Jan Gelech, Elise Matthews, Kathrina Mazurik, Raissa Graumans, Harpell Montgomery, Kate Neufeld, Bonita Beatty, Jordan Wellsch
{"title":"Indigenous Perspectives on Childhood Disability Across Canada: A Critical Integrative Review and Implications for Service Providers.","authors":"Jan Gelech, Elise Matthews, Kathrina Mazurik, Raissa Graumans, Harpell Montgomery, Kate Neufeld, Bonita Beatty, Jordan Wellsch","doi":"10.1007/s10882-025-10020-0","DOIUrl":"10.1007/s10882-025-10020-0","url":null,"abstract":"<p><p>The urgent need for cultural safety and inclusivity when working with Indigenous children with disabilities and their families requires an appreciation of relevant cultural understandings, values, and practices. This critical integrative review identifies and synthesizes works investigating Indigenous perspectives on childhood, development, and disability, emphasizing its significance for professionals in healthcare, social services, and education. A critical integrative review of published works was completed. Five databases were consulted, and the search was supplemented by reference mining and peer and community consultation. Seventeen works met the inclusion criteria. Thematic analysis generated five cultural considerations for service providers working with Indigenous families: 1) the practice of communal child-rearing; 2) relational identities and the minimization of individual differences; 3) children as gifts and teachers; 4) balance and good relations as key to holistic health; and 5) respect for autonomous development. The reviewed works suggest several ways in which Indigenous perspectives on childhood disability might differ from those of many service providers embedded in Western biomedical education and health institutions. Highlighting these disparate views empowers professionals to reflect on how cultural differences could impact their work with Indigenous children and families and consider approaches that align with Indigenous values and ways of knowing. Implications for service delivery and inter-cultural collaboration are discussed.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 2","pages":"357-390"},"PeriodicalIF":1.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13090220/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147724210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aline K Honingh, Linda K M Veerman, Meike Bartels, Paula S Sterkenburg
{"title":"Well-Being and Mental Health of Siblings of Children with Intellectual Disability: a Longitudinal Twin-Family Study.","authors":"Aline K Honingh, Linda K M Veerman, Meike Bartels, Paula S Sterkenburg","doi":"10.1007/s10882-025-10013-z","DOIUrl":"https://doi.org/10.1007/s10882-025-10013-z","url":null,"abstract":"<p><p>Families of children with an intellectual disability (ID) face several challenges that also have consequences for the well-being and mental health of these children's siblings. Many factors contribute to the siblings' well-being and mental health, and several studies have called for replicating their research with longitudinal data. In the present longitudinal study, the well-being and mental health of siblings of children with ID (the ID-group) or typical development (the comparison group) were investigated, considering family factors as mediating and moderating factors. Data were obtained from the Young Netherlands Twin Register, focusing on twins aged 5 to 12 years. Multilevel modelling was used to investigate effects on three sibling outcome measures: well-being, externalizing behavior, and internalizing behavior. The externalizing behavior of the index child (the child with ID in the ID-group; randomly chosen in the comparison group) mediated the relation between the intellectual status (ID vs. no ID) of the index child and their sibling's internalizing behavior. Index child externalizing behavior, parental well-being, and parental monitoring had significant effects on sibling outcomes. Maternal monitoring moderated the relation between the index child's externalizing behavior and their sibling's externalizing behavior. Thus, this longitudinal study confirms and nuances some previously reported relations concerning sibling outcomes. The results imply that it is important that care organizations use a family systems approach, especially when a child has externalizing behavior problems. This study shows that there are different ways to mitigate the impact of a child's externalizing behavior on their sibling, such as through improved parental monitoring.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 1","pages":"79-104"},"PeriodicalIF":1.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12916542/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147272551","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Paige E Cervantes, Dana E M Seag, Argelinda Baroni, Sarah M Horwitz
{"title":"Change in Pediatric Psychiatric Emergency Service Clinicians' Confidence After Training to Improve Care for Autistic Youth At-Risk for Suicide: A Pilot Study.","authors":"Paige E Cervantes, Dana E M Seag, Argelinda Baroni, Sarah M Horwitz","doi":"10.1007/s10882-025-10025-9","DOIUrl":"10.1007/s10882-025-10025-9","url":null,"abstract":"<p><p>Autistic youth visit the emergency department (ED) for psychiatric concerns, including suicidal ideation and behavior, at elevated rates. However, clinicians often report low levels of training and confidence in addressing suicide risk in autistic youth. In this pilot study, clinicians in a pediatric psychiatric emergency service were trained on community- and evidence-informed recommendations to improve suicide-related care for autistic youth and provided with resources to use with autistic youth for a 3-month period. Ratings on attitudes and confidence were obtained from ten providers before and after the training/implementation period and compared. Ratings of feasibility and utility of strategies and resources were obtained from 15 providers after training/implementation and analyzed. While no changes were found across attitudes items, confidence scores were significantly higher after the training/implementation period than before, particularly in the area of suicide risk assessment. Feasibility and utility ratings were generally high, with endorsement patterns aligning with common organizational and systems-level barriers. This pilot study demonstrated that targeted training and evidence-informed recommendations to improve suicide-related care for autistic youth were associated with increased clinician confidence. As research continues in the development of adapted suicide risk assessment tools and management strategies for autistic youth, it is important that both clinical guidance on best practices is provided and that systems-level barriers are addressed.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 2","pages":"317-327"},"PeriodicalIF":1.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13090187/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147724191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Charlotte Verhagen, Myrthe Boekhorst, Nina Kupper, Franca Leeuwis, Stefanie Duijndam
{"title":"Associations between Parental Protective Factors and Child Behavioral Problems in Children with ADHD and ASD.","authors":"Charlotte Verhagen, Myrthe Boekhorst, Nina Kupper, Franca Leeuwis, Stefanie Duijndam","doi":"10.1007/s10882-025-10018-8","DOIUrl":"https://doi.org/10.1007/s10882-025-10018-8","url":null,"abstract":"<p><p>Previous research in neurodivergent children has shown a relation between parental risk factors and child internalizing and externalizing behaviors. Yet, a paucity of studies has examined the association between parental protective factors and child outcomes. This study investigated the association between parental empowerment and resilience and the degree of internalizing and externalizing behaviors in children with autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD). Data were collected through the the In Kaart register between September 2022 and February 2024. Children aged 5 to 15 years (<i>M</i> = 11.1, 32.9% female) with a diagnosis of ADHD and/or ASD were included. Parents (97.1% mothers) filled in questionnaires about their levels of resilience and empowerment, and about their children's behavioral problems. Hierarchical regression analyses revealed that younger child age and higher levels of parental resilience were associated with more externalizing behaviors. Child age did not significantly moderate the relation between resilience and externalizing behaviors. Nevertheless, the pattern observed in the data suggested potential age-related differences in how parental resilience is associated with child behavior. The preliminary findings suggest that resilience might be a mechanism for adapting to increased parenting demands associated with raising a neurodivergent child with problem behaviors. Furthermore, parental empowerment may not be directly associated with child problems, giving room for future research to delve into other factors that play a role in the association between parental protective factors and child outcomes. The current findings highlight the need to examine this relation in larger, more diverse samples.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 1","pages":"165-180"},"PeriodicalIF":1.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12916522/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147272508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Antonio F Pagán, Miriam Ortiz, Erin Bernal, Katherine A Loveland, Ana Esparza, Cecilia Montiel-Nava, Ron Acierno
{"title":"Acculturation, values, and acculturative stress for autistic Latino emerging adults and Spanish-speaking parents participating in the <i>¡Iniciando!</i> la Adultez program.","authors":"Antonio F Pagán, Miriam Ortiz, Erin Bernal, Katherine A Loveland, Ana Esparza, Cecilia Montiel-Nava, Ron Acierno","doi":"10.1007/s10882-025-10008-w","DOIUrl":"10.1007/s10882-025-10008-w","url":null,"abstract":"<p><p>Latino families with emerging adults diagnosed with Autism Spectrum Disorder (ASD) face unique challenges during the transition to adulthood, influenced by cultural values, acculturation, and systemic barriers. Acculturation and acculturative stress are particularly relevant in this population, as they navigate cultural adaptation while maintaining traditional values like familismo (family) and respeto (respect). These dynamics are further complicated by disparities in access to resources and culturally responsive interventions. This study explores the interplay of cultural values, acculturation, and acculturative stress among Latino emerging adults with ASD and their Spanish-speaking parents participating in a culturally adapted and translated intervention. Using a cross-sectional design, we examined data from 26 emerging adults (18-25 years old) and 38 of their parents, assessing cultural values, acculturation levels, acculturative stress, and outcomes. Findings revealed significant acculturative stress in both emerging adults and parents, particularly related to intercultural relations, language, and discrimination. Strong traditional cultural values, such as familismo and respeto, were prevalent and influenced family dynamics and adaptive functioning during the transition to adulthood. A divergence in acculturation levels was noted, with emerging adults displaying higher acculturation, especially in language and social relations. The findings have implications for understanding emerging adulthood and the development of culturally tailored interventions for Latino emerging adults and their parents.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"37 6","pages":"1041-1072"},"PeriodicalIF":1.5,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12851561/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146087673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gabriela Herrera Espinosa, Meghan M Burke, Robert M Hodapp
{"title":"Navigating Adult Disability Services by Latino Families of Youth with Autism.","authors":"Gabriela Herrera Espinosa, Meghan M Burke, Robert M Hodapp","doi":"10.1007/s10882-025-10019-7","DOIUrl":"10.1007/s10882-025-10019-7","url":null,"abstract":"<p><p>Compared to the general population, Latino families of youth with autism face unique barriers in accessing adult disability services. Barriers include limited access to resources in Spanish and discrimination. By characterizing specific barriers to advocacy abilities, including knowledge about adult disability services, advocacy skills and comfort, and empowerment, targeted interventions can be developed to improve service access among Latino families. In this study, we examined the responses of 45 Latino caregivers (primarily mothers) before completing a 12-week advocacy program. Results demonstrated significant positive correlations between comfort in advocating for services and their sense of empowerment. Greater proficiency with the English language positively correlated with advocacy skills and comfort. Compared to empowerment within systems (e.g., service delivery systems, the community/political system), participants demonstrated significant strengths in family empowerment. Findings from this study shed light on the importance of designing culturally responsive resources for Latino families.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":""},"PeriodicalIF":1.5,"publicationDate":"2025-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12851574/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146087626","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Meghan M Burke, Amanda N Johnston, Saury Ramos-Torres, Sanskriti Singh, Leann Smith DaWalt, Julie Lounds Taylor
{"title":"Exploring Parent and Autistic Youth Perspectives to Inform Adaptations for an Advocacy Program.","authors":"Meghan M Burke, Amanda N Johnston, Saury Ramos-Torres, Sanskriti Singh, Leann Smith DaWalt, Julie Lounds Taylor","doi":"10.1007/s10882-025-10005-z","DOIUrl":"10.1007/s10882-025-10005-z","url":null,"abstract":"<p><p>Autistic Youth and their parents often struggle to access adult disability services. It is important to garner feedback from autistic youth and their parents to inform interventions to facilitate access to adult services. In this study, 128 parents of transition-aged autistic youth and 78 autistic youth completed individual interviews to inform adaptations to an advocacy program designed to improve access to adult services. Parents reported wanting a navigator (versus a group) program to help them learn to navigate adult services. However, parents reported concerns about the quality of navigators. Autistic youth reported wanting to learn about diverse issues in adulthood including types of adult services; most youth wanted to learn about services via videos. Implications for research and practice are discussed.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"37 6","pages":"1007-1028"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12615511/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145543281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Incorporating Choice: Examining the Beliefs and Practices of Behavior Analysts Working with Individuals with Disabilities","authors":"Yev Veverka, Adriana Luna, Ashley Penney, Katherine Bateman, Malika Pritchett, Ilene Schwartz, Zeyad Zaino","doi":"10.1007/s10882-024-09987-z","DOIUrl":"https://doi.org/10.1007/s10882-024-09987-z","url":null,"abstract":"<p>Choice-making for individuals with disabilities is an important topic in the field of Applied Behavior Analysis (ABA). Choice is a fundamental human right, and opportunities to make decisions about an individual's own life honors and respects dignity and autonomy. This study explores the beliefs and practices of behavior analysts in relation to choice-making for individuals with disabilities. A total of 81 practicing behavior analysts participated in an online survey that assessed their training experience, beliefs about choice, and reported practices regarding choice in ABA service delivery. The survey responses were analyzed using descriptive statistics and Wilcoxon Signed-Rank Test to compare beliefs and practices. Results showed that while most behavior analysts strongly agreed that choice should be incorporated into ABA services, discrepancies were observed between beliefs and actual practice regarding various factors that influence opportunities to make choices. Multiple barriers to providing choice-making opportunities were identified. The findings underscore the need for increased training and coursework on the subject of choice as well as changes in practice.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"55 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142195638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Differences in Executive Functioning for children with additional learning needs and Autism Spectrum Disorder or Attachment Disorder","authors":"Joanna Davies, Rob Keasley, Phil Reed","doi":"10.1007/s10882-024-09986-0","DOIUrl":"https://doi.org/10.1007/s10882-024-09986-0","url":null,"abstract":"<p>This study explored overlaps in diagnosis and characteristics of children (9–16 years old) with Autism Spectrum Disorder (ASD) and Attachment Disorder (AD) as they related to Executive Function (EF) to determine whether differences in EF would differentiate between the two conditions. A sample of 79 pupils with comorbid learning disabilities was examined in terms of their clinical diagnoses and psychometric traits, as well as on four EF tasks (WCST, Hungry Donkey, Stroop, and Tower of London). 25% of the sample met clinical diagnostic criteria for both ASD and AD, and a similar overlap was noted when using psychometric assessments. Little difference between the EF performances of individuals with ASD and AD was noted. There was slightly better AD performance on cold EF tasks requiring attentional shifting, and slightly better performance for ASD on hot tasks requiring inhibition. However, these differences would be of limited use in differentiating between the conditions for a learning-disabled population.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-09-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142195637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Faris R. Kronfli, J. Stephanie Gonzalez, Malchijah T. Williams, Timothy R. Vollmer
{"title":"Enhancing Assent and Treatment Outcomes: A Case Study on Responding to Aversive Ambient Auditory Stimuli for an Autistic Adult","authors":"Faris R. Kronfli, J. Stephanie Gonzalez, Malchijah T. Williams, Timothy R. Vollmer","doi":"10.1007/s10882-024-09989-x","DOIUrl":"https://doi.org/10.1007/s10882-024-09989-x","url":null,"abstract":"<p>We explored assent procedures to promote assent and treatment effectiveness for an autistic adult. The objective, at the request of the participant, was to evaluate an innovative approach to (a) identify aversive auditory stimuli and (b) teach Steven, a 19-year-old male, appropriate responses in the presence of these stimuli without directly exposing him to the stimuli. The results suggest that the procedures effectively identified auditory stimuli for assessment and taught the participant to avoid the aversive stimuli appropriately (that is, in ways that were not dangerous). Through the implementation of this novel approach, assent and treatment effectiveness were enhanced for the autistic individual.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"41 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142195639","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}