Journal of Developmental and Physical Disabilities最新文献_第4页

Career Burnout in Parents of Deaf and Hard-of-Hearing Children: Do Self-Regulation and Resilience Matter? 聋哑儿童家长的职业倦怠：自我调节和复原力重要吗？

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-02-22 DOI: 10.1007/s10882-024-09950-y

Sanyin Cheng, Xuxu Li

引用次数: 0

Microlearning as a Concept to Optimize Integrated Services for Racially/Ethnically Diverse Families of Autistic Children 以微学习为理念，优化针对不同种族/族裔自闭症儿童家庭的综合服务

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-02-19 DOI: 10.1007/s10882-024-09948-6

Yue Xu, Zhiwen Xiao, Sandra Vanegas

{"title":"Microlearning as a Concept to Optimize Integrated Services for Racially/Ethnically Diverse Families of Autistic Children","authors":"Yue Xu, Zhiwen Xiao, Sandra Vanegas","doi":"10.1007/s10882-024-09948-6","DOIUrl":"https://doi.org/10.1007/s10882-024-09948-6","url":null,"abstract":"Children on the spectrum often require both formal services and natural unpaid support from caregivers. Recent autism surveillance study in the US has reported an increase in racially/ethnically diverse autistic children (Maenner et al. in MMWR Surveillance Summaries 72(2):1, 2023). Standing at the intersection of race, disability and sometimes immigration status, racially/ethnically diverse autistic children and their caregivers face a plethora of barriers in accessing services and support. The time and effort devoted to learning this knowledge and managing services and support is significant (Brewer in Social Science & Medicine 215:61–68, 2018). As a result, families with low resources often struggle to maintain attendance once recruited to participate in parent training interventions (Carr et al. in Autism 20(6):643–652, 2016; Kasari et al. in Pediatrics, 134(1):e72–e79, 2014). Furthermore, these structural challenges can lead to elevated caregiver stress (DeLambo et al. in Journal of Developmental and Physical Disabilities 23:129–141, 2011; Martinez & Turnage in Issues in Mental Health Nursing 43(11):1030–1040, 2022), which in turn impacts their ability to learn new strategies and manage services (Marin et al. in Neurobiology of Learning and Memory 96(4):583–595, 2011). In the current paper we propose the adoption of using microlearning concept to breakdown culturally responsive interventions into bite-sized chunks to reach caregivers juggling with caregiving and other structural challenges. We present the process of adapting Parents Taking Action, a community-based culturally appropriate intervention targeting racially/ethnically diverse families of young autistic children, using the microlearning approach. We further discuss how the microlearning concept can be applied and its limitations.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"7 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-02-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139902276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Characterization and Impact of a Multidisciplinary Outpatient Pediatric Feeding and Swallowing Program 儿科喂养和吞咽多学科门诊项目的特点和影响

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-02-06 DOI: 10.1007/s10882-024-09946-8

Kathryn Benton, Darcie Delzell, Nicole Nalepa, Mark Fishbein

{"title":"Characterization and Impact of a Multidisciplinary Outpatient Pediatric Feeding and Swallowing Program","authors":"Kathryn Benton, Darcie Delzell, Nicole Nalepa, Mark Fishbein","doi":"10.1007/s10882-024-09946-8","DOIUrl":"https://doi.org/10.1007/s10882-024-09946-8","url":null,"abstract":"Pediatric feeding disorders are common and are often associated with chronic medical conditions and developmental disorders. A multidisciplinary treatment approach may be offered through outpatient or intensive programs. Benefit has been demonstrated with intensive programs, but there is little data regarding outpatient approaches. We described outcomes from a well-established outpatient feeding assessment program related to the referral base and program outcomes. Study packets collecting demographics and self-reported feeding skills were distributed to the referral population and redistributed three months later. Standardized surveys implemented included Montreal Children’s Hospital Feeding Scale (MCH-FS) and parenting stress index (PSI-SF). One hundred and ninety-eight subjects completed the initial packet. MCH-FS was elevated in all subjects indicating a broad range of feeding concerns. PSI elevation was present in a broad range of comorbidities compared to group without comorbidities. At 3 months (n = 55), MCH-FS and feeding skills improved without change in PSI-SF. The quality of therapy overall was deemed excellent to above average by most subjects. A multidisciplinary outpatient program has a role in managing infants and children with feeding disorders regardless of comorbidity. Severely affected individuals may benefit from more intensive programs and/or may require long-term care to effect significant change.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"4 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139768437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Limits and Contributions of Formal Support: Service Providers’ Perspectives on Balancing Formal and Natural Support for People with Disabilities and their Families in Canada 正规支持的局限与贡献：服务提供者关于平衡对加拿大残疾人及其家庭的正式和自然支持的观点

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-01-02 DOI: 10.1007/s10882-023-09944-2

{"title":"The Limits and Contributions of Formal Support: Service Providers’ Perspectives on Balancing Formal and Natural Support for People with Disabilities and their Families in Canada","authors":"","doi":"10.1007/s10882-023-09944-2","DOIUrl":"https://doi.org/10.1007/s10882-023-09944-2","url":null,"abstract":"<h3>Abstract</h3> Evidence suggests that integrated support, combining both natural and formal supports, is often essential for individuals with developmental disabilities to achieve their preferred quality of life. However, studies are limited on how to organize supports so that people with developmental disabilities and their families find a balance between formal and natural supports. Often, there are systemic and personal boundaries around the nature and extent of support that can be offered to persons with developmental disabilities through formal mechanisms, yet the value of natural supports in the lives of persons with developmental disabilities is often undervalued in society. Therefore, the objectives of this study were to explore formal support providers’ perspectives on (a) the unique skillsets and attributes of natural support providers and formal support providers; and (b) how we might best enable both natural and formal supports for persons with developmental disabilities and their families. Following a qualitative approach, we interviewed 16 formal support providers working with adults with developmental disabilities and their families via Zoom. We analyzed data using thematic analysis. We organized results into three themes: the role of natural supports, the role of formal supports, and strategies to best configure a system of supports. Results imply that there is a need for investment of funding to incentivize both support structures for adults with developmental disabilities and their families. Future studies should explore the perspectives from people with developmental disabilities and their natural support providers.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"29 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139078241","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Teaching Cooperation to Children with Autism during Play 在游戏中教自闭症儿童学会合作

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-01-02 DOI: 10.1007/s10882-023-09945-1

Chengan Yuan, Lanqi Wang, Zuxuan Huo, Qiuyu Min

引用次数: 0

Supporting Families: Formal HCBS Supports for Informal Family Caregivers of People with IDD 支持家庭:正式HCBS为IDD患者的非正式家庭照顾者提供支持

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2023-11-27 DOI: 10.1007/s10882-023-09942-4

Carli Friedman

{"title":"Supporting Families: Formal HCBS Supports for Informal Family Caregivers of People with IDD","authors":"Carli Friedman","doi":"10.1007/s10882-023-09942-4","DOIUrl":"https://doi.org/10.1007/s10882-023-09942-4","url":null,"abstract":"Unpaid (informal) family caregivers provide vitally important supports to people with intellectual and developmental disabilities (IDD), but receive little support or training. This study’s aim was to examine how states across the nation supported informal family caregivers in their Medicaid Home- and Community-Based Services (HCBS) programs for people with IDD. To do so, I examined fiscal year (FY) 2021 Medicaid HCBS 1915(c) IDD waivers to determine trends in how they allocated respite, family support services, and family training and counseling, and how they permitted paying family caregivers to provide services. HCBS waivers provided respite services to relieve unpaid caregivers, family support services to relieve caregivers and enhance family functioning, and family training and counseling services to strengthen caregiver abilities and self-efficacy. In FY2021, states projected spending $947.4 million on respite services for 174,406 people with IDD, $433.3 million on family support services for 14,159 people with IDD, and $9.3 million for family training and counseling services for 8,744 people with IDD. In addition, states also supported family caregivers by allowing them to be paid to provide certain HCBS services to their family members with IDD; 1,843 HCBS services, or approximately half of HCBS services in FY2021, allowed family members to be paid to provide services to people with IDD. Through integrated supports, states can maximize the quality of life of both people with IDD and their families.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"36 3","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138513908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Technology-Based Physical Health Interventions for Adults with Intellectual Disability: A Scoping Review 基于技术的成人智力残疾身体健康干预:范围综述

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2023-11-23 DOI: 10.1007/s10882-023-09939-z

Melissa N. Savage, Tina A. Clark, Edward Baffoe, Alexandra E. Candelaria, Lola Aneke, Renee Gonzalez, Ali Al Enizi, Marisol Anguita-Otero, Keita Edwards-Adams, Lilliesha Grandberry, Stella Reed

{"title":"Technology-Based Physical Health Interventions for Adults with Intellectual Disability: A Scoping Review","authors":"Melissa N. Savage, Tina A. Clark, Edward Baffoe, Alexandra E. Candelaria, Lola Aneke, Renee Gonzalez, Ali Al Enizi, Marisol Anguita-Otero, Keita Edwards-Adams, Lilliesha Grandberry, Stella Reed","doi":"10.1007/s10882-023-09939-z","DOIUrl":"https://doi.org/10.1007/s10882-023-09939-z","url":null,"abstract":"Physical health habits including physical activity and nutrition are essential for numerous health benefits. However, beginning in childhood, individuals with intellectual disability engage in lower levels of physical activity and healthy nutrition habits compared to individuals without intellectual disability, a trend that carries on into adulthood. Researchers continue to examine the effectiveness of interventions to increase engagement in physical health habits and improve health outcomes for individuals with intellectual disability, with an increased focus on technology-based interventions. This scoping review aimed to describe how technology was being utilized within interventions to improve health-related outcomes for adults with intellectual disability. We described the technology being used, who used the technology, and the feasibility of the interventions. Forty-one studies met criteria, with a total of 698 adult participants with an intellectual disability. While no studies on nutrition were located, technology was used in various physical activity interventions, with the most common being preferred stimulus access, exergaming, and video-based instruction. Most studies took place at day or rehabilitation centers, were implemented by research teams, and either did not discuss cost or were vague in their description related to cost. Implications, limitations, and future research directions are discussed.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"35 24","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138513909","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Effects of Artificial Intelligence on Implementors’ Fidelity of Instructional Strategies During Handwashing Acquisition in Children with Autism 人工智能对自闭症儿童洗手习得教学策略实施者保真度的影响

4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2023-11-15 DOI: 10.1007/s10882-023-09937-1

Brenna Griffen, Elizabeth R. Lorah, Nicolette Caldwell, Donald A. Hantula, John Nosek, Matt Tincani, Shea Lemley

{"title":"The Effects of Artificial Intelligence on Implementors’ Fidelity of Instructional Strategies During Handwashing Acquisition in Children with Autism","authors":"Brenna Griffen, Elizabeth R. Lorah, Nicolette Caldwell, Donald A. Hantula, John Nosek, Matt Tincani, Shea Lemley","doi":"10.1007/s10882-023-09937-1","DOIUrl":"https://doi.org/10.1007/s10882-023-09937-1","url":null,"abstract":"Abstract Handwashing is a vital skill for maintaining health and hygiene. For individuals with intellectual and developmental disabilities (IDD), such as autism spectrum disorder, evidence-based strategies, such as prompting and task analysis, may be effective in teaching these skills. Due to the shortage of experts who teach individuals with IDD skills such as handwashing, staff working with children need a means of ensuring these instructional strategies are implemented with fidelity. This study examined the effects of a tablet-based application that used artificial intelligence (GAINS®) on four behavior technicians’ implementation of least-to-most prompting, total task chaining, and time delay during an acquisition of handwashing program with young children with autism. All four technicians increased fidelity immediately upon using GAINS and all four technicians reached mastery criteria within the shortest number of sessions possible. One child participant met mastery criteria, two showed some gains, and one demonstrated a high degree of variability across sessions. Limitations of the least-to-most prompting procedure, user design, considerations and directions for future research and practice are discussed.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"9 2","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136228778","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Conceptual View of Expanding Person-Centered Thinking Approaches for Developing Personalized Integrated Supports for People with Disabilities and Their Families 拓展以人为本的思维方法为残疾人及其家庭提供个性化综合支持的概念观点

4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2023-11-11 DOI: 10.1007/s10882-023-09941-5

Michelle C. Reynolds, Mirian E. Ofonedu, Angelina Alpert

引用次数: 0

Correction: Applied Behavior Analysis and Autism Spectrum Disorder in the Gulf Region in the Middle East 更正:中东海湾地区的应用行为分析和自闭症谱系障碍

4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2023-11-10 DOI: 10.1007/s10882-023-09935-3

Michelle P. Kelly, Ingy Alireza, Shariffah Azzaam, Lamis M. Baowaidan, Ahlam A. Gabr, Roqayyah Taqi, Sharifa N. Yateem

引用次数: 0