Patient Education and Counseling最新文献_第10页

Patient education in ethnic minority and migrant patients with heart disease: A scoping review 少数民族和移民心脏病患者的患者教育：范围综述。

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-23 DOI: 10.1016/j.pec.2024.108480

Ling Zhang , Gabriela Lima de Melo Ghisi , Wendan Shi , Maureen Pakosh , Emilia Main , Robyn Gallagher

{"title":"Patient education in ethnic minority and migrant patients with heart disease: A scoping review","authors":"Ling Zhang , Gabriela Lima de Melo Ghisi , Wendan Shi , Maureen Pakosh , Emilia Main , Robyn Gallagher","doi":"10.1016/j.pec.2024.108480","DOIUrl":"10.1016/j.pec.2024.108480","url":null,"abstract":"<div><h3>Objective</h3><div>to describe the characteristics and synthesise the effectiveness of culturally and linguistically appropriate educational interventions for ethnic minority/migrant patients with heart disease.</div></div><div><h3>Methods</h3><div>Five databases were searched (journal inception to August/2023), identifying studies reported on health outcomes and patients’ experience of educational interventions specifically designed for individuals from ethnic minority/migrant backgrounds. These outcomes included disease-related knowledge, self-care behaviours, risk factor profiles, hospital admissions, and patient satisfaction.</div></div><div><h3>Results</h3><div>Out of 4772 records, 39 full-text manuscripts were screened, resulting in inclusion of five studies. These studies, primarily conducted in the USA and Australia, included a total of 938 participants. The interventions varied in delivery mode, content, and target patient groups. Notably, interventions addressing linguistic and cultural considerations showed potential for enhancing knowledge, self-care behaviours, and risk factor profiles among ethnic minority or migrant patients.</div></div><div><h3>Conclusions</h3><div>Although culturally tailored educational interventions show promise, gaps in reporting and adherence persist. Further research is needed to evaluate effectiveness of these interventions and develop implementation frameworks.</div></div><div><h3>Practice Implications</h3><div>Healthcare providers should prioritize culturally tailored interventions in cardiac rehabilitation, aiming to reduce health outcome disparities among ethnic minorities/migrants. Additionally, resources should be allocated towards the development of tailored programs that address the unique needs of these communities.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108480"},"PeriodicalIF":2.9,"publicationDate":"2024-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511760","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Credit where it’s due: Recognising lived experience in research authorship 归功于它应得的：认可研究作者的生活经历。

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-19 DOI: 10.1016/j.pec.2024.108472

Elizabeth Lynch , Lana Earle-Bandaralage , Sarah Eley , Agustina Gancia , Stacy Larcombe , Shyamsundar Muthuralingam , Louise Townsin , Hannah Wardill , Nadia Corsini

{"title":"Credit where it’s due: Recognising lived experience in research authorship","authors":"Elizabeth Lynch , Lana Earle-Bandaralage , Sarah Eley , Agustina Gancia , Stacy Larcombe , Shyamsundar Muthuralingam , Louise Townsin , Hannah Wardill , Nadia Corsini","doi":"10.1016/j.pec.2024.108472","DOIUrl":"10.1016/j.pec.2024.108472","url":null,"abstract":"<div><h3>Objective</h3><div>To identify current practice and preferences about whether and how to acknowledge authors’ lived experience when authors contribute their lived experience expertise to research outputs in the context of health and healthcare.</div></div><div><h3>Methods</h3><div>Surveys to people with lived experience and to academic researchers who had conducted research together (via consultation, partnership or lived-experience-led).</div></div><div><h3>Results</h3><div>Responses from 40 academic researchers and 36 lived experience contributors were included. Most respondents (n = 23 lived experience, 63.9 %; n = 28 academic, 70 %) reported an author’s lived experience should be publicly recognised. Approximately half recommended that affiliations should highlight authors’ lived experiences (n = 24 lived experience, 66.7 %; n = 19 academic, 47.5 %).</div><div>When people with lived experience had co-authored outputs, their lived experience was not always acknowledged (n = 13/20, 65 % lived experience; n = 17/32 academic, 53.1 %).</div></div><div><h3>Conclusion</h3><div>Most respondents reported that a person’s lived experience should be recognised on health-related research outputs, but this did not consistently occur in practice.</div></div><div><h3>Practice Implications</h3><div>Teams planning health-related research outputs should seek input from relevant authors about their preferred practices and terms for recognising their lived experience. Unless preferred otherwise, we recommend that the lived experiences of relevant authors are acknowledged within the output and that lived experiences are presented in affiliations.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108472"},"PeriodicalIF":2.9,"publicationDate":"2024-10-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511758","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Bringing patients out of the gloom: Examining the effects of patient power and affect labeling on emotional experience reflected in emotional judgement 让患者走出阴霾：研究患者权力和情感标签对情感判断中反映的情感体验的影响。

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-19 DOI: 10.1016/j.pec.2024.108477

Wenjun Zhang , Jian Xu , Yawen Du , Xiaoou Bu , Pei Wang

{"title":"Bringing patients out of the gloom: Examining the effects of patient power and affect labeling on emotional experience reflected in emotional judgement","authors":"Wenjun Zhang , Jian Xu , Yawen Du , Xiaoou Bu , Pei Wang","doi":"10.1016/j.pec.2024.108477","DOIUrl":"10.1016/j.pec.2024.108477","url":null,"abstract":"<div><h3>Objective</h3><div>Negative emotions are common among patients in medical settings. It is important to investigate impacts of patient power and affect labeling on emotional experience in patients.</div></div><div><h3>Methods</h3><div>Behavioral judgments and event-related potentials (ERPs) were recorded while participants with high or low patient power made emotional judgments (positive, negative) about neutral faces, as well as investigating how affect labeling (affect labeling, viewing) influenced emotional judgments about neutral faces in participants with low patient power.</div></div><div><h3>Results</h3><div>Individuals with low patient power made more and faster negative emotion judgements. A larger late positive component (LPC) amplitude was found in negative emotion judgments for individuals with low patient power, a component related to allocation of attentional resources to motivationally salient stimuli. Affect labeling elicited less and slower negative emotion judgments in individuals with low patient power.</div></div><div><h3>Conclusions</h3><div>These results suggest that low patient power triggers negative emotion, which can be reduced by affect labeling.</div></div><div><h3>Practice implications</h3><div>The current findings provide valuable insights into reducing negative emotions in patients, fostering promising targets for training for medical professionals and education for patients aiming to ensure more humanistic and higher-quality care delivery.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108477"},"PeriodicalIF":2.9,"publicationDate":"2024-10-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142607158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A scoping review of decision regret in non-communicable diseases: The emerging roles of patient-clinician communication, psychological aspects, and medical outcomes 非传染性疾病决策遗憾的范围界定综述：患者与医生沟通、心理因素和医疗结果的新作用。

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-18 DOI: 10.1016/j.pec.2024.108478

Alice Silvia Brera , Cristina Arrigoni , Arianna Magon , Gianluca Conte , Silvia Belloni , Luigi Bonavina , Galyna Shabat , Marco Alfredo Arcidiacono , Małgorzata Pasek , Rosario Caruso

{"title":"A scoping review of decision regret in non-communicable diseases: The emerging roles of patient-clinician communication, psychological aspects, and medical outcomes","authors":"Alice Silvia Brera , Cristina Arrigoni , Arianna Magon , Gianluca Conte , Silvia Belloni , Luigi Bonavina , Galyna Shabat , Marco Alfredo Arcidiacono , Małgorzata Pasek , Rosario Caruso","doi":"10.1016/j.pec.2024.108478","DOIUrl":"10.1016/j.pec.2024.108478","url":null,"abstract":"<div><h3>Objective</h3><div>To map the existing literature on decision regret among patients with non-communicable diseases (NCDs) and develop an integrated framework to understand its impact on patient outcomes and healthcare processes.</div></div><div><h3>Methods</h3><div>A systematic search of PubMed, Embase, CINAHL, Cochrane Library, Google Scholar, and Scopus databases was conducted until January 2024 using the “Population, Concept, Context” framework. The review identified and analyzed 28 studies published between 2005 and 2023 in North America and Europe.</div></div><div><h3>Results</h3><div>Decision regret primarily arises from mismatches between expected and actual treatment outcomes and is strongly influenced by patient-clinician communication quality. The need for improved informed consent processes and enhanced communication strategies to mitigate regret emerged as prevalent themes. A hypothetical theoretical path was developed to define the relationship between patient expectations, medical outcomes, and emotional responses.</div></div><div><h3>Conclusion</h3><div>Enhanced communication and personalized treatment plans are crucial for addressing the multifaceted nature of regret in healthcare. Improved patient-clinician communication and informed consent processes can significantly reduce decision regret.</div></div><div><h3>Practice Implications</h3><div>Healthcare providers should focus on effective communication and education to personalize care strategies and align treatment decisions with patient expectations. This could ultimately reduce decision regret and improve patient outcomes.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108478"},"PeriodicalIF":2.9,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Promoting health literacy of older post-discharge patients in general practice - Creation of the GP-MATE communication tool through co-design 促进全科医生对出院后老年患者的健康知识普及--通过共同设计创建 GP-MATE 交流工具。

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-17 DOI: 10.1016/j.pec.2024.108474

Rachel Ann Spencer , Zakia Shariff , Jeremy Dale

{"title":"Promoting health literacy of older post-discharge patients in general practice - Creation of the GP-MATE communication tool through co-design","authors":"Rachel Ann Spencer , Zakia Shariff , Jeremy Dale","doi":"10.1016/j.pec.2024.108474","DOIUrl":"10.1016/j.pec.2024.108474","url":null,"abstract":"<div><h3>Objective</h3><div>Work with older patients and their carers to co-design a tool that improves patient - general practice communication and continuity of care following discharge of an older person from hospital.</div></div><div><h3>Methods</h3><div>Experience Based Co-Design with three teams of six to seven lay people (older patients and their carers), each supported by a corresponding general practice group. The process included an implementation-focused event with participants using the intervention in a live role-play.</div></div><div><h3>Results</h3><div>Co-design generated a patient-held tool (GP-MATE) that focuses on four areas of post-discharge care: carers/caring; continuity; medication safety and information power. Access to general practice for patients/carers post-discharge was considered to be vital to improving communication.</div></div><div><h3>Discussion and conclusion</h3><div>The co-design process enabled patients and carers to be involved through all stages of intervention development, ensuring relevance and alignment.</div></div><div><h3>Practice implications</h3><div>The intervention is uniquely suited to general practice, comprehensive yet brief enough to be usable within a 20-minute consultation. While the domains of GP-MATE compare well with existing care transitions literature, it will be important to assess impact on already busy practice schedules and impact on care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108474"},"PeriodicalIF":2.9,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142479106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Co-construction of an instructional module to improve the understanding of cancer screening by people with intellectual disabilities: Strategic choices 共同构建教学模块，提高智障人士对癌症筛查的认识：战略选择。

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-16 DOI: 10.1016/j.pec.2024.108471

Geneviève Petitpierre , Amaëlle Otandault , Elodie Neumann-Michel , Elisangela Olivier , Marc Palpacuer , Anaïs Lecluse , Xavier Heber-Suffrin , Brigitte Trétarre , Chris Serrand , Daniel Satgé

{"title":"Co-construction of an instructional module to improve the understanding of cancer screening by people with intellectual disabilities: Strategic choices","authors":"Geneviève Petitpierre , Amaëlle Otandault , Elodie Neumann-Michel , Elisangela Olivier , Marc Palpacuer , Anaïs Lecluse , Xavier Heber-Suffrin , Brigitte Trétarre , Chris Serrand , Daniel Satgé","doi":"10.1016/j.pec.2024.108471","DOIUrl":"10.1016/j.pec.2024.108471","url":null,"abstract":"<div><h3>Objective</h3><div>People with intellectual disabilities (ID) have difficulty in accessing oral or written health information presented in a conventional manner what compromises prevention. This study aims to develop accessible information on breast, cervical and colorectal cancer screening for people with ID.</div></div><div><h3>Method</h3><div>The instructional material has been developed collaboratively by a team involving representatives from different scientific disciplines (medical and psychoeducational) and people with ID. Five principles guided its elaboration, i.e. coconstruction, multimodality, phasing, socio-cognitivism and accessibility.</div></div><div><h3>Results</h3><div>The material created is a 5-component module including a 20-minute easy-toread and understand oral presentation with a slideshow, a workshop that encourages manipulation and discussion, a booklet to take away, a film to consolidate information and a questionnaire.</div></div><div><h3>Conclusion</h3><div>Providing accessible information is considered a key action in reestablishing equality in access to cancer health care and preventing a cascade of consequences. The co-construction of the module ensures its social and ecological validity. An interventional study is underway to verify its efficacy.</div></div><div><h3>Practical implication</h3><div>The best practices for cancer prevention endorse spending enough time to discuss screening. This accessible module can be used to provide people with ID basic information about screening, increase their adherence, and facilitate the discussion on this issue.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108471"},"PeriodicalIF":2.9,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511757","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Perspectives and involvement of children and adolescents during the decision-making process of their Covid-19 vaccination 儿童和青少年在接种 Covid-19 疫苗决策过程中的观点和参与情况。

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-16 DOI: 10.1016/j.pec.2024.108476

Simone Teresa Böhm-González , Sarah Detemple , Jasmin Gruß , Rosa Franke , Jörg Dötsch , Reinhard Berner , Christoph Härtel , Annic Weyersberg

{"title":"Perspectives and involvement of children and adolescents during the decision-making process of their Covid-19 vaccination","authors":"Simone Teresa Böhm-González , Sarah Detemple , Jasmin Gruß , Rosa Franke , Jörg Dötsch , Reinhard Berner , Christoph Härtel , Annic Weyersberg","doi":"10.1016/j.pec.2024.108476","DOIUrl":"10.1016/j.pec.2024.108476","url":null,"abstract":"<div><h3>Objective</h3><div>This study aims to understand the perspectives of young people towards their Covid-19 vaccination and their involvement in the decision-making process.</div></div><div><h3>Methods</h3><div>Semi-structured interviews were conducted with 25 children and adolescents (aged 8–19 years), who attended a school in Germany during the pandemic. Interviews were explored with structured and evaluative content-analysis.</div></div><div><h3>Results</h3><div>Five overarching themes were identified:</div><div>1) Motivators for vaccination: protection against Covid-19, secondary societal benefits and positive experience of peers</div><div>2) Barriers to vaccination: perceived lack of risk for severe disease</div><div>3) Participation in the decision-making process: mostly adult-initiated shared decisions</div><div>4) Role of vaccination status at school: issues of marginalization and stigmatization</div><div>5) Wishes to adults and politicians: need for better information</div></div><div><h3>Conclusion</h3><div>Involving children at a high level of participation while taking into account their individual maturity could be a favourable strategy in a family`s decision-making process regarding vaccination. Expectations from peers or parents and societal benefits as primary incentive to get vaccinated should be minimized during the decision-process.</div></div><div><h3>Practice implications</h3><div>Our study highlights the need to include young people`s perspectives in vaccine research, -development and -education campaigns. Future research should develop instruments to structurally embed and promote children and youth participation in healthcare-related decisions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108476"},"PeriodicalIF":2.9,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Disentangling gender, sex, and biology: a mixed methods study of gender identity data collection tools 区分性别、性和生物学：性别认同数据收集工具的混合方法研究

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-16 DOI: 10.1016/j.pec.2024.108473

Ash B. Alpert , Tresne Hernandez , Roman Ruddick , Charlie Manzano , Spencer Adams , Lex Rivers , Alixida Ramos-Pibernus , Jae Sevelius , Tonia Poteat , Juno Obedin-Maliver , Ethan C. Cicero , Asa Radix , Elle Lett , Don Operario , Ben Chapman , Marsha Wittink , AnaPaula Cupertino , Gabriel R. Murchison , Marcella Nunez-Smith , Francisco Cartujano-Barrera

{"title":"Disentangling gender, sex, and biology: a mixed methods study of gender identity data collection tools","authors":"Ash B. Alpert , Tresne Hernandez , Roman Ruddick , Charlie Manzano , Spencer Adams , Lex Rivers , Alixida Ramos-Pibernus , Jae Sevelius , Tonia Poteat , Juno Obedin-Maliver , Ethan C. Cicero , Asa Radix , Elle Lett , Don Operario , Ben Chapman , Marsha Wittink , AnaPaula Cupertino , Gabriel R. Murchison , Marcella Nunez-Smith , Francisco Cartujano-Barrera","doi":"10.1016/j.pec.2024.108473","DOIUrl":"10.1016/j.pec.2024.108473","url":null,"abstract":"<div><h3>Objectives</h3><div>We used community-based mixed methods to test whether transgender and gender diverse (TGD) people preferred gender identity questions developed by community members over current questions in use and generate hypotheses about data collection preferences.</div></div><div><h3>Methods</h3><div>We interviewed twenty TGD adults in English and Spanish, asking them to rate and discuss their responses to questions. We analyzed quantitative data with descriptive statistics and qualitative data with template analysis, then integrated them.</div></div><div><h3>Results</h3><div>More participants preferred gender identity questions that were currently in use. Themes: 1) TGD participants find questions about “gender” and related terminology unclear because of conflations of sex, gender, and other constructs. 2) TGD participants resist cisgenderism in questions about gender identity. 3) TGD people desire questions that allow for autonomy, privacy, and safety. 4) Contextual factors, particularly safety, influence whether and how TGD people answer questions about gender and sex.</div></div><div><h3>Conclusions</h3><div>TGD people have varied concepts of sex and gender and preferences about data collection. Future research should investigate the impacts of disentangling gender, sex, and biological factors, which could decrease stigma for TGD people.</div></div><div><h3>Practice implications</h3><div>Medical care that disentangles gender, sex, and biological factors could improve data collection effectiveness and the safety of TGD people.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108473"},"PeriodicalIF":2.9,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142539272","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The journey of patients in cancer clinical trials: A qualitative meta-synthesis on experiences and perspectives 癌症临床试验中患者的心路历程：经验与观点的定性荟萃

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-13 DOI: 10.1016/j.pec.2024.108469

Mariam Chichua , Davide Mazzoni , Chiara Marzorati , Gabriella Pravettoni

{"title":"The journey of patients in cancer clinical trials: A qualitative meta-synthesis on experiences and perspectives","authors":"Mariam Chichua , Davide Mazzoni , Chiara Marzorati , Gabriella Pravettoni","doi":"10.1016/j.pec.2024.108469","DOIUrl":"10.1016/j.pec.2024.108469","url":null,"abstract":"<div><h3>Objective</h3><div>To synthesize findings from qualitative studies focusing on adult cancer patients and their experiences and perspectives on clinical trials.</div></div><div><h3>Methods</h3><div>A meta-synthesis was conducted on the literature retrieved from Scopus, Embase, PubMed, and PsycInfo databases. Patient quotes from papers were coded line-by-line using Nvivo software, and themes were created.</div></div><div><h3>Results</h3><div>45 papers were included. Three large themes were identified based on the timeline of trials: (1) “pre-trial participation” includes sub-themes regarding informational needs, experience with the decision, and representations. (2) “Ongoing trial” includes subthemes covering supportive care, practical and psycho-physical burdens, identity and comparison with others, and the importance of maintaining hope. (3) “Post-trial,” with subthemes covering comprehension of results and attitudes towards data sharing, perception of being left unattended, and hindsight and regretful thoughts.</div></div><div><h3>Conclusion</h3><div>This work emphasizes the importance of contextualizing patient experiences and holistically viewing trials. Additionally, this review stresses that patient narratives in the post-trial period are underrepresented in the literature.</div></div><div><h3>Practice implications</h3><div>Further research should prioritize the post-trial stage to enhance patients' psychological well-being and address concerns such as regret to reduce trial dropout rates. Emphasizing patient connections, providing clear trial-related information, and offering remote participation options, particularly for rural patients, are crucial steps in improving patient experience and trial adherence.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108469"},"PeriodicalIF":2.9,"publicationDate":"2024-10-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142445173","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Boosting hospital falls prevention using health assistant staff alongside usual care 利用保健助理人员与常规护理一起加强医院跌倒预防工作

IF 2.9 2区医学

Patient Education and Counseling Pub Date : 2024-10-12 DOI: 10.1016/j.pec.2024.108464

Claire Thwaites , Louise Shaw , Rosalie Lui , Debra Kiegaldie , Hazel Heng , Jonathan P. McKercher , Daniele Volpe , Anne-Marie Hill , Matthew Knight , Meg E. Morris

{"title":"Boosting hospital falls prevention using health assistant staff alongside usual care","authors":"Claire Thwaites , Louise Shaw , Rosalie Lui , Debra Kiegaldie , Hazel Heng , Jonathan P. McKercher , Daniele Volpe , Anne-Marie Hill , Matthew Knight , Meg E. Morris","doi":"10.1016/j.pec.2024.108464","DOIUrl":"10.1016/j.pec.2024.108464","url":null,"abstract":"<div><h3>Objectives</h3><div>Patient education is crucial for preventing hospital falls, yet workforce constraints can hinder targeted delivery. Utilising supervised healthcare assistants can enhance standard care. This study sought to understand factors that impact the feasibility of supplementing usual care with patient falls education delivered by supervised allied health assistants.</div></div><div><h3>Methods</h3><div>In a qualitative study nested within a randomised controlled trial, focus groups and interviews were conducted with twelve health assistants, seven allied health professionals and two managers from the participating hospital. This elicited insights on barriers and facilitators to implementing workforce redesign to deliver tailored patient falls education. An inductive approach was used to thematically analyse the data.</div></div><div><h3>Results</h3><div>Three key themes emerged: (i) it was feasible for health assistants to deliver hospital patient education; (ii) patients engaged with hospital falls prevention education delivered by assistants; (iii) hospital workforce redesign can be successfully implemented provided there is system-wide buy-in.</div></div><div><h3>Conclusions</h3><div>Health assistants can be trained to successfully deliver hospital falls prevention education provided they have adequate supervision, training, and resources.</div></div><div><h3>Practice implications</h3><div>Sustained implementation requires dedicated staffing hours for service delivery and staff education.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"130 ","pages":"Article 108464"},"PeriodicalIF":2.9,"publicationDate":"2024-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142442060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0