Informal caregivers' perspectives on participation in a dementia rehabilitation programme.

IF 1.9 4区医学 Q2 REHABILITATION

Scandinavian Journal of Occupational Therapy Pub Date : 2025-02-05 Epub Date: 2025-02-14 DOI:10.1080/11038128.2025.2463374

Josefine Lampinen, Ingeborg Nilsson, Mia Conradsson, Håkan Littbrand, Anna Sondell, Yngve Gustafson, Jerry Öhlin, Nina Lindelöf

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引用次数: 0

Abstract

Background: There is limited experience in combining interdisciplinary rehabilitation for persons with dementia and caregiver support.

Aim: To explore how informal caregivers perceive participation in a person-centred, multidimensional, interdisciplinary rehabilitation programme targeting community-dwelling older adults with dementia and their informal caregivers, and how the programme has influenced their everyday life.

Material and methods: Fourteen informal caregivers, aged 45-84 years, participated in a qualitative interview following a randomised controlled pilot study. Transcribed interviews were analysed using qualitative content analysis.

Results: The analysis resulted in seven categories and three themes: feeling challenged and boosted to face an uncertain future, perceiving supportive activities as sources of both joy and frustration in everyday life and finding relief in recognising their relative's former self.

Conclusions and significance: Combining interdisciplinary rehabilitation for adults with dementia with education and support for caregivers was perceived as viable and valuable for the informal caregivers. They felt strengthened by the rehabilitation and better prepared for their uncertain future. However, participation also challenged everyday routines, but the benefits appeared to outweigh the strain.

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非正式护理人员对参与痴呆症康复规划的看法。

背景：将痴呆症患者的跨学科康复与护理人员支持相结合的经验有限。目的：探讨非正式护理人员如何看待参与以人为本、多维度、跨学科的康复计划，该计划针对社区居住的老年痴呆症患者及其非正式护理人员，以及该计划如何影响他们的日常生活。材料和方法：14名年龄在45-84岁的非正式护理人员参加了一项随机对照试点研究后的定性访谈。访谈记录采用定性内容分析进行分析。结果：分析得出了七个类别和三个主题：面对不确定的未来感到挑战和鼓舞，将日常生活中的支持活动视为快乐和沮丧的来源，并在认识到亲人以前的自我时找到解脱。结论和意义：将成人痴呆患者的跨学科康复与护理人员的教育和支持相结合，对于非正规护理人员来说是可行和有价值的。他们感到康复使他们更加坚强，并为他们不确定的未来做好了更好的准备。然而，参与也挑战了日常生活，但好处似乎大于压力。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Scandinavian Journal of Occupational Therapy REHABILITATION-

CiteScore

3.40

自引率

15.80%

发文量

审稿时长

6-12 weeks

期刊介绍： The Scandinavian Journal of Occupational Therapy is an internationally well-recognized journal that aims to provide a forum for occupational therapy research worldwide and especially the Nordic countries. Scandinavian Journal of Occupational Therapy welcomes: theoretical frameworks, original research reports emanating from quantitative, qualitative and mixed methods studies, literature reviews, case studies, presentation and evaluation of instruments, evaluation of interventions, learning and teaching in OT, letters to the editor.