Patient Education and Counseling最新文献

{"title":"Clinical trial knowledge, discussion, and participation among cancer survivors: A HINTS-SEER study.","authors":"Erin O Wissler Gerdes, Sarah H Nash, Robin C Vanderpool, Erin L Van Blarigan, Angela L W Meisner, Nicole Senft Everson","doi":"10.1016/j.pec.2024.108605","DOIUrl":"10.1016/j.pec.2024.108605","url":null,"abstract":"<p><strong>Objectives: </strong>Clinical trial knowledge and discussions about clinical trials with healthcare providers contribute to clinical trial participation and clinical trial representation. This study explored 1) the association of patient-provider communication with clinical trial knowledge, 2) how patient-provider communication impacts the associations of demographic and clinical factors with clinical trial knowledge, and 3) motivations for clinical trial participation among people with a history of cancer.</p><p><strong>Methods: </strong>Cross-sectional data from the 2021 Health Information National Trends Survey-Surveillance, Epidemiology, and End Results (HINTS-SEER) study included 1201 adult cancer survivors recruited from three SEER registries. Multivariable logistic regression models estimated adjusted associations of sociodemographic and clinical characteristics with clinical trial knowledge (none, a little bit/a lot) with and without the inclusion of clinical trial discussion with a healthcare provider (yes, no).</p><p><strong>Results: </strong>Approximately three-quarters of cancer survivors reported having at least \"a little\" knowledge about clinical trials, though only 15 % reported having discussed clinical trials with their provider. Those who reported patient-provider communication about clinical trials had 8.71 times higher odds of having some clinical trial knowledge. In multivariable logistic regression, odds of knowing at least a little bit about clinical trials were lower among adults without a college degree and among Hispanic and Non-Hispanic Asian (versus Non-Hispanic White) adults. Associations of demographic factors with clinical trial knowledge were not impacted by the inclusion of patient-provider discussion in the model. Top motivations for clinical trial participation were helping other people, new treatment, and getting better.</p><p><strong>Conclusion/practice implications: </strong>There is a need to ensure information about clinical trials is provided to all people with cancer and to facilitate high quality communication between patients and providers about clinical trials.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"108605"},"PeriodicalIF":2.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830620","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effect of fathers in Preemie Prep for Parents (P3) program on couple's preterm birth preparedness.","authors":"Mir A Basir, Siobhan M McDonnell, Ruta Brazauskas, U Olivia Kim, S Iqbal Ahamed, Jennifer J McIntosh, Kris Pizur-Barnekow, Michael B Pitt, Abbey Kruper, Steven R Leuthner, Kathryn E Flynn","doi":"10.1016/j.pec.2024.108599","DOIUrl":"10.1016/j.pec.2024.108599","url":null,"abstract":"<p><strong>Objective: </strong>Evaluate the effect of fathers' participation in the Preemie Prep for Parents (P3) program on maternal learning and fathers' preterm birth knowledge.</p><p><strong>Methods: </strong>Mothers with preterm birth predisposing medical condition(s) enrolled with or without the baby's father and were randomized to the P3 intervention (text-messages linking to animated videos) or control (patient education webpages). Parent Prematurity Knowledge Questionnaire assessed knowledge, including unmarried fathers' legal neonatal decision-making ability.</p><p><strong>Results: </strong>104 mothers reported living with the baby's father; 50 participated with the father and 54 participated alone. In the P3 group, mothers participating with the father (n = 33) had greater knowledge than mothers participating alone (n = 21), 85 % correct responses vs. 76 %, p = 0.033. However, there was no difference in knowledge among the control mothers, 67 % vs. 60 %, p = 0.068. P3 fathers (n = 33) knowledge scores were not different than control fathers (n = 17), 77 % vs. 68 %, p= 0.054. Parents who viewed the video on fathers' rights (n = 58) were more likely than those who did not (n = 96) to know unmarried fathers' legal inability to decide neonatal treatments, 84 % vs. 41 %, p < 0.001.</p><p><strong>Conclusions: </strong>Among opposite-sex cohabitating couples, fathers' participation in the P3 program enhanced maternal learning.</p><p><strong>Practice implications: </strong>The P3 program's potential to educate fathers may benefit high-risk pregnancies.</p><p><strong>Clinical trial registration: </strong>ClinicalTrials.gov, NCT04093492, https://clinicaltrials.gov/study/NCT04093492.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"108599"},"PeriodicalIF":2.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Towards better care: Comprehensive review of patient-reported patient engagement instruments in healthcare.","authors":"Minjuan Wu, Xiane Jia, Yichao Zhang, Wenjun Chen","doi":"10.1016/j.pec.2024.108601","DOIUrl":"10.1016/j.pec.2024.108601","url":null,"abstract":"<p><strong>Objective: </strong>Patient engagement is widely recognized as essential for improving healthcare quality and reducing costs; however, its formal evaluation presents significant challenges. The aim of this review was to assess instruments for measuring patient engagement in healthcare from the patients' perspective and to evaluate their psychometric properties.</p><p><strong>Methods: </strong>A systematic review according to the PRISMA guidelines was conducted to evaluate the psychometric properties of patient-reported questionnaires assessing patient engagement. Studies published up to August 4, 2024, were included and appraised using the COSMIN checklist.</p><p><strong>Results: </strong>Forty-one studies were included in this review. The most commonly used content to describe patient engagement were 'preference', 'experiences', 'willingness', and 'informative feedback'. Few patient engagement questionnaires were designed for specific populations and lack theoretical foundation.</p><p><strong>Conclusion: </strong>Further research is essential to develop valid, reliable, and feasible methodologies for assessing patient engagement within the framework of ongoing care quality improvement.</p><p><strong>Practice implications: </strong>Evaluating patient engagement instruments aids in developing reliable and valid tools that better align with patient needs and preferences.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"108601"},"PeriodicalIF":2.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Corrigendum to \"Parental experiences of end-of-life decision making in neonatal intensive care unit: A systematic review and qualitative data synthesis\" [Patient Educ Couns 131 (2025) 108546].","authors":"Yanhui Ma, Junxiang Gao, Chongyang Zhang, Lihua Zhang, Ling Lu","doi":"10.1016/j.pec.2024.108581","DOIUrl":"10.1016/j.pec.2024.108581","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"108581"},"PeriodicalIF":2.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142822886","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Older rural women's pre-visit planning and involvement in South Australian general practices: A candidacy theory perspective.","authors":"Mohammad Hamiduzzaman, Noore Siddiquee, Harry James Gaffney, Helen McLaren, Jennene Greenhill","doi":"10.1016/j.pec.2024.108602","DOIUrl":"10.1016/j.pec.2024.108602","url":null,"abstract":"<p><strong>Objective: </strong>To explain older rural women's participation in clinical decision-making with GPs and explore factors associated with their pre-visit planning and involvement in treatment processes.</p><p><strong>Methods: </strong>A sequential, theory-driven mixed-method study was conducted. Women aged 65 years or above who had visited a GP three months prior were recruited from five rural towns in South Australia through the local Rotary Club. Data collection utilised an 18-item scale and a semi-structured interview guide. Quantitative data were analysed using chi-square tests and multinomial logit models, whereas qualitative data were coded into themes. As applied in the discussion, the candidacy theory provided a framework for further adding meaning to the results.</p><p><strong>Results: </strong>Seventy-one older rural women completed surveys. Across the domains, including health knowledge, GP visit preparation, participation in discussion, and attitudes towards shared decision-making, most items indicated a moderate level of women's health knowledge and involvement in GP treatments. Multivariate analysis revealed having less than a basic education, not speaking English at home, and being in the youngest-old age group (65-74 years) were positively associated with low levels of pre-visit planning and involvement in GP treatments. Analysis of interviews with 21 women identified three themes: capacity for health planning and preparedness, communication styles and preferences, and accessibility and continuity of care.</p><p><strong>Conclusion: </strong>The findings of this study underscore the urgent need for redesigning GP services. By considering the intersection between behavioural and clinical aspects of older rural women's pre-visit planning and involvement in GP treatment processes in rural South Australia, we can inspire positive change in healthcare delivery.</p><p><strong>Practice implications: </strong>Practice Implications: our study provides actionable insights on how and where to intervene to enhance older rural women's capacity to engage in pre-visit planning for successful GP consultations. This knowledge can empower healthcare professionals and policymakers to implement effective strategies.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"132 ","pages":"108602"},"PeriodicalIF":2.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Chatbot for patient education for prenatal aneuploidy testing: A multicenter randomized controlled trial.","authors":"Bowdoin Su, Renee Jones, Kelly Chen, Emilia Kostenko, Maximilian Schmid, Andrea L DeMaria, Andrew Villa, Monte Swarup, Jennifer Weida, Methodius G Tuuli","doi":"10.1016/j.pec.2024.108557","DOIUrl":"10.1016/j.pec.2024.108557","url":null,"abstract":"<p><strong>Introduction: </strong>Digital tools could assist obstetric providers by delivering information given increasing options for fetal aneuploidy screening.</p><p><strong>Purpose: </strong>To determine the impact of a chatbot for pre-test education and counseling in low-risk pregnancies.</p><p><strong>Methods: </strong>Two sites participated in this randomized controlled trial. Patients in the intervention group used a chatbot prior to the provider visit, while patients in the control group only received education by the provider. The primary outcome was change in patient knowledge scores after provider education. Analysis was by intention to treat.</p><p><strong>Results: </strong>Overall, 258 women participated (n = 130; intervention and n = 128; control). Knowledge gain was significantly higher among patients using the chatbot (mean increase in correct answers [out of 20]: +4.1 vs +1.9, p < 0.001). Both groups reported high satisfaction, with no statistically significant difference between intervention and control groups (mean patient satisfaction [1-10]: 8.2 vs 8.5 respectively, p = 0.35). Providers also reported high satisfaction scores with no significant difference between intervention and control groups (mean provider satisfaction [1 - 10]: 8.7 vs 8.4 respectively, p = 0.13).</p><p><strong>Conclusions: </strong>Pre-test education via a chatbot can increase patient knowledge of prenatal testing choices, with high patient and provider satisfaction.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"108557"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792714","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The need for personalization when sharing results of amyloid imaging for Alzheimer's disease: Insights from a randomized experimental study.","authors":"Agnetha D Fruijtier, Wiesje M van der Flier, Ingrid van Maurik, Jetske van der Schaar, Yolande A L Pijnenburg, Ellen M A Smets, Leonie N C Visser","doi":"10.1016/j.pec.2024.108587","DOIUrl":"10.1016/j.pec.2024.108587","url":null,"abstract":"<p><strong>Objective: </strong>To study information needs after receiving abnormal amyloid-PET results, and how individual characteristics moderate effects of different communication strategies on information recall.</p><p><strong>Methods: </strong>In an online video-vignette experiment, seven vignettes each depicted a consultation of a physician sharing abnormal amyloid-PET results with a patient with Mild Cognitive Impairment(MCI), using different communication strategies. Healthy individuals (N = 1017; age 64 ± 8, 808(79 %) female), instructed to imagine themselves as the video-patient, viewed a randomly-assigned vignette and completed questionnaires to assess information needs and test moderation effects of gender, age, care-partner experience, health literacy, and coping.</p><p><strong>Results: </strong>Sixty-three percent of participants (645/1017) would have liked to receive more information, e.g., on prognosis, additional information sources, lifestyle advice, and/or treatment. Emotional support benefited information recall in women, but not men. Emotional support and visually presenting the PET-scan were less beneficial for individuals with a stronger avoidant coping style, compared to most other strategies.</p><p><strong>Conclusion: </strong>Most people wanted more information on varying topics, and gender and coping style influenced how communication strategies impacted information recall. PRACTICE IMPLICATIONS The importance of personalized information provision was emphasized, both in terms of what information is provided and how physicians share information, by paying attention to individuals' needs and characteristics.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"108587"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792798","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Instruments evaluating the duration and pace of clinical encounters: A scoping review.","authors":"Cristian Soto Jacome, Nataly R Espinoza Suarez, Elizabeth H Golembiewski, Derek Gravholt, Aidan Crowley, Meritxell Urtecho, Montserrat Garcia Leon, Dron Mandhana, Dawna Ballard, Marleen Kunneman, Larry Prokop, Victor M Montori","doi":"10.1016/j.pec.2024.108591","DOIUrl":"10.1016/j.pec.2024.108591","url":null,"abstract":"<p><strong>Objective: </strong>Hurried encounters in clinical settings contribute to dissatisfaction among both patients and clinicians and may indicate and contribute to low-quality care. We sought to identify patient- or clinician-reported instruments concerning this experience of time in clinical encounters.</p><p><strong>Methods: </strong>We searched multiple databases from inception through July 2023. Working in duplicate without restrictions by language or clinical context, we identified published instruments or single items measuring perceptions of time adequacy in clinical encounters. We characterized these by time domain (perceived duration or pace of the encounter), responder (patient or clinician), and reference (experience of care in general or of a particular encounter).</p><p><strong>Results: </strong>Of the 96 instruments found, none focused exclusively on perception of time adequacy in clinical encounters. Nonetheless, these instruments contained 107 time-related items. Of these, 81 items (77 %) measured the perception of the encounter duration, assessing whether there was adequate consultation time overall or for specific tasks (e.g., listening to the patient, exploring psychosocial issues, formulating the care plan). Another 19 (18 %) assessed encounter pace, and 7 (7 %) assessed both duration and pace. Pace items captured actions perceived as rushed or hurried or the perception that patients and clinicians felt pressed for time or rushed. Patients were the respondents for 76 (71 %) and clinicians for 24 (22 %) items. Most patient-reported items (48 of 76) referred to the patient's general care experience.</p><p><strong>Conclusion: </strong>There are existing items to capture patient and clinician perceptions of the duration and/or pace of clinical encounters. Further work should ascertain their ability to identify hurried consultations and to detect the effect of interventions to foster unhurried encounters.</p><p><strong>Practice implications: </strong>The available items assessing patient and clinician perceptions of duration and pace can illuminate the experience of time adequacy in clinical encounters as a target for quality improvement interventions. These items may capture unintended consequences on perceived time for care of interventions to improve healthcare access and efficiency.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"108591"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142774210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A scoping review of parents' disclosure of BRCA1/2 genetic alteration test results to underage children.","authors":"Celia Diez de Los Rios de la Serna, Maura Dowling, Nichola McNamara, John D Ivory, Yvonne Hanhauser, Meghan Murphy, Marleah Dean","doi":"10.1016/j.pec.2024.108561","DOIUrl":"10.1016/j.pec.2024.108561","url":null,"abstract":"<p><strong>Background: </strong>Individuals with BRCA1/2 mutations have a notably higher than average lifetime risk of developing cancer as adults. Some parents with BRCA1/2 mutations wish to share this information with their children, yet they struggle to know how, when, and what information to share.</p><p><strong>Objective: </strong>The objective of this review was to identify what communication strategies/interventions exist for parents communicating their BRCA1/2 status to their minor children, and what communication interventions do healthcare professionals use to support parents' disclosure process.</p><p><strong>Methods: </strong>Scoping review on six databases search for studies with parents and/or healthcare professionals' interventions on supporting communication from parents to children. The review aligned PRISMA guidelines for scoping reviews and used the PAGER recommendations to guide charting and reporting.</p><p><strong>Results: </strong>22 articles published from 2001 to 2020 were included. Multiple facilitators/motivators of disclosure, how and where parents disclosed, reactions to disclosure were identified. Also, there were no healthcare professionals' interventions in the disclosure process found.</p><p><strong>Conclusions: </strong>The review summarizes research on parents' disclosure of their BRCA1/2 status to their underage children and demonstrates a paucity of communication interventions for guiding parents in this difficult process. Parents experience many obstacles communicating the results to their children.</p><p><strong>Practice implications: </strong>These findings equip healthcare professionals in their efforts to develop and test interventions which support the communication of genetic risk information. Furthermore, it is evident there is a need for more research to understand how the disclosure process occurs in the families.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"108561"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142774108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The influencing factors in intention making-decision of Human papillomavirus vaccine in Chinese college students: A qualitative study.","authors":"Juanjuan Ma, Wenting Lu, Shuyan Sun, Yuxin Zhan, Jin Zhang, Hui Zhang","doi":"10.1016/j.pec.2024.108594","DOIUrl":"10.1016/j.pec.2024.108594","url":null,"abstract":"<p><strong>Objective: </strong>College students are considered as a high-risk age group for contracting HPV. HPV vaccines are proved to play a major role in preventing Cervical cancer and related cancers among both men and women. This study aimed to explore influencing factors in intention making-decision of Human papillomavirus vaccine in Chinese college students.</p><p><strong>Methods: </strong>A descriptive qualitative research based on naturalistic inquiry in Daqing City, Heilong Jiang Province from October to November 2022 was conducted. Semi-structured interviews with Chinese college students. We used thematic framework analysis with NVivo 12.0 software to transcribe and analyze the interview recordings.</p><p><strong>Results: </strong>We conducted 20 in-depth interviews. Four main themes with 14 subthemes were identified: (a) potential risks of HPV infection; (b) susceptibility factors of HPV infection; (c) difficulties in HPV vaccination; (d) decision support for HPV vaccination.</p><p><strong>Conclusion: </strong>Most college students expressed hesitancy toward receiving the HPV vaccine. The government should strengthen the advocacy of the benefits of the vaccine to increase the HPV vaccination rate.</p><p><strong>Practice implications: </strong>Healthcare providers and the government should take some strategies to promote facilitate factors to increase HPV vaccination rates.</p>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"131 ","pages":"108594"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142781590","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}