenarios.</p><p><strong>Conclusion: </strong>Clinicians' use of reasonable argumentation has a consistently strong and positive impact on parent-related outcomes in neonatal care.</p><p><strong>Practice implications: </strong>We argue that reasoned decision-making should be considered a good clinical practice, core to patient-centered communication. Our findings provide a starting point for (1) determining good argumentative practices and (2) designing evidence-based clinical argumentation trainings.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"108625"},"PeriodicalIF":2.9,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142886373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The information and communication needs of patients with advanced incurable cancer: A rapid review","authors":"Holland-Hart Daniella ,&nbsp;Goss Silvia ,&nbsp;Hope Isabel ,&nbsp;Mann Mala","doi":"10.1016/j.pec.2024.108559","DOIUrl":"10.1016/j.pec.2024.108559","url":null,"abstract":"<div><h3>Objectives</h3><div>This review aimed to collate evidence on the key information and communication needs of patients with advanced incurable cancer and their caregivers. It also sought to identify barriers and facilitators to communicating, understanding and receiving information, with the view of influencing improvements to future practice.</div></div><div><h3>Methods</h3><div>This study used a rapid review methodology. Databases were searched on the Ovid platform to identify relevant qualitative data. Methodological quality was assessed, and data extraction was completed. A thematic synthesis approach was used for data analysis.</div></div><div><h3>Results</h3><div>Findings from 42 articles highlighted that key information should be communicated in accordance with individual needs, including tailoring when and how information is provided. It also highlighted the need for healthcare professionals to provide adequate time, openness, and sensitivity to facilitate understanding of prognosis, treatment and care options. Barriers to receiving, communicating and understanding information relating to healthcare professionals and healthcare systems focus on inadequate time in consultations and a lack of specified point of contact. Patient level barriers included difficulties engaging with and processing challenging information, and inadequate health and death literacy. Facilitators included incremental information provision and early access to palliative care specialists.</div></div><div><h3>Conclusions</h3><div>Key communication and information needs identified in the review’s synthesised findings should be considered when developing communication strategies alongside the barriers and facilitators.</div></div><div><h3>Practice implications</h3><div>HCPs should provide patients and caregivers with bespoke support to improve their health and death literacy, and a direct point of contact. Health service training could focus on personalised and empathetic information delivery.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108559"},"PeriodicalIF":2.9,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142748471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"AI-assisted patient education: Challenges and solutions in pediatric kidney transplantation","authors":"MZ Ihsan,&nbsp;Dony Apriatama ,&nbsp;Pithriani,&nbsp;Riza Amalia","doi":"10.1016/j.pec.2024.108575","DOIUrl":"10.1016/j.pec.2024.108575","url":null,"abstract":"<div><div>We are writing in response to the recent publication on the use of artificial intelligence, particularly ChatGPT, in generating educational materials for pediatric kidney transplant patients (Patient Education and Counseling, Volume 129, 2024). The study offers valuable insights into AI’s potential to enhance healthcare communication and patient education, specifically by streamlining the creation of materials for caregivers, adolescents, and children facing complex medical procedures[1]. As researchers working at the intersection of healthcare and technology, we would like to offer further reflections on the study’s findings, providing both constructive feedback and innovative solutions for advancing the use of AI in this field. One of the most compelling aspects of the study is the potential for ChatGPT to revolutionize patient education by significantly reducing the time and resources needed to develop educational content. The authors demonstrated that even a free version of ChatGPT allows healthcare providers to rapidly generate materials, which is particularly advantageous for overstretched healthcare systems. Additionally, the study highlights ChatGPT’s ability to bridge communication gaps in resource-limited settings by providing patients and families with accessible, personalized information about transplant procedures. We strongly support the idea that AI-driven education can democratize access to essential health information, especially in regions where medical expertise is limited. Furthermore, AI’s real-time response capabilities could enable healthcare providers to offer more interactive and tailored education, empowering patients to make informed decisions about their health.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108575"},"PeriodicalIF":2.9,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142748475","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Tips from clinicians about if, when, and how to discuss life expectancy with older adults","authors":"Laura E. Brotzman ,&nbsp;Jeffrey T. Kullgren ,&nbsp;Kyra Powers ,&nbsp;Brian J. Zikmund-Fisher","doi":"10.1016/j.pec.2024.108569","DOIUrl":"10.1016/j.pec.2024.108569","url":null,"abstract":"<div><h3>Objectives</h3><div>Estimates of life expectancy can inform clinical recommendations and decisions for older adults, but many clinicians find it difficult to discuss. We interviewed primary care clinicians to identify best practices for discussing life expectancy with older adults.</div></div><div><h3>Methods</h3><div>Twenty-one primary care clinicians (Internal Medicine, Family Medicine, and Geriatrics) completed in-depth interviews on Zoom or by telephone. Topics included estimation and discussion of life expectancy with older patients to guide cancer screening and preventive care decisions. We transcribed, coded, and inductively analyzed interviews using a thematic analysis approach.</div></div><div><h3>Results</h3><div>Most clinicians recommended individualizing communication about life expectancy versus a standardized approach. Although many clinicians worry that conversations about life expectancy won’t go well, successful conversations are possible when clinicians bring humility, care, and attention to these interactions. Clinicians identified seven steps that they find effective for deciding if, when, and how to discuss life expectancy with older patients and detailed tips for using these steps in practice.</div></div><div><h3>Conclusions</h3><div>Clinicians can take multiple steps to optimize conversations about life expectancy to personalize medical decision making.</div></div><div><h3>Practice implications</h3><div>The tips and language presented provide a helpful starting point for clinicians to have conversations about life expectancy and appropriate care with older adults.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108569"},"PeriodicalIF":2.9,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142702749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community, culture, and chromosomes: Humanistic approach to childhood G6PD deficiency management","authors":"Gowda Parameshwara Prashanth ,&nbsp;Salim Khoder Ismail","doi":"10.1016/j.pec.2024.108570","DOIUrl":"10.1016/j.pec.2024.108570","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108570"},"PeriodicalIF":2.9,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142703297","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient satisfaction with prescription opioid education in primary care","authors":"Lisa E.M. Davies ,&nbsp;Hendrika A. van den Ham ,&nbsp;Arnt F.A. Schellekens ,&nbsp;Daphne Philbert ,&nbsp;Marcel L. Bouvy","doi":"10.1016/j.pec.2024.108572","DOIUrl":"10.1016/j.pec.2024.108572","url":null,"abstract":"<div><h3>Objectives</h3><div>This study explores patients' satisfaction with opioid education, identifies areas for improvement, and assesses differences between those more or less satisfied with their opioid education.</div></div><div><h3>Methods</h3><div>A cross-sectional survey of adults with prescription opioid experience. Respondents reported opioid details, demographics, and pain coping. Satisfaction with education from prescribers and pharmacy staff on opioid usage, pain relief expectations, side effects, and tapering was assessed. Open-ended questions gathered suggestions for improvement.</div></div><div><h3>Results</h3><div>Respondents (n = 1605) seemed more satisfied with information on opioid usage (59–80 %) and expected pain relief (46–72 %) than on side effects (50–65 %) and tapering (29–50 %). Prescriber-provided education received higher satisfaction scores than pharmacy staff-provided education, though both were valued equally (∼ 70 %). Dissatisfied respondents tended to have higher education levels, lower pain coping scores, and often ineffective opioid experiences. Qualitative analysis of the 404 respondents who indicated a need for improvement emphasised the need for clearer information on side effects, addiction risks, and tapering, and more understandable formats.</div></div><div><h3>Conclusions</h3><div>Opioid patient education should prioritise addressing side effects, addiction risks, and tapering at treatment initiation. The educational contributions of both prescribers and pharmacy staff are deemed important.</div></div><div><h3>Practice implications</h3><div>Engaging pharmacy staff, especially during repeat dispensing, can enhance patient education on opioids.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108572"},"PeriodicalIF":2.9,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142748476","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Changing expectations toward end-of-life communication: An experimental investigation","authors":"Yannik Bendel ,&nbsp;Martin Pinquart ,&nbsp;Christian Schulz-Quach ,&nbsp;Pia von Blanckenburg","doi":"10.1016/j.pec.2024.108571","DOIUrl":"10.1016/j.pec.2024.108571","url":null,"abstract":"<div><h3>Objectives</h3><div>To investigate the effect of a) a brief video intervention and b) end-of-life (EOL) conversations with relatives on EOL communication expectations.</div></div><div><h3>Methods</h3><div>272 participants from the general population were randomly assigned to three different video conditions (Intervention group: Persons reporting positive EOL conversation experiences +imagination task, Control group 1: Video unrelated to EOL topics, Control group 2: Persons reporting different attitudes toward EOL conversations +imagination task). Primary outcome was negative expectations. After the videos, participants were invited to have their own conversation with a loved one in the following two months. Data were collected before (pretest) and after watching the videos (posttest) as well as at a two-months follow-up.</div></div><div><h3>Results</h3><div>Between pre- and posttest, negative expectations decreased significantly more in the IG compared to CG1 (<em>b</em> = 0.15, <em>t</em> = 2.08<em>, p</em> = .020) and CG2 (<em>b</em> = 0.21, <em>t</em> = 2.94, <em>p</em> = .002). Across conditions, participants having had a conversation between posttest and follow-up reported significantly stronger declines of negative expectations (<em>b</em> = 0.35, <em>t</em> = 3.54, <em>p</em> &lt; .001).</div></div><div><h3>Conclusions</h3><div>In the short term, a brief video intervention can change expectations toward EOL communication. EOL conversations with relatives also have the potential to reduce negative expectations.</div></div><div><h3>Practice Implications</h3><div>Based on the findings, larger community-based interventions could be developed in order to increase EOL communication.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108571"},"PeriodicalIF":2.9,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142702748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Complexity and objectivity in teaching interprofessional healthcare communication","authors":"Sarah J. White","doi":"10.1016/j.pec.2024.108558","DOIUrl":"10.1016/j.pec.2024.108558","url":null,"abstract":"<div><h3>Objective</h3><div>This article, based on a plenary presentation from ICCH 2024, examines the challenge of balancing objectivity and complexity, and the risk of violent simplification, when it comes to teaching and assessing interprofessional healthcare communication.</div></div><div><h3>Discussion</h3><div>Interpersonal communication, that is, conversation, makes all aspects of human social life possible. Conversation is complex and is managed by participants in emergent and dynamic ways. To facilitate the practical needs of teaching and assessment, we simplify conversation into produced objectivities that reflect disciplinary and dominant cultural norms and values at the time of their creation. These objectivities do not necessarily adequately reflect the way in which conversations unfold in dynamic, participant-managed ways as they often list specific contextualized behaviors rather than the context-free system of conversation. Despite this, they often become standardized and used in ways that can lead to harm for students, patients and carers, and educators. This violent simplification is made possible through educational and healthcare systems that reinforce disciplinary silos and underinvest in communication education.</div></div><div><h3>Conclusions</h3><div>Engaging with the complexity of conversation within our educational practices is necessary to reduce the risk of harm. This involves explicit consideration of how objective tools are created and used in communication education, increased investment from education and healthcare sectors, and integrating knowledge about how conversation works from research of communication-in-practice.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108558"},"PeriodicalIF":2.9,"publicationDate":"2024-11-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142702746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating the feasibility and utility of machine translation for patient education materials written in plain language to increase accessibility for populations with limited english proficiency","authors":"Mohamed Ugas ,&nbsp;Maria Anna Calamia ,&nbsp;Jessica Tan ,&nbsp;Ben Umakanthan ,&nbsp;Christine Hill ,&nbsp;Karen Tse ,&nbsp;Angela Cashell ,&nbsp;Zaynab Muraj ,&nbsp;Meredith Giuliani ,&nbsp;Janet Papadakos","doi":"10.1016/j.pec.2024.108560","DOIUrl":"10.1016/j.pec.2024.108560","url":null,"abstract":"<div><h3>Background</h3><div>Populations with limited English proficiency (LEP) face comprehension barriers with health information as navigating healthcare systems involves encountering health information that is written at high reading grade levels, utilizes complex medical jargon, and unfamiliar or abstract terms and concepts. Despite the serious consequences of language discordance there is limited funding available for the translation of patient education material in the public healthcare setting. In response to the imperative need to provide equal access to patient education materials to all patients, regardless of English language proficiency, some have raised the feasibility of leveraging machine translation software. This study investigates the feasibility and utility of using machine translation (Google Translate) to translate patient education materials written in plain language.</div></div><div><h3>Methods</h3><div>A sample of 5 patient education pamphlets were selected for inclusion based on their high usage and importance. These were assessed for their readability and translated by both human translators and using Google Translate into Spanish, Portuguese, Punjabi, Simplified Chinese, and Vietnamese. Medical translators conducted blinded appraisal of both sets of translations on four domains.</div></div><div><h3>Results</h3><div>Spanish and Vietnamese language pamphlets achieved the highest overall scores. There were significant differences between human and machine translation in favour of the former for all of the languages, although machine translation scored above 3/5 in 90 % of the domains tested. There was no correlation between readability scores and translation scores.</div></div><div><h3>Discussion</h3><div>Google Translate performs well in multiple translation domains despite its continued inferiority relative to professional human translation. The high scoring of machine translated pamphlets, particularly in the most crucial domain of severity however, points to its potential adoption in a limited capacity in healthcare settings, with processes in place, like pre-screening for high-risk content that may pose a threat to patient well-being.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108560"},"PeriodicalIF":2.9,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142702747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Factors associated with communication preferences in transgender and/or gender-diverse individuals – a survey study","authors":"Rieka von der Warth ,&nbsp;Mirjam Körner ,&nbsp;Erik Farin-Glattacker","doi":"10.1016/j.pec.2024.108552","DOIUrl":"10.1016/j.pec.2024.108552","url":null,"abstract":"<div><h3>Introduction</h3><div>As communication should be adapted to the individual, the aim of this study was to explore possible factors related to communication preferences in transgender and/or gender-diverse individuals.</div></div><div><h3>Methods</h3><div>A survey study was conducted in September 2022. Communication preferences were assessed using the CommTrans questionnaire, which included two scales: emotional resonance and gender-related communication. Additionally, we assessed gender, age, relationship status, number of self-reported minorities, health literacy, mental health, and own communication style. Analyses were conducted using multiple linear regression analyses.</div></div><div><h3>Results</h3><div>A total of 223 individuals completed the survey, of whom 139 (58.2 %) identified as non-binary. Participants valued emotional resonance moderately high (Mean.: 70.6; SD.: 19.5) and gender-related preferences in the middle range (Mean 57.4; SD.: 27.2). As regards emotional resonance, not identifying with a minority was associated with a lower importance of doctors’ response to patients emotions. Furthermore, having a self-confident communication style as a transgender and/or gender-diverse individual was related to a lower perceived importance in gender-related communication, while identifying as non-binary was related with a greater importance.</div></div><div><h3>Conclusion</h3><div>Our findings might help to expand doctors’ knowledge, and thus help them to provide patient-centered care for transgender and/or gender-diverse individuals.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108552"},"PeriodicalIF":2.9,"publicationDate":"2024-11-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142683375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}