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To Lose a Loved One by Medical Assistance in Dying or by Natural Death with Palliative Care: A Mixed Methods Comparison of Grief Experiences. 通过临终医疗救助或通过姑息治疗自然死亡来失去爱人：悲伤经历的混合方法比较。
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-14 DOI: 10.1177/00302228221085191
Philippe Laperle, Marie Achille, Deborah Ummel
{"title":"To Lose a Loved One by Medical Assistance in Dying or by Natural Death with Palliative Care: A Mixed Methods Comparison of Grief Experiences.","authors":"Philippe Laperle, Marie Achille, Deborah Ummel","doi":"10.1177/00302228221085191","DOIUrl":"10.1177/00302228221085191","url":null,"abstract":"<p><p>The integration of assisted dying into end-of-life care is raising reflections on bereavement. Patients and families may be faced with a choice between this option and natural death assisted by palliative care; a choice that may affect grief. Therefore, this study describes and compares grief experiences of individuals who have lost a loved one by medical assistance in dying or natural death with palliative care. A mixed design was used. Sixty bereaved individuals completed two grief questionnaires. The qualitative component consisted of 16 individual semi-structured interviews. We found no statistically significant differences between medically assisted and natural deaths, and scores did not suggest grief complications. Qualitative results are nuanced: positive and negative imprints may influence grief in both contexts. Hastened and natural deaths are death circumstances that seem to generally help ease mourning. However, they can still, in interaction with other risk factors, produce difficult experiences for some family caregivers.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"931-953"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11317015/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44898586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Providing Legal Assisted Dying and Euthanasia Services in a Global Pandemic: Lessons for Ensuring Service Continuity. 在全球流行病中提供法律协助死亡和安乐死服务:确保服务连续性的经验教训。
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-22 DOI: 10.1177/00302228221089120
Pam Oliver, Michael Wilson, Cameron McLaren, Rob Jonquiere
{"title":"Providing Legal Assisted Dying and Euthanasia Services in a Global Pandemic: Lessons for Ensuring Service Continuity.","authors":"Pam Oliver, Michael Wilson, Cameron McLaren, Rob Jonquiere","doi":"10.1177/00302228221089120","DOIUrl":"10.1177/00302228221089120","url":null,"abstract":"<p><p><b>Background & objectives:</b> Identifying the impacts of COVID-19 on patients' and practitioners' access to legal assisted dying and euthanasia (AD&E) services is vital to informing service continuity in an ongoing pandemic.<b>Methods:</b> An anonymous online survey collected qualitative and quantitative data from health practitioners and agencies providing legal AD&E services (<i>n</i> = 89), complemented by semi-structured interviews with 18 survey respondents who volunteered.<b>Results:</b> Following governments' responses to the dynamic pandemic context, rates of AD&E inquiries and requests fluctuated across and within jurisdictions, based on a complex interaction of factors affecting patient access to AD&E agencies and assessors as services were disrupted. Service flexibility and nimbleness became key elements in continuing service availability and included calculated 'rule-breaking' considered justifiable to adhere to established bioethics. Making innovative adjustments to usual practice led to reviewing the effectiveness of AD&E services and laws, resulting in providers now improving services and lobbying for legislative change.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1253-1272"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43734298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Are Sensory Experiences of One's Deceased Spouse Associated with Bereavement-Related Distress? 已故配偶的感官体验是否与丧亲相关的痛苦有关?
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-06 DOI: 10.1177/00302228221078686
Karina S Kamp, Andrew Moskowitz, Helena Due, Helle Spindler
{"title":"Are Sensory Experiences of One's Deceased Spouse Associated with Bereavement-Related Distress?","authors":"Karina S Kamp, Andrew Moskowitz, Helena Due, Helle Spindler","doi":"10.1177/00302228221078686","DOIUrl":"10.1177/00302228221078686","url":null,"abstract":"<p><p>Following late-life spousal bereavement, sensory and quasi-sensory experiences of the deceased (SED) are commonly reported. This longitudinal study examined SED among 310 older widowed adults 6-10 (T1) and 18-20 (T2) months post loss. Reports of SED in the first 6-10 months after loss were associated with higher symptom levels of prolonged grief, post-traumatic stress, and loneliness at T1. Experiencers of SED were more likely to experience symptoms of prolonged grief and post-traumatic stress above cut-off scores at T1. Importantly, only a minority of the experiencers of SED displayed these elevated levels of bereavement-related distress. In addition, employing multi-level-modeling, a similar trajectory of decreasing bereavement-related distress over time was found for both experiencers and non-experiencers of SED. We argue that SED may be one of several potential reactions to bereavement, which should not be seen as an indicator of grief complications per se.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"895-915"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46372362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Crying in My Uniform, For Sure": A Qualitative Thematic Analysis of Loss and Grief Among Soldiers After Losing a Comrade in Combat. “穿着我的制服哭泣，这是肯定的”：对在战斗中失去一位同志后士兵的损失和悲伤的定性主题分析。
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-22 DOI: 10.1177/00302228221090749
Einat Yehene, Talya Eitam
{"title":"\"Crying in My Uniform, For Sure\": A Qualitative Thematic Analysis of Loss and Grief Among Soldiers After Losing a Comrade in Combat.","authors":"Einat Yehene, Talya Eitam","doi":"10.1177/00302228221090749","DOIUrl":"10.1177/00302228221090749","url":null,"abstract":"<p><p>Recent studies investigate grief among soldiers who experienced combat loss, but little research exists on the qualitative lived experience of such an event. In this study, semi-structured interviews were conducted with soldiers (n = 19) who lost a comrade (3-21 years ago) to delve into their bereavement process. The reflexive thematic analysis of soldiers' accounts identified six main themes: (1) an unexpected and shattering experience; (2) emotional dissociation; (3) detachment from the outside world; (4) group formation; (5) accommodating the bereaved family; and (6) life-long impact. These themes were positioned on four distinct circles relating to the self and the surrounding social systems, indicating how soldiers' grief unfolds and remains encapsulated and disenfranchised. The findings emphasize the value of peer support groups that should be facilitated and encouraged by official bodies-even years after-as part of providing social recognition.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1211-1232"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45101108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Death Positivity in America: The Movement-Its History and Literature. 美国的死亡积极主义运动——历史与文学。
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-23 DOI: 10.1177/00302228221085176
Aubrey DeVeny Incorvaia
{"title":"Death Positivity in America: The Movement-Its History and Literature.","authors":"Aubrey DeVeny Incorvaia","doi":"10.1177/00302228221085176","DOIUrl":"10.1177/00302228221085176","url":null,"abstract":"<p><p>Western society is in an era of death awareness, its most recent salience: A Positive Death Movement. This article traces the evolution of American death culture by describing key periods of change, starting with the 1700s and going through the 21st century, and overviews contemporary movement scholarship. Experts suggest our current epoch is one in which a diffuse collection of individuals and organizations advocate for approaching death differently. Movement proponents aim to modify society's \"conventional\" death framework, which is characterized as medicalized, institutionalized, impersonal, and lacking psychosocial emotional preparation and engagement.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1233-1252"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43951946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Systematic Review of Common Refractory Symptoms in the End-Of-Life Situation and Its Relation With Euthanasia. 生命末期常见难治性症状及其与安乐死的关系的系统综述
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-20 DOI: 10.1177/00302228221089123
Alba Lucena, Oriol Yuguero
{"title":"Systematic Review of Common Refractory Symptoms in the End-Of-Life Situation and Its Relation With Euthanasia.","authors":"Alba Lucena, Oriol Yuguero","doi":"10.1177/00302228221089123","DOIUrl":"10.1177/00302228221089123","url":null,"abstract":"<p><strong>Aim: </strong>To analyse the available evidence regarding refractory symptoms to treatment in patients receiving palliative/terminal healthcare.</p><p><strong>Design: </strong>A systematic review of various databases between September and December 2020; Pubmed; Cochrane; Scopus and ScienceDirect. Study eligibility criteria: Studies published between 1<sup>st</sup> January 2015 and 31<sup>st</sup> of March 2020, in Spanish, English or Catalan conducted in elderly people or terminal patients. The study included systematic reviews, clinical trials and interventions.</p><p><strong>Results: </strong>The search returned 782 articles, of which 22 articles were finally reviewed. Of the selected articles, 16 were systematic reviews and three were clinical trials. Three refractory symptoms are notable; breathlessness, delirium and existential suffering. There are various therapeutic approaches for the first two symptoms, but palliative sedation seems to be most effective for existential suffering.</p><p><strong>Conclusions: </strong>Although palliative care enables controlling these symptoms effectively, and following a multidisciplinary approach, there remains a group of patients for whom euthanasia could save foreseeable suffering that is difficult to manage.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1113-1127"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47360761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Camp Draws You Back Into Life Again: Exploring the Impact of a Therapeutic Recreation-Based Bereavement Camp for Families Who Have Lost a Child to Serious Illness. 夏令营让你重新回到生活中:探索一个以治疗性娱乐为基础的丧亲营对那些因严重疾病失去孩子的家庭的影响。
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-19 DOI: 10.1177/00302228221075282
Peter Hanlon, Gemma Kiernan, Suzanne Guerin
{"title":"<i>Camp Draws You Back Into Life Again</i>: Exploring the Impact of a Therapeutic Recreation-Based Bereavement Camp for Families Who Have Lost a Child to Serious Illness.","authors":"Peter Hanlon, Gemma Kiernan, Suzanne Guerin","doi":"10.1177/00302228221075282","DOIUrl":"10.1177/00302228221075282","url":null,"abstract":"<p><p>This qualitative study explores the perceptions of impact associated with engaging in a therapeutic recreation-based bereavement camp for families whose child has died from serious illness. Interviews were completed with 12 parents who had participated in a three-camp cycle of the program over 12-month period, including a subgroup who had also attended a reunion camp. Interviews were also conducted with program staff. Thematic analysis generated key themes relating to the perceived impact which suggest that those engaged in this program perceived positive contributions associated with participation, including perceptions of positive impact on coping with bereavement, access to support and implications for family functioning. This study highlights the areas of impact associated with engagement in a therapeutic recreation-based bereavement intervention, and the potential contribution of wider access to these programs for families whose child has died from serious illness.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"986-997"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11317014/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46950953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An Operational Definition of End-of-Life Healthcare: A Complex and Subjective Construct. 临终关怀的操作定义:一个复杂的主观建构。
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-13 DOI: 10.1177/00302228221086058
Erin E Mauck
{"title":"An Operational Definition of End-of-Life Healthcare: A Complex and Subjective Construct.","authors":"Erin E Mauck","doi":"10.1177/00302228221086058","DOIUrl":"10.1177/00302228221086058","url":null,"abstract":"<p><p>Comprehensively defining end-of-life healthcare is a challenge due to the diverse areas of healthcare involved, the various stakeholders, and the range of patient options. This qualitative study examined many areas of end-of-life healthcare including quality, areas for improvement, and healthcare policy in Tennessee, in which the definition of end-of-life healthcare was a focus. Data were collected using semi-structured interviews with 19 participants who included end-of-life healthcare experts and Tennessee legislators. Through this research an operational definition of end-of-life healthcare, encompassing five concepts, was developed. Concepts include: a diagnosis, a timeframe, type of care, location of care, and planning for the future. When considered together, they are the embodiment of what end-of-life healthcare encompasses. Not in a one-fits-all definition, but individually tailored. An understanding of what end-of-life healthcare denotes is essential to maintaining open communication, high quality standards of care, and the protection of patient autonomy.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"954-966"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44974528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Mediating Role of Death Obsessions in the Relationship Between Caregiver Burden and Somatic Symptoms: A Study on the Informal Dementia Caregivers in India. 死亡执念在照顾者负担与躯体症状关系中的中介作用:对印度非正式痴呆症照顾者的研究
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-16 DOI: 10.1177/00302228221090757
Vanshika Beri
{"title":"The Mediating Role of Death Obsessions in the Relationship Between Caregiver Burden and Somatic Symptoms: A Study on the Informal Dementia Caregivers in India.","authors":"Vanshika Beri","doi":"10.1177/00302228221090757","DOIUrl":"10.1177/00302228221090757","url":null,"abstract":"<p><p>This study aimed to analyze the relationship between the caregiver burden, death obsessions, and somatic symptoms; and whether the death obsessions are playing a mediating role in the relationship between the caregiver burden and somatic symptoms. The study was done on the informal dementia caregivers residing in India. Three questionnaires in a google form were circulated. The correlational and mediation analysis revealed that there was a significant and positive correlation between the caregiver burden, death obsessions, and somatic symptoms. Further, the death obsessions significantly mediated the relationship between caregiver burden and somatic symptoms.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1010-1025"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49107850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Re-Conceptualizing Bereavement Care Practices: Insights Gained from Service Providers. 重新构想丧亲护理实践：从服务提供商那里获得的见解。
IF 1.5 4区 心理学
Omega-Journal of Death and Dying Pub Date : 2024-08-01 Epub Date: 2022-04-19 DOI: 10.1177/00302228221086178
Geok Ling Lee, Wai Yee Chee, Irene Teo, Carolyn Ng
{"title":"Re-Conceptualizing Bereavement Care Practices: Insights Gained from Service Providers.","authors":"Geok Ling Lee, Wai Yee Chee, Irene Teo, Carolyn Ng","doi":"10.1177/00302228221086178","DOIUrl":"10.1177/00302228221086178","url":null,"abstract":"<p><p>The management and delivery of bereavement care and support services present practical challenges. A national-level, qualitative study was conducted to examine the current practices in Singapore. The study's purpose was to inform bereavement care practices by drawing from perspectives of service providers offering death, dying and bereavement-related services. This qualitative study was undertaken using focused group discussion (FGD) with service providers from the health, social and death-related sectors. Ten FGDs were conducted with a total of 69 participants. Thematic analysis yield two themes - identifying challenging circumstances to provide bereavement care and strategies for dealing with the gaps in service delivery. The service providers' experiential knowledge could be borrowed to strengthen the current bereavement care practices for the good of the community. The findings have informed the reconceptualization of a local bereavement care and support service model, with the public health model as the recommended underpinning conceptual framework.</p>","PeriodicalId":47794,"journal":{"name":"Omega-Journal of Death and Dying","volume":"1 1","pages":"1074-1093"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46017765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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