Journal of Pediatric Psychology最新文献

{"title":"Online environmental scan and content analysis of social stories about needle procedures.","authors":"Olivia Dobson, Carter Janssen, Anna Taddio, Frank J Symons, C Meghan McMurtry","doi":"10.1093/jpepsy/jsaf025","DOIUrl":"10.1093/jpepsy/jsaf025","url":null,"abstract":"<p><p>Needle procedures are often difficult for autistic children. Preparatory education is an evidence-based strategy that is especially important for autistic children given they commonly struggle with unpredictability. Carol Gray developed Social Stories to walk autistic children through new/challenging situations step-by-step. Although needle-related Social Stories exist online, no research has investigated whether their content aligns with best practices for needle pain and fear management and Gray's guidelines for Social Story development.</p><p><strong>Objective: </strong>This study aimed to characterize the content of online Social Stories about vaccination and venipuncture. Specifically, the degree to which Social Stories (a) depict evidence-based/helpful and unhelpful coping strategies, (b) follow Gray's guidelines, and (c) depict accurate procedural steps, was examined in an exploratory manner.</p><p><strong>Methods: </strong>An online environmental scan (systematic method of collecting and synthesizing information) characterized the content of Social Stories. A Google search was conducted, including free, English-language stories. After screening, two coders conducted deductive content analysis (>80 codes) with the sample of 82 eligible Social Stories; frequency statistics and quotes were derived.</p><p><strong>Results: </strong>Most Social Stories focused on vaccination (89%). Social Stories commonly conveyed evidence-based strategies (e.g., 70% depicted distraction), accurate procedural information (e.g., >80% depicted step of needle insertion), and followed Gray's guidelines (e.g., 90% had meaningful titles). Several areas for improvement exist, including allowing for user customization and depicting less commonly shown evidence-based strategies like topical anesthetics.</p><p><strong>Conclusion: </strong>Social Stories may have utility for supporting autistic children and their caregivers through needle procedures. Examining effectiveness/outcomes of usage is a future research avenue.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"500-510"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12206299/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144032574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Siblings in families of children with chronic disorders: a model of risk and protective factors.","authors":"Solveig M Kirchhofer, Stian Orm, Nancy E Briggs, Trude Fredriksen, Erica Zahl, Caitlin M Prentice, Matteo Botta, Lauren Kelada, Ursula M Sansom-Daly, Torun M Vatne, Krister W Fjermestad","doi":"10.1093/jpepsy/jsaf017","DOIUrl":"10.1093/jpepsy/jsaf017","url":null,"abstract":"<p><strong>Objective: </strong>We empirically tested a family systems model's ability to explain variance in psychosocial adjustment among siblings of children with chronic developmental and physical disorders (CDs). The model included the impact of CD severity, family social support, parental mental health, and parent-sibling communication quality. We hypothesized that family social support would moderate the relationship between CD severity and parent mental health, and that sibling-reported communication quality with their parents would mediate the relationship between parent mental health and sibling psychosocial adjustment.</p><p><strong>Methods: </strong>We used baseline data from a sibling intervention trial (SIBS-RCT) comprising 288 families with siblings aged 8-16 years and their parents, recruited from health services and user organizations. Parents reported CD severity, parental mental health, and family social support. Siblings self-reported their psychosocial adjustment, including mental health, CD-related adjustment, quality of life, and prosocial behavior. We employed structural equation modeling to test the hypothesized relationships.</p><p><strong>Results: </strong>Higher parent-sibling communication quality was significantly associated with better sibling-reported quality of life and more prosocial behavior. Lower levels of paternal depression were significantly associated with better sibling-reported quality of life and mental health, whereas maternal depression was not. We did not find support for the hypothesized mediating and moderating pathways for family social support and parent-sibling communication.</p><p><strong>Conclusions: </strong>The findings highlight the importance of addressing paternal mental health and parent-sibling communication in promoting sibling psychosocial adjustment. Future studies should use comprehensive, multi-informant approaches and consider the complex interplay of family factors in the context of childhood CD.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"488-499"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12206301/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144021145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bouncing Back Better: development of a family intervention program after young child burn injury.","authors":"Nakisa Asefnia, Aaron Mun, Carrie Tully","doi":"10.1093/jpepsy/jsaf027","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf027","url":null,"abstract":"<p><strong>Objective: </strong>Burn injuries are a common form of unintentional childhood injury. The psychological sequelae of pediatric burn injury on the injured child and caregivers can be significant, including traumatic stress, anxiety, and depression. Factors such as parent capacity for monitoring and child ADHD (attention-deficit/hyperactivity disorder) symptoms can significantly increase the risk of injury in early childhood. A dual-foci intervention was created to improve family functioning and coping after a burn injury. The current proof-of-concept study examines the Bouncing Back Better (BBB) intervention, which targets parent mood and child externalizing behaviors after unintentional burn injury.</p><p><strong>Methods: </strong>BBB intervention was completed by 10 parent-child dyads (12 enrolled). Inclusion comprised children (2-5 years) who sustained an unintentional burn injury and demonstrated hyperactivity symptoms upon standard clinical care psychosocial screening. BBB included four (30-45 min) sessions that involve CBT-focused behavioral intervention skills. Feasibility was assessed through recruitment, enrollment, and retention rates. Acceptability was assessed through satisfaction questionnaires and qualitative interviews. Proof-of-concept was demonstrated through analyses of findings from validated measures of depression, distress, and ADHD symptoms.</p><p><strong>Results: </strong>Findings support acceptability and feasibility of the intervention and provide evidence of a successful proof-of-concept by demonstrating significant decreases in reported parental depression symptoms and improvements in child inattentive and hyperactive behaviors.</p><p><strong>Conclusions: </strong>An intervention focused on both caregiver well-being and child behaviors improves overall family functioning. Future research aims to expand the BBB intervention to a larger sample and examine initial efficacy through pilot testing using a randomized design and a larger team of treatment providers.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The moderating role of parental cognitive perceptions in the link between children's cancer predisposition genetic testing results and parent psychological adjustment.","authors":"Leila Sachner, Jessica S Flynn, Chia-Wei Hsu, Haitao Pan, Niki Jurbergs, Alise Blake, Rose B McGee, Lynn Harrison, Missy Robinson, Tolulope Adanri, Kim E Nichols, Katianne M Howard Sharp","doi":"10.1093/jpepsy/jsaf026","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf026","url":null,"abstract":"<p><strong>Objective: </strong>Children with cancer increasingly undergo germline genetic testing to identify genetic predispositions and inform clinical care options. Parents of children with pathogenic/likely pathogenic (P/LP) germline results have reported more distress than parents of children with negative results. Little is known about modifiable risk and resilience factors for intervention, such as cognitive perceptions. This study examined the moderating effects of parents' cognitive perceptions on adjustment to their child's germline genetic test results.</p><p><strong>Methods: </strong>Parents (N = 191) completed surveys reporting cognitive perceptions (i.e., intolerance of uncertainty, symptom attributions, and perceptions of child physical vulnerability) and psychological adjustment 1-3.99 years post-disclosure of their child's genetic test results. Moderation analyses examined whether parents' cognitive perceptions moderated the relation between children's cancer predisposition genetic testing results (P/LP, uncertain [VUS], or negative) and parental psychological adjustment.</p><p><strong>Results: </strong>Moderation analyses revealed significant interactions between genetic test results and both intolerance of uncertainty and psychological attributions for children's symptoms. Specifically, parents of children with P/LP results endorsed significantly more distress and uncertainty compared to each VUS and negative results, only in cases of moderate to high intolerance of uncertainty and psychological attributions (distress outcomes). In contrast, somatic attributions for symptoms and perceived child vulnerability were directly associated with higher distress regardless of results.</p><p><strong>Conclusions: </strong>Cognitions such as intolerance of uncertainty and psychological symptom attribution may contribute to distress among parents of children with P/LP results. Therefore, cognitive interventions (e.g., Cognitive Behavioral Therapy, Acceptance and Commitment Therapy) may help parents manage distress regarding their child's genetic cancer risk.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144143975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Where you are matters: Daily health-related quality of life in parents of children with special healthcare needs.","authors":"Lyndsey N Graham, Shevaun D Neupert","doi":"10.1093/jpepsy/jsaf036","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf036","url":null,"abstract":"<p><strong>Objective: </strong>Parents of children with special healthcare needs (CSHCNs) tend to report low health-related quality of life (HRQoL) in general, however, little is known about parents' day-to-day experiences particularly while their child is in the hospital. Hospital experiences are especially important for families of CSHCN, who are known to spend a considerable amount of time at the hospital. The goals of this study were to examine how daily HRQoL fluctuates in parent caregivers, and to further examine the role of context (hospital vs. home) in daily HRQoL.</p><p><strong>Method: </strong>One hundred parents of CSHCN (18-69 years, M = 38.12, SD = 8.64) were recruited to participate in the TRIUMPH study (To Research, Illuminate, and Understand Medical Parent Health) from inpatient pediatric units at one children's hospital. For 14 consecutive days, participants received email prompts to complete online survey measures reporting on their daily HRQoL.</p><p><strong>Results: </strong>Multilevel models indicated that daily HRQoL fluctuated significantly at both between- and within-person levels. Further, daily HRQoL was significantly lower and had significantly more within-person variability on hospital days as compared to home days.</p><p><strong>Conclusions: </strong>Our results indicated that parents' HRQoL is both poorer and more volatile within the hospital environment. Our results call attention to the need to assess intraindividual variability in parents of CSHCN, as it is clear that parent caregivers are a nuanced population with contextually relevant support needs.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144143977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Commentary: Breaking barriers, centering community voices, and advancing equitable diabetes care for Black and Latine families-lessons from the TEAM intervention.","authors":"Vinkrya N Ellison, Kishan R Desai, Angelica R Eddington, Kristoffer S Berlin","doi":"10.1093/jpepsy/jsaf040","DOIUrl":"10.1093/jpepsy/jsaf040","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"399-401"},"PeriodicalIF":2.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081399","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acceptability and satisfaction of a mindfulness-based healthy eating and stress management program targeting economically marginalized families in a pilot trial.","authors":"Sisi Chen, Jiying Ling, Reese Buhlman, Sophia Tadavich, Tsui-Sui Annie Kao","doi":"10.1093/jpepsy/jsaf010","DOIUrl":"10.1093/jpepsy/jsaf010","url":null,"abstract":"<p><strong>Objectives: </strong>To inform and improve future program development, particularly with economically marginalized families, this study aimed to examine the acceptance and satisfaction of a mindfulness-based healthy eating and stress management program among participating parents and daycare teachers in a pilot trial.</p><p><strong>Methods: </strong>A mixed-methods study was conducted to evaluate a 14-week mindfulness-based program implemented with 107 English-speaking Head Start children (ages 3-5 years) and their parents. The program included a school-based mindful eating curriculum, a home-based parent component to promote mindful eating and reduce parental stress, and a bridging activity connecting home practice with school learning. Quantitative evaluation data were collected from 84 parents (Mage = 30.12 years) and 12 teachers (Mage = 43.92 years) via Qualtrics. Semistructured interviews were conducted with 20 parents (Mage = 31.55 years). Descriptive statistics and thematic analysis were used to analyze data.</p><p><strong>Results: </strong>Both quantitative (95.2%) and qualitative data demonstrated overall satisfaction with the entire program. About 83%-92% of teachers and 85% of parents considered the school-based curriculum to be satisfactory and acceptable. About 88%-100% of parents were satisfied with the Facebook private group and parent meetings. Approximately 91% of parents found the child letters helpful in connecting and translating school learning into mindful practices at home.</p><p><strong>Conclusions: </strong>Results demonstrate high levels of acceptance and satisfaction with the mindfulness-based program among economically marginalized families and daycare teachers. Findings provide several key implications for future interventions to incorporate a mindful eating curriculum into daycare routines, proactively connect home practices with school learning to enhance the interactive influence between children and parents, and form a virtual peer support community through social media platforms and group meetings.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"402-411"},"PeriodicalIF":2.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12112440/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development, validation, and item bias assessment of the Self-Care Inventory-Short-Form among racially and income-diverse adolescents living with type 1 diabetes and their caregivers.","authors":"Vinkrya N Ellison, Kristoffer S Berlin, Kishan R Desai, Kasey R Harry, Corey T Jackson, Mary E Keenan-Pfeiffer, Jessica L Cook, Rachel L Ankney, Kimberly L Klages, Katherine A Semenkovich, Tiffany M Rybak, Gabrielle G Banks, Kathryn Sumpter, Angelica R Eddington","doi":"10.1093/jpepsy/jsaf022","DOIUrl":"10.1093/jpepsy/jsaf022","url":null,"abstract":"<p><strong>Objective: </strong>Youth with type 1 diabetes and their families engage in complex health behaviors to help manage blood glucose levels and to reduce the risk of serious health complications. Given well-documented health disparities in pediatric diabetes, rapid and equitable assessment of diabetes self-care can help identify potential areas where support is needed. This purpose of this study was to (a) develop a short-form of the Self-Care Inventory-Revised (SCI-R) and (b) evaluate validity, reliability, and differential item functioning (DIF) across several socio-illness-demographic variables of the full and short-form SCI-R.</p><p><strong>Methods: </strong>Participants were 181 adolescent-caregiver dyads from the Predicting Resiliency in Youth with Type 1 Diabetes (PRYDE) study who completed a 15-item version of the SCI-R. Adolescents (age: M = 14.64, SD =1.70, range 12-18 years), identifying as female (n = 92), male (n = 92), Black/AA (57%), and/or White (43%), also completed diabetes-specific measures of stress and Health-related Quality of Life (T1D-HRQoL). Youths' most recent hemoglobin A1c (HbA1c) values were extracted from their medical records.</p><p><strong>Results: </strong>Initial items selected based on the six highest factor loadings of 15 were evaluated using DIF analyses. The final 6-item youth and caregiver SCI-SF6 totals correlated with HbA1c, stress, and T1D-HRQoL. They were invariant across participant dyads at the scalar level (root mean squared error of approximation =.077, 90% CI: .056-.098; comparative fit index =.971, standardized root mean square residual = .0490). DIF analyses failed to reject the null hypothesis for item bias factor loadings or item thresholds across age, family income, HbA1c, racial category, gender, and illness duration.</p><p><strong>Conclusions: </strong>The results support initial evidence of equitable assessment, measurement invariance, validity, and reliability for SCI-SF6 across important socio-illness-demographic variables.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"420-432"},"PeriodicalIF":2.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144045775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Minority stress, mental health, and substance use in transgender youth: the moderating role of positive affect.","authors":"Benjamin Parchem, Johnny Berona, Claire A Coyne, Judith T Moskowitz, Yee-Ming Chan, Diane Ehrensaft, Robert Garofalo, Marco A Hidalgo, Johanna Olson-Kennedy, Stephen M Rosenthal, Amy C Tishelman, Diane Chen","doi":"10.1093/jpepsy/jsaf018","DOIUrl":"10.1093/jpepsy/jsaf018","url":null,"abstract":"<p><strong>Objective: </strong>To examine the relationships between gender minority stressors and mental health outcomes among transgender and gender diverse (TGD) youth and explore the moderating role of positive affect.</p><p><strong>Method: </strong>Baseline data of 315 TGD youth (ages 12-20 years old) from the Trans Youth Care-United States study comprised the analytic sample. Youth completed three subscales of the Gender Minority Stress and Resilience Measure for Adolescents (GMSR-A; nondisclosure of gender identity/gender history, negative future expectations, and internalized transphobia), Beck Depression Inventory-II (BDI-II), Revised Children's Manifest Anxiety Scale, Second Edition (RCMAS-2), Alcohol, Smoking and Substance Involvement Screen Test (ASSIST), and the NIH Toolbox Positive Affect survey. Regression analyses using the Hayes PROCESS macro assessed moderation effects.</p><p><strong>Results: </strong>Gender minority stressors were associated with more symptoms of depression (r = 0.29 to 0.42) and anxiety (r = 0.32 to 0.42) and were not significantly associated with substance use (r = -0.01 to 0.10). Positive affect was negatively associated with gender minority stressors (r = -0.19 to -0.24) and mental health/substance use outcomes (r = -0.16 to -0.63). Positive affect significantly buffered the association between nondisclosure of gender identity and depressive symptoms (ΔR2 = 0.02) and protected against the impact of internalized transphobia on anxiety symptoms (ΔR2 = 0.01).</p><p><strong>Conclusions: </strong>Positive affect is a promising modifiable protective factor that buffers the negative impact of gender minority stress on the mental well-being of TGD youth. Adapting existing positive emotion interventions for TGD youth is an indicated future direction for research and clinical practice.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"412-419"},"PeriodicalIF":2.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12112439/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143659142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editorial: The Journal of Pediatric Psychology remains committed to advancing pediatric psychology science.","authors":"Avani C Modi, Kurt A Freeman, Cecelia Valrie, Marisa E Hilliard, Eleanor R Mackey, Katie A Devine, Susan Wood","doi":"10.1093/jpepsy/jsaf037","DOIUrl":"10.1093/jpepsy/jsaf037","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"387"},"PeriodicalIF":2.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144054639","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}