Patient Education and Counseling最新文献

{"title":"Patient-centred care in precision oncology: A systematic review","authors":"Ella Adi-Wauran ,&nbsp;Suvetha Krishnapillai ,&nbsp;Elizabeth Uleryk ,&nbsp;Saumeh Saeedi ,&nbsp;Yvonne Bombard","doi":"10.1016/j.pec.2025.108753","DOIUrl":"10.1016/j.pec.2025.108753","url":null,"abstract":"<div><h3>Objectives</h3><div>Patient-centred care (PCC) improves outcomes in various clinical contexts. There is, therefore, a need to explore PCC in precision oncology – a rapidly advancing, innovative approach to cancer treatment/management that is increasingly integrated into patient care. This systematic review aims to synthesize evidence on PCC in precision oncology by addressing (1) How can precision oncology be delivered in a patient-centred manner? (2) How does patient-centred precision oncology impact outcomes?</div></div><div><h3>Methods</h3><div>Studies were eligible for inclusion if their population was cancer patients, used a patient-centred approach in delivering precision oncology, and reported patient/provider experiences. There were no restrictions to the study design and publication year. A systematic search of MEDLINE, Embase, and CINAHL databases was conducted from their dates of inception to June 21, 2021. Narrative synthesis was used.</div></div><div><h3>Results</h3><div>The seventeen included studies were mostly qualitative (13/17), reflect breast cancer patients/providers experiences (9/17), and conducted during cancer treatment (16/17). Studies identified six processes for delivering patient-centred precision oncology and suggest that patient-centred precision oncology impacts patients’ psychological outcomes and delivery of targeted therapy.</div></div><div><h3>Conclusions</h3><div>Findings highlighted respect for patients’ preferences and supporting decision-making processes related to using precision oncology. More evidence of PCC in precision oncology is needed across the continuum of cancer care.</div></div><div><h3>Practice implications</h3><div>PCC processes identified can be targeted in the development, implementation, and evaluation of programs delivering precision oncology.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108753"},"PeriodicalIF":2.9,"publicationDate":"2025-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684717","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Fundamentally flawed or functional and feasible? The use of readability metrics in healthcare","authors":"Olivia Mac,&nbsp;Danielle M. Muscat,&nbsp;Julie Ayre,&nbsp;Kirsten McCaffery","doi":"10.1016/j.pec.2025.108741","DOIUrl":"10.1016/j.pec.2025.108741","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108741"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143609779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementation of a patient decision aid for discharge planning of hospitalized patients with stroke: aprocess evaluation using a mixed-methods approach","authors":"J.C.M. Prick ,&nbsp;E.G. Engelhardt ,&nbsp;F.K. Lansink Rotgerink ,&nbsp;I.A. Deijle ,&nbsp;S.M. van Schaik ,&nbsp;M.M. Garvelink ,&nbsp;R. Dahmen ,&nbsp;P.J.A.M. Brouwers ,&nbsp;I.W.M. van Uden ,&nbsp;P.J. van der Wees ,&nbsp;R.M. Van den Berg-Vos ,&nbsp;C.F. van Uden-Kraan ,&nbsp;On behalf of the Santeon VBHC STROKE group","doi":"10.1016/j.pec.2025.108716","DOIUrl":"10.1016/j.pec.2025.108716","url":null,"abstract":"<div><h3>Objectives</h3><div>To promote shared decision-making (SDM) during discharge planning of patients with stroke, a patient decision aid (PtDA) was implemented in seven Dutch hospitals. This mixed-methods process evaluation assessed: 1) PtDA use, 2) the SDM process, 3) facilitators and barriers influencing health care professional (HCP) adoption of the PtDA, and 4) HCP experiences with the PtDA.</div></div><div><h3>Methods</h3><div>Rates of PtDA use were derived from hospital registries and PtDA log data. SDM levels in consultations were quantitatively assessed using OPTION-5 (score range 0–100); the SDM process was analyzed qualitatively. Facilitators and barriers were identified via the MIDI questionnaire. HCP experiences were explored through interviews.</div></div><div><h3>Results</h3><div>PtDA use varied across hospitals, with 10–96 % of patients receiving it and 27–100 % of those ultimately using it. OPTION-5 scores were low in both pre-implementation (<em>n</em> = 68, median:0, Q1-Q3:0–0) and post-implementation consultations (<em>n</em> = 49, median:0, Q1-Q3:0–15). Barriers included lack of whole-team engagement and limited recognition of PtDA benefits. Frequent PtDA use was associated with HCP confidence and self-efficacy in SDM.</div></div><div><h3>Conclusions</h3><div>Successful PtDA implementation in stroke care requires whole-team engagement, emphasis on PtDA benefits, and enhancing HCP confidence and self-efficacy in SDM.</div></div><div><h3>Practice implications</h3><div>Highlighting positive SDM outcomes and patient benefits may encourage HCPs to adopt the PtDA.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108716"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143715451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"DNA-poli: Design and development of a digital platform for family communication support and predictive genetic counseling on inherited diseases","authors":"Tessa C. Beinema ,&nbsp;Marlies N. van Lingen ,&nbsp;Lieke M. van den Heuvel ,&nbsp;Marten A. Siemelink ,&nbsp;Jan Kolkmeier ,&nbsp;Randy Klaassen ,&nbsp;Corrette Ploem ,&nbsp;Martina C. Cornel ,&nbsp;Noor A.A. Giesbertz ,&nbsp;Dianne van Essen ,&nbsp;Dirk K.J. Heylen ,&nbsp;J. Peter van Tintelen","doi":"10.1016/j.pec.2025.108746","DOIUrl":"10.1016/j.pec.2025.108746","url":null,"abstract":"<div><h3>Objectives</h3><div>By developing a digital platform (“DNA-poli”) we aim to improve the uptake and efficiency of predictive genetic counseling and cascade testing for relatives at-risk of inherited conditions. This is crucial for reducing disease morbidity and mortality while meeting the growing demand for genetic counseling. We outline the design, development, and final concept and prototype of DNA-poli and discuss the challenges faced and how these were addressed.</div></div><div><h3>Methods</h3><div>We followed an approach based on the Design Thinking and Human-Centered Design methods, which entails four stages: 1) Discover/Define, 2) Design, 3) Develop, and 4) Deliver. Stakeholders were actively involved through interviews, focus groups, and sounding board consultations. Two inherited cardiac conditions (hypertrophic cardiomyopathy and dilated cardiomyopathy) served as the first use case.</div></div><div><h3>Results</h3><div>The DNA-poli prototype is a digital outpatient clinic for predictive counseling on inherited conditions and cascade testing. It facilitates both pre-test and post-test genetic counseling, including information provision on specific conditions and tests, decision support, collecting medical information from a counselee, and return of results. ARRs can process relevant information online at their convenience and can request genetic tests locally after a short teleconsultation with a healthcare professional. A conversational agent is incorporated to answer questions and collect patient characteristics.</div></div><div><h3>Conclusions</h3><div>DNA-poli is the first digital cardiogenetics platform to encompass the full genetic care pathway for family communication and predictive genetic counseling. Development challenges related to logistical implementation, ethical and legal considerations, and ensuring quality of care standards.</div></div><div><h3>Practice implications</h3><div>DNA-poli allows timely, efficient, and flexible access to predictive counseling, supporting probands with informing their ARRs. ARRs have access to personalized information and modules to support decision-making at their convenience.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108746"},"PeriodicalIF":2.9,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143654757","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Translation and psychometric evaluation of the Spanish version of the Heart Failure-Specific Health Literacy","authors":"Rosalia Santesmases-Masana ,&nbsp;Elvira Hernández-Martínez-Esparza ,&nbsp;Beatriz Campillo-Zaragoza ,&nbsp;Carolina Lapena-Estella ,&nbsp;Elena Mañes López ,&nbsp;Caterina Checa ,&nbsp;Elisenda Garcia Puig ,&nbsp;Luis Gonzalez-De Paz","doi":"10.1016/j.pec.2025.108732","DOIUrl":"10.1016/j.pec.2025.108732","url":null,"abstract":"<div><h3>Aim</h3><div>To translate and adapt the Heart Failure-Specific Health Literacy Scale (HFS-HLS) for Castilian Spanish (i.e., the Spanish spoken in Spain) and to evaluate its psychometric properties in patients with heart failure visited in primary care centres.</div></div><div><h3>Methods</h3><div>Forward and back translations were used to translate and adapt the HFS-HLS, and a panel of experts assessed the validity of the adaptation until consensus was achieved. Face validity was explored through cognitive debriefing with 20 patients. Psychometric properties were examined for test-retest reliability (intraclass correlation index) and internal consistency (Cronbach’s α), concurrent and discriminant validity (Pearson correlation coefficient) using the HLS-EU-Q16 and EHFScBS health literacy scales, and construct validity using confirmatory factor analysis and fit indices. Differences in mean results for the adapted instrument and between subgroups were examined with ANOVA tests.</div></div><div><h3>Results</h3><div>The linguistically and culturally adapted Castilian Spanish HFS-HLS (Cast-Span HFS-HLS) was administered to 195 participants. Overall fit parameters for three dimensions of confirmatory factor analysis were adequate. Test-retest reliability showed an intraclass correlation coefficient of 0.89 (95 % CI: 0.80–0.94) for the total HL scale and 0.87, 0.86, and 0.89 for the functional, communicative, and critical subcales, respectively. The internal consistency for the total HL was good (Cronbach <strong>α</strong> = 0.80), and for the three sub-scales were <strong>α</strong> = 0.88 (Functional), <strong>α</strong> = 0.55 (communicative), and <strong>α</strong> = 0.79 (critical). Results of the new adapted instrument were associated with both the HLS-EU-Q16 (r = 0.37, 95 % CI: 0.24–0.49; p &lt; 0.001) and the EHFScBS (r = -0.14; 95 % CI: −0.28 to −0.004). The Cast-Span HFS-HLS showed that overall HL scores were significantly lower in older, female, and individuals with lower educational attainment (p &lt; 0.001).</div></div><div><h3>Conclusions</h3><div>The Cast-Span HFS-HLS is valid and reliable instrument that can usefully test health literacy in community-dwelling patients with heart failure.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108732"},"PeriodicalIF":2.9,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143609789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Advancing medical communication education internationally: tEACH collaborative initiatives","authors":"Jane Ege Møller ,&nbsp;Wiebke Frerichs ,&nbsp;Zoi Tsimtsiou ,&nbsp;John Schlömer ,&nbsp;Marlene Sator ,&nbsp;Marcy Rosenbaum ,&nbsp;Eva Doherty","doi":"10.1016/j.pec.2025.108742","DOIUrl":"10.1016/j.pec.2025.108742","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"134 ","pages":"Article 108742"},"PeriodicalIF":2.9,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143628705","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Advancing virtual reality in :preoperative education: Potential and perspectives","authors":"Iwan Pranoto,&nbsp;Hanggar Budi Prasetya","doi":"10.1016/j.pec.2025.108725","DOIUrl":"10.1016/j.pec.2025.108725","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"136 ","pages":"Article 108725"},"PeriodicalIF":2.9,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143674852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Active and direct patient participation in health professions education: A narrative overview of literature from the global south","authors":"Ayesha Jawwad ,&nbsp;Zareen Zaidi ,&nbsp;Subha Ramani ,&nbsp;Herman E. Popeijus ,&nbsp;Marjan Govaerts","doi":"10.1016/j.pec.2025.108734","DOIUrl":"10.1016/j.pec.2025.108734","url":null,"abstract":"<div><h3>Objectives</h3><div>Patients traditionally played a passive role in health professions education (HPE). However, their active involvement is increasingly valued, particularly in higher-resourced regions of the world known as the Global North. This study explores active and direct patient involvement in HPE contexts in the Global South (GS) regions of the world.</div></div><div><h3>Methods</h3><div>A narrative review of literature was conducted, utilising a systematic search of multiple electronic databases. 3966 abstracts were identified, and 80 full texts were reviewed. Ultimately, five papers were included in the final corpus.</div></div><div><h3>Results</h3><div>The selected studies were set in five GS countries, involving undergraduate, postgraduate medical and pharmacy training. Real patients, their caregivers and standardized patients acted as teachers or assessors focusing on learners' history-taking, communication skills, and professionalism. Challenges included cultural sensitivity and safety concerns, e.g. during home visits. Educators faced difficulties in patient recruitment, training and compensation.</div></div><div><h3>Conclusion &amp; practice implications</h3><div>Active and direct patient involvement in HPE within GS contexts remains limited. Current efforts focus on patients as teachers or assessors, with little contribution to educational design, instruction and mentoring. Educators may be overlooking the potential of diverse cultural perspectives to enhance patient engagement in HPE, making this a valuable area for future research.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108734"},"PeriodicalIF":2.9,"publicationDate":"2025-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143580093","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the state of shared decision-making in head and neck oncology: Assessing treatment communication","authors":"Anne N. Heirman ,&nbsp;Song L.L. Duimel ,&nbsp;Roosmarijn S. Tellman ,&nbsp;Richard Dirven ,&nbsp;Annemiek J. Linn ,&nbsp;Gyorgy B. Halmos ,&nbsp;Rob J.J.H. van Son ,&nbsp;Lisette van der Molen ,&nbsp;Alfons J.M. Balm ,&nbsp;Julia C.M. van Weert ,&nbsp;Michiel W.M. van den Brekel","doi":"10.1016/j.pec.2025.108733","DOIUrl":"10.1016/j.pec.2025.108733","url":null,"abstract":"<div><h3>Objective</h3><div>To explore the state of shared decision-making (SDM) in head and neck (HN) oncology by investigating the extent to which SDM is currently employed by HN surgeons and how the perceived levels of SDM relate to the observed levels of SDM. Additionally, surgeon and patient perspectives on patient involvement in SDM and potential associations with observed levels of SDM were explored.</div></div><div><h3>Methods</h3><div>Perceived level of SDM and patient involvement were measured by SDM-Q-9/SDM-Q-Doc resp. Control Preference Scale. Observed SDM was measured by analyzing audiotaped consultations (N = 42) using the OPTION^mcc+ instrument. Univariate linear analyses were conducted to identify possible associations with surgeon-observed SDM.</div></div><div><h3>Results</h3><div>Median perceived SDM scores of surgeons (74.4 %) and patients (71.1 %) were relatively high, whereas observed median OPTION-scores were moderate (surgeons 48 %, patients 42 %, caregivers 24 %). Consultation time and patient OPTION-score were positively associated with surgeon OPTION-score.</div></div><div><h3>Conclusion</h3><div>Surgeons and patients seem to overestimate the extent of SDM compared to the observed reality. Patients’ goals, values and preferences need to be addressed more during consultations.</div></div><div><h3>Practice Implications</h3><div>The findings can be used to raise awareness of SDM among surgeons to improve their skills. Routine training in medical education can benefit from effective integration of SDM principles during consultations.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108733"},"PeriodicalIF":2.9,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143627993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-creating a Choosing Wisely leaflet supporting the reduction of imaging usage in low back pain management – A multi-method study","authors":"Chris Djurtoft ,&nbsp;Edel O'Hagan ,&nbsp;Monika Deleuran Laursen ,&nbsp;Lars Lejbølle ,&nbsp;Mia Bisgaard Jensen ,&nbsp;Simon Kristoffer Johansen ,&nbsp;Kristian Damgaard Lyng ,&nbsp;Morten Hoegh ,&nbsp;Negar Pourbordbari ,&nbsp;Malene Kjær Bruun ,&nbsp;Bettina Eiger ,&nbsp;Jesper Bie Larsen ,&nbsp;Michael Skovdal Rathleff","doi":"10.1016/j.pec.2025.108730","DOIUrl":"10.1016/j.pec.2025.108730","url":null,"abstract":"<div><h3>Objective</h3><div>The objective was to co-create an information resource in the form of a leaflet, to be distributed in clinical settings, websites or social media targeting people with low back pain.</div></div><div><h3>Methods</h3><div>This multi-method study was conducted in four stages: literature search, input from practice consultants, program theory development, and think-aloud interviews with people experiencing low back pain. Each stage was followed by a consensus meeting in which the steering group refined the leaflet based on the emerging knowledge.</div></div><div><h3>Results</h3><div>The literature search highlighted patients' need for easy-to-understand information about their back pain diagnosis, management strategies, social activities, work and solutions for supported self-management strategies. Practice consultants emphasized concise, relatable content. The program theory identified potential mechanisms for content creation, development, and implementation of the leaflet, such as addressing patient concerns, reducing diagnostic uncertainty, insights into management options, and validation. Think-aloud interviews with 18 people living with low back pain informed the iteration of the leaflet, enhancing language clarification and content comprehension.</div></div><div><h3>Conclusions</h3><div>We co-created a new <em>Choosing Wisely</em> leaflet, created with end-users in mind, specifically focused on reducing unnecessary imaging for low back pain.</div></div><div><h3>Practice implications</h3><div>This leaflet may support clinical settings in delivering evidence-based approaches and supporting self-management.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"135 ","pages":"Article 108730"},"PeriodicalIF":2.9,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143609787","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}