Journal of Developmental and Physical Disabilities最新文献_第4页

Redesigning Rooms of Clients With Intellectual Disabilities and Severe Behavioral Problems in a Long-term Care Facility: Three Case Studies 重新设计长期护理机构中智障和严重行为问题客户的房间：三个案例研究

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-03-22 DOI: 10.1007/s10882-024-09955-7

Jacqueline Roos, Andrea Möhn, Albert Ponsioen, Robert Didden

{"title":"Redesigning Rooms of Clients With Intellectual Disabilities and Severe Behavioral Problems in a Long-term Care Facility: Three Case Studies","authors":"Jacqueline Roos, Andrea Möhn, Albert Ponsioen, Robert Didden","doi":"10.1007/s10882-024-09955-7","DOIUrl":"https://doi.org/10.1007/s10882-024-09955-7","url":null,"abstract":"To observe changes in three clients with intellectual disabilities and severe behavioral problems and staff in a long-term care residential facility after redesigning the clients’ rooms by making them more personal and homely, adjusting the amount of stimuli, changing the layout, connecting to the outdoor area, and using high-quality natural materials. Relatively many clients with intellectual disabilities exhibit severe problem behaviors, including self-harm, aggression toward others, and repeated destruction of their own rooms, which can eventually result in a barren, inhumane living environment. Research on these clients is limited. Data were collected in a mixed methods study in which quantitative and qualitative data were analyzed. After the redesigns, positive changes were observed in the well-being and behavior of all three clients, for example, with respect to quality of life, privacy, freedom of choice, problem behavior, mood, cognition, activities of daily living, leisure activities, social behavior, self-harm, and constraints. There were no changes in the use of psychotropic medication. Quality of life scores increased in two cases, but were significant in only one. Emotional and behavioral problem scores decreased significantly in two cases, but in only one case these results were maintained at follow-up. Staff experienced a more pleasant, safe, and functional work environment, with improved provision of indicated care and interaction. Absenteeism decreased significantly in two of the three cases. Redesigning clients’ rooms could potentially be a promising intervention for clients with intellectual disabilities and severe chronic behavioral problems.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"42 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140199762","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Preliminary Trial of an Early Surveillance Program for Autism and Developmental Delays within General Practices 在全科医生中开展自闭症和发育迟缓早期监测计划的初步试验

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-03-15 DOI: 10.1007/s10882-024-09952-w

Lisa Karlov, Anne Masi, Antonia Mendoza Diaz, Feroza Khan, Teresa Winata, Melissa Gilbert, Radhika Nair, Cheryl Dissanayake, Josephine Barbaro, Valsamma Eapen

{"title":"A Preliminary Trial of an Early Surveillance Program for Autism and Developmental Delays within General Practices","authors":"Lisa Karlov, Anne Masi, Antonia Mendoza Diaz, Feroza Khan, Teresa Winata, Melissa Gilbert, Radhika Nair, Cheryl Dissanayake, Josephine Barbaro, Valsamma Eapen","doi":"10.1007/s10882-024-09952-w","DOIUrl":"https://doi.org/10.1007/s10882-024-09952-w","url":null,"abstract":"There are inequities in engagement with established early childhood developmental surveillance programs, eclipsing disadvantaged families. The current study sought to address this by dovetailing developmental surveillance with immunization visits and other opportunistic contacts with children at general practices). While 53 General Practices were recruited, significant COVID-19 disruptions resulted in only 81 children being screened (both parent-administered and GP completed). Of the 81 children, 11 screened positive and all of them along with 5% of screen negatives (i.e. 4 children) received clinician-administered reference-standard assessment for autism and developmental delay (DD) using Autism Diagnostic Observation Schedule (ADOS), Autism Diagnostic Interview Schedule –Revised (ADI-R), and Mullen Scales of Early Learning (MSEL). All children found by reference-standard assessment to have probable autism and/or DD had screened positive during the screening process, and 90.9% of children who screened positive were found by reference-standard assessment to have probable DD or autism. The findings provide early evidence for the feasibility and usefulness of parent completed and GP administered developmental measures during opportunistic contacts with GPs as a promising method to facilitate early identification of DD or autism.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"23 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140153892","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Promoting Physical Activity Through Telehealth, Peer Support, and Wearables: A Pilot Randomized Controlled Trial Among Adults with Autism Spectrum Disorder 通过远程医疗、同伴支持和可穿戴设备促进体育锻炼：自闭症谱系障碍成人中的试点随机对照试验

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-03-13 DOI: 10.1007/s10882-024-09951-x

Annabel Nunez-Gaunaurd, Melissa Tovin

{"title":"Promoting Physical Activity Through Telehealth, Peer Support, and Wearables: A Pilot Randomized Controlled Trial Among Adults with Autism Spectrum Disorder","authors":"Annabel Nunez-Gaunaurd, Melissa Tovin","doi":"10.1007/s10882-024-09951-x","DOIUrl":"https://doi.org/10.1007/s10882-024-09951-x","url":null,"abstract":"Despite strong evidence in favor of physical activity (PA), adults with autism spectrum disorder (ASD) are not meeting established PA guidelines to engage in at least 150 min of moderate to vigorous PA per week. Barriers to daily PA engagement include limited access to health services, transportation, and reduced self-determined motivation. Telehealth provides a potential alternative to deliver PA programming in a more accessible platform for adults with ASD. This pilot randomized controlled trial (RCT) assessed the preliminary efficacy of a 10-week PA intervention program called Physical Activity Connections via Telehealth (PACT) that utilized telehealth and remote technology, including Fitbit wearable device use, peer-guidance, and individualized home exercise program among adults with ASD. Primary health outcomes, collected at baseline before randomization and post-intervention, included self-determined motivation assessment via Behavioral Exercise Regulation Scale (BREQ-2), self-report PA via Godin-Shephard Leisure-Time Physical Activity Questionnaire (GSLT-PAQ), steps per day PA via Fitbit device, body mass index (BMI), and waist-to-height ratio (WtHR). A total of 18 adults, 11 males, with a mean age of 26.4 years, with a primary diagnosis of ASD participated in the study. Although there were no changes in BMI or WtHR at post-intervention, participants receiving PACT, significantly increased both their self-report PA scores (GSLT-PAQ) from 26 to 68, (p = 0.002), and steps per day from 5,828 to 7,443, (p = 0.015) with a moderate effect size (d = 0.72). The results of this pilot study support peer supported telehealth-based PA intervention for adults with ASD to increase PA.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"112 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140128202","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Improving the Cultural Responsiveness of Measures for Latino Families of Children with Autism 提高针对拉丁裔自闭症儿童家庭的措施的文化适应性

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-03-12 DOI: 10.1007/s10882-024-09954-8

Meghan M. Burke, Adriana Kaori Terol, Megan Best, W. Catherine Cheung, Abby Hardy

引用次数: 0

Teaching Siblings to Encourage and Praise Play: Supporting Interactions When One Sibling is Autistic 教兄弟姐妹鼓励和赞美游戏：支持兄弟姐妹之一患有自闭症时的互动

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-03-08 DOI: 10.1007/s10882-024-09953-9

{"title":"Teaching Siblings to Encourage and Praise Play: Supporting Interactions When One Sibling is Autistic","authors":"","doi":"10.1007/s10882-024-09953-9","DOIUrl":"https://doi.org/10.1007/s10882-024-09953-9","url":null,"abstract":"<h3>Abstract</h3> Sibling relationships may be strained when one sibling is diagnosed with autism and the other is not. The way that siblings interact during play is one indicator of the quality of this relationship. Non-autistic siblings have been taught to encourage play in their autistic siblings, but there is limited literature examining the impact of intervention on the quality of the siblings’ relationships. In this study, we taught four non-autistic siblings to encourage and praise play with their autistic siblings as well as self-monitor those play skills. We also measured changes in social-communicative behaviors during siblings’ interactions. All non-autistic siblings learned the targeted play skills and the majority increased social-communicative behaviors. Only one autistic child increased their social-communicative behaviors toward their non-autistic sibling. On average, sibling dyads engaged in more interactions, with an increase in the duration of interactions during play. Future sibling intervention research should evaluate child characteristics and intervention factors that may influence children’s response to intervention, additional interventions, and continue to incorporate other measures of relationship quality.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"37 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140074258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Community care: Exploring Natural and Formal Support for People with Disabilities in the Bastis of Mumbai 社区关怀：探索孟买巴斯提斯为残疾人提供的自然和正式支持

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-03-08 DOI: 10.1007/s10882-024-09947-7

Srishti Jaitely, Navjit Gaurav

{"title":"Community care: Exploring Natural and Formal Support for People with Disabilities in the Bastis of Mumbai","authors":"Srishti Jaitely, Navjit Gaurav","doi":"10.1007/s10882-024-09947-7","DOIUrl":"https://doi.org/10.1007/s10882-024-09947-7","url":null,"abstract":"Mumbai is home to over 22 million people, of which 41.3% are estimated to live in bastis with limited access to basic facilities and support. The number of people with disabilities living in Mumbai was 0.48 million in 2011, expected to rise to 4 million by 2025. For people with disabilities to live a better quality of life, they require a combination of support from the community for their day-to-day living and formal support for their rehabilitation. This study used a qualitative exploratory approach and explored the benefit of integrated support (natural + formal) for people with disabilities. Fifteen people with diverse disabilities and thirteen support providers were purposely recruited from five bastis, and data was collected through face-to face interviews and through a psycho-social helpline. Three themes, i) understanding formal and natural supports in Bastis, ii) the role of the community, and iii) the Intersection of formal and natural support. Findings indicate that while formal and natural supports have their independent benefits, yet together these supports make life easier and more meaningful for people with disabilities.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"5 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140074335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

ABA Promotes Autonomy and Choice of People with Intellectual and Developmental Disabilities ABA 促进智力和发育障碍人士的自主权和选择权

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-02-27 DOI: 10.1007/s10882-024-09949-5

Matt Tincani, Matthew T. Brodhead, Art Dowdy

引用次数: 0

Career Burnout in Parents of Deaf and Hard-of-Hearing Children: Do Self-Regulation and Resilience Matter? 聋哑儿童家长的职业倦怠：自我调节和复原力重要吗？

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-02-22 DOI: 10.1007/s10882-024-09950-y

Sanyin Cheng, Xuxu Li

引用次数: 0

Microlearning as a Concept to Optimize Integrated Services for Racially/Ethnically Diverse Families of Autistic Children 以微学习为理念，优化针对不同种族/族裔自闭症儿童家庭的综合服务

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-02-19 DOI: 10.1007/s10882-024-09948-6

Yue Xu, Zhiwen Xiao, Sandra Vanegas

{"title":"Microlearning as a Concept to Optimize Integrated Services for Racially/Ethnically Diverse Families of Autistic Children","authors":"Yue Xu, Zhiwen Xiao, Sandra Vanegas","doi":"10.1007/s10882-024-09948-6","DOIUrl":"https://doi.org/10.1007/s10882-024-09948-6","url":null,"abstract":"Children on the spectrum often require both formal services and natural unpaid support from caregivers. Recent autism surveillance study in the US has reported an increase in racially/ethnically diverse autistic children (Maenner et al. in MMWR Surveillance Summaries 72(2):1, 2023). Standing at the intersection of race, disability and sometimes immigration status, racially/ethnically diverse autistic children and their caregivers face a plethora of barriers in accessing services and support. The time and effort devoted to learning this knowledge and managing services and support is significant (Brewer in Social Science & Medicine 215:61–68, 2018). As a result, families with low resources often struggle to maintain attendance once recruited to participate in parent training interventions (Carr et al. in Autism 20(6):643–652, 2016; Kasari et al. in Pediatrics, 134(1):e72–e79, 2014). Furthermore, these structural challenges can lead to elevated caregiver stress (DeLambo et al. in Journal of Developmental and Physical Disabilities 23:129–141, 2011; Martinez & Turnage in Issues in Mental Health Nursing 43(11):1030–1040, 2022), which in turn impacts their ability to learn new strategies and manage services (Marin et al. in Neurobiology of Learning and Memory 96(4):583–595, 2011). In the current paper we propose the adoption of using microlearning concept to breakdown culturally responsive interventions into bite-sized chunks to reach caregivers juggling with caregiving and other structural challenges. We present the process of adapting Parents Taking Action, a community-based culturally appropriate intervention targeting racially/ethnically diverse families of young autistic children, using the microlearning approach. We further discuss how the microlearning concept can be applied and its limitations.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"7 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-02-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139902276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Characterization and Impact of a Multidisciplinary Outpatient Pediatric Feeding and Swallowing Program 儿科喂养和吞咽多学科门诊项目的特点和影响

IF 1.8 4区医学

Journal of Developmental and Physical Disabilities Pub Date : 2024-02-06 DOI: 10.1007/s10882-024-09946-8

Kathryn Benton, Darcie Delzell, Nicole Nalepa, Mark Fishbein

{"title":"Characterization and Impact of a Multidisciplinary Outpatient Pediatric Feeding and Swallowing Program","authors":"Kathryn Benton, Darcie Delzell, Nicole Nalepa, Mark Fishbein","doi":"10.1007/s10882-024-09946-8","DOIUrl":"https://doi.org/10.1007/s10882-024-09946-8","url":null,"abstract":"Pediatric feeding disorders are common and are often associated with chronic medical conditions and developmental disorders. A multidisciplinary treatment approach may be offered through outpatient or intensive programs. Benefit has been demonstrated with intensive programs, but there is little data regarding outpatient approaches. We described outcomes from a well-established outpatient feeding assessment program related to the referral base and program outcomes. Study packets collecting demographics and self-reported feeding skills were distributed to the referral population and redistributed three months later. Standardized surveys implemented included Montreal Children’s Hospital Feeding Scale (MCH-FS) and parenting stress index (PSI-SF). One hundred and ninety-eight subjects completed the initial packet. MCH-FS was elevated in all subjects indicating a broad range of feeding concerns. PSI elevation was present in a broad range of comorbidities compared to group without comorbidities. At 3 months (n = 55), MCH-FS and feeding skills improved without change in PSI-SF. The quality of therapy overall was deemed excellent to above average by most subjects. A multidisciplinary outpatient program has a role in managing infants and children with feeding disorders regardless of comorbidity. Severely affected individuals may benefit from more intensive programs and/or may require long-term care to effect significant change.","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"4 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139768437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0