Patient Education and Counseling最新文献

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Reclaiming the medical record for patient-centered care 为以病人为中心的护理回收医疗记录。
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-10-04 DOI: 10.1016/j.pec.2025.109377
Manal Khan , Annette Kestner , Kiran Khalid
{"title":"Reclaiming the medical record for patient-centered care","authors":"Manal Khan ,&nbsp;Annette Kestner ,&nbsp;Kiran Khalid","doi":"10.1016/j.pec.2025.109377","DOIUrl":"10.1016/j.pec.2025.109377","url":null,"abstract":"<div><h3>Objective</h3><div>This paper examines how clinical documentation in mental health settings can serve as a patient-centered tool that strengthens the therapeutic alliance, reduces stigma, and promotes equity particularly in light of expanding patient access to health records.</div></div><div><h3>Methods</h3><div>Drawing from empirical research and clinical practice, the discussion offers actionable strategies for creating patient-centered documentation. Key areas include language use, recognition of systemic bias, and tailored approaches for sensitive topics and minoritized populations.</div></div><div><h3>Results</h3><div>Adopting a patient-centered approach to documentation fosters trust, reduces stigma, and encourages shared decision-making. Transitioning from judgmental or stigmatizing language to inclusive, strengths-based, and contextually informed language can transform clinical notes into therapeutic and advocacy tools.</div></div><div><h3>Conclusion</h3><div>Using respectful, inclusive, and recovery-oriented language in clinical notes supports both ethical and clinical objectives, especially in mental health. Documentation not only captures patient information but also communicates values, reinforces patients’ humanity, and influences the course of care.</div></div><div><h3>Practice implications</h3><div>Mental health professionals can use patient-centered documentation to enhance communication, build trust, and advance health equity. By adopting mindful language and addressing systemic factors in their charting, clinicians can turn documentation into an integral part of therapeutic care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109377"},"PeriodicalIF":3.1,"publicationDate":"2025-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145259432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the challenges of using digital health technologies for menopause information 了解使用数字健康技术获取更年期信息的挑战
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-10-04 DOI: 10.1016/j.pec.2025.109375
Elizabeth Sillence , Alison K. Osborne , Caroline Claisse , Abigail C. Durrant
{"title":"Understanding the challenges of using digital health technologies for menopause information","authors":"Elizabeth Sillence ,&nbsp;Alison K. Osborne ,&nbsp;Caroline Claisse ,&nbsp;Abigail C. Durrant","doi":"10.1016/j.pec.2025.109375","DOIUrl":"10.1016/j.pec.2025.109375","url":null,"abstract":"<div><h3>Objectives</h3><div>Many women feel underprepared for the menopause and a lack of knowledge can impact on menopause experiences. Digital health technologies (DHT) are a popular way of enabling access to information on women's health topics including menopause and, while studies have suggested a number of positive outcomes from their use, there is limited research on the challenges that women face when using these resources.</div></div><div><h3>Method</h3><div>Sixteen women who identified as going through the menopause engaged with digital sources of menopause information (websites, podcasts and online groups) over a number of weeks recording their thoughts and experiences before taking part in an in person focus group. A thematic analysis of the data focused on the overarching challenges women faced in using DHTs for menopause information.</div></div><div><h3>Results</h3><div>Individuals see the benefit in using DHTs for menopause information although a number of key challenges were identified. These were captured in four themes: ‘<em>Information is overwhelming’</em>, ‘<em>the individual nature of menopause’, ‘evaluation of resources is complex’</em> and ‘<em>digital resources are only part of the picture’.</em> Conflicting information around menopause and the wide range of content creators can exacerbate difficulties in evaluating resources and the individual nature of menopause is not always well represented in digital resources.</div></div><div><h3>Conclusions</h3><div>Women still need more comprehensive menopause information that incorporates but is not solely digital in nature. Future research should consider how best to support women's evaluation of resources and their lifelong learning about menopause.</div></div><div><h3>Practice implications</h3><div>Healthcare professionals (HCPs) remain women’s preferred source of information about menopause and should ensure the individual nature of menopause remains at the fore front of discussions. HCPs should be aware of the variety of digital resources available and to signpost such resources appropriately to women.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109375"},"PeriodicalIF":3.1,"publicationDate":"2025-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145269503","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Promoting cervical cancer screening via a mailed HPV self-collection kit: Reactions from screeners and non-screeners 透过邮寄的人乳头瘤病毒自我收集工具推广子宫颈癌筛查:筛查者和非筛查者的反应。
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-10-03 DOI: 10.1016/j.pec.2025.109374
Jasmin A. Tiro , Sadie Metcalfe , Meera Muthukrishnan , Angelina Jose , Kris Hansen , John Lin , Caitlin N. Dorsey , Hongyuan Gao , Catherine Lacey , Melissa L. Anderson , Richard T. Meenan , Beverly B. Green , Diana S.M. Buist , Angela Sparks , Rachel L. Winer
{"title":"Promoting cervical cancer screening via a mailed HPV self-collection kit: Reactions from screeners and non-screeners","authors":"Jasmin A. Tiro ,&nbsp;Sadie Metcalfe ,&nbsp;Meera Muthukrishnan ,&nbsp;Angelina Jose ,&nbsp;Kris Hansen ,&nbsp;John Lin ,&nbsp;Caitlin N. Dorsey ,&nbsp;Hongyuan Gao ,&nbsp;Catherine Lacey ,&nbsp;Melissa L. Anderson ,&nbsp;Richard T. Meenan ,&nbsp;Beverly B. Green ,&nbsp;Diana S.M. Buist ,&nbsp;Angela Sparks ,&nbsp;Rachel L. Winer","doi":"10.1016/j.pec.2025.109374","DOIUrl":"10.1016/j.pec.2025.109374","url":null,"abstract":"<div><h3>Objective</h3><div>Mailed human papillomavirus self-collection (HPV-SC) kits improve cervical cancer screening adherence; however, not all respond to kit invitations. This qualitative study sought to understand reactions to HPV-SC kit invitation among screeners and non-screeners in the STEP trial, a pragmatic trial offering kits.</div></div><div><h3>Methods</h3><div>Kaiser Permanente Washington patients randomized to the STEP trial’s kit intervention arms, received educational materials and were notified they would receive a kit in one week (direct mail) or given information on how to request a kit (opt-in). Materials highlighted cancer risk, screening importance, test differences (Pap, HPV), and what to expect with abnormal results. Based on their screening status 6 months post-randomization, two categories of patients were invited for focus groups: 1) screeners with negative kit results or clinician-performed test; 2) non-screeners. We oversampled non-white patients. Six online focus groups were conducted from May to June 2022 with 40 patients (29 screeners, 11 non-screeners). A facilitator asked about HPV and cervical cancer knowledge, reaction to the kit and educational materials, and screening preference (self- vs. clinician-collected). Field notes and transcripts were analyzed by five coders using iterative content analysis.</div></div><div><h3>Results</h3><div>Participants desired more flexibility during the invitation process, preferring multiple methods (mail, patient portal, text, in-clinic distribution) and support services (website, nurse-staffed phone). Educational resources acknowledging different learning styles (print, diagrams, audio-visual) and for specific populations (LGBTQ, monogamous) were suggested. Participants recommended clinicians reinforce kit efficacy to encourage use. Trust in the kit and in the health care system were key to ensure comfort with self-collection.</div></div><div><h3>Conclusion</h3><div>Multiple, diverse outreach strategies are needed to engage patients in screening with this new modality.</div></div><div><h3>Practice implications</h3><div>Flexible engagement by the healthcare system with comprehensive educational materials inclusive of diverse populations, and provider encouragement are needed to build patients’ trust in, comfort with, and use of HPV-SC tests.</div></div><div><h3>Trial registration</h3><div>ClinicalTrials.gov Identifier: NCT04679675</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109374"},"PeriodicalIF":3.1,"publicationDate":"2025-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145259436","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Supporting weight focused discussions in primary care: A qualitative exploration of barriers and facilitators 在初级保健中支持以体重为重点的讨论:障碍和促进因素的定性探索。
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-10-01 DOI: 10.1016/j.pec.2025.109373
Gemma Sharp , Joanne A. Rathbone , Madeline L. West , Bi Yan Low , Isabella McGrath , Maria Bilal , Anne Nileshni Fernando
{"title":"Supporting weight focused discussions in primary care: A qualitative exploration of barriers and facilitators","authors":"Gemma Sharp ,&nbsp;Joanne A. Rathbone ,&nbsp;Madeline L. West ,&nbsp;Bi Yan Low ,&nbsp;Isabella McGrath ,&nbsp;Maria Bilal ,&nbsp;Anne Nileshni Fernando","doi":"10.1016/j.pec.2025.109373","DOIUrl":"10.1016/j.pec.2025.109373","url":null,"abstract":"<div><h3>Objectives</h3><div>To understand perspectives of primary care professionals and trainee primary care professionals on discussions with higher weight patients focused on weight management support, particularly the barriers and facilitators to these discussions.</div></div><div><h3>Methods</h3><div>Qualified primary care professionals and trainee primary care professionals (<em>N</em> = 91) at varying career stages within Australia completed an online survey (as part of a larger study) with a series of open-ended questions about their experiences and requirements to facilitate effective weight-related discussions with higher weight patients. Survey responses were qualitatively analysed using thematic and content analysis.</div></div><div><h3>Results</h3><div>From the analyses, participants recognised their strengths, including non-judgemental and non-blaming attitudes, empathy and providing practical and tailored weight management solutions. Participants also indicated a need for more time and resources to deliver comprehensive, tailored care sensitively. Perceived barriers included appointment length/time and patient financial constraints for extended consultations, limited familiarity with suitable weight management options and challenges prioritising health and lifestyle factors over weight. Participants emphasised the need for resources and multidisciplinary support to facilitate effective weight-related discussions that focused on overall health and wellbeing.</div></div><div><h3>Conclusions</h3><div>Improving access to and awareness of clinical guidelines and existing resources, along with investing in specialised weight management services, could benefit primary care professionals across the career stage spectrum.</div></div><div><h3>Practice implications</h3><div>These findings suggest the need for health systems and leadership to support prioritisation of education, training, development of, and access to relevant curricula, tools, resources, and guidelines. This may facilitate primary care professionals (current and future) to raise weight-related discussions sensitively and effectively.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109373"},"PeriodicalIF":3.1,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145259418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“Everything looks reassuring.”: Managing uncertainty during the emergency department discharge process “一切看起来都让人放心。”管理急诊室出院过程中的不确定性。
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-09-29 DOI: 10.1016/j.pec.2025.109365
Sheryl A. Krause, Linsey M. Steege, Kristen E. Pecanac
{"title":"“Everything looks reassuring.”: Managing uncertainty during the emergency department discharge process","authors":"Sheryl A. Krause,&nbsp;Linsey M. Steege,&nbsp;Kristen E. Pecanac","doi":"10.1016/j.pec.2025.109365","DOIUrl":"10.1016/j.pec.2025.109365","url":null,"abstract":"<div><h3>Objective</h3><div>Diagnostic uncertainty is prevalent in the emergency department (ED) setting. We examined how uncertainty was communicated during naturally occurring interactions between clinicians (physicians, physician assistants, nurse practitioners, and nurses) and adult patients during the ED discharge process.</div></div><div><h3>Methods</h3><div>We audio-recorded conversations during the discharge process of 40 adult patients (age 18 and older). Each patient participant had an interaction with an RN recorded and 15 also had an interaction with an HCP (defined as physician, physician assistant or nurse practitioner) recorded. There were 10 HCPs, including six physicians, three physician assistants, and one nurse practitioner. We used conversation analysis, a qualitative method, to explore how uncertainty is communicated during discharge conversations.</div></div><div><h3>Results</h3><div>HCPs use results of diagnostic testing, expert recommendation, and their own assessment as sources of evidence for their decision to discharge patients from the ED. HCPs check in with patients to confirm patient alignment with the plan for discharge and outpatient follow-up or to verify the usefulness of treatment.</div></div><div><h3>Conclusions</h3><div>Emergency HCPs account for their decision to discharge patients home from the ED despite uncertainty. They provide patients with evidence that the workup was thorough, the most dangerous conditions have been ruled out, and they are safe to be discharged with outpatient follow-up.</div></div><div><h3>Practice Implications</h3><div>Our study showed that in the high-stakes environment of the ED, HCPs do communicate uncertainty. Despite the uncertainty, HCPs showed they were accountable to patients to demonstrate they were safe to go home. Checking in with the patient might be a way to assess their feelings of safety but further study is necessary.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109365"},"PeriodicalIF":3.1,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145259414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring patient involvement and influencing factors in digital interdisciplinary consultation 探讨数字化跨学科会诊中患者参与及影响因素
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-09-27 DOI: 10.1016/j.pec.2025.109360
Ken MM Peeters , Carmen Y. Hidding , Petra Buist , Sanne M. Sanavro , Dennis van der Lugt , Joke Stoffelen , Marco H. Blanker , Henk van der Worp , Henk J. Schers , Esther Giroldi , Jochen WL Cals , Jesse Jansen
{"title":"Exploring patient involvement and influencing factors in digital interdisciplinary consultation","authors":"Ken MM Peeters ,&nbsp;Carmen Y. Hidding ,&nbsp;Petra Buist ,&nbsp;Sanne M. Sanavro ,&nbsp;Dennis van der Lugt ,&nbsp;Joke Stoffelen ,&nbsp;Marco H. Blanker ,&nbsp;Henk van der Worp ,&nbsp;Henk J. Schers ,&nbsp;Esther Giroldi ,&nbsp;Jochen WL Cals ,&nbsp;Jesse Jansen","doi":"10.1016/j.pec.2025.109360","DOIUrl":"10.1016/j.pec.2025.109360","url":null,"abstract":"<div><h3>Objectives</h3><div>We explored patient attitudes and experiences around their involvement throughout the digital interdisciplinary consultation (DICO) process and identified its influencing factors. DICO is defined as asynchronous, targeted communication between GPs and hospital specialists via a secure electronic application where patient-specific information is shared, and clarification or guidance is sought concerning a clinical question.</div></div><div><h3>Methods</h3><div>We conducted a qualitative study in the Netherlands. A conceptual framework was iteratively developed to identify phases of DICO where patient involvement is possible, drawing on literature research and expert meetings. Data from three interrelated studies performing semi-structured interviews regarding patients' experiences with various types of DICO were triangulated. The conceptual framework was expanded with factors influencing the degree of patient involvement at each phase, based on the findings from the patient interviews.</div></div><div><h3>Results</h3><div>We analyzed 27 patient interviews. Patients viewed DICO as an initial step in care, with limited active involvement required. From the perspective of the patient, the decision to initiate DICO is typically made by the GP, often without patient input. GPs initiate DICO for various reasons and patient involvement varies depending on the reason. Key factors influencing involvement as perceived by patients include the GP-patient relationship, particularly trust, the nature of the medical problem (e.g., urgency and severity), and patients’ needs and preferences. Patients appreciated post-DICO discussions, particularly in cases of uncertainty, and considered shared decision making important when DICO leads to health decisions.</div></div><div><h3>Conclusions</h3><div>The study highlights how the level of patient involvement in DICO varies depending on the reason for initiating DICO, the nature of the medical problem, patients’ needs and preferences, and the GP-patient relationship.</div></div><div><h3>Practice implications</h3><div>Findings from this study show patient involvement in DICO is context-dependent; GPs should tailor involvement across multiple DICO phases, especially when providing feedback on the outcome of DICO<strong>.</strong> Findings can contribute to future guidelines for effective, patient-centered DICO implementation.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109360"},"PeriodicalIF":3.1,"publicationDate":"2025-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145222375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding barriers and facilitators of transition to adult care among adolescents with Congenital Heart Disease (CHD): A qualitative study of adult perspectives 了解先天性心脏病(CHD)青少年向成人护理过渡的障碍和促进因素:成人视角的定性研究
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-09-26 DOI: 10.1016/j.pec.2025.109364
Sasha Ruban , Larissa Lloyd , Tanya Badal , Geoff Strange , David S. Celermajer , Carissa Bonner
{"title":"Understanding barriers and facilitators of transition to adult care among adolescents with Congenital Heart Disease (CHD): A qualitative study of adult perspectives","authors":"Sasha Ruban ,&nbsp;Larissa Lloyd ,&nbsp;Tanya Badal ,&nbsp;Geoff Strange ,&nbsp;David S. Celermajer ,&nbsp;Carissa Bonner","doi":"10.1016/j.pec.2025.109364","DOIUrl":"10.1016/j.pec.2025.109364","url":null,"abstract":"<div><h3>Background/Objectives</h3><div>Congenital heart disease (CHD) refers to a spectrum of structural abnormalities of the heart at birth. Survival and outcomes have improved due to advances in surgery and post-operative care, resulting in more patients transitioning from paediatric to adult healthcare settings. This study aimed to explore varied experiences of this transition and identify ways to improve processes to enable continuity of care in Australia.</div></div><div><h3>Methods</h3><div>Purposive sampling was used to recruit a diverse sample of CHD patients from a larger study. In semi-structured online interviews, adult participants were asked to reflect on their childhood transition experience. Interviews were audio recorded, transcribed and coded using framework analysis.</div></div><div><h3>Results</h3><div>4 main themes were identified: i) perceived experience of transition, (ii) impact on family and wider support network, (iii) psychosocial needs of the patient, and (iv) the role of evolving independence. Facilitators of a positive transition experience included education, proactive handover and clear information about what to expect. Barriers included lack of empowerment for patients and lack of empathy and holistic care from clinicians. Family impacts included the changing parental role and need for reassurance for caregivers. Psychosocial needs included support for mental health. Evolving independence and maturity influenced individuals’ ability to manage their transition and ongoing care.</div></div><div><h3>Conclusions</h3><div>The findings suggest a need to improve processes and communication, to facilitate a more holistic model of care for CHD patients in Australia. This includes planned coordination of transition, clear information and support for mental health and overall wellbeing of CHD patients and their caregivers.</div></div><div><h3>Practice implications</h3><div>Structural changes to improve the chance of successful transition could lead to better long-term health outcomes for individuals with CHD.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109364"},"PeriodicalIF":3.1,"publicationDate":"2025-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145222376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“About the patient, not for the patient”: A qualitative study on medical reports in hepatology “为病人,不为病人”:肝病医学报告的定性研究
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-09-23 DOI: 10.1016/j.pec.2025.109363
Michela Monaci , Mateus Eduardo Romão , Sarah Bigi , Beatrice Credi , Marko Korenjak , Serena Barello
{"title":"“About the patient, not for the patient”: A qualitative study on medical reports in hepatology","authors":"Michela Monaci ,&nbsp;Mateus Eduardo Romão ,&nbsp;Sarah Bigi ,&nbsp;Beatrice Credi ,&nbsp;Marko Korenjak ,&nbsp;Serena Barello","doi":"10.1016/j.pec.2025.109363","DOIUrl":"10.1016/j.pec.2025.109363","url":null,"abstract":"<div><h3>Background</h3><div>In hepatology, clinical documentation such as post-visit summaries and discharge letters plays a crucial role in communicating medical information across complex and fragmented care pathways. While often treated as administrative tools, these documents also carry cognitive, emotional, and relational weight for patients and caregivers—especially in the context of chronic liver disease.</div></div><div><h3>Method</h3><div>Using a focused ethnographic approach, we conducted 14 semi-structured interviews with patients and caregivers from 11 countries, combining narrative inquiry with think-aloud protocols as participants reviewed medical reports.</div></div><div><h3>Results</h3><div>Thematic analysis revealed six interpretive themes describing how participants related to medical reports: reports as anchors of control; prioritizing and tracking key content; design as a gateway to usability; the emotional weight of language and tone; reports as extensions of the clinical relationship; and co-design as a pathway forward. Participants described reading reports as a routine yet emotionally charged activity, often marked by confusion, anxiety, or frustration. Some reported discovering serious diagnoses through documents alone, without preparatory discussion, which they experienced as distressing and trust-eroding.</div></div><div><h3>Conclusion</h3><div>These exploratory findings suggest that clinical documentation may influence how patients and caregivers experience care. Reports perceived as complex or unclear could hinder comprehension and reassurance, while clearer and more accessible formats may help support trust and engagement.</div></div><div><h3>Practice implications</h3><div>Written materials in hepatology should be linguistically accessible, structurally clear, emotionally attuned, and co-designed with patients and caregivers to enhance self-management and continuity of care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109363"},"PeriodicalIF":3.1,"publicationDate":"2025-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145159946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Automating the Observer OPTION-5 measure of shared decision making: Assessing validity by comparing large language models to human ratings 共享决策的观察者OPTION-5测量自动化:通过比较大型语言模型和人类评分来评估有效性
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-09-22 DOI: 10.1016/j.pec.2025.109362
Sai P. Selvaraj , Renata W. Yen , Rachel Forcino , Glyn Elwyn
{"title":"Automating the Observer OPTION-5 measure of shared decision making: Assessing validity by comparing large language models to human ratings","authors":"Sai P. Selvaraj ,&nbsp;Renata W. Yen ,&nbsp;Rachel Forcino ,&nbsp;Glyn Elwyn","doi":"10.1016/j.pec.2025.109362","DOIUrl":"10.1016/j.pec.2025.109362","url":null,"abstract":"<div><h3>Objectives</h3><div>Observer-based measures of shared decision rely on human raters, it is resource-intensive, limiting routine assessment and improvement. Generative artificial intelligence could increase the speed and accuracy of observer-based evaluation while reducing the burden. This study aimed to assess the performance of large language models (LLMs) from Gemini, GPT, and LLaMA family of models in evaluating the extent of shared decision-making between clinicians and women considering surgery for early-stage breast cancer.</div></div><div><h3>Methods</h3><div>LLM-generated scores were compared with those of trained human raters from a randomized controlled trial using the 5-item Observer OPTION-5 measure. We analyzed 287 anonymized transcripts of breast cancer consultations. A series of prompts were tested across models, assessing correlations with human scores. We also evaluated the ability of LLMs to distinguish high versus low encounters and the impact of inter-rater agreement on performance.<span><span><sup>1</sup></span></span></div></div><div><h3>Results</h3><div>The scores for Observer OPTION-5 items generated by the GPT-4o and Gemini-1.5-Pro-002 correlated with human ratings (Pearson r ≈ 0.6, p-value&lt;0.01), representing ≈ 75–80 % of the correlation observed between human raters themselves (r = 0.77). Providing detailed descriptions and examples improved the models’ performance. The results also confirm that the models could distinguish high- from low-scoring encounters, with an independent-samples t-test showing a large and significant separation between the two groups (t &gt; 10, p &lt; 0.01).</div></div><div><h3>Conclusions</h3><div>Based on the breast cancer surgery dataset we explored, LLMs can evaluate aspects of clinician-patient dialog using existing measures, providing the basis for the development and fine-tuning of prompts. Future work should focus on generalizability, larger datasets, and improving model performance.</div></div><div><h3>Practice implications</h3><div>The prospect of being able to automate the assessment of shared decision-making opens the door to rapid feedback as a means for reflective practice improvement.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"142 ","pages":"Article 109362"},"PeriodicalIF":3.1,"publicationDate":"2025-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145159989","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Metaphorical literacy in healthcare communication: A critical skill for patient-provider interactions 医疗保健沟通中的隐喻素养:患者与提供者互动的关键技能。
IF 3.1 2区 医学
Patient Education and Counseling Pub Date : 2025-09-20 DOI: 10.1016/j.pec.2025.109359
Rio Saputra, Shirly Rizki Kusumaningrum, Andika Ari Saputra, Arizona Arizona, Triana Asih
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