Josefine Lampinen, Ingeborg Nilsson, Mia Conradsson, Håkan Littbrand, Anna Sondell, Yngve Gustafson, Jerry Öhlin, Nina Lindelöf
{"title":"Informal caregivers' perspectives on participation in a dementia rehabilitation programme.","authors":"Josefine Lampinen, Ingeborg Nilsson, Mia Conradsson, Håkan Littbrand, Anna Sondell, Yngve Gustafson, Jerry Öhlin, Nina Lindelöf","doi":"10.1080/11038128.2025.2463374","DOIUrl":"https://doi.org/10.1080/11038128.2025.2463374","url":null,"abstract":"<p><strong>Background: </strong>There is limited experience in combining interdisciplinary rehabilitation for persons with dementia and caregiver support.</p><p><strong>Aim: </strong>To explore how informal caregivers perceive participation in a person-centred, multidimensional, interdisciplinary rehabilitation programme targeting community-dwelling older adults with dementia and their informal caregivers, and how the programme has influenced their everyday life.</p><p><strong>Material and methods: </strong>Fourteen informal caregivers, aged 45-84 years, participated in a qualitative interview following a randomised controlled pilot study. Transcribed interviews were analysed using qualitative content analysis.</p><p><strong>Results: </strong>The analysis resulted in seven categories and three themes: <i>feeling</i> <i>challenged and boosted</i> <i>to face an uncertain future</i>, <i>perceiving supportive activities as sources of</i> <i>both</i> <i>joy and frustration in everyday life</i> and <i>finding relief in recognising their relative's former self.</i></p><p><strong>Conclusions and significance: </strong>Combining interdisciplinary rehabilitation for adults with dementia with education and support for caregivers was perceived as viable and valuable for the informal caregivers. They felt strengthened by the rehabilitation and better prepared for their uncertain future. However, participation also challenged everyday routines, but the benefits appeared to outweigh the strain.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2463374"},"PeriodicalIF":1.9,"publicationDate":"2025-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143416020","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Occupational therapists' experiences of hegemony in a mental health setting: A practice-based enquiry.","authors":"MaryBeth Gallagher, Nancy Bagatell","doi":"10.1080/11038128.2025.2456462","DOIUrl":"https://doi.org/10.1080/11038128.2025.2456462","url":null,"abstract":"<p><strong>Background: </strong>Despite valuing occupation, occupational therapists report barriers to enacting occupation-based practice. One barrier noted in the literature is hegemony, the dominance of one social group's ideas over others. Specifically, biomedical and business models dominating healthcare are reported to significantly impact occupational therapists.</p><p><strong>Objective: </strong>To describe how occupational therapists experience and manage hegemony in an acute mental health setting in the United States.</p><p><strong>Methods: </strong>A community of practice scholars composed of nine occupational therapists participated in a practice-based enquiry. Scholars recorded their reflections on their practice and engaged in collective research discussions. All data were transcribed and analysed using narrative and thematic processes.</p><p><strong>Results: </strong>Data analysis resulted in three themes that reflect the shifting and varying narratives of the community of practice scholars: (1) making waves; (2) staying afloat; and (3) sailing away.</p><p><strong>Conclusions and relevance: </strong>The findings highlight the varied experiences and changing responses of the therapists as they gained awareness of hegemony in an acute mental health setting. While some therapists remained passive and 'stayed afloat' and others left the practice site or 'sailed away', others were empowered to 'make waves' and advocate for change and counter hegemony.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2456462"},"PeriodicalIF":1.9,"publicationDate":"2025-01-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Helga Sif Pétursdóttir, Eva Halapi, Björg Thordardottir
{"title":"Icelandic translation, adaptation and validation of the Parental Burnout Assessment (PBA-IS).","authors":"Helga Sif Pétursdóttir, Eva Halapi, Björg Thordardottir","doi":"10.1080/11038128.2025.2453479","DOIUrl":"https://doi.org/10.1080/11038128.2025.2453479","url":null,"abstract":"<p><strong>Background: </strong>As parental burnout is increasingly recognised for its severe impact on parents and children, identifying factors that exacerbate or alleviate this condition is crucial. Reliable assessment tools in clinical settings are essential to detect those at risk of or experiencing burnout, enabling timely intervention.</p><p><strong>Aims/objectives: </strong>This study aims to adapt the Parental Burnout Assessment for use in Iceland and evaluate its psychometric properties while exploring how personal and socio-demographic factors influence parental burnout.</p><p><strong>Materials and methods: </strong>A sample of 1,110 parents participated. Descriptive statistics analysed the main dataset characteristics, and confirmatory factor analysis evaluated the psychometric properties of the adapted version.</p><p><strong>Results: </strong>Satisfactory structural validity and internal consistency (α 0.96) of the PBA-IS was demonstrated. Factors influencing parental burnout included marital status, number of children, perceived support, and personal causation.</p><p><strong>Conclusions: </strong>The PBA-IS is a valid and reliable translated tool for assessing parental burnout in Iceland. Personal causation, a key concept in occupational therapy, appears pivotal in parental burnout. Occupational therapists can provide holistic support to help parents effectively manage stress.</p><p><strong>Significance: </strong>The PBA-IS enables parental burnout to be identified in Icelandic clinical settings, supporting early interventions that reduce stress, promote mental health, and enhance well-being.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2453479"},"PeriodicalIF":1.9,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Clémence Orain, Thomas Morgenthaler, Christina Schulze
{"title":"Walking, talking, playing: Children with disabilities' outdoor play in French mainstream schools.","authors":"Clémence Orain, Thomas Morgenthaler, Christina Schulze","doi":"10.1080/11038128.2025.2459150","DOIUrl":"https://doi.org/10.1080/11038128.2025.2459150","url":null,"abstract":"<p><strong>Background: </strong>Children's right to play remains underexplored in French mainstream schools. France's inclusive education policies aim to include children with disabilities in mainstream classrooms, but this transition can create challenges hindering meaningful play opportunities. This highlights the importance of gaining a deeper understanding of children's experiences of play in school playgrounds.</p><p><strong>Aim: </strong>This study explores children with disabilities' experiences and perspectives on their outdoor play in French mainstream school playgrounds.</p><p><strong>Material and methods: </strong>Walking and Talking tour interviews were conducted with thirteen children with various disabilities across six mainstream schools in western France. Data were audio-recorded, transcribed verbatim and analysed using thematic analysis.</p><p><strong>Results: </strong>(1) 'I can(not) play': Environmental Barriers and Opportunities; (2) 'I have an idea': Children's Preferences for Enriching Play and Inclusion; (3) 'Learn to Hear Me Out': Strengthening Children's Participation in Everyday School Practices including Playground Redesign.</p><p><strong>Conclusions and significance: </strong>This study highlights the barriers children with disabilities face in French mainstream school playgrounds. It emphasises the need for collaborative co-design to create inclusive and playful environments. Findings have implications for occupational science, inclusive education, school-based occupational therapy, and urban design. Future participatory research should explore the co-design of school playgrounds, involving all relevant stakeholders.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2459150"},"PeriodicalIF":1.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emi Patmisari, Yunong Huang, Carla McLaren, Pankhuri Bhatia, Mark Orr, Sumathi Govindasamy, Emily Hielscher, Helen McLaren
{"title":"Review of community-based interventions for people with serious mental illness, focusing on learning instrumental activities of daily living and enhancing wellbeing.","authors":"Emi Patmisari, Yunong Huang, Carla McLaren, Pankhuri Bhatia, Mark Orr, Sumathi Govindasamy, Emily Hielscher, Helen McLaren","doi":"10.1080/11038128.2025.2468421","DOIUrl":"https://doi.org/10.1080/11038128.2025.2468421","url":null,"abstract":"<p><p>This review synthesises evidence on community-based interventions designed to support individuals with serious mental illness (SMI) in learning instrumental activities of daily living (IADLs). Given the increasing prevalence of SMI affecting over 500 million people worldwide, and associated functional impairments, effective interventions are critically needed. This review of thirty studies represented a range of global contexts and intervention types, which were categorised into simple IADLs (e.g. household chores), complex IADLs (e.g. financial management), and recreational IADLs (e.g. leisure activities). Findings demonstrated that community-based interventions significantly improved IADLs, promoting functional independence and overall well-being. Thematic analysis identified five key mechanisms for success: individualised goal-setting, structured programs with practical learning, engagement of support systems, integration into daily life, and use of innovative technologies. The review highlighted that personalised and practical IADL interventions, supported by robust community and technological resources, were most effective. When effective, interventions enhance practical skills of individuals while also contributing to emotional well-being, social connections, and personal fulfilment. Despite promising results, the review notes variability in study designs and outcomes, suggesting a need for consistent and long-term evaluations. Nonetheless, review insights offer valuable guidance for designing future interventions to better support autonomy and community integration of individuals with SMI.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2468421"},"PeriodicalIF":1.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143450712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rina Juel Kaptain, Michelle Riisager, Christina Juul, Morten Rye Olsen, Eva Ejlersen Wæhrens
{"title":"Comprehensive assessment as part of the assistive technology service delivery process.","authors":"Rina Juel Kaptain, Michelle Riisager, Christina Juul, Morten Rye Olsen, Eva Ejlersen Wæhrens","doi":"10.1080/11038128.2025.2451287","DOIUrl":"https://doi.org/10.1080/11038128.2025.2451287","url":null,"abstract":"<p><strong>Background: </strong>The assistive technology (AT) service delivery process is complex and includes a comprehensive assessment of the citizen's situation to inform decision making. This assessment is required by Danish law to ensure that citizens receive solutions matched to their needs, including other services than the AT.</p><p><strong>Aim: </strong>To investigate how Danish occupational therapists, involved in the AT service delivery process, perform the comprehensive assessment.</p><p><strong>Material and methods: </strong>The study is a cross-sectional survey. The target population was occupational therapists providing AT through the AT service delivery process in municipal units. Data were analysed using descriptive statistics.</p><p><strong>Results: </strong>The sample included <i>n</i> = 206 Danish occupational therapists completing the questionnaire. Participants represented the five regions in Denmark. Variations were seen across age, years of working experience, and years in current position. Fifty nine percent of the participants often used telephone interviews, and 74% reported to do home visits to gather information as part of the assessment process. During home visits, participants typically combined methods of interview and observation. Most participants reported not using standardised assessment tools, or not using them in their full length. Almost 80% reported having no guidelines about tool(s) to be used at their workplace. Overall, participants were satisfied with the assessment process.</p><p><strong>Conclusions: </strong>When Danish occupational therapists perform comprehensive assessments to ensure that citizens receive solutions matched to their needs, including other services than the AT, the assessment approach and methods employed vary across therapists, since local guidelines for assessment and the use of standardised assessment tools are sparse.</p><p><strong>Significance: </strong>To support a high-quality comprehensive assessment process, also ensuring a sustainable client-centred process, a standard minimum guideline is recommended within the Danish AT service delivery system.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2451287"},"PeriodicalIF":1.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142957826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Recovery experiences among mental health service users going through the Balancing Everyday Life<sup>™</sup> intervention - A deductive qualitative study.","authors":"Mona Eklund, Elisabeth Argentzell","doi":"10.1080/11038128.2025.2451267","DOIUrl":"https://doi.org/10.1080/11038128.2025.2451267","url":null,"abstract":"<p><strong>Background: </strong>The occupational therapy intervention Balancing Everyday Life (BEL)<sup>TM</sup> aims to support mental health service users towards improved occupational balance and personal recovery. Yet, no research has specifically addressed recovery experiences among BEL<sup>TM</sup> participants.</p><p><strong>Aim: </strong>To investigate how the recovery process was experienced by mental health services users who had participated in BEL<sup>TM</sup>.</p><p><strong>Methods: </strong>The study was based on qualitative interviews with 11 participants. A deductive content analysis was performed based on the CHIME framework, a research-based tool for characterising the recovery process.</p><p><strong>Results: </strong>All categories and most subcategories described in the CHIME framework could be found in the participants' experiences. The most prominent categories were Sense of connectedness and Empowerment. Most subcategories were identified as well. Additionally, two subcategories not covered in CHIME were distinguished - occupational balance, and self-esteem and self-confidence - which may be specific to an occupational therapy intervention like BEL<sup>TM</sup>.</p><p><strong>Conclusion: </strong>The study showed that CHIME was relevant for characterising the recovery process among BEL<sup>TM</sup> participants and identifying the features shaping that process. The findings support CHIME, while also indicating that BEL<sup>TM</sup> offers some additional avenues for personal recovery.</p><p><strong>Significance: </strong>An occupational therapy intervention can support mental health service users towards personal recovery.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2451267"},"PeriodicalIF":1.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143041906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effectiveness of the PRPP Intervention after brain injury in home-based rehabilitation: Single-case experimental designs with multiple baselines.","authors":"M Ø Lindstad, A Obstfelder, U Sveen, L Stigen","doi":"10.1080/11038128.2024.2444591","DOIUrl":"10.1080/11038128.2024.2444591","url":null,"abstract":"<p><strong>Background: </strong>Occupational therapists strive to provide evidence-based cognitive rehabilitation for everyday functional activities in community-based rehabilitation.</p><p><strong>Objective: </strong>In this study, we investigated the effectiveness of the Perceive, Recall, Plan and Perform (PRPP) Intervention in enhancing and maintaining task performance and cognitive strategy use during home-based rehabilitation for individuals with cognitive challenges following acquired brain injury.</p><p><strong>Material and methods: </strong>This study is a systematic replication of a single-case experimental designs using multiple baselines applied to three participants (67+ years old) undergoing nine PRPP Intervention sessions. The participants completed repeated measurements during baseline, intervention, post-intervention and follow-up phases. They were compared to their baseline phases, which was a control. Outcome measures included PRPP Assessment Stages 1 and 2. The analysis involved visual inspection of graphed data and the Tau-<i>U</i> method.</p><p><strong>Results: </strong>The analysis revealed that all three participants showed positive changes in task mastery and effective cognitive strategy use after receiving PRPP Intervention, including maintenance immediately after intervention and 4 weeks later. A weighted Tau-U across participants indicated a very large effect (0.94) on task mastery.</p><p><strong>Conclusions and significance: </strong>The PRPP Intervention showed promising results in improving real-world task mastery and effective cognitive strategy use during home-based rehabilitation.</p><p><strong>Trial reg.no: </strong>NCT05148247.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2444591"},"PeriodicalIF":1.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142916126","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Monica Gustafsson, Magnus Zingmark, Susanne Iwarsson, Lisa Ekstam
{"title":"Ambitions and obstacles for evidence-based municipal primary healthcare - a mixed- methods study.","authors":"Monica Gustafsson, Magnus Zingmark, Susanne Iwarsson, Lisa Ekstam","doi":"10.1080/11038128.2025.2451265","DOIUrl":"https://doi.org/10.1080/11038128.2025.2451265","url":null,"abstract":"<p><strong>Background: </strong>Research is limited on registered healthcare professionals (RHCP) usage of research and evidence-based practice (EBP) in Swedish municipal primary healthcare work.</p><p><strong>Aim/objectives: </strong>The aim of this study was to increase the understanding of experiences, attitudes, and conditions of usage of research and implementation of EBP among RHCPs in a Swedish municipality setting. Further, the study aimed to explore whether those attitudes and conditions were associated with RHCP basing their work on research.</p><p><strong>Material and methods: </strong>The study was a mixed- methods study of a convergent design with five dialogue meetings and a web-based survey. Participants were RHCP recruited from one large size municipality.</p><p><strong>Findings: </strong>Registered healthcare professionals struggled between personal and organisational conditions to use research and work according to EBP. They were torn between personal ambitions and lack of skills to use research, whereas having an advanced level education was significantly associated with basing work on research. Lack of organisational resources and support made usage of research and implementation of EBP difficult.</p><p><strong>Conclusion: </strong>There is a need to strengthen the RHCP competence in using research evidence in clinical practice. Managemental support, education and clinical goals could improve the conditions for usage of research and implementation of EBP.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2451265"},"PeriodicalIF":1.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Carina Tordai, Steven M Schmidt, Mona Eklund, Elisabeth Argentzell
{"title":"Mental health service users' experiences of everyday occupations while attending day centres during the transition into retirement age.","authors":"Carina Tordai, Steven M Schmidt, Mona Eklund, Elisabeth Argentzell","doi":"10.1080/11038128.2024.2444594","DOIUrl":"https://doi.org/10.1080/11038128.2024.2444594","url":null,"abstract":"<p><strong>Background: </strong>Existing research has shown that those ageing with severe mental illness face significant challenges in daily life. Attendance at community-based day centres (DCs) is offered to support daily structure and break isolation. However, little is known about the experiences of those receiving this type of support while transitioning into retirement age.</p><p><strong>Aim: </strong>To explore experiences of everyday occupations among older mental health service users attending DC while transitioning into retirement age.</p><p><strong>Materials/methods: </strong>Fourteen older DC attendees were interviewed on three occasions, spanning a time frame of four and a half years. The material was analyzed using grounded theory.</p><p><strong>Results: </strong>An overarching theme emerged; <i>A sense of belonging - creating, recreating, and maintaining my occupational identity while ageing,</i> with three underlying categories: <i>Enablers helping to pave a pathway to social contacts and occupations, Struggling through changing conditions</i>, and <i>Recreating and maintaining my occupations and occupational identity.</i></p><p><strong>Conclusions/significance: </strong>Attending DC contributed with enablers that helped to maintain an occupational identity, despite ageing with complex health conditions. This study can be useful when planning optimal support focusing on occupational identity.</p>","PeriodicalId":49570,"journal":{"name":"Scandinavian Journal of Occupational Therapy","volume":"32 1","pages":"2444594"},"PeriodicalIF":1.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142899848","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}