Journal of Developmental and Physical Disabilities最新文献

{"title":"Indigenous Perspectives on Childhood Disability Across Canada: A Critical Integrative Review and Implications for Service Providers.","authors":"Jan Gelech, Elise Matthews, Kathrina Mazurik, Raissa Graumans, Harpell Montgomery, Kate Neufeld, Bonita Beatty, Jordan Wellsch","doi":"10.1007/s10882-025-10020-0","DOIUrl":"10.1007/s10882-025-10020-0","url":null,"abstract":"<p><p>The urgent need for cultural safety and inclusivity when working with Indigenous children with disabilities and their families requires an appreciation of relevant cultural understandings, values, and practices. This critical integrative review identifies and synthesizes works investigating Indigenous perspectives on childhood, development, and disability, emphasizing its significance for professionals in healthcare, social services, and education. A critical integrative review of published works was completed. Five databases were consulted, and the search was supplemented by reference mining and peer and community consultation. Seventeen works met the inclusion criteria. Thematic analysis generated five cultural considerations for service providers working with Indigenous families: 1) the practice of communal child-rearing; 2) relational identities and the minimization of individual differences; 3) children as gifts and teachers; 4) balance and good relations as key to holistic health; and 5) respect for autonomous development. The reviewed works suggest several ways in which Indigenous perspectives on childhood disability might differ from those of many service providers embedded in Western biomedical education and health institutions. Highlighting these disparate views empowers professionals to reflect on how cultural differences could impact their work with Indigenous children and families and consider approaches that align with Indigenous values and ways of knowing. Implications for service delivery and inter-cultural collaboration are discussed.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 2","pages":"357-390"},"PeriodicalIF":1.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13090220/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147724210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Well-Being and Mental Health of Siblings of Children with Intellectual Disability: a Longitudinal Twin-Family Study.","authors":"Aline K Honingh, Linda K M Veerman, Meike Bartels, Paula S Sterkenburg","doi":"10.1007/s10882-025-10013-z","DOIUrl":"10.1007/s10882-025-10013-z","url":null,"abstract":"<p><p>Families of children with an intellectual disability (ID) face several challenges that also have consequences for the well-being and mental health of these children's siblings. Many factors contribute to the siblings' well-being and mental health, and several studies have called for replicating their research with longitudinal data. In the present longitudinal study, the well-being and mental health of siblings of children with ID (the ID-group) or typical development (the comparison group) were investigated, considering family factors as mediating and moderating factors. Data were obtained from the Young Netherlands Twin Register, focusing on twins aged 5 to 12 years. Multilevel modelling was used to investigate effects on three sibling outcome measures: well-being, externalizing behavior, and internalizing behavior. The externalizing behavior of the index child (the child with ID in the ID-group; randomly chosen in the comparison group) mediated the relation between the intellectual status (ID vs. no ID) of the index child and their sibling's internalizing behavior. Index child externalizing behavior, parental well-being, and parental monitoring had significant effects on sibling outcomes. Maternal monitoring moderated the relation between the index child's externalizing behavior and their sibling's externalizing behavior. Thus, this longitudinal study confirms and nuances some previously reported relations concerning sibling outcomes. The results imply that it is important that care organizations use a family systems approach, especially when a child has externalizing behavior problems. This study shows that there are different ways to mitigate the impact of a child's externalizing behavior on their sibling, such as through improved parental monitoring.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 1","pages":"79-104"},"PeriodicalIF":1.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12916542/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147272551","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Lived Experience, Family, and Clinician Perspectives on Barriers to Adult Autism Diagnosis and Post-Diagnostic Supports: A Mixed-Methods Systematic Review.","authors":"Valeria Khudiakova, Jacqueline Sin, Mimi Suzuki, Kirsten Barnicot","doi":"10.1007/s10882-026-10055-x","DOIUrl":"10.1007/s10882-026-10055-x","url":null,"abstract":"<p><p>Obtaining a late Autism diagnosis and post-diagnostic supports can be a long, complicated process. Prior research has explored the perspectives of those with lived experience, family members, and clinicians, but has not yet provided a comparison of their perspectives. This review integrates qualitative and quantitative literature on barriers to diagnosis and post-diagnostic supports from these three perspectives. We also examine barriers reported by gender-diverse and ethnic minority Autistic people. We searched Web of Science, PsycINFO, Embase, Medline, and ProQuest Dissertations & Theses. Study quality was evaluated using Joanna Briggs tools and the Delphi Critical Appraisal Tool. We followed mixed-methods integrative methodology and thematic synthesis approaches to synthesise findings, and GRADE-CERQual to assess confidence in the evidence generated. We included 50 studies on 4487 adult-diagnosed participants, 902 self-identifying participants, 217 family members, and 198 clinicians. Ethnicity and gender identity were scarcely reported. Three analytical themes emerged: recognition and decision-making; negotiation at the interface; and resistance and resolutions. Tensions between stakeholders were seen in several areas, including conflicting views on access to information, diagnostic tools, self-identification, and challenges posed by co-occurring mental health conditions. The GRADE-CERQual appraisal showed moderate-to-high confidence in the findings. Barriers were compounded for gender-diverse and ethnic minority participants. Differences in how barriers (e.g., perceptions of diagnostic practices) are interpreted by stakeholders may themselves hinder access to services. We outline research and clinical implications, including transparent demographic reporting and improved access to information about services.</p><p><strong>Supplementary information: </strong>The online version contains supplementary material available at https://doi.org/10.1007/s10882-026-10055-x.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 5","pages":"979-1018"},"PeriodicalIF":1.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13615933/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Change in Pediatric Psychiatric Emergency Service Clinicians' Confidence After Training to Improve Care for Autistic Youth At-Risk for Suicide: A Pilot Study.","authors":"Paige E Cervantes, Dana E M Seag, Argelinda Baroni, Sarah M Horwitz","doi":"10.1007/s10882-025-10025-9","DOIUrl":"10.1007/s10882-025-10025-9","url":null,"abstract":"<p><p>Autistic youth visit the emergency department (ED) for psychiatric concerns, including suicidal ideation and behavior, at elevated rates. However, clinicians often report low levels of training and confidence in addressing suicide risk in autistic youth. In this pilot study, clinicians in a pediatric psychiatric emergency service were trained on community- and evidence-informed recommendations to improve suicide-related care for autistic youth and provided with resources to use with autistic youth for a 3-month period. Ratings on attitudes and confidence were obtained from ten providers before and after the training/implementation period and compared. Ratings of feasibility and utility of strategies and resources were obtained from 15 providers after training/implementation and analyzed. While no changes were found across attitudes items, confidence scores were significantly higher after the training/implementation period than before, particularly in the area of suicide risk assessment. Feasibility and utility ratings were generally high, with endorsement patterns aligning with common organizational and systems-level barriers. This pilot study demonstrated that targeted training and evidence-informed recommendations to improve suicide-related care for autistic youth were associated with increased clinician confidence. As research continues in the development of adapted suicide risk assessment tools and management strategies for autistic youth, it is important that both clinical guidance on best practices is provided and that systems-level barriers are addressed.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 2","pages":"317-327"},"PeriodicalIF":1.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13090187/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147724191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Associations between Parental Protective Factors and Child Behavioral Problems in Children with ADHD and ASD.","authors":"Charlotte Verhagen, Myrthe Boekhorst, Nina Kupper, Franca Leeuwis, Stefanie Duijndam","doi":"10.1007/s10882-025-10018-8","DOIUrl":"10.1007/s10882-025-10018-8","url":null,"abstract":"<p><p>Previous research in neurodivergent children has shown a relation between parental risk factors and child internalizing and externalizing behaviors. Yet, a paucity of studies has examined the association between parental protective factors and child outcomes. This study investigated the association between parental empowerment and resilience and the degree of internalizing and externalizing behaviors in children with autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD). Data were collected through the the In Kaart register between September 2022 and February 2024. Children aged 5 to 15 years (<i>M</i> = 11.1, 32.9% female) with a diagnosis of ADHD and/or ASD were included. Parents (97.1% mothers) filled in questionnaires about their levels of resilience and empowerment, and about their children's behavioral problems. Hierarchical regression analyses revealed that younger child age and higher levels of parental resilience were associated with more externalizing behaviors. Child age did not significantly moderate the relation between resilience and externalizing behaviors. Nevertheless, the pattern observed in the data suggested potential age-related differences in how parental resilience is associated with child behavior. The preliminary findings suggest that resilience might be a mechanism for adapting to increased parenting demands associated with raising a neurodivergent child with problem behaviors. Furthermore, parental empowerment may not be directly associated with child problems, giving room for future research to delve into other factors that play a role in the association between parental protective factors and child outcomes. The current findings highlight the need to examine this relation in larger, more diverse samples.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 1","pages":"165-180"},"PeriodicalIF":1.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12916522/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147272508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring Parent Perspectives of Feasibility After Intensive Telerehabilitation for Children with Unilateral Cerebral Palsy: A Mixed Methods Study.","authors":"Elizabeth Maus, Angela Rittler, Kylie Amon, Jill Heathcock, Warren Lo, Stephanie DeLuca, Amy Darragh","doi":"10.1007/s10882-025-10033-9","DOIUrl":"10.1007/s10882-025-10033-9","url":null,"abstract":"<p><p>To test the feasibility, acceptability, and appropriateness of parent-enacted telehealth pediatric constraint induced movement therapy (pCIMT) for children with unilateral cerebral palsy (CP). A pCIMT intervention was adapted for telehealth. Participants (<i>n</i> = 12) received 20 sessions (daily, 3 h each) of telehealth pCIMT over 4 weeks. Quantitative data was collected using the Feasibility, Acceptability, and Appropriateness of Intervention Measure (FIM, AIM, IAM) and Usefulness, Usability and Desirability (UUD). Qualitative data was collected via semi-structured, post-treatment, parent interviews and coded using inductive content analysis and constant comparison. Quantitative and qualitative results support feasibility, acceptability, and appropriateness of telehealth pCIMT and usefulness, usability, and desirability of study technology. Median scores on Feasibility, Acceptability, and Appropriateness of Intervention Measure (out of 20 possible points) were 20 (IQR = 5.75), 18.5 (IQR = 3.75) and 20 (IQR = 4), respectively; median ratings on the Usefulness, Usability and Desirability Assessment (7 point likert scale 1-7) were 6 (IQR = 1), 6.5 (IQR = 1), and 6 (IQR = 2.5) respectively. Content analysis of parent interviews yielded three categories: Implementation Potential, Advantages and Disadvantages, and Logistical Considerations. Telehealth pCIMT was feasible, acceptable, and appropriate but is not without challenges. A demonstration of the efficacy of telehealth pCIMT is needed. Registered on Clinicaltrials.gov on 3/21/2022 with ID NCT05303883.</p><p><strong>Supplementary information: </strong>The online version contains supplementary material available at 10.1007/s10882-025-10033-9.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"38 3","pages":"543-562"},"PeriodicalIF":1.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13219209/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148139328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acculturation, values, and acculturative stress for autistic Latino emerging adults and Spanish-speaking parents participating in the <i>¡Iniciando!</i> la Adultez program.","authors":"Antonio F Pagán, Miriam Ortiz, Erin Bernal, Katherine A Loveland, Ana Esparza, Cecilia Montiel-Nava, Ron Acierno","doi":"10.1007/s10882-025-10008-w","DOIUrl":"10.1007/s10882-025-10008-w","url":null,"abstract":"<p><p>Latino families with emerging adults diagnosed with Autism Spectrum Disorder (ASD) face unique challenges during the transition to adulthood, influenced by cultural values, acculturation, and systemic barriers. Acculturation and acculturative stress are particularly relevant in this population, as they navigate cultural adaptation while maintaining traditional values like familismo (family) and respeto (respect). These dynamics are further complicated by disparities in access to resources and culturally responsive interventions. This study explores the interplay of cultural values, acculturation, and acculturative stress among Latino emerging adults with ASD and their Spanish-speaking parents participating in a culturally adapted and translated intervention. Using a cross-sectional design, we examined data from 26 emerging adults (18-25 years old) and 38 of their parents, assessing cultural values, acculturation levels, acculturative stress, and outcomes. Findings revealed significant acculturative stress in both emerging adults and parents, particularly related to intercultural relations, language, and discrimination. Strong traditional cultural values, such as familismo and respeto, were prevalent and influenced family dynamics and adaptive functioning during the transition to adulthood. A divergence in acculturation levels was noted, with emerging adults displaying higher acculturation, especially in language and social relations. The findings have implications for understanding emerging adulthood and the development of culturally tailored interventions for Latino emerging adults and their parents.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"37 6","pages":"1041-1072"},"PeriodicalIF":1.6,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12851561/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146087673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parenting Stress of Parents with Children with Autism Spectrum Disorders with Access to Behavioral Treatment","authors":"Linda A LeBlanc, Claire Schutte, Charna Mintz, Brent A Kaplan, Avery Caffee, Alec Sweatman","doi":"10.1007/s10882-025-10037-5","DOIUrl":"https://doi.org/10.1007/s10882-025-10037-5","url":null,"abstract":"","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147905119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating Adult Disability Services by Latino Families of Youth with Autism.","authors":"Gabriela Herrera Espinosa, Meghan M Burke, Robert M Hodapp","doi":"10.1007/s10882-025-10019-7","DOIUrl":"10.1007/s10882-025-10019-7","url":null,"abstract":"<p><p>Compared to the general population, Latino families of youth with autism face unique barriers in accessing adult disability services. Barriers include limited access to resources in Spanish and discrimination. By characterizing specific barriers to advocacy abilities, including knowledge about adult disability services, advocacy skills and comfort, and empowerment, targeted interventions can be developed to improve service access among Latino families. In this study, we examined the responses of 45 Latino caregivers (primarily mothers) before completing a 12-week advocacy program. Results demonstrated significant positive correlations between comfort in advocating for services and their sense of empowerment. Greater proficiency with the English language positively correlated with advocacy skills and comfort. Compared to empowerment within systems (e.g., service delivery systems, the community/political system), participants demonstrated significant strengths in family empowerment. Findings from this study shed light on the importance of designing culturally responsive resources for Latino families.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2025-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12851574/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146087626","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring Parent and Autistic Youth Perspectives to Inform Adaptations for an Advocacy Program.","authors":"Meghan M Burke, Amanda N Johnston, Saury Ramos-Torres, Sanskriti Singh, Leann Smith DaWalt, Julie Lounds Taylor","doi":"10.1007/s10882-025-10005-z","DOIUrl":"10.1007/s10882-025-10005-z","url":null,"abstract":"<p><p>Autistic Youth and their parents often struggle to access adult disability services. It is important to garner feedback from autistic youth and their parents to inform interventions to facilitate access to adult services. In this study, 128 parents of transition-aged autistic youth and 78 autistic youth completed individual interviews to inform adaptations to an advocacy program designed to improve access to adult services. Parents reported wanting a navigator (versus a group) program to help them learn to navigate adult services. However, parents reported concerns about the quality of navigators. Autistic youth reported wanting to learn about diverse issues in adulthood including types of adult services; most youth wanted to learn about services via videos. Implications for research and practice are discussed.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"37 6","pages":"1007-1028"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12615511/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145543281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}