Patient Education and Counseling最新文献

{"title":"Assessing virtual patients for empathy training in healthcare: A scoping review","authors":"Xiaobei Chen ,&nbsp;Zixiao Yang","doi":"10.1016/j.pec.2025.108752","DOIUrl":"10.1016/j.pec.2025.108752","url":null,"abstract":"<div><h3>Objective</h3><div>A growing body of virtual patients (VPs) generated by computers has been incorporated into medical education that includes empathy training. We sought to uncover the validity and effectiveness of VPs in empathy training.</div></div><div><h3>Method</h3><div>The authors carried out a comprehensive search of all articles published between 1991 and 2023 in the seven databases of literature in the areas of health science and education. In total, 2170 abstracts were reviewed, and ultimately, the final corpus consisted of 44 articles.</div></div><div><h3>Results</h3><div>Guided by the Computer-as-social-actor framework, this study identified four types of primary social cues presented in current literature to arouse trainees’ social responses. Overall, the social cues used across the included studies were similar. However, the efficacy and effectiveness of VPs varied, and we identified four factors that may influence these outcomes. First, technology matters. VPs for VR systems were found to be effective in clinical empathy training, but limited empirical evidence supported web-or-mobile-based VPs. Second, improvement was only observed in the cognitive empathy dimension. Third, studies that have longer interaction duration (over 30 minutes). Last, using self-report measurements were more likely to observe significant improvements. Qualitative findings revealed that VPs for VR systems can create an immersive experience that allows users to understand the needs of patients and put themselves in patients’ shoes, while web-or-mobile-based VPs are more convenient for trainees.</div></div><div><h3>Practical implications</h3><div>This review displays evidence supporting the efficacy and effectiveness of VPs in future medical empathy training. Mechanisms and future research agendas were discussed.</div></div><div><h3>Conclusion</h3><div>VPs are promising tools for future empathy training.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108752"},"PeriodicalIF":2.9,"publicationDate":"2025-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143671497","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Older patients’ experiences and needs regarding pharmacotherapeutic care in-hospital and after discharge","authors":"Eline M.C. Engelen ,&nbsp;Wilma Knol ,&nbsp;Stephanie C.M. Wuyts ,&nbsp;Darshana A. Theunissen ,&nbsp;Ariel M. Vondeling ,&nbsp;Sjacky Cooijmans ,&nbsp;Noortje van Herwaarden ,&nbsp;Cornelis Kramers ,&nbsp;Patricia M.L.A. van den Bemt ,&nbsp;Michiel A. van Agtmael ,&nbsp;Marcel L. Bouvy","doi":"10.1016/j.pec.2025.108754","DOIUrl":"10.1016/j.pec.2025.108754","url":null,"abstract":"<div><h3>Objective</h3><div>This qualitative study explores the experiences and needs of older patients with polypharmacy regarding transitional pharmacotherapeutic care during hospital admission and following discharge, identifying areas for improvement.</div></div><div><h3>Methods</h3><div>A qualitative study was conducted using semi-structured interviews with patients discharged from two Dutch hospitals (academic and non-academic). Patients were asked about their experiences and needs related to medication management, information provision, attitude towards medication changes, decision-making, interactions with healthcare providers and involvement of professional and non-professional support networks. Interviews were transcribed verbatim and analyzed thematically using the Framework approach.</div></div><div><h3>Results</h3><div>Thirteen interviews were conducted. Patients reported diverse experiences and needs regarding transitional pharmacotherapeutic care. Three key themes emerged: patient context, trust in the healthcare system and collaborative decision-making. Participants showed a high level of trust in the organization of healthcare and varying awareness of the benefits of extensive collaboration between healthcare professionals across healthcare settings.</div></div><div><h3>Conclusions</h3><div>Patients’ experiences with pharmacotherapeutic care during hospital admission and following discharge were partly influenced by a high level of trust in the healthcare system. However, shortcomings were noted in adapting care to individual informational needs, patient contexts, and involvement in decision-making about medication changes.</div></div><div><h3>Practice implications</h3><div>To optimize patients’ experiences in pharmacotherapeutic transitional care, it is essential to balance patient autonomy with professional guidance in the development of new patient-centered medication optimization interventions. Healthcare professionals should ask and document patient preferences in communication and support regarding medication decisions. Clear communication about the role of each healthcare professional may enhance patient awareness of potential medication errors, as some patients now put their trust in the organization of healthcare.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108754"},"PeriodicalIF":2.9,"publicationDate":"2025-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143704462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Corrigendum to “Promoting interactional health equity through (Complementary and Integrative Health) talk during clinical encounters” [Patient Educ Couns 134 (2025) 108651]","authors":"Evelyn Y. Ho ,&nbsp;Christopher J. Koenig","doi":"10.1016/j.pec.2025.108739","DOIUrl":"10.1016/j.pec.2025.108739","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108739"},"PeriodicalIF":2.9,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143609790","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development of GROVE: A Guideline for RepOrting Vignette Experiments conducted in a healthcare context","authors":"Marij A. Hillen ,&nbsp;Leonie N.C. Visser ,&nbsp;Nanon H.M. Labrie ,&nbsp;Liesbeth M. van Vliet ,&nbsp;Som Saha ,&nbsp;Danielle Blanch-Hartigan ,&nbsp;Ellen M.A. Smets ,&nbsp;On behalf of the GROVE Working group","doi":"10.1016/j.pec.2025.108750","DOIUrl":"10.1016/j.pec.2025.108750","url":null,"abstract":"<div><h3>Objective</h3><div>Experimental studies using vignettes investigate the impact of healthcare professional or patient/client characteristics, communication, and/or other behaviors on outcomes. To ensure methodological rigor and quality, guidance is needed for systematic reporting of such studies. We describe the development of the Guideline for RepOrting of Vignette Experiments (GROVE).</div></div><div><h3>Methods</h3><div>A steering group comprising experts in vignette research oversaw guideline development using an iterative and expert-driven approach. The development process included reviewing relevant literature, developing draft reporting criteria, soliciting feedback from a working group of international experts, applying the draft criteria to completed or planned vignette studies, and iteratively revising criteria until final group consensus was reached. GROVE was registered with the EQUATOR network repository of reporting guidelines.</div></div><div><h3>Results</h3><div>The final guideline encompasses the following criteria: 1. Rationale for a vignette design; 2. Vignette content; 3. Outcomes; 4. Vignette validity &amp; realism; 5. Participants; and 6. Accessibility. Criterion 2 is further divided into five sub-criteria: 2.1. Healthcare scenario; 2.2. Manipulation &amp; standardization; 2.3. Mode of delivery; 2.4. Expert involvement; and 2.5. Pilot testing.</div></div><div><h3>Conclusion</h3><div>GROVE offers authors guidance in reporting experimental vignette studies.</div></div><div><h3>Practice implications</h3><div>Transparent reporting of vignette studies will help readers evaluate the reliability and validity of study findings, replicate studies, and extract relevant information for reviews.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108750"},"PeriodicalIF":2.9,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143654756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Applications in human-centered design: Shared-Decision Making for mental health treatment in primary care","authors":"Katie Tirtanadi ,&nbsp;Kathryn A. Johnson ,&nbsp;Amee J. Epler ,&nbsp;Jessica A. Chen","doi":"10.1016/j.pec.2025.108745","DOIUrl":"10.1016/j.pec.2025.108745","url":null,"abstract":"<div><h3>Objective</h3><div>Shared Decision Making (SDM) is heralded as a standard for patient-centered care, but implementation of SDM in routine mental health practice has proven difficult to achieve. Human-centered design (HCD) may hold promise for improving SDM implementation in busy clinical settings. This study describes applying HCD to develop an SDM documentation support tool intended to encourage successful use of SDM by mental health clinicians.</div></div><div><h3>Methods</h3><div>This descriptive, proof-of-concept study utilized the Discover-Design-Build-Test HCD framework to simplify a comprehensive SDM protocol for mental health decision making. Implementation was piloted within multiple primary care clinics. The study consisted of three phases: information gathering (interviewing clinicians), solution generation and prototyping, and testing a final prototype in routine care settings.</div></div><div><h3>Results</h3><div>Our project proceeded through eight cycles of user design and feedback. Clinicians pilot tested the final product, a documentation note template incorporating SDM prompts and explanations. It is currently available for clinical use.</div></div><div><h3>Conclusions</h3><div>Clinicians were able to use the HCD-redesigned SDM documentation note template intuitively, i.e., without explicit instruction. Leveraging buy-in from users throughout the entirety of the process (from problem investigation to solution discussions) created opportunities to tailor implementation strategies and may support ownership of the end-product by primary stakeholders.</div></div><div><h3>Practice implications</h3><div>HCD may be a promising methodology for streamlining the adoption of complex clinical tasks like SDM.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108745"},"PeriodicalIF":2.9,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pictorial art for gaining informed consent in low-literacy settings","authors":"Swapnil.G. Ghotane ,&nbsp;Clarice. Holt ,&nbsp;Stephen.J. Challacombe ,&nbsp;Patric. Don-Davis ,&nbsp;David. Kamara ,&nbsp;Jennifer.E. Gallagher","doi":"10.1016/j.pec.2025.108749","DOIUrl":"10.1016/j.pec.2025.108749","url":null,"abstract":"<div><h3>Objective</h3><div>Gaining informed consent for research in low-literacy setting is challenging. This study explores the creation and use of pictorial art in information and consent form in Sierra Leone (SL).</div></div><div><h3>Methods</h3><div>A pictorial ‘information and consent’ (PIC) sheet was developed with an illustrator (co-author) and local colleagues for a national oral health survey involving school children in SL. Evaluation included 500 participants (children and parents) who received a feedback form to assess their satisfaction with pictures and also their effectiveness in aiding understanding of the research process, using a visual five-point Likert scale. Data were descriptively analysed using STATA v.18.</div></div><div><h3>Results</h3><div>Feedback was received from 360 children (aged 12 and 15 years) and 14 parents of 6-year-olds. The average rating, out of five, for the question about liking pictures on the PIC sheet was 4.83 (S.D. = 0.62), while rating for how well pictures helped them understand the survey was 4.87 (S.D. = 0.54). Although most feedback was positive, a small minority expressed negative views.</div></div><div><h3>Conclusion</h3><div>Overall, participants appreciated that the pictorial aids had helped in understanding the research process.</div></div><div><h3>Practical implications</h3><div>Pictorial aids show potential to improve comprehension and informed consent in low-literacy settings, indicating a promising approach for future research in similar contexts.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108749"},"PeriodicalIF":2.9,"publicationDate":"2025-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient-centred care in precision oncology: A systematic review","authors":"Ella Adi-Wauran ,&nbsp;Suvetha Krishnapillai ,&nbsp;Elizabeth Uleryk ,&nbsp;Saumeh Saeedi ,&nbsp;Yvonne Bombard","doi":"10.1016/j.pec.2025.108753","DOIUrl":"10.1016/j.pec.2025.108753","url":null,"abstract":"<div><h3>Objectives</h3><div>Patient-centred care (PCC) improves outcomes in various clinical contexts. There is, therefore, a need to explore PCC in precision oncology – a rapidly advancing, innovative approach to cancer treatment/management that is increasingly integrated into patient care. This systematic review aims to synthesize evidence on PCC in precision oncology by addressing (1) How can precision oncology be delivered in a patient-centred manner? (2) How does patient-centred precision oncology impact outcomes?</div></div><div><h3>Methods</h3><div>Studies were eligible for inclusion if their population was cancer patients, used a patient-centred approach in delivering precision oncology, and reported patient/provider experiences. There were no restrictions to the study design and publication year. A systematic search of MEDLINE, Embase, and CINAHL databases was conducted from their dates of inception to June 21, 2021. Narrative synthesis was used.</div></div><div><h3>Results</h3><div>The seventeen included studies were mostly qualitative (13/17), reflect breast cancer patients/providers experiences (9/17), and conducted during cancer treatment (16/17). Studies identified six processes for delivering patient-centred precision oncology and suggest that patient-centred precision oncology impacts patients’ psychological outcomes and delivery of targeted therapy.</div></div><div><h3>Conclusions</h3><div>Findings highlighted respect for patients’ preferences and supporting decision-making processes related to using precision oncology. More evidence of PCC in precision oncology is needed across the continuum of cancer care.</div></div><div><h3>Practice implications</h3><div>PCC processes identified can be targeted in the development, implementation, and evaluation of programs delivering precision oncology.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108753"},"PeriodicalIF":2.9,"publicationDate":"2025-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684717","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Fundamentally flawed or functional and feasible? The use of readability metrics in healthcare","authors":"Olivia Mac,&nbsp;Danielle M. Muscat,&nbsp;Julie Ayre,&nbsp;Kirsten McCaffery","doi":"10.1016/j.pec.2025.108741","DOIUrl":"10.1016/j.pec.2025.108741","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108741"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143609779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementation of a patient decision aid for discharge planning of hospitalized patients with stroke: aprocess evaluation using a mixed-methods approach","authors":"J.C.M. Prick ,&nbsp;E.G. Engelhardt ,&nbsp;F.K. Lansink Rotgerink ,&nbsp;I.A. Deijle ,&nbsp;S.M. van Schaik ,&nbsp;M.M. Garvelink ,&nbsp;R. Dahmen ,&nbsp;P.J.A.M. Brouwers ,&nbsp;I.W.M. van Uden ,&nbsp;P.J. van der Wees ,&nbsp;R.M. Van den Berg-Vos ,&nbsp;C.F. van Uden-Kraan ,&nbsp;On behalf of the Santeon VBHC STROKE group","doi":"10.1016/j.pec.2025.108716","DOIUrl":"10.1016/j.pec.2025.108716","url":null,"abstract":"<div><h3>Objectives</h3><div>To promote shared decision-making (SDM) during discharge planning of patients with stroke, a patient decision aid (PtDA) was implemented in seven Dutch hospitals. This mixed-methods process evaluation assessed: 1) PtDA use, 2) the SDM process, 3) facilitators and barriers influencing health care professional (HCP) adoption of the PtDA, and 4) HCP experiences with the PtDA.</div></div><div><h3>Methods</h3><div>Rates of PtDA use were derived from hospital registries and PtDA log data. SDM levels in consultations were quantitatively assessed using OPTION-5 (score range 0–100); the SDM process was analyzed qualitatively. Facilitators and barriers were identified via the MIDI questionnaire. HCP experiences were explored through interviews.</div></div><div><h3>Results</h3><div>PtDA use varied across hospitals, with 10–96 % of patients receiving it and 27–100 % of those ultimately using it. OPTION-5 scores were low in both pre-implementation (<em>n</em> = 68, median:0, Q1-Q3:0–0) and post-implementation consultations (<em>n</em> = 49, median:0, Q1-Q3:0–15). Barriers included lack of whole-team engagement and limited recognition of PtDA benefits. Frequent PtDA use was associated with HCP confidence and self-efficacy in SDM.</div></div><div><h3>Conclusions</h3><div>Successful PtDA implementation in stroke care requires whole-team engagement, emphasis on PtDA benefits, and enhancing HCP confidence and self-efficacy in SDM.</div></div><div><h3>Practice implications</h3><div>Highlighting positive SDM outcomes and patient benefits may encourage HCPs to adopt the PtDA.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108716"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143715451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"DNA-poli: Design and development of a digital platform for family communication support and predictive genetic counseling on inherited diseases","authors":"Tessa C. Beinema ,&nbsp;Marlies N. van Lingen ,&nbsp;Lieke M. van den Heuvel ,&nbsp;Marten A. Siemelink ,&nbsp;Jan Kolkmeier ,&nbsp;Randy Klaassen ,&nbsp;Corrette Ploem ,&nbsp;Martina C. Cornel ,&nbsp;Noor A.A. Giesbertz ,&nbsp;Dianne van Essen ,&nbsp;Dirk K.J. Heylen ,&nbsp;J. Peter van Tintelen","doi":"10.1016/j.pec.2025.108746","DOIUrl":"10.1016/j.pec.2025.108746","url":null,"abstract":"<div><h3>Objectives</h3><div>By developing a digital platform (“DNA-poli”) we aim to improve the uptake and efficiency of predictive genetic counseling and cascade testing for relatives at-risk of inherited conditions. This is crucial for reducing disease morbidity and mortality while meeting the growing demand for genetic counseling. We outline the design, development, and final concept and prototype of DNA-poli and discuss the challenges faced and how these were addressed.</div></div><div><h3>Methods</h3><div>We followed an approach based on the Design Thinking and Human-Centered Design methods, which entails four stages: 1) Discover/Define, 2) Design, 3) Develop, and 4) Deliver. Stakeholders were actively involved through interviews, focus groups, and sounding board consultations. Two inherited cardiac conditions (hypertrophic cardiomyopathy and dilated cardiomyopathy) served as the first use case.</div></div><div><h3>Results</h3><div>The DNA-poli prototype is a digital outpatient clinic for predictive counseling on inherited conditions and cascade testing. It facilitates both pre-test and post-test genetic counseling, including information provision on specific conditions and tests, decision support, collecting medical information from a counselee, and return of results. ARRs can process relevant information online at their convenience and can request genetic tests locally after a short teleconsultation with a healthcare professional. A conversational agent is incorporated to answer questions and collect patient characteristics.</div></div><div><h3>Conclusions</h3><div>DNA-poli is the first digital cardiogenetics platform to encompass the full genetic care pathway for family communication and predictive genetic counseling. Development challenges related to logistical implementation, ethical and legal considerations, and ensuring quality of care standards.</div></div><div><h3>Practice implications</h3><div>DNA-poli allows timely, efficient, and flexible access to predictive counseling, supporting probands with informing their ARRs. ARRs have access to personalized information and modules to support decision-making at their convenience.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108746"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143654757","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}