Patient Education and Counseling最新文献

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The need for personalization when sharing results of amyloid imaging for Alzheimer’s disease: Insights from a randomized experimental study 分享阿尔茨海默病淀粉样蛋白成像结果时需要个性化:来自随机实验研究的见解。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108587
Agnetha D. Fruijtier , Wiesje M. van der Flier , Ingrid van Maurik , Jetske van der Schaar , Yolande A.L. Pijnenburg , Ellen M.A. Smets , Leonie N.C. Visser
{"title":"The need for personalization when sharing results of amyloid imaging for Alzheimer’s disease: Insights from a randomized experimental study","authors":"Agnetha D. Fruijtier ,&nbsp;Wiesje M. van der Flier ,&nbsp;Ingrid van Maurik ,&nbsp;Jetske van der Schaar ,&nbsp;Yolande A.L. Pijnenburg ,&nbsp;Ellen M.A. Smets ,&nbsp;Leonie N.C. Visser","doi":"10.1016/j.pec.2024.108587","DOIUrl":"10.1016/j.pec.2024.108587","url":null,"abstract":"<div><h3>Objective</h3><div>To study information needs after receiving abnormal amyloid-PET results, and how individual characteristics moderate effects of different communication strategies on information recall.</div></div><div><h3>Methods</h3><div>In an online video-vignette experiment, seven vignettes each depicted a consultation of a physician sharing abnormal amyloid-PET results with a patient with Mild Cognitive Impairment(MCI), using different communication strategies. Healthy individuals (N = 1017; age 64 ± 8, 808(79 %) female), instructed to imagine themselves as the video-patient, viewed a randomly-assigned vignette and completed questionnaires to assess information needs and test moderation effects of gender, age, care-partner experience, health literacy, and coping.</div></div><div><h3>Results</h3><div>Sixty-three percent of participants (645/1017) would have liked to receive more information, e.g., on prognosis, additional information sources, lifestyle advice, and/or treatment. Emotional support benefited information recall in women, but not men. Emotional support and visually presenting the PET-scan were less beneficial for individuals with a stronger avoidant coping style, compared to most other strategies.</div></div><div><h3>Conclusion</h3><div>Most people wanted more information on varying topics, and gender and coping style influenced how communication strategies impacted information recall.</div><div><strong>PRACTICE IMPLICATIONS</strong></div><div>The importance of personalized information provision was emphasized, both in terms of <em>what</em> information is provided and <em>how</em> physicians share information, by paying attention to individuals’ needs and characteristics.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108587"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792798","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A scoping review of parents’ disclosure of BRCA1/2 genetic alteration test results to underage children 父母向未成年子女披露BRCA1/2基因改变检测结果的范围审查。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108561
Celia Diez de los Rios de la Serna , Maura Dowling , Nichola McNamara , John D. Ivory , Yvonne Hanhauser , Meghan Murphy , Marleah Dean
{"title":"A scoping review of parents’ disclosure of BRCA1/2 genetic alteration test results to underage children","authors":"Celia Diez de los Rios de la Serna ,&nbsp;Maura Dowling ,&nbsp;Nichola McNamara ,&nbsp;John D. Ivory ,&nbsp;Yvonne Hanhauser ,&nbsp;Meghan Murphy ,&nbsp;Marleah Dean","doi":"10.1016/j.pec.2024.108561","DOIUrl":"10.1016/j.pec.2024.108561","url":null,"abstract":"<div><h3>Background</h3><div>Individuals with <em>BRCA1/2</em> mutations have a notably higher than average lifetime risk of developing cancer as adults. Some parents with BRCA1/2 mutations wish to share this information with their children, yet they struggle to know how, when, and what information to share.</div></div><div><h3>Objective</h3><div>The objective of this review was to identify what communication strategies/interventions exist for parents communicating their BRCA1/2 status to their minor children, and what communication interventions do healthcare professionals use to support parents’ disclosure process.</div></div><div><h3>Methods</h3><div>Scoping review on six databases search for studies with parents and/or healthcare professionals’ interventions on supporting communication from parents to children. The review aligned PRISMA guidelines for scoping reviews and used the PAGER recommendations to guide charting and reporting.</div></div><div><h3>Results</h3><div>22 articles published from 2001 to 2020 were included. Multiple facilitators/motivators of disclosure, how and where parents disclosed, reactions to disclosure were identified. Also, there were no healthcare professionals’ interventions in the disclosure process found. Conclusions:</div><div>The review summarizes research on parents’ disclosure of their BRCA1/2 status to their underage children and demonstrates a paucity of communication interventions for guiding parents in this difficult process. Parents experience many obstacles communicating the results to their children.</div></div><div><h3>Practice implications</h3><div>These findings equip healthcare professionals in their efforts to develop and test interventions which support the communication of genetic risk information. Furthermore, it is evident there is a need for more research to understand how the disclosure process occurs in the families.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108561"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142774108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The influencing factors in intention making-decision of Human papillomavirus vaccine in Chinese college students: A qualitative study 中国大学生人乳头瘤病毒疫苗意向决策的影响因素:一项定性研究。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108594
Juanjuan Ma , Wenting Lu , Shuyan Sun , Yuxin Zhan , Jin Zhang , Hui Zhang
{"title":"The influencing factors in intention making-decision of Human papillomavirus vaccine in Chinese college students: A qualitative study","authors":"Juanjuan Ma ,&nbsp;Wenting Lu ,&nbsp;Shuyan Sun ,&nbsp;Yuxin Zhan ,&nbsp;Jin Zhang ,&nbsp;Hui Zhang","doi":"10.1016/j.pec.2024.108594","DOIUrl":"10.1016/j.pec.2024.108594","url":null,"abstract":"<div><h3>Objective</h3><div>College students are considered as a high-risk age group for contracting HPV. HPV vaccines are proved to play a major role in preventing Cervical cancer and related cancers among both men and women. This study aimed to explore influencing factors in intention making-decision of Human papillomavirus vaccine in Chinese college students.</div></div><div><h3>Methods</h3><div>A descriptive qualitative research based on naturalistic inquiry in Daqing City, Heilong Jiang Province from October to November 2022 was conducted. Semi-structured interviews with Chinese college students. We used thematic framework analysis with NVivo 12.0 software to transcribe and analyze the interview recordings.</div></div><div><h3>Results</h3><div>We conducted 20 in-depth interviews. Four main themes with 14 subthemes were identified: (a) potential risks of HPV infection; (b) susceptibility factors of HPV infection; (c) difficulties in HPV vaccination; (d) decision support for HPV vaccination.</div></div><div><h3>Conclusion</h3><div>Most college students expressed hesitancy toward receiving the HPV vaccine. The government should strengthen the advocacy of the benefits of the vaccine to increase the HPV vaccination rate.</div></div><div><h3>Practice Implications</h3><div>Healthcare providers and the government should take some strategies to promote facilitate factors to increase HPV vaccination rates.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108594"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142781590","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Examining healthcare workers’ engagement with social media-based health education: Influencing factors, challenges, and future directions 检查医疗工作者参与基于社交媒体的健康教育:影响因素、挑战和未来方向。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108577
Wei Zhang , Fuxiang Guo , Weihan Cheng , Richard Evans , Magdalena Kludacz-Alessandri , Chengyan Zhu
{"title":"Examining healthcare workers’ engagement with social media-based health education: Influencing factors, challenges, and future directions","authors":"Wei Zhang ,&nbsp;Fuxiang Guo ,&nbsp;Weihan Cheng ,&nbsp;Richard Evans ,&nbsp;Magdalena Kludacz-Alessandri ,&nbsp;Chengyan Zhu","doi":"10.1016/j.pec.2024.108577","DOIUrl":"10.1016/j.pec.2024.108577","url":null,"abstract":"<div><h3>Background</h3><div>Social Media-based Health Education (SMHE) provides an effective way to address health disparities and improve public health literacy. Despite its inherent advantages, Healthcare Workers (HCWs) in China have showed limited and transient interest in engaging with SMHE initiatives.</div></div><div><h3>Objective</h3><div>This study aims to examine healthcare workers’ perceptions of SMHE, identifying current influencing factors, challenges, and proposing future directions for development.</div></div><div><h3>Methods</h3><div>A descriptive qualitative study was conducted from October 2021 to January 2022, involving healthcare workers (i.e., physicians, nurses, and hospital administrators) engaged in SMHE. Semi-structured in-depth interviews were undertaken with 30 HCWs, which were subsequently analyzed thematically.</div></div><div><h3>Results</h3><div>Thematic analysis yielded 165 initial codes, organized into 12 subcategories spanning three main themes: (1) HCWs’ perceptions of SMHE, (2) drivers and barriers to HCWs’ engagement with SMHE, and (3) strategies to overcome current challenges.</div></div><div><h3>Conclusion</h3><div>This study yielded three main conclusions. First, HCWs in China exhibit a noticeable optimism toward SMHE, but most of them still have certain concerns. Second, HCWs engagement with SMHE is motivated or requested by their organizations, rather than their own initiatives. The main barriers for HCWs engagement with SMHE include: lack of time, risk of reputational loss, conflicts of interest, patient welfare, and concerns about legal issues. Third, healthcare organizations, social media platforms, and governmental bodies, must collaboratively address these issues to ensure protection for health workers engaged with SMHE.</div></div><div><h3>Practical value</h3><div>This study finds that Chinese HCWs are willing to engage in SMHE provided they are moderately rewarded and assured of a secure environment.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108577"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142781637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring communication challenges in dementia care: Insights from home healthcare nurses 探索痴呆症护理中的沟通挑战:来自家庭保健护士的见解。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108590
Elaine Wittenberg , Catherine Mann , Suzanne S. Sullivan
{"title":"Exploring communication challenges in dementia care: Insights from home healthcare nurses","authors":"Elaine Wittenberg ,&nbsp;Catherine Mann ,&nbsp;Suzanne S. Sullivan","doi":"10.1016/j.pec.2024.108590","DOIUrl":"10.1016/j.pec.2024.108590","url":null,"abstract":"<div><h3>Objectives</h3><div>Care for people living with dementia predominantly takes place at home and is often characterized by multiple hospitalizations throughout the lengthy disease trajectory. Care transitions from the hospital often involve home health care. The purpose of this study was to explore communication challenges experienced by home health nurses to inform communication training needs for home-based dementia care.</div></div><div><h3>Methods</h3><div>Seven audio-recorded focus group discussions were held with home health nurses (n = 31) from a large home care agency serving rural and urban counties. Focus group transcripts were thematically analyzed.</div></div><div><h3>Results</h3><div>We identified the following themes highlighting communication challenges for home health nurses: addressing potential risk for harm or injury, patient vulnerability, care partner needs, shifting decision-making to surrogate, and discrepancy in home health goals and family needs. These themes identified specific care transition conversation topics and communication content imperative for dementia-specific staff training.</div></div><div><h3>Conclusions</h3><div>Topics for communication skills training to improve person-centered dementia care were identified. These findings inform the future development of a home health staff communication curriculum for dementia care. Advanced communication skills are necessary to ensure these conversations take place and are engaged with sensitivity.</div></div><div><h3>Practice implications</h3><div>Our study informs the development of communication training on key communication topics in nurse-delivered and home healthcare interventions aimed at improving dementia care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108590"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142786818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Addressing psychological well-being in adolescents and young adults (AYA) cancer care: recommendations for research, policy, and technological solutions 解决青少年和青壮年(AYA)癌症护理中的心理健康问题:研究、政策和技术解决方案建议。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108588
Riza Amalia , Nur Hidayah, M. Ramli, Rizky Andana Pohan, Stephanus Benedictus Bera Liwun, Ethel Joy V. Sebastian, Erma Pratiwi Nufi
{"title":"Addressing psychological well-being in adolescents and young adults (AYA) cancer care: recommendations for research, policy, and technological solutions","authors":"Riza Amalia ,&nbsp;Nur Hidayah,&nbsp;M. Ramli,&nbsp;Rizky Andana Pohan,&nbsp;Stephanus Benedictus Bera Liwun,&nbsp;Ethel Joy V. Sebastian,&nbsp;Erma Pratiwi Nufi","doi":"10.1016/j.pec.2024.108588","DOIUrl":"10.1016/j.pec.2024.108588","url":null,"abstract":"<div><div>Adolescents and young adults (AYAs) with cancer face unique challenges that can disrupt their identity development and psychological well-being. This letter emphasizes the need for enhanced research and policy reforms to integrate psychosocial support into AYA oncology care. It advocates for targeted communication skills training for healthcare professionals to foster person-centered interactions that address both the physical and emotional needs of AYA patients. Additionally, it explores the role of digital health technologies, such as telemedicine and mobile applications, in bridging care gaps, particularly in underserved or remote areas. By advancing these strategies,we can promote a more holistic and equitable approach to AYA cancer care globally.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108588"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792706","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Student pharmacist counseling performance after hands-on continuous glucose monitoring education: A multi-institutional pragmatic randomized study 学生药师在实际连续血糖监测教育后的咨询表现:一项多机构实用随机研究。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108578
Heather N. Folz , Sun Lee , Christina H. Sherrill
{"title":"Student pharmacist counseling performance after hands-on continuous glucose monitoring education: A multi-institutional pragmatic randomized study","authors":"Heather N. Folz ,&nbsp;Sun Lee ,&nbsp;Christina H. Sherrill","doi":"10.1016/j.pec.2024.108578","DOIUrl":"10.1016/j.pec.2024.108578","url":null,"abstract":"<div><h3>Objective</h3><div>To assess the impact of wearing a continuous glucose monitoring (CGM) device on student pharmacist counseling ability (primary), knowledge, confidence, and empathy (secondary).</div></div><div><h3>Methods</h3><div>Students from two institutions were randomized to wear a CGM device (intervention) vs not (control). All received CGM education via lecture and live demonstration. Intervention group students were provided a CGM device. After two weeks, all students completed a standardized patient (SP) encounter regarding CGM prescription counseling. Pre-post CGM-related knowledge, confidence, and empathy were assessed. Analysis of variance was used to compare between-group counseling score difference, and analysis of covariance was used to compare changes in pre-post knowledge, confidence, and empathy scores. Analyses were performed using Stata/BE17.0.</div></div><div><h3>Results</h3><div>Of 86 students enrolled, 63 consented and completed surveys (32 intervention, 31 control). The intervention group demonstrated higher average SP counseling score vs control (82.4 % vs 77.7 %, <em>p</em> = .046). The intervention group had greater change in confidence vs control from pre to post survey (+ 2.3 vs + 1.7, <em>p</em> = 0.03, range 1–5). No between-group differences were observed in knowledge or empathy.</div></div><div><h3>Conclusion</h3><div>The opportunity to wear a CGM device resulted in higher performance on CGM counseling and greater rise in CGM-related confidence. This study supports the use of resources to provide hands-on CGM training.</div></div><div><h3>Practice implications</h3><div>Hands-on education about new diabetes technology can help students prepare to care for and counsel patients.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108578"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A nurse-led approach to testing and adapting a telehealth guide for e-empathy in goals of care conversations for Black patients with chronic kidney disease 一种护士主导的方法来测试和调整远程医疗指南,以实现黑人慢性肾病患者护理对话的电子移情目标。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108593
Adriana Glenn , Payton J. Smith , Sherrie Flynt Wallington
{"title":"A nurse-led approach to testing and adapting a telehealth guide for e-empathy in goals of care conversations for Black patients with chronic kidney disease","authors":"Adriana Glenn ,&nbsp;Payton J. Smith ,&nbsp;Sherrie Flynt Wallington","doi":"10.1016/j.pec.2024.108593","DOIUrl":"10.1016/j.pec.2024.108593","url":null,"abstract":"<div><h3>Objective</h3><div>This study aims to explore and enhance the expression of empathy in telehealth visits (e-empathy) with Black American Chronic Kidney Disease (CKD) patients, focusing on goals of care conversations. It seeks to address the intersection of CKD, telehealth advancements, palliative care discussions, and the impact of racism in healthcare for holistic understanding.</div></div><div><h3>Methodology</h3><div>A qualitative case study design was employed in Washington, DC, involving Black patients with CKD. Data collection included cognitive testing via semi-structured interviews and feedback from a Stakeholder Advisory Group (SAG). Thematic analysis was conducted using NVivo 20 software.</div></div><div><h3>Results</h3><div>Themes emerged regarding empathy definitions, telehealth understanding, factors influencing confidence, importance of patient stories, cultural awareness, handling upsetting conversations, prioritizing treatment preferences, end-of-life decisions, and definitions of mental health professionals.</div></div><div><h3>Conclusion</h3><div>The study highlights the significance of e-empathy in telehealth for Black CKD patients, emphasizing respect, trust, and effective communication. It underscores the need for culturally targeted guidance and acknowledges limitations such as self-selection bias and a small sample size. Future work should address healthcare disparities and improve palliative care discussions, including virtual advance directives.</div></div><div><h3>Practice Implications</h3><div>Providers should prioritize e-empathy in telehealth visits with Black CKD patients, fostering trust and communication to improve patient outcomes during goals of care discussions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108593"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142774107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Child–physician rapport at a neurodevelopmental clinic: In the eyes of the beholder 神经发育诊所的儿童-医生关系:在旁观者的眼中。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108586
Yael Karni-Visel , Shirie Gordon-Feliks , Menachem Lam , Michal Klein , Mitchell Schertz
{"title":"Child–physician rapport at a neurodevelopmental clinic: In the eyes of the beholder","authors":"Yael Karni-Visel ,&nbsp;Shirie Gordon-Feliks ,&nbsp;Menachem Lam ,&nbsp;Michal Klein ,&nbsp;Mitchell Schertz","doi":"10.1016/j.pec.2024.108586","DOIUrl":"10.1016/j.pec.2024.108586","url":null,"abstract":"<div><h3>Background</h3><div>Building rapport with young patients is crucial for fostering a sense of comfort that enhances their cooperation during clinical encounters and improves clinical outcomes. The available data on children with neurodevelopmental disabilities in community-based settings, including data on child–physician rapport, is limited.</div></div><div><h3>Aims</h3><div>To examine how children with neurodevelopmental disabilities perceive rapport with treating physicians compared to parents and treating physicians and to evaluate the relationship between the child-reported rapport and its impact on their cooperation.</div></div><div><h3>Methods</h3><div>One hundred two children with neurodevelopmental disabilities (<em>M</em> years = 9.63, <em>SD</em> = 2.42) completed the CHARM-C Questionnaire, which assessed their experience of rapport with their examining physicians following neurodevelopmental assessments. In parallel, their parents and physicians completed the CHARM-A Questionnaire, which assessed how they perceived the children’s experience of rapport (a total of 306 questionnaires). The physicians also rated children’s cooperation. The data were analyzed using correlation, regression, and mixed linear analyses.</div></div><div><h3>Results</h3><div>Children’s perceptions of rapport were significantly less positive than those of parents (<em>d</em> = −0.60) and physicians (<em>d</em> = −0.45). A moderate partial correlation (<em>r</em> = .37) was found between children’s and parents’ perceptions. Neither children’s nor parents’ perceptions were correlated with physicians’ perceptions. Children’s perceptions of rapport were positively associated with greater cooperation (β = .28).</div></div><div><h3>Discussion</h3><div>Children with neurodevelopmental disabilities rated their rapport with physicians lower than parents and doctors. Their evaluations offer valuable insights, complementing caregivers’ and professionals’ perspectives. Training physicians to improve their assessments of children’s needs during medical encounters is critically important.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108586"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142774208","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Uncovering the components of therapeutic empathy through thematic analysis of existing definitions 通过对现有定义的专题分析,揭示治疗性共情的组成部分。
IF 2.9 2区 医学
Patient Education and Counseling Pub Date : 2025-02-01 DOI: 10.1016/j.pec.2024.108596
Jeremy Howick , Amber Bennett-Weston , Maya Dudko , Kevin Eva
{"title":"Uncovering the components of therapeutic empathy through thematic analysis of existing definitions","authors":"Jeremy Howick ,&nbsp;Amber Bennett-Weston ,&nbsp;Maya Dudko ,&nbsp;Kevin Eva","doi":"10.1016/j.pec.2024.108596","DOIUrl":"10.1016/j.pec.2024.108596","url":null,"abstract":"<div><h3>Objectives</h3><div>To identify the components of therapeutic empathy based on a review of existing definitions.</div></div><div><h3>Methods</h3><div>A search for therapeutic empathy definitions was conducted in two stages. First, a list of empathy definitions from within healthcare contexts was compiled using existing systematic reviews and a database of empathy definitions. The components of those definitions were identified through thematic analysis. Then, forward and backward citation searching (snowballing) of the papers from which those definitions were retrieved was conducted. These papers were randomly sampled and integrated into the analysis until saturation was reached.</div></div><div><h3>Results</h3><div>The searches yielded 3948 definitions of therapeutic empathy. Saturation was reached after analysing 39 individual definitions. Six interrelated components of therapeutic empathy were identified: <em>exploring, understanding</em>, <em>shared understanding</em>, <em>feeling, therapeutic action</em>, and <em>maintaining boundaries.</em></div></div><div><h3>Conclusions</h3><div>This study identified six prevailing components of therapeutic empathy that distinguish it from empathy in general. The findings provide a conceptual starting point that can help the field better focus its understanding and use of activities that relate to empathy in practice.</div></div><div><h3>Practice implications</h3><div>Future practice, research, and education can use the components generated in this study to more consistently define therapeutic empathy, thereby offering potential to improve patient and practitioner outcomes.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"Article 108596"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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