Palliative & Supportive Care最新文献

{"title":"Blackstar and the limit of prognosis.","authors":"Amilton Dos Santos Júnior","doi":"10.1017/S1478951526103290","DOIUrl":"10.1017/S1478951526103290","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e210"},"PeriodicalIF":2.4,"publicationDate":"2026-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13462471/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148702299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mindfulness as the missing link in spiritual care: Reframing palliative care practice through presence.","authors":"Jeff Clyde Corpuz","doi":"10.1017/S1478951526103307","DOIUrl":"10.1017/S1478951526103307","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e208"},"PeriodicalIF":2.4,"publicationDate":"2026-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13444392/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148674371","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Translation and cross-cultural adaptation of the <i>Identification des patients nécessitant des soins PALLiatifs généraux et spécialisés</i> (ID-PALL©) to Brazilian Portuguese.","authors":"Fernanda Ilha Pedroso, Etiane de Oliveira Freitas, Luis Felipe Dias Lopes, Patrícia Bitencourt Toscani Greco, Graciela Dutra Sehnem, Sahar Obeid, Carlos Laranjeira, Silvana Bastos Cogo","doi":"10.1017/S1478951526103265","DOIUrl":"10.1017/S1478951526103265","url":null,"abstract":"<p><strong>Objectives: </strong>The growing demand for palliative care (PC) services and the need for standardized approaches to patient identification highlight the importance of having validated tools available in Brazilian Portuguese. The absence of culturally adapted instruments may hinder appropriate patient assessment, delay referral to PC services, and ultimately compromise the quality of care delivered. This study aims to translate and adapt the <i>Identification des patients nécessitant des soins PALLiatifs généraux et spécialisés</i> (ID-PALL©) instrument into Brazilian Portuguese.</p><p><strong>Methods: </strong>Herdman's recommendations were followed, which include conceptual, item, and semantic validation stages. After authorization from the ID-PALL© developers, the translation, synthesis of the translated versions, and back-translation of the instrument were performed. Subsequently, a committee of 11 experts evaluated the semantic, idiomatic, conceptual, and cultural equivalence between the versions, resulting in the development of the pre-final version. To validate the instrument's content, this version was pre-tested (<i>n</i> = 30) with the participation of physicians and nurses. For statistical analyses, the content validity coefficient (CVC) was calculated.</p><p><strong>Results: </strong>The cross-cultural adaptation demonstrated the suitability of the translated versions after semantic and cultural adjustments. The pre-final version showed satisfactory comprehension and semantic (CVC), idiomatic (CVC), conceptual (CVC), and cultural (CVC) equivalence, which enabled the development of the final version, named IDPALL-BR. The data obtained in the pre-test demonstrated content validity among the target audience, with a CVC = 0.909.</p><p><strong>Significance of results: </strong>The Brazilian Portuguese version of this instrument has semantic validity and, therefore, shows potential for screening general and specialized PC needs.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e207"},"PeriodicalIF":2.4,"publicationDate":"2026-08-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13439019/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148670865","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient autonomy in advance care planning for Parkinson's disease: Systematic review with narrative synthesis.","authors":"Evie Z Bouma, Jan W Schoones, Ad A Kaptein, Barend W Florijn","doi":"10.1017/S1478951526103277","DOIUrl":"10.1017/S1478951526103277","url":null,"abstract":"<p><strong>Objectives: </strong>Individuals with Parkinson's disease (PD) often experience delays in initiating advance care planning (ACP) and palliative care (PC) which can impact their autonomy as cognitive function declines. Because patient autonomy and decision-making in ACP and PC for individuals with PD is insufficiently explored, this systematic review with narrative synthesis aims to fill this gap by reviewing the existing literature on these topics. It examines how awareness and timing influences ACP and PC implementation, how illness narratives shape decision-making and autonomy perceptions and the roles of caregivers and neurologists in supporting patient autonomy.</p><p><strong>Methods: </strong>We conducted a systematic review with narrative synthesis of original research investigating ACP and PC in individuals with PD in accordance with PRISMA guidelines. The methodological quality of included studies was assessed using the Critical Appraisal Skills Programme checklists. Illness narrative types were categorized according to Arthur W. Frank's framework (chaos, restitution and quest narratives). Findings were synthesized narratively and organized thematically in line with the review objectives.</p><p><strong>Results: </strong>We included 42 studies using quantitative and qualitative methodologies involving 4154 individuals with PD and 2191 caregivers. Several themes were identified. Limited knowledge of ACP and PC explained its lower occurrence. ACP is often delayed due to uncertainty and misconceptions leading to late or crisis-driven discussions. Narrative medicine shows most individuals with PD share chaos narratives reflecting a focus on motor symptoms over autonomy. Lastly, individuals with PD expressed a need for greater autonomy support while ACP counseling is well received and improves understanding of care needs and end-of-life decisions.</p><p><strong>Significance of results: </strong>Delays in initiating ACP and PC are associated with diminished autonomy in individuals with PD. Narrative medicine could help neurologists start ACP and PC discussions earlier, supporting autonomy and thereby aligning care with patient preferences.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e204"},"PeriodicalIF":2.4,"publicationDate":"2026-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13430485/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148563271","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Walking into the treatment room is not just a workflow: Therapeutic relationship as supportive care in daily radiotherapy.","authors":"Hsiao-Chuan Liu, Ching-Hsueh Cheng, Min-Chuan Chang, Yen-Ting Liu, Chao-Yuan Tu","doi":"10.1017/S1478951526103332","DOIUrl":"10.1017/S1478951526103332","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e205"},"PeriodicalIF":2.4,"publicationDate":"2026-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13430477/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148563321","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The language we borrow.","authors":"Vangipuram Harshil Sai","doi":"10.1017/S1478951526103320","DOIUrl":"10.1017/S1478951526103320","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e202"},"PeriodicalIF":2.4,"publicationDate":"2026-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13430478/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148563307","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"On love: <i>Variations on Dante & Cassidy</i>.","authors":"Miguel Julião","doi":"10.1017/S147895152610323X","DOIUrl":"10.1017/S147895152610323X","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e206"},"PeriodicalIF":2.4,"publicationDate":"2026-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13430469/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148563284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Dress rehearsal.","authors":"Bonnie Blair O'Connor","doi":"10.1017/S1478951526103319","DOIUrl":"10.1017/S1478951526103319","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e203"},"PeriodicalIF":2.4,"publicationDate":"2026-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13430476/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148563324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The end of medicine.","authors":"Benjamin Frush","doi":"10.1017/S1478951526103228","DOIUrl":"10.1017/S1478951526103228","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e201"},"PeriodicalIF":2.4,"publicationDate":"2026-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13430475/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148537315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nurses' stressful experiences in providing palliative and end-of-life care for children: A meta-synthesis.","authors":"Ratna Puji Priyanti, Asri, Yu-Wen Chen, Shih-Chun Lin","doi":"10.1017/S1478951526102880","DOIUrl":"10.1017/S1478951526102880","url":null,"abstract":"<p><strong>Objectives: </strong>To explore the stress experienced by nurses while addressing the needs of families during palliative and end-of-life care for children and young adults.</p><p><strong>Methods: </strong>A meta-synthesis was conducted. Six online databases (PubMed, Medline, EMBASE, Cochrane Library, CINAHL, and Airiti) from 2014 to September 15, 2025 were searched.</p><p><strong>Results: </strong>Of the 1,841 citations identified, 34 qualitative studies and 12 case reports were included. All included studies had adequate to strong methodological quality. Three themes emerged from the qualitative findings: (1) never seem to feel fully prepared; (2) sense of unfairness in conflicts of values; and (3) sheathing against traumatic bond attachment.</p><p><strong>Significance of results: </strong>Nurses experience various stresses throughout the nursing process, which evoke avoidance responses. Supporting nurses is as crucial as providing family-centered palliative care to ensure a sustainable healthcare workforce. These findings demonstrate the importance of understanding how nurses perceive their stress in relation to provision of pediatric palliative care to help develop personal and team resilience.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e191"},"PeriodicalIF":2.4,"publicationDate":"2026-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13430483/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148521275","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}