Patient Education and Counseling最新文献

{"title":"Older rural women’s pre-visit planning and involvement in South Australian general practices: A candidacy theory perspective","authors":"Mohammad Hamiduzzaman ,&nbsp;Noore Siddiquee ,&nbsp;Harry James Gaffney ,&nbsp;Helen McLaren ,&nbsp;Jennene Greenhill","doi":"10.1016/j.pec.2024.108602","DOIUrl":"10.1016/j.pec.2024.108602","url":null,"abstract":"<div><h3>Objective</h3><div>To explain older rural women’s participation in clinical decision-making with GPs and explore factors associated with their pre-visit planning and involvement in treatment processes.</div></div><div><h3>Methods</h3><div>A sequential, theory-driven mixed-method study was conducted. Women aged 65 years or above who had visited a GP three months prior were recruited from five rural towns in South Australia through the local Rotary Club. Data collection utilised an 18-item scale and a semi-structured interview guide. Quantitative data were analysed using chi-square tests and multinomial logit models, whereas qualitative data were coded into themes. As applied in the discussion, the candidacy theory provided a framework for further adding meaning to the results.</div></div><div><h3>Results</h3><div>Seventy-one older rural women completed surveys. Across the domains, including health knowledge, GP visit preparation, participation in discussion, and attitudes towards shared decision-making, most items indicated a moderate level of women's health knowledge and involvement in GP treatments. Multivariate analysis revealed having less than a basic education, not speaking English at home, and being in the youngest-old age group (65–74 years) were positively associated with low levels of pre-visit planning and involvement in GP treatments. Analysis of interviews with 21 women identified three themes: capacity for health planning and preparedness, communication styles and preferences, and accessibility and continuity of care.</div></div><div><h3>Conclusion</h3><div>The findings of this study underscore the urgent need for redesigning GP services. By considering the intersection between behavioural and clinical aspects of older rural women’s pre-visit planning and involvement in GP treatment processes in rural South Australia, we can inspire positive change in healthcare delivery.</div></div><div><h3>Practice Implications</h3><div>Practice Implications: our study provides actionable insights on how and where to intervene to enhance older rural women’s capacity to engage in pre-visit planning for successful GP consultations. This knowledge can empower healthcare professionals and policymakers to implement effective strategies.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108602"},"PeriodicalIF":2.9,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Embedding an illustrator in the process of co-producing resources to enhance communication and shared decision-making for patients prescribed high-risk medication","authors":"Amelia Huw Morgan ,&nbsp;Delyth H. James","doi":"10.1016/j.pec.2024.108589","DOIUrl":"10.1016/j.pec.2024.108589","url":null,"abstract":"<div><h3>Objectives</h3><div>To examine how embedding an illustrator in the process of co-producing resources to support shared decision-making (SDM) can enhance communication between patients and healthcare professionals (HCPs).</div></div><div><h3>Methods</h3><div>Three case studies were identified involving high-risk medications where the utility of effective visual communication resources is key to SDM due to the risk of information being misinterpreted leading to potential serious adverse effects. An iterative approach was adopted to the phases of co-production, where the Illustrator acted as a conduit between patients and specialist knowledge of the clinical team. The expertise of the Illustrator was harnessed to balance the use of visual and written information, working with the HCPs in co-creating the messaging.</div></div><div><h3>Results</h3><div>Case Study 1 relates to the urgent administration of hydrocortisone injection for adrenal crisis in adults and children. Case Study 2 relates to self-management of the need to adjust oral corticosteroid dosing during periods of adrenal insufficiency to prevent adrenal crisis. Case Study 3 focused on women with reproductive potential prescribed or considering sodium valproate for the management of epilepsy. The benefits of involving an Illustrator were evident across all case studies, invoking supportive, empowering and empathic visual communication throughout, leading to removal of some text by the clinical team.</div></div><div><h3>Conclusions</h3><div>Harnessing the expertise of Illustrators as part of a multi-disciplinary team with patients was seen as an enabler for authentic co-production to support an empathic approach to SDM in these three case studies. Further evaluation is needed to assess the impact of the use of visual communication resources of this nature in healthcare, and the impact on patient behaviours and clinical outcomes.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108589"},"PeriodicalIF":2.9,"publicationDate":"2024-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Towards better care: Comprehensive review of patient-reported patient engagement instruments in healthcare","authors":"Minjuan Wu ,&nbsp;Xiane Jia ,&nbsp;Yichao Zhang ,&nbsp;Wenjun Chen","doi":"10.1016/j.pec.2024.108601","DOIUrl":"10.1016/j.pec.2024.108601","url":null,"abstract":"<div><h3>Objective</h3><div>Patient engagement is widely recognized as essential for improving healthcare quality and reducing costs; however, its formal evaluation presents significant challenges. The aim of this review was to assess instruments for measuring patient engagement in healthcare from the patients’ perspective and to evaluate their psychometric properties.</div></div><div><h3>Methods</h3><div>A systematic review according to the PRISMA guidelines was conducted to evaluate the psychometric properties of patient-reported questionnaires assessing patient engagement. Studies published up to August 4, 2024, were included and appraised using the COSMIN checklist.</div></div><div><h3>Results</h3><div>Forty-one studies were included in this review. The most commonly used content to describe patient engagement were ‘preference’, ‘experiences’, ‘willingness’, and ‘informative feedback’. Few patient engagement questionnaires were designed for specific populations and lack theoretical foundation.</div></div><div><h3>Conclusion</h3><div>Further research is essential to develop valid, reliable, and feasible methodologies for assessing patient engagement within the framework of ongoing care quality improvement.</div></div><div><h3>Practice implications</h3><div>Evaluating patient engagement instruments aids in developing reliable and valid tools that better align with patient needs and preferences.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108601"},"PeriodicalIF":2.9,"publicationDate":"2024-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nonverbal behavior in telehealth visits: A narrative review","authors":"Conor M.C. Duffy ,&nbsp;Eric G. Benotsch","doi":"10.1016/j.pec.2024.108600","DOIUrl":"10.1016/j.pec.2024.108600","url":null,"abstract":"<div><h3>Objectives</h3><div>To synthesize findings from research examining nonverbal behavior (NVB) in telehealth. Use of telehealth has increased substantially in recent years—thus, it is critical to identify nonverbal strategies that facilitate positive patient-provider communication in this context.</div></div><div><h3>Methods</h3><div>Four peer-reviewed databases were searched: PubMed, PsycINFO, CINAHL, and EMBASE. Following a review of abstracts and full texts by the first author, 50 studies met inclusion criteria.</div></div><div><h3>Results</h3><div>The role of six NVBs– gaze, facial expression, gesture, head movement, proxemics, and posture– has been examined in the context of telehealth. Most included studies assessed patients’ and providers’ perspectives of NVB in telehealth. There was a lack of research examining nonverbal behaviors, and their associations with patient-centered outcomes, in naturalistic clinical settings.</div></div><div><h3>Conclusions</h3><div>While this review identified some promising nonverbal strategies to facilitate patient-provider rapport in telehealth, there is a need for future research that objectively measures NVBs and examines relationships between these behaviors and patient-centered outcomes.</div></div><div><h3>Practice implications</h3><div>Potential strategies for providers to enhance quality of communication in telehealth include gazing at the camera (vs. the screen), mirroring patients’ facial expressions and head movements, leaning forward, and exaggerating gestures and facial expressions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108600"},"PeriodicalIF":2.9,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142814785","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Communicating therapeutic indication information in direct-to-consumer television ads for prescription cancer drugs: Exploring the effect of dual-modality presentations","authors":"Vanessa Boudewyns ,&nbsp;Ryan S. Paquin ,&nbsp;Helen W. Sullivan ,&nbsp;Amie C. O’Donoghue","doi":"10.1016/j.pec.2024.108598","DOIUrl":"10.1016/j.pec.2024.108598","url":null,"abstract":"<div><h3>Objective</h3><div>The rise in direct-to-consumer (DTC) ads for cancer drugs, which often have complex indications, raises concerns about consumer misunderstanding. A drug’s indication must clearly convey its condition(s) of use, which may include elements such as the approved patient population, second-line treatment status, and whether it is adjunctive or concomitant therapy. The study examines whether the modality used to communicate the drug’s indication in DTC television ads affects consumers’ recognition, recall, and comprehension.</div></div><div><h3>Methods</h3><div>We conducted two experimental studies testing dual-modality (voiceover and on-screen text) presentations of therapeutic indication information in television ads for non-small cell lung cancer (N = 281) and multiple myeloma (N = 287). In each study, the indication statement for all ads presented the medical condition in dual modality and varied the modality used to present additional elements of the indication (absent, audio-only, text-only, dual-modality). After viewing the ad twice, participants completed a questionnaire that measured indication recognition, recall, and comprehension.</div></div><div><h3>Results</h3><div>Dual-modality presentations led to improved communication outcomes relative to the control condition without unintended detrimental effects relative to single-modality presentations. Participants exposed to dual-modality presentations were more likely to correctly recognize the full indication statement and the drug’s intended use. The dual-modality presentation also improved recall and comprehension of the indication’s additional elements in one study, though not consistently across both. No consistent pattern emerged linking specific single modalities to better outcomes. In line with previous research, our results present nuanced outcomes, revealing the superior benefits of dual-modality presentations for some outcomes, but highlighting the influence of moderating factors.</div></div><div><h3>Conclusions</h3><div>Dual-modality presentations of indication statements may improve individuals’ recall, recognition, and comprehension of indication statements and facilitate better consumer understanding.</div></div><div><h3>Practice Implications</h3><div>These results support stakeholders continuing to investigate how indication statement complexity affects consumer understanding and expectations about drug eligibility.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108598"},"PeriodicalIF":2.9,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142822885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relative importance of “why” and “how” messages on medication behavior: Insights from construal level theory","authors":"Yeonhwa Mo ,&nbsp;Hyun Soon Park ,&nbsp;Jieun Jang ,&nbsp;Eui-Kyung Lee","doi":"10.1016/j.pec.2024.108603","DOIUrl":"10.1016/j.pec.2024.108603","url":null,"abstract":"<div><h3>Objective</h3><div>This study assesses the impact of initial messaging strategies on medication behavior in newly diagnosed hypertension patients in a hypothetical context. Applying Construal Level Theory, this study evaluated which message type—low construal (focused on how, feasibility, and concrete) or high construal (focused on why, desirability, and abstract)—is more effective.</div></div><div><h3>Methods</h3><div>An online quasi-experiment was performed with 1200 participants without hypertension aged 30–60. The participants were divided into two message groups, each receiving a hypothetical hypertension diagnosis during a health check-up and different medication messages tailored to construal levels.</div></div><div><h3>Results</h3><div>Compared to “how” messages, “why” messages significantly improved message satisfaction (<em>F</em>_{<em>1,1192</em>} = 10.36, <em>p</em> = 0.001, <em>ηp</em>^<em>2</em> = 0.009, <em>M (SE)</em> = 5.25 (0.04) vs. 5.04 (0.04)) and adherence intentions (<em>F</em>_{<em>1,1192</em>} = 7.54, <em>p</em> = 0.006, <em>ηp</em>^<em>2</em> = 0.006, <em>M (SE)</em> = 4.83 (0.06) vs. 4.59 (0.06)).</div></div><div><h3>Conclusion</h3><div>In the hypothetical scenario, patients newly diagnosed with hypertension were found to be more responsive to “why” messages and perceived a distant psychological distance to medication.</div></div><div><h3>Practice implications</h3><div>To enhance adherence intentions and message satisfaction, healthcare professionals should emphasize the reasons and benefits of medication use for newly prescribed hypertension patients. Moreover, early-stage patient materials should prioritize “why” messages to improve adherence.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108603"},"PeriodicalIF":2.9,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effect of fathers in Preemie Prep for Parents (P3) program on couple’s preterm birth preparedness","authors":"Mir A. Basir ,&nbsp;Siobhan M. McDonnell ,&nbsp;Ruta Brazauskas ,&nbsp;U. Olivia Kim ,&nbsp;S. Iqbal Ahamed ,&nbsp;Jennifer J. McIntosh ,&nbsp;Kris Pizur-Barnekow ,&nbsp;Michael B. Pitt ,&nbsp;Abbey Kruper ,&nbsp;Steven R. Leuthner ,&nbsp;Kathryn E. Flynn","doi":"10.1016/j.pec.2024.108599","DOIUrl":"10.1016/j.pec.2024.108599","url":null,"abstract":"<div><h3>Objective</h3><div>Evaluate the effect of fathers’ participation in the Preemie Prep for Parents (P3) program on maternal learning and fathers’ preterm birth knowledge.</div></div><div><h3>Methods</h3><div>Mothers with preterm birth predisposing medical condition(s) enrolled with or without the baby’s father and were randomized to the P3 intervention (text-messages linking to animated videos) or control (patient education webpages). Parent Prematurity Knowledge Questionnaire assessed knowledge, including unmarried fathers’ legal neonatal decision-making ability.</div></div><div><h3>Results</h3><div>104 mothers reported living with the baby’s father; 50 participated with the father and 54 participated alone. In the P3 group, mothers participating with the father (n = 33) had greater knowledge than mothers participating alone (n = 21), 85 % correct responses vs. 76 %, <em>p</em> = 0.033. However, there was no difference in knowledge among the control mothers, 67 % vs. 60 %, <em>p</em> = 0.068. P3 fathers (n = 33) knowledge scores were not different than control fathers (n = 17), 77 % vs. 68 %, <em>p</em>= 0.054. Parents who viewed the video on fathers’ rights (n = 58) were more likely than those who did not (n = 96) to know unmarried fathers’ legal inability to decide neonatal treatments, 84 % vs. 41 %, <em>p</em> &lt; 0.001.</div></div><div><h3>Conclusions</h3><div>Among opposite-sex cohabitating couples, fathers’ participation in the P3 program enhanced maternal learning.</div></div><div><h3>Practice implications</h3><div>The P3 program’s potential to educate fathers may benefit high-risk pregnancies.</div></div><div><h3>Clinical trial registration</h3><div>ClinicalTrials.gov, NCT04093492, <span><span>https://clinicaltrials.gov/study/NCT04093492</span><svg><path></path></svg></span></div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108599"},"PeriodicalIF":2.9,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effective remediation for advanced practice providers with lowest patient experience: The power of relational resources","authors":"Laura A. Kirk ,&nbsp;Caitlin H. Siropaides ,&nbsp;Jijia Wang ,&nbsp;Calvin L. Chou","doi":"10.1016/j.pec.2024.108597","DOIUrl":"10.1016/j.pec.2024.108597","url":null,"abstract":"<div><h3>Objectives</h3><div>Healthcare providers with low patient experience scores may provide suboptimal care and experience burnout. Communication skills training (CST) can be effective, but remedial programs may be poorly received. We aimed to create a program to support advanced practice providers (APPs) with lowest patient experience ratings.</div></div><div><h3>Methods</h3><div>Our communication skills program included individual and community-building support, strengths inventory, a foundational CST workshop, and coaching. Participants assessed program components and completed pre/post-intervention surveys regarding professional fulfillment, wellness, and communication self-efficacy. Provider communication during direct patient care was observed and scored pre/post CST.</div></div><div><h3>Results</h3><div>Participants expressed satisfaction with the overall program and would recommend it to colleagues. Participants were most receptive to program interventions of professional coaching and CST. In addition, communication skills observed during direct patient care after CST demonstrated a statistically significant positive change. There were no changes in well-being or professional fulfillment indices.</div></div><div><h3>Conclusions</h3><div>Relational, anti-deficit interventions, focused on anticipated participant benefit, were well-received and improved self-assessed and observed patient engagement.</div></div><div><h3>Practice implications</h3><div>A scaffolded approach to remediation of low patient experience scores, leveraging participant strengths and goals, yielded improvements in communicating with patients.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108597"},"PeriodicalIF":2.9,"publicationDate":"2024-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819874","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding the parental journey: Exploring experiences, needs, and perceptions during hospitalization for children newly diagnosed with type 1 diabetes","authors":"Louise Norman Jespersen ,&nbsp;Kristine Zoega Mikkelsen ,&nbsp;Signe Emilie Frederiksen ,&nbsp;Jesper Johannesen ,&nbsp;Dan Grabowski","doi":"10.1016/j.pec.2024.108579","DOIUrl":"10.1016/j.pec.2024.108579","url":null,"abstract":"<div><h3>Objective</h3><div>The onset of childhood diabetes necessitates that the child and family quickly must learn numerous self-management tasks. Diabetes education is key to successful self-management, and established diabetes-related habits are known to be difficult to change. Hence, the initial hospital-based diabetes education and support is a distinct opportunity to optimize habits and disease management. The aim of this study is to investigate parents’ experiences with the education and support provided at the hospital when a child has been newly diagnosed with type 1 diabetes.</div></div><div><h3>Methods</h3><div>Twenty semi-structured interviews were conducted with parents of children (0–18 years) newly diagnosed with type 1 diabetes. Inductive thematic analysis was used for data analysis.</div></div><div><h3>Results</h3><div>Four overarching themes, each with its own implications were identified: 1) From a feeling of uncertainty toward a sense of perceived security 2) Certainty induces calmness 3) A balanced approach to diabetes 4) Trying to learn all about diabetes in just one week. The four themes stress the families’ need of immediate reassurance from the health professionals.</div></div><div><h3>Conclusions and practical implications</h3><div>The study sheds light on families' challenges during initial hospital-based diabetes education, offering insights for healthcare professionals to tailor support strategies and improve diabetes management.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"Article 108579"},"PeriodicalIF":2.9,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142848260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The information and communication needs of patients with advanced incurable cancer: A rapid review","authors":"Holland-Hart Daniella ,&nbsp;Goss Silvia ,&nbsp;Hope Isabel ,&nbsp;Mann Mala","doi":"10.1016/j.pec.2024.108559","DOIUrl":"10.1016/j.pec.2024.108559","url":null,"abstract":"<div><h3>Objectives</h3><div>This review aimed to collate evidence on the key information and communication needs of patients with advanced incurable cancer and their caregivers. It also sought to identify barriers and facilitators to communicating, understanding and receiving information, with the view of influencing improvements to future practice.</div></div><div><h3>Methods</h3><div>This study used a rapid review methodology. Databases were searched on the Ovid platform to identify relevant qualitative data. Methodological quality was assessed, and data extraction was completed. A thematic synthesis approach was used for data analysis.</div></div><div><h3>Results</h3><div>Findings from 42 articles highlighted that key information should be communicated in accordance with individual needs, including tailoring when and how information is provided. It also highlighted the need for healthcare professionals to provide adequate time, openness, and sensitivity to facilitate understanding of prognosis, treatment and care options. Barriers to receiving, communicating and understanding information relating to healthcare professionals and healthcare systems focus on inadequate time in consultations and a lack of specified point of contact. Patient level barriers included difficulties engaging with and processing challenging information, and inadequate health and death literacy. Facilitators included incremental information provision and early access to palliative care specialists.</div></div><div><h3>Conclusions</h3><div>Key communication and information needs identified in the review’s synthesised findings should be considered when developing communication strategies alongside the barriers and facilitators.</div></div><div><h3>Practice implications</h3><div>HCPs should provide patients and caregivers with bespoke support to improve their health and death literacy, and a direct point of contact. Health service training could focus on personalised and empathetic information delivery.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108559"},"PeriodicalIF":2.9,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142748471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}