Renata W. Yen , Aditya Singh , Diane Chen , Paul J. Barr , Daniel Kang , Glyn Elwyn
{"title":"Measuring the use of spoken plain language by clinicians in healthcare encounters: A scoping review","authors":"Renata W. Yen , Aditya Singh , Diane Chen , Paul J. Barr , Daniel Kang , Glyn Elwyn","doi":"10.1016/j.pec.2026.109531","DOIUrl":"10.1016/j.pec.2026.109531","url":null,"abstract":"<div><h3>Objective</h3><div>Poor communication in clinical encounters impacts both clinical and patient outcomes. We aimed to summarize the available data on the measurement and use of clinician-spoken plain language, as well as the associations between elements of plain language use and patient outcomes.</div></div><div><h3>Methods</h3><div>Using Arksey and O’Malley’s framework, we conducted a scoping review of the published literature through November 2024 including any analysis of clinician use of plain language in English-based clinical encounters. We assessed study quality using the Joanna Briggs Institute cross-sectional assessment tool. We summarized our findings qualitatively.</div></div><div><h3>Results</h3><div>From 4398 unique citations, we found 36 papers (utilizing 34 distinct datasets) meeting our criteria. Studies were published from 2007 to 2023 and included 1225 clinicians total (range: 2–214) across many clinical settings. Study quality was mixed, although most (28/36, 77.8 %) measured plain language outcomes using reliable methods. Use of medical terminology was measured in 21/36 (58.3 %) studies, where all used manual methods to count terms, and some supplemented (5/21, 23.8 %) with automation. Median medical terms per encounter was 19.5 (range: 2.4–72.3), but interpretation was limited since encounter length varied substantially. Language complexity was measured in 15/36 (41.7 %), primarily using methods designed for written text. The average transcript grade level was 6.3 (range: 2.7–9.8; sixth grade). Only 4/36 (11.1 %) reported findings back to clinicians.</div></div><div><h3>Conclusion</h3><div>This review offers insight into an emerging area of research in measuring clinician-spoken plain language. Significant heterogeneity exists in the elements that are measured, methods used, and findings. Future research should account for variation in encounter length. The use of automated analysis methods is growing, but limited, in this field.</div></div><div><h3>Practice implications</h3><div>Measuring clinician-spoken plain language is an emerging area with potential applications in medical and continuing education. Real-world implementation may be supported through standardization of measurement methods and delivering results back to clinicians.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"147 ","pages":"Article 109531"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146175109","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Health literacy-sensitive communication in diabetes care: A qualitative exploration of interpersonal and policy-level factors","authors":"Ayşegül Hülcen Dönmez, Ramazan Özgür Çatar","doi":"10.1016/j.pec.2026.109503","DOIUrl":"10.1016/j.pec.2026.109503","url":null,"abstract":"<div><h3>Objectives</h3><div>This study explores the factors influencing health literacy-sensitive communication in diabetes education by conducting in-depth interviews with patients who previously completed a validated health literacy-sensitive communication scale. The aim is to understand patient experiences and identify elements that support or hinder such communication in private hospital settings in Türkiye.</div></div><div><h3>Methods</h3><div>This qualitative study is the second phase of an explanatory sequential mixed-methods research design. Thirty-six patients diagnosed with diabetes were recruited from four private hospitals using purposive sampling. Participants had previously completed the HL-COM scale, adapted into Turkish. Semi-structured, in-depth interviews were conducted and analyzed using content analysis via MAXQDA software. Thematic coding focused on health literacy-sensitive communication experiences.</div></div><div><h3>Results</h3><div>Two main themes and thirteen sub-themes were identified. The first theme, Interpersonal Communication Strategies, includes: recognizing individual needs, providing detailed information, using plain language, supporting acceptance and adherence, avoiding assumptions, offering material support, and encouraging patient participation. The second theme, Policies and Practices, includes: provider expertise, access to services and information, coordination and collaboration, periodic follow-up, and strategies to raise awareness. Participants emphasized that communication adapted to their literacy levels and emotional needs improved understanding, trust, and engagement in self-management. However, challenges such as interrupted follow-up, limited access to specialists, and lack of coordinated communication were also frequently reported.</div></div><div><h3>Conclusions</h3><div>Health literacy-sensitive communication in diabetes care requires not only skilled interpersonal approaches but also institutional structures that support continuity, clarity, and accessibility. When these components align, they empower patients and promote better health outcomes.</div><div>Practice Implications: Healthcare professionals should adopt plain, personalized, and interactive communication strategies. Institutions and policymakers must address structural gaps, particularly in continuity and access to specialized care, to ensure sustainable patient education and support long-term disease management.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109503"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katharine Mackett , Michelle Greenway , Diana Sherifali , Russell J. de Souza , Chris Jarvis , Julia L. Pesek , Nancy A. Santesso
{"title":"Implementation of a peer mentorship program for type 1 diabetes in Canada: A qualitative analysis of peer mentor perspectives","authors":"Katharine Mackett , Michelle Greenway , Diana Sherifali , Russell J. de Souza , Chris Jarvis , Julia L. Pesek , Nancy A. Santesso","doi":"10.1016/j.pec.2026.109508","DOIUrl":"10.1016/j.pec.2026.109508","url":null,"abstract":"<div><h3>Objective</h3><div>To understand the implementation of a diabetes peer mentorship program from the perspective of peer mentors using an implementation framework and equity lens.</div></div><div><h3>Methods</h3><div>This study was developed in collaboration with individuals with lived type 1 diabetes experience. Virtual semi-structured interviews with mentors from the “Peer-2-Peer” (P2P) mentorship program (by <em>I Challenge Diabetes</em>) were guided by Proctor’s Conceptual Model for Implementation and PROGRESS+ . Transcripts were double-coded and categorized using inductive thematic analysis.</div></div><div><h3>Results</h3><div>Mentors reported high satisfaction with P2P, especially with its informal structure, relationships, and bidirectional benefits. The adaptable, needs-based mentoring approach addressed challenges and gaps in care such as disease acceptance, diabetes distress, managing glucose during exercise, and transitioning to adult care. Implementation strengths highlighted by mentors were equitable access through support for transportation, financial assistance, and family inclusion. The program’s flexibility allowed mentors of different ages and professions to participate. Additionally, mentors expressed a desire for crisis training and the appointment of a designated program mentor. To promote outreach, mentors encouraged the development of partnerships with clinicians.</div></div><div><h3>Conclusion</h3><div>Mentors identified key factors for the implementation of a peer mentorship program tailored to diabetes self-managed support. The informal and flexible mentoring approach helped address care gaps, create satisfaction, and promote sustainability. This was enhanced through equitable access. Opportunities to further tailor the program were identified, with enhanced mentor training and appointing a designated program mentor as the most crucial. Collaboration with diabetes care clinics for outreach was also recommended.</div></div><div><h3>Practice implications</h3><div>The findings from this study could be used to improve the implementation of other peer mentorship programs, such as ensuring flexibility for when and how peer mentors provide support, encouraging networking, providing some financial support for participants, providing additional resources for crisis training and outreach by diabetes care clinics.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109508"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maria-Annette Kooijman , Goudje L. van Leeuwen , Richte CL Schuurmann , Hanneke van der Wal-Huisman , Barbara C. van Munster , Suzanne Festen , Jean-Paul PM de Vries , Barbara L. van Leeuwen
{"title":"Optimizing multidisciplinary team meetings in vascular surgery: Insights and lessons from practice","authors":"Maria-Annette Kooijman , Goudje L. van Leeuwen , Richte CL Schuurmann , Hanneke van der Wal-Huisman , Barbara C. van Munster , Suzanne Festen , Jean-Paul PM de Vries , Barbara L. van Leeuwen","doi":"10.1016/j.pec.2026.109507","DOIUrl":"10.1016/j.pec.2026.109507","url":null,"abstract":"<div><h3>Objectives</h3><div>To describe the structure and content of vascular multidisciplinary team (MDT) meetings and to assess the implementation of MDT meeting (MDTM) recommendations in clinical practice, including the frequency and reasons for deviations.</div></div><div><h3>Methods</h3><div>This prospective observational cohort study evaluated MDT meetings at a tertiary vascular center. The MDT-Metric for the Observation of Decision-making (MDT-MODe) tool was adapted for vascular surgery, and used to score health care professional contributions and the quality of information of topics discussed during MDTMs. After 1 year, medical records were reviewed to assess adherence to MDTM recommendations.</div></div><div><h3>Results</h3><div>Twelve MDTMs were evaluated, of which 6 MDTMs including 112 patients were used in the final analysis. Discussion lasted a median of 3 min and 38 s per patient. Imaging was reviewed in 97.1 % of cases, and comorbidities, psychosocial factors, and patient perspectives were discussed in 29.4 %, 11 %, and 8 %, respectively. At the outpatient clinic, MDTM recommendations were adjusted in 20 % of cases, rising to 43 % when interventions were advised. Treatment deviations were often due to frailty, patient preference, or changes in the patient’s clinical condition.</div></div><div><h3>Conclusion</h3><div>This study found that vascular MDTMs focused primarily on procedural and diagnostic aspects, including imaging, whereas patient comorbidities, psychosocial factors, and preferences were discussed in the minority of cases. This approach may contribute to discrepancies between MDTM recommendations and their adherence. Further research is needed to confirm the impact of this strategy on decision-making and clinical outcomes.</div></div><div><h3>Practice implications</h3><div>The findings underscore the need to enhance vascular MDTMs by adopting a more holistic approach. Strategies such as including additional specialists, and allocating more time for complex cases, couldn better align MDTM recommendations with patient-specific needs. These improvements may enhance adherence to MDTM advice.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109507"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ángel Ramón Antequera-Antequera, Alba Navas-Otero, Alejandro Heredia-Ciuró, Javier Martín-Núñez, Marie Carmen Valenza, Andrés Calvache-Mateo, Irene Cabrera-Martos
{"title":"Effectiveness of educational intervention programs in ostomized patients with colorectal cancer: A systematic review with meta-analysis","authors":"Ángel Ramón Antequera-Antequera, Alba Navas-Otero, Alejandro Heredia-Ciuró, Javier Martín-Núñez, Marie Carmen Valenza, Andrés Calvache-Mateo, Irene Cabrera-Martos","doi":"10.1016/j.pec.2026.109505","DOIUrl":"10.1016/j.pec.2026.109505","url":null,"abstract":"<div><h3>Introduction</h3><div>Colorectal cancer, which often requires ostomy construction, is increasingly prevalent. This highlights the need for ostomy self-care educational programs. This review assesses the effectiveness of these programs in improving self-care values and examines their key components.</div></div><div><h3>Methods</h3><div>We conducted a systematic review following the PRISMA statement using MEDLINE, Scopus, and Web of Science (September 2025). The risk of bias was assessed using the Cochrane tool and Downs and Blacks checklists. We included randomized controlled trials that tested the effect of educational intervention programs on ostomized colorectal patients compared to no intervention, control, or placebo intervention. Data were pooled, and a meta-analysis was performed.</div></div><div><h3>Results</h3><div>We included 11 studies with 1011 patients. Meta-analysis results demonstrated significant differences favoring educational programs (SMD = 1,44; 95 % CI = 0,86;2,02; p < 0.001). The programs were highly heterogeneous in terms of timing, length, session duration, frequency, and number of sessions.</div></div><div><h3>Conclusion</h3><div>The results of this systematic review with meta-analysis suggest that educational intervention programs improve self-care values in ostomized colorectal patients. The intervention components are highly heterogeneous and challenging to standardize. Multimedia educational intervention programs achieved superior results compared to traditional educational programs.</div></div><div><h3>Practice implications</h3><div>Educational programs enhance self-care, with multimedia-based interventions proving more effective. Standardized, multidisciplinary programs with long-term follow-up are needed to sustain benefits and improve adherence.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109505"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Paula de-Juan-Iglesias , Stephanie Carretero , Clara García-Terol , Antje Horsch , Emma Motrico
{"title":"Co-design of an innovative mHealth intervention for preventing mental health disorders after perinatal loss: A qualitative study with parents and healthcare professionals (e-Perinatal study)","authors":"Paula de-Juan-Iglesias , Stephanie Carretero , Clara García-Terol , Antje Horsch , Emma Motrico","doi":"10.1016/j.pec.2026.109494","DOIUrl":"10.1016/j.pec.2026.109494","url":null,"abstract":"<div><h3>Objective</h3><div>To co-design an innovative mHealth intervention for preventing mental health disorders after perinatal loss, guided by the preferences of parents and multidisciplinary healthcare professionals.</div></div><div><h3>Methods</h3><div>Two focus groups were held with parents (n = 9, ≥6 months post-loss) and healthcare professionals (n = 12) within the [blinded for review] project. Using a Patient and Public Involvement approach, discussions took place in the context of the Spanish Public Health System. Data were analysed thematically using a deductive framework informed by predefined categories, while allowing for emerging themes. Reporting followed COREQ and GRIPP2 short-form guidelines.</div></div><div><h3>Results</h3><div>Participants reported a lack of accessible information and emphasized the need for clear communication, professional guidance, peer support, and freely available resources. They recommended tailored, sensitive, and visually engaging materials, particularly for early gestational losses. Valued features included care reminders and personalised user profiles. Professionals highlighted the importance of their active involvement to ensure relevance and integration into clinical practice.</div></div><div><h3>Conclusion</h3><div>This study demonstrates the value of incorporating parents and professional perspectives in designing an mHealth intervention for perinatal loss, highlighting key components such as communication, tailored content, and support, while calling for further research on effectiveness and scalability.</div></div><div><h3>Practice implications</h3><div>Providing open-access content on perinatal loss within pregnancy programs and integrating a co-designed mHealth intervention into care pathways may enhance preparedness, reduce stigma, and improve continuity of support for parents, particularly after early or post-discharge losses as miscarriages, stillbirths and neonatal death.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109494"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Expectation management and patient-surgeon communication in aesthetic surgery: A narrative review of current challenges and communication strategies","authors":"Or Friedman","doi":"10.1016/j.pec.2026.109511","DOIUrl":"10.1016/j.pec.2026.109511","url":null,"abstract":"<div><h3>Objective</h3><div>To examine patient-surgeon communication challenges in aesthetic surgery and identify effective strategies for expectation management and informed consent through narrative review of current literature.</div></div><div><h3>Methods</h3><div>A comprehensive narrative review was conducted using PubMed, PsycINFO, and communication databases (2010–2024). Search terms included \"aesthetic surgery,\" \"patient communication,\" \"expectations,\" \"informed consent,\" and \"social media.\" Literature was analyzed thematically to identify key communication challenges, digital media influences, and evidence-based intervention strategies.</div></div><div><h3>Results</h3><div>This review identifies three primary themes and proposes <strong>an</strong> integrated framework combining traditional communication barriers with digital-era influences: (1) Communication barriers arise from the subjective nature of aesthetic goals and patients' difficulty articulating desires in clinical terms; (2) Social media significantly influences patient expectations, with recent surveys indicating that a substantial majority of facial plastic surgeons encounter patients requesting procedures to improve social media appearance—representing a significant increase from earlier years; (3) Evidence-based visual communication tools and structured decision aids demonstrate effectiveness in aligning expectations and improving satisfaction. Studies consistently show that unmet expectations account for 14.4 % of malpractice claims in plastic surgery versus 3.8 % in other medical specialties.</div></div><div><h3>Conclusion</h3><div>This review presents a comprehensive integrated communication framework specifically designed for the digital era of aesthetic surgery practice. Effective patient-surgeon communication now requires specialized approaches that address both traditional expectation management and unprecedented social media influences on patient goals.</div></div><div><h3>Practice Implications</h3><div>Surgeons should implement structured communication protocols including visual outcome ranges, psychological expectation assessment, and explicit discussion of social media influences. Professional development programs must emphasize communication skills specific to aesthetic consultation, with particular attention to cultural competence and digital literacy.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109511"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146138128","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Family meetings in palliative care: A systematic review","authors":"Ting Guan , Shirley Otis-Green , Anjalee Sharma , Anita Kuiken , Belinda Mei Chan , Iris Cohen Fineberg , Lixin Song","doi":"10.1016/j.pec.2026.109499","DOIUrl":"10.1016/j.pec.2026.109499","url":null,"abstract":"<div><h3>Objectives</h3><div>Family meetings play a critical role in facilitating communication in palliative care, but more evidence is needed to support their broader adoption in clinical practice. This systematic review aimed to summarize family meetings’ key characteristics and their effects on patient and family member health outcomes in palliative care.</div></div><div><h3>Methods</h3><div>Six databases were searched for studies published between 2015 and 2024. Eligible studies involved adult patients (≥ 18 years) with serious illnesses and/or their family members; utilized family meetings as the sole intervention; and reported on qualitative and/or quantitative health outcomes.</div></div><div><h3>Results</h3><div>Of the 790 articles initially identified, 16 met the eligibility criteria. The studies were conducted primarily in the United States and Australia. Family meetings varied in delivery timeframe, processes, components, and facilitators. Preliminary quantitative and qualitative evidence suggests positive effects of family meetings on family members’ psychosocial outcomes. Although four studies reported the impact of family meetings on patients' health care utilization, few directly examined patients’ psychosocial outcomes.</div></div><div><h3>Conclusions</h3><div>Family meetings are conducted in diverse ways across health care settings. Future studies are needed to employ more robust study designs, collect comprehensive data on both short- and long-term outcomes, and evaluate impacts on health care utilization to comprehensively understand the benefits and effectiveness of family meetings in palliative care.</div></div><div><h3>Practice implications</h3><div>Standardizing family meeting processes and procedures is essential to ensuring quality. Palliative care providers would benefit from targeted education and training focused on the core intervention elements necessary to maximize the effectiveness of family meetings.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109499"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M. McGraw , Y. Couturier , I. Gaboury , M.-D. Poirier , M.-E. Poitras
{"title":"Patients’ engagement in interprofessional telehealth collaboration for chronic diseases management in primary care: A patient perspective","authors":"M. McGraw , Y. Couturier , I. Gaboury , M.-D. Poirier , M.-E. Poitras","doi":"10.1016/j.pec.2026.109496","DOIUrl":"10.1016/j.pec.2026.109496","url":null,"abstract":"<div><h3>Introduction</h3><div>The rise in chronic diseases has placed unprecedented pressure on the primary care system in Canada, being the leading cause of mortality and primary care demand. Acceleration on adopting telehealth due to the increased demand for managing chronic conditions has been observed. Further reinforcing primary healthcare’s role as the central point of contact for patients. Rapid implementation without infrastructure and patient-centered support, creating inconsistent care, making interprofessional collaboration essential to ensure coordinated telehealth. Central to this approach is meaningful patient engagement communication, decision-making, and personalized care, remains underexplored in interprofessional telehealth. This study addresses that gap by exploring how patients living with chronic diseases perceive their engagement in interprofessional collaboration within telehealth driven primary care.</div></div><div><h3>Methods</h3><div>This qualitative study partial findings from a larger research project. Using Trebble’s Journey Mapping approach, semi-structured interviews were conducted with patients who had experienced telehealth consultations. In addition to mapping their care journeys, a thematic analysis was conducted to capture patients’ perceptions, experiences, and insights related to their engagement in interprofessional collaboration.</div></div><div><h3>Results</h3><div>The sample included 22 participants, 63.6 % women and 36.4 % men, age 50–55. Results revealed that while patients desire active partnership in care with interprofessional teams in telehealth, which in this study was delivered exclusively by telephone, collaboration and decision-making remain limited. Key factors influencing engagement included access to relevant information, involvement in care planning, and improved communication among healthcare professionals.</div></div><div><h3>Conclusion</h3><div>This study reveals a misalignment between patients’ desire to engage in their care regarding the interprofessional team and the current practices of healthcare in telehealth. Despite policy commitments to patient engagement, meaningful collaboration remains limited. Addressing these challenges requires strategies in professional education, communication practices, and institutional leadership. Embedding patient engagement as a core component of care is essential to realizing the full potential of interprofessional collaboration in telehealth.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109496"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146049070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Enhancing patient education in multiple myeloma – The intersection of cognitive load and socio-emotional adaptation theory","authors":"Sean N. Halpin","doi":"10.1016/j.pec.2026.109509","DOIUrl":"10.1016/j.pec.2026.109509","url":null,"abstract":"<div><h3>Objective</h3><div>To examine how cognitive load and socio-emotional adaptation shape patient education experiences among older adults with multiple myeloma (MM) undergoing autologous stem cell transplantation (ASCT).</div></div><div><h3>Method</h3><div>Interpretative Phenomenological Analysis (IPA) was used to analyze 150 h of ethnographic observations of nurse-patient education sessions (N = 70), supplemented by retrospective and prospective participant interviews (N = 35) and clinician interviews (N = 7) conducted over 18 months. Socio-Emotional Adaptation (SEA) Theory and Cognitive Load Theory were used as sensitizing frameworks to guide coding, interpretation, and theoretical integration.</div></div><div><h3>Results</h3><div>Participants reported anxiety, information overload, and limited health literacy, which contributed to cognitive overload. Across ethnographic observations and clinician interviews, facilitators included tailored education, strong caregiver support, and clinician reinforcement of key concepts.</div></div><div><h3>Conclusion</h3><div>Cognitive and socio-emotional factors influence how people with MM engage with and process transplant education. Interventions designed to optimize information delivery while enhancing socio-emotional support can improve comprehension and confidence in managing treatment.</div></div><div><h3>Practice Implications</h3><div>Integrating cognitive load reduction strategies and socio-emotional adaptation principles into patient education can enhance patient-centered learning experiences and improve readiness for complex treatments.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109509"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120786","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}