Journal of Psychosocial Oncology最新文献

{"title":"Scanxiety in survivors of pancreatic cancer.","authors":"Susan Ellis Winebrenner, Lynne Hall, Carla Hermann, Robert C G Martin","doi":"10.1080/07347332.2024.2408552","DOIUrl":"https://doi.org/10.1080/07347332.2024.2408552","url":null,"abstract":"<p><strong>Purpose: </strong>To understand the scanxiety experience in pancreatic cancer (PC) survivors following curative surgical resection.</p><p><strong>Design: </strong>A qualitative study with a hermeneutic phenomenological approach was used.</p><p><strong>Methods: </strong>Eighteen PC survivors participated. Data from in-depth, semi-structured interviews were analyzed and themes emerged from systematic line-by-line coding of the interview transcripts.</p><p><strong>Findings: </strong>Two key themes emerged: 'the recurring cycle of scanxiety' and 'hope for lifelong remission'. Participants experienced similar patterns of scanxiety that impacted everyday life. Hope was an essential stabilizing component of the cancer-scan experience, and enabled participants to conceptualize a cure, despite the high likelihood of recurrent, incurable disease. A conceptual framework was developed to provide further insight.</p><p><strong>Implications: </strong>Everyday life is significantly affected during times of PC surveillance scans. This study enhances our understanding of the cancer-scan experience and provides a framework to guide care.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2024-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142366943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A descriptive study of the connections between social risk and healthcare utilization with supportive oncology care.","authors":"Rebecca Cammy, Joshua Banks, Celeste Vaughan-Briggs, Gregory Garber, Steven Pantilat, Brooke Worster","doi":"10.1080/07347332.2024.2404560","DOIUrl":"https://doi.org/10.1080/07347332.2024.2404560","url":null,"abstract":"<p><strong>Objective: </strong>This study utilized social risk data in the electronic heath record collected as part of routine clinical practice and examined relationships with supportive oncology care contacts and healthcare utilization.</p><p><strong>Methods: </strong>A total of 2,807 cancer patients were screened for four social determinants of health (SDOH) domains (financial resource strain, housing instability, food insecurity, and transportation need) and categorized to low or high risk SDOH groups. The number of patient contacts with supportive oncology was compared amongst the groups. The data were analyzed for demographic and outcome differences including emergency department visits, inpatient admissions, and appointment adherence.</p><p><strong>Results: </strong>Heightened social risk was associated with more total contacts with supportive oncology care. Patients with high SDOH risk had more contacts across all outcomes examined including emergency department visits (<i>M</i> = 13), inpatient admissions (<i>M</i> = 14), and missed appointments (<i>M</i> = 11).</p><p><strong>Conclusions: </strong>Patients with both greater social risks and acute care utilization are associated with more psychosocial interventions in supportive oncology follow-up. These findings highlight the need for comprehensive action to respond to social risk factors identified in SDOH screening.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336899","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychosocial interventions for post-treatment haematological cancer survivors: An integrative review.","authors":"Deborah Raphael, Rosemary Frey, Tess Moeke-Maxwell, Merryn Gott","doi":"10.1080/07347332.2024.2401394","DOIUrl":"https://doi.org/10.1080/07347332.2024.2401394","url":null,"abstract":"<p><strong>Purpose: </strong>To synthesize literature regarding the implementation and evaluation of psychosocial interventions designed to reduce distress in post-treatment haematological cancer survivors.</p><p><strong>Methods: </strong>An integrative review was conducted according to Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Databases searched were Medline, Cinahl, PsychInfo, WoS, and EMBASE, during November 2022.</p><p><strong>Results: </strong>The total number of eligible studies was 14. The interventions comprised four main intervention categories: care planning, psychological therapy-based, supported self-care/self-management, and survivorship clinic visits. Overall psychosocial interventions were shown to improve outcomes for haematological cancer survivors.</p><p><strong>Conclusions: </strong>Psychosocial interventions may play a role in reducing distress for post-treatment haematological cancer survivors and have shown improvements in both psychological and physical outcomes. However, the evidence base was limited and heterogeneous indicating the need for more research.</p><p><strong>Implications for cancer survivors: </strong>Psychosocial interventions for haematological cancer survivors have the potential to reduce psychosocial distress during the post-treatment period.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298613","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Survey of families’ psychosocial needs in the context of pediatric cancer: a first step toward the participatory development of a group intervention","authors":"Mélina Rivard, Julie Tremblay, Zakaria Mestari, Léandra Desjardins, Élodie Bergeron, Christine Lefebvre","doi":"10.1080/07347332.2024.2404570","DOIUrl":"https://doi.org/10.1080/07347332.2024.2404570","url":null,"abstract":"Pediatric cancer is associated with stressors that increase the risk for distress across family members. Psychosocial support varies and may not meet family needs and preferences. This study invest...","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142253056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Disparities in fertility preservation discussions among sexual and gender minority cancer patients and their cancer care providers.","authors":"Imani N Wilson-Shabazz,Christopher W Wheldon,Michael J Hall,Sarah Bauerle Bass","doi":"10.1080/07347332.2024.2396466","DOIUrl":"https://doi.org/10.1080/07347332.2024.2396466","url":null,"abstract":"BACKGROUNDCancer providers are advised to inform their reproductive aged patients about fertility preservation given the potential for treatment-related infertility. How consistently fertility preservation discussions (FPDs) occur is understudied in sexual and gender minority (SGM) cancer patients. The effects of bias and heteronormativity may reduce the rate of FPDs. We identified the frequency and correlates of FPD in a sample of SGM cancer patients.METHODSData were from the cross-sectional 2020 OUT National Cancer Survey. The sample was restricted to those diagnosed with cancer between the ages of fifteen and forty-five. FPD was measured with a single item. Multivariable logistic regression was conducted to determine factors significantly associated with FPDs.RESULTSAverage age at cancer diagnosis was 34.97 (SD = 8.34). Respondents were mostly non-Hispanic white (77.6%) and college-educated (63.4%), and 32.6% reported FPDs. In the multivariable model, identifying as lesbian (Adjusted odds ratio [aOR] = 0.49; 95% CI: 0.24-0.99), pansexual (aOR = 0.34; 95% CI:0.12-0.94), or queer (aOR = 0.24; 95% CI: 0.08-0.70) was negatively associated with FPDs compared to bisexuals. Being treated more than ten years ago (aOR = 0.47; 95% CI:0.26-0.85) was also negatively associated with FPDs.CONCLUSIONFindings suggest potential bias against some SGM patients based on sexual orientation identity in FPDs, though changes over the past decade may have increased the frequency of FPD with patients more broadly. More research is needed to investigate why some SGM patients of reproductive age are not being counseled about fertility preservation.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142204675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A bibliometric analysis of studies on death anxiety in patients with cancer.","authors":"Wen Li,Hongli Li,Jingcheng Wen,Dong Pang,Yuhan Lu,Hong Yang","doi":"10.1080/07347332.2024.2398098","DOIUrl":"https://doi.org/10.1080/07347332.2024.2398098","url":null,"abstract":"Purpose: This study evaluates the evolution and focal points of research on death anxiety among cancer patients over the last three decades, utilizing bibliometric analyses.Methods: We analyzed publications related to death anxiety among cancer patients from January 1994 to January 2024 using data from the Web of Science Core Collection. Bibliometric indicators such as the number of publications, leading countries, institutions, and research themes were examined.Results: A total of 2,602 papers from 286 institutions across 97 countries were identified. There has been a significant increase in research interest, particularly between 2014 and 2023, with a peak in 2022. The United States and Harvard University were found to be the most prolific contributors. Major research themes include quality of life, palliative care, mental health, and cancer-specific concerns.Conclusion: The results highlight the rapid development in the field of death anxiety research among cancer patients, with an increase in publications and emerging research themes. However, there is limited international and institutional collaboration. The study underscores the need for enhanced cooperative efforts to advance understanding and research in this area, suggesting directions for future research.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142204659","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiencing the COVID-19 health crisis: Quality of life of young to mid-life hematology patients.","authors":"Antoine Belnez, Charlotte Bauquier, Maëva Piton, Ombeline Fayard, Camille Golfier, Caroline Besson, Hervé Ghesquières, Marie Préau","doi":"10.1080/07347332.2024.2384441","DOIUrl":"https://doi.org/10.1080/07347332.2024.2384441","url":null,"abstract":"<p><strong>Purpose: </strong>This study questions the quality of life of young to mid-life hematology patients during lockdowns in France.</p><p><strong>Method: </strong>Fifteen semi-structured interviews were conducted in 2022.</p><p><strong>Findings: </strong>Thematic content analysis identified three main themes: (1) regulating fear of COVID-19 during the health crisis, (2) maintaining relationships and fostering social support during the pandemic, and (3) removing the stigma of cancer with COVID-19: a positive factor for patients' quality of life.</p><p><strong>Interpretation: </strong>Study participants experienced the restrictions imposed on the entire population in the face of COVID-19 in various ways, including positive events. In fact, for some, the lockdown situation allowed them to better \"fit in\" and feel less stigmatized because of their patient status. Indeed, lifestyles specific to them became common barrier gestures to the whole population.</p><p><strong>Implications for psychosocial providers or policy: </strong>The results underline the importance of broadening the communication fields and fostering psychosocial skills in these patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2024-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142005535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using a community-engaged research process to plan, implement, and evaluate a cancer education program to improve knowledge and screening intentions among African American men.","authors":"Whitney George, Malakai Miller, Elizabeth C Stewart, Derek Wilus, LaNese Campbell, Bishop Calvin Barlow, Tilicia L Mayo-Gamble, Claudia Barajas, Cornelius Hill, Vincent Johnson, Lawrence Reed, John Williams, Jennifer Cunningham-Erves","doi":"10.1080/07347332.2024.2379822","DOIUrl":"10.1080/07347332.2024.2379822","url":null,"abstract":"<p><strong>Objective: </strong>We assessed acceptability, feasibility, and preliminary efficacy of a culturally appropriate, cancer education program to improve cancer knowledge, attitudes, subjective norms, and screening intentions for oropharynx, colon, and prostate cancers among African American men. We detailed the community-engaged research process used for African American men to design, implement, and evaluate the program.</p><p><strong>Materials and methods: </strong>We recruited 84 (61 in-person, 23 online) African American men over 2-months across 4 churches in Middle Tennessee in 2021. A single group, pre-post-test design was used to evaluate the 2.5-h hybrid program. Scales used were: <i>General self-efficacy for cancer screening</i>; <i>attitudes toward cancer</i>; <i>general cancer knowledge</i>; and <i>subjective norms related to cancer</i>. One-item measured <i>cancer screening intention</i>. Taba robust partial correlation measured the degree of association between changes in means of each explanatory variable with changes in means of each outcome variable. IBM SPSS version 28 and R/RStudio version 3.6.0 was used for data analysis. We conducted three focus groups (<i>n</i> = 17) to assess program acceptability. Microsoft Excel version 26 was used to conduct thematic analysis for this data.</p><p><strong>Findings: </strong>Quantitative Significant differences were found in the pre/post comparisons of knowledge (mean difference: 0.22; <i>p</i>-value = 0.015), self-efficacy (mean difference: 0.23; <i>p</i>-value < 0.001), and prostate cancer screening intention (mean difference: 0.19; <i>p</i>-value = 0.049) scores. This indicates the mean score for knowledge, self-efficacy, and prostate cancer screening intention was significantly higher post-intervention. <b>Qualitative</b> Focus group themes were: (1) Impact of Program on Participants Psychosocial Health (2) Perspectives on Life after the program. (3) Views on Programmatic Components; (4) Recommendations for Program Improvement.</p><p><strong>Conclusions: </strong>Results demonstrate our program is feasible, acceptable, and could increase cancer screening intentions and behavior. Psychosocial providers should demonstrate cultural awareness and humility when providing services to address the psychological and social needs for cancer screening among African American men.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2024-08-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of emotion regulation through mindfulness in oncological patients: A pilot study.","authors":"Carmen Yélamos Agua, Sofía Luque Suárez, María Ruesga García, Rosario Sepulcre Canto, Renmaly Angulo Belisario, Tamara Hernandez Baute, Carlos Hortelano Luna, Sira Izárbez Loriente, Mercedes Márquez Fernández, Montserrat Parejo Espinar, María Isabel Sánchez Jiménez, Ruth San José García, Elísabeth Berzal Pérez","doi":"10.1080/07347332.2024.2389094","DOIUrl":"https://doi.org/10.1080/07347332.2024.2389094","url":null,"abstract":"<p><strong>Background: </strong>Traditional MBSR or MBTC programs do not delve deeply enough into emotional regulation, which is especially relevant in oncological patients. The aim of this study was to analyze the benefits of a mindfulness-based emotion regulation program in adult oncological patients.</p><p><strong>Method: </strong>Psycho-oncologists from the AECC developed a mindfulness-based emotion regulation program. The Five Facet Mindfulness Questionnaire (FFMQ), Trait Meta-Mood Scale (TMMS), and Hospital Anxiety and Depression Scale (HADS) were administered before and after the program. A single-group pre-post test design with repeated measures was employed, utilizing the General Linear Model.</p><p><strong>Results: </strong>Ninety-seven adult cancer patients completed the pre- and post-program assessments. Statistically significant improvements were observed in all FFMQ subscales, increased clarity of emotional discrimination, mood repair, and statistically significant reductions in anxiety and depressive symptoms.</p><p><strong>Conclusions: </strong>Regardless of the phase of the disease, the results of this study suggest that emotional regulation may improve and anxiety and depressive symptomatology decrease after a mindfulness-based emotion regulation program in oncological patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2024-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding and tackling cancer inequities: What opportunities does intersectionality offer researchers, policymakers, and providers? A scoping review.","authors":"Mar Estupiñán Fdez de Mesa, Afrodita Marcu, Emma Ream, Katriina L Whitaker","doi":"10.1080/07347332.2024.2361642","DOIUrl":"10.1080/07347332.2024.2361642","url":null,"abstract":"<p><strong>Problem identification: </strong>We summarised the international evidence relating to the role of intersectionality in patients' lived experience of inequities along the cancer care pathway. We produced guidance to use intersectionality in future research.</p><p><strong>Literature search: </strong>We included 42 articles published between 1989 to 2023 that used intersectionality to guide the study and interpretation of inequities in cancer care.</p><p><strong>Data evaluation/synthesis: </strong>Articles predominantly comprised North American (<i>n</i> = 37), followed by European (<i>n</i> = 4) and Asian (<i>n</i> = 1) studies. Similar compounding effects of racism, homophobia, and discrimination across countries exacerbated inequities in cancer care experience and cancer outcomes particularly for women of color and sexual/gender minority groups. Professionals' knowledge, attitudes, and behaviors toward minoritised groups affected patient-provider relationships and influenced cancer patients' psychosocial responses.</p><p><strong>Conclusion: </strong>Intersectionality provides a framework to assess the personal, interpersonal, and structural processes through which cancer inequities manifest within and across countries.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2024-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141908011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}