Patient Education and Counseling最新文献

{"title":"Corrigendum to “Promoting interactional health equity through (Complementary and Integrative Health) talk during clinical encounters” [Patient Educ Couns 134 (2025) 108651]","authors":"Evelyn Y. Ho , Christopher J. Koenig","doi":"10.1016/j.pec.2025.108739","DOIUrl":"10.1016/j.pec.2025.108739","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108739"},"PeriodicalIF":2.9,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143609790","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Applications in human-centered design: Shared-Decision Making for mental health treatment in primary care","authors":"Katie Tirtanadi ,&nbsp;Kathryn A. Johnson ,&nbsp;Amee J. Epler ,&nbsp;Jessica A. Chen","doi":"10.1016/j.pec.2025.108745","DOIUrl":"10.1016/j.pec.2025.108745","url":null,"abstract":"<div><h3>Objective</h3><div>Shared Decision Making (SDM) is heralded as a standard for patient-centered care, but implementation of SDM in routine mental health practice has proven difficult to achieve. Human-centered design (HCD) may hold promise for improving SDM implementation in busy clinical settings. This study describes applying HCD to develop an SDM documentation support tool intended to encourage successful use of SDM by mental health clinicians.</div></div><div><h3>Methods</h3><div>This descriptive, proof-of-concept study utilized the Discover-Design-Build-Test HCD framework to simplify a comprehensive SDM protocol for mental health decision making. Implementation was piloted within multiple primary care clinics. The study consisted of three phases: information gathering (interviewing clinicians), solution generation and prototyping, and testing a final prototype in routine care settings.</div></div><div><h3>Results</h3><div>Our project proceeded through eight cycles of user design and feedback. Clinicians pilot tested the final product, a documentation note template incorporating SDM prompts and explanations. It is currently available for clinical use.</div></div><div><h3>Conclusions</h3><div>Clinicians were able to use the HCD-redesigned SDM documentation note template intuitively, i.e., without explicit instruction. Leveraging buy-in from users throughout the entirety of the process (from problem investigation to solution discussions) created opportunities to tailor implementation strategies and may support ownership of the end-product by primary stakeholders.</div></div><div><h3>Practice implications</h3><div>HCD may be a promising methodology for streamlining the adoption of complex clinical tasks like SDM.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108745"},"PeriodicalIF":2.9,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pictorial art for gaining informed consent in low-literacy settings","authors":"Swapnil.G. Ghotane ,&nbsp;Clarice. Holt ,&nbsp;Stephen.J. Challacombe ,&nbsp;Patric. Don-Davis ,&nbsp;David. Kamara ,&nbsp;Jennifer.E. Gallagher","doi":"10.1016/j.pec.2025.108749","DOIUrl":"10.1016/j.pec.2025.108749","url":null,"abstract":"<div><h3>Objective</h3><div>Gaining informed consent for research in low-literacy setting is challenging. This study explores the creation and use of pictorial art in information and consent form in Sierra Leone (SL).</div></div><div><h3>Methods</h3><div>A pictorial ‘information and consent’ (PIC) sheet was developed with an illustrator (co-author) and local colleagues for a national oral health survey involving school children in SL. Evaluation included 500 participants (children and parents) who received a feedback form to assess their satisfaction with pictures and also their effectiveness in aiding understanding of the research process, using a visual five-point Likert scale. Data were descriptively analysed using STATA v.18.</div></div><div><h3>Results</h3><div>Feedback was received from 360 children (aged 12 and 15 years) and 14 parents of 6-year-olds. The average rating, out of five, for the question about liking pictures on the PIC sheet was 4.83 (S.D. = 0.62), while rating for how well pictures helped them understand the survey was 4.87 (S.D. = 0.54). Although most feedback was positive, a small minority expressed negative views.</div></div><div><h3>Conclusion</h3><div>Overall, participants appreciated that the pictorial aids had helped in understanding the research process.</div></div><div><h3>Practical implications</h3><div>Pictorial aids show potential to improve comprehension and informed consent in low-literacy settings, indicating a promising approach for future research in similar contexts.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108749"},"PeriodicalIF":2.9,"publicationDate":"2025-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient-centred care in precision oncology: A systematic review","authors":"Ella Adi-Wauran ,&nbsp;Suvetha Krishnapillai ,&nbsp;Elizabeth Uleryk ,&nbsp;Saumeh Saeedi ,&nbsp;Yvonne Bombard","doi":"10.1016/j.pec.2025.108753","DOIUrl":"10.1016/j.pec.2025.108753","url":null,"abstract":"<div><h3>Objectives</h3><div>Patient-centred care (PCC) improves outcomes in various clinical contexts. There is, therefore, a need to explore PCC in precision oncology – a rapidly advancing, innovative approach to cancer treatment/management that is increasingly integrated into patient care. This systematic review aims to synthesize evidence on PCC in precision oncology by addressing (1) How can precision oncology be delivered in a patient-centred manner? (2) How does patient-centred precision oncology impact outcomes?</div></div><div><h3>Methods</h3><div>Studies were eligible for inclusion if their population was cancer patients, used a patient-centred approach in delivering precision oncology, and reported patient/provider experiences. There were no restrictions to the study design and publication year. A systematic search of MEDLINE, Embase, and CINAHL databases was conducted from their dates of inception to June 21, 2021. Narrative synthesis was used.</div></div><div><h3>Results</h3><div>The seventeen included studies were mostly qualitative (13/17), reflect breast cancer patients/providers experiences (9/17), and conducted during cancer treatment (16/17). Studies identified six processes for delivering patient-centred precision oncology and suggest that patient-centred precision oncology impacts patients’ psychological outcomes and delivery of targeted therapy.</div></div><div><h3>Conclusions</h3><div>Findings highlighted respect for patients’ preferences and supporting decision-making processes related to using precision oncology. More evidence of PCC in precision oncology is needed across the continuum of cancer care.</div></div><div><h3>Practice implications</h3><div>PCC processes identified can be targeted in the development, implementation, and evaluation of programs delivering precision oncology.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108753"},"PeriodicalIF":2.9,"publicationDate":"2025-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684717","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Fundamentally flawed or functional and feasible? The use of readability metrics in healthcare","authors":"Olivia Mac,&nbsp;Danielle M. Muscat,&nbsp;Julie Ayre,&nbsp;Kirsten McCaffery","doi":"10.1016/j.pec.2025.108741","DOIUrl":"10.1016/j.pec.2025.108741","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108741"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143609779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"DNA-poli: Design and development of a digital platform for family communication support and predictive genetic counseling on inherited diseases","authors":"Tessa C. Beinema ,&nbsp;Marlies N. van Lingen ,&nbsp;Lieke M. van den Heuvel ,&nbsp;Marten A. Siemelink ,&nbsp;Jan Kolkmeier ,&nbsp;Randy Klaassen ,&nbsp;Corrette Ploem ,&nbsp;Martina C. Cornel ,&nbsp;Noor A.A. Giesbertz ,&nbsp;Dianne van Essen ,&nbsp;Dirk K.J. Heylen ,&nbsp;J. Peter van Tintelen","doi":"10.1016/j.pec.2025.108746","DOIUrl":"10.1016/j.pec.2025.108746","url":null,"abstract":"<div><h3>Objectives</h3><div>By developing a digital platform (“DNA-poli”) we aim to improve the uptake and efficiency of predictive genetic counseling and cascade testing for relatives at-risk of inherited conditions. This is crucial for reducing disease morbidity and mortality while meeting the growing demand for genetic counseling. We outline the design, development, and final concept and prototype of DNA-poli and discuss the challenges faced and how these were addressed.</div></div><div><h3>Methods</h3><div>We followed an approach based on the Design Thinking and Human-Centered Design methods, which entails four stages: 1) Discover/Define, 2) Design, 3) Develop, and 4) Deliver. Stakeholders were actively involved through interviews, focus groups, and sounding board consultations. Two inherited cardiac conditions (hypertrophic cardiomyopathy and dilated cardiomyopathy) served as the first use case.</div></div><div><h3>Results</h3><div>The DNA-poli prototype is a digital outpatient clinic for predictive counseling on inherited conditions and cascade testing. It facilitates both pre-test and post-test genetic counseling, including information provision on specific conditions and tests, decision support, collecting medical information from a counselee, and return of results. ARRs can process relevant information online at their convenience and can request genetic tests locally after a short teleconsultation with a healthcare professional. A conversational agent is incorporated to answer questions and collect patient characteristics.</div></div><div><h3>Conclusions</h3><div>DNA-poli is the first digital cardiogenetics platform to encompass the full genetic care pathway for family communication and predictive genetic counseling. Development challenges related to logistical implementation, ethical and legal considerations, and ensuring quality of care standards.</div></div><div><h3>Practice implications</h3><div>DNA-poli allows timely, efficient, and flexible access to predictive counseling, supporting probands with informing their ARRs. ARRs have access to personalized information and modules to support decision-making at their convenience.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108746"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143654757","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementation of a patient decision aid for discharge planning of hospitalized patients with stroke: aprocess evaluation using a mixed-methods approach","authors":"J.C.M. Prick ,&nbsp;E.G. Engelhardt ,&nbsp;F.K. Lansink Rotgerink ,&nbsp;I.A. Deijle ,&nbsp;S.M. van Schaik ,&nbsp;M.M. Garvelink ,&nbsp;R. Dahmen ,&nbsp;P.J.A.M. Brouwers ,&nbsp;I.W.M. van Uden ,&nbsp;P.J. van der Wees ,&nbsp;R.M. Van den Berg-Vos ,&nbsp;C.F. van Uden-Kraan ,&nbsp;On behalf of the Santeon VBHC STROKE group","doi":"10.1016/j.pec.2025.108716","DOIUrl":"10.1016/j.pec.2025.108716","url":null,"abstract":"<div><h3>Objectives</h3><div>To promote shared decision-making (SDM) during discharge planning of patients with stroke, a patient decision aid (PtDA) was implemented in seven Dutch hospitals. This mixed-methods process evaluation assessed: 1) PtDA use, 2) the SDM process, 3) facilitators and barriers influencing health care professional (HCP) adoption of the PtDA, and 4) HCP experiences with the PtDA.</div></div><div><h3>Methods</h3><div>Rates of PtDA use were derived from hospital registries and PtDA log data. SDM levels in consultations were quantitatively assessed using OPTION-5 (score range 0–100); the SDM process was analyzed qualitatively. Facilitators and barriers were identified via the MIDI questionnaire. HCP experiences were explored through interviews.</div></div><div><h3>Results</h3><div>PtDA use varied across hospitals, with 10–96 % of patients receiving it and 27–100 % of those ultimately using it. OPTION-5 scores were low in both pre-implementation (<em>n</em> = 68, median:0, Q1-Q3:0–0) and post-implementation consultations (<em>n</em> = 49, median:0, Q1-Q3:0–15). Barriers included lack of whole-team engagement and limited recognition of PtDA benefits. Frequent PtDA use was associated with HCP confidence and self-efficacy in SDM.</div></div><div><h3>Conclusions</h3><div>Successful PtDA implementation in stroke care requires whole-team engagement, emphasis on PtDA benefits, and enhancing HCP confidence and self-efficacy in SDM.</div></div><div><h3>Practice implications</h3><div>Highlighting positive SDM outcomes and patient benefits may encourage HCPs to adopt the PtDA.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108716"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143715451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Translation and psychometric evaluation of the Spanish version of the Heart Failure-Specific Health Literacy","authors":"Rosalia Santesmases-Masana ,&nbsp;Elvira Hernández-Martínez-Esparza ,&nbsp;Beatriz Campillo-Zaragoza ,&nbsp;Carolina Lapena-Estella ,&nbsp;Elena Mañes López ,&nbsp;Caterina Checa ,&nbsp;Elisenda Garcia Puig ,&nbsp;Luis Gonzalez-De Paz","doi":"10.1016/j.pec.2025.108732","DOIUrl":"10.1016/j.pec.2025.108732","url":null,"abstract":"<div><h3>Aim</h3><div>To translate and adapt the Heart Failure-Specific Health Literacy Scale (HFS-HLS) for Castilian Spanish (i.e., the Spanish spoken in Spain) and to evaluate its psychometric properties in patients with heart failure visited in primary care centres.</div></div><div><h3>Methods</h3><div>Forward and back translations were used to translate and adapt the HFS-HLS, and a panel of experts assessed the validity of the adaptation until consensus was achieved. Face validity was explored through cognitive debriefing with 20 patients. Psychometric properties were examined for test-retest reliability (intraclass correlation index) and internal consistency (Cronbach’s α), concurrent and discriminant validity (Pearson correlation coefficient) using the HLS-EU-Q16 and EHFScBS health literacy scales, and construct validity using confirmatory factor analysis and fit indices. Differences in mean results for the adapted instrument and between subgroups were examined with ANOVA tests.</div></div><div><h3>Results</h3><div>The linguistically and culturally adapted Castilian Spanish HFS-HLS (Cast-Span HFS-HLS) was administered to 195 participants. Overall fit parameters for three dimensions of confirmatory factor analysis were adequate. Test-retest reliability showed an intraclass correlation coefficient of 0.89 (95 % CI: 0.80–0.94) for the total HL scale and 0.87, 0.86, and 0.89 for the functional, communicative, and critical subcales, respectively. The internal consistency for the total HL was good (Cronbach <strong>α</strong> = 0.80), and for the three sub-scales were <strong>α</strong> = 0.88 (Functional), <strong>α</strong> = 0.55 (communicative), and <strong>α</strong> = 0.79 (critical). Results of the new adapted instrument were associated with both the HLS-EU-Q16 (r = 0.37, 95 % CI: 0.24–0.49; p &lt; 0.001) and the EHFScBS (r = -0.14; 95 % CI: −0.28 to −0.004). The Cast-Span HFS-HLS showed that overall HL scores were significantly lower in older, female, and individuals with lower educational attainment (p &lt; 0.001).</div></div><div><h3>Conclusions</h3><div>The Cast-Span HFS-HLS is valid and reliable instrument that can usefully test health literacy in community-dwelling patients with heart failure.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108732"},"PeriodicalIF":2.9,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143609789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Advancing medical communication education internationally: tEACH collaborative initiatives","authors":"Jane Ege Møller ,&nbsp;Wiebke Frerichs ,&nbsp;Zoi Tsimtsiou ,&nbsp;John Schlömer ,&nbsp;Marlene Sator ,&nbsp;Marcy Rosenbaum ,&nbsp;Eva Doherty","doi":"10.1016/j.pec.2025.108742","DOIUrl":"10.1016/j.pec.2025.108742","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"134 ","pages":"Article 108742"},"PeriodicalIF":2.9,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143628705","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Advancing virtual reality in :preoperative education: Potential and perspectives","authors":"Iwan Pranoto,&nbsp;Hanggar Budi Prasetya","doi":"10.1016/j.pec.2025.108725","DOIUrl":"10.1016/j.pec.2025.108725","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108725"},"PeriodicalIF":2.9,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143674852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}