Peter H Watson, Sara Y Nussbeck, Candace Carter, Sheila O'Donoghue, Stefanie Cheah, Lise A M Matzke, Rebecca O Barnes, John Bartlett, Jane Carpenter, William E Grizzle, Randal N Johnston, Anne-Marie Mes-Masson, Leigh Murphy, Katherine Sexton, Lois Shepherd, Daniel Simeon-Dubach, Nikolajs Zeps, Brent Schacter
{"title":"A framework for biobank sustainability.","authors":"Peter H Watson, Sara Y Nussbeck, Candace Carter, Sheila O'Donoghue, Stefanie Cheah, Lise A M Matzke, Rebecca O Barnes, John Bartlett, Jane Carpenter, William E Grizzle, Randal N Johnston, Anne-Marie Mes-Masson, Leigh Murphy, Katherine Sexton, Lois Shepherd, Daniel Simeon-Dubach, Nikolajs Zeps, Brent Schacter","doi":"10.1089/bio.2013.0064","DOIUrl":"https://doi.org/10.1089/bio.2013.0064","url":null,"abstract":"<p><p>Each year funding agencies and academic institutions spend millions of dollars and euros on biobanking. All funding providers assume that after initial investments biobanks should be able to operate sustainably. However the topic of sustainability is challenging for the discipline of biobanking for several major reasons: the diversity in the biobanking landscape, the different purposes of biobanks, the fact that biobanks are dissimilar to other research infrastructures and the absence of universally understood or applicable value metrics for funders and other stakeholders. In this article our aim is to delineate a framework to allow more effective discussion and action around approaches for improving biobank sustainability. The term sustainability is often used to mean fiscally self-sustaining, but this restricted definition is not sufficient for biobanking. Instead we propose that biobank sustainability should be considered within a framework of three dimensions - financial, operational, and social. In each dimension, areas of focus or elements are identified that may allow different types of biobanks to distinguish and evaluate the relevance, likelihood, and impact of each element, as well as the risks to the biobank of failure to address them. Examples of practical solutions, tools and strategies to address biobank sustainability are also discussed. </p>","PeriodicalId":49231,"journal":{"name":"Biopreservation and Biobanking","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2014-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1089/bio.2013.0064","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40300294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"生物学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marcel Bruinenberg, Martin Frey, Mary Napier, Annette Summers
{"title":"Comparing the hub-and-spoke model practices of the LifeLines Study in the Netherlands and the H3Africa Initiative.","authors":"Marcel Bruinenberg, Martin Frey, Mary Napier, Annette Summers","doi":"10.1089/bio.2013.0057","DOIUrl":"https://doi.org/10.1089/bio.2013.0057","url":null,"abstract":"<p><p>Biobank sample storage is critical in population health and epidemiology studies. Biobanks bridge two very different worlds: they connect to the participants and patients at an individual level, but they also aggregate information and represent the cutting edge of scientific discovery. In this brief report, we describe how the LifeLines study in the Netherlands manages its resources for communication and services, and how it can serve as a model for the Human Heredity and Health in Africa Initiative (H3Africa Initiative). </p>","PeriodicalId":49231,"journal":{"name":"Biopreservation and Biobanking","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2014-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1089/bio.2013.0057","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40302960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"生物学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}