Inger Johanne Bakken, Thomas Nordbø Heyeraas, Øystein Døhl, Siri Rostoft, Inger Ariansen, Lisa Victoria Burrell
{"title":"Diagnoses among long-term care recipients in Norway: a nation-wide registry study on prevalence and data completeness.","authors":"Inger Johanne Bakken, Thomas Nordbø Heyeraas, Øystein Døhl, Siri Rostoft, Inger Ariansen, Lisa Victoria Burrell","doi":"10.1177/14034948251339873","DOIUrl":"https://doi.org/10.1177/14034948251339873","url":null,"abstract":"<p><strong>Background and aims: </strong>The Norwegian Registry for Primary Health Care (NRPHC) is a mandatory register for all publicly funded primary healthcare services in Norway, including long-term care (LTC) services. The registry holds information on diagnoses for recipients of LTC services, but little is known regarding data quality and completeness.</p><p><strong>Methods: </strong>The study population consisted of all LTC recipients in Norway in 2023 (<i>N</i>=393,446). We investigated the proportion registered with any diagnosis in NRPHC LTC data. We compared diagnoses reported by LTC providers with diagnoses reported by general practitioners and by specialist health services. Additionally, we investigated the distribution of diagnoses by type of LTC provided. Diagnoses presumed common among recipients of LTC were investigated (diabetes, cardiovascular diseases, chronic obstructive lung diseases, cancer, mental disorders/substance use disorders, dementia, intellectual disability and hip fracture).</p><p><strong>Results: </strong>Diagnoses were reported by LTC providers for 51.4% of LTC recipients. Diagnoses were more often reported for users with more complex services (long-term institutional stay: 85.5%; assistive technology: 30.5%). Including data from general practitioners and specialist health services increased prevalence estimates compared with using NRPHC LTC data alone (dementia: 14.2% vs 8.2%; chronic obstructive lung diseases: 12.7% vs. 4.1%). Based on all available data, the prevalence of reported dementia among recipients of long-term institutional stay was 58.7%. The prevalence of reported substance use disorders among recipients of home-based services was 13.4%.</p><p><strong>Conclusions: </strong>\u0000 <b>Data on diagnoses reported by LTC providers to the NRPHC are insufficient and should be supplemented with data from other sources.</b>\u0000 </p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"14034948251339873"},"PeriodicalIF":2.6,"publicationDate":"2025-05-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112405","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ida M Heerfordt, Josefine Windfeld-Mathiasen, Kim Peder Dalhoff, Jon Trærup Andersen, Henrik Horwitz
{"title":"Disability pension among androgenic-anabolic steroid users.","authors":"Ida M Heerfordt, Josefine Windfeld-Mathiasen, Kim Peder Dalhoff, Jon Trærup Andersen, Henrik Horwitz","doi":"10.1177/14034948251340489","DOIUrl":"https://doi.org/10.1177/14034948251340489","url":null,"abstract":"<p><strong>Aim: </strong>To examine the association between androgenic-anabolic steroid (AAS) use and the risk of being granted a permanent disability pension.</p><p><strong>Methods: </strong>This cohort study included 1189 Danish males, penalized under an antidoping programme for AAS use in fitness centres between 2006 and 2018. These individuals were paired with 59,450 control participants from the general population, matching them based on age, sex and inclusion date. The follow-up period extended until autumn 2022. The study measured the incidence of disability pension awards over the follow-up period. We adjusted for ethnic origin, educational level, Charlson comorbidity index, and psychiatric disorders at baseline, given their potential influence.</p><p><strong>Results: </strong>During follow-up, 57 AAS users and 1458 control participants were granted disability pension. Thus, AAS users showed a nearly twofold higher risk of becoming disabled compared with controls (unadjusted hazard ratio 1.95, 95% confidence interval 1.50-2.54). After adjustments, the risk of disability remained statistically significant (adjusted hazard ratio 1.57, 95% confidence interval 1.18-2.08).</p><p><strong>Conclusions: </strong>\u0000 <b>AAS use is significantly associated with an increased risk of disability pension award, meaning that these individuals are deemed to have lost their working ability permanently.</b>\u0000 </p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"14034948251340489"},"PeriodicalIF":2.6,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"How to approach sustainability in general practice: a workshop experience with a qualitative analysis amongst general practitioners in Denmark.","authors":"Sigrid Moesgaard Larsen, Nanna Holt Jessen, Bolette Friederichsen, John Brandt Brodersen, Ásthildur Árnadóttir","doi":"10.1177/14034948251333003","DOIUrl":"https://doi.org/10.1177/14034948251333003","url":null,"abstract":"<p><strong>Introduction: </strong>Healthcare systems are experiencing complex interconnected problems, such as rising health inequalities, climate change threats to human and planetary health, environmental and patient harm through defensive medical care, overdiagnosis, overuse, and overtreatment, population ageing, higher prevalence of multimorbidity, and professional shortage and burnout. This calls for sustainable solutions in healthcare. This article presents bottom-up suggestions from general practitioners (GPs) for sustainable solutions at the clinical level and identifies areas for support at the structural level framed within the concept of environmental, social and governance principles.</p><p><strong>Methods: </strong>At the annual meeting of the Danish College of General Practitioners, 55 GPs attended a workshop focussing on sustainability in general practice. The GPs were asked to actively contribute with their reflections on possible solutions to developing a more sustainable approach to the healthcare provided in general practice. Written responses were collected, analysed and categorised through an inductive analysis approach.</p><p><strong>Results: </strong>The workshop resulted in 101 ideas on how to foster sustainable change and identified areas of support. Half of the ideas (<i>n</i> = 51) were sustainable solutions at the clinical level, whereas the other half (<i>n</i> = 50) concerned suggestions at the structural level.</p><p><strong>Conclusions: </strong>\u0000 <b>The attendees articulated many suggestions for making Danish general practice more sustainable, both at the clinical level and at the structural level. Further research is needed to explore the potential of the presented ideas and gain higher cultural acceptance of prioritising sustainability in general practice.</b>\u0000 </p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"14034948251333003"},"PeriodicalIF":2.6,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112506","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christina R Bonnevie, Mia Y Olsen, Katrine H Rubin, Mette Bliddal, Lonny Stokholm
{"title":"Demographic and socioeconomic characteristics of the women invited to the COVIDPregDK cohort: a non-response analysis.","authors":"Christina R Bonnevie, Mia Y Olsen, Katrine H Rubin, Mette Bliddal, Lonny Stokholm","doi":"10.1177/14034948251332452","DOIUrl":"https://doi.org/10.1177/14034948251332452","url":null,"abstract":"<p><p><i>Aim</i>: This study aimed to examine the demographic characteristics associated with participation in the COVIDPregDK cohort, aiming to identify potential sources of selection bias. <i>Methods:</i> In this nationwide register-based cohort study, data were used from the COVIDPregDK study, which encompasses a cohort of pregnant women from 2020 and linked them to data from the Danish registries. A comparison between women responding and those who did not respond to the questionnaire was conducted to assess their demographic and socioeconomic characteristics. The associations between respondents and various characteristics were analysed using logistic regression models. <i>Results:</i> The questionnaire garnered a response rate of 60%, with participation from 17,047 pregnant women and non-participation from 11,577. Respondent women were most often 30-34 years of age, of Danish origin, highly educated, and had the highest family income than non-respondents. Additionally, women above 35 years represented the most decisive risk factor of responding (35-39: odds ratio (OR) 1.17 (95% confidence interval (CI) 1.08-1.27); 40+: OR 1.27 95% CI 1.10-1.48)). Characteristics of non-respondents: families with three or more children (OR 0.55 (95% CI 0.47-0.64)); immigrants (OR 0.38 (95% CI 0.35-0.40)) and descendants (OR 0.39 (95% CI 0.34-0.45)); low educated (OR 0.40 (95% CI 0.36-0.44)) and low income (OR 0.67 (95% CI 0.61-0.72)). <b><i>Conclusions:</i> This study found significant demographic and socioeconomic disparities between respondent and non-respondent pregnant women in the COVIDPregDK study, indicating higher participation from women with higher socioeconomic status. Despite the societal lockdown during COVID-19, the lockdown did not mitigate the pre-existing factors hindering women with low socioeconomic status from engaging in research.</b></p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"14034948251332452"},"PeriodicalIF":2.6,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Adolescent friendships and their impact on self-rated health in early adulthood. A prospective cohort study.","authors":"Trine N Winding, Jim Bøjstrup, Stine Christensen","doi":"10.1177/14034948251337336","DOIUrl":"https://doi.org/10.1177/14034948251337336","url":null,"abstract":"<p><strong>Aims: </strong>The study aimed to examine the association between adolescent friendships (ages 15 and 18 years) and self-rated health in early adulthood (age 29 years).</p><p><strong>Methods: </strong>The study population consisted of participants from the West Jutland cohort study who reported on their close friendships at ages 15 and 18 years, and self-rated health at age 29 years. The presence of at least one close friend and self-rated health were assessed through questionnaires, and self-rated health was dichotomized as either high or low. Logistic regression analyses were adjusted for sex, family functioning, income, and parental education.</p><p><strong>Results: </strong>Findings indicate that 89% of participants at age 15 years and 92% at age 18 years reported having close friends. The presence of close friendships at age 15 was significantly associated with higher self-rated health at age 29 years (odds ratio 1.9, 95% confidence interval 1.1-3.2). However, the association for friendships at age 18 years was not statistically significant. Experiencing close friendships at both ages 15 and 18 years showed a tendency toward an associated with self-rated health, but the association was not statistically significant (2.0, 95% confidence interval 0.6-6.6). Sensitivity analysis revealed that altering the self-rated health threshold weakened associations.</p><p><strong>Conclusions: </strong>\u0000 <b>This study emphasizes the importance of adolescent friendships for long-term health. While the association was strongest at age 15 years, the findings underscore the need for further research into friendship quality and its lasting impact on health outcomes. The study highlights the importance of close friendships, advocating for interventions to promote social connections and reduce loneliness during this critical period.</b>\u0000 </p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"14034948251337336"},"PeriodicalIF":2.6,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081505","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Do community-dwelling adults aged 70 and older have someone to rely on for help when needed? A Trøndelag Health Study (HUNT).","authors":"Bjørn Heine Strand, Ellen Melbye Langballe","doi":"10.1177/14034948251338678","DOIUrl":"https://doi.org/10.1177/14034948251338678","url":null,"abstract":"<p><strong>Aims: </strong>Independent living among older adults is a global political goal aimed at reducing government spending on health and care services. This study investigates the prevalence of having someone to rely on for help when needed among community-dwelling adults aged 70 and older.</p><p><strong>Methods: </strong>The study sample comprised population-based data from 24,289 adults aged 70 or older participating in the Trøndelag Health Study (HUNT4). Standardized prevalence of having someone to rely on for help if needed in total, and from family, friends, or neighbors was estimated using Trøndelag county as the standard population. Prevalences were additionally stratified by gender, age, living situation, activities of daily living (ADL), and utilization of home-based services.</p><p><strong>Results: </strong>Standardized results showed that overall, 97.3% reported having someone to ask for help if needed, of whom 92.5% relied on family, 31.7% on friends, 23.1% on neighbors. The youngest men living alone had fewer to rely on compared to those living with others. Moreover, living alone was associated with relying less on family and more on friends and neighbors. Factors associated with relying on family members were female gender, younger age, cohabitation, no ADL problems, and no home-based services. Along with education, these factors also correlated with relying on friends for help.</p><p><strong>Conclusions: </strong>\u0000 <b>Nearly all those aged 70 and older in Norway have someone to ask for help, which is positive for aging in place policies. However, those living alone, especially men, are at a higher risk of not having anyone to rely on for help when needed.</b>\u0000 </p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"14034948251338678"},"PeriodicalIF":2.6,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Laura Esteve-Matalí, Sergio Salas-Nicás, Clara Llorens-Serrano, Albert Navarro-Giné
{"title":"Employment protection policies in the COVID-19 context: Did they protect workers' mental health? An intersectional perspective of the Spanish case.","authors":"Laura Esteve-Matalí, Sergio Salas-Nicás, Clara Llorens-Serrano, Albert Navarro-Giné","doi":"10.1177/14034948251332510","DOIUrl":"https://doi.org/10.1177/14034948251332510","url":null,"abstract":"<p><p><i>Aim:</i> To assess differences in the prevalence of poor mental health of the Spanish salaried population according to the labour situation (employed, unemployed, under a suspension-furlough or under a reduction-furlough), from an intersectional perspective (sex and occupational class), 1 year after the outbreak of the COVID-19 pandemic. <i>Methods:</i> Cross-sectional study by means of a self-administered online questionnaire, on the Spanish salaried population. Final sample: 22,210 participants. Data collection: April-May 2021. Outcome variable: poor mental health (Mental Health Inventory Short-Form-36 scale). Explanatory variable: current employment status. Stratification variables: sex and occupational class. Confounding variables: age, occupational group, type of contract, living with children under 12-years old and living with chronic or disabled people. A descriptive analysis was carried out and prevalence and prevalence ratios (PR with 95% confidence interval (95%CI)) were estimated by means of robust Poisson regression models. <i>Results:</i> Around 55% of the sample presented poor mental health outcomes. Employed people have less frequent mental health problems than those unemployed (PR: 0.83; 95%CI: 0.79-0.87). In terms of the association between furlough and mental health, different patterns are glimpsed between men and women and, among these, between manual and non-manual workers. Manual men in a suspension-furlough had less frequent mental health problems than those unemployed (PR: 0.75; 95%CI: 0.62-0.91). <b><i>Conclusions:</i> This study suggests new insights into the patterns of association observed between furlough and workers' mental health, helping to understand the phenomenon and better design future employment protection policies, which should include a gender and class perspective to avoid the introduction of mental health inequalities.</b></p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"14034948251332510"},"PeriodicalIF":2.6,"publicationDate":"2025-05-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Smoking among immigrants in Norway: a cross-sectional study.","authors":"Marte K R Kjøllesdal, Thor Indseth","doi":"10.1177/14034948231221178","DOIUrl":"10.1177/14034948231221178","url":null,"abstract":"<p><strong>Background: </strong>Smoking among immigrants varies by country background and is high in some groups. More detailed information about smoking prevalence by country background and sociodemographic factors is needed to target interventions.</p><p><strong>Methods: </strong>Data from the Survey on Living Conditions among immigrants 2016 were used, including immigrants from 12 countries and with ⩾2 years of residence (<i>N</i> = 3565). Data on smoking (daily and occasional) by country of birth, sex, age group, education, duration of residence, age at immigration, proficiency in the Norwegian language, and social support were reported.</p><p><strong>Results: </strong>The highest proportions of daily smokers were seen among immigrants from Turkey (36%), Poland (34%), and Vietnam (29%) for men, and from Turkey (22%), Bosnia-Herzegovina (18%), and Poland (17%) for women. Differences in smoking by sociodemographic factors varied with country background, but for several groups of men, the lowest proportions of smokers were seen among those with the highest educational level, those who were employed, and those who immigrated during childhood or adolescence.</p><p><strong>Conclusions: </strong>\u0000 <b>Policies are warranted that target smoking among immigrant men in general, and particularly among men from Turkey, Poland, and Vietnam, as well as for women from Turkey, Bosnia-Herzegovina, and Poland.</b>\u0000 </p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"233-241"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140094910","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mathilde M B Sloth, Emma Neble Larsen, Jimmi Mathisen, Charlotte J Nilsson, Merete Osler, Terese S H Jørgensen
{"title":"Adult offspring's education and parental mortality: A nationwide cohort study of the mediating role of lifestyle-related diseases.","authors":"Mathilde M B Sloth, Emma Neble Larsen, Jimmi Mathisen, Charlotte J Nilsson, Merete Osler, Terese S H Jørgensen","doi":"10.1177/14034948241234711","DOIUrl":"10.1177/14034948241234711","url":null,"abstract":"<p><p><i>Aim:</i> The mechanisms behind the association between adult offspring's socioeconomic position and their parents' mortality are not well understood. This study investigates lifestyle-related diseases as a potential mediating pathway between adult offspring's education and parental mortality. <i>Methods:</i> This nationwide register-based cohort study consists of 963,742 older adults aged 65 years between 2000 and 2018. Lifestyle-related diseases were measured between 60 and 65 years and those with prior lifestyle-related diseases were excluded. Natural Effect Models were performed to assess potential mediation through lifestyle-related diseases of the association between offspring's education and parental mortality measured by additive hazard estimates with 95% confidence intervals (CIs). <i>Results:</i> Between 60 and 65 years, 150,501 (15.6%) older adults were diagnosed with lifestyle-related diseases and 149,647 (15.5%) died during follow-up. Compared with having offspring with long education, short education was associated with 631 (95% CI: 555; 707) and 581 (95% CI: 525; 638) additional deaths per 100,000 person-years for women and men, respectively, of which 15.4% (95% CI: 9.0; 21.6) and 16.8% (95% CI: 14.6; 18.9) were mediated by lifestyle-related diseases. The corresponding numbers for medium education were 276 (95% CI: 205; 347) and 299 (95% CI: 255; 343) with 26.2% (95% CI: 12.0; 40.6) and 27.6% (95% CI: 25.1; 31.8) mediated by lifestyle-related diseases. <b><i>Conclusions:</i> Lifestyle-related diseases accounted for 15-28% of the association between offspring's education and parental mortality for both men and women.</b></p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"258-267"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140208050","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Borgunn Ytterhus, Marit Hafting, Vibecke Ulvær Vallesverd, Eli Marie Wiig, Ellen Katrine Kallander, Marianne Vibeke Trondsen
{"title":"Children as next of kin's experiences, practices, and voice in everyday life: a systematic review of studies with Norwegian data (2010-2022).","authors":"Borgunn Ytterhus, Marit Hafting, Vibecke Ulvær Vallesverd, Eli Marie Wiig, Ellen Katrine Kallander, Marianne Vibeke Trondsen","doi":"10.1177/14034948241232040","DOIUrl":"10.1177/14034948241232040","url":null,"abstract":"<p><p><b>Aims:</b> This systematic review aims to identify and describe how children of parents with mental illness, substance dependence, or severe physical illness/injury, experience and practise their everyday life. <b>Methods:</b> The review followed the four stepwise recommendations of Harden and colleagues when including quantitative and qualitative studies on peoples' experiences and views. In all, 23 studies with data from Norway (2010-2022) have been included. Brown and Clark's thematic analysis was applied. <b>Results:</b> Three themes were constructed from the reviewed articles: (a) Children practice their relational agency by actively doing practical tasks, occasionally jobs to maintain family economy, and organising fun activities with the ill parent. (b) Emotional ambivalence when their own needs were set aside in favour of the parents. They loved their parents but also felt guilt, anger, disappointment, shame, fear of inheriting the illness and longed for a 'normal' everyday life. (c) Supportive contextual factors were, for example, at least one significant adult recognising them, participating in leisure activities, socialising with friends, and talking with other peers who shared similar experiences as next of kin. Obstructive factors were lack of information and recognition as well as silence and lack of dialogue within the family and/or health professional. <b>Conclusions:</b> <b>There is a strong need for more knowledge and competence on the situation and needs of these children when it comes to professionals, parents and the public. Public health initiatives are needed to honour their agency and recognise their contributions in present time to prevent psychosocial problems later in life.</b></p>","PeriodicalId":49568,"journal":{"name":"Scandinavian Journal of Public Health","volume":" ","pages":"311-329"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12012270/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}