Journal of Developmental and Physical Disabilities最新文献

{"title":"A Systematic Review of Longitudinal Trajectories of Mental Health Problems in Children with Neurodevelopmental Disabilities","authors":"H. Danielsson, C. Imms, Magnus Ivarsson, L. Almqvist, L. Lundqvist, G. King, Liz Adams Lyngbäck, A. Andersson, S. Arnell, P. Arvidsson, L. Augustine, R. Brooks, M. Eldh, Lisa Engde, Helena Engkvist, I. Gimbler Berglund, D. Green, K. Huus, Charlotte Karlsson, F. Lygnegård, Linda Sjödin, M. Granlund","doi":"10.1007/s10882-023-09914-8","DOIUrl":"https://doi.org/10.1007/s10882-023-09914-8","url":null,"abstract":"","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46853322","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Me, My Tics and I: An Exploration of Self-Identity and its Implications for Psychological Wellbeing in Young Women with Tourette's Syndrome.","authors":"Janine Coleman,&nbsp;Yvonne Melia","doi":"10.1007/s10882-023-09911-x","DOIUrl":"10.1007/s10882-023-09911-x","url":null,"abstract":"<p><p>Women with Tourette's syndrome (TS) continue to be under-researched, despite female sex being associated with increased tic-related impairment in adulthood. Existing literature indicates that individuals with TS are more likely than the general population to report self-stigma, but little is known about the subjective identities of women with TS and how this relates to psychological wellbeing. Semi-structured interviews were conducted via Zoom with a purposive sample of 11 females. All were diagnosed with TS and aged 18-28. Data was transcribed verbatim and thematic analysis applied. Five themes were established: \"I'm not normal\", \"I just want to be me\", I'm a \"people pleaser\", seeing oneself as an \"outsider\", and \"it's just part of me…it's not going anywhere\". Difficulties with self-acceptance and the autonomy to be one's true self were noted and appeared to be intensified by stereotypical gender roles and attempts to conceal tics. Findings also suggested that personal growth and feelings of mastery can be achieved through embracing TS as part of one's identity, or recognising it as just one aspect of the self. Psychological support focused on accepting and living with tics rather than reducing them may benefit this population and is currently difficult to access. Consideration should also be given to improving the availability of support groups where women with TS can meet others like themselves.</p><p><strong>Supplementary information: </strong>The online version contains supplementary material available at 10.1007/s10882-023-09911-x.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":"1-23"},"PeriodicalIF":1.8,"publicationDate":"2023-05-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10175913/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9770467","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring Barriers and Facilitators to Physical Activity in Adults with ADHD: A Qualitative Investigation.","authors":"Michelle Ogrodnik,&nbsp;Sameena Karsan,&nbsp;Brandon Malamis,&nbsp;Matthew Kwan,&nbsp;Barbara Fenesi,&nbsp;Jennifer J Heisz","doi":"10.1007/s10882-023-09908-6","DOIUrl":"10.1007/s10882-023-09908-6","url":null,"abstract":"<p><p>Attention deficit hyperactivity disorder (ADHD) is a neurodevelopmental disorder characterized by executive dysfunction. Physical activity (PA) may improve executive dysfunction; however, specific barriers and facilitators to PA participation for adults with ADHD have not been formally documented, which was the aim of the present study. Thirty adults with ADHD completed virtual semi-structured interviews, which were analyzed thematically and guided by the Theoretical Domains Framework. Expressions of both barriers and facilitators to PA were identified. Themes such as executive dysfunction (described as forgetfulness, difficulty with sustained focus, and time management), poor self-esteem, and lack of motivation were seen as barriers to PA. Key facilitators were tied to the benefits of being physically active including improvements in executive functioning, mood, and mental health during and after activity, as well as the enjoyment of being active with others. To better support adults with ADHD in initiating physical activity, it is crucial to develop unique resources that are tailored to their specific needs. These resources should be designed to minimize barriers and maximize facilitators, while also supporting the awareness and acceptance of neurodiverse experiences.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":"1-21"},"PeriodicalIF":1.8,"publicationDate":"2023-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10156575/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10074749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Incorporating Choice-Making Opportunities to Increase Engagement in Leisure Activities for Adults with Intellectual and Developmental Disabilities","authors":"C. Clay, Nelungwe Chuunga, Karen V. O’Connor, S. Kahng","doi":"10.1007/s10882-023-09909-5","DOIUrl":"https://doi.org/10.1007/s10882-023-09909-5","url":null,"abstract":"","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"1 1","pages":"1-16"},"PeriodicalIF":1.8,"publicationDate":"2023-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42912771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Revisiting College Entry Testing to Increase Trained Deaf Teachers in the Classrooms.","authors":"Millicent Musyoka,&nbsp;Raymond Doe","doi":"10.1007/s10882-023-09910-y","DOIUrl":"10.1007/s10882-023-09910-y","url":null,"abstract":"<p><p>Graduate Records Examinations (GRE) remain an important criterion for admission to the graduate program. This study explored the predictive role of the GRE for college success among deaf students because most deaf and hard-of-hearing students experience lifelong difficulties in English language and literacy because of their different language acquisition processes. Additionally, the study examined the students' undergraduate grade point average (UGPA), first-semester grade point average (FSGPA), and graduating graduate grade point average (GGPA) to understand D/HH students' performance in a graduate program. Additionally, the study examined the use of the Wechsler Adult Intelligence Scale (WAIS) as a substitute for the GRE criterion for graduate admission. The findings' discussions offer suggestions for using GRE scores in admitting D/HH students to graduate academic programs across the United States.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":"1-22"},"PeriodicalIF":1.8,"publicationDate":"2023-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10123014/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10074745","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Feasibility Trial of Response Contingent Stimulus-Stimulus Pairing to Promote Vocalizations in Minimally Verbal Children Diagnosed with Autism","authors":"M. Shillingsburg, Brittany L. Bartlett, Taylor M. Thompson, Courtney E. McCracken, L. Scahill","doi":"10.1007/s10882-023-09913-9","DOIUrl":"https://doi.org/10.1007/s10882-023-09913-9","url":null,"abstract":"","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"1 1","pages":"1-18"},"PeriodicalIF":1.8,"publicationDate":"2023-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41630868","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Use of Augmentative and Alternative Communication by Individuals with Rett Syndrome Part 2: High-Tech and Low-Tech Modalities.","authors":"Emily K Unholz-Bowden, Shawn N Girtler, Alefyah Shipchandler, Rebecca L Kolb, Jennifer J McComas","doi":"10.1007/s10882-023-09902-y","DOIUrl":"10.1007/s10882-023-09902-y","url":null,"abstract":"<p><p>The vast majority of individuals with Rett syndrome do not utilize natural speech and therefore require alternative and augmentative communication (AAC). The purpose of the current study was to investigate the use of high- and low-tech AAC modalities by three individuals with Rett syndrome given similar instruction for using both modalities. For all participants, the number of sessions to criterion and cumulative number of trials with independent requests during simultaneous or alternating instruction in the use of a high- and low-tech AAC modality were investigated. Parents conducted all sessions with remote coaching from a research assistant via telecommunication. Each participant exhibited idiosyncratic response patterns in terms of use of their high- and low-tech AAC modalities during instruction but ultimately demonstrated the ability to use both modalities to make requests. Implications for future research and practice pertaining to AAC of individuals with complex communication needs are discussed. This paper is a companion to Girtler et al. (2023).</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":"1-21"},"PeriodicalIF":1.5,"publicationDate":"2023-04-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10102680/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9716710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Simultaneous Recording of Objective Sleep in Mothers and School-aged Children with Developmental Disabilities: A Pilot Study of Actigraphy and Videosomnography.","authors":"Jiwon Lee,&nbsp;A J Schwichtenberg,&nbsp;Donald Bliwise,&nbsp;Syeda Zahra Ali,&nbsp;Matthew J Hayat,&nbsp;Patricia C Clark,&nbsp;Regena Spratling","doi":"10.1007/s10882-023-09896-7","DOIUrl":"10.1007/s10882-023-09896-7","url":null,"abstract":"<p><p>Mothers of school-aged children ages 3 to 17 years with developmental disabilities (DDs) commonly report sleep problems in their children associated with impaired maternal sleep. However, existing research relies heavily on mothers' self-reported sleep. This study aimed to determine the feasibility of objectively measuring child and mother sleep-wake patterns using actigraphy and videosomnography. This was an observational pilot study. Mothers wore actigraphy watches and video-recorded their child's sleep for 7 nights. Mothers also completed a 7-day sleep diary and questionnaires on sleep quality, depressive symptoms, stress, and child sleep problems. Ten mothers (32-49 years) and ten children with DDs (8-12 years) completed this study. Half of the children were boys with autism spectrum disorders. We successfully recruited 77% of eligible mothers for the study during the pandemic. Eight mothers successfully wore the actigraphy, and nine successfully video-recorded their child's sleep. Mothers rated their participation positively and considered the data collection protocol acceptable. While mothers' sleep patterns from actigraphy were mostly within recommendations, self-reported sleep quality was poor. Child's sleep estimates from videosomnography showed children slept substantially less than recommended sleep hours. Mothers also reported a high frequency of child sleep problems. Consistent with this pattern, mothers also endorsed elevated stress and depression. The use of actigraphy and videosomnography is feasible. Objective sleep measurement for mothers' and children's sleep is needed with self-report to measure multidimensional aspects of sleep and discrepancies between objective and self-report sleep measures. Future studies can use multi-methods sleep measures and work toward interventions that can improve family sleep and reduce mothers' stress and depression.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":"1-23"},"PeriodicalIF":1.8,"publicationDate":"2023-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10088614/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9716709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Utilizing a Lip Closure Prompt to Increase Food Acceptance in the Treatment of Feeding Disorders","authors":"Alison M. Kozlowski, Ruqian Ma, Maria West, Danielle Gilboy, Jennifer Del Re","doi":"10.1007/s10882-023-09907-7","DOIUrl":"https://doi.org/10.1007/s10882-023-09907-7","url":null,"abstract":"","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"1 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41510853","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Executive Function, Attention and Autism Symptomatology in School-Aged Children with Cerebral Palsy","authors":"J. Wotherspoon, K. Whittingham, J. Sheffield, R. Boyd","doi":"10.1007/s10882-023-09905-9","DOIUrl":"https://doi.org/10.1007/s10882-023-09905-9","url":null,"abstract":"","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47591029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}