Chiara Polinesi, Federica Vanoni, Giulia Anguissola, Gregorio P. Milani, Mario G. Bianchetti, Peter J. Schulz, Marta Fadda
{"title":"Development and validation of a scenario-based judgment skills scale on parental fever management","authors":"Chiara Polinesi, Federica Vanoni, Giulia Anguissola, Gregorio P. Milani, Mario G. Bianchetti, Peter J. Schulz, Marta Fadda","doi":"10.1016/j.pec.2026.109873","DOIUrl":"10.1016/j.pec.2026.109873","url":null,"abstract":"<div><h3>Purpose</h3><div>Fever management among caregivers has often been described through the lens of “fever phobia,” that is, the exaggerated fear of fever, frequently attributed to knowledge deficits and assessed using non-validated questionnaires. This study developed and validated the first standardized instrument to assess caregivers’ judgment skills in managing childhood fever, focusing on how knowledge and other factors interact to shape decision-making.</div></div><div><h3>Methods</h3><div>A cross-sectional study was conducted among 290 caregivers of children recruited from pediatric clinics and social media in Southern Switzerland (March 2024–May 2025). Participants completed nine realistic fever-management scenarios, each featuring four response options ranked by expert pediatricians. Agreement between participants and experts was evaluated using Spearman’s rank correlation coefficients (ρ) and compared to 200 sets of simulated random responses. Hierarchical multiple regression identified sociodemographic (sex, education, country) and psychological (knowledge, concern, self-efficacy) predictors of expert-aligned judgment.</div></div><div><h3>Results</h3><div>Caregivers demonstrated moderate alignment with expert judgment, performing substantially better than chance. Sociodemographic characteristics explained a modest proportion of differences in judgment accuracy. Adding psychological factors significantly improved prediction: greater fever knowledge was associated with more accurate judgment, whereas higher levels of concern were associated with less accurate decisions. Self-efficacy showed a small additional contribution.</div></div><div><h3>Conclusions</h3><div>This validated, scenario-based instrument offers a reliable way to assess parental decision-making about childhood fever. Findings emphasize that emotional and cognitive factors, rather than sociodemographic background alone, drive judgment accuracy. The tool provides a foundation for targeted education and intervention strategies to improve fever management.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"153 ","pages":"Article 109873"},"PeriodicalIF":3.1,"publicationDate":"2026-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148997713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Shame among medical learners: An uncertainty-focused conception","authors":"Paul K.J. Han , Margrethe Schaufel , Edvin Schei","doi":"10.1016/j.pec.2026.109516","DOIUrl":"10.1016/j.pec.2026.109516","url":null,"abstract":"<div><h3>Objective</h3><div>To analyze the nature and etiology of shame, a common problem that diminishes the well-being of learners and clinicians in medical education and practice, and to explore the relationship between shame and medical uncertainty.</div></div><div><h3>Discussion</h3><div>We draw upon various theoretical insights on both shame and uncertainty, and argue that shame is ultimately a product of uncertainty and its transformation by medical learners. We argue that this transformation involves two key processes. The first is a personalization of uncertainty—i.e., a transformation of medical uncertainties focused on clinical care into personal uncertainties focused on one’s self-worth. The second is a resolution of personal uncertainty—i.e., a transformation of personal uncertainties about one’s self-worth into personal certainties about one’s lack of self-worth. These key processes linking medical uncertainty to shame suggest that shame might be prevented or mitigated by targeted interventions aimed at 1) depersonalizing medical uncertainties, 2) helping learners maintain their personal uncertainties, rather than resolving them in self-destructive ways, and 3) making uncertainty and its management a more central, explicit focus of medical training.</div></div><div><h3>Conclusions</h3><div>Medical uncertainty has a central, paradoxical relationship to shame among medical learners—representing both a source of the problem and a potential solution. Key processes that lead from uncertainty to shame represent potential targets for interventions to prevent and mitigate shame among medical learners, and fruitful directions for future research.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109516"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146167470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Increasing contextualization of care rates through clinician prompting interventions","authors":"Alan Schwartz , Saul J. Weiner","doi":"10.1016/j.pec.2026.109518","DOIUrl":"10.1016/j.pec.2026.109518","url":null,"abstract":"<div><h3>Objective</h3><div>Contextualizing care results in better outcomes for patients. Several different prompts to clinicians to increase contextualization have been studied: audit & feedback (A&F), clinical decision support (CDS), or making recording of visits openly accessible to patients (OA). We measured the effects of prompting interventions on probing of contextual red flags and incorporation of contextual factors into care plans.</div></div><div><h3>Methods</h3><div>Individual participant data meta-analysis of data from three controlled studies of prompts. The first (A&F, 4160 visits to 667 physicians at 6 sites) employed reports to provider teams of missed and successful contextualization opportunities. The second (CDS, 450 visits to 39 physicians at 2 sites) employed a real-time CDS tool. The third (OA, 317 visits to 30 physicians at 2 sites) cued providers that visits were recorded and would be available to patients. In each, the audios were coded using the 4 C system to identify contextual red flags, clinician probes of red flags, contextual factors, and contextualization of care plans.</div></div><div><h3>Results</h3><div>Prompting interventions increased the odds of probing by 71 % (95 % CI 54 % - 79 %) on average, with the largest impact in the A&F study but the highest probing rate in the CDS study. Overall, they increased the odds of contextualizing care plans by 33 % (95 % CI 13 %-58 %), an effect partially mediated by probing of red flags, which increased the odds of contextualization by 337 % (95 % CI 287 % - 396 %). Contextual factors in the domains of Access to Care, Financial Situation, Emotional State, and Skills, Abilities, and Knowledge were most likely to be incorporated into plans and those in Competing Responsibilities least so.</div></div><div><h3>Conclusion</h3><div>Multiple strategies prompt clinicians to consider patient life context in care planning, with varying effectiveness according to the patient context.</div></div><div><h3>Practical implications</h3><div>Future efforts should consider combining prompting interventions and provide clinicians with additional domain-specific resources.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109518"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146175189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Curious on curiosity – a qualitative study on curiosity in healthcare communication","authors":"Connie Timmermann , Christina Prinds , Terese Stenfors , Jette Ammentorp","doi":"10.1016/j.pec.2026.109513","DOIUrl":"10.1016/j.pec.2026.109513","url":null,"abstract":"<div><h3>Objective</h3><div>Curiosity is increasingly recognized as a core element of person-centered healthcare communication, yet empirical evidence about how curiosity is recognized, valued, and constrained in clinical encounters remains limited. This study aimed to explore how curiosity manifests in healthcare communication and to identify its perceived value and barriers from the perspectives of patients, relatives, healthcare professionals, and communication experts.</div></div><div><h3>Methods</h3><div>A qualitative participatory design was used, comprising three sequential workshops: a World Café workshop with patients and relatives, a participatory theater workshop involving clinicians, patients, and researchers, and an international expert workshop with healthcare communication specialists. Data included written reflections, observational field notes, and video recordings. Analysis followed a reflective sense-making approach, integrating insights across workshop phases.</div></div><div><h3>Results</h3><div>Curiosity was identified as both a professional quality and a communicative skill, expressed through attentive listening, acknowledgment, openness, responsiveness, and the use of exploratory questions. Participants associated curiosity with enhanced trust, deeper dialogue, and more individualized care. Meaningful curiosity, perceived as relevant to patients’ lives and treatment decisions, was distinguished from curiosity experienced as intrusive. Barriers included time pressure, emotional stress, preconceived notions, cognitive overload, and clinician burnout.</div></div><div><h3>Discussion</h3><div>Curiosity emerged as both a professional quality and a communicative skill, expressed through attentive listening, acknowledgment, nonverbal presence, and explorative questioning. The findings highlight a reciprocal relationship between curiosity and trust, supporting deeper dialogue, patient empowerment, and partnership in care. Curiosity also creates reflective pauses that enhance understanding and meaning in clinical encounters.</div></div><div><h3>Conclusion</h3><div>Curiosity is a critical yet underdeveloped component of person-centered healthcare communication. Explicitly integrating curiosity into communication education and training may strengthen patient engagement, support shared decision-making, and enhance the quality of clinical encounters. Organizational efforts to address time pressure, workload, and clinician well-being are essential to fostering curiosity in everyday practice.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109513"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146175123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Pål Gulbrandsen: Researcher, educator, activist and team-builder And a man of solid wood","authors":"Arnstein Finset","doi":"10.1016/j.pec.2026.109522","DOIUrl":"10.1016/j.pec.2026.109522","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109522"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146175191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alejandro Aranda-Gutierrez , Cynthia Villarreal-Garza , Dione Aguilar-y-Mendez , Salvador Gonzalez-Santiesteban , José Luis Rodríguez-Olivares , Fernanda Mesa-Chavez , Andrea Becerril-Gaitan , Bryan F. Vaca-Cartagena , Alex Lagunas-Medina , Laura Kay Lagarde-Santillán , Andrés Rodríguez-Faure , Daniela Obregon-Leal , Araceli Carrillo-Bedoya , Gregorio Quintero-Beuló , Maria Fernanda Ochoa-Chavez , Melina Miaja , Jeffrey N. Weitzel , Yanin Chavarri-Guerra
{"title":"Genetic cancer risk knowledge among Mexican pathogenic variant carriers","authors":"Alejandro Aranda-Gutierrez , Cynthia Villarreal-Garza , Dione Aguilar-y-Mendez , Salvador Gonzalez-Santiesteban , José Luis Rodríguez-Olivares , Fernanda Mesa-Chavez , Andrea Becerril-Gaitan , Bryan F. Vaca-Cartagena , Alex Lagunas-Medina , Laura Kay Lagarde-Santillán , Andrés Rodríguez-Faure , Daniela Obregon-Leal , Araceli Carrillo-Bedoya , Gregorio Quintero-Beuló , Maria Fernanda Ochoa-Chavez , Melina Miaja , Jeffrey N. Weitzel , Yanin Chavarri-Guerra","doi":"10.1016/j.pec.2026.109536","DOIUrl":"10.1016/j.pec.2026.109536","url":null,"abstract":"<div><h3>Objective</h3><div>To assess knowledge of genetic cancer risk among Mexican carriers of cancer-associated pathogenic variants (PVs) using the Spanish version of the KnowGene Cancer Genetics Questionnaire, and to examine whether knowledge is associated with uptake of risk-reducing surgery (RRS) or cascade testing (CT).</div></div><div><h3>Methods</h3><div>We conducted a cross-sectional study of adult PV carriers who had received post-test genetic cancer risk assessment (GCRA) at two referral centers in Mexico. Participants completed the 16-item KnowGene Cancer Genetics Questionnaire assessing inheritance, result interpretation, clinical implications, and screening/risk reduction. Sociodemographic and clinical data were collected. Associations between knowledge scores and participant characteristics were evaluated using univariate analyses and multivariable linear regression. Associations between knowledge and uptake of RRS and CT were explored descriptively.</div></div><div><h3>Results</h3><div>Among 384 eligible carriers, 261 (68.0 %) completed the questionnaire. Median age was 44 years (range 20–77); 87.0 % were female, and 63.2 % were probands. The most frequent PVs were <em>BRCA1</em> (36.8 %) and <em>BRCA2</em> (25.7 %). The mean knowledge score was 9.42 out of 16 (SD 3.0), with item-level gaps most pronounced in inheritance and interpretation of variants of uncertain significance. Higher educational attainment was independently associated with higher knowledge scores in multivariable analysis (β = 1.92, p < 0.001). Knowledge scores were not significantly associated with uptake of RRS or CT.</div></div><div><h3>Conclusion</h3><div>Mexican carriers of cancer-associated PVs demonstrated moderate genetic knowledge after GCRA, with persistent gaps in clinically relevant concepts. Educational attainment was the primary determinant of knowledge, but greater knowledge alone did not translate into higher uptake of preventive interventions.</div></div><div><h3>Practice implications</h3><div>GCRA programs should incorporate tailored, patient-centered communication strategies and address structural and psychosocial barriers to improve informed decision-making and engagement with recommended preventive actions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109536"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146175108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Amanda McArthur , Alya Ahmad , Anne R. Links , Kathleen R. Warner , Paul Drew , Mary Catherine Beach , Somnath Saha
{"title":"How words discredit: A taxonomy of stigmatizing language in the electronic health record","authors":"Amanda McArthur , Alya Ahmad , Anne R. Links , Kathleen R. Warner , Paul Drew , Mary Catherine Beach , Somnath Saha","doi":"10.1016/j.pec.2026.109520","DOIUrl":"10.1016/j.pec.2026.109520","url":null,"abstract":"<div><h3>Objective</h3><div>Language in electronic health records (EHRs) can transmit stigma, discrediting patients in ways that undermine the clinician-patient relationship and compromise future care. We sought to develop a taxonomy of stigmatizing language in EHRs to understand <em>what</em> patients are being stigmatized for, <em>how</em> that stigma is conveyed linguistically, and <em>why</em>.</div></div><div><h3>Methods</h3><div>We conducted a two-stage qualitative analysis of EHR notes from multiple clinical contexts in a large U.S. academic health system. For both stages, we drew enriched samples using natural language processing (NLP) to identify notes with at least one stigmatizing keyword from prior studies. First, we open coded 296 notes to generate categories of stigmatizing language and linguistic mechanisms, and to develop a preliminary taxonomy. We then applied and refined this framework by coding 400 additional notes.</div></div><div><h3>Results</h3><div>We identified six categories of stigmatizing sentiments characterizing patients as: (1) Socially Undesirable, (2) Difficult to Interact With, (3) Incompetent, (4) Manipulative, (5) Noncompliant, and (6) Not Credible. These were implied through negative descriptions of patient behavior portraying them as, e.g., Demanding, Adversarial, Deceptive, etc. Linguistic mechanisms extended beyond keywords, including practices for emphasizing the intensity of patient behavior (e.g., intensifiers), marking distance or divergence from the patient’s perspective (e.g., skeptical evidentials), and casting the clinician as the neutral or rational party (e.g., euphemisms).</div></div><div><h3>Conclusion</h3><div>Stigmatizing language in EHRs is not limited to discrete terms but is embedded in broader linguistic practices that shape how patients are represented and understood, particularly those describing how they fail to align with clinical expectations. This language may serve to document professional challenges, but it nonetheless reinforces paternalistic norms and compromises care. Understanding these dynamics is critical for moving toward patient-centered documentation and reducing harm in the EHR.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109520"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146175188","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jennifer Gerwing , Julia Menichetti , Anne Marie Landmark , Eirik Ofstad
{"title":"An ethos of inspiration: A special section in honour of Pål Gulbrandsen","authors":"Jennifer Gerwing , Julia Menichetti , Anne Marie Landmark , Eirik Ofstad","doi":"10.1016/j.pec.2026.109512","DOIUrl":"10.1016/j.pec.2026.109512","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109512"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146116718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"From talk to text: Extending the arc of doctor patient communication research to real-time visit documentation","authors":"Richard M. Frankel","doi":"10.1016/j.pec.2026.109519","DOIUrl":"10.1016/j.pec.2026.109519","url":null,"abstract":"<div><h3>Objective</h3><div>The scientific study of doctor-patient communication got its start with a textbook published almost nine decades ago. Based on 16 years of conversations between psychiatry residents and patients, it featured audio recordings as a method for studying the subtleties of verbal interaction in the clinical context. Hundreds of studies based on audio and video technology have been published since. The purpose of this paper is threefold. First, I provide a brief history of a line of inquiry based on direct observation and coding of recorded encounters. Second, I describe the development of the Four Habits of Highly Effective Clinicians, one of several evidence-based frameworks for studying and teaching about the medical interview. Third, I describe the phenomenon of documenting in the electronic health record (EHR) while simultaneously providing care. Documenting while doctoring (DWD) is both a resource and a constraint on clinicians’ time and attention. Notwithstanding, its effects on processes and outcomes of care have not typically been accounted for in doctor patient communication frameworks. To that end I describe a mnemonic POISED, to facilitate EHR use in the exam room.</div></div><div><h3>Discussion</h3><div>In 2004 only 1 of 10 US physicians’ offices used an EHR; in 2023, it was 9 out of 10. Pressures to increase efficiency and billing have resulted in a migration of the EHR from the back room into the exam room. A gap currently exists in research on the effects of DWD on doctor patient communication and outcomes of care. Accumulating evidence suggests that DWD has resulted in increased distraction, inaccurate data recording, and in some cases poorer outcomes of care.</div></div><div><h3>Highlights</h3><div>Larger studies across multiple medical specialties and a range of patient populations will be necessary to better understand the costs and benefits of the intersection of talk, text, and technology in doctor-patient communication and relationships.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109519"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146175190","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}