Journal of Psychosocial Oncology最新文献

{"title":"Socioeconomic inequalities in social support: Examining differences in social support network satisfaction and composition among pediatric cancer caregivers.","authors":"Elizabeth G Bouchard, Mark A Prince, Christopher McCarty, R Lorraine Collins, Olle Jane Z Sahler, Paula C Vincent, Hital Patel, Susan A LaValley, Till Krenz, Julia A Devonish, Kara M Kelly","doi":"10.1080/07347332.2025.2483397","DOIUrl":"https://doi.org/10.1080/07347332.2025.2483397","url":null,"abstract":"<p><strong>Purpose: </strong>Social support is an important factor in shaping healthcare navigation, coping, and psychological outcomes among pediatric cancer caregivers. Socioeconomic status is positively associated with satisfaction with social support, however, less is understood about network features that contribute to these differences. Social networks are the context in which resources and support are exchanged. Networks can exacerbate inequalities by amplifying differences in access to resources. We examined satisfaction with types of social support and composition of support networks among pediatric cancer caregivers to understand how social network dynamics differ by caregiver income and educational attainment.</p><p><strong>Design: </strong>Participants were caregivers of children who received cancer treatment at multiple hospital systems in New York State. All families who met eligibility requirements during the recruitment period were invited to participate in the study, and 59% of caregivers contacted enrolled in the study. We used a self-report survey to collect egocentric social network data from 107 caregivers of pediatric cancer patients. We used bivariate logistic regression to examine differences in network support by income and education. We used Bayesian Zero and One Inflated Beta (ZOIB) regression models to examine differences in network composition by income and education.</p><p><strong>Results: </strong>Income was significantly associated with satisfaction with informational, emotional, and logistical support; and for each additional income category the odds of reporting being satisfied with each type of support increased by nearly 1.5 times. There were also differences in satisfaction with informational support by education, and each additional education category was associated with a nearly 2-fold increased likelihood of satisfaction. Caregivers with higher education reported a relatively lower proportion of family/kin in their network and a relatively greater proportion of health care providers, compared to those with less education.</p><p><strong>Conclusions: </strong>Our results show differences in social support satisfaction and social network composition by income and education among pediatric cancer caregivers. These results have implications for improving intervention. Creating interventions to foster social network ties and activate social support may be a promising direction for promoting health equity.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-14"},"PeriodicalIF":1.5,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143721809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Existing evidence for the use of psychedelics in patients with cancer and other serious illness: A narrative review.","authors":"Jennifer Bires","doi":"10.1080/07347332.2025.2482917","DOIUrl":"https://doi.org/10.1080/07347332.2025.2482917","url":null,"abstract":"<p><strong>Objectives: </strong>Mood disorders and existential distress impact those with cancer or a serious illness at higher rates than the general population. There have been limited pharmacological advances in recent years, and available psychological interventions vary in degree of impact and durability as a treatment modality in this population. A recent renaissance in psychedelic research has suggested that this class of medications might offer an alternative treatment model for anxiety, depression, and existential and psychological distress that often accompanies the diagnosis of a serious illness.</p><p><strong>Methods: </strong>Utilizing a narrative review approach, EMBASE and PubMed databases were searched with no beginning date range through April 2024 to identify randomized controlled clinical trials (RCTs) on LSD, psilocybin and MDMA in palliative care or oncology and other life limiting illnesses.</p><p><strong>Results: </strong>Five articles published between 2011 and 2020 met the inclusion criteria. Three studies utilized psilocybin and one study evaluated MDMA and LSD. The number of participants ranged from 12 to 56 with four studies that utilized a crossover design. Four of the five studies showed a significant decrease in anxiety during at least one time point in their study and three studies indicated a significant decrease in depression. None of the studies reported serious adverse events related to the experimental drug sessions.</p><p><strong>Conclusions: </strong>Psychedelic assisted therapy for the treatment of depression, anxiety and existential distress is a promising treatment modality as an addition or compliment to other available pharmacological and psychotherapeutic treatment modalities.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Unveiling the beauty of narrative therapy in palliative care.","authors":"Vinutha Suresh, Meenakshi V Venketeswaran, Jefrilla Nancy Joseph","doi":"10.1080/07347332.2025.2476146","DOIUrl":"https://doi.org/10.1080/07347332.2025.2476146","url":null,"abstract":"","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-3"},"PeriodicalIF":1.5,"publicationDate":"2025-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143630919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relationship between problem solving dimensions and psychological distress among cancer caregivers.","authors":"Sarah Stolker, Kyle A Pitzer, Cathryn Koplitz, George Demiris, Shannon M Canfield, Debra Parker Oliver, Karla T Washington","doi":"10.1080/07347332.2025.2476142","DOIUrl":"https://doi.org/10.1080/07347332.2025.2476142","url":null,"abstract":"<p><strong>Background: </strong>Family caregivers of patients with cancer face numerous challenges, leading to a heightened risk of psychological distress. Problem-solving abilities of cancer caregivers may influence coping and be relevant in anticipating the level of support needed from palliative care.</p><p><strong>Objective: </strong>Researchers sought to evaluate the relationship between problem-solving dimensions and psychological distress, specifically symptoms of anxiety and depression, among family caregivers of cancer patients receiving outpatient palliative care.</p><p><strong>Methods: </strong>Researchers conducted a cross-sectional exploratory study using data from an ongoing multisite clinical trial. Using block-wise linear regression models, they examined the relationship between psychological distress and problem-solving dimensions.</p><p><strong>Results: </strong>Results identified positive significant associations between negative problem orientation and symptoms of anxiety and depression, and between avoidance problem-solving style and symptoms of depression.</p><p><strong>Conclusion: </strong>Study results shed light on maladaptive problem-solving as influential in cancer caregiver coping, especially as it relates to risk of psychological distress.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143626390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of care partners co-surviving in the context of living with metastatic breast cancer.","authors":"Robin M Lally, Gisele Tlusty, Katherine Tanis, Katherine Lake, Julia Jobanputra, Melanie Cozad","doi":"10.1080/07347332.2025.2465576","DOIUrl":"https://doi.org/10.1080/07347332.2025.2465576","url":null,"abstract":"<p><strong>Objective: </strong>Explore experiences of women and care partners living with metastatic breast cancer (MBC) in the new environment of extended MBC survival. Care partner results are presented.</p><p><strong>Design: </strong>Qualitative descriptive interviews with conventional content analysis.</p><p><strong>Sample: </strong>Twelve care partners nominated by 1-to-5-year MBC survivors participating in the overall study.</p><p><strong>Methods: </strong>Semi-structured interviews conducted over phone, Zoom, and in-person.</p><p><strong>Findings: </strong>\"Becoming a Co-survivor\" entailed 5 categories: Meeting New Challenges, Changing Supportive Roles, Navigating Decisions, Emotional Toll, and Coping. Sixteen subcategories provided depth and dimension. Qualitative differences depicted journeying from heighted emotions to increasing expertise and mutual communication between survivors and care partners over time.</p><p><strong>Conclusions: </strong>MBC care partners possess varied characteristics, and experience challenges influenced by time since MBC diagnosis, necessitating further study.</p><p><strong>Implications for psychosocial providers: </strong>Acknowledge the variety of persons who assume care partner roles, assess needs, and design programs to address psychosocial challenges presenting along the survivorship continuum.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143442348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social risk factors screening preferences among breast and prostate cancer survivors: A qualitative study.","authors":"Laura C Schubel, Jessica Rivera Rivera, Mandi L Pratt-Chapman, Joseph Astorino, Teletia Taylor, Robin Littlejohn, Judith Lee Smith, Susan A Sabatino, Arica White, Bryan O Buckley, Christopher King, Jeanne Mandelblatt, Christopher Gallagher, Hannah Arem","doi":"10.1080/07347332.2025.2463389","DOIUrl":"10.1080/07347332.2025.2463389","url":null,"abstract":"<p><strong>Objectives: </strong>This project aimed to understand the experiences and preferences for social risk factor screening among racially, ethnically, and linguistically diverse cancer survivors in the Washington, DC, region.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with English, Spanish, and Amharic-speaking breast and prostate cancer survivors. Data were inductively coded to identify themes, and differences by race and preferred language were evaluated.</p><p><strong>Findings: </strong>Twenty-two interviews in English (<i>n</i> = 14), Spanish (<i>n</i> = 7), and Amharic (<i>n</i> = 1) among participants who identified as Black (<i>n</i> = 8), White (<i>n</i> = 5), Asian (<i>n</i> = 1), Other (<i>n</i> = 6), and multiracial (<i>n</i> = 2) were completed. Participants reported unresolved needs during treatment including transportation, healthful food, mental health care, financial help, and employment assistance. COVID-19 exacerbated many needs. Most participants did not recall discussing needs with oncology teams, but all participants were open to having these conversations.</p><p><strong>Conclusion(s): </strong>This research reveals that cancer survivors might benefit from culturally appropriate strategies that address social needs.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-19"},"PeriodicalIF":1.5,"publicationDate":"2025-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Getting support when cancer invades your family: changes in wellbeing in young people accessing a community cancer support organization.","authors":"Pandora Patterson, Fiona E J McDonald, Richard Tindle, Kit Bibby","doi":"10.1080/07347332.2025.2452863","DOIUrl":"https://doi.org/10.1080/07347332.2025.2452863","url":null,"abstract":"<p><strong>Objective: </strong>A preliminary examination of the psychosocial wellbeing of young people impacted by a family member's cancer, and changes after engaging with a community cancer support organization.</p><p><strong>Methods: </strong>Five-hundred-and-sixty young people attending a community cancer support organization self-reported distress and unmet needs at baseline and 6-month follow-up. This included young people who: had a brother or sister living with cancer (\"siblings\"); had a parent living with cancer (\"offspring\"); had lost a brother or sister to cancer (\"bereaved siblings\"); or had lost a parent to cancer (\"bereaved offspring\").</p><p><strong>Results: </strong>Between 36.1% (siblings) and 57.6% (bereaved offspring) reported high distress; 61.6% (siblings) to 88.1% (bereaved offspring) endorsed 10+ needs. Distress decreased significantly for offspring and bereaved offspring, and unmet needs decreased significantly for siblings, offspring and bereaved offspring. Between 50.0% (siblings) and 63.6% (bereaved siblings) showed significant improvement in distress, unmet needs, or both.</p><p><strong>Conclusions: </strong>Many young people impacted by family cancer have elevated distress and unmet needs. Engagement with a community cancer support organization may improve their psychosocial wellbeing.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143400408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"COVID-19, a natural experiment. Did it create an opportunity to reduce racial disparities in psychosocial oncology and change how we deliver care?","authors":"Amy K Siston, Kristen C Jacobson, Marie B Tobin","doi":"10.1080/07347332.2025.2458693","DOIUrl":"https://doi.org/10.1080/07347332.2025.2458693","url":null,"abstract":"<p><strong>Purpose: </strong>There is evidence to support the acceptability of telehealth among oncology patients, but inconsistencies regarding access and use in underserved populations.</p><p><strong>Aims: </strong>This study used the COVID-19 pandemic as a natural experiment to test whether implementation of telehealth for patients referred to a psychosocial oncology (PSO) service would 1) increase PSO access and utilization and 2) reduce racial disparities.</p><p><strong>Methods: </strong>Demographic, medical and appointment completion data for patients referred to a PSO service at an NCI-Designated Comprehensive Cancer Center from March, 2018 to March, 2022 were examined. Descriptive and multivariate logistical regression analyses at both the patient and visit level were conducted. Outcomes were patient follow-up (i.e. ≥ one scheduled PSO appointment) and visit outcome (completed vs. canceled/no-show).</p><p><strong>Results: </strong>The sample included 934 White and 610 Black adult patients (69.8% female) aged 18-95 (<i>M</i> = 56.0, SD = 15.3) who scheduled 5,782 PSO visits. Follow-up rates significantly increased post-COVID among White (66.2%-72.2%; <i>Z</i> = 2.17, <i>p</i> = .03), but not Black patients (73.6%-70.4%; <i>Z</i> = 0.88, <i>p</i> = .38). Among <i>N</i> = 1,089 patients who scheduled at least one PSO appointment, telehealth had a significant effect on visit outcomes (<i>X</i>² = 466.6, df = 2, <i>p</i> < .001). Completed appointments increased (52.5%-79.2%), while rates of canceled (21.8%-11.2%) and no-show appointments (25.7%-9.6%) decreased. Moreover, telehealth resulted in a significantly greater increase in completed appointments for Black patients (44.7%-74.3%), in comparison to White patients (59.4%-81.4%; <i>X</i>² = 4.02, df = 1, <i>p</i> = .045).</p><p><strong>Conclusions: </strong>Black patients were less likely than White patients to show an increase in follow-up with PSO services following onset of COVID. However, among patients with one or more scheduled appointments, the use of telehealth significantly decreased racial disparities in appointment completion rates. Findings suggest that the relationship between telehealth and racial disparities in PSO care is nuanced.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-13"},"PeriodicalIF":1.5,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143256968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"More than an extra set of ears: A video-based analysis exploring the role of companions in routine oncology visits.","authors":"Berit Hofset Larsen, Jennifer Gerwing, Tonje Lundeby, Pål Gulbrandsen, Reidun Førde","doi":"10.1080/07347332.2025.2457964","DOIUrl":"10.1080/07347332.2025.2457964","url":null,"abstract":"<p><strong>Purpose: </strong>Patients with advanced cancer commonly bring a companion to medical appointments, often a family member. Despite increasing focus on family involvement, few studies are based on observations of real-life consultations. This study aimed to explore how companions contribute to the information exchange process during advanced cancer outpatient visits.</p><p><strong>Methods: </strong>Data were ten videos of routine oncology visits. We identified when and how companions participated using microanalysis of clinical interaction.</p><p><strong>Findings: </strong>Companion participation varied greatly. They tended to speak up spontaneously, contributing medical, personal, and contextual information that might otherwise have remained unsaid. They both brought information into the discussion and facilitated information exchanged between the physician and patient. Companions displayed few of their own concerns.</p><p><strong>Conclusions: </strong>The findings suggest that companions may be an important resource during oncology visits, not only for the patient, but also for healthcare providers aiming for person-centered care to the individual patient.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-22"},"PeriodicalIF":1.5,"publicationDate":"2025-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143256976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A mixed methods pilot study of a virtual therapeutic writing intervention for adolescent/young adults with cancer.","authors":"Chelsea S Rapoport, Alyssa K Choi, Siloh Radovsky, Melinda A Chen, Mary Devereaux, Megan Korhummel, Shea O'Donnell, Vanessa L Malcarne, Dennis J Kuo","doi":"10.1080/07347332.2025.2454497","DOIUrl":"https://doi.org/10.1080/07347332.2025.2454497","url":null,"abstract":"<p><strong>Objective: </strong>To evaluate the feasibility and acceptability of a virtual therapeutic writing intervention for AYAs with cancer.</p><p><strong>Methods: </strong>A single-arm pilot study of the intervention was conducted at Rady Children's Hospital San Diego. The six-session intervention was facilitated by a writing coach over two to three months, during which time participants produced written work regarding their experiences with cancer. Primary outcomes were measures of acceptability and feasibility, assessed via quantitative and qualitative methods.</p><p><strong>Results: </strong>Study enrollment and retention rates were 75% and 83%, respectively. Participants rated all intervention sessions as highly enjoyable, helpful, useful, and satisfactory. Qualitatively, participants reported that the intervention helped them cope with their cancer and they would recommend the study to others with cancer.</p><p><strong>Conclusions: </strong>This virtual therapeutic writing study is feasible and acceptable among AYAs with cancer. A randomized controlled trial should be conducted to test the efficacy of the intervention for improving psychosocial outcomes.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-18"},"PeriodicalIF":1.5,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}