Patient Education and Counseling最新文献

{"title":"Tell you what I’m gonna do for you: Navigating personal literacies and motivation in rare disease research","authors":"Kara A. Ayik","doi":"10.1016/j.pec.2026.109500","DOIUrl":"10.1016/j.pec.2026.109500","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109500"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146133398","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Information needs of adult childhood, adolescent, and young adult cancer survivors (CAYACS): A systematic review","authors":"Anne Maas ,&nbsp;Elena Bertolini ,&nbsp;Kathleen Ostheim ,&nbsp;Hanne C. Lie ,&nbsp;Charlotte Demoor-Goldschmidt ,&nbsp;Miklós Garami ,&nbsp;Gisela Michel ,&nbsp;Anica Ilic","doi":"10.1016/j.pec.2026.109506","DOIUrl":"10.1016/j.pec.2026.109506","url":null,"abstract":"<div><h3>Objective</h3><div>Childhood, adolescent, and young adult cancer survivors (CAYACS) often report cancer-related knowledge gaps. Addressing their information needs is associated with better quality of life. We aimed to explore and synthesize evidence on CAYACS’ cancer-related information needs and identify associated characteristics.</div></div><div><h3>Methods</h3><div>Peer-reviewed articles on information needs in adult CAYACS ≥ 5 years post-diagnosis were systematically searched in PubMed, PsycINFO, and Scopus. The quality of included publications was assessed using the Mixed Methods Appraisal Tool, and results were narratively synthesized.</div></div><div><h3>Results</h3><div>Twenty-one studies (n = 10 quantitative, n = 8 qualitative, n = 3 mixed-methods) with a total of 5624 participants (range: 14–1386 per study) were included. Between 51 % and 77 % of CAYACS had at least one information need. Needs were reported across 11 domains, including cancer-related health information (2 %-86 %), follow-up care and prevention (2 %-91 %), healthcare system interactions (9 %-36 %), living a healthy lifestyle (4 %-60 %), psychosocial well-being and support (12 %-40 %), sexual health (&lt;1 %-32 %), finances (2 %-50 %), relationships (2 %-20 %), education and employment (&lt;1 %-18 %), insurances (28 %-47 %), and peer support (7 %-35 %). The highest prevalences were observed in follow-up discussions on current health (92 %) and late effects (19 %-86 %). Female sex, older age at study, lower educational attainment, poorer mental and physical health, longer time since diagnosis/treatment, central nervous system tumor diagnosis, and lack of written information were associated with more information needs.</div></div><div><h3>Conclusions and practice implications</h3><div>Adult CAYACS report significant information needs years after treatment, particularly regarding cancer-related health information, follow-up care and prevention, and lifestyle. Addressing these needs with age-appropriate, individualized information may improve their quality of life. Electronic and mobile health tools are promising methods to provide such support.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109506"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146144645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Corrigendum to “Co-designing peer-to-peer support in oncology: A participatory study on the development of the PaRole OncO France model” [Patient Educ. Couns. 143 (2026) 109415]","authors":"Yaël Busnel ,&nbsp;Ibtissem Ben Dridi ,&nbsp;Mathilde Lochmann ,&nbsp;Laurie Panse ,&nbsp;Stéphane Cognon ,&nbsp;Claude Ganter ,&nbsp;Sarah Prudhomme ,&nbsp;Anne Termoz ,&nbsp;Pascale Sontag ,&nbsp;Pauline Maisani ,&nbsp;Aurélien Troisoeufs ,&nbsp;Emmanuelle Jouet ,&nbsp;Véronique Christophe ,&nbsp;Marie Preau ,&nbsp;Marie-Pascale Pomey ,&nbsp;Julie Haesebaert","doi":"10.1016/j.pec.2026.109510","DOIUrl":"10.1016/j.pec.2026.109510","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109510"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Association between self-management and adverse outcomes in patients with lower extremity arterial disease who underwent endovascular revascularization","authors":"Meihong Shi ,&nbsp;Yang Liu ,&nbsp;Qin Chen ,&nbsp;Xiaoyu Liu ,&nbsp;Xi Yang ,&nbsp;Chi Cui ,&nbsp;Xinjun Liu ,&nbsp;Xiuying Hu ,&nbsp;Jia Zhou","doi":"10.1016/j.pec.2026.109502","DOIUrl":"10.1016/j.pec.2026.109502","url":null,"abstract":"<div><h3>Objective</h3><div>Lower extremity arterial disease (LEAD) is a significant health concern, often leading to adverse outcomes. This study aimed to investigate the association between self-management ability and adverse outcomes in patients with LEAD who underwent endovascular revascularization (EVR).</div></div><div><h3>Methods</h3><div>A prospective longitudinal observational study was conducted across three hospitals. Patients were recruited from February 2021 to November 2023 and were followed-up for 1 year. A self-Management questionnaire for lower extremity arterial disease patients who underwent endovascular revascularization (LESQ) was used to assess patients’ self-management abilities. The adverse outcomes were death, restenosis, and major adverse limb events (MALE).</div></div><div><h3>Results</h3><div>This study included 665 participants, with a mean age of 75.4 ± 9.5 years. The average postoperative follow-up duration was 12.9 ± 5.3 months. 31.7 %, 47.1 %, and 21.2 % exhibited low, moderate, and high self-management capabilities, respectively. During the follow-up period, 17.0 % of patients died, 19.5 % of patients underwent restenosis, and 16.4 % experienced MALE. Compared with the low self-management group, patients in the moderate or high self-management groups demonstrated lower risks of death and restenosis. For death, the hazard ratios (<em>HRs</em>) were 0.344 (95 % <em>CI</em>: 0.220–0.536) and 0.233 (95 % <em>CI</em>: 0.126–0.434) in the moderate and high self-management groups, respectively. Regarding restenosis, the subdistribution hazard ratios (<em>sHRs</em>) were 0.582 (95 % CI: 0.389–0.871) and 0.479 (95 % CI: 0.294–0.780) in the moderate and high self-management group. Despite this protective association, self-management ability was not determined significant factor for MALE.</div></div><div><h3>Conclusions</h3><div>Inadequate self-management abilities among patients with LEAD who underwent EVR are associated with increased risks of death and restenosis.</div></div><div><h3>Practice implications</h3><div>Enhancing the self-management abilities of patients with LEAD who underwent EVR may aid to mitigate mortality and restenosis risks.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109502"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adapting mainstreaming genetic education and clinical communication materials for cancer patients of varying backgrounds","authors":"Stephanie N. Christian-Afflu ,&nbsp;Rania Sheikh ,&nbsp;Anna Strang ,&nbsp;Anthony M. Chicaiza ,&nbsp;Sabrina Oliveros ,&nbsp;Etson Barthelus ,&nbsp;Isabel Pagan-Lopez ,&nbsp;Kathleen A. Lynch ,&nbsp;Lisa C. Diamond ,&nbsp;Carlos Javier Gonzalez ,&nbsp;Kenneth Offit ,&nbsp;Mark E. Robson ,&nbsp;Ying L. Liu ,&nbsp;Jason P. Gonsky ,&nbsp;Linda Bulone ,&nbsp;Zsofia K. Stadler ,&nbsp;Jennifer L. Hay ,&nbsp;Jada G. Hamilton","doi":"10.1016/j.pec.2026.109489","DOIUrl":"10.1016/j.pec.2026.109489","url":null,"abstract":"<div><h3>Objectives</h3><div>Mainstreaming genetic testing models that allow non-genetics healthcare professionals to order testing and then return results to patients with the aid of genetic counselors have shown promising outcomes. However, prior studies have not addressed the informational and communication needs of minority and medically underserved patients, who stand to benefit from greater genetic testing access. In the initial phase of a trial to develop, test, and evaluate a linguistically and culturally appropriate mainstreaming model for hereditary cancer multigene panel testing among cancer patients, we used formative research methods including expert review, revision, and transcreation to adapt educational materials (pre-test brochure and video) and clinical communication materials (post-test clinic visit summary and family letter).</div></div><div><h3>Methods</h3><div>We conducted cognitive interviews with participants (<em>N</em> = 61) recruited from two US community hospitals to evaluate the cultural and linguistic appropriateness of these adapted materials and identify areas for further refinement. Participants included a diverse sample of English- (59 %), Haitian Creole- (20 %), and Spanish- (21 %) speaking patients with varying educational levels and cancer diagnoses. Interviews, guided by the Learner Verification and Revision framework, provided insight to enhance materials based on attraction, comprehension, cultural acceptability, and self-efficacy.</div></div><div><h3>Results</h3><div>Although most participants found the materials useful, informative, and relevant, 41.7 % of participants thought the materials required a lot of mental effort, particularly among Haitian Creole-speaking participants. Critical areas for refinement included a more thorough explanation of gene nomenclature, testing procedures, and types of possible test results. Through integrating expert and participant feedback, the readability of all materials improved (e.g., English-language materials improved from grade 11.4 to 7.6).</div></div><div><h3>Conclusions</h3><div>Cognitive interviews identified important comprehension gaps that were addressable prior to integrating these materials into a larger trial of the mainstreaming genetic testing model.</div></div><div><h3>Practice Implications</h3><div>Patient-centered material design is critical to improving the reach of genetic services to diverse audiences.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109489"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146127135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Gynecological cancer patients share insights for better shared decision-making","authors":"Kasper Frank ,&nbsp;Karina Dahl Steffensen ,&nbsp;Lea Lund ,&nbsp;Margit Soegaard ,&nbsp;Birthe Lemley ,&nbsp;Karina Mølgaard Jensen ,&nbsp;Karina Olling","doi":"10.1016/j.pec.2026.109498","DOIUrl":"10.1016/j.pec.2026.109498","url":null,"abstract":"<div><h3>Objectives</h3><div>To examine gynecological cancer patients’ preferred role in decision making, their experienced involvement, and their advice to patients and clinicians on preparing for and supporting SDM in clinical consultations.</div></div><div><h3>Methods</h3><div>Two validated questionnaires, the Control Preference Scale (CPS) and CollaboRATE, were used to assess patients' preferred roles in SDM and their perceived level of involvement in medical decisions. Two open-ended questions were included to gather descriptive advice from patients, intended for both patients and clinicians. The sample for this survey was drawn from participants in a Danish patient advocacy group.</div></div><div><h3>Results</h3><div>In total, 117 patients completed the CPS, with 90% (n = 105) indicating a preference for an active role and 10% (n = 12) indicating a preference for a collaborative role in decision making. Mean item scores for CollaboRATE (n = 114) were 6.6 (SD = 2.1) for explanation, 5.2 (SD = 2.6) for preference elicitation, and 5.5 (SD = 2.5) for integration, with 7.9% of the respondents giving a top score. The most repeated theme of advice to patients was to ask questions. Empathic communication, including active listening and the provision of clear, easy-to-understand information, was the most frequently emphasized advice to clinicians.</div></div><div><h3>Conclusions</h3><div>Patients with gynecological cancer express a strong desire for involvement in SDM; however, many report that their experienced level of participation falls short of their preferences. They recommend an active role by asking targeted questions, thoroughly understanding benefits and risks of options, and remaining persistent in expressing needs. Patients emphasized the importance of empathetic communication, active listening, and the provision of clear, easy-to-understand information by clinicians.</div></div><div><h3>Practical implications</h3><div>Our findings offer actionable recommendations to bridge the gap between patients’ preferred role in SDM and their actual experiences across the care journey. By incorporating these recommendations, both patients and clinicians can adopt practical strategies to facilitate more personalized, patient-centered decisions aligned with individual preferences and needs.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109498"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146127159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family influences on type 2 diabetes self-management: Perspectives of African American adults with food insecurity","authors":"Sandra Iregbu ,&nbsp;Rebekah J. Walker ,&nbsp;Leonard E. Egede","doi":"10.1016/j.pec.2026.109501","DOIUrl":"10.1016/j.pec.2026.109501","url":null,"abstract":"<div><h3>Background</h3><div>Prior studies have established relationships between diabetes management and food insecurity and highlighted the role of family support in diabetes management. However, there remain gaps in understanding how families influence diabetes self-management within the context of food insecurity. This study aimed to explore the impact of family dynamics on diabetes self-management among food-insecure African American adults.</div></div><div><h3>Method</h3><div>We reanalyzed qualitative data from two focus groups with 16 African American adults to explore how family influences diabetes self-management among food-insecure individuals with Type 2 Diabetes. The original research used a grounded theory approach to examine broader challenges, barriers, and support in diabetes care.</div></div><div><h3>Results</h3><div>We identified four themes that characterized family influences on different aspects of diabetes self-management, including diet, exercise, stress, and self-care routines, for African American adults with type 2 diabetes who reported food insecurity. The themes include Changes in Diet and Exercise Routines, Family Assistance with Diabetes Self-Management, Conflict between Self-Care and Family Responsibilities, and Adapting to Family Situations.</div></div><div><h3>Conclusion</h3><div>Our findings from food-insecure African Americans with type 2 diabetes reveal that families significantly influence diabetes self-management, confirming similar outcomes from research with other populations. Given their distinct sociocultural and economic characteristics, there is a clear need for family-inclusive diabetes self-management education and support explicitly tailored for African American adults living with diabetes while experiencing food insecurity.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109501"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medical practitioners’ experiences of and attitudes towards goals of patient care discussions: A cross-sectional survey","authors":"Henrique Nicola ,&nbsp;William Lorimer ,&nbsp;David Blythe ,&nbsp;Kirsten Auret ,&nbsp;Moira O’Connor","doi":"10.1016/j.pec.2026.109493","DOIUrl":"10.1016/j.pec.2026.109493","url":null,"abstract":"<div><h3>Background</h3><div>The aging population is projected to significantly increase by 2066, with a corresponding rise in individuals experiencing chronic illnesses and approaching the end of life (EoL). Many patients prefer to receive care at home, but a substantial proportion still die in institutional settings, including intensive care units (ICUs). Goals of Patient Care (GoPC) discussions aim to promote shared decision-making and improve EoL care, ultimately improving patient outcomes and reducing unnecessary interventions. However, there is limited understanding of medical practitioners' experiences and perceptions of GoPC discussions.</div></div><div><h3>Objectives</h3><div>To explore the attitudes, experiences, barriers, and training needs of medical practitioners regarding GoPC discussions in Western Australia (WA).</div></div><div><h3>Methods</h3><div>A cross-sectional survey was conducted with 273 medical practitioners.</div></div><div><h3>Results</h3><div>Participants reported varied levels of confidence in conducting GoPC discussions. Barriers such as inadequate training, time constraints, and family members’ difficulty accepting prognosis were identified as significant challenges. A substantial proportion (89.6 %) of participants had not received formal GoPC training, and 58.8 % expressed a need for further education, with workshops and scenario-based learning preferred. While the majority reported confidence in recognizing when GoPC discussions were required, this contrasted with limited training and persistent systemic barriers, suggesting a gap between perceived readiness and effective implementation in practice.</div></div><div><h3>Conclusion</h3><div>Findings highlight the need for targeted education, mentorship, and systemic support to improve GoPC discussions, with a focus on addressing barriers related to time, training, and communication with patients and families. Future research should investigate the nature of GoPC discussions, including practitioner confidence and the impact of training on patient and family outcomes, as well as explore the roles of allied health professionals in these discussions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109493"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cluster analysis of health literacy profiles of adults with chronic diseases","authors":"Thi Thuy Ha DINH ,&nbsp;Ann BONNER","doi":"10.1016/j.pec.2026.109504","DOIUrl":"10.1016/j.pec.2026.109504","url":null,"abstract":"<div><h3>Objectives</h3><div>This study aimed to identify patterns of health literacy among adults with chronic diseases and determine factors associated with each health literacy domain.</div></div><div><h3>Methods</h3><div>Using data from 600 adults with chronic diseases assessed with the Health Literacy Questionnaire (HLQ), hierarchical cluster analysis was conducted to identify clusters with similar health literacy patterns. The number of clusters were identified by coefficient distance in agglomeration schedule, standard deviation within each HLQ domain within each cluster is ≤ 0.6 and meaningful differences of HLQ domains between clusters. Multivariate analysis using generalised linear models with backward modelling technique were performed to test key variables associated with each HLQ domain.</div></div><div><h3>Results</h3><div>Participants had a mean age of 61.54 years (± 15.3); 45.7 % were females, 56.4 % lived in rural areas, and 82.4 % had less than 12 years of education. Six distinct health literacy profiles were identified, ranging from 26 to 227 individuals per group. Each cluster presented unique health literacy strengths and weaknesses. Higher health literacy was significantly associated with more than 12 years of education, higher family income, being under 65, living in urban areas, receiving care from spouses or children, and having a lower comorbidity index.</div></div><div><h3>Conclusions</h3><div>These profiles provided valuable insights for hospital administrators, healthcare policymakers, and providers to understand groups needing additional support.</div></div><div><h3>Practice implications</h3><div>It is crucial for healthcare settings and providers to increase awareness about health literacy and implement educational strategies to assist individuals with varying health literacy levels, especially underserved socioeconomic groups.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"146 ","pages":"Article 109504"},"PeriodicalIF":3.1,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146081768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pilot study: Training bilingual Hmong caregivers using the pain assessment information visualization tool for effective communication in healthcare","authors":"Maichou Lor ,&nbsp;Betty Chewning ,&nbsp;Linkai Wu","doi":"10.1016/j.pec.2026.109476","DOIUrl":"10.1016/j.pec.2026.109476","url":null,"abstract":"<div><h3>Objective</h3><div>Pain in non-English-speaking Hmong patients may be under-detected and under-managed, in part due to challenges in patient-clinician communication. While family caregivers could address this deficiency, they lack symptom recognition and communication training. This study piloted a web-based communication training intervention to help Hmong bilingual caregivers document and communicate their care recipients’ pain information to clinicians using the Pain Assessment Information Visualization (InfoViz) tool and communication strategies.</div></div><div><h3>Methods</h3><div>We conducted a single-arm, pre-post pilot study of a web-based pain training communication intervention. In the intervention, caregivers use tools and practice communication strategies with video case studies. Qualitative interviews evaluated participants’ training experiences, and quantitative measures evaluated feasibility outcomes (satisfaction, time to completion, usability). Descriptive statistics analyzed feasibility outcomes and thematic analysis assessed qualitative feedback about the training.</div></div><div><h3>Results</h3><div>Thirty Hmong caregivers (mean age 32; 26 female) completed the training. They lived in the U.S. for an average of 29 years, with half having a healthcare background (n = 15). Among those who completed the training, 96 % reported being somewhat (n = 8) or extremely satisfied (n = 21<strong>)</strong> with the intervention. The average completion time was 56 min, primarily using a laptop. Caregivers reported learning new ways to describe pain in Hmong, valued tools for preparation, and felt empowered to support communication during medical visits.</div></div><div><h3>Conclusions</h3><div>Our intervention was feasible and acceptable, providing valuable tools and strategies to help Hmong caregivers support their loved ones with pain communication during medical visits. Future research should examine the intervention’s effectiveness and its impact on clinical outcomes.</div></div><div><h3>Practice Implications</h3><div>Providing Hmong caregivers with communication training could help overcome language and cultural barriers during pain-related primary care visits for non-English-speaking patients. Additional studies are needed to determine how such training can be integrated into clinical workflows and scaled for broader use.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109476"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145927928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}