{"title":"Insights into pediatric chronic disease education initiatives: Children, adolescents and families’ perspectives. A scoping review","authors":"Marianne Eg , Henrik Sehested Laursen , Katja Lindblad Christensen , Susanne Friis Søndergaard","doi":"10.1016/j.pec.2025.109228","DOIUrl":"10.1016/j.pec.2025.109228","url":null,"abstract":"<div><h3>Objective</h3><div>This study aimed to identify, examine, and conceptually map the literature on how children and adolescents with chronic health conditions and their families experience educational initiatives in healthcare, in order to uncover knowledge gaps and guide future research</div></div><div><h3>Method</h3><div>We followed the Joanna Briggs Institute guidelines for conducting and reporting scoping reviews. We identified the population, concept, and context on which to focus this review and systematically searched the Medline, CINAHL, and Web of Science databases. We followed the methodology outlined by Peters et al. (2021), employing conceptual mapping to guide the narrative synthesis.</div></div><div><h3>Results</h3><div>We included 14 sources covering 18 years. Most sources were published between 2016 and 2020. Three conceptual maps emerged: 1) Building confidence in healthcare: The role of training, peer-education, and multidisciplinary interventions. 2) Empowered together: Peer-education and support fuels motivation and success and 3) Beyond the diagnosis: How peer-education boosts health awareness</div></div><div><h3>Conclusion</h3><div>The review highlights the importance of integrating diverse educational approaches, optimizing parental involvement, and utilizing multidisciplinary teams to deliver comprehensive health literacy education. Furthermore, it emphasizes the need for individualized approaches tailored to the specific needs of families, children/adolescents considering their age and illness.</div><div>Practice Implications: Our findings underscore the need for continued research and implementation of strategies that promote health-literacy and empower children and adolescents to manage their health. Furthermore, we suggest developing integrated, context-sensitive services, enhancing peer and parental support, and involving healthcare professionals to improve educational initiatives and care delivery.</div></div><div><h3>Practice implications</h3><div>Our findings underscore the need for continued research and implementation of strategies that promote health-literacy and empower children and adolescents to manage their health. Furthermore, we suggest developing integrated, context-sensitive services, enhancing peer and parental support, and involving healthcare professionals to improve educational initiatives and care delivery.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"139 ","pages":"Article 109228"},"PeriodicalIF":2.9,"publicationDate":"2025-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144469907","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Laura E. Anderson , Alyssa Taglieri-Sclocchi , Katelyn Collins , Nicole Perry , Leah Zajdlewicz , Anna Stiller , Sabine Fletcher , Carlene Wilson , Jennifer Huang , Nancy N. Baxter , Driss Ait Ouakrim , Jennifer McIntosh , Mark Jenkins , Belinda C. Goodwin
{"title":"Consumer perspectives on videos for promoting participation in population bowel cancer screening","authors":"Laura E. Anderson , Alyssa Taglieri-Sclocchi , Katelyn Collins , Nicole Perry , Leah Zajdlewicz , Anna Stiller , Sabine Fletcher , Carlene Wilson , Jennifer Huang , Nancy N. Baxter , Driss Ait Ouakrim , Jennifer McIntosh , Mark Jenkins , Belinda C. Goodwin","doi":"10.1016/j.pec.2025.109227","DOIUrl":"10.1016/j.pec.2025.109227","url":null,"abstract":"<div><h3>Objective</h3><div>To investigate consumer perceptions of videos designed to facilitate participation in bowel cancer screening.</div></div><div><h3>Methods</h3><div>In an online survey, 487 people eligible for Australia’s National Bowel Cancer Screening Program were randomly assigned to view 2–3 of a possible 15 videos explaining and/or promoting participation in bowel cancer screening. They answered open text questions about which aspects of the videos they liked, disliked, and which motivated them to screen. Using content analysis, common consumer preferences and screening motivators were identified.</div></div><div><h3>Results</h3><div>Overall, participants liked aspects of videos that were clear, engaging, straightforward, instructional, and highlighted that the screening process was easy to do. Lengthy, unrelatable, or condescending content and a lack of instructions were disliked. Instructions and demonstrations of how to complete the screening test and highlighting the importance and benefits of early detection were identified as motivational content.</div></div><div><h3>Conclusion</h3><div>Video intended to educate viewers about and facilitate participation in, bowel cancer screening should include instructions and demonstration of the screening process. They should be clear, engaging, and succinct, highlighting the overall benefits of screening.</div></div><div><h3>Practical implications</h3><div>Understanding consumer preferences for the use of promotional screening videos can inform the optimisation of videos to facilitate greater participation in population bowel screening programs.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"139 ","pages":"Article 109227"},"PeriodicalIF":2.9,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144330218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The experience of healthcare interactions for women with symptoms of abnormal menstruation: A systematic review and meta-synthesis","authors":"Rebecca Peel , Karen Missen , Carolyn Bailey , Singarayer Florentine","doi":"10.1016/j.pec.2025.109225","DOIUrl":"10.1016/j.pec.2025.109225","url":null,"abstract":"<div><h3>Objectives</h3><div>This systematic review aimed to explore the experience of healthcare interactions for women with symptoms of abnormal menstruation as described in qualitative research studies.</div></div><div><h3>Methods</h3><div>We searched five databases from 2004 – 2024 focussing on menstrual symptoms and healthcare interactions. Articles were assessed for quality using the qualitative CASP tool and relevant data were extracted and subjected to thematic synthesis.</div></div><div><h3>Results</h3><div>We found that this group of women experience healthcare interactions characterised by dismissal, normalisation and medical myths, which caused some women to leave western healthcare. Women offer a way forward to improve communication during healthcare interactions.</div></div><div><h3>Conclusion</h3><div>This systematic review and meta-synthesis demonstrates that the healthcare interaction for women presenting with symptoms of abnormal menstruation has not changed much over the last 20 years.</div></div><div><h3>Practice implications</h3><div>The findings of this systematic review and meta-synthesis demonstrate that healthcare professionals need education in communicating with people who present with symptoms that have an unclear diagnosis.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"138 ","pages":"Article 109225"},"PeriodicalIF":2.9,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144322080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Integrating theoretical and practical constructs in patient education: A comprehensive scoping review","authors":"Awat Yousefiazar , Akram Ghahramanian , Azad Rahmani , Hossein Feizollahzadeh , Mohammad Reza Taban Sadeghi , Saeideh Ghaffarifar , Razieh Parizad","doi":"10.1016/j.pec.2025.109226","DOIUrl":"10.1016/j.pec.2025.109226","url":null,"abstract":"<div><h3>Objectives</h3><div>This study systematically categorizes, synthesizes, and maps patient education concepts within existing theories, models, and other patient education constructs to clarify its conceptual foundations and address key challenges in the field.</div></div><div><h3>Methods</h3><div>Following Joanna Briggs Institute (JBI) guidelines, we conducted a scoping review using the PCC (Population, Concept, Context) framework. A systematic search was performed across Scopus, Web of Science, CINAHL, PubMed, and Embase. Two reviewers independently screened titles, abstracts, and full texts to identify eligible studies. Included publications defined patient education theories, models, methods, or strategies and described practical applications. Data extraction followed a structured form, and evidence was synthesized using the PAGER framework. A directed content analysis, incorporating categorization matrices and open coding, identified patterns in patient education constructs. Findings were synthesized into a conceptual map structured by the Input-Process-Output (IPO) framework.</div></div><div><h3>Results</h3><div>From 25,649 screened articles, 56 studies met the inclusion criteria. Analysis revealed seven key categories: (1) Transformative patient education cycle, (2) Social interaction, learning, and support cycle, (3) Adaptation of education with the patient, (4) Educator competencies and roles, (5) Patient education materials, (6) Facilitating information processing, and (7) Procedural and process-oriented approaches. Thirteen subcategories further delineated patient education strategies. The synthesized conceptual map integrates these constructs into three core dimensions: Essential Prerequisites (Input), Adaptive and Personalized Education Process, and Patient Transformation Outcomes (Output).</div></div><div><h3>Conclusions</h3><div>This study highlights patient education constructs' breadth, complexity, and multifaceted nature. By consolidating diverse theoretical and practical approaches into an integrated framework, it enhances conceptual clarity and provides a foundation for future empirical validation.</div></div><div><h3>Practice implications</h3><div>This study comprehensively maps patient education constructs, establishing a foundational framework for developing an integrated theoretical model. The resulting categorizations are essential for constructing a comprehensive patient education model that can be adapted to various healthcare contexts.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"139 ","pages":"Article 109226"},"PeriodicalIF":2.9,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144322561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Don E. Willis , Ji Li , James P. Selig , Ramey Moore , Alia Green , Rachel S. Purvis , Nakita Lovelady , Michael D. Macechko , Pearl A. McElfish
{"title":"Corrigendum to “Healthcare provider recommendations for COVID-19 vaccination: Prevalence, disparities, and correlates” [Patient Educ Couns 130 (2025) 108481]","authors":"Don E. Willis , Ji Li , James P. Selig , Ramey Moore , Alia Green , Rachel S. Purvis , Nakita Lovelady , Michael D. Macechko , Pearl A. McElfish","doi":"10.1016/j.pec.2025.109220","DOIUrl":"10.1016/j.pec.2025.109220","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"138 ","pages":"Article 109220"},"PeriodicalIF":2.9,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144272326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Meijing Cheng , Longwen Fu , Xiang Qiu , Xinyu Huang , Lan Luo , Cong Yu , Ni Gong
{"title":"What’s holding back the making of Living Wills? A qualitative study based on stakeholder perspectives","authors":"Meijing Cheng , Longwen Fu , Xiang Qiu , Xinyu Huang , Lan Luo , Cong Yu , Ni Gong","doi":"10.1016/j.pec.2025.109219","DOIUrl":"10.1016/j.pec.2025.109219","url":null,"abstract":"<div><h3>Objective</h3><div>To analyze challenges and complexities associated with Living Wills (LWs) under current medical regulations from the perspectives of diverse stakeholders, and to inform evidence-based strategies for improving LWs implementation in Asian and global contexts.</div></div><div><h3>Methods</h3><div>This phenomenological study conducted semi-structured interviews with stakeholders involved in the LWs making process in Shenzhen, China (July 2023–July 2024). A hybrid snowball-purposive sampling strategy was adopted. The data were analyzed using Rapid Qualitative Analysis and Colaizzi’s phenomenological method.</div></div><div><h3>Results</h3><div>Our study revealed key tensions in the process of making LWs among 36 stakeholders, including (potential) LWs makers, their family members, healthcare providers, legal professionals, social workers, and volunteers. Three themes emerged from the analysis, each comprising two subthemes: (1) Where to make Living Wills (Outside hospitals; Inside hospitals); (2) When to make Living Wills (Too early; Too late); (3) Who is involved in making end-of-life treatment decisions (Role of family members; Role of medical staff).</div></div><div><h3>Conclusions</h3><div>Significant discrepancies exist between legislative aims to uphold patients’ autonomy and the implementation of LWs. Limited public awareness of LWs underscores the need for death educational initiatives. Given the observed dominance of familial and clinical stakeholders in the treatment decision-making process, developing standardized multidisciplinary communication models such as Advance Care Planning (ACP) is essential to facilitate LWs adoption.</div></div><div><h3>Practice implications</h3><div>Stakeholders should prioritize collaborative efforts to: (1) enhance public understanding of LWs and ACP; (2) protect patients’ informed consent and autonomy; (3) improve LWs regulations and promote ACP models that align with Asian cultural contexts.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"138 ","pages":"Article 109219"},"PeriodicalIF":2.9,"publicationDate":"2025-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144298776","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rebecca R. Lee , Jade Edwards , Danielle C. Mountain , Janet E. McDonagh , Mark Connelly , Tonya Palermo , Sarah Peters
{"title":"“My child needs a chance and a choice to talk about their pain”: Parents’ experiences and perspectives of pain communication in paediatric rheumatology.","authors":"Rebecca R. Lee , Jade Edwards , Danielle C. Mountain , Janet E. McDonagh , Mark Connelly , Tonya Palermo , Sarah Peters","doi":"10.1016/j.pec.2025.109223","DOIUrl":"10.1016/j.pec.2025.109223","url":null,"abstract":"<div><h3>Objective</h3><div>To investigate parents’ experiences and perspectives about pain communication with healthcare professionals in paediatric rheumatology.</div></div><div><h3>Methods</h3><div>Data were collected using semi-structured telephone interviews with parents of children/adolescents recruited from three UK tertiary paediatric rheumatology centres. A framework analysis was used to characterise parents’ experiences and perspectives.</div></div><div><h3>Results</h3><div>Eighteen parents participated. Their children had a median age of 13 years (SD= 3.16 years, Range= 6–16 years, 55 % male), with diagnoses of chronic primary pain (e.g. Ehlers Danlos syndrome/Hypermobility) and chronic secondary pain (e.g. Juvenile Idiopathic Arthritis). Data were organised into four themes: 1) Parents’ active role in pain communication, 2) Building blocks of effective pain communication, 3) Stark realities of pain communication and 4) Purpose for prioritising pain communication. Parents discussed their role in advocating for their child and encouraging their child to communicate about their pain. Parents reported experiences of unsatisfactory pain management advice being provided and frequent experiences of their child’s pain being dismissed by healthcare professionals.</div></div><div><h3>Conclusion</h3><div>Findings emphasise several advantages of involving parents in communication about their child’s pain, as well as a range of challenges in pain communication with healthcare professionals from parent perspectives.</div></div><div><h3>Practice implications</h3><div>These findings inform recommendations to facilitate more effective pain communication approaches which include parents in the future.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"138 ","pages":"Article 109223"},"PeriodicalIF":2.9,"publicationDate":"2025-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144280438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maeve Brin , Emma Sophia Kay , Asa Radix , Uri Belkind , D. Scott Batey , Stephen Ferrara , Mary Tanner , Carla Galindo , Sydney Fontalvo , James Kenniff , Rebecca Schnall
{"title":"Use of cognitive interviews to develop PrEP education for men in New York and Alabama","authors":"Maeve Brin , Emma Sophia Kay , Asa Radix , Uri Belkind , D. Scott Batey , Stephen Ferrara , Mary Tanner , Carla Galindo , Sydney Fontalvo , James Kenniff , Rebecca Schnall","doi":"10.1016/j.pec.2025.109221","DOIUrl":"10.1016/j.pec.2025.109221","url":null,"abstract":"<div><h3>Objectives</h3><div>We conducted cognitive interviews on a two-module PrEP training series developed by our study team to assess how clear, appropriate, and useful the videos are for gay, bisexual, and other men who have sex with men (collectively referred to as MSM) who are taking or interested in starting PrEP.</div></div><div><h3>Methods</h3><div>MSM aged 18–39 were recruited through convenience sampling to participate in cognitive interviews during which study staff screen-shared the PrEP training series and asked open-ended questions on the modules’ script content, visuals and graphics, and audio. Audio recordings were transcribed and analyzed for common themes using a codebook guided by Fogg’s Functional Triad, a theoretical framework which describes the persuasive functions of technology as a tool, media, and a social actor.</div></div><div><h3>Results</h3><div>Thirty participants completed cognitive interviews between November 2023 and January 2024. Common feedback included that the PrEP training videos were a useful tool for those who were either looking to start or continue PrEP use. Further, participants appreciated that the videos were inclusive of diverse populations who may benefit from PrEP, and noted that they should include important topics such as access to PrEP and plain language to improve comprehension of material.</div></div><div><h3>Conclusions</h3><div>Our study applied Fogg’s Functional Triad to identify ways in which our PrEP training series can facilitate PrEP uptake and adherence and allowed us to understand how this video series may be perceived prior to sharing it with the general public during our mChoice implementation study.</div></div><div><h3>Practice Implications</h3><div>The training series has the potential to promote shared decision making in a healthcare setting. Feedback collected during cognitive interviews demonstrates the need for clear and comprehensive PrEP educational tools made specifically for patients as well as the need for involvement of the priority intervention audience in the creation of the training materials prior to their release to the public.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"138 ","pages":"Article 109221"},"PeriodicalIF":2.9,"publicationDate":"2025-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144306338","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Eline VTJ van Lummel , Emma PE Maats , Elena P. Kenswil , Dave HT Tjan , Johannes JM van Delden , Megan Milota
{"title":"Confrontational but important – A mixed-methods evaluation of the MUTUAL (Multidisciplinary timely undertaken advance care planning) intervention","authors":"Eline VTJ van Lummel , Emma PE Maats , Elena P. Kenswil , Dave HT Tjan , Johannes JM van Delden , Megan Milota","doi":"10.1016/j.pec.2025.109214","DOIUrl":"10.1016/j.pec.2025.109214","url":null,"abstract":"<div><h3>Introduction</h3><div>The Multidisciplinary Timely Undertaken Advance Care Planning (MUTUAL) intervention was developed to facilitate early initiated and structured advance care planning (ACP) at outpatient clinics. This study explores stakeholder evaluations of MUTUAL after its implementation.</div></div><div><h3>Methods</h3><div>A sequential explanatory mixed-methods study was conducted at seven outpatient clinics at one non-academic Dutch hospital. Patients, nurses, and physicians completed questionnaires after participating in an ACP conversation. Quantitative analysis of the questionnaire results was supplemented by a qualitative analysis of open comments, and semi-structured interviews were conducted with patients and proxies.</div></div><div><h3>Results</h3><div>For 216 ACP conversations, responses were received from 121 patients (response rate 57.9 %) and from 136 nurses and 116 physicians (response rates 65.1 % and 55.5 %). Overall, 80.1 % of conversations were evaluated by at least one stakeholder. All stakeholders rated the ACP conversations as worthwhile (4.6–4.8 out of 5) and expressed satisfaction (scores of 8.6, 7.8, and 8.3 out of 10 for patients, nurses, and physicians, respectively). Three themes were identified. First, we found a diversity of patient paths within the ACP process. MUTUAL facilitated reflection and open dialog at various stages, leading to valuable discussions despite sometimes confrontational end-of-life topics. Second, stakeholders had varying perspectives on what makes the ACP conversation valuable. Some HCPs emphasize the importance of making treatment decisions. Others value the opportunity to address patient concerns even without changes to the treatment decisions of the patient. Third, having time and a structured setting outside regular outpatient consultations fostered trust and openness; HCPs’ empathy and expertise were appreciated, seemingly regardless of prior established relationships.</div></div><div><h3>Conclusion</h3><div>MUTUAL was positively received by stakeholders, even when evoking mixed emotions. By encouraging broader discussions beyond immediate treatment decisions, the intervention promoted reflection, reassurance, and ongoing conversations. Findings support an adaptable, multi-stakeholder ACP approach in which HCPs act as guiding partners for patients during their (chronic) illness journeys.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"138 ","pages":"Article 109214"},"PeriodicalIF":2.9,"publicationDate":"2025-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144306339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Brenna Mossman , Lisa Molix , Damian R. Murray , Laura M. Perry , Seowoo Kim , Michael Hoerger
{"title":"Impact of a psychoeducational intervention to improve caregiver knowledge and attitudes toward palliative cancer care","authors":"Brenna Mossman , Lisa Molix , Damian R. Murray , Laura M. Perry , Seowoo Kim , Michael Hoerger","doi":"10.1016/j.pec.2025.109222","DOIUrl":"10.1016/j.pec.2025.109222","url":null,"abstract":"<div><h3>Objectives</h3><div>To evaluate the efficacy of a psychoeducational intervention in improving palliative care knowledge and attitudes among caregivers, patients’ close friends and families.</div></div><div><h3>Methods</h3><div>A total of 150 adult cancer caregivers participated in an online U.S.-based randomized clinical trial (RCT) between December 2021 and March 2022. Participants self-reported their baseline knowledge of palliative care, then viewed a psychoeducational video on palliative care (intervention condition) or nutrition (control condition). Participants then completed outcome measures of palliative care knowledge (aim 1; Palliative Care Knowledge Scale, PaCKS) and attitudes (aim 2; Palliative Care Attitudes Scale-9-Caregiver, PCAS-9C). Regression analyses examined whether group assignment significantly predicted palliative care knowledge and attitudes while controlling for self-reported baseline knowledge and key demographic and clinical characteristics.</div></div><div><h3>Results</h3><div>The PaCKS and PCAS-9C demonstrated excellent evidence of reliability, factor structure, and validity in this caregiver sample. The RCT succeeded on the primary outcome of increasing caregivers’ palliative care knowledge (<em>p</em> < .001). Attitudes were favorable and did not differ between groups.</div></div><div><h3>Conclusions</h3><div>This study demonstrates that a single-session, psychoeducational video can improve understanding of palliative care among close friends and families of those with cancer.</div></div><div><h3>Practice implications</h3><div>This work suggests future pathways for helping families make informed decisions about initiating palliative care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"138 ","pages":"Article 109222"},"PeriodicalIF":2.9,"publicationDate":"2025-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144272325","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}