Patient Education and Counseling最新文献

{"title":"Effectiveness of educational intervention programs in ostomized patients with colorectal cancer: A systematic review with meta-analysis","authors":"Ángel Ramón Antequera-Antequera,&nbsp;Alba Navas-Otero,&nbsp;Alejandro Heredia-Ciuró,&nbsp;Javier Martín-Núñez,&nbsp;Marie Carmen Valenza,&nbsp;Andrés Calvache-Mateo,&nbsp;Irene Cabrera-Martos","doi":"10.1016/j.pec.2026.109505","DOIUrl":"10.1016/j.pec.2026.109505","url":null,"abstract":"<div><h3>Introduction</h3><div>Colorectal cancer, which often requires ostomy construction, is increasingly prevalent. This highlights the need for ostomy self-care educational programs. This review assesses the effectiveness of these programs in improving self-care values and examines their key components.</div></div><div><h3>Methods</h3><div>We conducted a systematic review following the PRISMA statement using MEDLINE, Scopus, and Web of Science (September 2025). The risk of bias was assessed using the Cochrane tool and Downs and Blacks checklists. We included randomized controlled trials that tested the effect of educational intervention programs on ostomized colorectal patients compared to no intervention, control, or placebo intervention. Data were pooled, and a meta-analysis was performed.</div></div><div><h3>Results</h3><div>We included 11 studies with 1011 patients. Meta-analysis results demonstrated significant differences favoring educational programs (SMD = 1,44; 95 % CI = 0,86;2,02; p &lt; 0.001). The programs were highly heterogeneous in terms of timing, length, session duration, frequency, and number of sessions.</div></div><div><h3>Conclusion</h3><div>The results of this systematic review with meta-analysis suggest that educational intervention programs improve self-care values in ostomized colorectal patients. The intervention components are highly heterogeneous and challenging to standardize. Multimedia educational intervention programs achieved superior results compared to traditional educational programs.</div></div><div><h3>Practice implications</h3><div>Educational programs enhance self-care, with multimedia-based interventions proving more effective. Standardized, multidisciplinary programs with long-term follow-up are needed to sustain benefits and improve adherence.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109505"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-design of an innovative mHealth intervention for preventing mental health disorders after perinatal loss: A qualitative study with parents and healthcare professionals (e-Perinatal study)","authors":"Paula de-Juan-Iglesias ,&nbsp;Stephanie Carretero ,&nbsp;Clara García-Terol ,&nbsp;Antje Horsch ,&nbsp;Emma Motrico","doi":"10.1016/j.pec.2026.109494","DOIUrl":"10.1016/j.pec.2026.109494","url":null,"abstract":"<div><h3>Objective</h3><div>To co-design an innovative mHealth intervention for preventing mental health disorders after perinatal loss, guided by the preferences of parents and multidisciplinary healthcare professionals.</div></div><div><h3>Methods</h3><div>Two focus groups were held with parents (n = 9, ≥6 months post-loss) and healthcare professionals (n = 12) within the [blinded for review] project. Using a Patient and Public Involvement approach, discussions took place in the context of the Spanish Public Health System. Data were analysed thematically using a deductive framework informed by predefined categories, while allowing for emerging themes. Reporting followed COREQ and GRIPP2 short-form guidelines.</div></div><div><h3>Results</h3><div>Participants reported a lack of accessible information and emphasized the need for clear communication, professional guidance, peer support, and freely available resources. They recommended tailored, sensitive, and visually engaging materials, particularly for early gestational losses. Valued features included care reminders and personalised user profiles. Professionals highlighted the importance of their active involvement to ensure relevance and integration into clinical practice.</div></div><div><h3>Conclusion</h3><div>This study demonstrates the value of incorporating parents and professional perspectives in designing an mHealth intervention for perinatal loss, highlighting key components such as communication, tailored content, and support, while calling for further research on effectiveness and scalability.</div></div><div><h3>Practice implications</h3><div>Providing open-access content on perinatal loss within pregnancy programs and integrating a co-designed mHealth intervention into care pathways may enhance preparedness, reduce stigma, and improve continuity of support for parents, particularly after early or post-discharge losses as miscarriages, stillbirths and neonatal death.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109494"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Expectation management and patient-surgeon communication in aesthetic surgery: A narrative review of current challenges and communication strategies","authors":"Or Friedman","doi":"10.1016/j.pec.2026.109511","DOIUrl":"10.1016/j.pec.2026.109511","url":null,"abstract":"<div><h3>Objective</h3><div>To examine patient-surgeon communication challenges in aesthetic surgery and identify effective strategies for expectation management and informed consent through narrative review of current literature.</div></div><div><h3>Methods</h3><div>A comprehensive narrative review was conducted using PubMed, PsycINFO, and communication databases (2010–2024). Search terms included \"aesthetic surgery,\" \"patient communication,\" \"expectations,\" \"informed consent,\" and \"social media.\" Literature was analyzed thematically to identify key communication challenges, digital media influences, and evidence-based intervention strategies.</div></div><div><h3>Results</h3><div>This review identifies three primary themes and proposes <strong>an</strong> integrated framework combining traditional communication barriers with digital-era influences: (1) Communication barriers arise from the subjective nature of aesthetic goals and patients' difficulty articulating desires in clinical terms; (2) Social media significantly influences patient expectations, with recent surveys indicating that a substantial majority of facial plastic surgeons encounter patients requesting procedures to improve social media appearance—representing a significant increase from earlier years; (3) Evidence-based visual communication tools and structured decision aids demonstrate effectiveness in aligning expectations and improving satisfaction. Studies consistently show that unmet expectations account for 14.4 % of malpractice claims in plastic surgery versus 3.8 % in other medical specialties.</div></div><div><h3>Conclusion</h3><div>This review presents a comprehensive integrated communication framework specifically designed for the digital era of aesthetic surgery practice. Effective patient-surgeon communication now requires specialized approaches that address both traditional expectation management and unprecedented social media influences on patient goals.</div></div><div><h3>Practice Implications</h3><div>Surgeons should implement structured communication protocols including visual outcome ranges, psychological expectation assessment, and explicit discussion of social media influences. Professional development programs must emphasize communication skills specific to aesthetic consultation, with particular attention to cultural competence and digital literacy.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109511"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146138128","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family meetings in palliative care: A systematic review","authors":"Ting Guan ,&nbsp;Shirley Otis-Green ,&nbsp;Anjalee Sharma ,&nbsp;Anita Kuiken ,&nbsp;Belinda Mei Chan ,&nbsp;Iris Cohen Fineberg ,&nbsp;Lixin Song","doi":"10.1016/j.pec.2026.109499","DOIUrl":"10.1016/j.pec.2026.109499","url":null,"abstract":"<div><h3>Objectives</h3><div>Family meetings play a critical role in facilitating communication in palliative care, but more evidence is needed to support their broader adoption in clinical practice. This systematic review aimed to summarize family meetings’ key characteristics and their effects on patient and family member health outcomes in palliative care.</div></div><div><h3>Methods</h3><div>Six databases were searched for studies published between 2015 and 2024. Eligible studies involved adult patients (≥ 18 years) with serious illnesses and/or their family members; utilized family meetings as the sole intervention; and reported on qualitative and/or quantitative health outcomes.</div></div><div><h3>Results</h3><div>Of the 790 articles initially identified, 16 met the eligibility criteria. The studies were conducted primarily in the United States and Australia. Family meetings varied in delivery timeframe, processes, components, and facilitators. Preliminary quantitative and qualitative evidence suggests positive effects of family meetings on family members’ psychosocial outcomes. Although four studies reported the impact of family meetings on patients' health care utilization, few directly examined patients’ psychosocial outcomes.</div></div><div><h3>Conclusions</h3><div>Family meetings are conducted in diverse ways across health care settings. Future studies are needed to employ more robust study designs, collect comprehensive data on both short- and long-term outcomes, and evaluate impacts on health care utilization to comprehensively understand the benefits and effectiveness of family meetings in palliative care.</div></div><div><h3>Practice implications</h3><div>Standardizing family meeting processes and procedures is essential to ensuring quality. Palliative care providers would benefit from targeted education and training focused on the core intervention elements necessary to maximize the effectiveness of family meetings.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109499"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patients’ engagement in interprofessional telehealth collaboration for chronic diseases management in primary care: A patient perspective","authors":"M. McGraw ,&nbsp;Y. Couturier ,&nbsp;I. Gaboury ,&nbsp;M.-D. Poirier ,&nbsp;M.-E. Poitras","doi":"10.1016/j.pec.2026.109496","DOIUrl":"10.1016/j.pec.2026.109496","url":null,"abstract":"<div><h3>Introduction</h3><div>The rise in chronic diseases has placed unprecedented pressure on the primary care system in Canada, being the leading cause of mortality and primary care demand. Acceleration on adopting telehealth due to the increased demand for managing chronic conditions has been observed. Further reinforcing primary healthcare’s role as the central point of contact for patients. Rapid implementation without infrastructure and patient-centered support, creating inconsistent care, making interprofessional collaboration essential to ensure coordinated telehealth. Central to this approach is meaningful patient engagement communication, decision-making, and personalized care, remains underexplored in interprofessional telehealth. This study addresses that gap by exploring how patients living with chronic diseases perceive their engagement in interprofessional collaboration within telehealth driven primary care.</div></div><div><h3>Methods</h3><div>This qualitative study partial findings from a larger research project. Using Trebble’s Journey Mapping approach, semi-structured interviews were conducted with patients who had experienced telehealth consultations. In addition to mapping their care journeys, a thematic analysis was conducted to capture patients’ perceptions, experiences, and insights related to their engagement in interprofessional collaboration.</div></div><div><h3>Results</h3><div>The sample included 22 participants, 63.6 % women and 36.4 % men, age 50–55. Results revealed that while patients desire active partnership in care with interprofessional teams in telehealth, which in this study was delivered exclusively by telephone, collaboration and decision-making remain limited. Key factors influencing engagement included access to relevant information, involvement in care planning, and improved communication among healthcare professionals.</div></div><div><h3>Conclusion</h3><div>This study reveals a misalignment between patients’ desire to engage in their care regarding the interprofessional team and the current practices of healthcare in telehealth. Despite policy commitments to patient engagement, meaningful collaboration remains limited. Addressing these challenges requires strategies in professional education, communication practices, and institutional leadership. Embedding patient engagement as a core component of care is essential to realizing the full potential of interprofessional collaboration in telehealth.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109496"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146049070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Enhancing patient education in multiple myeloma – The intersection of cognitive load and socio-emotional adaptation theory","authors":"Sean N. Halpin","doi":"10.1016/j.pec.2026.109509","DOIUrl":"10.1016/j.pec.2026.109509","url":null,"abstract":"<div><h3>Objective</h3><div>To examine how cognitive load and socio-emotional adaptation shape patient education experiences among older adults with multiple myeloma (MM) undergoing autologous stem cell transplantation (ASCT).</div></div><div><h3>Method</h3><div>Interpretative Phenomenological Analysis (IPA) was used to analyze 150 h of ethnographic observations of nurse-patient education sessions (N = 70), supplemented by retrospective and prospective participant interviews (N = 35) and clinician interviews (N = 7) conducted over 18 months. Socio-Emotional Adaptation (SEA) Theory and Cognitive Load Theory were used as sensitizing frameworks to guide coding, interpretation, and theoretical integration.</div></div><div><h3>Results</h3><div>Participants reported anxiety, information overload, and limited health literacy, which contributed to cognitive overload. Across ethnographic observations and clinician interviews, facilitators included tailored education, strong caregiver support, and clinician reinforcement of key concepts.</div></div><div><h3>Conclusion</h3><div>Cognitive and socio-emotional factors influence how people with MM engage with and process transplant education. Interventions designed to optimize information delivery while enhancing socio-emotional support can improve comprehension and confidence in managing treatment.</div></div><div><h3>Practice Implications</h3><div>Integrating cognitive load reduction strategies and socio-emotional adaptation principles into patient education can enhance patient-centered learning experiences and improve readiness for complex treatments.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109509"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120786","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Challenges in accessing cancer care among ethnic cancer patients: A systematic review","authors":"Stella Lee ,&nbsp;Melissa Robinson-Reilly ,&nbsp;Cannas Kwok","doi":"10.1016/j.pec.2026.109487","DOIUrl":"10.1016/j.pec.2026.109487","url":null,"abstract":"<div><h3>Objectives</h3><div>Ethnic cancer patients (ECPs) in Western countries have been consistently reported as an underserved group in cancer care, with evidence showing lower quality of life compared with native-born populations. This review examined the challenges encountered by ECPs across the cancer trajectory and how these challenges influenced their care experiences.</div></div><div><h3>Methods</h3><div>A systematic review using a convergent approach was conducted following PRISMA guidelines. Primary studies were identified through comprehensive searches of MEDLINE, Scopus, and CINAHL databases.</div></div><div><h3>Results</h3><div>Thirteen studies from seven Western countries, involving patients from multiple ethnic groups, were included. Reported challenges clustered into four main areas: ineffective communication, insufficient informational support, cultural barriers and institutional barriers. The findings indicated that these challenges had a significant negative impact on ECPs’ experiences with cancer care throughout the journey.</div></div><div><h3>Conclusions</h3><div>The challenges identified in the review appear consistent across different cultural groups and healthcare systems, suggesting that this reflects broader structural issues rather than isolated cases. Although the importance of inclusiveness and equity in healthcare, including cancer care, has been well recognised in many Western countries, reducing disparities in immigrant populations in cancer care remains an ongoing priority that demands sustained commitment, continuous evaluation, and targeted strategies.</div></div><div><h3>Practice implications</h3><div>Further development and wider implementation of culturally responsive strategies are required. These include integrating cultural navigators, expanding interpreter services, and developing culturally specific support programs. Future work should evaluate the effectiveness of culturally adapted interventions and explore innovative approaches to improve communication, access, and patient–provider relationships for ECPs.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109487"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146049069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Anatomy against the algorithm","authors":"Henry Bair","doi":"10.1016/j.pec.2026.109523","DOIUrl":"10.1016/j.pec.2026.109523","url":null,"abstract":"<div><div>Social media beauty filters increasingly shape how patients view themselves and what they request in clinical encounters. In the oculoplastics clinic, a patient asked the author, an ophthalmology resident, whether it would be possible to look like the filtered version of herself she saw on TikTok. Caliper measurements showed that while some requests — such as modest brow elevation, subtle lid adjustments, or slight canthal support — were surgically feasible, others, including narrowed interpupillary distance, shortened philtrum, or enlarged irises, reflected digital distortions that cannot be reproduced in human anatomy. The patient’s question — “How do I get to me?” — highlighted the central dilemma: when the filtered image becomes the reference point, the unaltered self can feel counterfeit. A categorical refusal risks leaving patients alone with these unrealistic standards, while uncritical agreement risks reinforcing illusion. The more constructive approach involves reframing the discussion from the filter’s output to the underlying goals: appearing more awake, less tired, or more confident. This reflection underscores the importance of communication in settings where patient expectations are shaped by digital media. By combining honesty about anatomical limits with empathy for the emotions behind requests, clinicians can help safeguard identity, set realistic expectations, and maintain trust in an era where technology increasingly distorts self-perception.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109523"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146127105","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementing the Ottawa Decision Support Framework in Japan: Evaluation of a Decision Coaching Workshop for Nurses","authors":"Satoko Ono ,&nbsp;Misae Ito ,&nbsp;Keiko Matsumoto ,&nbsp;Kyoko Murakami ,&nbsp;Mika Moriyama","doi":"10.1016/j.pec.2026.109497","DOIUrl":"10.1016/j.pec.2026.109497","url":null,"abstract":"<div><h3>Objective</h3><div>This study evaluated the cultural feasibility and impact of a decision coaching workshop for nurses in Japan, using the Ottawa Decision Support Framework (ODSF).</div></div><div><h3>Methods</h3><div>A pre–post study was conducted to evaluate a four-hour workshop based on the ODSF, integrating lectures, instructional videos, and role-play. Outcomes assessed include participants' perceptions of SDM-related concepts, decision-making skills, and confidence. Confidence was measured using a self-report Likert scale. Quantitative data were analyzed using paired t-tests, and qualitative feedback was thematically summarized.</div></div><div><h3>Results</h3><div>A total of 54 nurses participated in the workshop. Before the workshop, only 57.4% reported understanding SDM concepts, and many described challenges such as conflicting patient–family preferences and limited patient decision-making capacity. After the workshop, the understanding of ODSF increased by 87.0% , the ability to use decision-support tools by 72.2% , and self-assessment of SDM skills by 50.0% . Confidence in SDM involvement improved from 2.25 to 3.37 and confidence in self-assessment of SDM skills from 2.04 to 3.04 (both p &lt; .001). Participants valued role-play and video demonstrations as particularly effective in enhancing cultural relevance, especially in family-centered decision-making contexts.</div></div><div><h3>Conclusion</h3><div>The workshop significantly improved SDM confidence among nurses. This decision coaching training is culturally feasible and may support patient- and family-centered care in Japanese healthcare settings.</div></div><div><h3>Practice implications</h3><div>Decision coaching adapted to family-centered decision-making may strengthen SDM training in collectivist cultures and contribute to more patient- and family-centered care internationally.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109497"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146133460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Tell you what I’m gonna do for you: Navigating personal literacies and motivation in rare disease research","authors":"Kara A. Ayik","doi":"10.1016/j.pec.2026.109500","DOIUrl":"10.1016/j.pec.2026.109500","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109500"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146133398","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}