Palliative & Supportive Care最新文献

{"title":"In the letting go.","authors":"Antonio Yaghy","doi":"10.1017/S1478951524002116","DOIUrl":"https://doi.org/10.1017/S1478951524002116","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e32"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013999","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cosmology of belonging: The role of community in the therapeutic use of psychedelics.","authors":"Caroline Dorsen, Lola Noero, Michelle Knapp, Kristin Arden, William E Rosa","doi":"10.1017/S1478951524001688","DOIUrl":"10.1017/S1478951524001688","url":null,"abstract":"<p><strong>Background: </strong>The recent wave of clinical trials of psychedelic substances among patients with life-limiting illness has largely focused on individual healing. This most often translates to a single patient receiving an intervention with researchers guiding them. As social isolation and lack of connection are major drivers of current mental health crises and group work is expected to be an important aspect of psychedelic assisted psychotherapy, it is essential that we understand the role of community in psychedelic healing.</p><p><strong>Objectives: </strong>To explore how psychedelic guides in the United States discuss the role of \"community\" in naturalistic psychedelic groups.</p><p><strong>Methods: </strong>This is a secondary qualitative data study of data from a larger modified ethnographic study of psychedelic plant medicine use in the US. Fifteen facilitators of naturalistic psychedelic groups were recruited via snowball sampling. Content analysis was used to identify themes.</p><p><strong>Results: </strong>Participants viewed the concept of community as essential to every aspect of psychedelic work, from the motivation to use psychedelics, to the psychedelic dosing experience and the integration of lessons learned during psychedelic experiences into everyday life. Themes and subthemes were identified. <i>Theme 1</i>: The arc of healing through community (<i>Subthemes</i>: Community as intention, the group psychedelic journey experience, community and integration); <i>Theme 2</i>: Naturally occurring psychedelic communities as group therapy (<i>Subthemes [as described in Table 2]</i>: Belonging, authenticity, corrective experience, trust, touch).</p><p><strong>Significance: </strong>Results suggest that existing knowledge about therapeutic group processes may be helpful in structuring and optimizing group psychedelic work. More research is needed on how to leverage the benefit of community connection in the therapeutic psychedelic context, including size and composition of groups, selection and dosing of psychedelic substances in group settings, facilitator training, and role of community integration. Psychedelic groups may provide benefits that individual work does not support.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e27"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014118","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mapping the evidence of self-compassion in caregiver wellbeing for caregivers of persons with neurodegenerative disease: A scoping review.","authors":"Christi M Lero, Soobin Park, Emily L Mroz","doi":"10.1017/S1478951524001639","DOIUrl":"10.1017/S1478951524001639","url":null,"abstract":"<p><strong>Objectives: </strong>Caregivers of those with neurodegenerative disease (ND) manage complex symptoms which impact their wellbeing. Self-compassion can promote maintenance of wellbeing during challenging experiences, including caregiving. Little guidance exists for observationally studying self-compassion or targeted interventions for this population. Our objective was to complete a scoping review of research describing self-compassion in the context of caregiver wellbeing of caregivers of those living with ND.</p><p><strong>Methods: </strong>Following Preferred Reporting Items for Systematic Reviews and Meta-analysis extension for Scoping Reviews (PRISMA-ScR) guidelines, 3 online databases identified 350 peer-reviewed articles, 18 of which were included in this study. Eligibility included being written in English, targeting caregivers of those living with ND, and examination of self-compassion. Articles were organized by the incorporation or characterization of self-compassion in the study design.</p><p><strong>Results: </strong>Alzheimer's disease predominated study samples of care recipients. Across study types self-compassion appeared as a theoretical concept, emerging theme, variable associated with other outcomes, and main outcome variable. Self-compassion is frequently measured using the Self-Compassion Scale, full or short form .</p><p><strong>Significance of results: </strong>The study of self-compassion with caregivers of individuals living with ND is growing. Current literature is somewhat unfocussed, leading to gaps in understanding conceptualization to achieve maximum intervention benefits. Clarifying the role of self-compassion in caregiver wellbeing will provide a lens through which non-pharmacologic, psychotherapeutic, and behavioral intervention development may be framed to reduce negative psychological outcomes. The most frequently represented ND is Alzheimer's disease or other dementia, obscuring other NDs like amyotrophic lateral sclerosis, Parkinson's disease, and others.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e38"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Toward comprehensive palliative care through the vital role of culturally adapted spiritual interventions.","authors":"Riza Amalia, Ahmad Razak, Lutfi Hidayati Fauziah, Ria Angin, Wikan Galuh Widyarto, Tamama Rofiqoh, Hanik Mufaridah","doi":"10.1017/S1478951524001780","DOIUrl":"https://doi.org/10.1017/S1478951524001780","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e40"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of structured remembrance programs in supporting the wellbeing of pediatric health workers.","authors":"Rikas Saputra, Isnaria Rizki Hayati, Elni Yakub, Yenni Lidyawati, Rizky Andana Pohan, Mei Sarri","doi":"10.1017/S1478951524001949","DOIUrl":"https://doi.org/10.1017/S1478951524001949","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e47"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013956","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ivan Illich and convivial palliative care.","authors":"Aldis H Petriceks","doi":"10.1017/S1478951524001937","DOIUrl":"https://doi.org/10.1017/S1478951524001937","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e46"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014021","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring hope and expectations amidst the shadows: Navigating through the hearts of cancer patients admitted to a palliative care unit.","authors":"Maria Nikoloudi, Florian Thanasko, Ioanna Tsatsou, Alexandra Mantoudi, Kyriaki Mystakidou","doi":"10.1017/S1478951524002165","DOIUrl":"10.1017/S1478951524002165","url":null,"abstract":"<p><strong>Objectives: </strong>The objective of this study is to conduct an in-depth exploration of the psychological well-being, hope, and expectations of cancer patients receiving care in a palliative care unit, utilizing a qualitative research approach.</p><p><strong>Methods: </strong>We employed the methodology of interpretative phenomenological analysis (IPA). Our data collection involved conducting 1-hour semi-structured interviews with the patients. In the subsequent data analysis, we applied investigator triangulation to ensure rigor and reliability.</p><p><strong>Results: </strong>Understanding patients' hope and expectations from palliative care is crucial as it can serve as an indicator of the quality of care and motivate care providers to fulfill these expectations as much as possible. Throughout the IPA, 3 superordinate themes emerged from the qualitative data: cancer diagnosis and the spectrum of emotions, hope and cancer patient, and oncology patient expectations of palliative care.</p><p><strong>Significance of results: </strong>From the patient's perspective, making sense of their cancer experience involves managing symptoms, redefining their understanding of illness, adapting to functional changes, and fostering open communication among themselves, their families, physicians, and the palliative care team. This underscores the crucial necessity for an interdisciplinary approach and emphasizes the importance of reinforcing positive support systems. In essence, our study delves into the multifaceted psychological aspects of cancer patients in the context of palliative care, shedding light on their hope and expectations as they navigate the challenging terrain of cancer treatment and palliative support.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e26"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessment of psychometric properties of the Persian version of the spiritual care competency self-assessment tool.","authors":"Amir Jalali, Fatemeh Merati Fashi, Mohammad Karami, Parnia Kalhory, Nazanin Mardani Taghvostani, Khalil Moradi","doi":"10.1017/S147895152400141X","DOIUrl":"10.1017/S147895152400141X","url":null,"abstract":"<p><strong>Background: </strong>Spiritual care is essential for the health and well-being of patients and their families, so nursing and midwifery students should have professional competency in this field.</p><p><strong>Objectives: </strong>The present study aimed to translate the Spiritual Care Competency Self-Assessment Tool for nursing and midwifery students into Persian and evaluate its psychometric properties.</p><p><strong>Methods: </strong>This study has a methodological study design.</p><p><strong>Methods measures: </strong>The present study was conducted from July 4 to November 19, 2023, at the Faculty of Nursing and Midwifery in west of Iran. The tool was translated into Persian using the forward-backward translation method. The construct validity was examined using exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) with a total of 536 nursing and midwifery students. The internal consistency was assessed using Cronbach's alpha coefficient. Also, the reliability of the tool was evaluated using the test-retest method. SPSS version 26 and Lisrel version 8 software were used in this study.</p><p><strong>Results: </strong>Face and content validity was confirmed quantitatively and qualitatively. The results of EFA and CFA confirmed the tool with 4 factors and 28 items. CFA results indicated a well-fitting model (comparative fit index [CFI] = .97, Non-Normed Fit Index (NNFI) = .92, goodness of fit index [GFI] = .91, root mean square error of approximation [RMSEA] = .05, Standardized Root Mean Square Residual (SRMR) = .046). Pearson's correlation coefficient confirmed a significant relationship between items, subscales, and the main scale. Also, Cronbach's alpha coefficient (.968) and test-retest (.867) confirmed the reliability of the Persian version of the tool.</p><p><strong>Conclusion: </strong>The present study showed that the Persian version of the EPICC Spiritual Care, with 4 factors and 28 items, was suitable for validation and that its psychometric properties were acceptable according to COSMIN criteria. In general, the results showed that the Persian version of the EPICC Spiritual Care is a valid and reliable tool that students, preceptors, and educators can use in clinical settings as a practical way of discussing and evaluating spiritual care competency in Iran.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e37"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014114","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adapting to the emotional complexity of palliative care communication: Palliative care clinicians' experiences.","authors":"Anna Niederhauser, Martina Egloff, Steffen Eychmueller, Sofia C Zambrano","doi":"10.1017/S1478951524001883","DOIUrl":"10.1017/S1478951524001883","url":null,"abstract":"<p><strong>Objectives: </strong>Communication is essential to medical care and is key in improving patient outcomes. We aimed to understand clinicians' emotions when communicating with patients in palliative care (PC) and the evolution of their communication skills.</p><p><strong>Methods: </strong>Between October and November 2021, 231 Swiss PC clinicians participated in an online cross-sectional survey (65% nurses, 35% physicians). Three questions invited participants to reflect on the development of their communication skills and on their emotions when communicating with patients in PC. Answers to these questions were analyzed thematically.</p><p><strong>Results: </strong><i>Constantly adapting to complex emotions in communication</i> was the overarching theme. Three main themes further allowed for an understanding of different communication challenges: <i>emotions as a dynamic compass, not always under control</i>, and <i>evolving comfort and competence through personal and professional growth</i>. In <i>evolving comfort and competence</i>, 6 strategies helped clinicians overcome fears and improve their confidence in communication: learning by doing and formal training, integrating life experiences and gaining insight from private life, taking time, collaborating and connecting with peers, acknowledging individuality, and connecting with one's own and patients' emotions.</p><p><strong>Significance of results: </strong>Participants described powerful emotional experiences when communicating with patients in PC, underscoring the emotional labor involved in PC communication. Our study highlights the need to re-conceptualize emotions as a valuable resource rather than a hindrance in clinical practice. The interplay between personal and professional identities in shaping communication skills, emphasizes the importance of emotional competence as a core professional skill. As clinicians often develop these skills individually, our findings suggest a need for earlier integration of emotional competence training in medical education, along with ongoing support through collaboration, and improved allocation of time resources, to enhance clinician well-being and patient care.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e43"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating palliative care's role in symptom management for CKD patients in Egypt: A quasi-experimental approach.","authors":"Ateya Megahed Ibrahim, Ishraga A Mohamed, Marwa A Shahin, Takwa Rashwan Mohamed Abd-El Hady, Elsayeda Hamdy Nasr Abdelhalim, Donia Elsaid Fathi Zaghamir, Doaa Bahig Anwr Akl, Laila Zeidan Ghazy Mohammed, Fatma Abdelhalim Moustafa Ahmed","doi":"10.1017/S1478951524001822","DOIUrl":"10.1017/S1478951524001822","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Objectives: &lt;/strong&gt;Chronic kidney disease (CKD) is a global health challenge that affects patients' symptom burden and quality of life. Palliative care interventions show promise in addressing the multiple needs of CKD patients, focusing on symptom management, psychosocial support, and advance care planning. This study aimed to evaluate the effectiveness of palliative care interventions in improving symptom management in patients with CKD.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;The study used a quasi-experimental research design with a sample size of 128 participants diagnosed with CKD. Participants were selected based on strict criteria to ensure consistency of palliative care interventions. Non-probability purposive sampling was used to select participants. Data were collected using validated instruments such as the Edmonton Symptom Assessment System, Kidney Disease Quality of Life-Short Form, Palliative Performance Scale, Dialysis Symptom Index and Functional Assessment of Chronic Illness Therapy-Fatigue. These instruments provided robust measures of symptom severity, quality of life, performance status, symptom burden, and fatigue. The intervention consisted of 4 sessions designed to address symptom management, psychosocial support, and advance care planning strategies.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Post-intervention, CKD patients showed significant improvements across multiple measures. Pain decreased from 6.2 to 4.8 (&lt;i&gt;p&lt;/i&gt; = 0.002, 23% improvement), and fatigue decreased from 7.5 to 6.1 (&lt;i&gt;p&lt;/i&gt; = 0.001, 19% reduction). Depression improved from 5.6 to 4.2 (&lt;i&gt;p&lt;/i&gt; = 0.001, 25% reduction) and anxiety decreased from 4.9 to 3.8 (&lt;i&gt;p&lt;/i&gt; = 0.004, 22% reduction). Physical functioning increased from 65.3 to 72.1 (&lt;i&gt;p&lt;/i&gt; = 0.002, 10% improvement), cognitive function from 72.8 to 78.5 (&lt;i&gt;p&lt;/i&gt; = 0.003, 8% increase), and emotional well-being from 60.2 to 65.7 (&lt;i&gt;p&lt;/i&gt; = 0.004, 9% improvement). Ambulation improved from 75.2 to 81.5 (&lt;i&gt;p&lt;/i&gt; = 0.001, 8% increase), activity from 68.7 to 74.3 (&lt;i&gt;p&lt;/i&gt; = 0.004, 8% increase), and self-care from 82.4 to 88.1 (&lt;i&gt;p&lt;/i&gt; = 0.003, 7% improvement). Nutritional status improved from 79.6 to 85.2 (&lt;i&gt;p&lt;/i&gt; = 0.002, 7% increase) and level of consciousness from 70.3 to 75.8 (&lt;i&gt;p&lt;/i&gt; = 0.005, 8% increase). Fatigue scores decreased significantly from 53.2 to 48.6 (&lt;i&gt;p&lt;/i&gt; = 0.001, 9% decrease), activities of daily living from 50.1 to 45.8 (&lt;i&gt;p&lt;/i&gt; = 0.001, 9% decrease), and well-being from 55.6 to 50.2 (&lt;i&gt;p&lt;/i&gt; = 0.001, 10% improvement).&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Significance of the results: &lt;/strong&gt;The results highlight the potential of palliative care interventions to improve outcomes and well-being for people with CKD. By addressing their complex needs, these interventions offer valuable lessons for nephrology and palliative care practice, emphasizing holistic approaches to patient care. The findings add to the evidence supporting the integration of palliative care into CKD management, highlighting its","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e33"},"PeriodicalIF":1.9,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143012591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}