Social Science & Medicine最新文献

筛选
英文 中文
Psychosocial adversities in adulthood among individuals raised with family members with disabilities 与残疾家庭成员一起长大的个体成年后的社会心理逆境
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-24 DOI: 10.1016/j.socscimed.2025.118016
Anna Amilon, Stine Vernstrøm Østergaard, Rikke Fuglsang Olsen
{"title":"Psychosocial adversities in adulthood among individuals raised with family members with disabilities","authors":"Anna Amilon,&nbsp;Stine Vernstrøm Østergaard,&nbsp;Rikke Fuglsang Olsen","doi":"10.1016/j.socscimed.2025.118016","DOIUrl":"10.1016/j.socscimed.2025.118016","url":null,"abstract":"<div><div>Despite millions of individuals worldwide growing up with family members who have disabilities, little is known about how this experience is associated with long-term outcomes. We address this gap by examining how growing up with a parent and/or sibling with a disability is associated with individuals’ psychosocial situation in adulthood. Using retrospective information from the 2020 wave of the Survey of Health, Impairment and Living Conditions in Denmark (SHILD, N = 15,699), we explore how growing up in a family with disability is associated with <em>loneliness, social</em> <em>support</em><em>, general self-efficacy, subjective well-being</em>, and feelings of <em>resentment</em> in adulthood. Our results from linear probability models suggest that growing up with a parent and/or sibling with a disability increases the likelihood of experiencing loneliness, low subjective well-being, and reduced self-efficacy. Additionally, we find that individuals who grow up in a family with disability are more likely to report a lack of social support and heightened feelings of resentment. We conclude that growing up with a parent and/or sibling with a disability is associated with a wide range of psychosocial adversities in adulthood. However, having a disability oneself is even more detrimental for psychosocial outcomes. These findings highlight the need for strengthened support for families with disabilities to improve psychosocial outcomes and break cycles of intergenerational disadvantage.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"372 ","pages":"Article 118016"},"PeriodicalIF":4.9,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143697519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How medical students learn about the social: Opportunities and limitations in service learning and volunteering 医学生如何学习社会:服务学习和志愿服务的机会和限制
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-24 DOI: 10.1016/j.socscimed.2025.118018
Brian Tuohy , Lauren Olsen , Hannah Calvelli
{"title":"How medical students learn about the social: Opportunities and limitations in service learning and volunteering","authors":"Brian Tuohy ,&nbsp;Lauren Olsen ,&nbsp;Hannah Calvelli","doi":"10.1016/j.socscimed.2025.118018","DOIUrl":"10.1016/j.socscimed.2025.118018","url":null,"abstract":"<div><div>Medical education's integration of social determinants of health (SDOH) is essential for fostering equitable and comprehensive patient care. Despite this need, many medical schools struggle to effectively teach SDOH due in part to the hidden curriculum—subtle, institutional norms and values that implicitly shape student learning and, in this case, undermine an appreciation of SDOH. This article examines the potential and limitations of service learning (SL) as an experiential learning modality to address these challenges. Traditional didactic methods often fail to capture the complex, relational aspects of modern medical practice, necessitating a more interactive and community-engaged approach. When grounded in principles of justice and community partnership, SL can help transform medical students from passive recipients of knowledge into active, critical thinkers. We identify four key outcomes of SL in medical education: 1) development of empathic and reflective practices, 2) explicit engagement with social injustices, 3) promotion of diverse perspectives, and 4) cultivation of advocacy skills. To explore these possibilities, we present a case study of an urban medical school's SL program focused on prison health and mass incarceration, using it as a heuristic tool to illustrate both the strengths and challenges of SL in medical education. Through this analysis, we demonstrate how SL can disrupt the hidden curriculum, deepen students' understanding of SDOH, and enhance their ability to provide compassionate, equitable care while highlighting the need for future empirical research that systematically assess SL's long-term impact on medical education and health equity.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"374 ","pages":"Article 118018"},"PeriodicalIF":4.9,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143791046","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
When youth record police: Investigating officer intrusion and mental health repercussions among Black youth in Baltimore City, Maryland 当青年记录警察:调查在马里兰州巴尔的摩市黑人青年中的警察入侵和心理健康影响
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-24 DOI: 10.1016/j.socscimed.2025.118001
Dylan B. Jackson , Rebecca L. Fix , Alexander Testa , Lindsey Webb , Tamar Mendelson
{"title":"When youth record police: Investigating officer intrusion and mental health repercussions among Black youth in Baltimore City, Maryland","authors":"Dylan B. Jackson ,&nbsp;Rebecca L. Fix ,&nbsp;Alexander Testa ,&nbsp;Lindsey Webb ,&nbsp;Tamar Mendelson","doi":"10.1016/j.socscimed.2025.118001","DOIUrl":"10.1016/j.socscimed.2025.118001","url":null,"abstract":"<div><h3>Rationale</h3><div>Recording the police is a high-stakes racial justice issue for minoritized youth and communities. No studies to date have explored youths’ efforts to record police and the mental health impacts of these experiences for youth.</div></div><div><h3>Objective</h3><div>This study examined the features and mental health repercussions of in-person stops where youth attempted to record police.</div></div><div><h3>Methods</h3><div>Data come from the Survey of Police-Adolescent Contact Experiences (SPACE), a cross-sectional survey of a community sample of Black youth ages 12–21 in Baltimore City, Maryland (<em>n</em> = 345), administered from August 2022 to July 2023.</div></div><div><h3>Results</h3><div>Youth commonly attempted to record police during direct stops (33.63%) and in-person witnessed stops (39.18%). Across both types of stops, youths’ attempts to record police were strongly associated with all forms of officer intrusion. Recording the police was also associated with significantly elevated police-initiated post-traumatic stress symptoms (PI-PTSS), even when adjusting for officer intrusion and other covariates. Recording the police was most relevant to PI-PTSS for stops with little to no officer intrusion.</div></div><div><h3>Conclusion</h3><div>In addition to systemic change that eliminates inequities in police violence against minoritized youth and communities, trauma-informed supports may be needed for youth who attempt to record police stops – even when stops feature little to no officer intrusion.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"373 ","pages":"Article 118001"},"PeriodicalIF":4.9,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143760445","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The burden of mental health and somatic disorders among people experiencing incarceration later in life: A 13-year cohort study 经历监禁的人的精神健康负担和躯体疾病:一项为期13年的队列研究
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-24 DOI: 10.1016/j.socscimed.2025.118007
Torill Tverborgvik , Marianne Riksheim Stavseth , Nicoline Toresen Lokdam , Amalie Jordan , Anne Bukten
{"title":"The burden of mental health and somatic disorders among people experiencing incarceration later in life: A 13-year cohort study","authors":"Torill Tverborgvik ,&nbsp;Marianne Riksheim Stavseth ,&nbsp;Nicoline Toresen Lokdam ,&nbsp;Amalie Jordan ,&nbsp;Anne Bukten","doi":"10.1016/j.socscimed.2025.118007","DOIUrl":"10.1016/j.socscimed.2025.118007","url":null,"abstract":"<div><h3>Background</h3><div>The growing number of older incarcerated individuals presents unique challenges for prison systems traditionally tailored for younger, healthier populations. Research on this demographic is crucial for informing effective health and correctional policies.</div></div><div><h3>Method</h3><div>Using data from the nPRIS-cohort, all people incarcerated at age 50 or older in Norway 2010–2022 were included. Study prevalence for selected disorders were calculated based on ICD-10 diagnoses registered in The Norwegian Patient Registry up until a person's last release date. One-year prevalence was calculated at prison entry each calendar year.</div></div><div><h3>Results</h3><div>Including 1120 women and 9667 men; 63 % of women and 62 % of men aged 50–64, and 70 % of women and 75 % of men aged 65+ were diagnosed with a somatic disorder. Among women, 63 % (50–64 years) and 49 % (65+ years) had a mental health disorder, as did 53 % and 38 % of the men. There were significant differences in diagnostic prevalence between sex and age groups. Thirty-eight percent of the population had comorbid diagnoses, higher among the youngest women (50–64 year: 46 %). The one-year prevalence of individuals with mental disorders increased from 23 % in 2010 to 34 % in 2022, while the one-year prevalence of communicable and noncommunicable diseases remained consistent over time.</div></div><div><h3>Conclusions</h3><div>This study presents the first comprehensive description of the mental and somatic health burden of older individuals incarcerated in Norway. Our results underscore the urgent need for correctional and health services to implement tailored interventions that address the unique healthcare requirements of this aging population.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"373 ","pages":"Article 118007"},"PeriodicalIF":4.9,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143735310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gender affirming medical care access: The role of healthcare stereotype threat and social support in a national probability sample of transgender adults 性别肯定医疗服务获取:医疗保健刻板印象威胁和社会支持在全国跨性别成人概率样本中的作用
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-24 DOI: 10.1016/j.socscimed.2025.118014
Madeline Smith-Johnson, Katherine Alexander
{"title":"Gender affirming medical care access: The role of healthcare stereotype threat and social support in a national probability sample of transgender adults","authors":"Madeline Smith-Johnson,&nbsp;Katherine Alexander","doi":"10.1016/j.socscimed.2025.118014","DOIUrl":"10.1016/j.socscimed.2025.118014","url":null,"abstract":"<div><div>Transgender adults face persistent barriers to gender-affirming medical care (GAC)—medical interventions related to a person's gender expression. Extensive qualitative research suggests that accessing GAC is stressful partly because of anticipated stigma from providers and healthcare systems, but that social support from loved ones helps trans adults persist in seeking care. We know less about how anticipated stigma and social support relate to GAC access at the population level. This study utilizes a nationally representative sample of trans adults who want GAC (N = 204) from the U.S. Transgender Population Health Survey (2016–2018). We ask whether anticipated stigma in healthcare (operationalized as healthcare stereotype threat (HCST), or the worry a person has about being judged, mistreated, or stereotyped by providers because of their gender identity or sexual orientation) and perceived social support are associated with GAC utilization for trans adults. We find a significant positive relationship between GAC utilization and HCST, global social support, and significant other support. We also find a significant interaction between HCST and social support where greater HCST is only associated with greater GAC utilization at high levels of social support. These findings underscore the importance of social relationships like peer advocates and chosen families in supporting necessary medical care for trans adults who want it and the importance of increasing culturally competent care in healthcare settings for gender-diverse people.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"373 ","pages":"Article 118014"},"PeriodicalIF":4.9,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143735308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Race and gender disparities in pain treatment and opioid prescribing 疼痛治疗和阿片类药物处方中的种族和性别差异
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-22 DOI: 10.1016/j.socscimed.2025.118011
Peter Joseph Torres
{"title":"Race and gender disparities in pain treatment and opioid prescribing","authors":"Peter Joseph Torres","doi":"10.1016/j.socscimed.2025.118011","DOIUrl":"10.1016/j.socscimed.2025.118011","url":null,"abstract":"<div><div>This study employs corpus-based discourse analysis to investigate racial and gender disparities in opioid prescribing practices. Analysis of 171 medical interactions in the United States from 2008 to 2020, drawn from the Verilogue corpus of doctor-patient dialogue, revealed a significant relationship between patients' race and physicians' prescribing behaviors. By systematically examining the stages in which patients were either prescribed or denied opioids, this study quantifies the challenges faced by patients as they navigate opioid-related discussions.</div><div>Statistical analyses revealed that patient race was significantly associated with whether patients were prescribed and offered opioids, while gender did not show any significant association. Logistic regression analysis revealed that racial and ethnic minorities (REMs) had significantly lower odds of being prescribed opioids for their pain. REMs were also less likely to be offered opioids, resulting in them having to initiate requests for this fraught medication.</div><div>Discourse analysis of excerpts is provided to offer deeper insights into these disparities, highlighting patterns of increased scrutiny and hesitance in prescribing opioids to REM patients, even when they reported severe pain. In contrast, interactions with White patients often demonstrated more relaxed prescribing practices and increased patient autonomy in treatment decisions.</div><div>These findings align with current research on inequities in pain treatment across communities. By illuminating these disparities, this research emphasizes the importance of understanding various culturally-dependent linguistic practices, such as the diverse ways individuals express pain.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"374 ","pages":"Article 118011"},"PeriodicalIF":4.9,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143808586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“I get to relate to my patients”: Latinx medical students and residents’ navigational capital in medical education “我和我的病人有关系”:拉丁裔医科学生和住院医生在医学教育中的导航资本
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-22 DOI: 10.1016/j.socscimed.2025.118003
Nicole A. Perez , Sarah Medina-Aguirre , Pilar Ortega , Monica Vela , Laura E. Hirshfield
{"title":"“I get to relate to my patients”: Latinx medical students and residents’ navigational capital in medical education","authors":"Nicole A. Perez ,&nbsp;Sarah Medina-Aguirre ,&nbsp;Pilar Ortega ,&nbsp;Monica Vela ,&nbsp;Laura E. Hirshfield","doi":"10.1016/j.socscimed.2025.118003","DOIUrl":"10.1016/j.socscimed.2025.118003","url":null,"abstract":"<div><div>While the U.S. Latinx population has rapidly increased in the past 30 years, the number of Latinx physicians has not kept pace. Latinx students are often motivated to pursue medicine to serve those in their communities, which benefits Latinx community health outcomes through patient-clinician cultural and linguistic concordance. However, significant barriers often prevent Latinx people from successfully navigating the transition to and through medical school. This study utilized a qualitative, constructivist approach to investigate the transition to and through medical school and residency to further understand and prevent leakages for aspiring Latinx physicians. Using an assets-based framework of Community Cultural Wealth (CCW), we specifically explored navigational capital, to understand how Latinx learners navigate belonging in medicine. Through semi-structured interviews with 20 Latinx medical students and 14 residents, we found that learners understood and created belonging by navigating help-seeking and the imposter phenomenon through their respective pathways in medicine. Findings from this study may be used to develop support systems and resources to reduce the structural inequalities, barriers, and challenges Latinx students and future physicians encounter through medical education pathways.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"372 ","pages":"Article 118003"},"PeriodicalIF":4.9,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143695927","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“Feeling your emotions is an act of rebellion:” How climate cafés across Canada support youth wellbeing during the climate crisis 感受自己的情绪是一种叛逆行为:“加拿大各地的气候卡姆斯如何在气候危机期间支持年轻人的福祉。
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-22 DOI: 10.1016/j.socscimed.2025.118002
Madison E. Cooper , Ashlee Cunsolo , Breanne Aylward , Shelby S. Yamamoto , Sherilee L. Harper
{"title":"“Feeling your emotions is an act of rebellion:” How climate cafés across Canada support youth wellbeing during the climate crisis","authors":"Madison E. Cooper ,&nbsp;Ashlee Cunsolo ,&nbsp;Breanne Aylward ,&nbsp;Shelby S. Yamamoto ,&nbsp;Sherilee L. Harper","doi":"10.1016/j.socscimed.2025.118002","DOIUrl":"10.1016/j.socscimed.2025.118002","url":null,"abstract":"<div><div>The profound impact of climate change on the emotional and psychological wellbeing of youth is becoming increasingly evident. Climate cafés are emerging as venues where youth can gather to discuss their thoughts and feelings about the climate crisis. This study explored youth experiences at climate cafés in Canada, aiming to characterize how climate cafés affect their emotional and psychological resilience in dealing with climate-related emotions. Semi-structured, conversation-style interviews were conducted with both youth attendees (ages 16–24) (<em>n</em> = 7) and facilitators of climate cafés (<em>n</em> = 10). Through thematic analysis, including found poetry techniques, reframing activism emerged as an overarching theme along with three sub-themes: climate cafés as active-listening, community building, and action-free spaces. Participants described how climate cafés encourage shifting how they view climate activism from a focus on external actions to a practice that incorporates emotional processing and resilience building. As a designated space to share their thoughts and feelings around climate change, climate cafés were described as a space that promotes active-listening and community building; inspires vulnerability which can favourably lead to connection, empathy, and meaningful engagement in climate action. Lastly, they have the ability to influence youths’ beliefs of their own worthiness. Overall, youth attendees and facilitators concluded that climate cafés serve as a valuable resource for managing burnout and sustaining meaningful climate action. Ensuring the accessibility of feeling-centered healing spaces could aid youth in processing climate emotions and reducing the current and future impacts to their wellbeing.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"376 ","pages":"Article 118002"},"PeriodicalIF":4.9,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143874784","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Equity in health care and health: Contributions from health economics 医疗保健和健康的公平性:卫生经济学的贡献
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-22 DOI: 10.1016/j.socscimed.2025.117997
John Cullinan , Paula Lorgelly
{"title":"Equity in health care and health: Contributions from health economics","authors":"John Cullinan ,&nbsp;Paula Lorgelly","doi":"10.1016/j.socscimed.2025.117997","DOIUrl":"10.1016/j.socscimed.2025.117997","url":null,"abstract":"","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"372 ","pages":"Article 117997"},"PeriodicalIF":4.9,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143697520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Whole genome, part population: Protection, representation and postcolonial politics in precision medicine 全基因组,部分人口:精准医学中的保护,代表和后殖民政治
IF 4.9 2区 医学
Social Science & Medicine Pub Date : 2025-03-22 DOI: 10.1016/j.socscimed.2025.117998
Laura E. Navne , Sarah Wadmann , Ingelise Olesen , Torben Hansen , Anne Cathrine B. Thuesen , Mette N. Svendsen
{"title":"Whole genome, part population: Protection, representation and postcolonial politics in precision medicine","authors":"Laura E. Navne ,&nbsp;Sarah Wadmann ,&nbsp;Ingelise Olesen ,&nbsp;Torben Hansen ,&nbsp;Anne Cathrine B. Thuesen ,&nbsp;Mette N. Svendsen","doi":"10.1016/j.socscimed.2025.117998","DOIUrl":"10.1016/j.socscimed.2025.117998","url":null,"abstract":"<div><div>How do researchers and clinicians assemble a rare diabetes population and navigate challenges of inclusion and exclusion built into the vision of precision medicine? Precision medicine envisions tailoring diagnoses and targeting treatment to the individual patients based on primarily genetic data. In this article, researchers across the disciplines of health and social science and across Denmark and Kalaallit Nunaat (Greenland) write together about how the multiple situational ethics operate simultaneously in the field of precision medicine and rare diseases. Based on ethnographic fieldwork in a large-scale Danish genomic research project called TRANSLATE in Denmark, this paper contributes with much needed knowledge of the day-to-day moral navigation of the intersections of protection and representation “on the ground” in precision medicine research. First, we explore the ethical concerns experienced in recruitment work in the Danish clinics and second, the particular ethical concerns arising when genetic researchers seek to include Greenlandic patients in their study population. We show that in the process of including and excluding patients, the researchers and clinicians come to feel stretched out between historical shadows of medical malpractice and colonial power and present day attempts to enhance public health. We end with a discussion of possible ways forward in the complex landscape of genomic data politics pointing to the possibilities as well as the limits of citizen engagement and collaborative approaches to data governance.</div></div>","PeriodicalId":49122,"journal":{"name":"Social Science & Medicine","volume":"376 ","pages":"Article 117998"},"PeriodicalIF":4.9,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143878598","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信