Palliative & Supportive Care最新文献_第7页

Mourning in the time of coronavirus: Examining how grief differs in those who lost loved ones to COVID-19 vs. natural causes in Iran. 冠状病毒时代的哀悼：研究伊朗因 COVID-19 和自然原因失去亲人的人的悲伤有何不同。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S1478951524000348

Hajar Aliyaki, Fereshteh Momeni, Behrouz Dolatshahi, Samaneh Hosseinzadeh, Shahab Yousefi, Fatemeh Abdoli

{"title":"Mourning in the time of coronavirus: Examining how grief differs in those who lost loved ones to COVID-19 vs. natural causes in Iran.","authors":"Hajar Aliyaki, Fereshteh Momeni, Behrouz Dolatshahi, Samaneh Hosseinzadeh, Shahab Yousefi, Fatemeh Abdoli","doi":"10.1017/S1478951524000348","DOIUrl":"10.1017/S1478951524000348","url":null,"abstract":"Objectives: Our study aimed to analyze and compare the grief experiences of individuals in Iran who lost family members to COVID-19 and those who lost loved ones to other natural causes.Methods: In this study, telephone interviews were conducted with 640 first-degree relatives, and finally, a total of 395 people remained in the research. Participants answered the Prolonged Grief Questionnaire (PG-13-R) and Grief Experience Questionnaire.Results: The results showed that the most common symptoms and features of grief were feeling guilt, searching for an explanation, somatic reactions, and rejection, with no significant difference observed between the 2 death groups. However, the average scores for these symptoms were higher in the COVID-19 death group. Moreover, the majority of bereaved reported signs and symptoms of prolonged grief, with a higher percentage in the COVID-19 death group, although there was no significant difference between the 2 death groups in terms of the distribution of symptoms and signs of prolonged grief. These findings suggest that the bereavement process can be challenging, and losing a loved one to COVID-19 may lead to more intense experiences of grief.Significance of results: The study reveals high levels of guilt, searching for meaning, somatic reactions, and rejection among COVID-19 grievers. Losing loved ones to the pandemic appears linked to more intense, prolonged grief symptoms.","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140294967","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development of the pediatric family-based dignity therapy protocol for terminally ill children (ages 7-18) and their families: A mixed-methods study. 为身患绝症的儿童（7-18 岁）及其家人制定儿科家庭式尊严治疗方案：混合方法研究。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S1478951523001839

Junyi Lin, Qiaohong Guo, Xuan Zhou, Huijun Li, Siyu Cai

{"title":"Development of the pediatric family-based dignity therapy protocol for terminally ill children (ages 7-18) and their families: A mixed-methods study.","authors":"Junyi Lin, Qiaohong Guo, Xuan Zhou, Huijun Li, Siyu Cai","doi":"10.1017/S1478951523001839","DOIUrl":"10.1017/S1478951523001839","url":null,"abstract":"Objectives: Dignity therapy (DT) is well-established in adults, and it might potentially benefit the younger population. This study aims to develop a pediatric family-based dignity therapy (P-FBDT) protocol for terminally ill children and their families.Methods: A parallel mixed-methods design was used. The P-FBDT protocol was developed based on the adult DT, and meanwhile by taking children-specific dignity characteristics and Chinese family-oriented culture into consideration. The protocol was then evaluated and modified based on the quantitative and qualitative feedback from 2-round surveys of 14 pediatric oncology or pediatric palliative care experts.Results: The P-FBDT involves terminally ill children and their families in meaningful interactions including a series of conversations and creative activities, which will be recorded and then edited into a document-based generativity entity. The P-FBDT protocol was recognized as highly reasonable and the P-FBDT interview guide was endorsed as important, acceptable, clear, comprehensive, and suitable to be used in pediatric palliative care practice in Chinese culture (>90%). Potential benefits, possible challenges, and practical considerations of the P-FBDT were also proposed.Significance of results: The P-FBDT was perceived to be potentially beneficial to terminally ill children and their families by engaging in a series of meaningful family interactions and creating a lasting memento to be preserved. The protocol needs to be pilot tested among terminally ill children and families for feasibility and potential efficacy in practice.","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121042","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Laughter as medicine. 笑是良药。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S147895152300175X

Tarek Zieneldien

引用次数: 0

Palliative care, COVID-19, and the suffering quotient. 姑息关怀、COVID-19 和痛苦商数。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S147895152300192X

Jana Pilkey

{"title":"Palliative care, COVID-19, and the suffering quotient.","authors":"Jana Pilkey","doi":"10.1017/S147895152300192X","DOIUrl":"10.1017/S147895152300192X","url":null,"abstract":"Objectives: The COVID-19 pandemic presented many challenges for patients with palliative care needs and their care providers. During the early days of the pandemic, visitors were restricted on our palliative care units. These restrictions separated patients from their families and caregivers and led to considerable suffering for patients, families, and health-care providers. Using clinical vignettes that illustrate the suffering caused by visiting restrictions during the pandemic, the introduction of a new concept to help predict when health-care providers might be moved to advocate for their patients is introduced.Methods: We report 3 cases of patients admitted to a palliative care unit during the COVID-19 pandemic and discuss the visiting restrictions placed on their families. In reviewing the cases, we coined a new concept, the \"Suffering Quotient\" (SQ), to help understand why clinical staff might be motivated to advocate for an exemption to the visiting restrictions in one situation and not another.Results: This paper uses 3 cases to illustrate a new concept that we have coined the Suffering Quotient. The Suffering Quotient (SQ) = Perceived Individual (or small group) Suffering/Perceived Population Suffering. This paper also explores factors that influence perceived individual suffering (the numerator) and perceived population suffering (the denominator) from the perspective of the health-care provider.Significance of results: The SQ provides a means of weighing perceived patient and family suffering against perceived contextual population suffering. It reflects the threshold beyond which health-care providers, or other outside observers, are moved to advocate for the patient and ultimately how far they might be prepared to go. The SQ offers a potential means of predicting observer responses when they are exposed to multiple suffering scenarios, such as those that occurred during the COVID-19 pandemic.","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139098971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The last rites in palliative and supportive care: A patient-centered approach. 临终关怀和支持性护理的最后仪式:以病人为中心的方法。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S1478951523001827

Jeff Clyde G Corpuz

引用次数: 0

Housekeeping. 整理内务。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S1478951523001967

Elane Kim

引用次数: 0

Existential suffering as an indication for palliative sedation: Identifying and addressing challenges. 将存在的痛苦作为姑息镇静的适应症：确定并应对挑战。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S1478951524000336

Columba Thomas, Julia D Kulikowksi, William Breitbart, Yesne Alici, Eduardo Bruera, Liz Blackler, Daniel P Sulmasy

引用次数: 0

Terminal lucidity. 终端清醒。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S1478951523001748

Tarek Zieneldien

引用次数: 0

Vacancies. 职位空缺。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S1478951524000154

Christopher Kim

引用次数: 0

Precision medicine. 精准医疗。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-08-01 DOI: 10.1017/S1478951524000075

Tarek Zieneldien

引用次数: 0