Patient Education and Counseling最新文献

{"title":"Corrigendum to ‘A virtual assistant for primary care’s food and nutrition surveillance system: Development and validation study in Brazil’ [Patient Educ Couns 130 (2025) 108461]","authors":"Eliza Sella Battisti , Mateus Klein Roman , Ericles Andrei Bellei , Vanessa Ramos Kirsten , Ana Carolina Bertoletti De Marchi , Greisse Viero Da Silva Leal","doi":"10.1016/j.pec.2025.108783","DOIUrl":"10.1016/j.pec.2025.108783","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108783"},"PeriodicalIF":2.9,"publicationDate":"2025-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143820674","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Facilitators of COVID-19 vaccination among pregnant and lactating refugee women: A qualitative study using a community-based approach","authors":"Ehiremen Adesua Azugbene ,&nbsp;Alexis M. Koskan ,&nbsp;Elisabeth Williams ,&nbsp;Tatiana Patton ,&nbsp;Li Liu ,&nbsp;Jeanne Nizigiyimana ,&nbsp;Crista E. Johnson-Agbakwu","doi":"10.1016/j.pec.2025.108778","DOIUrl":"10.1016/j.pec.2025.108778","url":null,"abstract":"<div><h3>Introduction</h3><div>The coronavirus disease of 2019 (COVID-19) vaccination has reduced the severity of illness and hospitalization rates associated with the virus. However, pregnant and lactating refugee women often have lower vaccination rates, which are influenced by limited access to healthcare, cultural barriers, and misinformation. This study, guided by the Positive Deviance Framework, examines the factors that promoted COVID-19 vaccination among pregnant and lactating refugee women.</div></div><div><h3>Methods</h3><div>Cultural Health Navigators conducted in-depth interviews with pregnant and lactating refugee women recruited from a large federally qualified health center who received COVID-19 vaccines.</div></div><div><h3>Results</h3><div>This qualitative study included 30 participants, stratified by language groups and representing diverse educational backgrounds and lengths of residence in the United States. Thematic analysis of the interviews revealed factors such as fear of COVID-19, emotional relief following vaccination, trust in healthcare providers and scientific evidence, and support from family and Cultural Health Navigators.</div></div><div><h3>Discussion</h3><div>The findings highlight the importance of culturally sensitive communication and trust-building in promoting vaccination rates among pregnant and lactating refugee women. Trust in healthcare providers, scientific evidence, and support from family and Cultural Health Navigators played a key role in overcoming vaccination barriers. Tailored strategies and supportive interventions can enhance COVID-19 vaccination uptake in this population. Further research in larger, diverse populations is needed to identify additional strategies for improving vaccination rates among refugee women.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108778"},"PeriodicalIF":2.9,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143825527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How can healthcare professionals promote pulmonary rehabilitation in people with COPD? A qualitative study","authors":"Kylie Hill ,&nbsp;Vinicius Cavalheri ,&nbsp;Daniel F. Gucciardi ,&nbsp;Sarah Hug","doi":"10.1016/j.pec.2025.108781","DOIUrl":"10.1016/j.pec.2025.108781","url":null,"abstract":"<div><h3>Objective</h3><div>Despite the evidence for pulmonary rehabilitation programs (PRPs) in people with chronic obstructive pulmonary disease (COPD), uptake of this intervention is suboptimal. Our group recently noted novel barriers to the uptake of PRPs in people with COPD, such as feeling unworthy of healthcare. Little is known about factors that contribute to this feeling. We explored autobiographical experiences of the interaction between HCPs and people with COPD at the time a PRP was recommended as an appropriate intervention.</div></div><div><h3>Methods</h3><div>This qualitative study was guided by a critical realist perspective. Both HCPs and people with COPD were recruited from tertiary hospitals. Questions were based on the theoretical domains framework and explored the determinants of behaviour related to initiating a referral to a PRP and the person with COPD enrolling in a program. Interview transcripts were analysed using reflexive thematic analysis.</div></div><div><h3>Results</h3><div>Data were available on 15 participants with COPD and 38 HCPs. The first theme was that the HCP needed to care for the person and not just treat a disease. Subthemes pertained to language and behaviours of the HCP including, (i) actively listening, (ii) demonstrating genuine empathy, (iii) establishing trust and, (iv) empowering the person with COPD to engage in shared decision-making. The second theme was that the HCP needed to instil hope that pulmonary rehabilitation would benefit the person with COPD. Subthemes comprised; (i) enthusiasm of the referrer and sharing their vicarious experiences that PRPs have helped others, (ii) describing the intervention, allaying fears and personalising a positive outcome following program completion, (iii) having a physician endorse the PRP, (iv) using terms other than ‘pulmonary rehabilitation’.</div></div><div><h3>Conclusions</h3><div>These data provide a blueprint for interactions in which HCPs can foster people with COPD to accept a referral to a PRP, in a manner that translates to enrolment in a program.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108781"},"PeriodicalIF":2.9,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143816264","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of a BCW-based interactive pictorial health education program among patients with hypertension in the urban-rural fringe area in China","authors":"Qinghua Zhang ,&nbsp;Wei Gan ,&nbsp;Ruqing Pei ,&nbsp;Xuemei Bao ,&nbsp;Yoko Shimpuku ,&nbsp;Sanmei Chen ,&nbsp;Li Song ,&nbsp;Jinyu Yin ,&nbsp;Yujie Wang ,&nbsp;Yafei Zheng","doi":"10.1016/j.pec.2025.108782","DOIUrl":"10.1016/j.pec.2025.108782","url":null,"abstract":"<div><h3>Objective</h3><div>To evaluate the effects of the interactive pictorial health education (IPHE) program on enhancing high blood pressure-specific health literacy (HBP-HL), controlling blood pressure, and improving self-management behavior (SMB) and Health-related Quality of Life (HRQOL) among hypertensive patients with inadequate HBP-HL (HPIH) in the urban-rural fringe area in China.</div></div><div><h3>Methods</h3><div>A quasi-experimental study with repeated measures was used. The intervention group (n = 60) received IPHE program, while the control group (n = 60) received health education lectures. Outcome measures were HBP-HL, systolic blood pressure (SBP), diastolic blood pressure (DBP), SMB and HRQOL evaluated at baseline (T₀), six months (T₆), nine months (T₉), and 12 months (T₁₂).</div></div><div><h3>Results</h3><div>The effects of intervention factors on HBP-HL, SBP and HRQOL were stronger over time (<em>P</em> &lt; 0.05), but not on DBP and SMB. The SMB scores were better in the intervention group at T_6, T₉ and T_{12 (}<em>P</em> &lt; 0_.05)_. Compared to T₀, the SBP and DBP in the intervention group decreased by 9.22 and 4.27 mmHg at T₁₂.</div></div><div><h3>Conclusion</h3><div>The IPHE program can enhance HBP-HL, control blood pressure, and improve SMB and HRQOL among HPIH.</div></div><div><h3>Practice Implications</h3><div>The IPHE program was an active and promising method to manage HPIH.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108782"},"PeriodicalIF":2.9,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143825526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient, care partner, and provider voice in treatment decision-making for non-small cell lung cancer","authors":"Lisa Dwyer Orr ,&nbsp;Julie Vanderpoel ,&nbsp;Pratyusha Vadagam ,&nbsp;Manali Indravadan Patel ,&nbsp;Upal Basu Roy ,&nbsp;Blanca Ledezma ,&nbsp;Margaret Yung ,&nbsp;Kathleen L. Deering ,&nbsp;Victoria Kulbokas ,&nbsp;Josh Feldman ,&nbsp;Jhanelle E. Gray","doi":"10.1016/j.pec.2025.108776","DOIUrl":"10.1016/j.pec.2025.108776","url":null,"abstract":"<div><h3>Objectives</h3><div>Describe the treatment attributes that patients, care partners, and clinicians prioritize when making decisions about non-small cell lung cancer (NSCLC) as well as each group’s perspectives regarding shared decision-making (SDM).</div></div><div><h3>Materials and Methods</h3><div>Cross-sectional online surveys were conducted between March andMay 2023. Adult patients and care partners were recruited from Inspire, a closed online health community, and clinicians (oncologists, nurse practitioners, physician assistants) were recruited separately from M3 Global Research databases. Survey questions were informed by a literature review, interviews, and steering committee input.</div></div><div><h3>Results</h3><div>160 patients and 30 care partners (0.3 % of those invited and 15 % of those who responded to the email invitation), and 150 clinicians (5 % of those invited and 43 % of those who responded to the email invitation) completed the surveys. Across all groups, expected overall survival was the most important treatment attribute. Quality of life, ranked second by patients and care partners, was ranked fourth by clinicians. When asked about SDM, 11 % of patients with early-stage NSCLC and 12 % of those with advanced disease wanted their doctor to make treatment decisions after considering their opinion. However, 53 % of clinicians thought patients preferred that they make the final decision in later disease stages.</div></div><div><h3>Conclusion</h3><div>Patients with NSCLC, care partners, and clinicians generally agreed on the most important treatment attributes. However, aligning on SDM practices could help achieve more effective NSCLC management.</div></div><div><h3>Practice Implications</h3><div>Our study reinforces the relevance of SDM in NSCLC; however, some patients who wish for greater involvement in decisions may find their preferences overlooked.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108776"},"PeriodicalIF":2.9,"publicationDate":"2025-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143816265","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cancer care telehealth access needs in underrepresented patients: Development and implementation of the pragmatic access to telehealth needs assessment survey","authors":"Francesca Gany ,&nbsp;Leeza Menon ,&nbsp;Jackie Finik ,&nbsp;Anagha Kakade ,&nbsp;Minlun Wu ,&nbsp;Leslian Ramirez ,&nbsp;Jana Abumusallam ,&nbsp;Taisha Gomez ,&nbsp;Zainab Shahid","doi":"10.1016/j.pec.2025.108777","DOIUrl":"10.1016/j.pec.2025.108777","url":null,"abstract":"<div><h3>Background</h3><div>We developed and implemented the Access to Telehealth Needs Assessment Survey (AcTNAS) based on Five A’s of TelEquity (Awareness-Application, Agency, Attitude, Accessibility, and Accommodation) that we created.</div></div><div><h3>Methods</h3><div>We iteratively developed the AcTNAS in English (mid 2021-early 2022) and transcreated (culturally and linguistically adapted) it into languages spoken in the service area. Women with breast cancer in safety net hospital and academic medical center cancer clinics in New York City completed the AcTNAS.</div></div><div><h3>Results</h3><div>Participants (N = 441) self-identified as foreign-born (77 %, n = 338), Black (56 %, n = 222), and Hispanic (36 %, n = 158). Most preferred speaking English (69 %, n = 306) or Spanish (27 %, n = 118). The AcTNAS assessed telehealth Awareness-Application (21 % did not know about the patient portal; 57 % had never participated in video telehealth), Agency (52 % were “not good with technology”), Attitude (voice-only [57 %] and video [51 %] appointments not as good as in-person appointments), Accessibility (38 % without good telephone service, 8 % no Wi-Fi/plug-in/public internet access), and Accommodation (50 % needed telehealth connection assistance). Insurance status (<em>p</em> ≤ .009) was associated with a prior televisit. Age (<em>p</em> &lt; .001), education (<em>p</em> &lt; .001), region of origin (<em>p</em> = .001), ethnicity (<em>p</em> = .028), and language (<em>p</em> &lt; .001), were associated with prior portal usage.</div></div><div><h3>Conclusion</h3><div>AcTNAS administration helped identify telehealth access needs among underserved patients with cancer.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108777"},"PeriodicalIF":2.9,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143800578","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of interpreters and other strategies for mitigating language barriers: A systematic review","authors":"Liza G.G. van Lent ,&nbsp;Nida Gizem Yilmaz ,&nbsp;Simone Goosen ,&nbsp;Jako Burgers ,&nbsp;Stefano Giani ,&nbsp;Barbara C. Schouten ,&nbsp;Miranda W. Langendam","doi":"10.1016/j.pec.2025.108767","DOIUrl":"10.1016/j.pec.2025.108767","url":null,"abstract":"<div><h3>Objective</h3><div>To examine the effectiveness of different communication strategies for mitigating language barriers on patient-, provider- and context-related outcomes.</div></div><div><h3>Methods</h3><div>A systematic search was conducted in nine databases for quantitative studies from 2013 comparing different strategies. The studies’ quality was assessed with the Evidence Project Risk of Bias tool and the certainty of evidence with the GRADE approach.</div></div><div><h3>Results</h3><div>Twenty-six articles were included, all about healthcare settings. Generally, having a shared language (e.g., a provider in the patient’s native language) followed by using professional interpreters yielded the most positive outcomes, and in-person or video interpreters more than telephone interpreters. Compared to professional interpreters, the translation quality of informal interpreters was only similar when assessing patient outcomes after surgery, and the quality of digital translation tools was only sufficient with simple messages or when messages were pre-translated.</div></div><div><h3>Conclusion</h3><div>Having a provider in patients’ native language and having professional interpreters outperform other strategies for mitigating language barriers in healthcare. However, other strategies may suffice in specific situations. Future research should explore the effectiveness of (combining) strategies, especially in social care.</div></div><div><h3>Practice implications</h3><div>This review can inform policy and help develop guidelines on mitigating language barriers to support providers in their daily practice.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108767"},"PeriodicalIF":2.9,"publicationDate":"2025-03-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143761232","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric validation and reliability of the Japanese version of the type 1 diabetes stigma assessment scale (DSAS-1 JP)","authors":"Hiroko Takaike ,&nbsp;Asuka Kato ,&nbsp;Junnosuke Miura ,&nbsp;Satoshi Takagi ,&nbsp;Tetsuya Babazono","doi":"10.1016/j.pec.2025.108765","DOIUrl":"10.1016/j.pec.2025.108765","url":null,"abstract":"<div><h3>Aims</h3><div>We aimed to develop and validate a Japanese version of the type 1 diabetes (T1D) stigma assessment scale (DSAS-1 JP) to measure the stigma perceived and experienced by adults with T1D.</div></div><div><h3>Methods</h3><div>The DSAS-1 JP was created through forward and backward translations, cognitive debriefing with 10 participants, and extensive proofreading. Its reliability and validity were evaluated in 384 adults with T1D using confirmatory factor analysis, Cronbach’s α for internal reliability, and Spearman’s rank correlation for construct validity.</div></div><div><h3>Results</h3><div>The DSAS-1 JP was found to be acceptable by the experts and the target population. Confirmatory factor analysis verified the three-factor structure representing ‘treated differently’, ‘blame and judgement’, and ‘identity concern’, with Cronbach’s α values of 0.86, 0.85, and 0.89, respectively. Overall, Cronbach’s α for the DSAS-1 JP was 0.92. The model fit indices were robust (goodness-of-fit index=0.94, comparative fit index=0.94, root mean square error of approximation=0.068). Correlations of the DSAS-1 JP score with diabetes distress (r = 0.60, p &lt; 0.001), self-esteem (r = -0.28, p &lt; 0.001), and depressive symptoms (r = 0.34, p &lt; 0.001) confirmed its constant validity. The test-retest reliability was strong at 0.77 (p &lt; 0.0001).</div></div><div><h3>Conclusion</h3><div>The DSAS-1 JP is a reliable and valid tool for assessing the extent of perceived and experienced stigma in Japanese adults with T1D.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108765"},"PeriodicalIF":2.9,"publicationDate":"2025-03-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143816262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Approaches to self-management integration and influencing factors in everyday life after spinal cord injury: A qualitative narrative analysis","authors":"Enxhi Qama ,&nbsp;Nicola Diviani ,&nbsp;Clara Häfliger ,&nbsp;Xavier Jordan ,&nbsp;Anke Scheel-Sailer ,&nbsp;Claudia Zanini ,&nbsp;Sara Rubinelli","doi":"10.1016/j.pec.2025.108763","DOIUrl":"10.1016/j.pec.2025.108763","url":null,"abstract":"<div><h3>Objective</h3><div>This study explores how individuals with spinal cord injury (SCI) integrate self-management (SM) into their everyday lives post-discharge from initial rehabilitation. It focuses on identifying the approaches they employ in balancing health tasks with personal and societal roles and the influencing factors.</div></div><div><h3>Methods</h3><div>We conducted semi-structured interviews with 32 participants, recruited from four rehabilitation centers across Switzerland, three months post-rehabilitation. Data collection spanned from November 2022 to May 2024. We used thematic analysis to identify the challenges and strategies associated with SM integration.</div></div><div><h3>Results</h3><div>Three factors were found to influence SM integration: <em>mind and body dynamics,</em> encompassing physical and emotional aspects; <em>environmental and informational dynamics,</em> including external support, accessible facilities, and availability of information; and <em>society and perception dynamics</em>, including social stigma and misconceptions. These factors shaped the different approaches individuals adopted to integrate SM: <em>The compartmentalizing approach</em>, where individuals focused on one aspect at a time; <em>The mixing approach</em>, where both health and other tasks were prioritized but adjusted; and <em>The embedding approach</em>, where there was equal prioritization with no adjustment on either side.</div></div><div><h3>Conclusions</h3><div>This study contributes to a more nuanced understanding of how to balance both medical and role management in SCI post-discharge. Self-management integration is achieved through different approaches and influenced by a wide range of factors, internal and external ones. Further research should longitudinally explore whether the approach one individual employs changes with the time and what aspects reinforce one or the other.</div></div><div><h3>Practical implications</h3><div>Our findings highlight the need for flexible, personalized SM interventions that are contextually grounded but also adaptive and resilient. Rehabilitation settings should assess different SM integration approaches, using feedback to guide individuals in refining their strategies. Communication guidelines and tailored education sessions are recommended to help align SM practices with patients' evolving goals, including family, social, and leisure priorities.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108763"},"PeriodicalIF":2.9,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143748221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Awareness about the risk of hearing loss after ototoxic treatments in Swiss childhood cancer survivors","authors":"Philippa Jörger ,&nbsp;Carina Nigg ,&nbsp;Maša Žarković ,&nbsp;Grit Sommer ,&nbsp;Martin Kompis ,&nbsp;Gisela Michel ,&nbsp;Marc Ansari ,&nbsp;Nicolas Waespe ,&nbsp;Claudia E. Kuehni","doi":"10.1016/j.pec.2025.108764","DOIUrl":"10.1016/j.pec.2025.108764","url":null,"abstract":"<div><h3>Objectives</h3><div>The International Guideline Harmonization Group recommends childhood cancer survivors (CCS) exposed to ototoxic treatments be aware of the risk of hearing loss. We assessed awareness among adult CCS.</div></div><div><h3>Methods</h3><div>We identified adults diagnosed with cancer &lt; 20 years who received ototoxic treatments through the Swiss Childhood Cancer Registry (ChCR) and invited them to the HEAR-study. Participants completed a questionnaire and underwent pure-tone audiometry. Cancer and treatment data were obtained from the ChCR. We used logistic regression to explore factors influencing awareness.</div></div><div><h3>Results</h3><div>Of 424 invited, 105 CCS participated (25 %). Fifty-seven percent did not remember receiving information on hearing loss prior to the study. CCS who remembered being informed were more likely diagnosed after 1995 (OR: 4.5, 95 % CI: 1.3–15.4), reported hearing problems (10.9, 2.6–45.1) and other late effects (4.1, 1.3–13.2), and treated with platinum chemotherapy only (10.8, 2.2–53.2) versus cranial radiotherapy only. 44 % of participants presented clinically relevant hearing loss.</div></div><div><h3>Conclusions</h3><div>Over half of CCS exposed to ototoxic treatments were unaware of their risk of hearing loss.</div></div><div><h3>Practice Implications</h3><div>Educating CCS about potential late effects of ototoxic treatments is important to allow early diagnosis and treatment, especially for those who had cancer longer ago and those exposed to cranial radiation.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108764"},"PeriodicalIF":2.9,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143761233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}